Shows / Tom's Hirschsprung's Podcast
Tom's Hirschsprung's Podcast
Starting in 2024 🎧! I provide a look into the remarkable experiences of some of the most inspiring people around #hirschsprungsdisease and sport. I will be sharing my own thoughts, with over 30 years of lived experiences with #hirschsprungsdisease Join us in 2024!!! #hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hirschsprungsdiseasesport
Episodes
Tom's Hirschsprung's PodcastEpisode 91 - With Laura O'Reilly (Part 4)
An inspirational story of resilience and perseverance continues, as Laura shares all about her latest business venture 'FYN Coaching' or 'Finish Your Now…
- Tom's Hirschsprung's Podcast
Episode 90 - With Wim Predhomme
Paraglider and Metal Artist, Wim Predhomme joins me to talk through his life with Hirschsprung's, including some of the highs and lows that come along with the…
- Tom's Hirschsprung's Podcast
Episode 89 - With Saffire Eden
Some very important topics are discussed in today's episode, as I chat with Saffire about her daughters diagnosis of Hirschsprung's 9 months ago. During what…
- Tom's Hirschsprung's Podcast
Episode 88 - With Sadie Goldthorpe
Sadie joins me to talk about her 4 year son Cody and his Hirschsprung's story. We start the story when Sadie is 10 weeks pregnant and she has a test for Cody…
- Tom's Hirschsprung's Podcast
Episode 87 - With Alexa Murphy
We start this episode 7 months ago, Lexi has just given birth to her third child, Emmett and like many people, has no family history of Hirschsprung's and has…
- Tom's Hirschsprung's Podcast
Episode 86 - With Kirstie and Aubrey Law
2 generations of Hirschsprung's are discussed with Kirstie and her daughter Aubrey, we mainly chat about Aubrey's journey with TIA (Total Intestinal…
- Tom's Hirschsprung's Podcast
Episode 85 - With Kelly Kronowski
Kelly chats to me about her son Kellen, who has Hirschsprung's and is 7 and half years old. In this episode we discuss the vital importance of mothers…
- Tom's Hirschsprung's Podcast
Episode 84 - With Gemma Pope and Carl Ray
Gemma and Carl discuss 3 generations of Hirschpsrung's with a surprise genetic twist!Carl, Gemma and Gemma's daughter Jessica all have Long Segment…
- Tom's Hirschsprung's Podcast
Episode 83 - With Anna Obendorfer
I'm joined by Anna, this time from America. Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics…
- Tom's Hirschsprung's Podcast
Episode 82 - With Amy Parker (Part 2)
Starting straight from the of the last episode, when Amy's daughter had her stoma fitted we talk about how stoma care differs from country to country. With the…
- Tom's Hirschsprung's Podcast
Episode 81 - With Amy Parker (Part 1)
China is our next stop as I chat with Amy all about her daughter's diagnosis of Hirschsprung's Disease from Zambia to China via the UK. From doctors being…
- Tom's Hirschsprung's Podcast
Episode 80 - With Kaytlin Slaughter
In todays episode, conducted from the hospital room, Kaitlyn chats to me about her 5 year old daughter, including topics such as diet, Hirschsprung's…
- Tom's Hirschsprung's Podcast
Episode 79 - With Libby
Libby shares the story of her 2 year old daughter with Hirschsprung's from the very start. We begin with Libby being discharged from hospital with her…
- Tom's Hirschsprung's Podcast
Episode 78 - With Taylor Lammonds
With no family of Hirschsprung's, Taylor discusses her journey so far about her son Bowen, who is 7 months old. Bowen was diagnosed with Hirschsprung's despite…
- Tom's Hirschsprung's Podcast
Episode 77 - With Georgina Merckel (Part 3)
In this episode we follow on from last week, where we talked about the new Hirschsprung's website, www.hirschsprungsdisease.co.uk and how this all came to be…
- Tom's Hirschsprung's Podcast
Episode 76 - With Georgina Merckel (Part 2)
Nearly 7 months after her last appearance, Georgina talks to me about her exciting new project - a UK dedicated Hirschsprung's website! In the first half of…
- Tom's Hirschsprung's Podcast
Episode 75 - With Ollie McFarlane
Actor and personal trainer, Ollie chats to me about how his career is going as well as some funny stories along the way. Ollie was diagnosed with short segment…
- Tom's Hirschsprung's Podcast
