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Lived Experience Experts: Taking Their Rightful Place at the Research Table
In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in hemophilia research. Featuring a distinguished panel, the discussion covers the evolution, importance, and future of LEE involvement in research. The episode emphasizes the pivotal contributions of LEEs in making research more relevant and impactful, driven by personal and community experiences.
Contributors:
Len Valentino MD
Samantha Carlson MSW, LMSW
Randy Curtis
Ray Stanhope
Kyle Davis MD
Senior Advisor: Donna DiMichele, MD
Special Episode Advisor: Maria Santaella PhD(c)…
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