Shows / Tom's Hirschsprung's Podcast
Tom's Hirschsprung's Podcast
Starting in 2024 🎧! I provide a look into the remarkable experiences of some of the most inspiring people around #hirschsprungsdisease and sport. I will be sharing my own thoughts, with over 30 years of lived experiences with #hirschsprungsdisease Join us in 2024!!! #hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hirschsprungsdiseasesport
Episodes
Tom's Hirschsprung's PodcastEpisode 148 - Laurence and Paddy Tottingham
Laurence and his son Paddy chat about Paddy's Long Segment Hirschsprung's story at nearly 16 years of age. Both Laurence and Paddy are part of the chronic…
- Tom's Hirschsprung's Podcast
Episode 147 - With Kiran Mann
A combination of Short Bowel Syndrome and a rare form of Hirschsprung's Disease, has led doctors to believe that this is a case that may never be seen again…
- Tom's Hirschsprung's Podcast
Episode 146 - With Tiffany Dwyer
With over 50 procedures for her son Arlo, Tiffany talks through the first 16 months of her son's eventful life. We talk about the impact of Long Segment…
- Tom's Hirschsprung's Podcast
Episode 145 - With Shabana
Shabana joins me to talk about her son's Hirschsprung's journey, and the frustrating early stages of not being listened too by her GP. This episode shows that…
- Tom's Hirschsprung's Podcast
Episode 144 - With Helen
An excellent account of a very complex Hirschsprung's case as Helen talks about her adult son, who competes internationally as a Powerlifter. Stay tuned to the…
- Tom's Hirschsprung's Podcast
Episode 143 - With Bee
Bee chats about her son and his story with Hirschsprung's, a condition that doesn't run in her family, making his chances of having Hirschsprung's around 1 in…
- Tom's Hirschsprung's Podcast
Episode 142 - With Rachel Peichl McGee
As an incredible high achiever, Rachel shares her story through all of the ups and down from 55 years of experience. We chat about how medicine and surgery has…
- Tom's Hirschsprung's Podcast
Episode 141 - With Da'Veon and Vonney
Da'Veon and his mum Vonney join me to talk through Da'Veon's incredible Hirschsprung's journey.Da'Veon shares his story from both a physical and spiritual…
- Tom's Hirschsprung's Podcast
Episode 140 - With Stephanie Dolak
Fellow radio host Stephanie talks about her extremely rare Hirschsprung's diagnosis as well as how her quality of life has differed over the years.Diagnosed…
- Tom's Hirschsprung's Podcast
Episode 139 - With Aimee Morrisby (Part 2)
Two and a half years on from her first appearance Aimee rejoins the show to chat about everything she has achieved in that time, including new information and…
- Tom's Hirschsprung's Podcast
Episode 138 - With Kaytlin Slaughter (Part 2)
Kaytlin rejoins the podcast, a year after her first episode, to talk about her daughter Isabella and how she is progressing with her condition.A completely…
- Tom's Hirschsprung's Podcast
Episode 137 - With Lex
Lex talks about her son Frankie's complicated Hirschsprung's story as well as being diagnosed with short gut/intestinal failure.We also chat about surgery, as…
- Tom's Hirschsprung's Podcast
Episode 136 - With Megan Wallis
After her local hospital had no idea what was wrong, Megan became increasingly concerned about her son Oaklee when he was diagnosed with Hirschsprung's…
- Tom's Hirschsprung's Podcast
Episode 135 - With Jodie
Jodie talks about her 8 month old daughter Libby and her variety of medical conditions, including Hirschsprung's Disease and Mowat-Wilson Syndrome.We talk…
- Tom's Hirschsprung's Podcast
Episode 134 - With Megha (Part 2)
Megha comes back on the show to give us an update on life after 18 months. Although not without its challenges, this is a wonderfully positive episode focusing…
- Tom's Hirschsprung's Podcast
Episode 133 - With Nicole Voss
Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is…
- Tom's Hirschsprung's Podcast
Episode 132 - With Natalie Little
Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and…
- Tom's Hirschsprung's Podcast
Episode 131 - With Katie Thomson
In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and…
- Tom's Hirschsprung's Podcast
Episode 130 - With Andrea Guse
A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the…
- Tom's Hirschsprung's Podcast
Episode 129 - With Jodie Mulrainey
Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the…
- Tom's Hirschsprung's Podcast
Episode 128 - With Stephanie Luster
An episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly…
- Tom's Hirschsprung's Podcast
Episode 127 - With Zandra Thomas
Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with…
- Tom's Hirschsprung's Podcast
Episode 126 - With Laura Rigg
Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the…
- Tom's Hirschsprung's Podcast
Episode 125 - With Bekki
This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis. In this episode we discuss preparing for surgeries, from both the…
- Tom's Hirschsprung's Podcast
Episode 124 - With Denise Welch
Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time! Listen to Denise's…
- Tom's Hirschsprung's Podcast
Episode 123 - With Sadie
Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease.Whilst the likelihood of Hirschsprung's was initialised…
- Tom's Hirschsprung's Podcast
Episode 122 - With Lauren and Kieran Jewell
This week I am joined by 2 guests as Lauren and Kieran talk about their 3 year old son Freddie, and his journey with Hirschsprung's.Lauren talks through…
- Tom's Hirschsprung's Podcast
Episode 121 - With Paul Leonard-Morgan
World renowned composer and BAFTA award winner Paul joins me to talk about his daughters experience with Hirschsprung's.Later in the episode we talk about…
- Tom's Hirschsprung's Podcast
Episode 120 - With Ann-Marie Castille
Just 5 1/2 months after giving birth to her fourth child, Ann-Marie joins me to talk about her sons journey so far with Hirschsprung's.We go through the last 5…
- Tom's Hirschsprung's Podcast
Episode 119 - With Bria
Bria chats to me about her 3 year old son and his story with Hirschsprung's. Having had one child already, Bria and her family had no idea that Hirschsprung's…
- Tom's Hirschsprung's Podcast
Episode 118 - With Tony Brattoli
Musician and Composer Tony talks about his life with a variety of conditions, including Hirschsprung's.Having interviewed Tony's brother James, we discover…
- Tom's Hirschsprung's Podcast
Episode 117 - With Shakeyra Sanders
A tricky and emotional episode as Shakeyra tells her story with Hirschsprung's from the beginning. Towards the end we talk about what good days and bad days…
- Tom's Hirschsprung's Podcast
SPECIAL ANNOUNCEMENT!!
Today I chat with Ben Jevans and Georgina Merckel to make a special announcement regarding a Hirschsprung's event on Saturday 4th July 2026. Listen to find out…
- Tom's Hirschsprung's Podcast
Episode 116 - With Annalise Steele
Not only was Jack diagnosed with Hirschsprung's Disease, (a 1 in 5000 chance) he was also diagnosed earlier with Duodenal Atresia (a 1 in 6000 chance) thus…
- Tom's Hirschsprung's Podcast
Episode 115 - With Hana Walker
An extraordinary story unfolds as 24 year-old Hana wasn't diagnosed with Hirschsprung's until 22 years of age, having gone through many years of frustration…
- Tom's Hirschsprung's Podcast
Episode 114 - With Charli Warriner
Charli tells the story of her 3 year old son with Hirschsprung's, with a difficult initial diagnosis, but a positive look towards the future.Despite a hospital…
- Tom's Hirschsprung's Podcast
Episode 113 - With Hannah Blewitt
Hannah joins me to talk about her 5 month old son Oliver and his story with Hirschsprung's. With no family history of Hirschsprung's, the diagnosis obviously…
- Tom's Hirschsprung's Podcast
Episode 112 - With James Brattoli
James is an Actor and Screenwriter from LA, who shares his incredibly raw and honest account of his life with Hirschsprung's from the very start.With over 20…
- Tom's Hirschsprung's Podcast
Alder Hey Parent Support Group Explanation
In this episode myself, Faye and Elle will talk about the new parent support group, specific to Hirschsprung's that's coming soon We will discuss:-- What is…
- Tom's Hirschsprung's Podcast
Episode 111 - With Kayleigh Acquah
After having 3 children, Kayleigh knew something wasn't quite right when her 4th child Micah, hadn't passed meconium. Kayleigh alerted the doctors at her local…
- Tom's Hirschsprung's Podcast
Episode 110 - With Sarah Hartwick
After giving birth just 11 weeks ago, Sarah joins me to talk about the whirlwind of the last few months!Sarah is also a Nurse Practitioner, specialising in…
