Latest / Tom's Hirschsprung's Podcast / Episode 104 - With Tiffany Smith

Transcript

Episode 104 - With Tiffany Smith · Tom's Hirschsprung's Podcast

0:02
Speaker 1: You are listening to Tom's Hirshbrung's Podcast, a space where
0:05
Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
0:09
Speaker 1: live with it, care for someone who has it, or
0:12
Speaker 1: just want to understand more, this podcast is for you.
0:15
Speaker 1: Each episode, we will explore real stories and honest conversations
0:19
Speaker 1: about a condition that often goes unheard. Thank you for
0:22
Speaker 1: tuning in. Hello, and welcome to episode one hundred and
0:46
Speaker 1: four of Tom's Hirshbrungs Podcast. I am delighted to be
0:51
Speaker 1: joined this afternoon by Tiffany. Tiffany, welcome to the podcast.
0:54
Speaker 2: Thanks for however we are at exciting it is.
0:58
Speaker 1: It's very exciting. As he said, it's your first. There's
1:01
Speaker 1: like a lot of people who cover on they say
1:02
Speaker 1: it's their first ever podcast. It's all always very exciting
1:05
Speaker 1: for your first.
1:06
Speaker 3: Yeah, Loving, We've We've got some really interesting topics to
1:12
Speaker 3: delve into today that I'm I'm really interested to talk
1:17
Speaker 3: about speak about with you, and I guess we'll probably.
1:21
Speaker 1: Intro by saying you you do have a child with
1:23
Speaker 1: hirsh bronx. Yeah, so would you like to talk a
1:27
Speaker 1: bit about sort of the beginning and how how this
1:30
Speaker 1: all sort of came about great.
1:32
Speaker 2: So my my baby, he is almost five months old.
1:37
Speaker 2: His name's Hasten, like Jason, but with an age Hasten.
1:42
Speaker 2: So we had an amazing home birth. He's my fourth baby.
1:47
Speaker 2: I'm also a dueler, so I'm just all about like
1:50
Speaker 2: natural births. Anyway, we had him at home. Everything was great,
1:54
Speaker 2: and then you know, you just have like your mom
1:56
Speaker 2: and guy that just wants to make sure your kids
1:59
Speaker 2: are healthy, safe, and I just felt like we should
2:03
Speaker 2: go to you know, just go get me checked out,
2:05
Speaker 2: go get him checked out at the mother and baby
2:08
Speaker 2: at the hospital. So we went and got ourselves checked
2:13
Speaker 2: and they cleared us. Everything was great. I was looking
2:17
Speaker 2: good and he's okay. He was he was looking great,
2:20
Speaker 2: and then they kept us for twenty four hours to
2:23
Speaker 2: you know, just kind of monitor us. And Hayston had
2:26
Speaker 2: it stooled, you know, yeah, but although it had only
2:29
Speaker 2: been thirty six hours, so some I don't know. Sometimes
2:32
Speaker 2: my mama brain is like, maybe I could have like
2:35
Speaker 2: worked hard to stool but maybe not. I don't know.
2:39
Speaker 2: I know it's not great to go back and look
2:42
Speaker 2: at maybe I could have done this, so that there's
2:44
Speaker 2: no point Anyway, he did it in thirty six hours,
2:47
Speaker 2: but he did start spitting up some green bial just
2:54
Speaker 2: because of all the up of laconium, and then he
2:58
Speaker 2: started putting up green bios. So they wanted to do
3:00
Speaker 2: They're like, oh, let's go do some imaging on him.
3:03
Speaker 2: So they do some X rays and they saw some
3:06
Speaker 2: bubbling in the lining of his intestines, which is called nematosis.
3:10
Speaker 2: And that's like an instant you know, red flag gets
3:13
Speaker 2: sent to the nick you for that because that can
3:16
Speaker 2: start an infection and be really fatal and little need
3:20
Speaker 2: more babies. So that was just some really big shocking
3:24
Speaker 2: news that you know, everything was great and then it's not,
3:27
Speaker 2: you know, and you get rushed to the nick you.
