Shows / IBDetermined
IBDetermined
Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from multiple perspectives to give us insight on how they have handled challenges and what they did to get through them. Some episodes will focus on open and honest discussions about Crohn's disease from a caregiver and patient perspective. We will talk to others with IBD, chronic illnesses, and life changing…
Episodes
- IBDetermined
S6 Episode 6 - What is an MRE for IBD really like? How did Mason do?
Send us Fan Mail We decided to talk about Mason's experience (and mine as an observer/parent) with the MRE. He is honest, open, and can let you or your child…
- IBDetermined
S6 Episode 5 - Insurance is denying infusions at our children's hospital. But, is this bad news?!
Send us Fan Mail We received a letter from insurance that upset all of us. Mason was no longer able to receive infusions at Rady Children's Hospital. We have…
- IBDetermined
S6 Episode 4 - Getting through fun events when you are having a challenging day.
Send us Fan Mail We recently went to an event for someone we really care about. It was a great party but it also got us to thinking how a lot of IBD patients…
- IBDetermined
S6 Episode 3 - Will we someday be able to predict IBD before it ever starts?
Send us Fan Mail Today we go into a recent article by the Crohn's and Colitis Foundation. It caught our attention because it goes into what is currently being…
- IBDetermined
S6 Episode 2 - What if Crohn's disease is more than one disease? What if it were different subsets?
Send us Fan Mail We have talked about it before but it deserved another discussion. What if Crohn's disease is so different for everyone because there are…
- IBDetermined
S6 Episode 1 - We update listeners on Mason, life, and our new lesson plan books we published!
Send us Fan Mail Welcome to a new season!! Season 6 opens with catching up on how Mason is doing, we talk about our candles business, insect additions to the…
- IBDetermined
S5 Episode 16 - Is Mason in a Crohn's flare? We go over what is currently going on!
Send us Fan Mail As most of our listeners might know, there is that familiar moment of panic, despair, frustration when things change. It can happen overnight…
- IBDetermined
S5 Episode 15 - Why it is so important to be a support and to have support in the IBD world!
Send us Fan Mail We briefly discuss our newest book and talk about a few of the stories we included. We wanted to share a story of where Mason found support…
- IBDetermined
S5 Episode 14- We look into what were the most searched IBD questions of the week!
Send us Fan Mail Sometimes it is interesting to see what other patients are searching. It helps give you an idea of similar concerns or questions as well as…
- IBDetermined
S5 Episode 13- Finding joy and the silver linings in a difficult and challenging IBD diagnosis.
Send us Fan Mail We just published our second book and we are really hoping it helps patients reframe their outlooks. How you choose to grieve, to celebrate…
- IBDetermined
S5 Episode 12 - Tips to help prepare for a smoother transition from pediatric care to adult care!
Send us Fan Mail Even though Mason isn't quite to moving to adult care yet, we realize listeners might be at different ages. Some might be adults, while some…
- IBDetermined
S5 Episode 11 - We published a new book!! Learn all about "Not Your Average Food Pyramid"!!
Send us Fan Mail Reggie is back! Today we finally reveal the name of our new children's book and the second one in the series. It took around 8 months and we…
- IBDetermined
S5 Episode 10 - The High Price and Process of Biologics Explained!
Send us Fan Mail We are finally back to our short series on treatments and biologics. Today we go over the expenses associated with developing and…
- IBDetermined
S5 Episode 9 - How to handle unwanted advice and opinions from friends, family, & strangers!
Send us Fan Mail We have discussed the difficulty of outside opinions and judgement with IBD. Today we read an anonymous letter we received from a "neighbor"…
IBDeterminedS5 Episode 8 - We are celebrating our 100th episode!!
Send us Fan Mail Today is a big day for the IBDetermined podcast family. You have made it with us to our 100th episode! We never had any idea how many podcasts…
- IBDetermined
S5 Episode 7 - Why are Pharma and Biosciences accused of not wanting cures? Why aren't they trusted?