Episode 74 - Ashley Matthews (Part 2)
In the second part of my chat with Ashley, we talk about the somatic energy in relation to Hirschsprung's and how attunement plays a vital role in the…
- Tom's Hirschsprung's Podcast
Episode 73 - With Ashley Matthews
Ashley chats about her son, Milo and his dual diagnosis of Hirschsprung's and Downs Syndrome, as well as some handy tips when it comes to performing enemas…
- Tom's Hirschsprung's Podcast
Episode 72 - With Rebecca Wichert
*****Trigger warning - contains suicide*****Rebecca recounts her daughter's story with long segment Hirschsprung's disease as well as the 7 MLB's, 3 intestinal…
- Tom's Hirschsprung's Podcast
Episode 71 - With Lila Mackenzie
This week we take another trip to Australia as Lila discusses her experience of being a Hirschsprung's mum with a 14 month old son. With no family history of…
- Tom's Hirschsprung's Podcast
Episode 70 - With Tash Jacobs (Part 2)
Tash is back to talk about some important subjects the lifestyle that we didn't get time to chat about on the last episode. Topics that we cover today will be…
- Tom's Hirschsprung's Podcast
Episode 69 - With Robyn Taylor (Part 2)
Following on from our 1st episode in mid-November Robyn joins me once again to give an update on her daughter Charlee, as we discuss her Ace Malone procedure…
- Tom's Hirschsprung's Podcast
Episode 68 - With Elle Woods-Marshall
In this weeks edition of the show, I chat to Elle about her story with Hirschsprung's and how, as a women in her mid 20's, this has impacted her life both…
- Tom's Hirschsprung's Podcast
Episode 67 - With Faye Roberts (Part 2)
In the second part of my chat with Faye we talk about a variety of Hirschsprung's topics, including the impact it has had on Faye's life. In a more…
- Tom's Hirschsprung's Podcast
Episode 66 - With Faye Roberts (Part 1)
With a long and complicated medical history, Faye chats to me about how her epic journey with Hirschsprung's unfolded. An incredible story of mental and…
- Tom's Hirschsprung's Podcast
Episode 65 - With Laura O'Reilly (Part 3)
For this episode I welcome back Laura, who gives the exclusive lowdown on her latest exciting business venture, as well a recap of an important IBD fitness…
- Tom's Hirschsprung's Podcast
Episode 64 - With Anrie Gibson
The first Ultra-short segment episode of the series as Anrie joins me to talk about her son's unusual diagnosis, and ultimately thriving journey.Based in South…
- Tom's Hirschsprung's Podcast
Episode 63 - With Tash Jacobs (Part 1)
Tash joins me to talk about her two sons who were both born with two very different types of Hirschsprung's, despite not having any family history.We follow…
- Tom's Hirschsprung's Podcast
Episode 62 - With REACH HD Co-Founder Isabelle Schnidag
The Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal…
- Tom's Hirschsprung's Podcast
Episode 61 - With Megha
In this episode myself and Tom's Hirschsprung's Podcast Co-Founder Louisa Shapton are joined by Megha, who only gave birth 6 WEEKS AGO!, to talk about her…
- Tom's Hirschsprung's Podcast
Episode 60 - With Gemma Keir
The author and founder of The Abilities In Me Foundation, Gemma Keir, shares her incredible journey with the charity from the very beginning. Gemma talks about…
- Tom's Hirschsprung's Podcast
Episode 59 - With Simone Rist
The author of 'Oscar The Unstoppable' , Simone Rist, joins me to talk about her son's Hirschsprung's story as well as her brilliant book, all about…
- Tom's Hirschsprung's Podcast
Episode 58 - With Courtney LF
Courtney chats to me about the need for advocacy as well as how having the power of positivity helped her and her family through some incredibly tough moments…
- Tom's Hirschsprung's Podcast
Episode 57 - With Sherry Maavich
With over 6 decades of lived experience with Hirschsprung's, Sherry recounts her amazing story as well as her admiration for world renowned surgeon, Dr C…
- Tom's Hirschsprung's Podcast
Episode 56 - With Lexi Liljenquist
This week we discuss Krew's HD journey as his mum Lexi joins me to talk about her happy, jolly, 9 month old. Having had a daughter already, and with no family…
- Tom's Hirschsprung's Podcast
Episode 55 - With Hannah Davis (Part 2)