3:29
Speaker 2: So so anyway, but I mean, I'm glad that we
3:33
Speaker 2: went and got got checked up because I would rather,
3:35
Speaker 2: you know, catch that in the hospital than be at
3:38
Speaker 2: home and things go south. So I was glad. I
3:42
Speaker 2: was glad glad that we caught it. So they rushed
3:44
Speaker 2: us to the nick you and they're trying to figure
3:47
Speaker 2: out why this baby isn't poopy, So they do a
3:51
Speaker 2: million tests on him. They're telling you, like, worst case scenarios,
3:54
Speaker 2: I have a basket case, and they got the gum
3:58
Speaker 2: started on antibiotics to correct the nematosis so that that
4:03
Speaker 2: would all go away and not start an infection. So
4:08
Speaker 2: this is when I started to really be confused. In
4:12
Speaker 2: the nick you was that his sin was pooping in
4:16
Speaker 2: the nick you, although they did they were doing rectal
4:18
Speaker 2: irrigations on him and the nik you just to make
4:21
Speaker 2: sure like all of his stool was coming out, that
4:24
Speaker 2: he was all cleaned out, but like in between, he
4:26
Speaker 2: was stooling. So they were doing all these tests and
4:30
Speaker 2: you know, ruling out things that they were diagnosing with him.
4:33
Speaker 2: They're like, oh, he has anal stenosis and oh, like
4:37
Speaker 2: they were telling me all of these diagnosed them diagnosed diagnostics. Uh,
4:41
Speaker 2: and then a doctor would come in and like, oh,
4:43
Speaker 2: it's not that. So it was just a roller coaster
4:46
Speaker 2: in the nick And then at the very end of
4:50
Speaker 2: the two weeks, they did a rectal biopsy and they're
4:54
Speaker 2: like this, could you know this comes back positive? Then
4:56
Speaker 2: he has hers Spring's disease. So I'm like Google and
4:59
Speaker 2: during a mill in Google searches and and I'm looking
5:03
Speaker 2: up hers I'm like, Okay, clearly he doesn't have that.
5:06
Speaker 2: So it's gonna come back negative because he's the main
5:09
Speaker 2: the boy's pooping like he everything. You know, he doesn't
5:13
Speaker 2: have all these symptoms. So all of these had was
5:18
Speaker 2: you know, he didn't pack in the timeframe and and
5:23
Speaker 2: the spinning up frame bio and but anyway, yeah, I
5:26
Speaker 2: didn't think it was like true curse brings disease. So
5:29
Speaker 2: I was pretty skeptical about it. So they sent it out,
5:32
Speaker 2: you know, we wait for the results. They come back inconclusive,
5:36
Speaker 2: so I'm like okay. They're like, okay, we're gonna do
5:39
Speaker 2: a second recto biopsy. And I'm just annoyed at this point,
5:43
Speaker 2: like I'm there's a frustrated mama. I just wanted to
5:46
Speaker 2: be home. And so they send that recto biopsy to
5:51
Speaker 2: Seattle for like extensive examination, and it also comes back inconclusive.
5:59
Speaker 2: So I'm just okay, And so I want to talk
6:02
Speaker 2: to the doctors. They come in and they tell me,
6:05
Speaker 2: you know what this's gonna need. They're like, well, it's game.
6:07
Speaker 2: So they tell me about the gangla on cells. You
6:09
Speaker 2: know that people hirst disease they're lacking ginglon cells, and
6:14
Speaker 2: that they tell me his ganglion cells are nearby I'm like,
6:18
Speaker 2: what the crap does that mean? Like does he have
6:20
Speaker 2: like hirsh disease? Are not? Like They're like, well, yes,
6:24
Speaker 2: Like you're like, we are diagnosing with kirshmak disease, and
6:27
Speaker 2: protocol for her hrsh frame disease is surgery. And because
6:31
Speaker 2: we don't know how much of his colon is affected
6:34
Speaker 2: unless we surgically go in and check. So now they're
6:39
Speaker 2: putting you know, They're like, so let's get the surgery scheduled.
6:43
Speaker 2: And I'm like back up now, like I don't want
6:47
Speaker 2: to kind of open and remove his colon, Like it
6:51
Speaker 2: was all just so much to me and it was
6:53
Speaker 2: so overwhelming and I'm like the kid is not is
6:57
Speaker 2: like barely two weeks old, and I just want to
7:01
Speaker 2: try like other outlets. They're like, no, there's no other outlets.