Send us Fan Mail On today's episode we are continuing a series on better understanding biologics and expensive treatments. Today we are covering the reasons…
- IBDetermined
S5 Episode 6 - How IBD treatments have changed in the past 20 years!
Send us Fan Mail On today's episode we are beginning a series on better understanding biologics and expensive treatments. Our hope is to create more awareness…
- IBDetermined
S5 Episode 5 - We discuss an article on how step therapy is affecting young adults with IBD!
Send us Fan Mail On today's episode we go over a recent article from the Crohn's & Colitis Foundation. It is about a study and how step therapy affects young…
- IBDetermined
S5 Episode 4 - We talk all about Calprotectin tests and give you an update on Mason's health!
Send us Fan Mail On today's episode we discuss what Calprotectin tests are, how the scores work, and why your results might be a clue as to where your…
- IBDetermined
S5 Episode 3 - We review a book about the immune system by Philipp Dettmer!
Send us Fan Mail We discuss a book called "Immune: A Journey Into the Mysterious System That Keeps You Alive" by Philipp Dettmer. We highly recommend it for…
- IBDetermined
S5 Episode 2 - Overcoming fears and making difficult IBD decisions based on facts, not fear.
Send us Fan Mail Having IBD can be scary and confusing. When you have to make decisions it is easy to be afraid of the unknown. We go over how we help ease…
- IBDetermined
S5 Episode 1 - What does a cure for Crohn's Disease look like and how close are we to a cure?
Send us Fan Mail Welcome to Season 5 Episode 1! We are excited to start a new season in the new year. We wanted to kick it off with a topic and question we…
- IBDetermined
S4 Episode 17 - We discuss our holiday and favorite family-friendly Christmas movies!
Send us Fan Mail Welcome to S4 episode 17! Mason got to pick what he wanted to end the year and final season 4 with and he chose Christmas movies. We sometimes…
- IBDetermined
S4 Episode 16 - Major IBD breakthroughs, developments, and news stories from 2025!
Send us Fan Mail Welcome to S4 episode 16! As we head towards the end of 2025, we wanted to cover IBD breakthroughs, treatment developments and other stories…
- IBDetermined
S4 Episode 15- It is IBD Awareness Week!
Send us Fan Mail Welcome to S4 episode 15! It is IBD Awareness week but also a shorter show. We both ended up with colds but we didn't want to miss a podcast…
- IBDetermined
S4 Episode 14 - We discuss the challenges of the holidays and offer solutions to help ease stress!
Send us Fan Mail Welcome to S4 episode 14! We know there is a lot to consider with IBD on a normal day. We know the holidays is even more demanding and our…
- IBDetermined
S4 Episode 13 - Does having IBD mean catching colds and viruses more easily? What to know!
Send us Fan Mail Welcome to S4 episode 13! This time of year brings out a lot of questions about IBD and getting through cold and flu season. We go over risks…
- IBDetermined
S4 Episode 12 - Michelle is Volunteer of the Year & more about the Crohn's & Colitis Foundation Gala
Send us Fan Mail Welcome to S4 episode 12! Michelle was honored by the local Crohn's and Colitis Foundation as the Volunteer of the Year at the Champions of…
- IBDetermined
S4 Episode 11 - Methods to help relax and reduce anxiety at medical appointments and infusions!
Send us Fan Mail Welcome to S4 episode 11! Mental health is so important for anyone. For IBD patients, they sometimes have more appointments, treatments, and…
- IBDetermined
S4 Episode 10 - Thanks to a new initiative, hospitalizations and emergency room visits are 50% down!
Send us Fan Mail Welcome to S4 episode 10! The Crohn's and Colitis Foundation recently released a news article about their initiative and study that has…
- IBDetermined
S4 Episode 9 - Navigating the ups and downs of dream granting organizations and IBD kids!
