Shows / Global Hemophilia Report
Global Hemophilia Report
Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world. Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme #GHRpod #hemophilia #clinicalresearch #bloodstreammedia
Episodes
Global Hemophilia ReportFactor Levels: What Do They Really Mean?
What do factor levels really tell us about bleeding risk, treatment response, and long-term joint health in hemophilia? On the latest episode of The Global…
Global Hemophilia ReportThe Research Ecosystem Behind Hemophilia Breakthroughs: Funding, Mentorship, and Collaboration
Host Patrick James Lynch and co-host Dr. Donna D. Micheli frame hemophilia progress as the product of sustained collaboration and investment, not…
Global Hemophilia ReportWFH 2026: Spotlight on Humanitarian Aid
At the World Federation of Hemophilia World Congress in Kuala Lumpur, thousands gathered to discuss the future of bleeding disorders care. Gene therapies…
Global Hemophilia ReportRebalancing Agents and Other Available Treatment Options
The hemophilia treatment landscape is evolving faster than ever. In this episode of Global Hemophilia Report, Patrick James Lynch and Dr. Donna DiMichele are…
Global Hemophilia ReportThe Future of Comprehensive Care
This season opener explores comprehensive hemophilia care in 2025: what's working, what's strained, and what needs to evolve. Clinicians from the US, UK, and…
Global Hemophilia Report40 Years in Hemophilia
In this special episode, host Patrick James Lynch reflects on turning forty…and on forty years of life with hemophilia. Joined by Dr. Donna DiMichele, Patrick…
Global Hemophilia ReportThere's Nothing New for Me in the Pipeline (Clinical Trials & Patient Participation)
In this episode, we take a deep dive into the state of the treatment pipeline for bleeding disorders. From the way clinical trials are structured to what's…
Global Hemophilia ReportYes, Women Have Hemophilia: Knowledge Gaps, Diagnostic Delays & the Fight for Equity
This episode of the Global Hemophilia Report explores the long-overdue conversation about women with hemophilia. Experts discuss the challenges women face in…
Global Hemophilia ReportHemophilia in the Real World: Patient Engagement in Registries & Data Collection
In this episode of the Global Hemophilia Report, host Patrick James Lynch and a panel of experts discuss the importance of real world data and patient…
Global Hemophilia ReportI'm Fine. This Is Normal. Old Faithful Works for Me! Mental Health Challenges to Progress
On this episode, we explore the concept of shared decision making (SDM) in modern hemophilia care. With insights from experts Brendan Hayes and Dr. Cedric…
Global Hemophilia ReportMaybe We're Not on the Same Page: Shared Decision Making in Hemophilia Care
On this episode, we delve into the concept of shared decision making (SDM) in modern hemophilia care. With insights from experts Brendan Hayes and Dr. Cedric…
Global Hemophilia ReportAre We Measuring the Right Stuff?
On this episode of the Global Hemophilia Report, we discuss the limitations of current hemophilia care metrics. They explore the importance of measuring the…
Global Hemophilia ReportHealth Literacy is Health Equity, and It Matters
On this episode of the Global Hemophilia Report, we explore the critical topic of health literacy and its direct impact on health equity within the bleeding…
Global Hemophilia ReportGlobal Advocacy at the Organizational Level
On this episode of the Global Hemophilia Report, we speak with guests who are each pioneering hemophilia advocacy in their respective regions. The discussion…
Global Hemophilia ReportWhat We've Learned - Season 3
On this episode of the Global Hemophilia Report, host Patrick James Lynch and Senior Advisor Dr. Donna DiMichele review significant discussions from the season…
Global Hemophilia ReportThe Future of the Comprehensive Care Model
The comprehensive care model for hemophiliathe is experiencing transformative evolution. Our panel of esteemed experts highlight how data and innovation are…
Global Hemophilia ReportChapters & Grassroots Advocacy
This episode of the Global Hemophilia Report podcast explores the significance of grassroots advocacy within hemophilia associations and chapters, emphasizing…
Global Hemophilia ReportThe Evolving Landscape of Novel Therapies for Hemophilia: What's Here & What's Coming?
On this episode we talk with experts Dr. Amy Shapiro, Dr. Maria Elisa Mancuso, Dr. Steve Pipe, Dr. Johnny Mahlangu, and Dr. Lynn Malec to delve into the…
Global Hemophilia ReportUnderstanding & Preventing FVIII Inhibitors : An Enduring HA Research Priority
On this episode of the Global Hemophilia Report, Senior Advisor Dr. Donna DiMichele leads a comprehensive discussion on FVIII inhibitors—a critical…
Global Hemophilia ReportLived Experience Experts: Taking Their Rightful Place at the Research Table
In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in hemophilia research. Featuring a…
Global Hemophilia ReportCaregivers and Novel Therapies - Alleviating or Replacing Concerns?
Our panel of subject matter and lived experience experts engage in a data-driven discussion about caregiver burden in hemophilia, historically, and how the…
Global Hemophilia ReportWorld Hemophilia Day
On this episode of the Global Hemophilia Report, host Patrick James Lynch is on location in Madrid, Spain for the WFH 2024 World Congress. Patrick talks about…
Global Hemophilia ReportTranslating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
In this episode, delve into the transformative journey of patient-reported outcomes measures (PROMs) within hemophilia care, exploring their evolution from…
Global Hemophilia ReportUnderstanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
The topic of discussion for this episode leans more toward the scientific side but has huge clinical relevance. For today, we will be asking our expert panel…
Global Hemophilia ReportHemophilia Gene Therapy Redux – The End of the Beginning?