The second part of my interview with Hannah we talk about her legal fight against the NHS, in her pursuit for justice. Hannah talks candidly about the…
- Tom's Hirschsprung's Podcast
Episode 54 - With Hannah Davis (Part 1)
In the first part of Hannah's episode, we talk about her son's diagnosis of Hirschsprung's Disease as well as the the extraordinary lengths that her family…
- Tom's Hirschsprung's Podcast
Episode 53 - 1 Year Anniversary Special with Mr Joe Curry and Fred Gray
As the podcast celebrates it's first birthday, I am delighted to be joined by not one, but two guests in a returning Fred Gray and a man I've not seen in over…
- Tom's Hirschsprung's Podcast
Episode 52 - With Gemma Boggs
1 years worth of the podcast is celebrated as I welcome Gemma to talk about her daughters Hirschsprung's diagnosis and the challenges that Dorothy has…
- Tom's Hirschsprung's Podcast
Episode 51 - With Fred Gray
Actor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also…
- Tom's Hirschsprung's Podcast
Episode 50 - With Karen Dick
Hirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease. Coming from a family of…
- Tom's Hirschsprung's Podcast
Episode 49 - With Lynn Wolfson
**** Trigger warning - contains abuse **** Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging…
- Tom's Hirschsprung's Podcast
Episode 48 - With Paul Balson from Great Ormond Street Hospital
A place very close to me and many others, Great Ormond Street Hospital, is one of the world's leading children's hospitals. I'm joined this week by Head of…
- Tom's Hirschsprung's Podcast
Episode 47 - With Jazz Hind from Ronald McDonald House Charities
Jazz joins me to talk about the history and importance of Ronald McDonald House Charities, as well as celebrating 35 years here in the UK and 50 years…
- Tom's Hirschsprung's Podcast
Episode 46 - With Leanne Constable
This week we delve into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'. We talk candidly about Leanne's…
- Tom's Hirschsprung's Podcast
Episode 45 - With Robyn Taylor
Entrepreneur and the host of 'Embrace your bravery' podcast, Robyn Taylor joins me to talk about her daughters experience with Hirschsprung's Disease. Robyn…
- Tom's Hirschsprung's Podcast
Episode 44 - With Jamie Birkett
Actor and West End star Jamie Birkett chats to me about her son and husbands journey with Hirschsprung's Disease as well as her own personal challenges. Follow…
- Tom's Hirschsprung's Podcast
Episode 43 - With Louise
Today on the show we will be discussing a unique set of challenges with Louise about her 12 year old so, Jacob. We start as we always do, from the beginning…
- Tom's Hirschsprung's Podcast
Episode 42 - With Samuel Bell
The founder of 'Samuel's Smiles' joins me to talk about his very rare form of Hirschsprung's Disease as well as his experiences of fatherhood. In this episode…
Tom's Hirschsprung's PodcastEpisode 41 - With Georgina Merckel
In this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease. Georgina talks through her…
- Tom's Hirschsprung's Podcast
Episode 40 - With Rachel (@gutsy.mum)
Rachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood. Rachel has been a…
- Tom's Hirschsprung's Podcast
Episode 39 - With Jodi Longdo
3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease. As well as an…
Tom's Hirschsprung's PodcastEpisode 38 - With Steffy and Samantha Little
In the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease. Samantha…
- Tom's Hirschsprung's Podcast
Episode 37 - With Toni Schneider
This week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion…
- Tom's Hirschsprung's Podcast
Hirschsprung's Explanation Episode
In what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you. I will…
Tom's Hirschsprung's PodcastEpisode 36 - With Charlotte
In this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain…
Tom's Hirschsprung's PodcastSpecial AMA (Ask Me Anything) episode
A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of…
Tom's Hirschsprung's PodcastEpisode 35 - With Nicole and Benjamin Perry
In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22…
Tom's Hirschsprung's PodcastEpisode 34 - With Lauren Wood
In this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life. We…