Latest / Tom's Hirschsprung's Podcast / Episode 138 - With Kaytlin Slaughter (Part 2)

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Episode 138 - With Kaytlin Slaughter (Part 2) · Tom's Hirschsprung's Podcast

• 0:02
  Speaker 1: You are listening to Tom's Hirschsprungs podcast, a space where
• 0:05
  Speaker 1: we talk openly about living with Hirschsprungs disease. Whether you
• 0:09
  Speaker 1: live with it, care for someone who has it, or
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  Speaker 1: just want to understand more, this podcast is for you.
• 0:15
  Speaker 1: Each episode we will explore real stories and honest conversations
• 0:19
  Speaker 1: about a condition that often goes unheard. Thank you for
• 0:22
  Speaker 1: tuning in. Hello and welcome to episode 138 of Tom's
• 0:48
  Speaker 1: Hirschsprung's podcast. I'm delighted to welcome back after around, I
• 0:53
  Speaker 1: think it's about a year or so since we last
• 0:55
  Speaker 1: spoke and we're in a very different circumstances from where
• 1:01
  Speaker 1: we were last time, both I think in the the
• 1:05
  Speaker 1: medical sense and from where we were because you were
• 1:08
  Speaker 1: recording from the hospital. But welcome back, Caitlin.
• 1:13
  Speaker 2: Hello.
• 1:14
  Speaker 1: Thanks so much for coming back. But yeah, your daughter, Isabella,
• 1:19
  Speaker 1: is in a far different place, I think, hopefully, than
• 1:25
  Speaker 1: where we were before. But I guess over to you. Yeah,
• 1:28
  Speaker 1: start from wherever you want to.
• 1:30
  Speaker 2: OK, so like I kind of word vomited on Tom before.
• 1:35
  Speaker 3: We got started.
• 1:35
  Speaker 2: But so last year, whenever we were talking in the hospital,
• 1:40
  Speaker 2: we were doing a colonic manometry.
• 1:43
  Speaker 3: And that was where we were.
• 1:45
  Speaker 2: Trying to figure out if Isabella still needed some of
• 1:48
  Speaker 2: her intestine taken out, which would have resulted in a
• 1:51
  Speaker 2: permanent colostomy.
• 1:54
  Speaker 3: And thankfully, like I told you, they did not have
• 1:56
  Speaker 3: to do that. Everything went well. So let's see.
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  Speaker 2: The next step, I had been fighting for the tubes
• 2:07
  Speaker 2: for her.
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  Speaker 3: So she now has a, what did we say that
• 2:11
  Speaker 3: word was? A colostomy? A colostomy tube.
• 2:22
  Speaker 2: Which is a flush tube that allows us to irrigate
• 2:27
  Speaker 2: from this way instead of having to be invasive and
• 2:31
  Speaker 2: kind of pull it out. And that was just such
• 2:35
  Speaker 2: a huge blessing for us because, like I said, it
• 2:37
  Speaker 2: was very invasive for her. And then fast forward to January,
• 2:43
  Speaker 2: we were finally able to get her feed in tube.
• 2:46
  Speaker 2: And once we got her feed in tube, she is
• 2:50
  Speaker 2: almost seven now. But around this time last year, she
• 2:54
  Speaker 2: was still measuring as a four-year-old. And then when she
• 2:58
  Speaker 2: got her G-tube in January, by March, she was already
• 3:03
  Speaker 2: where she was supposed to be at. So, like, she
• 3:06
  Speaker 2: grew so much over the last few months that it
• 3:09
  Speaker 2: just kind of, like, happened.
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  Speaker 3: Before our eyes.
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  Speaker 2: And I'm just, oh, my gosh, like, you're almost seven.
• 3:14
  Speaker 2: And she actually looks like an almost seven-year-old now. So
• 3:18
  Speaker 2: that was such a blessing, finally, getting listened to about
• 3:22
  Speaker 2: those tubes. Yeah.
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  Speaker 1: Most definitely. And I guess that can be the frustrating part,
• 3:28
  Speaker 1: can't it? It can be the kind of, you know,
• 3:34
  Speaker 1: roughly know what sort of needs to happen, but it's
• 3:38
  Speaker 1: getting the process done and getting the right sort of
• 3:43
  Speaker 1: medical intervention that I guess can be not just frustrating,
• 3:51
  Speaker 1: but can also disrupt take quite a long time as well.
• 3:56
  Speaker 2: Yeah, it took a long time. And at the beginning
• 3:59
  Speaker 2: of her journey, we had a different GI doctor. So
• 4:02
  Speaker 2: I think that that really made a big difference in
• 4:05
  Speaker 2: her medical journey is switching to the GI that we
• 4:09
  Speaker 2: have now.
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  Speaker 3: She just really listened to me.
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  Speaker 2: And it was still a little bit of a fight
• 4:14
  Speaker 2: just because that's like a big request that you're asking
• 4:19
  Speaker 2: to put these like medical interventions in. But I do
• 4:23
  Speaker 2: think that that was such a blessing, like getting a
• 4:26
  Speaker 2: new GI doctor.
• 4:26
  Speaker 3: That made a huge difference.
• 4:29
  Speaker 1: Yeah.
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  Speaker 2: So like, don't be afraid to ask for a new
• 4:32
  Speaker 2: doctor if you don't feel like you're getting your answers.
• 4:36
  Speaker 1: Yeah, definitely. And I think that's for, I think, all
• 4:41
  Speaker 1: countries as well, because I know that's quite prevalent in
• 4:44
  Speaker 1: the US that you can choose your doctor as such.
• 4:49
  Speaker 1: But I think. what people don't quite know over in
• 4:52
  Speaker 1: this country is that's also possible as well. You can
• 4:55
  Speaker 1: be transferred. You can be, because our medical system is
• 5:00
  Speaker 1: run differently, very differently.
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  Speaker 3: Yeah, I seem to forget that.
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  Speaker 1: UK and US. But yeah, you can do in the
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  Speaker 1: UK as well. You can be transferred if you believe
• 5:13
  Speaker 1: that there is a person who knows more or they're
• 5:17
  Speaker 1: a specialist in that subject. So yeah, definitely. Don't be
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  Speaker 1: afraid to ask. Absolutely.
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  Speaker 2: Yeah. And just as parents in general, like no doctor
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  Speaker 2: is going to be able to, I don't want to
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  Speaker 2: say no doctor is going to do enough research.
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  Speaker 3: Obviously they do.
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  Speaker 2: But like when you have a child that has this condition,
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  Speaker 2: you kind of just kind of have to go into
• 5:38
  Speaker 2: that research and figure out what they need. so that
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  Speaker 2: you can advocate for them, because that is a big thing,
• 5:45
  Speaker 2: is that you have to advocate for these kids.
