Latest / Tom's Hirschsprung's Podcast / Episode 24 - With Vicky Welsh @meandthebigbadibd

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Episode 24 - With Vicky Welsh @meandthebigbadibd · Tom's Hirschsprung's Podcast

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You are listening to Tom's Hirshprung's podcast, where our provides a look into the
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remarkable experiences of the most inspiring people around Hirshprung's disease and sports. Hello and
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welcome to episode twenty four of Tom's Hirshbrum's podcast. Very Special Guests today.
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My guest this time is Vicky Welsh. We are going to talk about ibd
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ulcerated colliitors and more importantly, we're going to talk about fitness as well,
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some of one of my big passions and Vicki's as well. Vicki, welcome
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to the podcast. Thanks for having us, Tom, thank you, no
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problem at all. So, as I said, we will talk about fitness
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and we'll talk about your journey in particular a little bit later on down the
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line. We start the story in and around November twenty twenty one or late
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twenty twenty one. So you were diagnosed with ulcerated colitus. Did you have
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a sort of any idea when they said you have all sorts of plices,
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you have any idea as to what that might mean or what that could be?
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How did that sort of pan itself out? No, I mean I'd
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never heard of Kalitus. I'd heard of Krawn's, but I'd never heard of
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willso it Clay, So I really didn't understand what it meant and what it
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was going to lead to. Late leading up with the diagnosis, I had
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suffered with ibs for years, what things were a little bit different. That's
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why I've been at the GP and ended up having the tests I'm sure that
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I had. Also it collated, so I wasn't sure if it was going
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to be similar to that of what it meant, and I was pretty much
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told that I would be seeing in clinic a few weeks later, I'd be
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given them some medication and that would be a life will go back to normal.
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Little did I know that it wasn't wasn't like that at all, and
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it was. It was quite a rough journey, and even during the diagnosis
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I had a lot of anxiety around it because I'd had a very uncomfortable conversation
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with a GP that pretty much taught us I have bowel cancer. So my
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anxiety was absolutely swim of the roof, which I don't think helped like the
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diagnosis stage and I think led to me flaring more because of the anxiety.
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Then stressed that I was called to at that point. Definitely, I think
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that's an important point that you make just there. That a lot of gut
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health and I'm not just saying this, I did speak to Adopt about this
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a couple of weeks ago. But gut health and mental health are really really
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highly connected. So if you are quite anxious about something and you do have
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a stomach condition of some sort, then the two are very much entwined and
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interlinked. So if you do have that sort of that anxious conversation, as
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you said with with your GP, that can lead to to flare ups as
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well. So yeah, that that definitely that definitely tallies up with a conversation
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I had with a with an expert a couple of weeks ago. So originally
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go and as I'm right saying, went went to the GP pard colonoscopy and
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they diagnosed with with ulcerative ulcerative colitus. Yeah, was there sort of did
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they say, right, because you said about just having some medication and then
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cracking on with life. Obviously it's a little bit more complicated than that.
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Did what did they then sort of say to you as to not necessarily a
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way to sort of get rid of it because obviously that's that's not going to
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happen. But to sort of treat it, I guess, yeah, I
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think the only sort of discussions I had, so I had sort of a
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pot with a specialist nurse and obviously consulting and so forth, and it was
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well started off on the sort of baseline medication, which was massasterline at this
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point, and I was told very much that you know, things would get
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back to normal, might just take a little bit bit time, and I
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may need to it just my life a little bit as far as just throwing
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down a little bit. That was the only thing that kind of really said
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at that point. But it didn't work like that. I think I'd got
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myself so worked up through the diagnosed stage that I was just in a flair.
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But because my cal protecting levels kept saying that things were coming down,
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that's what they were going off. But my symptoms were still there, and
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so I had quite a fight on my hands all the months going back and
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forward to my IBD nurse, I'm sultant to explain, I'm really not well.