7:05
Speaker 2: And my mom I got was just you know, like
7:09
Speaker 2: we could figure this out hop on a surgery right away.
7:14
Speaker 2: So they sent me home. They're like, okay, well, if
7:18
Speaker 2: you're gonna go home, you know, we want you to
7:19
Speaker 2: keep doing these two rectallyation every day morning night. Oh
7:24
Speaker 2: I'm like okay, yeah, like just get us out of here,
7:27
Speaker 2: like I'll do whatever. So we go that, they let
7:30
Speaker 2: us go home. They discharge us, and we go home
7:34
Speaker 2: and we start doing these rectal irrigations. And I mean,
7:38
Speaker 2: I'm preaching to the choir like people who have you know,
7:41
Speaker 2: parents experiences, like it's awful. It is the worst, Like
7:47
Speaker 2: just like holding your newborn baby down, you know, and
7:50
Speaker 2: just doing these rectallyrications. And I know you do it
7:52
Speaker 2: because you're doing it for the good of your child.
7:55
Speaker 2: I get that, but you know, they're telling me all
7:59
Speaker 2: these read all these red flags to look out for,
8:02
Speaker 2: you know, that will lead to enter colitis. That's like
8:04
Speaker 2: the big thing. More of what we're trying to avoway, right,
8:08
Speaker 2: unarclitis and so direct aligations. But even by the time
8:14
Speaker 2: like our next irrigation was up, he was super distended.
8:19
Speaker 2: And so I'm freaking out, you know, like put these
8:22
Speaker 2: poor anxious parents that I'm sure can relate to me,
8:24
Speaker 2: like your anxiety is through the roof, like trying to
8:27
Speaker 2: keep your baby healthy and making sure they don't you know,
8:30
Speaker 2: they don't things don't continue to get worse somewhere somewhere.
8:36
Speaker 2: So I feel like the irrigations, I'm like, man, like
8:41
Speaker 2: he's not doing well, you know, he so much inflammation.
8:47
Speaker 2: So I started kind of talking to my I'm from
8:51
Speaker 2: Arizona and I have like a team of natural pathic
8:54
Speaker 2: doctors in Arizona, and I started talking to them and
8:57
Speaker 2: they were like, we need to get inflammation down. So
9:01
Speaker 2: I actually just I just booked a flight for me
9:04
Speaker 2: and he sent to go to Arizona, and so we
9:08
Speaker 2: flew there, and I just wanted to like get other
9:11
Speaker 2: doctor's opinions that weren't just like surgical route, you know. Immediately,
9:16
Speaker 2: I just wanted to see what else we could do.
9:18
Speaker 2: So I wanted to get Haystien's inflammation down because he
9:21
Speaker 2: was just getting Yeah, like I said, he was getting
9:23
Speaker 2: extended before the next irrigation. So we go and we
9:29
Speaker 2: started all these like you know, homeopathic gram stuff. And
9:37
Speaker 2: I also felt like I wanted to try stopping the irrigations,
9:43
Speaker 2: and I got other other doctor's opinions on that because
9:49
Speaker 2: and I started kind of like experiment. And I know
9:54
Speaker 2: that sounds like, oh, you're an idiot, like whatever, like
9:57
Speaker 2: a lot of grants would say that, but it's just
9:58
Speaker 2: really what I felt like. I felt like sticking the
10:01
Speaker 2: catheter in him was one giving him a negative relationship
10:04
Speaker 2: with pooping. And he needed that like gut because especially
10:09
Speaker 2: in the newborn, like the first like four months, here
10:13
Speaker 2: is where you develop your gut to brain connection like,
10:16
Speaker 2: oh this doesn't feel good, I need to do this.
10:19
Speaker 2: Oh that feels good. I'm going to keep doing that.
10:22
Speaker 2: Like that connection is so important and that forms in
10:26
Speaker 2: your early months of your digestive system developing. So I'm like, okay, hastaying,
10:33
Speaker 2: you know, babies have an underdeveloped digestic system. Let's see
10:37
Speaker 2: what happens if we let it develop. But we need
10:40
Speaker 2: to get the inflammation down. So working with these homeopathy
10:45
Speaker 2: doctors and just having a more holistic whole body approach,
10:50
Speaker 2: we got his inflammation down. His belly was always you know,
10:54
Speaker 2: was nice to stalk within just like a few days.
10:57
Speaker 2: So instead of doing directal irrigations, we would he was
11:00
Speaker 2: a win team, which is like a little pipe that
11:02
Speaker 2: you stick in the rectum and it releases any air
11:05
Speaker 2: or a lot of times poop. We call it the
11:07
Speaker 2: poop shoot.
11:09
Speaker 4: And so so what happened U seeing the windy was
11:14
Speaker 4: that instead of spending because it would take us like
11:16
Speaker 4: fifteen to twenty minutes to irrigate this baby, and it
11:20
Speaker 4: was miserable.
11:20
Speaker 2: He's screaming the entire time, like he just was like
11:26
Speaker 2: his like his nervous system, like everything like that I
11:29
Speaker 2: noticed about my baby was just negative. Like I had
11:32
Speaker 2: this sad, anxious baby all all like all day doing
11:36
Speaker 2: these rectal irrigations, and I was a very sad, depressed
11:40
Speaker 2: mama like all throughout the day because I would just
11:43
Speaker 2: be dreading the next irrigation, you know, knowing that it
11:46
Speaker 2: was coming up, and waking up in the morning. I
11:48
Speaker 2: was just dreading the morning like, so like we were
11:51
Speaker 2: bolts is very sad and depressed and hasten. So okay, sorry,
11:57
Speaker 2: this is so when we were doing the rectal irritation,
12:00
Speaker 2: he was like very tense and he wasn't before we
12:04
Speaker 2: were doing irrigations. So now we're following, you know, protocol,
12:09
Speaker 2: we're doing what the doctors say. But he was so
12:13
Speaker 2: he was not doing good like it so and your
12:16
Speaker 2: nervous system and you're in order for your digestive system before,
12:20
Speaker 2: like you need to be relaxed in order to be stooling,
12:23
Speaker 2: and and so everything was I felt was working against
12:27
Speaker 2: his body. So those things didn't really make sense to me.
12:31
Speaker 2: I felt like doing the standard protocol and doing these
12:36
Speaker 2: recularrigations was leading us down a road towards surgery. So
12:42
Speaker 2: so yeah, I just kind of that's when I, you know,
12:45
Speaker 2: tried to do something using the windy, he would he
12:49
Speaker 2: would expel everything within five minutes of using the windy
12:53
Speaker 2: as opposed to fifteen to twenty minutes of screaming, crying
12:55
Speaker 2: baby with direct irrigations. So and I was letting his
13:00
Speaker 2: nurse practitioner, she was calling every week, and I was
13:03
Speaker 2: keeping your updated with everything we were doing. So I
13:09
Speaker 2: felt like I was doing everything very cautiously, you know,
13:12
Speaker 2: very safely. I don't feel like I was reckless in anyway.
13:16
Speaker 2: So so doing the windy was working for us. And
13:22
Speaker 2: I had I had a happy baby at a call baby,
13:24
Speaker 2: he was sleeping great, and he started stooling on his
13:28
Speaker 2: own again, which was big. I did have this nurse
13:33
Speaker 2: practitioner she was like, oh, you know, like we you know,
13:38
Speaker 2: we need you to keep following protocol like he he
13:42
Speaker 2: you know, he's ours for enercolitis and everything, and she
13:46
Speaker 2: kind of put those fears back in my head and
13:49
Speaker 2: it just got me so scared. He was like not
13:51
Speaker 2: even a month old at this point. And so I
13:55
Speaker 2: did start doing rectal irrigations again, and it was the
13:59
Speaker 2: same thing that like happened. I had stressed up me
14:01
Speaker 2: and he stopped stooling on his own. So I did
14:04
Speaker 2: that for like a week. I got back on the
14:06
Speaker 2: rectal irrigations and then I was like, hey, no, I
14:09
Speaker 2: want him back on track to what we were doing,
14:12
Speaker 2: So I stopped the irrigations for sure. So that was
14:18
Speaker 2: June twelve. Yeah, so he was just like a little over.
14:22
Speaker 2: I'm onth bold. When we stopped doing the the rectal
14:25
Speaker 2: irrigations and we got him back on track, inflammation went down.
14:28
Speaker 2: His belly is nice and sopped and squishy, and I
14:30
Speaker 2: had a happy baby, and he started stooling on his own.
14:34
Speaker 2: So so now he's almost five months. He so okay,
14:41
Speaker 2: So this is what I have learned. Like I I
14:44
Speaker 2: honestly kind of do feel like like an expert in
14:47
Speaker 2: some ways because I was talked to like so many people.
14:51
Speaker 2: We're working with GI specialists. I'm working with Cranio Sacrel therapists.
14:56
Speaker 2: He go like, we go and get He's saying, like,
14:59
Speaker 2: you know, chiropractor adjustments, just to make sure his body
15:02
Speaker 2: is all online. Like I'm doing everything I can to
15:04
Speaker 2: aid him so that he can stool the easiest. So
15:10
Speaker 2: things that I've seen that have helped. I've been off
15:13
Speaker 2: of gluten and dairy. He's exclusively breastfed, so I've been
15:18
Speaker 2: off of gluten and dairy and soy and eggs. Okay,
15:21
Speaker 2: So I've noticed that soy and eggs specifically make him
15:25
Speaker 2: really congested, and honestly, I still don't know what that is.
15:29
Speaker 2: Like I've talked to so many doctors and they you know, yeah,
15:32
Speaker 2: like I've gotten him like allergy tested. We went and
15:36
Speaker 2: did like an actual like allergy test, and everything came
15:43
Speaker 2: back that he's not allergic to it, but he could
15:45
Speaker 2: just be sensitive and he dusted the what he's congested.
15:48
Speaker 2: I've noticed he does a stool because he can't like
15:52
Speaker 2: fully like relax because baby, they're their mouth, their nose,
15:58
Speaker 2: so he can't. So in order for him to stool,
16:01
Speaker 2: he has to be like completely relaxed. Because people with
16:03
Speaker 2: Hirschwing disease normally have like a like a shrunken or
16:07
Speaker 2: or a shrunken or a tight sphincter muscle or their
16:10
Speaker 2: rectum is is shrunken. So I'm like, Okay, if that's
16:14
Speaker 2: the case, then he needs, like we need to be
16:16
Speaker 2: doing everything we can so that he's like completely relaxed,
16:19
Speaker 2: so his digestic system can like fully be you know,
16:23
Speaker 2: fully functioned to the best of its ability. So so yeah,
16:29
Speaker 2: so okay, so sorry, back to like what we do
16:33
Speaker 2: for Hastien. So we do like a morning and night
16:36
Speaker 2: routine like his morning Okay, So Hastin is Hastin's almost
16:42
Speaker 2: five months old. He stools every morning like clockwork. Like
16:47
Speaker 2: we have him on a really good routine. I feel
16:50
Speaker 2: like his body is just kind of learned. This cycle
16:55
Speaker 2: of we do is we do a morning routine and
16:58
Speaker 2: a night routine which which includes like a homeopathic remedy
17:05
Speaker 2: that helps him like digest digest breast milk. I take
17:11
Speaker 2: like digestive enzymes. I also have upped my magnesium intake
17:15
Speaker 2: probiotics and food enzymes. So everything that I'm taking is
17:21
Speaker 2: helping me break down everything because breast milk is made
17:24
Speaker 2: from my blood, so I'm really careful of everything that
17:29
Speaker 2: I'm taking in and then I give him probiotics. His
17:34
Speaker 2: homeopathic remedy we do castor oil belly rubs, and we
17:39
Speaker 2: put magnesium honestly every night and and then in the
17:45
Speaker 2: morning he's still so okay, so when he stools is
17:49
Speaker 2: like has to be in the morning that when he's
17:50
Speaker 2: like the most at rest, he's he's relaxed, like completely relaxed,
17:57
Speaker 2: and then he'll stool between like six nine am, like
18:00
Speaker 2: if he doesn't stole by nine am like that, I mean,
18:03
Speaker 2: the day gets busy. He has three older sisters saying
18:06
Speaker 2: he doesn't get to relax as much. So that's been
18:08
Speaker 2: like Key is making sure he's in like a very
18:11
Speaker 2: like relaxed date to help him store.