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  Speaker 1: Yeah, hugely. I think it's, again, the amount of people
• 5:54
  Speaker 1: that I've spoken to who've had to really fight, like really,
• 6:00
  Speaker 1: really fight for things that may not seem so obvious
• 6:07
  Speaker 1: at first, but as time's gone on, you think, well,
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  Speaker 1: that's definitely to do with her springs you know the
• 6:13
  Speaker 1: more research that you do and you've obviously done quite
• 6:16
  Speaker 1: a bit of research um but yeah i've really really
• 6:20
  Speaker 1: really had to fight and and sometimes and and sometimes
• 6:26
  Speaker 1: doctors will um take um parental instinct into account and
• 6:32
  Speaker 1: you know if you think so yeah something's just not
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  Speaker 1: right but you don't quite know what it is Docs
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  Speaker 1: will look into that and some will and some won't.
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  Speaker 1: And it can be a little bit frustrating that it's
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  Speaker 1: kind of still a little bit of a lottery sometimes
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  Speaker 1: just from people I've spoken to.
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  Speaker 2: Yeah, because it's frustrating when they're wanting to time out
• 6:55
  Speaker 2: these things like they know these possibilities of what they
• 6:57
  Speaker 2: can do for the kids, but they're trying to time
• 7:00
  Speaker 2: it out as long as possible to try every other alternative.
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  Speaker 2: But my thing was I wasn't wanting to continue trial
• 7:07
  Speaker 2: and error with these medications that could kind of cover
• 7:11
  Speaker 2: up the problems instead of actually doing an intervention that could.
• 7:19
  Speaker 3: Keep them from getting so sick. You know what I'm saying?
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  Speaker 2: Instead of waiting, because I kept getting told to take
• 7:27
  Speaker 2: her to the emergency room, but then I'd go into
• 7:29
  Speaker 2: the emergency room and they'd be like, well, pretty much
• 7:32
  Speaker 2: she's not dying anymore. So there's nothing that I can do.
• 7:35
  Speaker 2: So they wanted her to get to that point before
• 7:37
  Speaker 2: they would intervene. And I couldn't take that anymore.
• 7:41
  Speaker 1: No, no, that's quite a sad bit, really. Excuse me.
• 7:47
  Speaker 1: That's quite a sad bit, really, where it's kind of, well,
• 7:50
  Speaker 1: something is clearly not quite right, but you're not ill enough.
• 7:55
  Speaker 1: And that seems a bit, you know, you think if
• 7:58
  Speaker 1: you're a little bit ill, then you should be treated as,
• 8:02
  Speaker 1: you know a um treated to make you better in
• 8:07
  Speaker 1: a sort of simplistic term um as much as somebody
• 8:10
  Speaker 1: who's really ill to try and get them to be
• 8:12
  Speaker 1: better as well it doesn't matter what level scale you're
• 8:15
  Speaker 1: on they want to try and you know get you
• 8:18
  Speaker 1: back to to full fitness but it seems as though
• 8:22
  Speaker 1: sometimes if you're not ill enough you don't qualify as
• 8:25
  Speaker 1: such yes.
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  Speaker 2: And I've seen that in the medical field beyond just
• 8:30
  Speaker 2: our Hirschsprung's journey too.
• 8:31
  Speaker 3: I have really seen that a lot here lately.
• 8:34
  Speaker 2: Yeah. Yeah.
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  Speaker 1: And that's, that's a sad one really, because I just
• 8:40
  Speaker 1: think anybody who's ill is struggling. Anybody who's ill, we
• 8:45
  Speaker 1: want to make better because again, from a, from a
• 8:49
  Speaker 1: sort of hospital point of view, you'd rather get that
• 8:53
  Speaker 1: person to spend less resources and get that person better rather.
• 8:56
  Speaker 3: Than, Like prevent it from getting so bad.
• 9:00
  Speaker 1: Exactly. Exactly. Yeah. I don't want to bring it to
• 9:03
  Speaker 1: a business point of view, but it's, it's kind of
• 9:06
  Speaker 1: like that as well, where it's like, well, I'd rather
• 9:09
  Speaker 1: prevent or prevention is better than cure, isn't it?
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  Speaker 2: Right. Yeah.
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  Speaker 3: That's a whole thing itself, isn't it?
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  Speaker 1: Definitely. Definitely is. But yes. So back to Isabella and
• 9:21
  Speaker 1: how she's getting on. You said she's seven now.
• 9:24
  Speaker 2: It is, is.
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  Speaker 1: Growing and, and, doing really well with her cost to me.
• 9:30
  Speaker 1: I need to keep remembering those words. Um, but so
• 9:34
  Speaker 1: in terms of the next stage of our story, um,
• 9:39
  Speaker 1: where are we now? So in terms of sort of
• 9:51
  Speaker 1: the next phase and stage of, Isabella's story, yeah, where
• 9:58
  Speaker 1: are we up to?
• 10:02
  Speaker 3: So another thing that I wanted to touch on with
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  Speaker 3: the feeding tube.
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  Speaker 2: Is that, so this time last year, she wasn't really
• 10:09
  Speaker 2: able to play outside, and even now we still kind
• 10:13
  Speaker 2: of have those issues, but because we have that G-tube,
• 10:16
  Speaker 2: now I can put fluids through her, G-tube so that
• 10:20
  Speaker 2: she doesn't get overheated and pass out or have seizure-like
• 10:25
  Speaker 2: activity like she was having last year.
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  Speaker 3: So that has also.
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  Speaker 2: Like played a big difference and something that I think
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  Speaker 2: a lot of Hirschsprung's parents should look out for because
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  Speaker 2: I wasn't aware of that until last year when she
• 10:38
  Speaker 2: got about five years old that I start realizing that
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  Speaker 2: that was happening. So yeah, I just wanted to touch
• 10:45
  Speaker 2: on that too that the G-tube has just been such
• 10:48
  Speaker 2: a blessing in not just helping her gain weight, but
• 10:51
  Speaker 2: also being able to get them fluids to her.
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  Speaker 3: Yeah.
