Latest / Tom's Hirschsprung's Podcast / Episode 36 - With Charlotte

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Episode 36 - With Charlotte · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshbrun's Podcast, where I provide
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Speaker 1: a look into the remarkable experiences of the most inspiring
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Speaker 1: people around Hirshprung's disease and sports.
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Speaker 2: Hello and welcome to episode thirty nine of Tom's Hirshprun's Podcast.
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Speaker 2: I've got something a little bit different to bring you today. Today,
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Speaker 2: I've got Charlotte with me and we are going to
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Speaker 2: talk about a variety of different conditions, every single one
0:55
Speaker 2: of them you have. So we kind of talk about
0:58
Speaker 2: a variety of things that we've brought up before, some
1:03
Speaker 2: that we maybe haven't, some that you know, some that
1:05
Speaker 2: you may not know. But welcome to the podcast. Charlotte,
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Speaker 2: You no a problem at all. Now we'll go straight
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Speaker 2: into it. You are a biomedical science masters student, having
1:21
Speaker 2: just recently recently graduated this summer. Just first of all,
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Speaker 2: before we dive into the medical conditions, was there anything
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Speaker 2: in particular that made you want to do that?
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Speaker 3: To be honest, it was really growing up with all
1:35
Speaker 3: the medical conditions that nobody had heard of. It was
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Speaker 3: just kind of thinking, well, if nobody else has been
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Speaker 3: able to do some research into those things, maybe I
1:43
Speaker 3: can do that. Myself. Chronic conditions, if any's done can't
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Speaker 3: do anything to help you, You help yourself. So that's
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Speaker 3: what I've done.
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Speaker 2: Fantastic. That's actually as good a reason as Eddie. And
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Speaker 2: definitely having at all how all of your conditions can
2:02
Speaker 2: but you definitely had a head start on knowing what's what.
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Speaker 3: Everybody else I've experienced just learning along the way through
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Speaker 3: all the hospital appointments and all the things that can
2:12
Speaker 3: go wrong, you start to learn how different things work
2:15
Speaker 3: and how you can start to pick them.
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Speaker 2: Fantastic. Now I'll just start us off. I know you
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Speaker 2: wrote the big long list of conditions, and we were
2:24
Speaker 2: talking off briefly about the form that I send through
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Speaker 2: that for people to fill in, so that I know
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Speaker 2: you know roughly what you have and what you want
2:34
Speaker 2: to talk about don't want to talk about, and the
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Speaker 2: little section that I leave for whats your medical condition
2:42
Speaker 2: is just not big enough for you.
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Speaker 3: Yeah, I've got quite a lot. I'm just collecting them.
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Speaker 3: Some people collect stamps and pretty stones. I'm just collecting
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Speaker 3: all the chronic health conditions that can go wrong that's stick,
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Speaker 3: just to just keep it entertaining. Sometimes there'll be new
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Speaker 3: ones that not even I've and they'll be like, that's
3:01
Speaker 3: what's going on there. I guess exactly. It's always entertaining.
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Speaker 3: At least they could never get bought.
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Speaker 2: That very true, Very true. I mean, we'll we'll explain
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Speaker 2: each one inter that's probably the best way of doing this.
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Speaker 2: But if I just listed them so as there's eds, pots,
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Speaker 2: M cass endo, cpt S, d Y, and that's it,
3:30
Speaker 2: I believe we'll go through them in sort of order.
3:34
Speaker 2: We'll explain what they are when you were diagnosed with them,
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Speaker 2: and we'll start with Endia's dandas syndrome. Have I got
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Speaker 2: that right?
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Speaker 3: Ella's dan last Sinjo, Yeah, very close, the one that's
3:47
Speaker 3: hard to pronounce. That's the one that I was born with.
3:51
Speaker 3: And to do with a collagen mutation that they'd never
3:55
Speaker 3: really been able to identify before, so they would kind
3:58
Speaker 3: of like, you have to pay for the jet test
4:00
Speaker 3: because we don't know we can actually find anything. So
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Speaker 3: I don't know specifically what mutation I'm blaming for this,
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Speaker 3: but all my collagen is a bit rubbish, that's the
4:09
Speaker 3: polite way of putting it. Lots of expletives tend to
4:11
Speaker 3: be involved some mornings when all my joints are dislocated,
4:14
Speaker 3: but we look for politer phrases, eats me entertain dislocating joints,
4:20
Speaker 3: organs that don't tend to work quite as well, and
4:23
Speaker 3: all the sort of inability to maintain blood pressure keeps
4:27
Speaker 3: it very exciting.
4:29
Speaker 2: And I'm right in saying you were born with this.
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Speaker 3: Yeah, definitely. I was born as a teeny tiny baby.
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Speaker 3: And they were like, well, they don't never notice. It
4:37
Speaker 3: took seventeen years to get the diagnosis, but they really
4:40
Speaker 3: should have noticed very early on because I had all
4:43
Speaker 3: the symptoms. But of course I was a teenage girl
4:45
Speaker 3: complaining about pain for a while, and they were like,
4:47
Speaker 3: it's definitely growing pains, don't worry about it. And then
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Speaker 3: they actually watched my hip dislocate and they watched my
4:54
Speaker 3: bones rapture and they were like, okay, maybe there is
4:58
Speaker 3: something going on here. It was a snap and tendon
5:02
Speaker 3: that was entertaining for me. And when I said, okay,
5:04
Speaker 3: when there's a snapping tendon, I'll show you what I
5:07
Speaker 3: actually mean when I've said that, and then they were like, oh,
5:10
Speaker 3: that is actually a snapping tendon. So your bones and
5:14
Speaker 3: you're moving completely differently. We need to get a video
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Speaker 3: m eye of that, and then suddenly it was okay,
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Speaker 3: let's get a diagnosis for that.
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Speaker 2: Wow, where did cane diagnosis?
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Speaker 3: If you're entertaining?
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Speaker 2: Yeah? Absolutely, where where did you snap? Attendant or pond? Oh?
5:31
Speaker 3: It's sort of like just over the top of your hip.
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Speaker 3: It's called the glue teal tendon and sort of the
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Speaker 3: ITV the ibeat of your band that joins your knee
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Speaker 3: to your hip. So that sort of normally would move
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Speaker 3: in one direction, but when your tendoners start to snap,
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Speaker 3: they move like over the top of the bone and
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Speaker 3: get wedged in between the bones and then can just
5:51
Speaker 3: behave in completely different ways.
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Speaker 2: Wow. And from from what I know about snapping tendons
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Speaker 2: and from what I can remember from my sports science degree,
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Speaker 2: it's it's the tendon in sort of the lower ankle. Yeah, snaps.
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Speaker 2: It can sound like a gunshot.
6:14
Speaker 3: Is that they stand a white gun shot?
