Latest / Living with Parkinson’s | Bryce Perry / Parkinson’s Rules: When Breaking Them Is Actually Good for You

Transcript

Parkinson’s Rules: When Breaking Them Is Actually Good for You · Living with Parkinson’s | Bryce Perry

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  Sometimes the smartest thing I do for my Parkinson's is the
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  exact opposite of what I'm told to do.
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  You ever have those days where you just think, you know what?
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  Not today. Parkinson's.
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  I feel like breaking the rules. You know what?
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  Maybe you skip physio. Maybe you eat the doughnut.
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  Maybe you sit on the couch instead of walking circles
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  around it. Yeah, that type of rebellion.
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  Well, here's the truth. Sometimes breaking the rules is
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  the only thing that keeps us human.
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  So today we're talking about the Parkinson's Rebellion.
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  Why it's OK, sometimes necessary to bend the rules, skip the
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  perfection and give yourself permission to live again.
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  And I promise by the end you're going to see that a little
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  rebellion might actually be the most therapeutic thing that you
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  can do. Welcome to Living with
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  Parkinson's the good the. Bad and the reality.
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  Real talk, real life, real community with Bryce Perry.
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  Let's begin. Everyone, welcome back to Living
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  with Parkinson's, the good, the bad and the reality.
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  If you're new here, I'm Bryce and around here we we talk about
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  the real stuff. We don't sugarcoat Parkinson's
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  and we don't pretend everyday is motivational poster material.
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  If you like honest talk, a little laughter and the and the
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  kind of hope that actually holds up in real life, then hit that
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  subscribe button. It's free.
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  It helps the channel grow. It tells YouTube that
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  Parkinson's stories matter. OK, it's a little rebel time.
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  If you feel like being a rebel today, say hashtag rebel.
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  Hashtag rebel in the comments and we'll get going here.
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  You know, living with Parkinson's comes with a lot of
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  rules. Take your meds exactly on time,
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  exercise every day, eat clean, avoid stress, sleep well, stay
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  positive. You know that's 6 rules before
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  breakfast. And sure, they're all important.
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  But here's the problem. When life becomes one big
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  checklist, you stop living and you start managing yourself.
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  You know, I used to think discipline would save me until
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  it actually started to exhaust me.
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  Because when every choice feels like an obligation, you lose
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  that little spark that makes life worth doing.
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  And there's actual science behind this.
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  You know your brain needs novelty.
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  Dopamine isn't just a movement chemical, it's also the
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  curiosity chemical. When every day looks the same,
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  dopamine production actually drops further.
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  So a little rebellion, something unexpected can jump start
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  motivation. Wow, drop a comment.
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  If you've ever felt like doing you ever felt like doing
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  everything right actually made you feel worse.
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  You're not lazy, you're human. Love to hear that in the
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  comments. Love to hear that in the
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  comments. And if you've been there, done
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  it, just put hashtag. Doing it right is like doing it
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  wrong. OK, now there is a good kind of
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  rule breaking. There's actually two kinds of
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  rebellion, the kind that hurts you and the kind that heals you.
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  The bad rebellion is when you ignore meds, push your limits,
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  or pretend symptoms don't exist. The good rebellion is when you
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  break the mental rules that keep you trapped.
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  It's like deciding today I'm not tracking steps, but I'm going to
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  track smiles. Or I'm skipping therapy but I'm
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  going to watch a comedy instead. Or I'm not cleaning the kitchen,
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  that's a good one to break, but I'm actually going to dance in
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  my kitchen because sometimes joy is the treatment.
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  And guess what? There's science behind that too.
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  Did you know that positive emotions release endorphins that
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  help regulate pain, mood, and even motor function?
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  So rebellion isn't neglect, it's neurological self-care.
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  OK, in the comments, what's 1 good rebellion you've pulled off
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  lately? Share it.
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  And guess what? You get to share it guilt free.
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  OK, let's get personal. Let me tell you about one of my
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  rebellions lately that backfired and what it taught me, which is
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  way more important than what it actually what actually happened.
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  But you know, a few weeks ago I was at an event, I was
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  exhausted, jet lagged and I was running on fumes.