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  Speaker 1: Yeah, no, it's something that I didn't really recognize until
• 11:01
  Speaker 1: maybe a few years ago, that dehydration is massive for
• 11:07
  Speaker 1: just anybody with Hirschsprungs, not just children with Hirschsprungs, but anyone,
• 11:11
  Speaker 1: because we are missing, again, no matter how severe your
• 11:17
  Speaker 1: Hirschsprung is whether you're missing a little bit whether you're
• 11:20
  Speaker 1: missing a lot you are still missing parts of your
• 11:26
  Speaker 1: intestine and your intestine obviously absorbs water and you know
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  Speaker 1: holds it and what not so because we're missing that
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  Speaker 1: part we are naturally going to need more water to
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  Speaker 1: replenish everything especially if you are you know actively And,
• 11:46
  Speaker 1: you know, if you're running around, like you said, playing outside,
• 11:49
  Speaker 1: doing sports, you know, whatever, you are going to be
• 11:52
  Speaker 1: losing more water. So, yeah, that's something that really probably
• 11:57
  Speaker 1: should have occurred to me a lot sooner, but just didn't.
• 12:01
  Speaker 1: But it's, yeah, something that is so, so important in
• 12:05
  Speaker 1: children with Hirschsprungs. Right.
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  Speaker 2: And like I said, that was something that I had
• 12:09
  Speaker 2: found out from our new GI that I didn't know
• 12:13
  Speaker 2: when she was a baby that, Hirschsprung's kids or Hirschsprung's
• 12:16
  Speaker 2: people in general have to take in way more water
• 12:19
  Speaker 2: than just like regular regular colon.
• 12:24
  Speaker 1: People people normal people I don't.
• 12:28
  Speaker 2: You know um and even so with me like I
• 12:31
  Speaker 2: get dehydrated so I can't imagine how it is for
• 12:34
  Speaker 2: her you know so I feel like I'm having to
• 12:38
  Speaker 2: constantly pump fluids into her but I can tell the
• 12:40
  Speaker 2: difference if I don't versus when I'm trying to keep
• 12:45
  Speaker 2: up with it throughout the day.
• 12:46
  Speaker 1: So what will those differences be?
• 12:51
  Speaker 2: So if she's not getting her fluids, she gets super hot.
• 12:55
  Speaker 2: She feels like she's going to pass out.
• 12:58
  Speaker 3: She doesn't want to play.
• 12:59
  Speaker 2: I have also noticed on days when we're not sticking
• 13:03
  Speaker 2: on a schedule with those feedings because the– I'm sorry,
• 13:09
  Speaker 2: the thing they put on her chart to say why
• 13:11
  Speaker 2: she needed the formula shakes was that she's protein deficient.
• 13:16
  Speaker 2: It's a deficiency or something like that. So she needs
• 13:22
  Speaker 2: the protein. So when she's not getting those shakes, I
• 13:25
  Speaker 2: notice irritability in her. She is a completely different person.
• 13:31
  Speaker 3: Like, I guess very hangry is more the word. Like
• 13:35
  Speaker 3: you can just tell.
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  Speaker 1: Yeah, that's interesting that, I mean, I guess it makes
• 13:42
  Speaker 1: absolute sense that, you know, dehydration or lack of protein
• 13:47
  Speaker 1: would do that to somebody because, yeah, the mood would change.
• 13:52
  Speaker 1: And because you are sort of, I guess, as well
• 13:56
  Speaker 1: in the summer, you are kind of overheating as well.
• 14:00
  Speaker 1: So it's, yeah, something I keep thinking about as well, obviously,
• 14:06
  Speaker 1: with temperatures getting higher um, over the summer, um, that
• 14:12
  Speaker 1: we do obviously need more water than, than most people, um,
• 14:18
  Speaker 1: just stop getting dehydrated. So it's.
• 14:21
  Speaker 2: And, and electrolytes, like not even just water, but also
• 14:25
  Speaker 2: the electrolytes.
• 14:26
  Speaker 3: Yeah. Yeah.
• 14:27
  Speaker 1: Yeah. Yeah. It's, it's, it is a big thing. It
• 14:31
  Speaker 1: is most certainly a big thing. Um, you know, diet and, and,
• 14:35
  Speaker 1: and making sure that we have everything we need is, yeah, is,
• 14:39
  Speaker 1: It's very big for people with us.
• 14:43
  Speaker 2: And so now I do feel more like her nurse. Um,
• 14:47
  Speaker 2: I mean, obviously I'm her mother and I have to
• 14:50
  Speaker 2: tend to her regardless, but the amount of medical needs
• 14:55
  Speaker 2: that she has throughout the day, it is also like a,
• 14:58
  Speaker 2: another full-time job pretty much because I'm running three feedings
• 15:04
  Speaker 2: a day, three to four fluids a day. And then
• 15:08
  Speaker 2: we do a flush at the end of the day.
• 15:09
  Speaker 2: And I do feel bad that she has to kind
• 15:12
  Speaker 2: of be hooked up to things throughout the day, but
• 15:15
  Speaker 2: it doesn't change her personality or anything. Like nobody can
• 15:20
  Speaker 2: even tell on the outside. They wouldn't even think that
• 15:23
  Speaker 2: she had anything going on.
• 15:26
  Speaker 1: Yeah. No, but that, that's so good to hear. Um,
• 15:31
  Speaker 1: because it's, it's one of those things, her sprungs, isn't it? Where,
• 15:34
  Speaker 1: if you were to have 10 people in a line
• 15:37
  Speaker 1: and say, pick the person who has Hirschsprungs, you couldn't,
• 15:41
  Speaker 1: you know, we, we, we don't, you know, apart from
• 15:45
  Speaker 1: possibly scars, you know, or stomas generally, or maybe, maybe
• 15:53
  Speaker 1: sort of tubes and whatnot, but generally you can't tell
• 15:57
  Speaker 1: who has Hirschsprungs and who doesn't.
• 15:59
  Speaker 3: Right.
• 16:00
  Speaker 1: Which is, which I guess is a, a good thing
• 16:04
  Speaker 1: in a way.
• 16:05
  Speaker 2: I think it's a pro and a con because I
• 16:08
  Speaker 2: kind of have to hover over her, especially whenever we
• 16:11
  Speaker 2: go out into public places. Like say we go to
• 16:15
  Speaker 2: church events now and I can't really just let her go.
• 16:18
  Speaker 2: I have to be there with her because nobody's going
• 16:22
  Speaker 2: to think about that. Like we went to they were
• 16:25
  Speaker 2: riding horses one day and I had to keep reminding everybody, hey,
• 16:29
  Speaker 2: don't try to just pick her up like a regular
• 16:31
  Speaker 2: kid like she has. tubes right there so i would
• 16:34
  Speaker 2: say it is a pro and con like i'm glad
• 16:36
  Speaker 2: that nobody can like point it.
• 16:38
  Speaker 3: Out to to hurt her feelings or anything but also
• 16:42
  Speaker 3: i need people to be aware that they are there.
• 16:45
  Speaker 1: Yeah for sure for sure and it is and it's
• 16:51
  Speaker 1: also i guess creating awareness within sort of the the
• 16:57
  Speaker 1: sort of whether it be close family or community or
• 17:00
  Speaker 1: friends or whoever Just being aware that, you know, if
• 17:04
  Speaker 1: this happens, then we need to do this or whatever.
• 17:07
  Speaker 1: And I think that's also important as well.
• 17:11
  Speaker 2: Yeah, I think it's important for families of people that
• 17:14
  Speaker 2: have anybody in their family that has Hirschsprungs to be
• 17:17
  Speaker 2: supportive and be there. Because another thing that we have
• 17:21
  Speaker 2: personally struggled with is that I think that anybody would
• 17:25
  Speaker 2: is that family gets kind of scared of these medical
• 17:29
  Speaker 2: interventions sometimes.
• 17:31
  Speaker 3: And they're not really able to help. So it kind
• 17:33
  Speaker 3: of all falls on mom and dad, which it's fine.
• 17:37
  Speaker 2: But also I think that families who have awareness of
• 17:41
  Speaker 2: how hard it is to do that with no support
• 17:45
  Speaker 2: and to like not be so scared of it, because
• 17:48
  Speaker 2: once you get the hang of it, it's not as
• 17:50
  Speaker 2: scary as it comes off.
• 17:53
  Speaker 1: No, no. And it's, but if you were to mention stomas,
• 17:59
  Speaker 1: to people who have no idea what a stoma is or,
• 18:05
  Speaker 1: you know, and say, well, you know, we, we changed
• 18:09
  Speaker 1: the stoma bag or whatever. I mean, even, even people, um,
• 18:13
  Speaker 1: or parents of children with stomas, it takes a while.
• 18:17
  Speaker 1: It takes, you know, a lot of practice, um, to,
• 18:21
  Speaker 1: to change stomas and whatnot. So yeah, to, to then
• 18:26
  Speaker 1: mention that to family members, I totally understand why, people
• 18:29
  Speaker 1: would be a little bit concerned.
• 18:32
  Speaker 2: Yes because I'll never forget when me and my husband
• 18:35
  Speaker 2: walked into the NICU and they had her stoma pulled
• 18:38
  Speaker 2: up and we were not aware that that was happening
• 18:40
  Speaker 2: like they were already in the middle of surgery and
• 18:45
  Speaker 2: wasn't able to let us know until we walked in
• 18:47
  Speaker 2: and saw it and it is traumatizing it is um
• 18:52
  Speaker 2: but yeah I can see where people would be scared
• 18:55
  Speaker 2: of it but I do think that more people should
• 18:57
  Speaker 2: know that it's not that scary and that we us
• 19:00
  Speaker 2: families who do have kids like that we need some
• 19:02
  Speaker 2: support and and help.
• 19:05
  Speaker 1: Yeah yeah definitely definitely I think it's but I guess
• 19:11
  Speaker 1: it tends to become you know like everyday everyday life
• 19:15
  Speaker 1: doesn't it it's kind of like oh well and and
• 19:19
  Speaker 1: maybe and I know I've got into this um myself
• 19:24
  Speaker 1: as well, you kind of end up in a Hirschsprung's
• 19:27
  Speaker 1: bubble as such, where terminology like stomas and colostomies and
• 19:33
  Speaker 1: psychostomies and washouts and the word Hirschsprung's itself seem like
• 19:39
  Speaker 1: everyday words to us.
• 19:42
  Speaker 2: Yeah, it's our normal, but we had someone that we
• 19:47
  Speaker 2: showed her tubes to and they kind of stood back
• 19:51
  Speaker 2: for a second and they were.
• 19:51
  Speaker 3: Like how do y'all deal with that.
• 19:54
  Speaker 2: And i tried not to take offense to that because
• 19:57
  Speaker 2: i understand that it is kind of a shock to
• 20:00
  Speaker 2: some people but um you just do like you just
• 20:05
  Speaker 2: do it just becomes your normal Absolutely.
• 20:08
  Speaker 1: I mean, because you have no choice but for it
• 20:13
  Speaker 1: not to be.
• 20:15
  Speaker 3: Right, you have to.
• 20:16
  Speaker 1: Yeah, as much as obviously you want to help and
• 20:19
  Speaker 1: do everything you can, you also have, you know, you
• 20:22
  Speaker 1: have to learn. You haven't got a choice but to
• 20:26
  Speaker 1: learn about stomas and stoma bags and all of this
• 20:30
  Speaker 1: terminology that we've mentioned. It's, yeah, so it is quite
• 20:35
  Speaker 1: an undertaking. And I think that sometimes, sometimes it's, that's a,
• 20:43
  Speaker 1: that's a difficult one for people to quite get their
• 20:47
  Speaker 1: head around that, you know, you're obviously dealing with, with
• 20:49
  Speaker 1: all of this stuff all at the same time.
• 20:54
  Speaker 3: But it is, it is a blessing also.
• 20:56
  Speaker 2: And this is something I really wanted to say to
• 20:58
  Speaker 2: other families that has gone through this because I know
• 21:02
  Speaker 2: that it's traumatizing and I use that word a lot
• 21:04
  Speaker 2: because for such a long time, that's what it did
• 21:07
  Speaker 2: to me. It traumatized me and it put me into
• 21:10
  Speaker 2: such a depression and I struggled with addiction and stuff
• 21:14
  Speaker 2: going through all of this. But it also taught me
• 21:18
  Speaker 2: so much too. It taught me faith. It taught me
• 21:21
  Speaker 2: how to surrender. It taught me that everything is going
• 21:25
  Speaker 2: to be okay. It actually has pushed me onto a
• 21:28
  Speaker 2: career path that I never would have taken otherwise. otherwise
• 21:32
  Speaker 2: and there's just so many good things to pull from
• 21:35
  Speaker 2: it too.
• 21:37
  Speaker 3: And I just really wanted to like touch on.
• 21:39
  Speaker 1: That absolutely I think you're absolutely right um can I
• 21:44
  Speaker 1: ask what the career path.
• 21:45
  Speaker 2: Is um I'm going to start nursing school and I
• 21:49
  Speaker 2: wasn't ever gonna do that because me and my mother
• 21:52
  Speaker 2: don't really get along and that's something she pursued.
• 21:55
  Speaker 3: In But I do feel called to.
• 21:57
  Speaker 2: Do it because of, I mean, I'm already a nurse
• 22:00
  Speaker 2: for her.
• 22:01
  Speaker 3: It just makes sense.
• 22:03
  Speaker 1: That's brilliant. That's fantastic news. And how far are you
• 22:09
  Speaker 1: through the training period? Have you started?
• 22:13
  Speaker 2: I'm about to start to get my CNA, Certified Nursing Assistant.
• 22:18
  Speaker 2: I don't know if it's different in the UK than
• 22:20
  Speaker 2: it is in the US. No idea. But it's like
• 22:24
  Speaker 2: pretty much the first step that you take. But it
• 22:26
  Speaker 2: took a long time for me to finally accept it
• 22:29
  Speaker 2: and be like, yeah, okay, that's what I'm going to do.
• 22:32
  Speaker 1: That's fantastic news. No, that's brilliant. Well, I mean, you
• 22:37
  Speaker 1: don't lack experience. That's for certain.
• 22:42
  Speaker 2: Yeah, so I think I've got the confidence to do it.
• 22:44
  Speaker 2: That's where I lacked at before is I didn't think
• 22:47
  Speaker 2: that I could do it. But everything that we've done
• 22:49
  Speaker 2: for her, If I could do that with my own child,
• 22:53
  Speaker 2: I know that. And just seeing how the medical system
• 22:56
  Speaker 2: is in general, I know that they need somebody in
• 22:59
  Speaker 2: there to advocate for other kids and to know what
• 23:04
  Speaker 2: families who have medically complex kids go through on their side.
• 23:10
  Speaker 3: You know what I'm saying? So it doesn't feel like.
• 23:12
  Speaker 2: It's just kind of a profession that somebody has went into.
• 23:17
  Speaker 2: I like truly want to do it like within my heart.
• 23:20
  Speaker 3: Yeah.
• 23:21
  Speaker 2: Yeah.
• 23:21
  Speaker 1: And I, I think, um, I mean, obviously a lot
• 23:25
  Speaker 1: of great nurses, a lot of great doctors out there,
• 23:28
  Speaker 1: but I would guess that a lot of them have
• 23:32
  Speaker 1: not been, you know, maybe personally, um, have gone through
• 23:37
  Speaker 1: a great deal.
• 23:38
  Speaker 2: Right.
• 23:40
  Speaker 1: But it's, um, but to have somebody who has been
• 23:45
  Speaker 1: through it on and will now be seeing both sides.
• 23:49
  Speaker 1: So from the, the, the, nursing side, but also as
• 23:53
  Speaker 1: a parent and not just a parent who has been
• 23:58
  Speaker 1: through various, you know, Hirschsprungs related, but is also going
• 24:05
  Speaker 1: through at the moment. Like you've got personal experience, but
• 24:08
  Speaker 1: you're also going through, you know, everything at the moment.
• 24:13
  Speaker 1: So it's, yeah, I think that's, that's fantastic news.
• 24:18
  Speaker 3: Right.
• 24:18
  Speaker 2: And yeah. Hopefully I will eventually be in a hospital
• 24:21
  Speaker 2: as she gets older. But for right now, I'm just
• 24:24
  Speaker 2: kind of centering it around being able.
• 24:27
  Speaker 3: To stay with her.
• 24:30
  Speaker 2: Like, and just, you know, helping me on that, on
• 24:32
  Speaker 2: that path to, to be able to stay here and
• 24:35
  Speaker 2: be able to help my husband provide and stuff like that.
• 24:39
  Speaker 1: Absolutely. No, I think, I think it'd be fantastic. I
• 24:42
  Speaker 1: really do. I think it'd be great. I think there's, there's,
• 24:46
  Speaker 1: there's very few people who've been through a similar experience
• 24:50
  Speaker 1: to you that they go into nursing. So I think
• 24:53
  Speaker 1: you will have a unique perspective.
• 24:57
  Speaker 2: Yeah, you kind of want to get far away from
• 25:00
  Speaker 2: it when you've been dealing with it for so long.
• 25:04
  Speaker 1: Yeah, I get that. But I guess if you ever
• 25:07
  Speaker 1: have a patient with Hirschsprungs, you'll know exactly what to do.
• 25:13
  Speaker 1: But there's another point you made there, which I want
• 25:16
  Speaker 1: to touch on as well, that I know is really,
• 25:18
  Speaker 1: really important to you. and me as well, is faith. Really,
• 25:23
  Speaker 1: really important. And I think I do have quite a
• 25:28
  Speaker 1: few people who come on here and they do talk
• 25:31
  Speaker 1: about faith and how important that is to them, especially
• 25:38
  Speaker 1: when their children or family members are going through a
• 25:43
  Speaker 1: really difficult time. What, I guess... to phrase it, but
• 25:50
  Speaker 1: what does faith sort of mean to you?
• 25:53
  Speaker 3: Okay.
• 25:54
  Speaker 2: So when we talked last year, I was kind of,
• 25:57
  Speaker 2: I have always believed in God. But like I said,
• 26:01
  Speaker 2: I got kind of lost in my depression and addiction
• 26:05
  Speaker 2: there for a little while. And I feel like before
• 26:08
  Speaker 2: it got way too bad, which is actually probably about
• 26:12
  Speaker 2: six months before me and you talked last time, I
• 26:15
  Speaker 2: feel like God kind of came and pulled me out
• 26:17
  Speaker 2: of the trenches.
• 26:19
  Speaker 3: So to speak, and just showed me so much.
• 26:25
  Speaker 2: And being able to actually surrender Isabella's health to him
• 26:30
  Speaker 2: showed me so much because I had been fighting with
• 26:34
  Speaker 2: my own strength for so long and nothing was happening.
• 26:38
  Speaker 2: And she kept getting sick and we kept getting into
• 26:40
  Speaker 2: the hospital. And it was because I was trying to
• 26:42
  Speaker 2: have that control myself. And so once I finally, I
• 26:46
  Speaker 2: went to that chapel and I prayed the best that
• 26:48
  Speaker 2: I could and everything just kind of went in like
• 26:51
  Speaker 2: puzzle pieces after that, like not just with Bella, but
• 26:54
  Speaker 2: everything in our life, it just truly amazed me. And
• 26:59
  Speaker 2: I have to give all the glory to God because
• 27:01
  Speaker 2: we would not even, I would not even be here
• 27:04
  Speaker 2: anymore if, if I did not feel.
• 27:07
  Speaker 3: That presence in my life. Yeah.
• 27:11
  Speaker 1: Yeah. And I think it, you know, means faith means
• 27:16
  Speaker 1: so much to so many people that I, I come
• 27:18
  Speaker 1: on here and I know that everybody's individual in that sense. Um,
• 27:23
  Speaker 1: but I think there are a lot of people who
• 27:26
  Speaker 1: do like you say, surrender over. And I think that
• 27:34
  Speaker 1: it is, yeah, I, I, I think it's incredibly important,
• 27:39
  Speaker 1: incredibly important to, to, to so many. Um, but so
• 27:44
  Speaker 1: good that it's, I want to say it's working. I don't,
• 27:49
  Speaker 1: I don't, that's a, that's a terrible phrase, but you
• 27:52
  Speaker 1: know what I mean?
• 27:52
  Speaker 3: Yes, I know what you mean.
• 27:54
  Speaker 1: Um, yeah, I just can't think of a way to
• 27:56
  Speaker 1: phrase it any better. Um, but it's, yeah, but that's,
• 28:00
  Speaker 1: that's so good to see. So, so good to see
• 28:02
  Speaker 1: as well. Um, and then again, I, I guess we
• 28:07
  Speaker 1: pick up again on Isabella, um, and how she's, she's
• 28:11
  Speaker 1: coping and getting on. Um, cause obviously we being seven
• 28:15
  Speaker 1: should be sort of like primary school age.
• 28:18
  Speaker 2: Yeah.
• 28:18
  Speaker 3: So she'll be seven.
• 28:20
  Speaker 2: She'll be seven in December, but we do homeschool her. So, um,
• 28:24
  Speaker 2: so life is a little different with her. I do
• 28:26
  Speaker 2: see a comparison between her and like the little girls
• 28:30
  Speaker 2: that she's grown up with that we had a, a
• 28:33
  Speaker 2: bow business when she was a baby. So we knew
• 28:36
  Speaker 2: a bunch of the little girls that were born around
• 28:38
  Speaker 2: the same time that she was. And watching them all
• 28:42
  Speaker 2: grow up and knowing that Bella has medical needs and
• 28:46
  Speaker 2: Bella is at home and, you know, and these kids
• 28:50
  Speaker 2: are able to go to public school and they're able
• 28:52
  Speaker 2: to go be involved in all these sports and stuff
• 28:56
  Speaker 2: and they're able to be around other kids. You can
• 28:58
  Speaker 2: see the difference in how they act, if that makes sense. Like,
• 29:05
  Speaker 2: you know what I mean? And sometimes I fear that
• 29:08
  Speaker 2: they kind of... not these kids specifically, but other kids
• 29:12
  Speaker 2: her age might reject her or bully her or things
• 29:18
  Speaker 2: like that. So that's something we are dealing with right
• 29:21
  Speaker 2: now that I hope that we'll be able to get through.
• 29:25
  Speaker 2: And last year we tried to put her on the
• 29:29
  Speaker 2: cheerleading team and the coordinator at the time was not
• 29:34
  Speaker 2: accommodating for her. And so we ended up just pulling
• 29:36
  Speaker 2: her out so that I didn't go to jail. and
• 29:41
  Speaker 2: flip out about it. But a year later, now I
• 29:44
  Speaker 2: see why God told me to chill out about that
• 29:46
  Speaker 2: because now she's going to get to cheer this year,
• 29:49
  Speaker 2: and I'm going to get to be there with her.
• 29:51
  Speaker 3: But that's just something that we're.
• 29:53
  Speaker 2: Dealing with now, and hopefully I'll be able to give
• 29:54
  Speaker 2: you an update on that later on of how we
• 29:57
  Speaker 2: managed that.
• 29:58
  Speaker 3: To deal with that part of all of this.
• 30:02
  Speaker 1: That'd be great. Yeah. No, but that there's, it is,
• 30:06
  Speaker 1: and it's sometimes, but again, finding the right place that
• 30:11
  Speaker 1: can accommodate again. It's, it's having been in that teaching world,
• 30:20
  Speaker 1: coaching world myself for over a decade. You know, I
• 30:26
  Speaker 1: taught many children with many different, medical needs and maybe
• 30:33
  Speaker 1: it was because I had medical needs myself that I
• 30:36
  Speaker 1: was more sympathetic and would always do absolutely everything to
• 30:41
  Speaker 1: include and to make things as as accessible as possible
• 30:47
  Speaker 1: but maybe sometimes if you haven't been through that yourself
• 30:52
  Speaker 1: it can possibly be I don't know you should always
• 30:56
  Speaker 1: try and make things accessible but if you haven't been
• 30:58
  Speaker 1: through that yourself, it can possibly be a bit like, Oh,
• 31:02
  Speaker 1: I'm scared of what to do and, and, or I
• 31:05
  Speaker 1: don't want to do the wrong thing. So I'll just
• 31:07
  Speaker 1: do nothing, you know? And you do, I had seen
• 31:11
  Speaker 1: that before with people who have medical needs, you know,
• 31:16
  Speaker 1: in various schools and clubs and whatever, whether there are
• 31:20
  Speaker 1: ways of, you know, including people without making them feel
• 31:24
  Speaker 1: overly different, without making them feel uncomfortable and, Um, but
• 31:31
  Speaker 1: I guess there are potentially some coaches, teachers who just,
• 31:35
  Speaker 1: they just don't know. They just don't know. So they
• 31:37
  Speaker 1: just don't do anything. Yeah.
• 31:40
  Speaker 2: And I think that, um, something else that I have
• 31:42
  Speaker 2: noticed is a lot of the time, whenever I'm trying
• 31:46
  Speaker 2: to involve her in something, I'm not really asking anybody to,
• 31:50
  Speaker 2: to do anything for her more, just kind of letting
• 31:53
  Speaker 2: me hang out and be there just in case, um,
• 31:56
  Speaker 2: But I feel like a lot of.
• 31:57
  Speaker 3: People get annoyed by that.
• 31:59
  Speaker 2: They don't really like feeling intruded on or whatever. And
• 32:04
  Speaker 2: that's something that I wanted to touch on because I
• 32:05
  Speaker 2: don't want other medical parents feeling like they're being excluded
• 32:10
  Speaker 2: specifically because there's a medical issue. A lot of the time,
• 32:14
  Speaker 2: what I've noticed is that these organizations don't really want
• 32:20
  Speaker 2: somebody on the inside viewing how they treat the kids
• 32:24
  Speaker 2: in general.
• 32:26
  Speaker 3: That's something that I have picked up on recently.
• 32:31
  Speaker 1: Yeah, and that's a shame as well because I was
• 32:35
  Speaker 1: always fine with people watching my sessions. Absolutely fine because
• 32:39
  Speaker 1: it's one of those things where you go, well, of
• 32:42
  Speaker 1: course you can stay and watch and learn and whatever
• 32:46
  Speaker 1: and watch a child have fun and all of that stuff.
• 32:48
  Speaker 1: Because if you start excluding people and parents and obviously
• 32:53
  Speaker 1: you don't want you know, being involved in the game
• 32:57
  Speaker 1: and trying to overtake. But of course you didn't do that.
