Latest / SoWhoCaresAnyway / SoWhoCaresAnyWay E26 Scales Are For Fish
Transcript
- 0:04Hi, I'm Ruth Germaine, and this is, so Who Cares? Anyway, a podcast shaped by my deep curiosity about who cares, what do they care about, what do they do, and why does it matter? My aspiration is to build a community that listens with intention.
- 0:20And explores care from every angle from the North Yorkshire malls to behind clinical doors.
- 0:27Each episode invites people to share their stories, their ideas, and talk about what matters to them.
- 0:34Together we reimagine what care could be and how we might shape health and wellbeing through the assets, values, and the lived wisdom of our communities.
- 0:44And why does it matter? Because for too long, health and care have been treated as things to be delivered, often depleting systems and the people around them, and it's time to rewrite the narrative to center everyone as a contributor, not just a recipient, to offer joy, hope, and meaningful belonging to invite each of us to shape the future of health and wellbeing with courage.
- 1:09With creativity and with care, so who cares? Anyway, to find out more about me, head over to my link Tree Dook four, reflective Ruth.
- 1:19Here you'll find links to my website, my LinkedIn profile, and in the future, my Facebook page, and there's the option to support this show by buying me a coffee.
- 1:29So now for another episode of So Who Cares? Anyway.
- 1:35Hello and welcome to the next episode of See Who Cares.
- 1:38Anyway, and I'm delighted to be joined by Helen James.
- 1:41Now Helen, um, I, we first met when we were at a do with event with Adam Lent at the Kings Fund.
- 1:48Um, and for those of you that have listened to that episode, uh, understand a bit more of what that's about.
- 1:52I expect some of it'll come out today.
- 1:54But Helen, I was just really interested.
- 1:56She's a CEO for New Cherry, which, um, I believe that Helen set up about 10 years ago, if I'm correct.
- 2:03And I'm gonna pass over to you, Helen, before I say anymore, um, and take away your introduction and just ask you if you'd introduce yourself and give a little bit more insight about URI before we carry on please.
- 2:14Thanks a lot, Ruth.
- 2:15I'm really pleased to be here to get to talk about do with and um, a bit more about uri.
- 2:21Um, the word nuri means to nurture.
- 2:24Um, and as you said, I set it up around about 10 years ago after.
- 2:30Really being a lifelong customer of diet, culture and slimming clubs.
- 2:35Um, and.
- 2:38Vastly changing my weight too many times and I thought I could do something a bit better.
- 2:43So started talking to other people about this idea.
- 2:48Um, and then talking to workforce as well, whose job it is to deliver on, uh, weight management.
- 2:55Um, and yeah, so over 10 years we've been developing what we do with them for.
- 3:01Um, workforce and citizens.
- 3:03I'm pleased to be here.
- 3:05Thank you.
- 3:05And you've given a little bit of your background into why you set this up and talking about that culture and slimming clubs.
- 3:12And I'm gonna say here that I had no idea that New Cherry was about to nurture.
- 3:17I had made this assumption in my head.
- 3:20That it was about the fact of nutrition or something, because I remember you talking about the fact of that this came from, that stigma and um, was around that sort of, that slimming and everything that you had gone through.
- 3:32So I wonder if you wanna just give us a little bit more before we go into New Cherry and talking about stigma, a little bit more about your drive.
- 3:38You've, you've spoken about it briefly there.
- 3:41Um, but your driver, before we start talking about that workforce, but also that.
- 3:45Approach that you've taken as well? Place.
- 3:48So when I first started, um, exploring what we could do better, um, in sort of like that landscape of, um, weekly meetup groups, um, I really didn't know a lot about weight stigma.
- 4:02Uh, um, I didn't know it was a thing.
- 4:03I didn't know its impact on health and everything.
- 4:06So it was just a case of, oh, let's try and do something a bit better than what's currently out there.
- 4:11And that's what we did.
- 4:12Uh, and then it is over time that we've really learned about the health implications of all stigma.
- 4:19Um, but specifically weight stigma.
- 4:22Um, and how that is prevalent, not just in slimming clubs obviously, but in, in our family conversations in society, uh, and especially in healthcare settings.
- 4:33So, yeah, it, it's been a massive learning journey, um, and.
- 4:39Yeah, it, it's, it, it with, with with many twists and turns along the way.
- 4:45Thank you.
- 4:46So I'm really quite, um, quite intrigued now.
- 4:48So do I think probably let's have a little bit about what it is that you are actually doing.
- 4:53'cause you talked about that workforce and then you talked about that.
- 4:56Approach that you take, which I think fits with the do with approach.
- 4:59So I think probably the first place for us to explore is understand what it is that you are actually doing, and then we can start to delve into all of those implications and those different things that you're talking about.
- 5:09Please.
- 5:10Yeah.
- 5:10Thanks Ruth.
- 5:11And I'll try and, um, sort of like give it in human terms so I know things can get quite jargony and there can be lots of acronyms around.
- 5:18So I'll, I'll try and keep that to a minimum.
- 5:21Um.
- 5:23And yeah, so we first started off by listening, um, and listening to what other people's issues were.
- 5:31'cause I had my sort of like, set of understanding around, you know, why I was using, um, slimming clubs and, and you know, what I was and wasn't getting from that.
- 5:42Um, but I needed to hear many other people's, um, points of view, uh, and that.
- 5:49Led to us creating something that we call the Food and Body Ease community.
- 5:54Um, and we have a focus on intuitive eating and finding movement that we enjoy and, and want to do again.
- 6:06Um, so, but mostly it's about stepping away from weight surveillance and, and doing things to create, um.
- 6:18Uh, calorie deficits and stuff.
- 6:20So, um, and how to step away from that sort of like harmful narrative of that lighter, being lighter is always healthier and being heavier is always unhealthy.
- 6:31So yeah, it's, it's, so we did the citizen work.
- 6:34What, what we now call the citizen work is, is Food and Body Ease community.
- 6:39Um, and that's what, that's what came first with Nuri.
- 6:42Um, and then later on we realized.
- 6:45After doing some piloting that we needed to concentrate on the conversations that were happening in in, um, healthcare settings.
- 6:54Okay, so you, so you listened, which is typical do with, isn't it? And then you talked about that pilot piloting before you concentrated on the conversations, and obviously you took that sort of healthcare, uh, which sounds understandable.
- 7:07What, what were the pilots and what were they about? What did you do? Yeah, so we created this sort of course platform.
- 7:14So, um, and there was content on there for finding more ease around food.
- 7:21So stepping away from diet culture, um, exploring intuitive eating.
- 7:27Uh, interestingly, uh, we used to call it mindful eating, but people would say, oh, I can't be mindful.
- 7:33Um, and then we all, we tend to use the, the terminology really interchangeably.
- 7:39So whether we call it mindful eating.
- 7:42Conscious eating or intuitive eating.
- 7:44It's just, you know, how do we step away from that sort of quite disordered behavior that we can develop around diet, culture and food behaviors.
- 7:53Um.
- 7:54I'm just trying to get myself back on track to answer your question now, which is, um, yeah, creating that course platform and the piloting work, it, it was a way to sort of like, see were we getting the best fit? Were we doing what we need to do instead of doing diet culture? Um, and then that then led us onto the workforce stuff.
- 8:18So, um, it was, it's one thing, you know, creating a service.
- 8:23That helps the individual out.
- 8:26But if the next time they go into their doctor's appointment to talk about their sore shoulder, for instance, and they only have their weight talked about, it's sort of like undo, undo or undo all that work.
- 8:39So yeah, we, we, we repeated that cycle of listening to citizens and, and, and listened to the workforce.
- 8:48As well to say, right, how does it feel to deliver on weight management and then listened again.
- 8:54And that's really interesting because obviously coming from the NHS, I know that there's this thing about every contact counts, which means when somebody comes to see you, you've got tick as many boxes as you can, you know, stop smoking, stop drinking, or.
- 9:07Down.
- 9:08You think about your weight and all these different things that constantly somebody's come coming to see you and suddenly all these other things matter.
- 9:15Um, almost to the point that especially in general practice where there's, um, cough points, which are sort of these quality points that people do, and you almost got to be able to tick them and say you've done them once a year and even if you've done it within the last six months, all of a sudden you.
- 9:29You are asking it again because it's coming into the, you know, you're into the next cough point season, it's gone April, you're doing it and then suddenly you're doing it all the time.
- 9:36And so, yeah, I always used to think, you know, this must be so disheartening.
- 9:41Um, so I'd rather get in trouble for not asking them than asking constantly.
- 9:44'cause, 'cause what was I gonna do with that afterwards? And that person, you know, was leaving.
- 9:48So that's, it is a really interesting, um.
- 9:52Listed and hearing you talk about that, you know, one thing for you to talk to the individual, but how does that work with workforce? So should we move on to that workforce bit and talk about what it is that you're doing in that space? That'd be really interesting.
- 10:04Yeah, absolutely.
- 10:05And you're right.
- 10:06It, it, um, what we heard a lot of the time was it's rubbish to try and deliver on weight management, you know, to deliver those KPIs, those outcome measures of, uh, you know, changing somebody's BMI, um.
- 10:19We heard very early on that some, some service providers, you know.
- 10:26Healthcare practitioners, their job role includes talking about weight.
- 10:29Were feeding back to us that it felt really off.
- 10:33You know, that it, some people felt hypocritical.
- 10:37Let's say for example, they might be higher weight themselves and were being asked to.
- 10:42Produce outcomes of weight change in people that were sometimes lower weight than them even.
- 10:48So it felt quite hypocritical.
- 10:50And you mentioned there, Ruth making every contact count, you know, and we're, we are very keen to make every contact weight neutral.
- 10:59Um, and rebranding.
- 11:02There's a, there's a definite rebranding needed from weight management to health management.
- 11:08Um, and there's fantastic work that happens up and down the country, um, that's just under the wrong name.
- 11:15You know, it's under the banner of weight management.
- 11:17But really there's fantastic work going on with supporting people's nutrition, supporting people's mobility and movement.
- 11:26Um, perhaps it's smoking cessation work, uh, or, you know, alcohol reduction.
- 11:31Um, and, and it's all done under the, the, the name of weight management, which is a real shame.
- 11:37On, you know, those that are working hard in the system, trying to deliver on current policy, um, but feeling the, the, um, disconnect in it all.
- 11:48So what were the outcomes of that? Because you've spoken quite clearly here about the conversations with, with those individuals.
- 11:55The conversations with staff and talk about how the staff were feeling and Yeah, exactly.
- 12:00Feeling hypocritical.
- 12:01I can remember conversations with friends or feeling things like that myself when I was asking people to perhaps do things differently than I, I was perhaps knowing I was doing myself.
- 12:10Um.
- 12:11And yeah, just feeling a bit off and, and knowing sometimes I think one of the things, and I often talk about this 'cause I used to run some diabetes clinics.
- 12:17People would come in and I'd be talking about what they needed to do.
- 12:21And actually I knew that what they really needed was some mental health support or something around that area, or maybe just some social support, you know, just to, not so much that they needed help in the home, but they just needed some friends, perhaps they didn't have any family, things like that.
- 12:35So they needed those things.
- 12:36So what happened next? Or what are you doing now? What's going on? Yeah, so.
- 12:41The whole work piece, if you like, the whole mission is to help workforce feel confident in being able to de-stigmatize services.
- 12:53You know, so we have quite a simplistic view that if we just remove the B-M-I-K-P-I, so stop trying to deliver on, um, solving obesity, um, then we can all be freed up.
- 13:11To actually work on people's long-term conditions care.
- 13:15Um, diabetes management you mentioned there, Ruth.
- 13:18Um, and the truth is that because we have this weight reduction rhetoric.
- 13:24Built through all of our, um, support systems at the moment, it really is disengaging.
- 13:32Um, and I dunno whether you know this, but only one in 10 people engage with their structured education piece around diabetes and about in some areas of the country, only one in 10 people take up their NHS health checks and then really damning to the money that we spend on weight management.