18:14
Speaker 1: But yeah, I think this is this is a fascinating,
18:18
Speaker 1: fascinating story. And there's there's little bits that you said there.
18:21
Speaker 1: It's quite a big you said there that I find
18:23
Speaker 1: really really interesting. Things like the gut and brain health.
18:30
Speaker 1: I think I was certainly aware that that was, you know,
18:33
Speaker 1: a huge part of a lot of people with stomach
18:38
Speaker 1: is she's not necessarily hirshbrungs, but obviously with hirshbrungs as well.
18:44
Speaker 1: And I didn't realize that that was all developed within
18:46
Speaker 1: the first few months. I thought that was a lot
18:49
Speaker 1: later on.
18:49
Speaker 2: Okay, So so yeah, our gut is like our second brain,
18:54
Speaker 2: and the connection that we develop like with well with
18:59
Speaker 2: our guts and our brain Yeah, Yeah, they form like
19:01
Speaker 2: right in those early years very important. It's really like
19:05
Speaker 2: the first like four months. And I just find that
19:08
Speaker 2: so interesting that, Yeah, I don't know, like like just
19:12
Speaker 2: standard protocol, Like I feel like they make it standard
19:16
Speaker 2: protocol just for every single case. They just put a
19:20
Speaker 2: blanket over a Hirshprung Dissey's case that everyone needs this
19:25
Speaker 2: just to kind of because like every case is so
19:28
Speaker 2: individual and unique that it's just it would be too
19:31
Speaker 2: much to like really formulate like their own care plan.
19:36
Speaker 2: So I just like they just put a blanket over
19:38
Speaker 2: it all and just have the standard protocol. Everybody needs
19:40
Speaker 2: to do this. So that's where I'm I'm I you know,
19:45
Speaker 2: I'm just questioning it all, and I want I want
19:48
Speaker 2: this whole to get out there more more widely known,
19:52
Speaker 2: so that there can be more research so that every
19:56
Speaker 2: individual case can have their own specific care plan for
20:00
Speaker 2: that individual.
20:01
Speaker 1: Yeah, definitely, I I think that's really interesting. You're absolutely
20:06
Speaker 1: right when you say everybody's different. I mean, I guess
20:11
Speaker 1: if everyone was the same, I wouldn't have a podcast.
20:13
Speaker 1: So he's good that everyone's different, but everybody because everybody
20:18
Speaker 1: has sort of different parts affected, whether you've got sort
20:21
Speaker 1: of short segment, long segmurn totalal whatever that may be.
20:26
Speaker 1: With Hasten, was it were you ever told how much
20:30
Speaker 1: was potentially affected.
20:32
Speaker 2: His GI specialist. I've I've worked with two different GI specialists,
20:37
Speaker 2: Like I have seen so many doctors. I've seen so
20:40
Speaker 2: many doctors just to get like, I want to hear
20:43
Speaker 2: what everyone has to say, you know, and everyone's opinion,
20:47
Speaker 2: so that I can you know, best go about this
20:50
Speaker 2: for my son. So bold GI specialists told me that
20:56
Speaker 2: he probably has like super short segment her Springs disease.
21:00
Speaker 2: So I'm like, okay, well if that's the case, you know,
21:04
Speaker 2: can he manage this throughout his life? And and they
21:08
Speaker 2: both said yeah, yeah they can, like uh And it's
21:11
Speaker 2: because how I see I know, And it's crazy like
21:14
Speaker 2: talking about this, like ever since this has all been
21:16
Speaker 2: going on, how many people have been like God has
21:20
Speaker 2: just sent into my life. I've had issues with like
21:23
Speaker 2: constipation and certain things because I kind of I don't know,
21:27
Speaker 2: like part of me, I'm like, man, like, how many
21:30
Speaker 2: people would be classified as like a Hirshbrungs disease case
21:36
Speaker 2: had they if they went and got like a rectal
21:39
Speaker 2: why apsley down or something like is hirshbruing disease kind
21:43
Speaker 2: of this like Glori White title for like severe constipation
21:47
Speaker 2: like like that, And uh, I know that's that's arguable,
21:53
Speaker 2: But I just know I know so many people and
21:56
Speaker 2: nobody talks about it because nobody talks about their dom movement.