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I don't think this shouldn't be what I should feel like. Sruly,
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you know, this can't be normal. I remember having to take pohoars and
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sending as of what I was passing in the toilet on emails and stuff like
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that, which is not pleasant. And it just felt just awful, absolutely
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awful, and I just kept fighting, fighting, and eventually the consults at
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all I think, you know, and I let's get you and I in
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in fusion. I think you'll feel better once you have an eye in infusion.
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Had an eye infusion. I had a reaction to these infusion, which
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they didn't believe. So I had to kind of fight that the you know
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what, I don't feel well and it seemed to make my sins worse,
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but it's probably the anxiety that probably made it worse as well. And it
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kind of just that first sort of eighteen months or two years, I felt
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like I was just constantly fighting for this can't be right, this can't be
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how I'm supposed to live my life. And it got to the point where
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I paid and went private and had a private consultation, and upon examination they
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could see that also straight away and said your medication is not working. So
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fast forward. They wrote to my consultant and I was put on sort of
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the next level of drugs which was as athoropy. I think that's for me,
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it's been sort of the turn point. That's what I call finding your
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magic. You have to find the right joke. I don't think they explain
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that very well at the beginning, that you can take a bit of settling
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and finding the right thing. So yeah, for me, it was it
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was getting the right joke first. Fundamentally. That got me a bit more
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stable, and then I was able to work on things. That's true.
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I mean, I I definitely get that because everybody is different, and that's
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why it's it's really important. And I'll get onto your Instagram page in a
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moment, and one of the things that's really important that I think it says
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on there this is not medical advice because everybody, everybody is different. And
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again that's one of the one of the main things a podcast as well.
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It's all about great stories, great people. But please don't take it as
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mystical advice. I'm modesty absolutely. You know, there are stores of people
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who get the first jug and it works, wonders and they are in a
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bit appears very quickly. It just wasn't for me. It took a while.
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You know, it is very individual That's what I've learned throughout, so
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I have that have an IBD and connect more with people that everybody's story is
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a different it's a different and you must see that medical advice and you most
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get the right medical treatment. You can't do it alone. Absolutely, yeah,
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most definitely. So yes, if you do have any sort of symptance,
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please see a doctor. Don't don't take off, but take our medical
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advice because we're norm do. But so from there, diagnosed in austrating colitis.
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And then because will you and I have this conversation with a lot of
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people and they tend to fall into sort of two camps. In sort of
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one camp, you have people that want to know everything they want to know
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about the condition, about what it means for them, what they do to
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help it, in some cases solve it, but in this case, what
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they can do to sort of reduce flares and things like that. And then
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you have the other side, which is sort of well, I have it,
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but I don't really want to know anything about it. I don't know
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anything about it, and I just sort of cracked on with life. Did
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you fall into one of those two camps when you were first diagnosed or were
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you somewhere in the middle. Yeah, definitely one. I needed to know
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what earth was this, you know, or how you know? Because I
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had so many simple like I need to understand, you know, what it
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is, what to do it? And I also wanted to know like the
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big steps. And I don't know whether that's a good thing sometimes because I
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think it can heighten your anxiety. You have to be in the right place
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of how much you want to engage and know what the disease can lead to.
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What I like to know those things that are I think connecting through Instagram
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and seeing people live a normal life, you know, with the disease,
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it's really inspired and I think that for me that help, you know,
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it helps to help make a great deal. Definitely. And if we move
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on to your your Instagram page and you set it up, as you said,
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to connect with people who have IBD or IBS or something similar on IBD
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and IBS are not similar, but to have sort of similar symptoms, so
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that and some people set pages up to sort of and I know I did
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as well, to sort of try and connect with people and try and have
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that sort of because it can feel quite lonely at times. We think Am
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I the only person going through this? Am I the only person? And
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I get nice time certain times? Not's several people going through exactly the same
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sort of symptoms and things like that. But in essence, why why do
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you think, right, I need to set this page up now? And
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yeah, yeah, So I had learned personal page and I had started to
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post a little bit about that, and actually I found out that there was
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a couple of people that I worked with actually harp al threate clites as well,
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which was just bizarre because you know, I worked with them, didn't
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know. And I thought, right, okay, but this is my personal
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page and I do some work stuff, Like I thought, it's maybe is
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the broke place to do it? If there's people that I know that's got
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it, there's obviously lots more people out there. Let's find out about it.
