Shows / The Hyper IgM Podcast
The Hyper IgM Podcast
In the world of rare diseases, amplifying patient voices is crucial for empowering others to make informed treatment decisions and for providing insights to healthcare professionals and researchers about the patient experience and its impact on quality of life. With conditions like Hyper IgM Syndrome, a rare immune deficiency affecting one in a million individuals, the majority of those affected are children. Yet, narratives in the pediatric rare disease realm often stem from the perspectives…
Episodes
The Hyper IgM PodcastHyper IgM Podcast - King is Looking for his Lifesaving Stem Cell Donor (With Special Guest Ace)
Swab Your Cheek For King with Gift of Life!: https://www.giftoflife.org/register?SPCODEPrm=kingandace In Episode 9 of the Hyper IgM Podcast, Ezra talks with…
The Hyper IgM PodcastHyper IgM Podcast - E8 - Rebekah shares a Parent's Perspective on Transplant
Hyper IgM Podcast - E8 - Rebekah shares a Parent's Perspective on Transplant
The Hyper IgM PodcastHyper IgM Podcast - Patient Voices - E7 - Marcus Gives an International Transplant Perspective!
In episode 7 of the Hyper IgM podcast, Marcus, a 23-year-old from Sweden, joins us to share his unique journey with Hyper IgM. Marcus walks us through the…
The Hyper IgM PodcastHyper IgM Podcast - Patient Voices - E6 - Chris Returns for an Update on his Gene Editing Journey!
In episode 6 of the Hyper IgM Podcast, Chris returns to share an update on his remarkable journey as the first patient to undergo gene editing therapy for…
The Hyper IgM PodcastHyper IgM Podcast - E5 - Featuring Dr. Prockop, Renowned Pediatric Stem Cell Transplant Physician!
In episode 5 of the Hyper IgM Podcast, we change the focus from patients to doctors with this in depth interview of Dr. Susan Prockop, Program Director…
The Hyper IgM PodcastHyper IgM Podcast - Patient Voices - E4 - featuring Chris, the FIRST HIgM gene editing candidate!
In Episode 4 of our Paitent Voices Hyper IgM Podcast, Chris shares revolutionary info about a new experimental treament plan for Hyper IgM Syndrome, gene…
The Hyper IgM PodcastHyper IgM Podcast - Patient Voices - E3 - Ezra Talks to Josh
In Episode 3 of our Paitent Voices Hyper IgM Podcast, Josh shares his experience going through transplant and his significant post transplant complications…
The Hyper IgM PodcastEpiosde 2 - Ezra Talks to Simon - Hyper IgM Podcast - Patient Voices
In the second episode, Ezra sits down with 12 year old Simon from Utah who is currently living with Hyper IgM syndrom. Simon delves into all the challenges…
The Hyper IgM PodcastEpisode 1 - Ezra Talks to Idan - Hyper IgM Podcast - Patient Voices
In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand…