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Latest / Global Hemophilia Report

Global Advocacy at the Organizational Level

On this episode of the Global Hemophilia Report, we speak with guests who are each pioneering hemophilia advocacy in their respective regions. The discussion highlights the pivotal role of data and patient storytelling in driving systemic change and policy advancements. The episode emphasizes how global collaboration and technological innovations are paving the way for more equitable hemophilia care worldwide.

Guests:

Harshal Kale, World Federation of Hemophilia

Matthew Delaney, National Bleeding Disorders Foundation

Megan Adediran, Hemophilia of Nigeria

Senior Advisor: Donna DiMichele, MD…

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