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Let's really educate myself on on what this disease is. So I set
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up my own Instagram page because to me, I wanted to make sure that
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nobody felt lonely like I did at the beginning, Like what neurse is this?
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Like, you know, if I could help anybody in any way,
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let's do it. You know, at the very beginning when the GPD scrptures
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about being balt cancept. I remember having the conversation. My husband said,
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if it is, I'm going to talk about it and want to share me
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experience. And then it was like, right, well, you haven't got
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ballet cancer, but you've got this disease. You haven't heard of it.
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So there's a lot of people out there who haven't heard of it. And
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if maybe's had a normal symbol so that learned of maybes would have gone with
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the gp A, but who knows, but there'll be people out there having
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all sort of thoughts, so let's get it out there. So it was
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too It was two forward. It was for me to connect with people,
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but also of hopefully help others as well. That's that's that the second point
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that that is really really important. I finned because one of the reasons I
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really wanted to talk to you because you align very much with this podcast and
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in terms of what I want to do. It's all about positivity and it's
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all about helping people, and it's it's all about yes, raising awareness,
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not sort of shying away from some of the difficult points, but also about
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going yes, you're not alone. In this and yes, there are lots
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of other people who have very similar symptoms or have a similar condition to you,
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And it's about that positive journey and sharing your experiences. So that's why
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one of the reasons set rather reasons as well. For one of the reasons,
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I really wanted to talk to you because you are very very positive and
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I love that and it definitely aligns with with my thoughts and feelings and what
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this podcast is all about. So when you started to share your story,
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started to connect with people, you also started getting into fitness as well.
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Did you go did you do some sort of fitness beforehand before going to finding
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a coach or did you go right straight into binding a coach and then starting
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from there. Yeah. So if I go back to being a child in
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Pea, that was just never made you know, I didn't I didn't do
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well at school with Pea. Well, when I left school, I always
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did do some kind of activity, you know, I was very much in
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the gour in a different classes that I enjoy that kind of you know,
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club beside that kind of thing. And then I did hit classes and you
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know, all those sort of things, and I did have I did just
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go to gym in my twenties, but it was never to lift with it
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was it was cardio and a bit swim, that kind of thing. But
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after I'd had my daughter, things just flipped off, I suppose because life
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gets busy in other area, and I suppose I took less care of myself
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in that then, so the exercise stopped a bit. But then with IBTS,
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so with IBD, once I started to feel well enough, I would
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still make sure I've got out for walk. So even even at my worst,
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I'd say I was still going out for a little walk. And my
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husband with trailers around the riverside where we lived, and as you could work
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out where the toilets were, so I could stop for a little break.
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But I needed to get out of the house because I knew that it was
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about the buying, you know, the mental health side of it, and
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I knew that that would help. So you know, I'd go for a
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little better come back and have a sleep and then so I'd always kind of
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done a little bit in the beginning of my diagnosis. I then went on
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and did some yoga and meditation because I thought, well, like on the
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anxiety side of things, if I can control my stress levels. That's going
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to help with the goat. So I did a bit of yoga and so
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forth, and I also I've got a cross train in the kitchen, and
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I started back on that, doing that in the kitchen of the nighttime,
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and I was enjoying it, you know, really starting to enjoy it.
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And then got to the point where I was like, but almost to sort
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of like the remission phase. I'm feeling a bit stronger, I'm ready to
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do something else. And then I started to think about what that what else
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that was? Now with IBD, even when they were mission it can still
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be unpredictable. So the idea of going to a class and maybe's needing the
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bathroom in the middle of it, I just the anxiety of that was just
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not going to work. I thought, this did That's not going to work.