6:16
Speaker 2: Okay, So is that sad? Do you know if that's
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Speaker 2: the same with all tendons or is that.
6:21
Speaker 3: Just well mine all snap all up my arms and
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Speaker 3: you can kind of hear like the little pot and
6:27
Speaker 3: this sort of show with a gun shot. It's kind
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Speaker 3: of particularly in hips. They will be the loudest because
6:33
Speaker 3: there's more space to actually echo around. But the ankles
6:37
Speaker 3: are teeny tiny and they can be like a little
6:38
Speaker 3: teeny tiny pistol shot. Oh so so not not as loud,
6:43
Speaker 3: not as loud, but cute. Wow.
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Speaker 2: Yeah, it's just just dredging that back from sort of yeah,
6:50
Speaker 2: ten to fifteen years ago.
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Speaker 3: But impressive being able to remember that that's the thing
6:54
Speaker 3: that stuck with you.
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Speaker 2: Yeah, well to remember a lot of things. Yeah, that's
6:59
Speaker 2: a few degrees. But yeah, so from what Iron said,
7:04
Speaker 2: you spot spoke a little bit about hyper mobility, but
7:07
Speaker 2: also the skin as well can be very stretchy and
7:11
Speaker 2: ye bendy and all sort.
7:13
Speaker 3: Of tears so very easily.
7:16
Speaker 2: Was it just thinner as well?
7:18
Speaker 3: Yeah, it's kind of like sort of like wet tissue paper,
7:21
Speaker 3: is how I describe it. So normal people's skin is
7:24
Speaker 3: meant to be like that sort of fairly solid barrier
7:27
Speaker 3: that can provide that protection to everything that's beneath it.
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Speaker 3: But when you've got eds, it just tends to be
7:32
Speaker 3: a bit more easy to tear and occasionally will just
7:38
Speaker 3: stretch beyond beliefs.
7:40
Speaker 2: Wow. Okay, so is there anything that you can do
7:45
Speaker 2: to sort of help sort of fragility.
7:51
Speaker 3: Well, sometimes it's just sort of being able to protect
7:54
Speaker 3: your skin. And the one positive that we always celebrate
7:56
Speaker 3: is the skin doesn't wrinkle. So people with edes never
7:59
Speaker 3: tend to look old. That's the celebration, and we can
8:02
Speaker 3: have all the negatives, but we look at least when
8:05
Speaker 3: I'm old, I won't look quite as old as I
8:07
Speaker 3: actually am. That's the main thing.
8:09
Speaker 2: You'll still look twenty one at avery. That's fantastic, that's fantastic.
8:15
Speaker 2: I'm really glad to know because there are positives to eds.
8:19
Speaker 3: Definitely, it's harder to find at the start, but you
8:23
Speaker 3: always tend to think about them when you need them.
8:26
Speaker 2: No, that's brilliant. Well, this podcast is all about positivity
8:31
Speaker 2: around chronic illness. So I am glad to know that
8:34
Speaker 2: there is at least one thing very good.
8:37
Speaker 3: And the flexibility is always good. Sometimes the nightmare if
8:41
Speaker 3: you dislocate in joints, but at least you can reach
8:43
Speaker 3: things that a lot of people can't, and you can
8:45
Speaker 3: bend and open doors with your foot if you need.
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Speaker 2: Oh wow, a bit of some party tricks there.
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Speaker 3: I am actually, oh, definitely a lot of party tricks
8:53
Speaker 3: if you've got Philambs. And you're thinking the door handle's
8:55
Speaker 3: too high to be able to reach it with your face.
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Speaker 3: You can do it with your foot. That's the advantage.
9:00
Speaker 2: Oh way, oh dear me.
9:04
Speaker 3: You can't turn the light switch on because you've got
9:06
Speaker 3: stuff in your hands. You can again use your phone.
9:08
Speaker 3: That's the advantage of hyperability.
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Speaker 2: Fantastic.
9:12
Speaker 3: Also, many many positives. There's lots of delightful things about
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Speaker 3: all of these conditions, lots of flight problems. I think
9:21
Speaker 3: it's fair to say, but we've got to focus on
9:23
Speaker 3: occasional positives that bring us some joy.
9:26
Speaker 2: Absolutely, I totally totally agree.
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Speaker 3: People are laughing about it. At least it's hilarious.
9:33
Speaker 2: Yes, it's good to see the positive side. The other
9:38
Speaker 2: part of what's going to bring up as well is
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Speaker 2: EDS has thirteen types. Yeah, are you a particular type
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Speaker 2: or are you a bunched out?
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Speaker 3: Without the sort of mutation to actually confirm it, they
9:53
Speaker 3: never specifically say that. A lot of people that have
9:56
Speaker 3: diagnosed me and looked at me say that they think
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Speaker 3: it's going to be classical type, but can't say specifically
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Speaker 3: without the actual mutation to say it's definitely this one.
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Speaker 3: As it's relating to which type of collagen is mutated
10:08
Speaker 3: and sort of how it affects you. So sort of
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Speaker 3: like the classical one tends to be more relating to
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Speaker 3: like hips and shoulder joints and skin, and sometimes like
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Speaker 3: sort of kidneys can come to be our dodgy and
10:21
Speaker 3: the classical type. But there's lots of other types that
10:25
Speaker 3: have the same issues, just at different times of life.
10:28
Speaker 3: So sometimes they're not as different as some people like think,
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Speaker 3: but equally they are. It's worth knowing the differences because
10:36
Speaker 3: they can have different risks for different joints and different
10:39
Speaker 3: particular organs that will go wrong. Wow.
10:43
Speaker 2: So it's a lot of sort of mutation of collagen.
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Speaker 3: Yeah, And it's that kind of the thing that's lacking
10:49
Speaker 3: in the research. It's being able to actually explain the
10:51
Speaker 3: differences to people and help people to understand why it's
10:54
Speaker 3: important to understand the differences. But of course doctors will go,
10:58
Speaker 3: you have EDS, that's all an to know, But EDS
11:01
Speaker 3: doesn't really tell them as much as actually knowing the type.
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Speaker 2: Yeah. Yeah, it makes a difference, no, very much so,
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Speaker 2: And in terms of obviously you've had this all of
11:13
Speaker 2: your life. In terms of having to sort of explain
11:16
Speaker 2: it to people kind of like I've had to do
11:19
Speaker 2: with with hirshprungs and try to a couple of sentences.
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Speaker 3: It's really it's really challenging. It's your whole life and
11:26
Speaker 3: it affects everything. But you can't condense it into a
11:29
Speaker 3: couple of sentences.
11:30
Speaker 2: No, no, But so, how have you how you managed
11:34
Speaker 2: to sort of when you had to explain it to people?
11:38
Speaker 2: Have you have you had to take the sort of
11:39
Speaker 2: long witded approach or have you managed to sort of say, well,
11:42
Speaker 2: it's kind of like hyper mobility, but a bit more there.
11:45
Speaker 3: Yeah, I suppose I tend to shot on it to
11:47
Speaker 3: some of the joys and some of the negatives in
11:49
Speaker 3: the same sentence and just go, well, it's it's mainly
11:52
Speaker 3: the bendy joints, and I can break my bones very easily,
11:56
Speaker 3: and it keeps my blood pressure very unstable. But at
11:59
Speaker 3: least reach things you can't and bend backwards rather than
12:02
Speaker 3: breaking straight away.
12:04
Speaker 2: Fantastic two systems.
12:07
Speaker 3: There we go. You saw that, then you and never
12:08
Speaker 3: to get follow up questions about all of that, don't you.
12:11
Speaker 2: Yeah, that's very true. That's very in this instance, because
12:15
Speaker 2: we've already talked about it. I have no follow up questions.
12:20
Speaker 2: I'd like to if I may move on to POTS,
12:25
Speaker 2: which is for those who are unaware ostural tacycardia syndrome. Now,
12:31
Speaker 2: this is something I really want to talk to you
12:33
Speaker 2: about because this is something closer literally closer to my heart.
12:39
Speaker 2: So because as I've I've put in my story this
12:43
Speaker 2: my pinpost on Instagram, I had taca cardia. Yeah, I
12:48
Speaker 2: was when I was a baby. Yeah. And again, those
12:53
Speaker 2: who are unaware of taca cardia where the heart is
12:56
Speaker 2: beating very very very fast, and obviously it's very very
13:02
Speaker 2: dangerous for that. Mine was mainly down to blood poisoning
13:06
Speaker 2: and then eventually was stopped through magnesium, so shot magnesium
13:13
Speaker 2: in the bloodstream and then it sort of sort itself
13:16
Speaker 2: out from there. But postural attachercardia syndrome is different to that.
13:22
Speaker 3: Yeah, kind of, it's sort of more lifelong. So if
13:25
Speaker 3: you've got your inability to sort of maintain a stable
13:29
Speaker 3: heart rate and an inability to maintain stable blood pressure
13:32
Speaker 3: tends to be the cause in EDS some people it
13:35
Speaker 3: tends to be post viral, and it can just be
13:38
Speaker 3: as a result of that sort of inflammation a bit
13:39
Speaker 3: nerve damage and not being able to regulate the heart rate.
13:42
Speaker 3: But for me, it's just inability to maintain anything stablely,
13:46
Speaker 3: just because my body is not really designed to be stable.
13:50
Speaker 3: I think we're built by idiots, I think, if the
13:52
Speaker 3: polite way of putting it, but I'm not criticizing my
13:54
Speaker 3: parents on a podcast.
14:01
Speaker 2: It's it's just can be the way, isn't it. I
14:03
Speaker 2: mean it's it's like a lot of things, it's, you know,
14:07
Speaker 2: not necessarily sure how we get these honesses. They just
14:12
Speaker 2: tend to happen. Did they ever give you sort of
14:15
Speaker 2: a because with Herschbrums they give us sort of one
14:19
Speaker 2: in five thousand. Did they ever give you like your
14:22
Speaker 2: one and something wrong?
14:25
Speaker 3: Well, I think there's sort of They don't know because
14:28
Speaker 3: they said the EDS was rare, but then of course
14:31
Speaker 3: there's been more and more people that they're finding and
14:34
Speaker 3: just going, okay, it was rare that you got diagnosed.
14:37
Speaker 3: In reality, it's not looking quite as rare as it
14:39
Speaker 3: once was. And equally, the parts post COVID, with all
14:42
Speaker 3: the pandemic stuff, it's been really quite common post viral
14:45
Speaker 3: and long COVID. They're relating bits of it to parts.
14:48
Speaker 3: So I think sometimes they say at the start they'll
14:52
Speaker 3: give you a number, but of course that'll change in
14:54
Speaker 3: a few years as they get more aware of how
14:56
Speaker 3: many they're going to actually be.
14:58
Speaker 2: No, that makes absolute so yeah, absolutely said so. Part
15:04
Speaker 2: of pots obviously is dizziness, lightheadedness, chest paint, something, all
15:10
Speaker 2: the joys. Oh no, But so do you again, do
15:15
Speaker 2: anything specific for that sort of standing up too quickly
15:18
Speaker 2: and things like that.
15:20
Speaker 3: Yeah, Well, they recommend basically if you stand up, just
15:23
Speaker 3: cross your legs before you stand up, because that can
15:25
Speaker 3: raise your blood pressure by about plus seven. And you
15:27
Speaker 3: think it won't make a huge difference, but when you
15:30
Speaker 3: start doing it all the time, you realize it does
15:32
Speaker 3: make a difference.
15:34
Speaker 2: I didn't know that.
15:35
Speaker 3: Yeah, it's one of those aterustic little tricks that's very
15:38
Speaker 3: very simple. But equally, when you actually need to go
15:41
Speaker 3: to pea, you actually increase your blood pressure by about five.
15:44
Speaker 3: So they say sometimes that if you want to go anywhere,
15:47
Speaker 3: it's best to eat the toilet at the.
15:48
Speaker 2: Same time, bring lots of water.
15:51
Speaker 3: Yes, yes, definitely. Tablets and heart meds will also help
15:56
Speaker 3: to settle the risks of all the sort of high
15:59
Speaker 3: heart rate and that sort of risk of fainting, which
16:02
Speaker 3: is great but it's one of those things that again
16:05
Speaker 3: people still don't know how to actually sold.
16:09
Speaker 2: No, No, possibly they may never do so, but absolutely.
16:15
Speaker 2: But that's again the reason I love doing this podcast
16:17
Speaker 2: is as well to get them out to everybody, so
16:22
Speaker 2: lots of people learn about various conditions, but also so
16:26
Speaker 2: I learn as well. I love learning little facts like
16:30
Speaker 2: that about the crossing of the legs and it's a
16:33
Speaker 2: sort of plus plus seven do you say plus seven?
16:36
Speaker 3: Yeah, plus seven on the brook pressure, so the systemic
16:38
Speaker 3: can go up by about seven which makes a difference.
16:41
Speaker 2: Yeah, hugely. Absolutely, No, I love learning metal facts like
16:45
Speaker 2: that that this will make this make this a lot
16:49
Speaker 2: of fun. But I do want to before I go
16:52
Speaker 2: on to the other medical conditions that have taken up
16:56
Speaker 2: a whole page of my notes. With having pots, you
17:04
Speaker 2: do a lot of exercise, a lot of cycle and
17:08
Speaker 2: one thing that you have done is a is it
17:13
Speaker 2: five hundred mile pipe ride in two weeks? Yeah, yes
17:18
Speaker 2: to you today that So how did you manage did
17:23
Speaker 2: you have to anything specific to manage pots for that?
17:26
Speaker 3: Well? I think the advantage of cycling, it's one of
17:28
Speaker 3: the reasons I chose it is because it's a seated spot.
17:31
Speaker 3: There's slightly less risk of having pots being too much
17:35
Speaker 3: of a problem because you don't necessarily have to stand
17:37
Speaker 3: up getting off the bike and walking away at the
17:40
Speaker 3: end of the cycle. That's the challenge because once you're
17:42
Speaker 3: upright again, it oh dear bye bye blood prussure. But
17:46
Speaker 3: I think I'm managed by drinking extra water, taking extra
17:50
Speaker 3: salt tablets, getting extra infusions with their sort of saline,
17:54
Speaker 3: just normal saline infusions tend out with pots, and they
17:57
Speaker 3: tend to recommend that for athletes after long run and cycles,
18:00
Speaker 3: and with pots, they recommend at least once a month.
18:04
Speaker 3: I think at the moment they're saying is the sort
18:06
Speaker 3: of recommended time frame to the infusions. And they helped
18:09
Speaker 3: and kept me going fantastic.
18:12
Speaker 2: And do you remember how much he raised for idios.
18:16
Speaker 3: I think it was one three hundred and sixty pounds.
18:21
Speaker 2: Yeah, that's fantastic first for a couple of and you
18:25
Speaker 2: did those over five hundred miles over a couple of weeks.
18:27
Speaker 3: Yeah, I think it was maybe a month for the
18:29
Speaker 3: five hundred mile one, and I think I think it
18:31
Speaker 3: was two weeks for the two hundred and fifty one
18:33
Speaker 3: mile one. And then I did like two hundred and
18:36
Speaker 3: thirty one hours because that was the number of days
18:38
Speaker 3: I'd had hit was sort of two hundred and thirty
18:41
Speaker 3: one hours of exercise over like six weeks. I think
18:44
Speaker 3: it was In the end, always keeps me entertained most
18:49
Speaker 3: of its distraction. When you live with these chronic conditions
18:52
Speaker 3: that cause pain, it's always good to have a distraction
18:55
Speaker 3: and a reason to be thinking, well, that's going to
18:57
Speaker 3: make a difference today, and that's what matters.
19:00
Speaker 2: No, I totally agree, totally agree with that. And I'd
19:04
Speaker 2: One more fundraising effort that you did was for the
19:08
Speaker 2: trustle Trust. Yeah, a little bit more about that.
19:11
Speaker 3: Yeah, that was a recent one. It was just after
19:14
Speaker 3: getting out of hospital and because I'd had to go
19:17
Speaker 3: six months without food, just mainly because the doctors were
19:19
Speaker 3: a bit of an idiots, and I just thought, I
19:22
Speaker 3: don't want to see other people struggling for food just
19:25
Speaker 3: purely because of money, because that's the heartbreaking thing.
19:28
Speaker 2: I knew.
19:28
Speaker 3: For me, I had no choice because I needed drugs
19:31
Speaker 3: that they wouldn't give me. But other people are struggling
19:33
Speaker 3: the same way that I did, and they're still not
19:36
Speaker 3: getting help, And I knew how hard that was. So
19:38
Speaker 3: I just thought, I want to fundraise for the trustle
19:40
Speaker 3: Trust and make a difference to try and help people
19:42
Speaker 3: that are struggling to get the money for food.
19:45
Speaker 2: Ask it. And that was eight hundred miles of running.
19:49
Speaker 3: Yeah, running and cycling. It was a combination. I just
19:52
Speaker 3: thought of eight hundred miles of exercise nothing mainly cycling,
19:55
Speaker 3: but a few running as well. And it kept me
19:58
Speaker 3: very entertained food a long time.
20:02
Speaker 2: And that's over over a year as well. So did
20:04
Speaker 2: you do that from like a January to December thing?
20:07
Speaker 3: It was like a six weeks sort of time brain,
20:10
Speaker 3: but it just felt like a lot longer. It's kind
20:13
Speaker 3: of hard to remember, but it was. It was only
20:15
Speaker 3: only a year ago, but it was I was still
20:18
Speaker 3: recovering from sort of the brain dabdgy stuff, so it
20:20
Speaker 3: was a bit like hard to remember all the details.
20:25
Speaker 3: But I just remember getting up every day and exercise
20:28
Speaker 3: in and most of it was just to help build
20:30
Speaker 3: the muscle back and it was really really helping for that.
20:33
Speaker 2: Yeah, no, fantastic, No, thank you very much for that,
20:37
Speaker 2: And well done on your your fundraising effort. That's fantastic.
20:41
Speaker 2: I'm all for exercise based fundraising efforts. And in fact
20:49
Speaker 2: actually coming up for Hirshbrung's awareness month, there will be
20:55
Speaker 2: a fundraising effort. I said that I would meant this
21:00
Speaker 2: to the person who is doing this. So this seems
21:02
Speaker 2: like a fantastic segue. But there are there is a
21:08
Speaker 2: group called Vicki Bignell yeh. I know through through Facebook's
21:12
Speaker 2: messages there, and she is raising money for guts UK,
21:19
Speaker 2: aiming to reach a combined group effort of five thousand
21:22
Speaker 2: kilometers in September via cycling or running really just sort
21:28
Speaker 2: of any exercise and looking to looking to raise money there.
21:33
Speaker 2: So if you are interested in supporting that Vicky Biggles
21:38
Speaker 2: Facebook page, I think she's going to start putting it
21:41
Speaker 2: out all over the place. But yes, I said that
21:45
Speaker 2: I'd advertised that for her.
21:48
Speaker 3: Congratulations to that of it's not low.
21:50
Speaker 2: Hopefully that will be for September. So yeah, yes, we're
21:56
Speaker 2: raising money and raising awareness. Yeah.
22:00
Speaker 3: It's amazing being able to do a challenge that relates
22:04
Speaker 3: in some way but doesn't necessarily feel like it's all
22:06
Speaker 3: consuming about the condition.
22:09
Speaker 2: Yes, yes, and I'm all for exercise based challenges and
22:15
Speaker 2: I think, well, I'm tend to be one of those
22:18
Speaker 2: people who does them anyho does exercise anyway, So if
22:21
Speaker 2: you can do it and help as well, then exactly
22:25
Speaker 2: I'm all for those. But back to you and your
22:30
Speaker 2: list of down the list of chronic conditions it has
22:36
Speaker 2: at break it makes it feel a bit less all
22:38
Speaker 2: consuming with all the lists of conditions. True, true, But
22:43
Speaker 2: number three is that the class one m CASS. Yes,
22:48
Speaker 2: so last sell activation syndrome. So is this another cardiovascular one?