Send us Fan Mail Welcome to S4 episode 9! Today we discuss what we have noticed, our experiences, and our ideas with organizations that are intended to help…
- IBDetermined
S4 Episode 8 - Learn more about differences and similarities between Stelara, Skyrizi, and Tremfya!
Send us Fan Mail Welcome to S4 episode 8! It is so important to learn more about biologics o we can ask educated questions when we meet with a GI. We have…
- IBDetermined
S4 Episode 7 - We offer suggestions and tips on what to bring to an infusion and what to ask for!
Send us Fan Mail Welcome to S4 episode 7! After 5 years of infusions, we wanted to share our tips and tricks on what to bring, what to ask for, and what to…
IBDeterminedS4 Episode 6 - Introducing our new patient support program called "Karmatude Clips."
Send us Fan Mail Welcome to S4 episode 6! There have been so many times we wished we could help infusion patients, newly diagnosed IBD patients (or various…
- IBDetermined
S4 Episode 5 - We discuss the article that mentions a breakthrough in Crohn's disease complications
Send us Fan Mail Welcome to S4 episode 5! There was an article that was on social media and had been sent to me by a few friends. We wanted to go further than…
- IBDetermined
S4 Episode 4 - Using ChatGPT and AI to answer IBD and other medical questions.
Send us Fan Mail Welcome to S4 episode 4! There has been a lot of talk about using ChatGPT to evaluate lab results, medical pictures and even help diagnose…
- IBDetermined
S4 Episode 3 - We discuss the unwanted mental burdens that are placed on IBD patients & caregivers!
Send us Fan Mail Welcome to S4 episode 3! We have discussed the physical aspects of this disease along with the financial burdens of IBD. Today we go more into…
- IBDetermined
S4 Episode 2 - Mason is graduating 2 years early! How he achieved that goal with his IBD diagnosis!
Send us Fan Mail Welcome to S4 episode 2! We have had a busy week and wanted to share the good news that Mason is graduating. To be clear (since I am not sure…
- IBDetermined
S4 Episode 1 - How Lego therapy helps patients and we share Mason's new Lego MRI scanner!
Send us Fan Mail Welcome to S4 episode1! After 75 episodes, we have officially entered season 4 of our podcast. It is a very proud moment for both of us and we…
- IBDetermined
S3 Episode 21 - We won our appeals for Mason! Let doctors make decisions for their patients!
Send us Fan Mail Welcome to S3 episode 201! We go over how our appeals went and are happy to share that we won this round. However we know the fight isn't over…
- IBDetermined
S3 Episode 20 - We are asking insurance to end step therapy. Stop demanding a patient fail a treatment!
Send us Fan Mail Welcome to S3 episode 20! We are facing a treatment change by insurance against Mason's doctor's wishes. It has been a fight with pharmacists…
- IBDetermined
S3 Episode 19 - The blame game of trying to figure out the cause of IBD
Send us Fan Mail Welcome to S3 episode 19! How many times have you caught yourself trying to figure out what caused your Crohn's disease or Ulcerative Colitis?…
- IBDetermined
S3 Episode 18 - The Reggie Project and how we can help you raise awareness for any health challenge!
Send us Fan Mail Welcome to S3 episode 18! Today we revisit the Reggie Project. We would love to have any of you participate and really help us provide a place…
- IBDetermined
S3 Episode 17 - Discussing how stem cell transplants and GLP2 peptides are helping to treat IBD!
Send us Fan Mail Welcome to S3 episode 17! We attended IBD day at Rady Children's Hospital and one of the things discussed were stem cell injections and GLP2…
IBDeterminedS3 Episode 16 - We taste tested 21 supplemental drinks and also go over nutritional details!
Send us Fan Mail Welcome to S3 episode 16! We ordered and taste tested 21 different supplemental drinks that are the type used for liquid diets and supplements…
- IBDetermined
S3 Episode 15 - The use of Intestinal Ultrasounds for monitoring Crohn's and Ulcerative Colitis!