• 33:02
  Speaker 1: But yeah, it's one of those you think, why not?
• 33:07
  Speaker 2: Yeah, that's kind of where you have to use discernment
• 33:11
  Speaker 2: because it's not always like that.
• 33:13
  Speaker 3: Like you said, most of the time people are like, yeah,
• 33:15
  Speaker 3: of course, please hang out. But I have noticed that.
• 33:19
  Speaker 2: A lot here lately and it made me feel like
• 33:22
  Speaker 2: it was just because because of her, because of what
• 33:25
  Speaker 2: she had going on, they were treating her some type
• 33:27
  Speaker 2: of way when it really wasn't that.
• 33:29
  Speaker 3: It was kind of beyond that.
• 33:31
  Speaker 1: Yeah.
• 33:32
  Speaker 2: Yeah.
• 33:33
  Speaker 1: Yeah, that's a shame. That is a shame. But hopefully
• 33:38
  Speaker 1: she's found, she said she's found new cheerleading.
• 33:42
  Speaker 2: Yes. So we're involved in church now and she's going
• 33:45
  Speaker 2: to cheer and we homeschool and hopefully all that will
• 33:52
  Speaker 2: trickle out, you know. We won't have to deal with
• 33:55
  Speaker 2: any like bullying or anybody making us feel some type
• 33:58
  Speaker 2: of way about it anymore.
• 34:00
  Speaker 1: No, and sometimes it just takes that change of environment.
• 34:07
  Speaker 1: And sometimes it's, you know, there is an environment where,
• 34:13
  Speaker 1: you know, everybody's accepted and et cetera. And sometimes whether
• 34:19
  Speaker 1: in the other environment, it's just, ignorance or whether it's
• 34:24
  Speaker 1: you know people just being nasty for the sake of
• 34:27
  Speaker 1: being nasty or just not knowing what to say so
• 34:29
  Speaker 1: they just say something horrible you know whatever it may
• 34:33
  Speaker 1: be um sometimes that change of environment can can work
• 34:38
  Speaker 1: wonders yes um so i really hope that i really
• 34:43
  Speaker 1: really hope that um but then so starting or doing
• 34:52
  Speaker 1: um cheer practice doing various activities which is really really
• 34:57
  Speaker 1: good to see because i think one of the the
• 35:00
  Speaker 1: things especially that i do a lot on this podcast
• 35:04
  Speaker 1: is showcasing whether it be you know adults mainly but
• 35:09
  Speaker 1: showing people that you know you can achieve you know
• 35:14
  Speaker 1: really really great things sometimes the path you take to
• 35:17
  Speaker 1: get there will be different it may be a bit
• 35:20
  Speaker 1: more winding to It might not be such a straight
• 35:23
  Speaker 1: road as others, but you can still achieve, you know,
• 35:29
  Speaker 1: really great things. So that's really, really good to see
• 35:32
  Speaker 1: that Isabella is the same and really good to see. Obviously,
• 35:36
  Speaker 1: you've got sort of the same attitude as well, that
• 35:39
  Speaker 1: it's all about, you know, what you can do rather
• 35:42
  Speaker 1: than what you can't do.
• 35:43
  Speaker 2: Yes. Like even even if we do have to pause
• 35:45
  Speaker 2: and do a feed in or pause and do a
• 35:48
  Speaker 2: of hydration or whatever, like you said, it might look different,
• 35:51
  Speaker 2: but I know that she can do anything that she
• 35:53
  Speaker 2: wants to do.
• 35:55
  Speaker 1: Exactly. Exactly. And, and that, that is, is so good
• 35:59
  Speaker 1: to see because it's, it's very easy sometimes to go,
• 36:04
  Speaker 1: Oh no, I can't do that because I've got this,
• 36:07
  Speaker 1: or I don't, not necessarily, I can't do it, but
• 36:11
  Speaker 1: I don't want to try because I might fail.
• 36:15
  Speaker 2: Yeah.
• 36:16
  Speaker 3: Or, you know, or it requires more.
• 36:19
  Speaker 1: Yeah, or my stoma might leak or, you know, things
• 36:23
  Speaker 1: like that, which is, again, totally understandable. But really good
• 36:31
  Speaker 1: to see that she's, you know, giving so many things
• 36:34
  Speaker 1: a go, which is brilliant.
• 36:35
  Speaker 2: Yes, I was very scared about her swimming with these tubes,
• 36:39
  Speaker 2: but a year later we finally did it and she's
• 36:42
  Speaker 2: been doing great. She's been doing great with it.
• 36:44
  Speaker 3: So we don't cover it up or anything like that.
• 36:47
  Speaker 3: She's just... She's good to go.
• 36:49
  Speaker 1: What was the sort of, I guess, main concern with
• 36:53
  Speaker 1: the swimming? If people have children with tubes and are
• 36:58
  Speaker 1: a bit worried.
• 37:00
  Speaker 2: So the doctors told me that their only concern with
• 37:04
  Speaker 2: it would be if it leaked out. So that's when
• 37:08
  Speaker 2: you would want to cover it. But We usually swim
• 37:11
  Speaker 2: in a private pool, so we don't take her to
• 37:13
  Speaker 2: community pools or anything. I think that would be my
• 37:16
  Speaker 2: only thing is thinking about all the stuff. But they
• 37:21
  Speaker 2: did tell me that if anything got inside that way,
• 37:24
  Speaker 2: that it would be the same as if they would
• 37:26
  Speaker 2: have swallowed water by mouth like any other kid would do.
• 37:30
  Speaker 2: So it's really not a concern except for whenever you're
• 37:33
  Speaker 2: in the healing stages of it, obviously.
• 37:37
  Speaker 1: Yeah, that makes sense. But no, again, really, really good
• 37:39
  Speaker 1: to hear because, again, it's one of those things where
• 37:43
  Speaker 1: you think, oh, can I try this? Can I do this? Well,
• 37:47
  Speaker 1: I'm not sure. Yeah. But like you say, and you
• 37:50
  Speaker 1: obviously do a lot of research and you do ask
• 37:53
  Speaker 1: questions and you do say, you know, OK, we want
• 37:56
  Speaker 1: to do this. Can we? And if we can't, well,
• 38:02
  Speaker 1: is there a way around it? that we can, you know,
• 38:05
  Speaker 1: are there provisions we can put in place that we can,
• 38:08
  Speaker 1: you know, and I really like that sort of can
• 38:11
  Speaker 1: do rather than won't do, can't do attitude of that
• 38:16
  Speaker 1: sort of, okay, can we do this? Is there a
• 38:21
  Speaker 1: way around it? You know, if not, can we try
• 38:25
  Speaker 1: and accommodate somehow? But I love that.