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  Every voice in my head said, go to bed early, hydrate, follow
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  the routine. And another voice, the
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  rebellious 1, you know that one said, Nah, you've earned it.
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  You've earned some coffee and some late night hockey
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  highlights. So I stayed up.
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  Now Fast forward a few hours and that led to the the hotel
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  incident. And if you're a regular viewer,
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  you've heard the story. You've heard it last week, I
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  think I told you. 2 guys shaking me awake.
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  Carmen on speakerphone, alarms blaring.
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  Lesson learned. Oh, yeah.
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  Oh, yeah. But also, I learned that
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  rebellion comes with responsibility.
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  See, breaking rules doesn't mean throwing them away.
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  It means knowing which ones serve you and which ones will
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  suffocate you. How about you?
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  What's one rule that you realize that you were following just
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  because you felt you had to, not because it helped?
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  Put that in the comments. That will help somebody, I
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  promise you. Now there's a thing called that
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  I call actually the power of intentional rebellion.
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  OK, Intentional rebellion means choosing joy on purpose.
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  It's saying I'm skipping the workout because I need rest, or
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  I'm eating dessert because I've been good all week, or I'm
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  ignoring my To Do List because life's short.
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  That little spark of permission resets your brain's chemistry.
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  It tells your nervous system, hey, we're still in charge here.
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  And you'll never believe it, but there's science behind that too.
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  And if you, if you're surprised by that, give a, give this thing
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  a thumbs up right here. All right, Well, this what, this
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  is what it says. Studies show that perceived
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  control lowers cortisol and improves motor performance in
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  Parkinson's patients. English translation.
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  A sense of autonomy literally makes your body move better.
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  That one. That blows me away.
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  So give yourself permission right now.
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  Right now, what are you going to rebel against this week?
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  Just pick something. One thing, put it in the
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  comments. And Speaking of rebellion, care
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  partners have their own version of it.
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  And that leads us right into Carmen's care partner Corner.
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  And let's hear and let's head into and hear what Carmen has to
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  say about this topic. Here's the thing.
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  Their partners get rule overload too.
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  We're told how to support, how to monitor, what to encourage,
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  what to say, what not to say. And it gets exhausting.
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  Sometimes my rebellion is just saying I'm not fixing it.
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  Today I let Bryce handle something his way, even if it
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  takes 10 times longer. No OK.
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  Other days my rebellion is sneaking out for coffee or
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  turning my phone off for an hour.
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  Because if if I don't rebel once in a while, I start to resent
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  the routine care partners. Give yourself permission to be
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  imperfect. Give yourself permission to
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  rebel once in a while. Your loved 1 doesn't need a
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  superhero. They need a human.
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  And sometimes the best way to love someone with Parkinson's is
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  to stop managing every moment. I almost, I almost wanted to
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  say, can I get that in writing or on video?
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  But I guess I do. I'm just teasing.
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  You see, rebellion's contagious. And in this case, that's a good
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  thing because the more human we act, the more human this disease
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  will let us feel. All right, let's end with five
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  rebellions worth trying this week, and maybe pick one.
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  Maybe pick 2 if you feel like a big rebel, real rebel, pick all
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  5. But if you can't think of them,
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  think of these ones. Number one, rest without guilt.
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  If your body says stop, then you listen.
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  Resting isn't quitting, it's recalibrating #2 laugh when it's
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  inappropriate. You spill your drink, you freeze
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  in a doorway or you drop the phone.
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  Laugh anyway. It confuses the disease and it
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  resets your brain. Here's a really good one.
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  I like this one. Number three, say no to should
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  any sentence that starts with I should drop that and replace it
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  with I choose two. All right, I should replace that
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  with I choose two. OK #4 celebrate something small.
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  Got dressed faster. Remembered your meds.
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  You know what that's worth a victory lap.
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  And you need to do that this week and #5 ask for help before
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  you desperately need it. Rebellion isn't isolation, it's
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  knowing when to surrender with style.
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  OK, which one of those five were you going to claim this week?
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  Or maybe all five? Comment below.
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  Let's start a rebellion in the comments.