Send us Fan Mail Welcome to S3 episode 15! The Crohn's Colitis Congress recently held their event and Intestinal Ultrasounds was a popular topic. While used in…
- IBDetermined
S3 Episode 14 - Juggling all those helpful and non-helpful IBD opinions you are receiving!
Send us Fan Mail Welcome to S3 episode 14! We wanted to revisit a topic that continues to happen to those of us living with or living with someone we love with…
- IBDetermined
S3 Episode 13 - We discuss how steroids are used to treat IBD and their potential side effects.
Send us Fan Mail Welcome to S3 episode 13! Today we talk about the types of steroids used to treat Crohn's disease and Ulcerative Colitis. We also go further…
- IBDetermined
S3 Episode 12 - How joint pain and arthritis is connected to Crohn's disease and Ulcerative Colitis.
Send us Fan Mail Welcome to S3 episode 12! I have noticed that some IBD patients are unaware of the involvement of joint pain and arthritis with IBD. It is a…
- IBDetermined
S3 Episode 11 - How Costco helped us get Mason's biologics approved when our insurance denied them!
Send us Fan Mail Welcome to S3 episode 11! We wanted to share a positive story for the holidays about Costco. Besides being an incredible business to work for…
IBDeterminedS3 Episode 10 - We discuss DEXA scans and how IBD affects bone density and osteoporosis!
Send us Fan Mail Welcome to S3 episode 10! Bone health is something that goes hand in hand with IBD. It can be a silent problem until it isn't. We go over how…
- IBDetermined
S3 Episode 9 - Cognitive Changes and Irregularities with an IBD diagnosis
Send us Fan Mail Welcome to S3 episode 9! Sometimes it is hard to "see" the side effects of IBD. Sometimes you might feel like something is in your mind. We…
- IBDetermined
S3 Episode 8 - The Hidden Financial and Mental Costs of IBD
Send us Fan Mail Welcome to S3 episode 8! So many people face unseen challenges in the IBD world. Today we are bringing some to light and discussing hidden…
- IBDetermined
S3 Episode 7- Why does Crohn's disease and treatments seem so different for everyone?
Send us Fan Mail Welcome to S3 episode 7! Today we have conversation about how people seem to understand Crohn's disease in different ways and use different…
IBDeterminedS3 Episode 6- The digestive system, how it works and how it affects IBD and malnutrition.
Send us Fan Mail Welcome to S3 episode 6! Learn with us and find out how the digestive system works and doesn't work when it comes to IBD. We also discuss how…
- IBDetermined
S3 Episode 5 - Going over the differences & similarities of Interchangeable Biosimilars with Biosimilars.
Send us Fan Mail Welcome to S3 episode 5! Today we go over interchangeable biosimilars and how they are similar and different in comparison to biosimilars. We…
- IBDetermined
S3 Episode 4 - All about biosimilars and how they are used in place of biologics to treat IBD.
Send us Fan Mail Welcome to S3 episode 4! We wanted to focus on biosimilars today because we know they are becoming more popular with insurance. We will help…
IBDeterminedS3 Episode 3 - Advice and support for caregivers and those newly diagnosed with IBD.
Send us Fan Mail Welcome to S3 episode 3! We are revisiting a topic we have gone over since it has been awhile. There is a lot to absorb when you are first…
IBDeterminedS3 episode 2 - The National Park Access Pass that is available for those of you with IBD!
Send us Fan Mail Welcome to S3 episode 2! In light of Disney and the changes they have made to not accommodate IBD disabilities, we were excited to find…
- IBDetermined
Season 3 Episode 1- Reacting to an article by Michael Osso on stress management for IBD.
Send us Fan Mail Welcome to S3 episode 1! We wanted to revisit the topic of stress and how it influences IBD. We read an article in Psychology today and it…