Gene therapy for hemophilia A and B now exists as a licensed, prescribable treatment option for patients in certain countries; however, many questions and…
Global Hemophilia ReportPTSD & Hemophilia
Join us as we shed light on the often-overlooked intersection of Post Traumatic Stress Disorder (PTSD) and Hemophilia, discussing innovative treatments…
Global Hemophilia ReportThe US National Research Blueprint (NRB)
The US National Research Blueprint (NRB). Thriving in the Face of an Inheritable Bleeding Disorder Begins with Community-Inspired Research. Contributors: Len…
Global Hemophilia ReportLGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
In this episode, we address the critical intersections of LGBTQ+ health and hemophilia care. Delving into the historical links with the HIV crisis, we…
Global Hemophilia ReportSexual Health- An Unaddressed Need in Comprehensive Hemophilia Care
On this episode, we will address defining sexual health and its importance to hemophilia care, best practices and standards for addressing sexual health…
Global Hemophilia ReportMild Hemophilia A: A Misnomer?
Persons with mild hemophilia have been shown to experience more bleeding - related morbidity than previously recognized while achieving lifespans that parallel…
Global Hemophilia ReportTelemedicine for the Care of Hemophilia: What Do We Gain And What Do We Lose?
Telehealth options are assumed to provide added benefit to providers and patients alike, but how much do we really know and understand about telemedicine?…
Global Hemophilia ReportSocial Drivers of Health in the Bleeding Disorders Community
The social determinants of health (SDH) are the non-medical factors that influence health outcomes. They are the conditions in which people are born, grow…
Global Hemophilia ReportHemophilia Camps - Evidence of Benefit
Historically, camps for kids with hemophilia have played a specific and valuable role, enabling a young person with hemophilia to experience all the benefits…
Global Hemophilia ReportSports, Fitness & Hemophilia - Evidence-based perspectives
Historically, people with hemophilia and especially children, have lived with considerable limitations when it comes to engagement in sports and athletics…
Global Hemophilia ReportBarriers to Research in Hemophilia
On this episode we're in conversation with research leaders to learn more about the current state of hemophilia research, the barriers and opportunities we're…
Global Hemophilia ReportAging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity - Part 2
There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe…
Global Hemophilia ReportAging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity
There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe…
Global Hemophilia ReportWhere does research go from here? S1 Finale!
Renowned hematologist, researcher, and senior advisor to the Global Hemophilia Report Dr. Donna DiMichele shares some of her Season 1 takeaways and thoughts…
Global Hemophilia ReportPain in Hemophilia - Part 2 - Exercise, Medication & Investigations
On this episode, we continue our discussion of chronic pain in hemophilia. We'll discuss exercise, medication and investigations. Contributors: Nathalie Anne…
Global Hemophilia ReportPain in Hemophilia - Part 1 - Prevalence, Mechanisms, and Assessment
According to the Centers for Disease Control, pain is one of the most common reasons people seek medical care. However, for persons affected by hemophilia A…
Global Hemophilia ReportHemophilia B & the story of Tsarevich Alexei - Part 2
In Part 2 of our Hemophilia B episode, we spotlight research priorities into women with hemophilia B, novel therapies to treat people with hemophilia B, and we…
- Global Hemophilia Report
Hemophilia B & the story of Tsarevich Alexei - Part 1
Hemophilia B is a rare inherited X-linked disorder characterized by a congenital anomaly in the factor IX gene leading to a variable deficiency in clotting…
- Global Hemophilia Report
Mid-Point Conversations: A Summary
On this episode, Executive Producer of the Global Hemophilia Report, Patrick James Lynch, is joined in person by Senior Advisor, Dr. Donna DiMichele, and…
- Global Hemophilia Report
Women with Hemophilia: Research Priorities
Women, girls, and those with the potential to menstruate (WGPPM) who live with hemophilia, have more difficulty getting a diagnosis and accessing adequate care…
- Global Hemophilia Report
Mental Health and Hemophilia in Adolescence and Young Adulthood
In March 2022, a Washington Post article highlighted children and adolescents in the US experiencing a mental health crisis, but how does a hemophilia…
- Global Hemophilia Report
Bone and Joint Health: Monitoring and Detection Strategies
Even with the introduction of prophylaxis, the goal of achieving perfect bone and joint health for patients with hemophilia through normalizing homeostasis…
- Global Hemophilia Report
Prophylaxis: Protection, Achievements, and Shortcomings
Prophylaxis in hemophilia has led to extraordinary progress, however, recent studies suggest that although the overall musculoskeletal health of persons with…
- Global Hemophilia Report
Novel Therapies: Entering Uncharted Territory
Gene therapy, hemostatic rebalancing therapies, memetic therapies, and even factor replacement therapy are all currently being explored in clinical trials, but…
- Global Hemophilia Report
Inhibitors: Prevention, Eradication, and Lived Experiences
Inhibitor development has long been considered the most significant complication of severe hemophilia, but with the licensure of the first non-factor therapy…
- Global Hemophilia Report
Introducing the Global Hemophilia Report
Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations…