Latest / Tom's Hirschsprung's Podcast / Episode 54 - With Hannah Davis (Part 1)

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Episode 54 - With Hannah Davis (Part 1) · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshbrun's Podcast, where our provide
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Speaker 1: a look into the remarkable experiences of the most inspiring
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Speaker 1: people around Hirshprung's disease and sports. Hello and welcome to
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Speaker 1: episode fifty four of Tom's Hirshprungs Podcast. I have a
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Speaker 1: guest with me today, Hannah Davies, and we are going
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Speaker 1: to talk about hirshprungs, and we're going to talk about
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Speaker 1: your son and your story about his Hirshprung's journey. Hannah,
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Speaker 1: Welcome to the podcast. It's one of the cheeriest welcomes
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Speaker 1: I ever had.
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Speaker 2: I don't really know how else to start.
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Speaker 1: Yeah, anyway, that's fantastic. Well, it'd be great when there's
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Speaker 1: you know, when there's video. You can do jazz hands.
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Speaker 1: It will be good. Everyone will see that. Thank you
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Speaker 1: so much for agreed to come on. We I think
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Speaker 1: we spoke earlier about your son, Jasper, who has hirshprungs,
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Speaker 1: and we'll probably start, I guess from the very beginning,
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Speaker 1: because this is quite a unique, a unique story, certainly
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Speaker 1: one that I haven't necessarily come across in the fifty
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Speaker 1: three other episodes that I've done. Would you like to
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Speaker 1: take us really from from the beginning.
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Speaker 2: Yeah, So he was born first and as we know,
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Speaker 2: Hirshbrungs is you know, you have it from birth. He
2:04
Speaker 2: was our first born, which I think retrospectively, looking back,
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Speaker 2: I would have done things differently now I've had two children,
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Speaker 2: like I feel like I would know more. But he
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Speaker 2: was born, he was two days late. He like his birth.
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Speaker 2: Sorry to talk to you about birth because you're a guy,
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Speaker 2: but that his birth was totally fine. It was, you know,
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Speaker 2: relatively quickish. She was at four or five hours, which
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Speaker 2: is pretty bloody good. There were no medical warning signs
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Speaker 2: at all, but straight from the outset, he threw up
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Speaker 2: after his first feed and it was like a kind
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Speaker 2: of blackie green yuckie. And I was a bit like, oh,
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Speaker 2: that's weird, and the midwives are like, oh, it's because
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Speaker 2: he was quite a quick birth, so like he's just
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Speaker 2: got a bit of kind of not trauma, but he's
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Speaker 2: a bit like from the quick bar, nothing to worry about.
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Speaker 2: And I was like, okay, fine, respectively, warnings like number one,
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Speaker 2: then he didn't pass his maconium poo, so the sticky
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Speaker 2: poo he didn't pass that. I think he passed it
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Speaker 2: around thirty six hours, where it's meant to be pretty
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Speaker 2: bloody quickly, and if it's after forty two hours or whatever,
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Speaker 2: it's flagged as hirshprungs. But his was just before that
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Speaker 2: and he passed this poop and then I had lost
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Speaker 2: a lot of blood, so we had to stay in
3:37
Speaker 2: for four or five days, and throughout that time, like
3:41
Speaker 2: his latch was tricky. He had a recessed jaws, so
3:44
Speaker 2: we had to have a like cranial osteo path that
3:48
Speaker 2: might be what they're called like adjust his jaw. So
3:51
Speaker 2: boopooding was really tricky. So he went on to formula
3:55
Speaker 2: pretty quickly. I was pumping for ages and the midwife
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Speaker 2: was like killing if that don't follow, and so we
4:00
Speaker 2: went onto formula, which then became the excuse for the
4:05
Speaker 2: next chunk of time of medical illnesses. So it's like
4:11
Speaker 2: it's pooh. We never once with Jasper had baby poo
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Speaker 2: and he was my first baby, so I am now
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Speaker 2: having had a loosely normal child rue his brother, I
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Speaker 2: now know what baby poo is. We never had that
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Speaker 2: with Jasper. We had rock solid poo's that he would
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Speaker 2: cry to come out often like I would actually just
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Speaker 2: pull it out and it was like a pencil. It
4:35
Speaker 2: was rock solid, and I would yank these poos out
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Speaker 2: of him and he would be sick after every feed,
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Speaker 2: and everyone was like, oh, yeah, baby's always stick oh,
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Speaker 2: you know, like and he wasn't like that. He would
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Speaker 2: literally drink and project our vomit after and everyone was like, oh, babies,
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Speaker 2: just do that. And I was like, okay, again, my firstborn,
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Speaker 2: I'm no expert. We went and got him weighed every
5:02
Speaker 2: week and then every two weeks, like we were so
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Speaker 2: on it, and I would always say like, oh, yeah,
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Speaker 2: he keeps being sick. Oh, it's because his formula fed.
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Speaker 2: Oh his tummy's quite distended. Oh, because he's just formula
5:14
Speaker 2: fair do bicycle kicks they don't work if a kid
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Speaker 2: has hurshprung. Bicycle kicks are bollocks. So we kind of
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Speaker 2: I kept asking and everyone was like, it's fine, it's fine.
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Speaker 2: Sometimes he would throw up and it would be like
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Speaker 2: a greeny color and they're like, yeah, yeah, it's just
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Speaker 2: the formula. Oh, he might have a little infection. And
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Speaker 2: I was like, okay, like it seems a bit weird.
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Speaker 2: And then at five months old, he was sick. I
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Speaker 2: remember because it was snowy. No, it wasn't. No, second
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Speaker 2: time was snowy. First time we went to hospital, I
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Speaker 2: was like, he has a pood in two weeks, Like,
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Speaker 2: surely this isn't normal. His tummy was literally so swollen
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Speaker 2: you could see veins all on it. He was like
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Speaker 2: like withering in pain. And we went to the hospital
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Speaker 2: and this lovely lady at our local hospital, which is
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Speaker 2: Royal Surrey in Guildford, she is the pediatric gastro person
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Speaker 2: and she was like, I think he has this thing
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Speaker 2: called hirshbrung and she was like, but we can't touch
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Speaker 2: him because they're not a children's hospital. And they were like,
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Speaker 2: I'm going to send you to a children's hospital because
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Speaker 2: I think he needs a biocce. And we were like okay,
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Speaker 2: like this seems like we're making progress. This wasn't his
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Speaker 2: first hospital trip at this point, so I was really
6:33
Speaker 2: pleased that we had had someone that thought it might
6:37
Speaker 2: be something. And we went to I think we were
6:41
Speaker 2: waiting on a bed at either Great Ormond Street the
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Speaker 2: other one in London. I can't remember. It's called Southampton
6:50
Speaker 2: or Brighton. We were gone into Southampton because my brother
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Speaker 2: in law lives there, so we were like, oh, it
6:56
Speaker 2: would be really easy because today like logistically it's fine.
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Speaker 2: But I was like, actually, like wherever hasn't has a
7:03
Speaker 2: spot for him. So we got in an ambulance. We
7:06
Speaker 2: were taken down to Brighton, which was a very new, shiny,
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Speaker 2: pretty hospital, and we were like, oh, this is great.
7:13
Speaker 2: There's like surgeons and people that know what might be
7:17
Speaker 2: wrong with him. And we were there, I think for
7:20
Speaker 2: about a week. In that time, he had had five suppositories,
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Speaker 2: which you're meant to only have I think over the
7:29
Speaker 2: age of four, and he was five months old, and
7:32
Speaker 2: I was like I don't care, Like, if you think
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Speaker 2: this can help him and get this pooh out, which
7:37
Speaker 2: is so clearly in here, then crack on, like I'll
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Speaker 2: sign whatever you need. Let's make my child, my baby,
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Speaker 2: like my firstborn happy. And literally the nurses would come in,
7:49
Speaker 2: they put the suppository up, and then half an hour
7:50
Speaker 2: later they're like anything anything. I'm like no, and they'll
7:54
Speaker 2: come back in anything and like, oh, we're going to
7:56
Speaker 2: have an explosion nothing. And I was like, is it
8:00
Speaker 2: a bit weird that he doesn't pooh? They were like, yeah,
8:04
Speaker 2: it is is a bit yeah, and then we had
8:07
Speaker 2: this surgeon come in, who was this giant man, and
8:11
Speaker 2: he was very like, I'm here to stake the day
8:15
Speaker 2: and he was like, oh, yeah, your kid's thriving, and
8:19
Speaker 2: I was like, they were like, he's got a lucky
8:22
Speaker 2: color about him. Jasper is naturally just really tanned. We
8:25
Speaker 2: don't know why. He looks like he is some kind
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Speaker 2: of blonde, curly head, tanned, beautiful little boy. We don't
8:36
Speaker 2: know why he's so tanned, but I'm pretty sure the
8:38
Speaker 2: milkman wasn't tanned either, So he looks like physically he
8:43
Speaker 2: looked healthy other than his really bolding stomach, and he
8:47
Speaker 2: was a happy, content kid, like he didn't cry, he
8:49
Speaker 2: was very calm or constantly, which retrospectively, all of these
8:57
Speaker 2: things were actually warning signs. But we were like, oh,
8:59
Speaker 2: we've got a baby that literally doesn't make a noise.
9:01
Speaker 2: He doesn't. He just sits there and struggles to pooh,
9:05
Speaker 2: but he just sits there. And then the man was like, oh,
9:09
Speaker 2: we're not gonna Eventually, Jasper pood when we were there
9:12
Speaker 2: as you would expect, and it was massive, and his
9:15
Speaker 2: tummy literally deflated like a balloon. And then the surgeon
9:18
Speaker 2: was like yeah, no, I don't. I don't think it's
9:20
Speaker 2: worth doing the biopsy. And he was like, the biopsy
9:22
Speaker 2: on a baby is you know, quite a procedure. And
9:27
Speaker 2: we don't think that that risk of him being you know,
9:31
Speaker 2: put to sleep in things is worth it because IM pretty
9:34
Speaker 2: sure he hasn't got the hushbrunks. So we were like, okay,
9:39
Speaker 2: And in our medical note, which we got back for
9:44
Speaker 2: various reasons, in our medical notes, it had said that
9:48
Speaker 2: he wrote down he was like over cautious first time parents.
9:54
Speaker 2: I've told them to give when they're weaning Jasper, to
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Speaker 2: give him apple juice because it will help him. And
10:00
Speaker 2: I've advised him on like nutritional choices for when they
10:03
Speaker 2: wean him to help him poove. Right, Okay, great. So
10:07
Speaker 2: we then left there thinking we knew what was going on,
10:12
Speaker 2: and we had to go back two weeks later and
10:15
Speaker 2: it was the New Year, and he was like, you know,
10:18
Speaker 2: you're still our patient, you know, don't don't worry anything happens,
10:22
Speaker 2: just come back and at New Year. And I remember
10:25
Speaker 2: because we're at our friend's house and it was mad.
10:28
Speaker 2: He was asleep and we went upstairs to go to
10:30
Speaker 2: bed and he had literally pooped through his nappy all
10:35
Speaker 2: over the travel cart. Like literally he was just laying
10:39
Speaker 2: in a bed of two. I've never seen anything like it.
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Speaker 2: I was like, you couldn't kick him up because he
10:45
Speaker 2: was so covered, and I was just like, what the hell?
10:48
Speaker 2: And like our friends blessed them, like came and we
10:51
Speaker 2: all like cleaned him up, and they had had a
10:53
Speaker 2: kid already, so they had like everything he could ever
10:55
Speaker 2: need there, and we sort of cleaned him up, and
10:58
Speaker 2: I was like, do you know what, We're not going
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Speaker 2: to day. I'm just going to take him home because
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Speaker 2: something this seems really weird. So I took him home
11:05
Speaker 2: and we were going to call the hospital, but we
11:07
Speaker 2: were d back something like three days later, so I
11:10
Speaker 2: was like, do you know what, let's just mark this
11:13
Speaker 2: down as there's been a bit of a problem and
11:15
Speaker 2: we'll talk to him on Wednesday or whatever it was.
11:18
Speaker 2: And when we got there again, Jasper was just like huh,
11:23
Speaker 2: And I said I that. I was like, you know,
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Speaker 2: he he hasn't pooed a lot since we were last here.
11:28
Speaker 2: But we also had this like mammo pooh explosion. And
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Speaker 2: it's not baby poo, it's not you know, easy to clean,
11:36
Speaker 2: it's like diicky, thick, limey poop. But I was like,
11:41
Speaker 2: it wasn't like a little poo explosion. It was literally
11:45
Speaker 2: it covered a whole cot plus sides up past his
11:48
Speaker 2: head like he was laying in the kind of coffin
11:51
Speaker 2: of poo. And the guy was like, oh, yeah, don't worry,
11:56
Speaker 2: like baby poos are totally expected. You know, he's thriving.
12:02
Speaker 2: We're going to sign you off. So I was like, oh, okay.
12:07
Speaker 2: So he signed us off and that basically meant that.
12:10
Speaker 2: Then for the next two years, every time we went
12:14
Speaker 2: back to Royal Surrey and blessed Royal Surrey like they
12:18
Speaker 2: really cared and they were invested in finding out what
12:20
Speaker 2: was wrong. But as far as they were concerned, a
12:22
Speaker 2: pediatric surgeon had said Jasper didn't have hirshbruns, therefore, what
12:27
Speaker 2: did this child have? So they were constantly like, we
12:33
Speaker 2: don't really know, like and we would I think before
12:37
Speaker 2: we found out we had hirshbruns, we'd been to hospital
12:39
Speaker 2: eleven times, and we had been to various hospitals because
12:44
Speaker 2: Jasper's not only a Surrey base earl kid. We had
12:47
Speaker 2: one time we were going up to Yorkshire to see
12:50
Speaker 2: my sister sisters in law who live up there. We
12:55
Speaker 2: were driving up and we got as far as Nottingham
12:58
Speaker 2: and he it was again, it was February. I don't
13:01
Speaker 2: know why we always do this in winter, but it
13:03
Speaker 2: was February. It was freezing cold. He had like an
13:06
Speaker 2: insane temperature. He was literally red in the face sweating,
13:10
Speaker 2: and I was like, something's wrong. He's still projectile vomiting
13:14
Speaker 2: after every seed, so he's been sick all over his clothes.
13:18
Speaker 2: He was literally in a nappy. I had like a coat,
13:21
Speaker 2: a scarf, a hat on. It was freezing cold. There
13:24
Speaker 2: was ice and snow outside, and he was in a
13:27
Speaker 2: nappy because he was so hot. And I was like,
13:31
Speaker 2: this isn't normal, and I called nine nine nine, and
13:36
Speaker 2: the ambulance came to the petrol section that we'd pulled
13:40
Speaker 2: in that service station and they took him over to
13:42
Speaker 2: Nottingham Hospital and they were like, oh, yeah, it's just
13:45
Speaker 2: like a really bad infection. Obviously now with hirshprungs you
13:49
Speaker 2: kind of know all the infections that come with it,
13:52
Speaker 2: and they just again give him shed loads of antibiotics.
13:55
Speaker 2: Then he's fine. And my sister in law is a
14:00
Speaker 2: nurse and her husband is a. I was like, an
14:06
Speaker 2: ambigance man at PARA wouldn't like heh yeah, yeah, that
14:11
Speaker 2: emergency guy. So I was like, actually, I'm really comfortable
14:14
Speaker 2: with us continuing our journey because actually there are two
14:17
Speaker 2: people that we're living all when we get there who
14:20
Speaker 2: will be great at this. So they came and they
14:22
Speaker 2: looked after us and looked after Jasper, and this was
14:26
Speaker 2: kind of like something that happened all the time. Then
14:30
Speaker 2: the day we find out so Jasper is now two
14:32
Speaker 2: and a half. He is also like in our NCT group,
14:38
Speaker 2: he is the shortest, which you wouldn't think is weird
14:40
Speaker 2: other than the fact that I'm quite taught on my
14:42
Speaker 2: husband's six or four, So why our son was considerably
14:46
Speaker 2: shorter than every other child. He would never make a noise,
14:50
Speaker 2: He wouldn't speak. At two and a half, he was walking,
14:54
Speaker 2: but he still didn't really talk. He wouldn't play on
14:57
Speaker 2: a playground. He like, you expect toddlers to be a
15:01
Speaker 2: bit chaotic and mad and loud, and he wasn't that.
15:05
Speaker 2: He would literally you would sit there. He would eat everything,
15:07
Speaker 2: bless him much to her, you know, as the swell
15:11
Speaker 2: of his tummy, and he would just kind of Potter
15:13
Speaker 2: around and occasionally would cry that his his summy hurt.
15:17
Speaker 2: And then it was to the stage where me and
15:19
Speaker 2: my husband would just find ways of getting poop out
15:21
Speaker 2: of him, so like I would get tweezers and pull
15:24
Speaker 2: them out, or like we were trying and like bend
15:26
Speaker 2: his legs up and I could see like rock solid
15:29
Speaker 2: pooh in the way, and I would just grab it.
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Speaker 2: Like it was such a weird first time parent experience
15:38
Speaker 2: that you're like, well, like, no one's helping and my
15:41
Speaker 2: kid needs me, and I'm pretty sure you're medically not
15:44
Speaker 2: meant to stick, you know, like a Bobby hair clip
15:47
Speaker 2: up there to try and get his poo out, but
15:50
Speaker 2: no one's helping me and he can't poo. So this
15:53
Speaker 2: became like part of our routine, which in itself is mental.
15:57
Speaker 2: And then one cold again the other one February day.
16:03
Speaker 2: I think this is literally my three biburies are here.
16:06
Speaker 2: So yeah, he was two and a half and and
16:11
Speaker 2: he again was like crying in pain, couldn't go to
16:14
Speaker 2: the toilet, like still in nappies because I was like
16:18
Speaker 2: like I don't know what to do here, and he
16:22
Speaker 2: was like screaming in pain, and he just get like
16:25
Speaker 2: rubbing his coming home, oh like, and I was like,
16:27
Speaker 2: oh my god, like what do we do? And I
16:30
Speaker 2: was like I can't fucking need to the point, but
16:35
Speaker 2: it was meant no, And I was like, I don't
16:38
Speaker 2: want to wait and go tomorrow because what if we're
16:41
Speaker 2: snowed in, because we do live in the country, in
16:43
Speaker 2: the countryside, and I was like, Oh, let's just go
16:46
Speaker 2: because knowing our luck, he will need to go in
16:49
Speaker 2: the morning and we won't be able to go, so
16:51
Speaker 2: let's just get there. The warter are lovely. They all
16:55
Speaker 2: at this. They know us, so they always find space
16:59
Speaker 2: for us. Like I got back and I got his
17:02
Speaker 2: like favorite blanket. He was in his pajamas. I put
17:04
Speaker 2: him in a onesie, got his blanket and I think
17:08
Speaker 2: I had what No, that was it. There was no
17:12
Speaker 2: change of clothes, I know nothing. He had like some
17:14
Speaker 2: sacks and some toys in a book a grappolo, which
17:17
Speaker 2: is our hospital book. Off we go fast the hospital
17:22
Speaker 2: and we see this man in out of hours clinic
17:24
Speaker 2: and he's like, I don't care that your son's in pain.
17:28
Speaker 2: Why is his tummy like that? And I was like, oh, no,
17:30
Speaker 2: like he puwed two days ago. This is this is
17:33
Speaker 2: a good tummy for him. And the guy was like,
17:37
Speaker 2: I can't let you go. He was like I don't
17:40
Speaker 2: I'm not bothered about the fact he's in pain. We
17:42
Speaker 2: can make pain go away. And he was like I
17:43
Speaker 2: can't let you leave with a tummy like that. And
17:46
Speaker 2: I don't know who this man was. I've never seen
17:48
Speaker 2: him again. He was some random amount of our deep
17:52
Speaker 2: at the hospital and he was like, you're going to
17:55
Speaker 2: stay up on the ward and I was like, okay, fine,
17:57
Speaker 2: so off I go up to our normal ward, like
17:59
Speaker 2: hi everyone, and we were there, I think for about
18:05
Speaker 2: a week with them again, trying to get poo out
18:08
Speaker 2: of him, trying to find a bed for him somewhere else.
18:11
Speaker 2: And Natasha, the original gastro lady, came back in and
18:16
Speaker 2: was like this is Jasper right and I was like, yeah,
18:20
Speaker 2: like it is. And she was like the Hushbrungs kid
18:22
Speaker 2: and I was like, well yeah, but they said it
18:24
Speaker 2: wasn't hushbrung She was like, he has Hirshbrungs. She was like,
18:28
Speaker 2: every part of my being, I think they got it wrong.
18:32
Speaker 2: And she was like, right, we're not going to Brighton again.
18:35
Speaker 2: Let's find you a new hospital. I was like, oh okay,
18:40
Speaker 2: And this went on and they were managing his pain
18:42
Speaker 2: and trying to I think he was pooing. Sometime. They
18:46
Speaker 2: gave us blessed and they gave us lactulos. I was like,
18:48
Speaker 2: I'm darling, I think that's a bit gentle for what
18:50
Speaker 2: we need. But thanks. But eventually, like he would sometimes
18:54
Speaker 2: coo and like when they were rock hard, I was
18:56
Speaker 2: getting the nurses and the pediatricians in and being like this,
19:00
Speaker 2: I literally pull it out like I don't know what
19:02
Speaker 2: to do, and they were like pull it out, like
19:05
Speaker 2: do whatever you need to do to get this kid
19:07
Speaker 2: more comfortable. Then we couldn't get a bed for ages,
19:12
Speaker 2: and I basically my kind of funny, easy going demeanor
19:16
Speaker 2: was slightly deteriorating and I just like crying at them
19:20
Speaker 2: and my dad at this point, and this now CAP
19:24
Speaker 2: be out to this is I totally don't agree with this.
19:28
Speaker 2: That my dad emailed our MP, his MP for his
19:31
Speaker 2: local area, who happens to be Jeremy Hunt, and emailed
19:38
Speaker 2: him and was like, this child is in your constituency.
19:42
Speaker 2: This is where we're at with it. He's really unwell.
19:45
Speaker 2: We need a bed. Can you do something and an
19:49
Speaker 2: hour and a half later we were being them up
19:51
Speaker 2: to Saint George's and I was like, in no circumstance
19:57
Speaker 2: should this have been our way to Saint George's, like,
20:01
Speaker 2: and it kind of pained me that. I'm very grateful
20:06
Speaker 2: that we were helped, but we should have been helped
20:10
Speaker 2: without that. That's my caveat for that, and we'll move on.
20:15
Speaker 2: The opera went that Georgia's. We At this stage, Jasper
20:19
Speaker 2: was being thick. He had been nil by mouth for
20:21
Speaker 2: the whole week, because they were like, he'll go into
20:24
Speaker 2: surgery as soon as we get there, so let's just
20:26
Speaker 2: keep him niel by mouth. So we got to St George's,
20:29
Speaker 2: which is obviously a very busy London hospital, and they
20:32
Speaker 2: put us in a and E and I was like, like,
20:36
Speaker 2: he needs to go on the ward. There's a bed
20:38
Speaker 2: for us. We know there's a bed. And he hasn't
20:41
Speaker 2: eaten in like a week now, he's kneel by mouth,
20:44
Speaker 2: he's been on IV. We haven't got our IV with
20:47
Speaker 2: us because we drove stupidly instead of going in an ambulance,
20:51
Speaker 2: and he had just been being sick on me constantly,
20:53
Speaker 2: so I was covered in sick he was covered in dick.
20:56
Speaker 2: It was like gone midnight. I was holding him in
20:59
Speaker 2: a really big he does to n any and I
21:02
Speaker 2: was just like, I was also eight months pregnant. Oh.
21:09
Speaker 2: They were like they were literally like, oh shit, she's
21:12
Speaker 2: either gonna give birth out stressed, like she's also incredibly
21:16
Speaker 2: uncomfortable because I'm popping up a two and a half
21:17
Speaker 2: year old on my pregnant eight month belly covered in sick.
21:21
Speaker 2: My husband's trying to like help, but Jasper's very much
21:23
Speaker 2: wanted mummy. And at this stage, I'm like whatever, I
21:27
Speaker 2: feel like I've you know, died anyway. And we weren't
21:32
Speaker 2: being seen in A and E and we went through
21:35
Speaker 2: the bit when they first talked to you. I can't
21:38
Speaker 2: remember what it's called triage, the rent through triage and
21:41
Speaker 2: they put it back and I was like, we don't
21:43
Speaker 2: need to be here, like there is a bed they
21:44
Speaker 2: know we're coming, Like why are we still in here?
21:47
Speaker 2: And again my like chilled out, don't worry, like we
21:49
Speaker 2: don't want to be getting anyone's way. That totally left
21:52
Speaker 2: the building and I literally googled the children's ward. I
21:56
Speaker 2: rang them and was like, have you got a bed
21:58
Speaker 2: for Jasper Davis and they were like yeah, yeah, well
22:01
Speaker 2: you know we're expecting him to do. And I was
22:03
Speaker 2: like fine, picked up my sicky child and I marched
22:07
Speaker 2: up to the ward walked him and they were like
22:12
Speaker 2: what are you doing, Like you need to wait back
22:14
Speaker 2: in a and E for us to come and get you,
22:17
Speaker 2: like you need to be seen by our registrant there.
22:20
Speaker 2: And I literally stood there, pregnant, covered in sick and
22:22
Speaker 2: burst into tears. I then just sat on the floor
22:25
Speaker 2: and I was like I'm not moving. Also, Saint George's
22:28
Speaker 2: is very big, and it did taken me quite a
22:30
Speaker 2: while to waddle my child up to the ward, so
22:32
Speaker 2: I was like, there is no way physically I can
22:35
Speaker 2: carry him back down to carry him back up again.
22:38
Speaker 2: My husband now had totally lost his sense of humor
22:41
Speaker 2: and he is more on me mean sider than me,
22:46
Speaker 2: so I was just like sat there crying. I was
22:49
Speaker 2: like I can't, like I rang you and you said
22:53
Speaker 2: you've got a bed and they were like yeah, but
22:54
Speaker 2: we thought you were the nurse and I was like, well,
22:56
Speaker 2: I'm not a nurse. So then I think they felt
22:59
Speaker 2: a bit for me, and the registrar was like, I
23:02
Speaker 2: will see them here like this is fine, and she
23:07
Speaker 2: we went on this ward and she put her finger
23:09
Speaker 2: up his bottom and she was like, I just want
23:11
Speaker 2: to see what I could feel. And I was like,
23:14
Speaker 2: and so she did, and she put her finger up
23:16
Speaker 2: his bottom and pulled her finger out and two point
23:19
Speaker 2: five kilograms of poo came out all over me, all
23:23
Speaker 2: over her, all over the walls. So yeah, we were
23:27
Speaker 2: all totally covered in poo. She was mortified because she
23:32
Speaker 2: was like, if I had any inclination that this is
23:36
Speaker 2: what would happen, I would have put us in a
23:38
Speaker 2: treatment room. And we were on a wa wash with
23:40
Speaker 2: all of these other kids, and honestly, like those blue
23:43
Speaker 2: sheets of privacy covered in poo and all of us
23:49
Speaker 2: where we had gone to A and E. He had
23:50
Speaker 2: been weighed so straight away afterwards she was like, let's
23:54
Speaker 2: weigh him and it was two and a half kilograms
23:55
Speaker 2: of poop. She our registrar Kerry was furious with Brighton.
24:03
Speaker 2: She is like red in the face, covered in pooh,
24:06
Speaker 2: angry storms off. I can then see her because we're
24:09
Speaker 2: right by the exception. The hush calls up Brighton, She's
24:14
Speaker 2: going mental down the phone to them, being like this
24:19
Speaker 2: child just drive you neglected him like screaming down the
24:24
Speaker 2: phone at Brighton, and me and my husband, still covered
24:27
Speaker 2: in pooh, were like tocy, shell shocked by everything. Just
24:31
Speaker 2: the meanwhile happy as Zarry. Obviously, the poor boy felt
24:35
Speaker 2: so great. I've got this video of him and he's
24:39
Speaker 2: isn't happy and he's just like the like the midst
24:44
Speaker 2: of the night on this ward poo everywhere and he
24:47
Speaker 2: is thrilled that obviously, like he doesn't feel terrible. The
24:51
Speaker 2: whole thing was mad. So we were then at Saint
24:54
Speaker 2: George's for another week and then they were like, right,
24:58
Speaker 2: he's you know, we're pretty sure, i just got a
25:00
Speaker 2: hushbrung We're going to do a biopsy.
25:03
Speaker 3: He's going to go into surgery. Good thing he's nailed
25:04
Speaker 3: my mouth still, the poor kid hasn't eaten and it
25:07
Speaker 3: feels like an eternity. And he went in the surgery
25:13
Speaker 3: and they said they were doing the biopsy and if
25:15
Speaker 3: they found that he did have hushbrungs, they would go
25:19
Speaker 3: ahead and give him a stoma then and there I
25:21
Speaker 3: was like, yeah, yeah, it's behind like I had absolutely
25:23
Speaker 3: done bloody idea.
25:24
Speaker 2: What Stonma was. He gave me a bit of paperwork
25:26
Speaker 2: to sign. I blindly signed it because that's just who
25:28
Speaker 2: I am as a person. Don't get me to sign anything.
25:31
Speaker 2: And I after like, we had the beeper for this surgery,
25:37
Speaker 2: and I was a bit like, you know, you have
25:39
Speaker 2: to kiss them and say goodbye just in case they
25:41
Speaker 2: don't come back round. And you're like, oh, this is
25:43
Speaker 2: a bit more serious than I thought. And when he
25:47
Speaker 2: came out, bless him, he was all obviously tody out
25:49
Speaker 2: of it and he had the stoma, and I was like,
25:53
Speaker 2: what the fuck is that? And they were like, oh,
25:56
Speaker 2: this is the stonma, this is what we talked to
25:57
Speaker 2: you about. And I was just kind of looking at
25:59
Speaker 2: them blankly, like I have not slept, I am heavily pregnant,
26:02
Speaker 2: and I have no idea what you're talking about. And
26:04
Speaker 2: now my son has a bag attached to him and
26:06
Speaker 2: like a little red thing, and bless them, they were like, right,
26:11
Speaker 2: you are not changing a stoma bag until you can think.
26:15
Speaker 2: We're going to introduce you to our stomacare people. I
26:18
Speaker 2: was like, okay. In the meantime, like texting my parents
26:22
Speaker 2: being like he's got a fucking stoma, Like what is
26:24
Speaker 2: going on? My dad and my parents who are busy being.
26:27
Speaker 4: Older and wiser like Sticker's great, don't worry, And me
26:32
Speaker 4: and my husband then learned how to be stoma parents.
26:38
Speaker 2: And an annoying thing is, and I don't know if
26:40
Speaker 2: this has changed over the years, is that you either
26:43
Speaker 2: have like Premi and baby stoma bags or you have
26:47
Speaker 2: adult there is nothing in between. So we had an
26:51
Speaker 2: adult back on a two and a half year old,
26:55
Speaker 2: which meant that we were very leaky, nothing of a
27:00
Speaker 2: fit because obviously he's like this big and the stoma
27:03
Speaker 2: bag like this big. So we had quite a lot
27:07
Speaker 2: of teething troubles with it. But he was a different
27:12
Speaker 2: child and within two three months, I would say he
27:17
Speaker 2: was three inches taller, he was talking, he was playing,
27:21
Speaker 2: he was it was as if he had had a
27:24
Speaker 2: total different personality chance plant. He was energetic, he was
27:28
Speaker 2: like a toddler, and it was such an insane step
27:34
Speaker 2: from where he was. And I remember Kerry saying a registrar,
27:39
Speaker 2: she was like, when you're really poorly, your body tries
27:42
Speaker 2: to deal with one thing at a time, and because
27:45
Speaker 2: it was constantly trying to get like Pooh for him,
27:49
Speaker 2: it didn't give him the attention to help him grow,
27:52
Speaker 2: to help his speech, to help all of those things.
27:54
Speaker 2: His body was whole, but was trying to get him
27:58
Speaker 2: to go to toilet that Honestly, the next three months
28:02
Speaker 2: was just mad, like he was. Yeah, it was amazing,
28:07
Speaker 2: and it was we were supported. He was at nursery
28:11
Speaker 2: now and he was supported by like the most incredible
28:14
Speaker 2: nursery team who were just on it with him. And
28:18
Speaker 2: he had prolapses constantly, which when he really couldn't communicate still,
28:25
Speaker 2: it was really hard, like I didn't know if they hurt,
28:27
Speaker 2: I didn't know. He would just say big red, So
28:30
Speaker 2: we called his stoma red and it was little red,
28:32
Speaker 2: and then when he prolapsed, it was big red. And
28:34
Speaker 2: that's how he would communicate it to us. And I'd
28:37
Speaker 2: get a call from nursery being and Hannah and Jasper's
28:40
Speaker 2: gone very quiet and he's just sat down and he's
28:42
Speaker 2: just saying big Red and mummy, and I was like,
28:45
Speaker 2: I'm coming, like there's nothing you can do about this.
28:47
Speaker 2: And we had maybe three trips to hospital with his
28:50
Speaker 2: prolapses when I was like his intestines hanging out of him,
28:54
Speaker 2: like what the hell is this? Nobody warned us about this,
28:57
Speaker 2: and then eventually I realized they're not going to do
28:59
Speaker 2: it anything about it anyway. And our friend, he was
29:03
Speaker 2: a nurse as well, happened to care for elderly people
29:07
Speaker 2: who quite often have stonmas. So she was like ring me,
29:11
Speaker 2: like I'm all over this, and she was brilliant with
29:13
Speaker 2: like hips and tricks and no, wrap it in sugar,
29:17
Speaker 2: like put sugar on your goareze and wrap it around
29:19
Speaker 2: and it will suck the liquid out and then it
29:21
Speaker 2: will shoot itself back in. So all of this stuff
29:24
Speaker 2: we would to get the prolapses back in. But bless
29:30
Speaker 2: him when it then meant that, like on a playground,
29:32
Speaker 2: he wouldn't run around or play too much because if
29:35
Speaker 2: he was too energetic, he would then kind of be
29:37
Speaker 2: punished with a prolapse. So he was still physically not
29:43
Speaker 2: a rough and tumble kid, let's say. And then yeah,
29:48
Speaker 2: then he had it reversed just before starting school, so
29:51
Speaker 2: he had a few Like I call it the blue
29:54
Speaker 2: dye test. I don't know what it is technically, when
29:56
Speaker 2: they put the blue in and they see where it
29:59
Speaker 2: travels through his testing.
30:00
Speaker 1: Yeah, is he can't remember that iodime?
30:03
Speaker 2: Is it iodim? I think it might be. I live
30:06
Speaker 2: like the blue stuff like to the BlueStars. Yeah, so
30:11
Speaker 2: he had that and basically where his in Testine was
30:16
Speaker 2: so swollen with his two and a half kilogram of
30:18
Speaker 2: the pood that he had been carrying for two and
30:20
Speaker 2: a half years, and they said that basically, you're in
30:23
Speaker 2: Testine's meant to be no bigger really than a fifty
30:26
Speaker 2: ppiece and his you could have fit in cans down.
30:30
Speaker 2: And they were like the fact that his bow hasn't
30:32
Speaker 2: already burst and him had sepsis, they were like, I
30:35
Speaker 2: do not understand how he is still live and kicking.
30:41
Speaker 2: And that's why Kerry the Registar was so angry because
30:44
Speaker 2: she was like, this bowl is going to burst at
30:47
Speaker 2: any second. And that is entirely because you guys decided
30:51
Speaker 2: not to do a biopsy when he was five months old.
30:54
Speaker 2: So he has now had two years more of not
30:59
Speaker 2: going to the toilet, being an agony of stunted growth,
31:02
Speaker 2: all of these things because you made that decision on
31:04
Speaker 2: the fact he has a fucking PAM and that he's happy,
31:07
Speaker 2: like he's a lovely boy. Like that's not medically this
31:12
Speaker 2: having five suppositories up five months old and them not
31:15
Speaker 2: poeing every bit of a red flag, but hey, give
31:18
Speaker 2: him sugar apple juice and he'll poo like yeah, bullshit.
31:24
Speaker 2: So then we had it reversed just before the Valentine's
31:28
Speaker 2: Day and other sebry.
31:29
Speaker 1: God, what is happens in February for you?
31:33
Speaker 2: Risterio is not a great mic for me, and I
31:37
Speaker 2: remember this song. So it was just before Valentine's Day
31:39
Speaker 2: and he had his stoma reversed and they were amazing
31:45
Speaker 2: at Saint George's, Big up Saint George's. They had been
31:47
Speaker 2: nothing but absolutely incredible with him from the minute we
31:52
Speaker 2: saw them up like we're still with them now, they're
31:54
Speaker 2: absolutely fabulouss And we went in they reversed. It went
31:58
Speaker 2: really well, really smooth. He recovered really quickly. We had
32:02
Speaker 2: a few hairy nights with him coming off of his
32:07
Speaker 2: like pain relief and all of that stuff, and he
32:10
Speaker 2: was hallucinating and it was a bit of a wild ride,
32:12
Speaker 2: but nothing that they could have done, like they were
32:15
Speaker 2: just doing their best to manage his cane. And then
32:21
Speaker 2: we get out of hospital back home, it has his
32:24
Speaker 2: first night in bed. I'm like, ah, I remember I
32:27
Speaker 2: was documenting on Instagram being like, oh my god, like
32:30
Speaker 2: we're home. He hasn't got astona. He's doing really well.
32:33
Speaker 2: We're so happy Valentine Stage tomorrow, you know, John's off,
32:39
Speaker 2: We're going to do something as a family, like, oh,
32:42
Speaker 2: this is so great. And we woke up in the
32:44
Speaker 2: morning and I went and got here and he was
32:47
Speaker 2: like having his breakfast and I was like, oh, this
32:49
Speaker 2: is weird. And I went upstairs and I'd seen that
32:52
Speaker 2: in the night he had obviously been sick on his
32:54
Speaker 2: pillow but hadn't woken up. Looked like, let us know,
32:58
Speaker 2: and I was like, oh shit, Like he's been sick
33:01
Speaker 2: on me again. It's always me and he's been sick
33:05
Speaker 2: in his bed in the night and we didn't know.
33:06
Speaker 2: And I was like, oh, this doesn't sit too well.
33:10
Speaker 2: And then I was like, have some water. And then
33:12
Speaker 2: he was sick again, and I was like called up
33:15
Speaker 2: Saint George's and luckily, because we'd literally just left there,
33:19
Speaker 2: they knew who we were and the surgeons were doing
33:21
Speaker 2: a round. So we spoke to one of Miss Parker,
33:24
Speaker 2: who's our surgeon, one of her team, and I was like, Hi, Hi,
33:29
Speaker 2: it's daff with mam. He was sick in the night
33:32
Speaker 2: and he can't hold anything down. He keeps being sick. Man.
33:36
Speaker 2: I can't remember what his name was. He was like
33:39
Speaker 2: the deepest boys I've ever heard, and he just went,
33:42
Speaker 2: you need to go to Royal Surrey. You don't have
33:45
Speaker 2: time to get to Saint George's. I will call ahead,
33:49
Speaker 2: go now. And I was like, boom, So we're all
33:53
Speaker 2: still covered in sick in our pajamas. And I was like,
33:56
Speaker 2: if he says we haven't got time to get to
33:58
Speaker 2: Saint George's, we have got to fly to Guildford. So
34:02
Speaker 2: my husband and an excuse really to break speed them.
34:04
Speaker 2: He's all over it. So he zoomed us there, threw
34:07
Speaker 2: us out at the A and E entrance while he
34:09
Speaker 2: went and parked. They were standing outside A and E
34:12
Speaker 2: waiting for us. Put Jasper on a bed straight into
34:16
Speaker 2: A and E and they were like shaking trying to
34:20
Speaker 2: get like his IV drips the candulas in because obviously
34:25
Speaker 2: where he had had surgeries, he had holes all over
34:27
Speaker 2: him the por kid and they were a bit like
34:31
Speaker 2: they were trying to find his veins and they couldn't.
34:33
Speaker 2: And I was seeing them like visibly shake trying to
34:36
Speaker 2: do it. And I was like, okay, my kind of happy,
34:39
Speaker 2: go lucky exterior covered and Stick has kind of gone now,
34:43
Speaker 2: and they moved us up into the the treatment room.
34:47
Speaker 2: On the wall there's right opposite reception, and I later
34:50
Speaker 2: found out the closer you are to reception, the more
34:53
Speaker 2: that concerned they are about you. And he was right
34:57
Speaker 2: opposite perfection with the doors open, and I've got this
35:01
Speaker 2: picture of him, like keep on my phone for like
35:03
Speaker 2: a reality check of how ill the child can be.
35:05
Speaker 2: And he literally looks like Day of the Dead, Like
35:07
Speaker 2: his eyes are all shot. He's so pale, and he's
35:11
Speaker 2: got like the dark all around his eyes, like he
35:14
Speaker 2: looks like a skeleton. And I was like, oh, hold on,
35:18
Speaker 2: like now visibly he's not this like tanned, beautiful boy,
35:22
Speaker 2: Like he literally looks kind of dead. And they were
35:26
Speaker 2: coming in and none of them could get the canular
35:29
Speaker 2: in and they were shaking. He had holes everywhere, and
35:31
Speaker 2: I was a bit like, fucking give it to me
35:33
Speaker 2: and I'll jam it in his arm, like come on, team,
35:35
Speaker 2: And they ended up getting this other lady who was
35:38
Speaker 2: one of the adults. She wasn't a peede. She came in.
35:41
Speaker 2: She was like, you don't need to know who I am.
35:42
Speaker 2: You literally never gonna see me again, we need to
35:44
Speaker 2: get this canula in and she just jammed it in,
35:47
Speaker 2: attached the IVS, jammed in another one, and then just
35:52
Speaker 2: left her. I have no idea who she was. And
35:54
Speaker 2: they were like, right, okay, we don't know what it is.
35:58
Speaker 2: We've got Saint George's who were on the phone into
36:00
Speaker 2: them constantly basically telling the team in Surrey what to
36:04
Speaker 2: do because he's still not five so they still can't
36:07
Speaker 2: touch him. And yeah, they were like, we don't know
36:11
Speaker 2: what it is, so we're basically killing an ant with
36:14
Speaker 2: a tank, like we don't know what this is, but
36:17
Speaker 2: if it is bad, like, we don't have time. So
36:21
Speaker 2: he had that a day of IV's and whatever the
36:26
Speaker 2: infection was, we don't know if it was the introcolit
36:28
Speaker 2: this thing or not, but they smashed it out of
36:32
Speaker 2: him and then we went in the next day for
36:34
Speaker 2: some more and then they signed him off. They were like, yeah,
36:37
Speaker 2: whatever it was, like, we got rid of it. But
36:39
Speaker 2: that was that was a wild ride. And again Natasha
36:43
Speaker 2: for the diet at the pediatric Gestro, came back in
36:47
Speaker 2: and was like, Jasper, we like this since she was like, yeah,
36:51
Speaker 2: we didn't know what it was. But Saint George's basically
36:54
Speaker 2: said we have to try and combat any infection that
36:58
Speaker 2: it could be all at the same time, because you
37:01
Speaker 2: can't wait with it. So that was Harry. And then
37:04
Speaker 2: again historically when I got the notes back, he had
37:08
Speaker 2: ftassium levels or something were like well below what is
37:12
Speaker 2: safe and he was knocking on death's door, so please
37:17
Speaker 2: that we made it for another day, and then lockdown happened.
37:21
Speaker 2: So he started school, no stoma, no laxatives, which we
37:27
Speaker 2: should have had, but lockdown, and yeah, since then he
37:33
Speaker 2: has We went back and he went onto laxatives. So
37:37
Speaker 2: he had twelve mother cale when we first got on
37:40
Speaker 2: because they were like, oh yeah, we've got a bit of
37:41
Speaker 2: a backlog. This is are bad and COVID and video
37:45
Speaker 2: appointments aren't that helpful when your kids just had surgery.
37:48
Speaker 2: And then more recently that has just he's still on
37:51
Speaker 2: mother call, but it's stopped working a little bit and
37:54
Speaker 2: he's had miring and they have now we do the washouts.
38:01
Speaker 2: The Harry literally got paperwork here because we've just had it.
38:06
Speaker 2: Perry what it is the thing where we put it
38:12
Speaker 2: up his bum and squat water. So he's doing that
38:14
Speaker 2: every day to combat I think basically where his bow
38:19
Speaker 2: had the ability to expand so much, although it had
38:22
Speaker 2: shrunk down to a good size. It's like muscle memory,
38:25
Speaker 2: it knows how big it can get. So although his
38:28
Speaker 2: poop was passing with the mobicle, so he's having two
38:30
Speaker 2: mobiicle a day, and he would poop morning, lunch, and
38:34
Speaker 2: evening and was fine all the poop that was lining
38:37
Speaker 2: the sides over like the past few years. Because he's
38:39
Speaker 2: eight now, so since he was about four, he's been
38:44
Speaker 2: lining his slightly baggyear in testine with poop. So now
38:49
Speaker 2: he's having these wash out things, which it was weird
38:54
Speaker 2: because obviously he's now eight and when you're two kind
38:57
Speaker 2: of get away with doing more stuff without them really
38:59
Speaker 2: no single remembering, whereas he had to talk to him
39:02
Speaker 2: about it, and obviously for him it's very alien having
39:04
Speaker 2: something stuck up his thumb where I'm thinking, babes, like
39:07
Speaker 2: my finger's been up your barm, I've had a hair
39:08
Speaker 2: get up your thumb. You've had the end of a
39:10
Speaker 2: biro up your barm, like the things that have been
39:12
Speaker 2: up your bum. Try and get pro outcreed. This thing,
39:15
Speaker 2: this lovely medical thing is great like that. Actually he's
39:19
Speaker 2: been absolutely brilliant, and he is so much happier and content,
39:25
Speaker 2: and also because he knows he's not gonna then have
39:27
Speaker 2: pooy accidents at school and stuff, so he's he's compete,
39:31
Speaker 2: very proet. And also he gets to play on Nintendo
39:33
Speaker 2: half an hour while well doo thumbs out, so he
39:36
Speaker 2: sees that there's a bit of a win. But yeah,
39:39
Speaker 2: that's kind of his summary where he's at.
39:42
Speaker 1: Yeah, wow, thank you ever so much for that.
39:46
Speaker 2: That's smile ride.
39:48
Speaker 1: What a uh story. And just as we have a
39:52
Speaker 1: sort of a fever, that's a fever hits left here. Wow.
39:57
Speaker 1: I so many questions, which one to ask? I guess
40:03
Speaker 1: one thing that I will say in terms of the future,
40:09
Speaker 1: what do you see sort of in in Jasper's future?
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Speaker 2: I would say the life of a normal child. To
40:19
Speaker 2: be honest, I think he'll always be medicated in some way,
40:24
Speaker 2: whether it's uh, the waterhop his bum or the laxative.
40:28
Speaker 2: He was short segments, so twenty five percent was removed,
40:32
Speaker 2: and he is definitely on the constipation side of things.
40:37
Speaker 2: But like, he's super tall now, he's one of the
40:39
Speaker 2: tallest in his classes. A summer born, Like he's back up,
40:42
Speaker 2: he's totally flourishing. He's like the fortiest kid I've ever met.
40:45
Speaker 2: He's got a rippling six stack, which was always a thing.
40:48
Speaker 2: They were like, oh, if you've got hirsch bruns, you
40:49
Speaker 2: can't do stiff up. It's like, watch my kid. He's
40:53
Speaker 2: mad athlete and actually, like other than at school, constantly
40:58
Speaker 2: reminding them that he can go to the it whenever
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Speaker 2: he needs to and he does not need to wait
41:02
Speaker 2: for a bloody task. And other than that, people wouldn't know.
41:06
Speaker 2: So like his friends at school that weren't with him
41:09
Speaker 2: at his first school, they don't know he does swimming.
41:14
Speaker 2: He's obviously got scars. He's never ever ever had any
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Speaker 2: kind of I was really worried about bullying and stuff. No,
41:20
Speaker 2: not at all. He's very articulate with why he's got
41:24
Speaker 2: the scars. What Hirshprungs is. They're learning about his dietary,
41:29
Speaker 2: like the intestines and stuff, and he was like, I
41:31
Speaker 2: haven't got my intestin myself. Didn't push my food down, like,
41:34
Speaker 2: didn't a la so on it. So I to be honest,
41:37
Speaker 2: I do see like obviously with Hirshprungs, it throws up
41:40
Speaker 2: wild cards every now and again. But I don't foresee
41:46
Speaker 2: his like I don't see anything bad about his future.
41:49
Speaker 2: Like every curb all we get is dealt with and
41:52
Speaker 2: we kind of take it. He takes it in his
41:53
Speaker 2: stride and and there's no he's not behind on anything anymore.
41:59
Speaker 2: He's kind of of he's where he should be. Half
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Speaker 2: an eight year old lovely.
42:05
Speaker 1: And you mentioned taking lots of curveballs. I think you've
42:09
Speaker 1: taken every type of curve ball that could possibly ever,
42:12
Speaker 1: ever have been thrown at you, all at the same time.
42:17
Speaker 2: So that's weird. Like things like when you got kids
42:21
Speaker 2: and they get the DMV bug, which is like when
42:23
Speaker 2: you get po and diarh forty hours my my non
42:26
Speaker 2: Hirshprungs boy forty eight hours on the dark nothing Jasper.
42:31
Speaker 2: It's like two weeks. Then it's like, oh my god.
42:33
Speaker 2: Like things like that, you're like you get reminded that
42:37
Speaker 2: you know, Hirshbrungs isn't super normal and it does just
42:41
Speaker 2: like do weird stuff. And once you've done one of
42:44
Speaker 2: everything that hushbungs S throws up, you feel like, okay,
42:47
Speaker 2: like come on, what's next, I'm ready.
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Speaker 1: Fantastic. Well, thank you ever so much for coming on
42:55
Speaker 1: for sharing Jasper's story. It's quite quite remarkable. And again
43:02
Speaker 1: just a k I guess to this as well. We're
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Speaker 1: recording this pre Christmas and we'll go out in January,
43:10
Speaker 1: and we are coming up to a February, so I.
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Speaker 5: Wish you and your the very best February. Hi, as
43:22
Speaker 5: we're only as this comes out, we're only about half
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Speaker 5: a month away from February, so I do will let
43:28
Speaker 5: you know, yes, I do wish you all the best February.
43:35
Speaker 1: Thank you, Heathern. Thank you so much for coming on,
43:38
Speaker 1: and I wish you all the best in the future.
43:40
Speaker 2: Thank you for having us.
43:45
Speaker 1: Thank you for listening to the podcast. Find us on
43:48
Speaker 1: Instagram Tom's Underscore Hirshbrung's Underscore podcast. Listen to previous episodes
43:54
Speaker 1: on Spotify by searching Tom's Hirshbrung's podcast.
44:09
Speaker 2: Inclus