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So I was like, well, what do I do? And I
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haven't got the energy to go back to do and some of the stuff I've
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done, And then I've been looking on pages and I've been following Laura I'd
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be fitness for a little while and being having conversations with her throughout my sort
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of journey, and I'd noticed that she joined a or with with Dan,
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and I thought, you know, we'll give it a goal, we'll give
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them a call, and I'll be honest, I thought, I'll do a
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month and that would be it. And I'm a your involved, which I
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never avert expected way, and the idea of stepping in the gym absolutely horrified,
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as if I'm honest, at this point in my life, it was
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like you see all these people in look at night baits and not going on
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everyone else like not for me, that's not gonna work. But I have
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and I've done it, and yeah, so fantastic, No world, don't
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you because that that is I think. And I'm always an advocate any type
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of sitness, but I'm very much an advocate of finding what works for you
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and yes, what because everybody's very much different. But I'm also I also
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believe there is something else there for everybody, because I think also when people
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talk about fitness and they think, oh, I've got to join a gym
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and I've got to do this, and I've got to lift loads of weights
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or I've got to run ten miles or you know, all this stuff,
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and it's just not true. It's just not true at all. So there
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are there are hundreds of different sports, hundreds of different but team activities,
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individual activities as well as the gym and the running. They're just the sort
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of more well known and more popular things. But there are hundreds of activities
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that you can do. And I'm very much somebody who thinks that there is
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something out there for everybody. But it's really good to hear that you were
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very much active sort of pre rejoining the gym as well. So then if
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we move on to you with with Dan, and obviously we talked a little
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bit as well about Laura. With Dan as well, I do feel like
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I'm doing his work for him, advertising him, So I think he he
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owes me some royalties or at least a podcast episode of the at the very
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least. But yeah, he yeah, So obviously works wonders with with you
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and with Laura. How did you find because do you do online coaching with
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him, which is very much different as I found with doing face to face
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coaching having someone sort of standing beside you. How did you feel about some
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online coaching to start with? So in the beginning, I was I was,
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I was like, what how is this going to really work? You
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know, like and app and somebody at the end of a message, and
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Stiff wasn't really sure. I thought, you know, give it a go,
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and we all looked at it as well, with with anything in life,
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if you don't give it a gore, your don't nor you know you've
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got it. You've got to give it a go. I thought, I've
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got everything, the key in and not, so let's just give it a
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bo join up for a month. And you know, the first time I
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stepped into the gym, I was scared nervous, but I was able to
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message them and you chat back to us and tell us what to do with
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just that reassuance where I think if I had somebody in person doing it with
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this, I think I would have felt even more anxious having somebody alongside us,
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because I think there would been a expectation, and I think that would
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heighten the anxiety, which would have played with my GOAT, and then I
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might not have got there. So actually the online side worked for me because
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I could choose to go at a time that suited me. I didn't have
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to decide to go in the morning, because mornings are quite tricky with IBAT
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for a lot of people. So I could go when it suited me,
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and he's just there at the end of a message at any point when you
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needed any support. And I remember the beginning like looking in the gym thinging,
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oh my god, look at these machines like they look scary pieces of
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equipment. They looked like something they're going to torch you with, and I
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was quite frightened. So we started off really small. I mean before I
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even stepped the gym. We did it sort of like just stuff in the
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house, little wheets and so forth. So I kind of built up and
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it was just about going slow. It just is always there supportant guide in
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just that accountability as well to set out what you've got to do. And
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that accountability works as well for me. Well, I think if the wall
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online side, it was being able to have that flexibility to do the sessions
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when worked for me was what really worked fantastic. There's just two points from
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that that I was going to pick up on and that I think are really
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really useful for anybody starting their fitness journey. The one the first point was
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you said you'd give it a lot, and I know you said you give
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it a month, and you thought I'll just go and do something else or
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whatever off the month. I think a month is a really good unit of
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measurement to start off a fitness journey because I see all the time, Yeah,
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January the first people get out and they say I'm going to start running
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and I'm gonna do it every day and I'm going to do one mile on
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Monday and two miles, and it just that that that's just not realistic,
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that doesn't work. But committing to that month that I know you said you
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had an accountability as well, but committing to that month and saying, right,
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I'm going to do this for the month and then and then just just
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see what happens. I think it's an excellent way to start. Did you
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did you sort of randomly choose a month or did you think, right,
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this is going to How did you come to that measurement? So I think
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it was. I think it was just a sort of the way he offered
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different packages. So a month worked well. And obviously finance has come into
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these sort of things as well, so you know, you've got to find
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the right right person for you if you've got to bow down that court route.
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You know, we've had a conversation and I felt really comfortable with the
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conversation. I thought, you know, he's a good guy. Let's give
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it a go. Happy to invest that money. And then it was as
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I started to do so, actually, it's not investing in the money,
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investing in yourself. And I think that mind, that switch of my mind
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where before, Oh, I don't think i'd really thought if it like that,
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Like you know, I always thought of like the gym is an experence
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that obviously i'm ammal with a teenage door must apport you. And I thought,
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you know, I wouldn't think twice of paying something for her. What
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if I don't invest myself, I'm not going to be there for her.
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So it's like just rich in my mindset and think and actually, you know,
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you're doing this for yourself to be there for others as well. You
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don't want her to see you get well and worse and worse. And if
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that means paying out a bit of money and sign up to a gym and
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having a coach, let's just do it. Let's keep going. Yeah.
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No, that that's a that's an excellent explanation. I think with people thinking
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well should I do this or should I do that, it's it's a wonderful
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investment in you. And as you said, not only are you investing in
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you, you're investing in the people around you as well. Yeah, which
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I think it's a lovely way looking at it. And the second point I
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was going to pick on with a couple on was was the gym people sort
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of saying it's intimidating, it's a bit you know, I don't really know
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what to do, and this that the other. And he said, you
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had dang sort of messaging and saying that, you know, do this,
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do that to the other. How long does it take for you sort of
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thought, right, I'm really comfortable in the gym now. And did that
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sort of start straight away or did that take a little bit of time.
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I think, if I'm honest, it probably took a good sort of six
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months before I would say I felt more comfortable in what I call the big
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way sort part of the gym. You know, I was fining like the
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cardoor and the you know, we're lifting like a john bell and things that
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out, but actually using some of the big machines. That was more towards
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probably like a six months mark. So it hasn't been fast, just slowly
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graduate building not. But then I think it was really funny because I pulled
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my shoulder last week and I had to take everything long and not quite a
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bit, and it made me realize just how far I've actually come, and
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some of the machines that I just would never have dreamt, a few that
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I actually feel really comfortably donated. You know. Yeah, I'm not not
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worried about it now, you know. And everybody they're not looking at you.
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They're they're doing their own thing anyway. So just yeah, I think
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a lot of people feel self obstutate. Everyone's looking at me, and there's
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there's a big sort of you know, unknown secret to that nobody cares.
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You know. It's like they think, oh, everyone's looking at me,
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and this is like, no, no, they're doing the wrong thing that
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I really care about. You you know, it's not a horrible way,
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but like they're doing their own thing. But it's yeah, I think sometimes
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again, like we said, the different exercises to different people in different forms
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of exercise, but I think generally people think, oh, well, the
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gyms can be really intimidating. They're all going to be incredibly muscle down and
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lifting all of this that the other and everyone's gonna look at me and and
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they don't. They really don't. It's that. But getting over that sort
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of self consciousness, I think it is obviously a really really important important part.
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And if we move on slightly to one of your big loves, I've
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seeing his traveling and traveling a wren. Was there sort of a concern that
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when you were diagnosed that traveling would be a bit different or did you think,
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well, I'm still going to do this, I'm still going to I'm
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not going to let this stop me type thing. Yeah. Absolutely. So.
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At the first time I traveled abroad was actually seeing one of my best
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friends get married in Swain, and that was was massive, and you know,
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righttil the very end, I was like, I don't know if I'm
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going to make it. I had the promise of a friend who would rather
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travel all day and bring his back if I wasn't well, that kind of
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thing, So I had support there and I said, I've got to make
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it. I've got to be able to do this. So I've had conversations
24:56
with my IBD team about things and they give me sort of so backup jokes.