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  All right, I got the prices are coming right up, but I just want
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  to say something really quick. The Parkinson boot camp, OK, it
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  sold out. We I'd sold it out.
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  It sold out right away. And we have people going now
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  into their second week taking the Parkinson's like I've got
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  Parkinson's. What now boot camp now it's not
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  just for newly diagnosed it's for anybody that wants to go
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  deeper into this. I start right from the from
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  diagnosis mindset going taking you through mindset to meds to
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  actually teaching you my exact exact way that I look for trends
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  the way I take my meds what I take how I take them anyway,
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  it's six weeks it's and you know I just have to say this.
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  It's going so well and if like if you're, if you're taking it,
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  I hope you're enjoying it. If you are, let us know in the
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  comments, let others know. But if you thought about it and
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  you didn't sign up or you're thinking about it or you're
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  looking now you want to, you want to go, something goes
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  deeper. I'm going to open up around
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  2:00. I'm going to open it up today.
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  OK. The link is in the description
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  below. Again, there'll be limited
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  capacity because I'm going to do it with you.
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  It's six weeks with me. It's recorded videos that you do
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  at your own pace during the week, right at the very
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  beginning, at the halfway mark, and at the end.
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  Every two weeks I come live with you.
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  We do a live call, just you and our group.
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  I go through questions, I talk through it, I walk you through
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  it. It's something I wish I would
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  had in the first six years of my diagnosis.
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  Anyway, I just, I just, I'm so excited by it because it's so
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  good and I took a lot of time to do this and I want you to come
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  with me. So come to boot camp Round 2
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  starting in January. But you have to reserve your
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  seat now because once they're full, they're full, OK?
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  There's only so many of me. I can't do giant groups.
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  I try to keep everything small so it's intimate so that we can
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  do this together. So you're not alone.
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  Anyway, that's just me to you. It's open.
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  It's open now. Reserve your seat.
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  You can just put a deposit down if you want, just to hold it.
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  And we get going in January. OK.
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  All right, You made it to the Brycism, so thank you for
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  sticking with me through that. So here's the Brycism for today.
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  All right? Sometimes the bravest thing you
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  can do with Parkinson's is to break the rules that everybody
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  else swears by. All right, there you go.
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  But here's your challenge this week.
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  Break one rule. Do it intentionally.
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  Eat the dessert, skip the checklist, Nap instead of
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  hustle. And then tell me how it felt.
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  Because rebellion, when done right, isn't defiance, It's self
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  respect. All right, what's your favorite
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  Parkinson rebellion? The funnier the stranger, the
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  better. Let me know because I might just
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  feature it in an upcoming episode.
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  And if you want to go deeper, you want to go harder, you want
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  to go stronger, you want to get involved, you want to get going,
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  join the inner circle. It's growing and it's growing
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  fast. But you know what?
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  There's there's solo, the solo journey, those that are doing
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  Parkinson's alone, without care partners.
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  There's a group in there now that are just talking about
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  things, discussing these podcasts after we air, there's a
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  care partners group. You name it, we got it.
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  It's growing. Come join us.
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  And if you're wondering about it and you just don't, you're not
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  sure. You're not sure, but I know
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  you're going to love it. Free trial on right now.
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  Link is in the description. Come join us.
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  And actually, I should have told you this before, but you join
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  the boot camp. You hit six months in the inner
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  circle, and you can start the inner circle even though boot
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  camp starts in January. If you reserve your seat now
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  you're in the inner circle. Second, you reserve your seat.
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  OK, All right, I drop new episodes every Tuesday, every
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  Thursday, and every Saturday at 9:00 AM Eastern.
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  Am I crazy? No, I like showing up and
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  laughing through. So you see, for me, showing up
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  and laughing through it is part of the rebellion.
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  It's my rebellion. So join me every Tuesday,
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  Thursday, Saturday. Follow the channel, subscribe to
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  the channel, give me a thumbs up, do whatever it is.
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  But I love you guys. I love you so much.
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  This community is growing and I love this community.
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  And until next time, keep showing up, you keep laughing,
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  keep rebelling, and keep doing life today.