22:55
Speaker 3: This one's the immune system one. So it's relating to
22:59
Speaker 3: master in your immune system that normally would deal with
23:03
Speaker 3: allergic reactions. So that's the reason that a lot of
23:06
Speaker 3: people tend to know them. If they have an allergy,
23:08
Speaker 3: they'll know the massseelves of the evil things they're brain
23:10
Speaker 3: for that. So normally they will be sort of chilling
23:13
Speaker 3: in your immune system, but they will be able to
23:16
Speaker 3: release histamine to deal with allergies. But normally the dealing
23:20
Speaker 3: with allergies, you think dealing with allergies would imply support,
23:24
Speaker 3: But of course anathylytic shock is definitely not support. It's
23:26
Speaker 3: not a good idea, no, no, definitely not to lead
23:30
Speaker 3: to the very very dangerous situation of just lots of
23:33
Speaker 3: histamine and then your heart will start to really struggle
23:36
Speaker 3: with the amount of information in your body.
23:39
Speaker 2: Yeah, yes, that's but that's sort of probably probably one
23:44
Speaker 2: of your more easier to explain.
23:46
Speaker 3: Yeah, it could do more people relate to the idea
23:49
Speaker 3: of just don't eat those foods. But when it is
23:52
Speaker 3: literally all foods with the exception of about I mean,
23:56
Speaker 3: I've got it up to about one hundred and thirty
23:59
Speaker 3: fields now that I can eat, which is brilliant. But
24:01
Speaker 3: of course then you realize when you start counting them,
24:04
Speaker 3: but there's a heck of a lot of food that
24:05
Speaker 3: are just definite anaphylactic, charchomoid.
24:09
Speaker 2: Ah. But I guess focus on one hundred and thirty.
24:12
Speaker 2: It sounds you like you've got loads of variety.
24:14
Speaker 3: Exactly lentils. When I figured out I could eat lentils,
24:18
Speaker 3: that was the biggest game changer, because lentils are brilliant.
24:23
Speaker 3: Is that with lentils you can.
24:25
Speaker 2: That's very true. And is that one hundred I presume
24:28
Speaker 2: that's one hundred and thirty different foods. That's just not
24:32
Speaker 2: like one hundred and thirty different types of cheese or something.
24:34
Speaker 3: Well, the thirty different foods, but I am including like
24:37
Speaker 3: herbs and occasional bits of spices in there, so some
24:41
Speaker 3: of them are not actual foods on their own, but
24:43
Speaker 3: at least helped to make foods better.
24:46
Speaker 2: True, very true. And one another part that I want
24:52
Speaker 2: to talk to you about was endometriosis because someone that
24:56
Speaker 2: we both know who came on the podcast a few
25:00
Speaker 2: weeks ago, Rebecca Johnson Richards thirty three, if you haven't
25:04
Speaker 2: checked that one out, has ENDO, and we talked for
25:08
Speaker 2: quite a while about deletriosis and just how harmony is
25:15
Speaker 2: one in ten women, yeah, suffer with endometriosis and something that.
25:23
Speaker 2: And it might just be my mighty ignorance, but I
25:26
Speaker 2: hadn't heard a great deal about it, And I said,
25:29
Speaker 2: it's just you there really isn't the research to actually
25:32
Speaker 2: evidenced it. You know, I did an infographic recently on
25:35
Speaker 2: my Instagram about how little research is actually published. I
25:39
Speaker 2: think it was well under like a couple of hundred
25:42
Speaker 2: that has actually been published looking at endometriosis and how
25:45
Speaker 2: to solve it. Yeah. Yeah, I mean I've seen I've
25:49
Speaker 2: seen things that are far far rarer ENDO and get
25:56
Speaker 2: so much more coverage. Yeah. Why, And I guess I'll
26:01
Speaker 2: ask this question. You might not know the answer, but
26:03
Speaker 2: I'll ask it anyway, But why do you think that is?
26:07
Speaker 3: No, I mean, I'm told a lot of the time
26:10
Speaker 3: it's maybe just because endometrius is something that only people
26:15
Speaker 3: with the uterus would suffer with. Then, of course a
26:17
Speaker 3: lot of research tends to be primarily centered around just men,
26:21
Speaker 3: just because in reality and history it was only men
26:24
Speaker 3: doing the research and now at least time getting to
26:27
Speaker 3: be one of the people that can actually start to
26:29
Speaker 3: do research into these conditions, But there hasn't been a
26:33
Speaker 3: lot of research conducted by women or purely women's conditions,
26:37
Speaker 3: and it makes a difference.
26:39
Speaker 2: It's interesting. I hadn't thought of it that way, but
26:42
Speaker 2: actually that does. That does that does make quite a
26:46
Speaker 2: bit of sense.
26:47
Speaker 3: The obvious go to is and sadly, it is still
26:49
Speaker 3: a bit of a reason that a lot of conditions
26:52
Speaker 3: that just wouldn't get the research purely based on the
26:55
Speaker 3: fact that there's regis isn't the money because mostly money
26:59
Speaker 3: is coming from people that have money, and the governments
27:02
Speaker 3: tend to not be very supportive of all the things
27:05
Speaker 3: that they're not suffering with themselves.
27:08
Speaker 2: That that is, yeah, I mean, but that's go down
27:12
Speaker 2: the list of of illnesses, especially chronic illnesses. One of
27:19
Speaker 2: the more obvious ones is you know, if a celebrity
27:24
Speaker 2: has that condition or their child has that condition, you're
27:28
Speaker 2: going to hear more about it, hear more awareness. And
27:31
Speaker 2: I think sometimes that's just the way of the world.
27:37
Speaker 3: Not one of those conditions that people want to talk
27:39
Speaker 3: about all day, every day, because inevitably it's it's a
27:42
Speaker 3: topic that still is quite just dismissed, is not a
27:47
Speaker 3: topic to talk about by most people. Like a lot
27:51
Speaker 3: of the things that relate to any kind of organ
27:54
Speaker 3: sometimes just cands to get like and we don't want
27:57
Speaker 3: to talk about that, Like a lot of IBD have
27:59
Speaker 3: this sort of problem. Nobody wants to talk about anything
28:02
Speaker 3: relating to the gut. You don't want to be talking
28:04
Speaker 3: about that at various times.
28:06
Speaker 2: Yeah, yeah, probably why no one ever started at Hirschbrum's
28:10
Speaker 2: podcast in.
28:13
Speaker 3: The player of thankfully you did and we're all grateful.
28:18
Speaker 2: I did eventually eventually. It took me thirty two years,
28:21
Speaker 2: but I got round to it eventually.
28:23
Speaker 3: But it makes a difference now, and that's all that
28:25
Speaker 3: that is.
28:26
Speaker 2: It's very kind, very kind and as a sort of
28:33
Speaker 2: go down to now, the condition you have, which is PTSD,
28:39
Speaker 2: but it's slightly more slightly different in terms of cp
28:45
Speaker 2: ts D complex post traumatic stress disorder. What makes what
28:52
Speaker 2: makes the difference between PTSD? Because I think everybody listening
28:55
Speaker 2: to this will have heard of some form or other PTSD,
28:59
Speaker 2: But what becomes the difference between that and making it complex? Now?
29:05
Speaker 3: They've never really bothered to explain it to me in detail,
29:08
Speaker 3: but I suppose it's one of those things that they
29:11
Speaker 3: just if maybe that it's relating to just how you present.
29:16
Speaker 3: I suppose if there's a couple of features that are
29:18
Speaker 3: slightly different and being able to have lots of history
29:24
Speaker 3: of a fair amount of trauma, I think maybe is
29:27
Speaker 3: the reason that you've got a few more interlinked traumas
29:30
Speaker 3: that tend to just build up to this slightly bigger inability,
29:35
Speaker 3: well not inability to cope with it now, but just
29:38
Speaker 3: slightly more difficult to separate any challenge now from anything
29:43
Speaker 3: that happened in the past.
29:45
Speaker 2: Okay, yeah, that makes that makes sense. Yeah, I just
29:49
Speaker 2: I just had a look at that and I thought, well,
29:50
Speaker 2: I think, you know, I've heard of PTSD, but hadn't
29:53
Speaker 2: really I just thought PTSD was PTSD. You know, obviously
29:58
Speaker 2: it can manifest itself into several different ways, but never
30:03
Speaker 2: heard it called complex, and again that might just be
30:06
Speaker 2: my ignorance.
30:06
Speaker 3: Again, it's again one of those topics that people don't
30:12
Speaker 3: talk about in as much detail as they should. I mean,
30:14
Speaker 3: you hear the sort of the word PTSD used quite
30:17
Speaker 3: a lot, just repeatedly through either TV or films, but
30:22
Speaker 3: then actually being able to explain what it's actually like
30:25
Speaker 3: for people in different cases is quite important because you
30:28
Speaker 3: only tend to see it relating to war storing is
30:31
Speaker 3: of those kind of things, but you don't ever tend
30:33
Speaker 3: to hear the more common thing when it's looking back
30:37
Speaker 3: to what's happened in hospital for a lot of people
30:39
Speaker 3: with chronic illnesses, that would be able to be like, yeah,
30:42
Speaker 3: that's that's why I don't go near that building. That's
30:45
Speaker 3: why I can't see that person without shaking. That's why
30:47
Speaker 3: I can't actually talk and use those words that I
30:51
Speaker 3: used at the time without just shaking incessantly.
30:55
Speaker 2: Yeah. I think that's something that's not honestly talked about enough.
31:00
Speaker 2: I'd not have talked on this podcast to quite a
31:03
Speaker 2: few people who, whether they've been diagnosed with it specifically
31:08
Speaker 2: or not, but certainly suffer with form of trauma, having
31:14
Speaker 2: to sort of talking about their condition and what procedures
31:21
Speaker 2: they went through are likee difficult.
31:25
Speaker 3: Yeah, I suppose the main sort of difference between general
31:30
Speaker 3: PTSD and the complex thing is just the sort of
31:35
Speaker 3: length of time when you've got that sort of trauma
31:38
Speaker 3: that's very instant, and like often with the sort of
31:44
Speaker 3: the war traumas that people come back with, they tend
31:47
Speaker 3: to be more relating to actual CPTSD because the trauma
31:50
Speaker 3: was longer and went on to that longer period of time,
31:54
Speaker 3: and you get that sort of just longer period of
32:01
Speaker 3: time to be so stressed about something and be focused
32:04
Speaker 3: on something, so when you try and actually look at
32:08
Speaker 3: something else, it's never to be harder to look at
32:10
Speaker 3: something else because there wasn't a lot else going on
32:13
Speaker 3: at the time.
32:14
Speaker 2: Yeah, No, And it's it's definitely something that I will
32:17
Speaker 2: want to investigate a lot more, and certainly I'll do
32:22
Speaker 2: that by my own research and by talking to people
32:26
Speaker 2: like you and just finding out a little bit more
32:30
Speaker 2: about it. Because I think to a certain extent, and
32:33
Speaker 2: again I'm not a doctor, I don't take my work
32:36
Speaker 2: for it, but to a certain extent, we have all
32:40
Speaker 2: have a little bit of trama of those who've gone
32:43
Speaker 2: through pride and from various operations. I know I definitely
32:49
Speaker 2: whether we accept it as trauma, whether we call it
32:54
Speaker 2: something else, and also people have different levels of it,
32:59
Speaker 2: but I think there is definitely definitely something there. And again,
33:04
Speaker 2: not a doctor, don't take my medical advice.
33:07
Speaker 3: But to be honest, you seem a lot nicer than
33:09
Speaker 3: a doctor, So I'm very grateful that you're not a
33:11
Speaker 3: doctor and.
33:12
Speaker 2: A lot less intelligent.
33:15
Speaker 3: No doctors would ever be described as intelligent, and I'm
33:19
Speaker 3: sure most people in the chronic illness community you can
33:22
Speaker 3: relate to that. You meet doctors and you definitely wouldn't
33:24
Speaker 3: describe them as intelligent.
33:29
Speaker 2: We'll move on from that point on into sort of
33:34
Speaker 2: your sort of surgery's treatments. And one one thing that
33:39
Speaker 2: we haven't mentioned is hylaric stenosis, again something are diagnosed
33:46
Speaker 2: with at birth. Is why be diagnosed with one when
33:49
Speaker 2: you can be diagnosed with two? Yeah, So that was
33:53
Speaker 2: was that immediate surgery from there was when.
33:56
Speaker 3: I was about two weeks old. I think because I
33:59
Speaker 3: was a bit prem I had to wait for a
34:00
Speaker 3: bit longer. I might have been a bit older than that,
34:03
Speaker 3: but they were it was because I couldn't actually eat
34:07
Speaker 3: anything without projectile vomiting, so there was a never to
34:10
Speaker 3: be quite the urgent need to do something about that.
34:13
Speaker 3: And they didn't recognize it at first because it tends
34:17
Speaker 3: to be more common in boys, and they've never really
34:19
Speaker 3: been able to explain why. But apparently some research into
34:23
Speaker 3: EDS now is saying that actually they think that if
34:26
Speaker 3: you have EDS, that it seems to make it a
34:28
Speaker 3: bit more split fifty to fifty between girls and boys,
34:31
Speaker 3: And they don't still don't know why, but they just
34:33
Speaker 3: think it seems to be a bit more of an
34:35
Speaker 3: even split.