25:00
I'd say that I could take in case things got worse, so that
25:03
give us that bit reassuring. And I just had to realize I needed So
25:08
I was in quite a bad flair at the time and I was on steroids,
25:11
so I realized I needed to like sort of conserve my energy throughout the
25:15
week to make the wedding. It was just adapting things a little bit and
25:18
just you know, go and go and plans. So you know, I
25:23
traveled and I got one of the little lanyards that you can wear in the
25:26
airport so that I didn't have to wait and queues at the security and all
25:30
those just those little things just took the anxiety away, which did help.
25:34
And it was amazing. It was I was so glad I made and it
25:38
was such an achievement. And now I kind of look and think, well,
25:41
if I did that, then I can just I can just do whatever
25:45
now, I don't, you know, it's part of me now. I've
25:48
got to learn and live with it. I haven't got to fight it.
25:51
It's just a you know, work worked away around it and being planned I
25:55
think helps as well. And have all support people around you as well.
26:00
Yes, that's important thing. As you were saying, that was something that
26:03
I thought about is having having that support network around you, whether it's he's
26:08
like ibut, whether it's Freen's family, but having that sort of like and
26:15
it seems to me as though you had a lot of safety safety nets in
26:18
the rounds and he thought, Okay, if this happens, it's okay because
26:22
I've got this, And if this happens, it's okay because I've got that.
26:26
And I think a guest for anybody who is everybody's very much different.
26:30
Important to make that point. But if you do worries about traveling or whatever,
26:37
have those safety nets, because I think that's that's that's incredibly important.
26:45
So in terms of traveling, he said, you travelp Spain. Have you
26:51
got any other things that you really want to do traveling wise? Yeah,
26:56
so little and were going to Orland or a holiday before COVID and got canceled.
27:02
So we're actually doing all Land at the end of the year and I'm
27:03
really looking forward to it. Book. It's also we're visiting Disney, so
27:08
as you can imagine, it's going to be pretty full on, so it's
27:11
just been planned ahead for it as well. And make sure you've got that
27:15
obviously, you know, sign off from your IBD Nursty team that it's okay
27:18
to travel and so forth, especially if you're in a flesh Sometimes I think
27:22
they don't like you to depend on obviously how we well you are, but
27:26
make sure you've got those measures in the place. But I'm really looking forward
27:30
to that, and that you know, I am a little anxious of it.
27:32
You know, I have already discussed it with my IBD team, so
27:36
we've already said, you know, before that go, we'll stick a calprotecting
27:40
testing and just check up and levels the good so that I know that I'm
27:44
going out and things are starting it ramble for anything like that, which I
27:47
think is helpful. But you know, I've kind of got that two pit
27:51
now as well, like with some of my medication that I can take and
27:55
manage things. And because like I said, even though I mean, like
28:00
I still have have symptoms probably you know, once a week I have a
28:03
bit of a rough, rough day or soul and stick No, that sounds
28:07
that sounds brilliant and very neatly brings us on to some of my final questions.
28:12
We wrap up in terms of you in yourself, and I was talked
28:18
about traveling and what you have planned the future in traveling, but in terms
28:22
of you, your fitness, what would you like to be or what would
28:27
you like to see in the future for you? For me, it's basically
28:33
the best version of myself that I can be. You know, it's it's
28:36
you know, and it sounds cliche, but you know what I want to
28:40
do that I want to create a good impression for my job because now,
28:41
obviously with research, I understand that IBT it it can't be heredity. So
28:45
obviously I have a teenage daughter, so I'm concerned that she may end up
28:49
with this. So I want to make sure that I sure a positive way
28:52
of dealing with it, so that she can have open conversations if she's ever
28:56
a well or there's any symptoms to see that fitness should be part of lifestyle
29:03
and not and add on as well, and you know the importance of that
29:04
for for your mental well being and physical well being. You know, I
29:08
want to get to a point where I'm all doing I can still look help
29:12
her if she has grandchildren, things like that. So I suppose she's probably
29:17
one of my biggest drivers. It's been the best I can be to be
29:21
there for her. Brilliant that sounds absolutely fantastic, and I wish you all
29:26
the best with traveling, with fitness, with everything else, and thank you
29:32
ever so much for joining me problem. Thanks very much, it's being fun.
29:34
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