- 13:54Under that banner, the work that goes on under that banner in tier two, in 21, 22, uh, we spent 30 million pounds and just over a thousand people registered a 5% weight loss for 30 million pounds.
- 14:09So, you know, and that's just one year on one tier of weight management services.
- 14:15Um, and that's the tip of the iceberg.
- 14:17So how much money we're spending on trying to solve obesity.
- 14:21Um, so yeah, I'm really pleased to be here, Ruth, to sort of like unpack some of the impact, the negative impact of that.
- 14:28Yeah, and that'll be really interesting to hear Helen, because, you know, listening to that.
- 14:33As a, as a member of staff, knowing how I co comfortable I felt and listening to this stigma and thinking actually that it's not really even doing much from the figures you are giving me.
- 14:44And it doesn't surprise me.
- 14:45You know, I know that some of the, the clinics I would just felt like I was, you know, am repeat and repeat and you might get through to, and that sounds awful, doesn't it? Listen to that word after said, might get through.
- 14:56Somebody might come in.
- 14:58And think, oh, okay, yeah, Ruth saying something that I can buy into there and I can do that.
- 15:03You know, I'm really terrible about saying that now.
- 15:05Mm.
- 15:06But, um, other people will literally going home and thinking to themselves, well, Ruth saying to do this, it's not, it's not gonna work because I've got this family pressure.
- 15:14I've got that going on, or whatever else it is.
- 15:17So yeah, I can really, yeah, really get what you're saying.
- 15:20So I'd really sort of like to unpack some of that stuff around that stigma.
- 15:23And I don't wanna say more.
- 15:24'cause I think if I ask you too detailed, then I'm gonna take you down a trail.
- 15:28I.
- 15:28Wanna hear more about it.
- 15:30Thanks, Ruth.
- 15:30Um, so yeah, I mean, the impact of Sigma we're set, we're setting people up to fail again, aren't we? As, as for as long as we keep that target of weight change.
- 15:41You know, whatever the support service is, whatever their health condition is.
- 15:45You know, there could be somebody that has multiple long-term conditions.
- 15:48There could be somebody that has none and they're metabolically healthy.
- 15:52Um, but if we start insisting or keep insisting not start, if we keep insisting on weight change for health, then we keep setting people up to fail, you know, in, in real, in real simple terms.
- 16:04And, and that is.
- 16:06You know, when people first come into the surgery with a health condition, or it might mean that they don't actually interact at all.
- 16:16It might mean that they delay until crisis and end up costing the NHS more.
- 16:23You know, that sort of like internalization of stigma, um, is, is already there.
- 16:29It's already in place before they're interacting with the health system.
- 16:32And that's why we need, you know.
- 16:35To get really serious about this and, and recognize that it is the, is the health system's role to lead on this and not prop up diet culture.
- 16:47Um, and yeah, I'll probably come on later more about GLP ones and stuff and, and what we need to be doing around those.
- 16:55But that stigma piece is, is urgent.
- 16:59You know, uh, we all need to learn how to de-stigmatize any situation that we find ourselves in, in work because.
- 17:07We need to do that so that people reengage and rebuild trust, um, you know, in healthcare settings.
- 17:13That's fascinating.
- 17:15And yeah, the stigma part, I'd not thought about this before actually, that people are just gonna not turn up.
- 17:21They're not gonna come along.
- 17:22There is this stigma and the stigma starts and I am thinking, you know, in my mind, I'm not gonna go into the detail, but I do remember somebody who used to come along to the practice and the stigma they felt from the other people in the waiting room for the moment.
- 17:35They walked through the door from the moment they checked and then checked in at reception to then come into the room, and of course, the whole focus was on something that actually they had spent their whole life.
- 17:48Trying to deal with and to manage and, and having that stigma probably before they even got to the practice coming up the street, you know, getting in a cab or whatever it was they were doing, that stigma was right through society.
- 18:02But actually what we're doing is we are waiting for that crisis point.
- 18:06And I'm aware of somebody else who got to that crisis point, and actually it didn't, it didn't bode well and didn't go well for them.
- 18:13And you're right, Ruth, it's in the built environment.
- 18:16I mean, I know a visit up to my own.
- 18:18GP surgery, and I've mentioned it to them on a couple of occasions, that they need to have chairs without arms.
- 18:26You know, they have, and, and at one point they had one chair without arms, like in the naughty corner, and I made a joke.
- 18:32I was like, look, thanks for the chair in their arms.
- 18:34But you have stuck it out on its own in the naughty corner, you know, can't we just have one of the rows with no arms? You know? So I'm making fun of it because I think, you know, that's what I've learned to do is to deflect.
- 18:48The real tragedy of how we're currently working, you've got to use humor, and that's what I do a lot of is, you know.
- 18:55Uh, because when you speak to any healthcare worker, when I, when I share what I'm doing with them, they're like, really? That's fascinating and we need it here.
- 19:05That's the next breath.
- 19:06We need you here.
- 19:07We need you to come in and train our staff.
- 19:09We need to know this, you know? Um.
- 19:12Yeah, so, no, it's fine.
- 19:14This is the thought of that chair in the naughty corner, but you're right.
- 19:17You know, I think a lot of people will actually be saying the same thing.
- 19:21We need to know this.
- 19:22And I know that you've done, um, a podcast before, haven't you, with the RCN to really.
- 19:27You know, going through the, sort of the practicalities of what this looks like, um, which we can touch on.
- 19:33It might be worth you just touching on briefly.
- 19:34I don't wanna be the podcast sort of teaching people all about what to do, but it might be interesting to listeners to sort of think about that and then we can move on.
- 19:42Carry on from there.
- 19:43Well, you echoed it yourself, you know, is it.
- 19:46That sort of like comprehension that someone's already had an internal battle for however long to even get into the consultation room, you know, to, to come again and ask for support with a health condition that's perhaps previously been dismissed as, uh, 'cause somebody's higher weight and that their own, their, their one fix is to change their weight and everything will be better.
- 20:12You know, so that's, you mentioned it earlier, Ruth, that, that just, that bare understanding that this person is already potentially internalizing and stigma for years.
- 20:25Um, and that e everybody at any size needs to have equitable access to, you know, whatever they need access to.
- 20:34So I can hear people saying, what does that look like? When somebody comes to see me and I'm doing diabetes and or doing diabetes, I, you know, doing diabetic clinics, diabetes reviews, whatever, or, or whatever else it is.
- 20:48Somebody's come with the pain in their shoulder and actually, or their knee, and people are saying, well, actually, you do need to lose weight for surgery or whatever else.
- 20:55What, what does that look like when I'm, let's put me in a situation when I'm supporting somebody and my first thing in my head is for.
- 21:06Maybe they need to lose weight, because that's what I'm used to and that's what I've been taught.
- 21:10What does that look and feel like? I think there's a balancing out of, um, parity of, uh, you know, how, how you, would you give the same advice to somebody that has, you know, is straight size, has lower weight, you know, um, question the longstanding.
- 21:30Rhetoric of they need to lose weight to do this.
- 21:34I mean, we have barriers to, to care and we have barriers to treatment that are BMI based and they, they need to be reevaluated and questioned.
- 21:45You know, we say that people can't have surgery until they.
- 21:48You know, lose weight and that's, that's problematic in and of itself.
- 21:53You know, because they're not excluded from bariatric surgery.
- 21:57Why are they excluded to a knee operation that would get them more mobile? Yeah, I was thinking that as you were saying it, you know.
- 22:02Exactly.
- 22:03I didn't think about the bariatric surgery, but actually if we're excluding people, but I know that when I'm referring somebody on or when in the past when I was referring somebody on that, that would be the conversation that was had.
- 22:13So.
- 22:14Yeah, it's a really important thing, isn't it, to think about and if you, I hadn't thought about, you know, with, yeah, you can go for bariatric surgery, you can't have your knee made better, which might help you to mobilize a bit better and et cetera, et cetera.
- 22:26Yeah.
- 22:28It really questions.
- 22:29It doesn't it? It does, it does.
- 22:30I mean, let's take a scenario where you've got an individual going into their gp, their next health check appointment, let's say they do sign up for their.
- 22:38NHS Health Check, and they're there and they're having their, you know, checks done.
- 22:43Um, and they say, right, please, can you help me to lose X amount of weight? I've been trying to lose weight.
- 22:49Please, can you help me? So there you go.
- 22:51In front of you, you know, you've got a really active and engaged, um, citizen in front of you.
- 22:58You know, what's the next best thing you can do to keep them engaged and, and, and through a weight neutral lens, it's about letting them know that actually surveilling weight is, is problematic.
- 23:09And if they, if they want to measure something, then.
- 23:12Not only will you measure their clinical markers for whatever health conditions they present with, um, but you'll also help them measure balancing their nutrition, getting more active, stopping smoking, and reducing their alcohol.
- 23:25'cause those are the four behaviors, the beneficial behaviors that bring health.
- 23:30Um, it's yet to be proven that it's weight change itself that brings the health, it's the behaviors that we do in order to change our weight.
- 23:40That bring the improved health outcomes.
- 23:44Yeah, I, well, you are right.
- 23:45You don't listen to that and it makes so much sense.
- 23:47And I know it's a little bit different, but one of the things, and I dunno if you would've, if you've, uh, listened to Dr.
- 23:53Mark Spencer's, um.
- 23:54Podcast, but he was talking about his do with approach that he's taken, um, up in Fleetwood.
- 24:00And one of the things he spoke about, one of the early things they'd done was a choir and there was a lady that came along and she had lots of health issues, including her weight and.
- 24:11He said to her, what would you like to join the choir? What would you like to do? You know, he didn't focus on any of those, any of that prevention stuff or that cough, you know, meeting target stuff.
- 24:21He just said, you know, what would you like to do? And there was various things.
- 24:25And one of the things was the choir.
- 24:26And she joined the choir and he said, then slowly she noticed after about six months that she was losing weight.
- 24:33That she was living better and healthier and she was more active and doing all these other things because actually her issue hadn't been around that it had best been around the social side of life.
- 24:45You know, she hadn't got that interaction.
- 24:47She didn't have those people, and suddenly where she felt needed, and she really took a key part within that choir.
- 24:52She was needy, she was doing things, and suddenly everything else just started to fall into place.
- 24:57He said, I didn't need to say to her.
- 24:58Lose weight, you said? I don't have those conversations.
- 25:00I don't say stop drinking.
- 25:01I don't say lose weight.
- 25:02I don't say stop smoking because you're taking away from somebody, something that they're doing to fill a space.
- 25:09What I do is I give them other things to fill those spaces and then just imagine how much better that whole process can become if we remove the, and then they lost weight.
- 25:18'cause that's an expectation.
- 25:20You know, we've, we've got a compassionate approach.
- 25:23It's well researched, you know, the evidence for working weight neutrally is, is decades old now.
- 25:30Um, but if, if we make it a compassionate approach to weight, the expectation is that weight change is expected.
- 25:38And if the individual is asking for that or not, the fact that it's still there in the picture is the problem, you know, because, and, and, and I can be very clear about this.
- 25:50Because weight change is a temporary fix to a chronic problem.
- 25:55And the chronic problem, when we say weight issue, it's not a weight issue.
- 25:59It it, it's a behavior issue.
- 26:01You know, sustaining beneficial behaviors is the issue, you know, so we need to bring in practices that encourage, you know, if say somebody takes up walking and they produce weight loss through that, which is, which is.
- 26:16Yeah, in and of itself, highly unlikely, but it's the fact that the body and the metabolism works doubly hard to regain, to re, to re restore that weight.
- 26:27Um, and it's, well, research, research weight restoration is a, is a massive thing.
- 26:32You know, weight regain happens in 95% of cases.
- 26:35So, you know, we come back to that question is why are we still focusing on weight as a health metric? I'm trying not to sound too on me high horse because it's a hard thing to hear if you've been focused on delivering weight change, feel.
- 26:48Yeah, it is.
- 26:49And that question there, you know, yeah.
- 26:51They went off and they happen to lose weight.
- 26:54You know, why are we measuring their weight in the first place? Why aren't we measuring.
- 26:59The other things that you mentioned earlier on.
- 27:01So yeah, there's a huge amount to that.
- 27:03I think the hardest sort of like obstacle for us at the moment is around getting people's thinking out of a dichotomy.
- 27:11So it's like, oh, if you're not monitoring weight.
- 27:14That means that it's okay for people to be gaining weight.
- 27:17And I'm like, no, who's saying that? And if you, if you're not monitoring weight, you are saying that weight doesn't have an impact on people's health.
- 27:23No, we're not saying that either.
- 27:25Do, I mean, weight very much does have impact on health, but produce, trying to produce weight loss and sustaining weight loss is having, you know, more harmful impacts than the weight itself in many cases.
- 27:40So.
- 27:41And we've got to allow for that fluctuation of weight through any, you know, behavior change.
- 27:50Um, and so making the, the target something other than weight.
- 27:55So if they are diabetic, you know, blood sugars is an obvious thing to measure.
- 28:01You know, if they have, you know, they're, if they're cardiovascular disease patient, then, you know, measuring lipids and, um.
- 28:09Measuring the clinical things rather than the weight measure.
- 28:12Health, not weight.
- 28:12There's a good tag.
- 28:15Yeah.
- 28:15Measuring what matters to an individual.
- 28:17It might be that they first come in asking for weight management support and that just goes back to that, um, comment earlier.
- 28:24Is that okay? That's the opportunity to let the individual know that surveilling their weight is probably the least helpful thing to do.
- 28:32Um, and that supporting them in their long-term health, um, and behaviors.
- 28:38Sustaining behavior change is, is the better support model.
- 28:42Um, but.
- 28:44I really wanted the opportunity to clarify around, you know, we support people at Nut Tru who are intentionally changing their weight and those who definitely aren't.
- 28:55And what's really important now in this age of um, GLP ones, is that if we are not creating services.
- 29:04And support mechanisms for the people that are contraindicated for those medications or choosing not to take them after they've gone through really robust informed consent, which most people haven't.
- 29:17Um, if we're not providing services that cater to.
- 29:20There need, um, then we're really failing, aren't we? As a system? I think what's happening here, Helen, is I'm being quite challenged in my thinking, uh, because I've spent so much time just thinking actually, you know, I live in a society where we, we think about people's weight, I think about my weight all the time, you know, constantly.
- 29:41And that's how we've been brought up to think.
- 29:43And then I've gone into a clinical world where we've been told that, you know, weight affects whether or not you can have an operation.
- 29:49Everything is about weight.
- 29:51Diet, exercise, weight loss constantly.
- 29:54And yet we live in a world where there's hundreds of foods around us and suddenly, you know, as you say, these GLP ones have come along, which is the, for people that are listening that perhaps aren't clinical, and I, I'm probably, if I say this wrong, Helen, correct me, this is the injections, isn't it, that people can have in order to lose weight.
- 30:11But actually.
- 30:11In the long run, if they stop taking them, I think most of the evidence is that the weight will go back on again.
- 30:17So how do we make sure that people are doing that in a way that works? And start to think about that.
- 30:23And I really like your, your talk there around measuring what matters to people.
- 30:27I can imagine sometimes it changes that it's, people were thinking that their weight mattered, but actually later on, because society expects us to think about weight being the bit that matters, that that might change later on as well.
- 30:41I don't know.
- 30:42I think we can't really, um, be harsh on people's choice to take these medications because it's crappy to live in a world in a higher weight body.
- 30:53You know, it's.
- 30:56Existing in a fat body is hard work.
- 30:59It's constant trauma.
- 31:01In fact, we know we do a lot of work around trauma-informed care and trauma-informed systems.
- 31:06Weight stigma is perpetual trauma, um, because we don't yet as a system widely understand the health impact.
- 31:15I'm not just talking medical, uh, sorry.
- 31:17Mental health impacts, physical health impacts of stigma.
- 31:21A significant, um, I can badly quote from a research piece of paper, piece of paper from a research paper around not liking yourself triples your risk of diabetes.
- 31:36So there's a, there's a study and, and my good friend Dr.
- 31:40Angela Meadows speaks about this a lot better than I can.
- 31:43Um, but around the impact of, you know, body dissatisfaction, the stress.
- 31:51And the allostatic load from literally not liking the body that you are in right now triples your diabetes risk.
- 31:58And really interestingly, if you go through an intervention around body acceptance and weight neutral understanding, um, then it normalizes, it balances that risk back down.
- 32:11To where it would've been if you'd liked yourself.
- 32:13All along, you talked about the impact of stigma and what that causes, and to sort of ask you to talk a bit more about that.
- 32:21So one of the, you know, you've just said about that, not liking yourself.
- 32:25Yeah.
- 32:25That's so interesting, isn't it? Because we have this thing and actually that can increase our.
- 32:30Uh, markers for diabetes and other things.
- 32:33Is there anything else? That's what I'd like to know.
- 32:34Is there anything else with stigma, whether it's about weight or anything else? I dunno whether you've explored it in other areas that, you know, we can really start to think, oh, actually this is why it matters.
- 32:43This is why it's important.
- 32:45It's got, we've, we've got to always come back to the impact of stigma on physical and mental health and the impact on health engagement.
- 32:53Um, so we like to frame weight stigma as a health disparity.
- 32:59You know, um, of that, we've, we, uh, back two years ago became NHS Core 20 plus five ambassadors, um, to learn more about, um, health disparities and both the core and wider determinants of health.
- 33:17Um, and when you get into all that and it's like, it's really incredible that we think that solving someone's body weight.
- 33:27Solves anything other than their body weight.
- 33:31It doesn't solve their poverty level, it doesn't solve their access to more nutritious food.
- 33:39It doesn't solve their social isolation if they're socially isolated.
- 33:44Um, and yeah, I think, I feel like we've got on a bit of a tangent there, but yeah, that, that, that impact of stigma, it, it is so intersectional.
- 33:56Because body weight is intersectional to every protected characteristic and every unprotected characteristic.