• 38:27
  Speaker 2: I really do. Yes, and I'm just so grateful that
• 38:31
  Speaker 2: we haven't been in and out of the hospital like
• 38:33
  Speaker 2: we were before.
• 38:33
  Speaker 1: Yes, yes. Like we said, I think at the very beginning,
• 38:38
  Speaker 1: we did our first one from the hospital, didn't we?
• 38:42
  Speaker 1: I think that was, yeah, I think that's the only episode. No,
• 38:47
  Speaker 1: there's only been two episodes I've done from the hospital.
• 38:50
  Speaker 1: But it's, yeah, no, it's so, so good to see
• 38:53
  Speaker 1: that she's home and she's happy, I take as well. Mm-hmm. Yeah.
• 39:00
  Speaker 3: She's thriving.
• 39:01
  Speaker 1: That's brilliant. That's really, really good. And I guess as
• 39:05
  Speaker 1: we sort of come to the end, you know, the future,
• 39:09
  Speaker 1: I guess, is a question I tend to ask a lot.
• 39:14
  Speaker 1: And sometimes it's difficult. Sometimes it's a difficult one to
• 39:18
  Speaker 1: answer for people because it's just, well, I just don't know,
• 39:21
  Speaker 1: you know. But in terms of, both medically and non-medically.
• 39:28
  Speaker 1: You said she's thriving, doing really well. which is great
• 39:30
  Speaker 1: to see doing activities which is wonderful um i'm guessing
• 39:36
  Speaker 1: obviously you want just more of that for her.
• 39:40
  Speaker 2: Yes i'm i just i'm hopeful that she does good
• 39:43
  Speaker 2: with this season of cheerleading and that she doesn't get
• 39:47
  Speaker 2: too overheated or or feel any type of way about
• 39:51
  Speaker 2: it and I mean I guess that's really all we're
• 39:54
  Speaker 2: at oh and right now we are she is a
• 39:57
  Speaker 2: little bit behind.
• 39:57
  Speaker 3: In in school.
• 40:00
  Speaker 2: But it's gonna be okay because I know that now
• 40:03
  Speaker 2: that she's all situated I'm hopeful for the future that
• 40:06
  Speaker 2: she'll be reading on level and all that because there
• 40:10
  Speaker 2: is um sometimes delays in a lot of areas that
• 40:14
  Speaker 2: we wouldn't expect like there's a lot of and i
• 40:18
  Speaker 2: don't want to embarrass her so i won't go into
• 40:20
  Speaker 2: all that but there is there is um quite a
• 40:23
  Speaker 2: few areas where she's a little bit delayed but you
• 40:25
  Speaker 2: wouldn't be able to tell from the outside you know.
• 40:29
  Speaker 1: Yeah but again it's one of those things that's i
• 40:32
  Speaker 1: think perfectly understandable because in and out of hospital the
• 40:35
  Speaker 1: whole time you're not going to be able to catch
• 40:38
  Speaker 1: up on you know everything that all the other children
• 40:41
  Speaker 1: are doing because you're you know, you're having surgeries or
• 40:45
  Speaker 1: you're having, you know, procedures done. So, you know, I
• 40:49
  Speaker 1: think there are, especially with a lot of children who
• 40:52
  Speaker 1: are in and out of hospital, there are going to be,
• 40:55
  Speaker 1: you know, slight gaps. I think that's just, you know,
• 40:59
  Speaker 1: that's not necessarily something you can avoid. Right.
• 41:03
  Speaker 3: It's definitely not. So I guess for, for future, we're
• 41:06
  Speaker 3: just playing catch-ups. Yeah.
• 41:08
  Speaker 1: Yeah. Yeah. But, you know, but, Seeing as she's thriving
• 41:12
  Speaker 1: now and doing really well now, hopefully in the future that,
• 41:15
  Speaker 1: you know, she'll be catching up and won't be an issue.
• 41:19
  Speaker 3: Right.
• 41:20
  Speaker 1: But, yeah, no, excellent. Well, I wish you all, Isabella, yourself,
• 41:28
  Speaker 1: the rest of the family, all the happy, healthy future.
• 41:33
  Speaker 1: No more hospital space.
• 41:34
  Speaker 2: Also, we were blessed with another baby since I talked
• 41:37
  Speaker 2: to you as well.
• 41:39
  Speaker 1: Yes, of course. Congratulations. I did see, I did see
• 41:43
  Speaker 1: on TikTok.
• 41:45
  Speaker 3: And everything went real full and perfect.
• 41:47
  Speaker 2: And it's so amazing. And that was another thing about faith.
• 41:51
  Speaker 2: I wanted to say I'm so blessed because I want
• 41:54
  Speaker 2: to think that I'm a good mom and I'm trying
• 41:57
  Speaker 2: my best to be a good mom. But there was
• 41:58
  Speaker 2: times where I was not the best mom at all,
• 42:01
  Speaker 2: being lost in depression and addiction. And I wasn't, and
• 42:04
  Speaker 2: I didn't deserve another chance to do it again. And
• 42:07
  Speaker 2: that's why I'm such a big i'm a big fan
• 42:11
  Speaker 2: of god and i'll talk about it all day long
• 42:13
  Speaker 2: because i just cannot believe that he gave me that
• 42:16
  Speaker 2: grace and blessed me with another opportunity to be a mother.
• 42:19
  Speaker 1: Again absolutely but uh congratulations um because that that's that's
• 42:24
  Speaker 1: wonderful news and and all all going well with your new.
• 42:28
  Speaker 2: Baby yes and i only remembered because um i probably
• 42:32
  Speaker 2: need to get back in there.
• 42:32
  Speaker 1: To her now Right, yes, we will wrap up. But no,
• 42:37
  Speaker 1: thank you so much for coming back on. It's been
• 42:39
  Speaker 1: great to chat to you again. And yeah, if there's
• 42:43
  Speaker 1: any more updates, feel free, come back on and we'll
• 42:46
  Speaker 1: probably do this again in another nine months or a
• 42:49
  Speaker 1: year's time.
• 42:51
  Speaker 3: Yes, of course. Thank you so much.
• 42:53
  Speaker 1: Thank you very much. Thank you for listening and being
• 42:59
  Speaker 1: part of this growing community. If you have enjoyed the episode,
• 43:02
  Speaker 1: don't forget to subscribe leave a review and share it
• 43:05
  Speaker 1: with someone who might need it. You can connect with
• 43:08
  Speaker 1: us on social media via Instagram, Facebook and TikTok under
• 43:12
  Speaker 1: the name Tom's First Sprungs Podcast. See you next week.