34:37
Speaker 2: But that kind of brings on to the point that
34:38
Speaker 2: you said before about things becoming less rare now that
34:43
Speaker 2: more people are diagnosed with them, And again it might
34:49
Speaker 2: just be a case of being because it's diagnosed more obviously,
34:56
Speaker 2: then you're going to find potentially the more boys and girls.
35:00
Speaker 3: Yeah, why don't you start to notice actual links that
35:04
Speaker 3: you can find?
35:05
Speaker 2: Yes, And I guess as science moves on and hopefully
35:09
Speaker 2: it will be possibly easier, less stressful to diagnose, and
35:15
Speaker 2: hopefully it was just a.
35:17
Speaker 3: Junior dopter that came in and saw me and just
35:19
Speaker 3: saw my frown and she said, I've seen that frown before.
35:22
Speaker 3: I know that frown. That's the frown of a pyloric baby.
35:25
Speaker 3: And it was something as simple as my eyebrowser creased
35:28
Speaker 3: in a slightly different way. And they were like, that's pilarisis.
35:33
Speaker 3: So they didn't have ganah then and they were like, yep,
35:35
Speaker 3: that's definitely pilarencenosis.
35:38
Speaker 2: That's incredible. They just hold that from the frown space.
35:42
Speaker 3: Yep. And she was a Julia doctor so and never
35:45
Speaker 3: to be. People didn't listen to her at first, but
35:47
Speaker 3: they decided to do the test and then they were
35:49
Speaker 3: like she's she's right.
35:52
Speaker 2: I am all for Judia adoptors again, anybody's my story. Yeah,
35:58
Speaker 2: will know that I were saved by a junior doctor
36:03
Speaker 2: and a piece of information that I sort of mentioned
36:07
Speaker 2: previously about the the shot of magnesium to help attack
36:12
Speaker 2: a cardia.
36:13
Speaker 3: So yeah, I do tend to be a bit more
36:16
Speaker 3: prepared to try something new and recognize when we don't
36:18
Speaker 3: know something, we need to try something.
36:21
Speaker 2: Potentially. Yeah, potentially they have because they are still training, learning,
36:26
Speaker 2: still in lectures and with all of the new science
36:31
Speaker 2: that's going on. So I will back junior doptors to
36:36
Speaker 2: the HILP. I always, always, always so yes, any junior
36:42
Speaker 2: doptors that are listening, Yeah, we definitely love junior adoptors
36:47
Speaker 2: on the home, absolutely love them.
36:57
Speaker 3: I'm allowed to say that I do.
37:00
Speaker 2: It's fine. It's only sponsors and radio stations we have
37:04
Speaker 2: to worry about. It's okay, okay, yeah, but yes, so
37:12
Speaker 2: back onto tree birds and surgeries, steroids as well. Yeah,
37:19
Speaker 2: m casts and the eds as well. I know we
37:23
Speaker 2: mentioned previously a lot of physio and osteopath Yeah, i'd
37:32
Speaker 2: see the part. Yeah, the tissue therapy. Is that all
37:36
Speaker 2: for the skin or is that for hypermabilin?
37:39
Speaker 3: They basically for the muscles that and some of the
37:42
Speaker 3: sort of like the osteopathist of the sort of structural
37:45
Speaker 3: bone stuff. Occasionally normal people can get like dissocated spine
37:49
Speaker 3: or slightly twisted spine, but it tends to be a
37:52
Speaker 3: bit more like rare after something really big that's gone on.
37:56
Speaker 3: But when to me, it tends to sort of be
37:58
Speaker 3: like every other week old this okay, or twist must
38:00
Speaker 3: fine in a place, and you just need to get
38:02
Speaker 3: it fixed. We're trying to get fixed sooner rather than motor.
38:09
Speaker 2: Very true and so we talk about things like reaching
38:16
Speaker 2: for door handles whatnot. You have a lot of interests
38:23
Speaker 2: and topics, and one that if your main interest is
38:29
Speaker 2: walking your dog, so obviously something that's going to be.
38:35
Speaker 2: Is that trickier with your conditions or does it not
38:40
Speaker 2: make too much for difference?
38:41
Speaker 3: I mean it can be trickier, and I mean some
38:43
Speaker 3: days it's one of those things that can be a
38:46
Speaker 3: real challenge. And that's occasionally something that's hard because the
38:49
Speaker 3: dog is a thing that you love with all your
38:52
Speaker 3: heart and you want to be able to make happy
38:54
Speaker 3: all the time, and the idea that you can't do
38:57
Speaker 3: something that really matters to them is the hardest thing.
39:00
Speaker 3: I mean, there's lots of challenges, but the idea of
39:02
Speaker 3: not being able to take her for a favorite walk,
39:04
Speaker 3: that's the saddest thing. But she's being the most supportive dog.
39:09
Speaker 3: She knows like she won't pull me down a hill.
39:12
Speaker 3: She knows that I have to walk down a hill slowly,
39:15
Speaker 3: so she will stop and wait and just trop very
39:18
Speaker 3: carefully down the hill.
39:20
Speaker 2: But oh, that's so intelligent, is fantastic.
39:27
Speaker 3: And if I stop and say how, she will just
39:29
Speaker 3: stop and look at me and she'll then see if
39:31
Speaker 3: I need a hug, and she'll run back to me
39:33
Speaker 3: and give me a little puppy cuddle. Oh that's a
39:37
Speaker 3: craasy Oh that's the name of your dog. She's called Pitt.
39:43
Speaker 3: She's a little pip squeak quite literally.
39:46
Speaker 2: Oh she's very small dog.
39:47
Speaker 3: He's a tiny dog. She's a shit fil Oh love
39:51
Speaker 3: how old she's nearly three and a half now.
39:55
Speaker 2: Oh fantastic. I love hearing stories that I didn't Again,
40:00
Speaker 2: Anybody who's listened to this podcast for for a number
40:06
Speaker 2: of episodes will know that dogs are very very special
40:09
Speaker 2: to a lot of my guests and to me as well.
40:14
Speaker 2: So I look after spam.
40:18
Speaker 3: Creature in the world.
40:19
Speaker 2: Yes, they're fantastic, absolutely fantastic. But yes, thank you so
40:24
Speaker 2: much for sharing that story. It's always always like to
40:28
Speaker 2: eat good dog stories, and any good dog stories are
40:31
Speaker 2: always welcome on the podcast.
40:33
Speaker 3: He always knows when I need a little bit of
40:35
Speaker 3: copy support. She'll come up to me and just curl
40:38
Speaker 3: up next to me, and it's like, yeah, you can
40:40
Speaker 3: stay there for the rest of your life, but now
40:42
Speaker 3: I can't move when the dogs snoring across you know
40:46
Speaker 3: that means you're stuck there for as long as the
40:48
Speaker 3: dogs asleep.