- 34:04Hearing that, I mean, how does it feel to be someone who's been trying to deliver just on weight management all these years? It's quite disabling, isn't it? It's like, yeah, I, I don't know how, how does it feel, Ruth? It makes sense, and as I say, I knew sometimes that people were going home and they were thinking to themselves, well.
- 34:24I'm not gonna eat those things because my partner expects me to eat like this.
- 34:29They'd say, but I cook for a family, or My husband likes these food, or my wife likes that.
- 34:35You know? So they had that piece that actually they couldn't really, they weren't even empowered to change their diet or we don't have access.
- 34:41And I knew people didn't have access to funding or money or ability to.
- 34:47Or, or knowledge should I say about cooking and, and what good nutrition was in the first place.
- 34:52So I knew that quite often I was sending people out and.
- 34:57Actually, I've sent them out, probably more frustrated than they came in, and as gentle as I'd try and be in and sometimes sort of think, well, yeah, okay, I get that.
- 35:06That's not gonna happen.
- 35:07So let's think about something else.
- 35:09I still knew that the system wanted me to record their weight, record their, their girth.
- 35:14Yeah.
- 35:15Um, you know, to, to do all of those things.
- 35:18And sometimes we didn't always have the equipment available within the surgery to do that for people because.
- 35:23People were beyond what we, our equipment was able to do that.
- 35:26For us, that was even worse.
- 35:27'cause then I had to just put, you know, write something about why I hadn't recorded it.
- 35:31'cause otherwise when it came to those points.
- 35:33So yeah, it, it feels like the frustrations that I felt, um, were.
- 35:43Right, because I felt frustrated in those situations.
- 35:47Um, but it feels like there was a lot that I didn't know and probably people don't know where actually we could start to think about, um, things differently.
- 35:58And there's good reasons to think about things differently and that what matters to you question and how can I support you to achieve that? It, I think we really need to be turning it round and I'm beginning to think that actually, do we need to change our markers to start to talk about those social determinants of health and almost be, so how engaged do you feel? Um, how lonely are you? Almost like a loneliness marker.
- 36:21Are you engaged with your community, your family, or friends? Is there something else that you need beyond that, that, that actually be a better question than worrying about somebody's weight and what they're eating for dinner? You know? So, yeah, that's what I'm thinking.
- 36:36Yeah, that's it.
- 36:37That's it.
- 36:37Because it about finding something that's within their control.
- 36:43Isn't it that that something that they can actually affect change If, if someone's coming in asking for, you know, behavior support change, for example, you know, or they, they have a health condition that they want to know that they're doing the best they possibly can for themselves.
- 37:01You know, they might be in treatment for, let's say diabetes, but they also want to know.
- 37:06That they're doing all that they can for themselves.
- 37:10Um, you know, that needs to be weight neutral.
- 37:13It needs to be weight inclusive and not, not focused on weight measures at all.
- 37:18You know, it needs to be faced around the things that they can actually, you know, have an impact on.
- 37:24'cause they can temporarily have an impact on their body weight, you know, but temporary is the word here.
- 37:30And the impact of changing their weight over and over has its own health risks.
- 37:36You know, um, that weight cycling effect, even by just a few pounds up and down, I think it's about seven pounds up and down, you know, that, that carries its own cardiac risk.
- 37:50Um, and I can, I can supply the evidence links to that, but it's, it's out there.
- 37:56You know, it's, I think what we're trying to do at URI is to just be able to.
- 38:04Have these difficult conversations, you know, yourself just doing this podcast, Ruth, that it, it feels, you know, it feels edgy.
- 38:11It feels like, oh, okay, hold on.
- 38:12I've been doing this one way.
- 38:14How can that be not the right way? Do you know what I mean? It's what I was trained to do.
- 38:20How can that not be right? So when we go back to policy and say, right, okay, policy's won.
- 38:25Key policy needs changing.
- 38:28You know, the And nice.
- 38:30Both agree now that there is a lot of diagnostic overshadowing happening and that body weight is overdiagnosed overtreated.
- 38:39Um, and that weight stigma gets in the way of effective policy and effective healthcare.
- 38:46You know, we've got two major organizations that are held in high esteem, the Lancet and Nice guidelines.
- 38:53You know, they're saying that weight stigma is a problem.
- 38:57Um, and Nuri is just using the 10 years of experience to support policy change and.
- 39:07Train workforce to be more inclusive.
- 39:14Of everybody's health needs.
- 39:15So what would you like to see happen? Helen? Ire I'll, I'll go right back, Ruth.
- 39:22So my original dream, if you like, and it was very naive to get going.
- 39:27I had to be really naive.
- 39:29I realize now in hindsight.
- 39:31So I started nru by opening a weekly meetup group.
- 39:35I didn't know what the group would do, what it was about.
- 39:38And over 10 years we've learned that.
- 39:41So now.
- 39:42We'd love to fund a rollout of neighborhood health hubs that can ultimately take the place of weekly meetups, slimming groups, because people get a lot from going to those weekly meetups.
- 39:59You know, they, they're in with a crowd of people that are supporting each other's wellbeing, um, and are naturally social prescribing as well.
- 40:09Natural social prescribing always goes on at slimming clubs, so we want to create these neighborhood health hubs that actively de-stigmatize, um, going forward and support people's holistic wellbeing rather than zeroing in on.
- 40:28An arbitrary number on this scale.
- 40:31Um, somebody very close to me once said, scales are for fish.
- 40:37That's really good.
- 40:38I like that.
- 40:39Scales are for fish.
- 40:40And um, so we've got the health hubs.
- 40:44Which is the ideal mm-hmm.
- 40:46Within a neighborhood.
- 40:48Um, we've got social prescribing mm-hmm.
- 40:49Which is referring people to choirs or whatever else that is, um, walks different things.
- 40:58What, what about when people come along to general practice or they go to see the consultant about their, their knee op.
- 41:04Um, and those sort of things.
- 41:06What, what's happening there? Perhaps start with general practice, and I say general practice because my personal thing is that there's so many people in general practice now, I don't say GP practice, so a person comes along to see us and, and I say, or me, as I will will say, and whoever it is now, what, what's happening there? Yeah.
- 41:24So the training, the weight neutral training that we offer.
- 41:28Um, an ecosystem.
- 41:30Um, and that could include, like you say, any member of staff in the practice from front of house to, you know, the diabetic nurse, the, the GP themselves, um, or any onward referral.
- 41:46We want that to be stigma informed and weight neutral.
- 41:51So a weight neutral triage system.
- 41:55Um, that involves a wider ecosystem as well out from the PCN to the primary care network out into the, um, third sector, the VCSE, the voluntary community, social enterprise center sector that always, it does all the heavy lifting, a lot of the heavy lifting around community care.
- 42:16Um, we'd like to see all of that to be stigma informed.
- 42:23In time and able to make really holistic signposting and referrals into services that actively de-stigmatize the situation and the individual.
- 42:39Um, so that we can see an increase in engagement and a a, a benefit to, um, positive health outcomes.
- 42:51For more people and when they go to the hospital, whatever that's for.
- 42:57Is it the same or is there something else? Yeah.
- 42:59That we, we've got to sort of envision a ripple effect of how that can be.
- 43:05I think there's even, we've got to have a no wrong door approach, so let's take somebody who definitely knows they don't want to focus on their weight.
- 43:20And someone who definitely wants to go and try the medications or even have surgery.
- 43:25Okay.
- 43:26Um, we've got to create a no wrong door approach because following medications and following surgery, the need may well still be there for accessing, you know, welcoming movement classes and.
- 43:46Um, creating those spaces where people feel that they're included.
- 43:52Uh, information about, um, nutrition, balancing nutrition, you know, because the medications and the surgery aren't fixes to that.
- 44:03Issues that, um, and behaviors that led someone to poorer health.
- 44:11In the first place.
- 44:12They're sticking plasters, you know, the the and the me.
- 44:16We've got to be creating services that support everybody every size, and those that in are intentionally changing the way and those that definitely aren't.
- 44:26And I mentioned earlier about that contraindication for medication and surgery.
- 44:30If we are not creating services specifically for people that cannot or do not want to take those medications, then we're failing a big.
- 44:39Portion of, um, the general population.
- 44:42Thank you, Kelen.
- 44:43And then, uh, the other thing I wanted to ask was stigma.
- 44:47Obviously this is very much about weight, but have you come across or, or even done some work around any other stigmas? What others are out there? Uh, and what, what are their implications? Do they mix? Are they the same? Are they telling us the same thing? Because I haven't thought about it, obviously, as I said at the beginning before.
- 45:05So I'd really like to hear your.
- 45:07What you know about this or what you think about this? So, couple of things.
- 45:10Couple of major things.
- 45:11So we've been banging on about weight stigma for a long time now, and then it might have been from getting involved with the King's du with movement.
- 45:24We, we started to talk about stigma.
- 45:29In a more vanilla way.
- 45:31So in that more, you know, so not just making it about weight stigma and the health impacts of weight stigma, but stigma just generally, and it, it's surprisingly similar, the health, the mental health and physical health impacts of all stigma.
- 45:47It, it's pretty much the same whether, whether someone's experiencing weight stigma or maybe they're experiencing, um, racism.
- 45:58Um, classism, you know, any, any ofm it's the same.
- 46:06So, and to that end, so the funny story is, sorry.
- 46:10The funny story is that people listened more when we made it about other stigma as well, as well stigma.
- 46:15People could listen more.
- 46:18They were open to hearing more about it.
- 46:20You know, now that's a really sort of like.
- 46:23Veiled way of saying we were experiencing weight stigma.
- 46:28You know, we're trying to talk about weight stigma.
- 46:30We are, we and we do, we experience weight stigma.
- 46:34People are, it, it, it's like people are very barrier to it.
- 46:37So when you open the conversation up.
- 46:40To be more just about, generally about stigma in general.
- 46:44People are more open to having that conversation.
- 46:47It's messed up, isn't it? Um, but anyway, to that end, we've, we just about to, um, have signed off a new charity that we've set up and it's called Free From Stigma.
- 47:01Um, and.
- 47:03The work that we did through the Kings Fund do with initial, um, kickoff event.
- 47:09We made that about all stigma, uh, and people shared with us, you know, where they focused their work, their do with work is focused in other STRs, if you like, of, of, of stigmas, you know, anti-stigma practice.
- 47:24And that's really interesting because what you're saying is that I, I'm just recapping here, so.
- 47:30You talked about all sorts of other stigma, racism.
- 47:33I'm just trying to top of my head, ageism, sexism, whatever they are, all of those sort of things.
- 47:38And I think last time, yeah, when we first met, prior to this podcast, we talked about things like dyslexia and A DHD.
- 47:45So they're, all of those come with stigmas.
- 47:47They're all having the same.
- 47:48Mental and physical health implications that you were talking about with weight I impact.
- 47:54But actually when you start to talk about those, people will find it more acceptable to talk about those ones than they were about weight one weight stigma, which quite interesting, which shows the stigma that there is around weight.
- 48:07And I wonder if that is because we are so ingrained in us that actually if you are overweight, you are unhealthy.
- 48:16And we live in a world where, or, um, a society, should I say, I, in the uk where actually the NHS is there to provide.
- 48:25Pride all our health and care for us.
- 48:26And that's something really obvious.
- 48:28You can see somebody and think, well, they're going to need all of this stuff that you know that they're gonna need from the NHS.
- 48:34So I wonder if it's almost so ingrained into us as what healthy is, that we can ignore all the other things, whether they be behaviors or we can accept them when there are other things that there's stigma about, because we've seen them and spoken about them for such a long time.
- 48:49But weight, which we can see.
- 48:52Quite obviously, or think we can see obviously, because it's not always obvious as to if somebody's overweight and it's affect affecting their health.
- 49:01But we think we can see that as a society, don't we? And we think we, we are know the impacts of that weight.
- 49:07And I wonder if it's something about the fact that we're so hooked up on delivering health and health being delivered to us rather than creating our own health.