- Tom's Hirschsprung's Podcast
Episode 109 - With Emily Arner
Emily tells the story of her 5 1/2 year old son, who is also a twin, and his journey with Hirschsprung's Disease. We talk about the late diagnosis, and how…
- Tom's Hirschsprung's Podcast
Episode 108 - Ed Leach and Laura Wilson (Part 2)
We follow straight on from the first part as we chat through the rest of Elodie's Hirschsprung's story, including Laura's family history when it comes to this…
- Tom's Hirschsprung's Podcast
Episode 107 - Ed Leach and Laura Wilson (Part 1)
In an emotional first part, both Laura and Ed tell the story of their daughter Elodie and her remarkable Hirschsprung's battle.We start from the beginning with…
- Tom's Hirschsprung's Podcast
Episode 106 - With Karen Hill
Karen talks about her 19 year old son Kai, and his experience with Hirschsprung's, Autism and ADHD as her starts to find a career.We chat about Kai's major…
- Tom's Hirschsprung's Podcast
Episode 1 - An introduction to Hirschsprung's Disease and my story
**** NEW AND IMPROVED****This is the complete introduction of my podcast covering four different topics:- 1 - What is Hirschsprung's Disease?, including…
- Tom's Hirschsprung's Podcast
Episode 105 - 2nd Anniversary Special With Mark Schulz
Multiple time marathon finisher and Bloomberg CFO Mark Schulz, joins me to celebrate the podcasts second birthday as he talks through his extraordinary family…
- Tom's Hirschsprung's Podcast
Episode 104 - With Tiffany Smith
Professional Doula and mum of 4, Tiffany, joins me to talk about her son and his Hirschsprung's diagnosis. A very interesting story of Hirschsprung's…
- Tom's Hirschsprung's Podcast
Episode 103 - With Gemma Carter
Gemma bravely shares the story of her 11 month old son Rowan, as we delve into the often unspoken topic on parental mental health when it comes to having a…
- Tom's Hirschsprung's Podcast
Episode 102 - With Lillie Walizer
With no family history of Hirschsprung's Lillie talks through her son's 8 month journey with this condition. We discuss hospital life, and how to navigate the…
- Tom's Hirschsprung's Podcast
Episode 101 - With Jess Harris (Part 2)
I continue my chat with Jess as we take a greater deep dive into her life and living with Hirschsprung's Disease. Within this episode we will chat about living…
- Tom's Hirschsprung's Podcast
Episode 100 - With Duncan Armstrong
Olympic gold medallist and former world record holder, Duncan Armstrong, joins me to celebrate the 100th podcast episode as we talk about all things…
- Tom's Hirschsprung's Podcast
Episode 99 - With Jess Harris (Part 1)
A truly remarkable journey unfolds, as Jess takes us through her life from the beginning. Jess will take us through an overview of her various conditions…
- Tom's Hirschsprung's Podcast
Episode 98 - With Courtney Crawford
We start this episode with Courtney's misdiagnosis of Encopresis instead of the Hirschsprung's she actually has. Unfortunately Courtney experienced medical…
- Tom's Hirschsprung's Podcast
Episode 97 - With Donna Broughton
Donna and I chat about PGD (Pre-Implantation Genetic Diagnosis) and how she and her husband went down this route when they had their child. Donna's 20 year old…
- Tom's Hirschsprung's Podcast
Episode 96 - With Sydney Foland
Sydney chats to me about her 17 month old daughter, Loretta and how despite the early difficulties and uncertainties she is thriving now.Having also had…
- Tom's Hirschsprung's Podcast
Episode 95 - With Ollie McFarlane (Part 2)
Ollie returns to the pod to talk about a few important subjects as well as an update on his life since we last spoke a few months ago. The episode will…
- Tom's Hirschsprung's Podcast
Episode 94 - With Sandeep Kumar
Sandeep talks about his son's Hirschsprung's condition, we talk about diet, medicine and treatments.This is a slightly shorter episode but it still packed with…
- Tom's Hirschsprung's Podcast
Episode 93 - With Stacey Haines
Stacey from Rare Patient Voices joins me to talk about the vital work that the company does in supporting rare and non-rare conditions.We chat about how the…
- Tom's Hirschsprung's Podcast
Episode 92 - With Sarah Novatt
Sarah talks about her son Remy and his experience with Total Colonic Hirschsprung's Disease. During the episode I also find out the family dynamic when it…