40:49
Speaker 2: Yes, yeah, don't you dare move and no, don't don't move. Absolutely.
40:55
Speaker 2: Oh that's fantastic. That's so good to hear. Just as
41:00
Speaker 2: we sort of wrap towards the end, I'd like to
41:05
Speaker 2: know from you. He's obviously you've gone a lot through
41:08
Speaker 2: various medical conditions and I've learned so much from you,
41:11
Speaker 2: so thank you so much for that. And you have
41:14
Speaker 2: just graduated from your biomedical studies. What would you like
41:21
Speaker 2: to do with that in the future.
41:24
Speaker 3: I would love to be able to research all these
41:27
Speaker 3: chronic conditions that affect us all and make us feel
41:31
Speaker 3: just make life harder. And I want to be able
41:34
Speaker 3: to make a difference for that. That's the thing I
41:36
Speaker 3: want to focus on. I want to be able to
41:38
Speaker 3: make a difference. When people have told me that we
41:40
Speaker 3: can't do anything, I want to change that.
41:43
Speaker 2: That's brilliant. No, I love that, I really do. And
41:47
Speaker 2: was that sort of any specific age group that you
41:50
Speaker 2: want to work with, elderly or children, or.
41:54
Speaker 3: Just generally looking at sales and molecules throughout everyone's entire life.
41:58
Speaker 3: We've been looking at some of the genetics two different
42:01
Speaker 3: conditions of being able to study how they impact themselves
42:04
Speaker 3: and how they sat to behave differently. It's just incredible, brilliant.
42:08
Speaker 2: No, I no, I do. I love that. I love that.
42:11
Speaker 2: And you're also part time tutor as well. Is that
42:14
Speaker 2: the same? Is that the same? So teaching people about
42:19
Speaker 2: biome meedficent again.
42:20
Speaker 3: Mainly tends to be GCSE Science and sort of a
42:23
Speaker 3: couple of A level biology students and occasionally younger Key
42:27
Speaker 3: Stage three Master Science. And I love it being able
42:30
Speaker 3: to talk to people at such a young age and
42:32
Speaker 3: be able to be the supportive teacher that I wished
42:34
Speaker 3: had had at school. If people are struggling or missing
42:37
Speaker 3: school because they're either suffering with chronic illnesses or just
42:40
Speaker 3: they don't know what's going on yet, it's nice being
42:42
Speaker 3: able to actually help them be a supportive voice to
42:45
Speaker 3: help them and help them get the grades that they
42:47
Speaker 3: would like to get.
42:49
Speaker 2: It's fantastic. That's incredible. Yeah, No, that's absolutely brilliant and
42:53
Speaker 2: good only for doing that as well, and because it's
42:58
Speaker 2: quite entrepreneurial to then go out and go right, I'll
43:01
Speaker 2: go and obviously you have all of this information and
43:04
Speaker 2: so then go out and go right, I'll go. That
43:07
Speaker 2: not just focus on my own career, but help other
43:09
Speaker 2: people with their careers as well, which is which.
43:11
Speaker 3: Always likely to be able to help other people not
43:13
Speaker 3: have to stuff for the same things that you did.
43:16
Speaker 2: Yeah. Yeah, and that's again another reason why I wanted
43:19
Speaker 2: you on the podcast. So I think we're very similar
43:22
Speaker 2: in terms of we go into careers or I've always
43:25
Speaker 2: been in careers where we help people exactly and again,
43:31
Speaker 2: each to their own. I'm not saying if you don't
43:35
Speaker 2: have a career where you help people, you're a nasty
43:37
Speaker 2: human being, but because each to their own, Yeah, I
43:42
Speaker 2: think I think that's sort of vocational way of work.
43:47
Speaker 2: It's something that I love and I've done throughout my
43:52
Speaker 2: sort of careers as well.
43:53
Speaker 3: So isn't it make a huge difference with the podcast
43:56
Speaker 3: is set up being able to connect to people that
43:58
Speaker 3: might feel only we're living with these illnesses that they
44:00
Speaker 3: don't necessarily maybe feel like they had the community around
44:03
Speaker 3: them to doubt them. You're creating that far them.
44:06
Speaker 2: That's very very kind of you to say so, but
44:08
Speaker 2: I will breaface by set that it is about guests,
44:13
Speaker 2: and if I had no guests, I mean, thirty nine
44:16
Speaker 2: episodes deep, and I'm so so grateful because again I
44:20
Speaker 2: don't probably say this enough how grateful I am for
44:24
Speaker 2: the guests that come on, and because I can't talk
44:27
Speaker 2: by myself for more than ten minutes. I tried, anybody
44:30
Speaker 2: who's ever listened to episode one, It is eight minutes
44:33
Speaker 2: of thirty nine seconds, felt like about four hours. So
44:38
Speaker 2: I can't talk for any longer than about ten minutes
44:41
Speaker 2: by myself. So I need get. I need guests like yourself,
44:45
Speaker 2: like the thirty eight people before you, to come on
44:50
Speaker 2: share the fantastic stories. And the podcast is nothing without
44:54
Speaker 2: the guests and the story. Otherwise it would just be
44:57
Speaker 2: me talking about my same Hirst Prong story for many,
45:02
Speaker 2: many episodes. So there's very kind of me to say so.
45:05
Speaker 2: But it is very much about about the guests and
45:08
Speaker 2: about the piece. Thanks to you that you've got the
45:10
Speaker 2: guests coming to you and being able to sell their stories,
45:13
Speaker 2: so you've got credit for that. I do send a
45:16
Speaker 2: lot of messages and harangue agents and email agents over
45:21
Speaker 2: and over again for various people. So yeah, I do
45:24
Speaker 2: a lot of haranging. Very good to do, but no,
45:32
Speaker 2: thank you so much for that. But yes, I've lost
45:35
Speaker 2: my train of thought now, Yes I was saying that
45:39
Speaker 2: on your biomedical science studies. I just wanted to say
45:45
Speaker 2: thank you so much for coming on. It's been a
45:49
Speaker 2: real pleasure to talk to you, and I wish you
45:53
Speaker 2: every success in the future with your tutoring, with your
45:57
Speaker 2: biomedicine and your your chronicle is well. Thank you, Charlotte,
46:04
Speaker 2: Thank you so much for coming on.
46:06
Speaker 3: Well, thank you so much for giving me the opportunity
46:08
Speaker 3: to come on and tell my pleasure.
46:13
Speaker 1: Thank you for listening to the podcast. Find us on
46:16
Speaker 1: Instagram and Tom's Underscore Hirshbrun's Underscore podcast. Listen to previous
46:21
Speaker 1: episodes on Spotify by searching Tom's Hirshbrun's Podcast