- 49:16I wonder if it's something around that.
- 49:18I'm, I'm.
- 49:20I getting myself a little bit muddled, but I Do you get where I'm coming from, Helen? I do.
- 49:24I do.
- 49:24And so there's a couple of things.
- 49:26There is, is the presumptions of when, when I walk into the GP surgery, for example, in the body size that I am in, um, it.
- 49:36Assumptions are made, judgments are made in a split second.
- 49:40Here's someone that's not eating the right things or moving their body enough is the main assumptions that are made, and that's where the issue lies.
- 49:49Because nobody's yet asked me actually what I do eat day to day, you know, and they've not asked me how much I move my body.
- 49:58They've not asked me what my access to better nutrition is like.
- 50:02You know, they've not asked me what are the stresses I have going on in my life.
- 50:07You know, it, it's like, it is such a, a narrow focus to presume that anybody of higher weight is not looking after themselves.
- 50:19It's almost that BMI is the least interesting thing about me.
- 50:22But I will also say, you know, language is really important and when we say that overweight, when we say overweight, I always wanna say straight away over what weight, you know, if, if we are actually believing that BMI is useless and I call it basically meaningless information.
- 50:38That's my acronym for BMI, the terms overweight and underweight become obsolete.
- 50:44Over what way? Under what way? You know, if we're saying that there are no classifications that personify, you know, health and that health is available at every size.
- 50:56You know that we have to stop using the words overweight and underweight, which I probably just used, I dunno how many times in that little reflection to you.
- 51:05Don't worry, don't worry.
- 51:06Sorry I left it.
- 51:07Don't worry.
- 51:08No, it's fine.
- 51:09It's fine.
- 51:10People will probably remember it more.
- 51:11So what next? I know you've talked about the fact that you've got this charity free from stigma and that you're broadening that out.
- 51:18Mm-hmm.
- 51:18I suppose what I'm thinking about now is for the, for our listeners, be they.
- 51:22Clinicians, be they from social care, be they from charitable sector, be they my mom and dad, who I know, listen, you know, in other words, just members of the public, just people that are out there who are listening.
- 51:35What, what do we need to.
- 51:37Do.
- 51:38What's your challenge to those people, whether they be somebody who's underweight, overweight? Um, I know, there I go again.
- 51:45I've said it again, shows how ingrained it is, doesn't it? Um, be people that consider themselves or other people consider that they are, let's just put that bit in there.
- 51:56But what, and all those other stigmas as well that we've spoken about, which really brings us into that sort of, um, as you said, theisms, the racism, sexism, you know, really talking about that.
- 52:07Inclusion.
- 52:09What's your challenge? What, what do we need to think about? What do people need to do? It? It depends on what their, who they are, first of all.
- 52:18So what we're trying to do here is lift the burden.
- 52:22Off of the individual and place it back on the system to change.
- 52:25So when we talk about behavior change, we definitely mean about changing the behavior of our healthcare system to not regard weight as a, as a valid health metric.
- 52:34Um, because it's not, it's really problematic to be using weight as a health metric in this day.
- 52:40And h um, so if they are, if they are part of an organization.
- 52:46Let's say, I think, and, and this, this, yeah, this, this call goes mainly out to, to those people is, is recognized that they aren't disempowered.
- 52:56They have power within them to advocate for weight neutrality and inclusive healthcare.
- 53:04You know, if they look at their role, for example, you know, they, they can, you know, stop perpetuating weight stigma by, you know, learning.
- 53:16The language that stigmatizes and learning the practice that can de-stigmatize, um, and for the individual.
- 53:27So if you're talking about the individual in conversations with their loved ones, um, or their social groups, you know, it's body weight is the least interesting thing, but we spend a lot of time talking about it and it all has an impact.
- 53:46You know, even if I like to give this scenario, even if I'm talk, if, say if I'm, I dunno about weight neutrality and I dunno about the impact of weight stigma and I'm in a conversation with friends and loved ones, people that I trust and we've probably had the same conversation a thousand times.
- 54:04But even if I'm talking about my own body weight in a close circle of friends, those.
- 54:12That conversation has unknown impacts on people in that conversation.
- 54:17And to myself, you know, so that's placing value on body size every time.
- 54:25It's placing value on that, that as a, you know, appearance as a currency to being accepted.
- 54:33You know, it's like if I'm a fat person, I've got to be seen as a, a good, fat person.
- 54:38So I go to the gym, you know.
- 54:41And I do this and I talk about what I'm eating and how I'm exercising because I've got to show people that I'm a good fat person and looking after myself, you know, it's, we'll always find some way of framing this.
- 54:56I'm going off on a tangent myself now, Ruth.
- 54:58Sorry.
- 54:59But that sort of, you know, I think that.
- 55:02It, the what, what would I wish everybody knew is that body weight was the least interesting thing about them as a person.
- 55:10Um, and also it's the least interesting thing to their healthcare provider.
- 55:14I think that sums it up really well and I like that.
- 55:17And one of the things I was gonna say, you know, that I've really picked up from that last little bit that you've said is actually, weight is the least interesting thing about people, but it is the thing that we talk about.
- 55:27The most.
- 55:28So thank you.
- 55:29Thank you for joining me today.
- 55:30I've really enjoyed our conversation.
- 55:32I've smiled so much, laughed so much, um, realize that I've used really poor language, so I'm gonna have to go off and reflect afterwards.
- 55:43I'll, I'll do absolutely fantastic.
- 55:49And so, yeah, thank you for joining me today, as I say, it's been a great conversation.
- 55:54Bye.
- 55:54Uh, thanks for hosting.
- 55:55Thanks.
- 55:58I hope you found this episode interesting and inspiring.
- 56:01If today's conversation has stirred something within you, please share it together.
- 56:06Let's build the ripple that we need to create change.
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- 56:16A link to my feedback form where you can share your questions, ideas, and reflections, and talk about what you'd like to hear on this podcast in the future and what matters to you together.
- 56:28Let's shape a space into something reflective and purposeful.
- 56:33So for now, stay caring, stay connected, and stay curious.
- 56:41I.