22:00
Speaker 1: No, No, that is the thing. That is the thing.
22:04
Speaker 1: And you're not the first person to have said that
22:06
Speaker 1: to me. That because the general sort of amount of
22:13
Speaker 1: people of hirshbrungs, generally it's around one in five thousand,
22:18
Speaker 1: is what's been told to me and printed in all
22:21
Speaker 1: sorts of journals all over the place. But then speaking
22:24
Speaker 1: to a lot of GI specialists, they have said to me, actually,
22:29
Speaker 1: we think it's lower than that. I've had some that
22:33
Speaker 1: says sort of one in three and a half thousand,
22:36
Speaker 1: one in three thousand. So and we'll never know the
22:40
Speaker 1: proper answer, but we'll never be able to count them
22:43
Speaker 1: and all line everybody up in the world and say,
22:45
Speaker 1: have you got hirshbrungs. If you got hirshbrungs. But it's
22:49
Speaker 1: interesting that that number is potentially lower. And I can't
22:55
Speaker 1: say that I have mountains of evidence to produce for that.
22:58
Speaker 1: These are just through people of BO can say, but
23:02
Speaker 1: it's interesting, especially with super short segment or short really yeah,
23:08
Speaker 1: very short segment. The amount of people who are potentially
23:12
Speaker 1: don't know that they have hirshbrungs I think would be
23:16
Speaker 1: a because I don't speak to many parents who have
23:20
Speaker 1: children who have short but really short segment. And is
23:23
Speaker 1: that just because it's really really rare or is that
23:27
Speaker 1: because people don't know they have it? I don't know.
23:32
Speaker 1: It could be really.
23:33
Speaker 2: Interesting and that's what is do I specialist said, is
23:37
Speaker 2: that it is more rare than then maybe, Yeah, it's
23:43
Speaker 2: put out as that it's like true hirshbrings disease. Because
23:48
Speaker 2: when I think of disease, I'm like, because that's something
23:51
Speaker 2: we really crushed them. Like why is this called a disease?
23:54
Speaker 2: Is it because because every like so many cases that
23:58
Speaker 2: I'm meeting on these hirshbrings pages on Facebook about everyone's
24:01
Speaker 2: stories with their babies, their babies are very sick like.
24:05
Speaker 2: And is it the hurt like the lack of gigli
24:08
Speaker 2: on cells that's making them sick or is it the
24:12
Speaker 2: care plan they're going about? Because if you have inflammation
24:16
Speaker 2: in your body, you are at greater risk for infection.
24:20
Speaker 2: So why aren't these doctors focusing on getting the inflammation
24:25
Speaker 2: down and having a healthy gut and having a healthy
24:28
Speaker 2: gut balance and like eating that because there's so many
24:34
Speaker 2: like there's just so many parts to it. And just
24:37
Speaker 2: with our experience with the irrigation one, he like he's
24:42
Speaker 2: having bacteria introduced into his very sensitive colon. So that
24:47
Speaker 2: didn't really make any sense to me. And so I
24:51
Speaker 2: actually got got a body scan done on him to
24:55
Speaker 2: detect the types of bacteria that he had in his
24:58
Speaker 2: gut just everything that was going on with his digestive system.
25:02
Speaker 2: I really wanted to know what was in there. So
25:04
Speaker 2: he had parasites, and I and I am, I got
25:09
Speaker 2: I got me done too, and I had parasites. So
25:12
Speaker 2: I did like a like a parasite dark skins, Like
25:14
Speaker 2: if you have parasites, that's kind of really effect your gut,
25:17
Speaker 2: you know, balance, And if he like his gut is
25:19
Speaker 2: so sensitive. Everyone has parasites if you be in like
25:23
Speaker 2: fish from a restaurant or you know, if you beat
25:26
Speaker 2: in fast food, like if you've swam in a lake,
25:29
Speaker 2: you probably have parasites. But typically, like with healthy people,
25:32
Speaker 2: you have just a greater amount of of good gut
25:38
Speaker 2: bacteria that it you know, can override the parasites. But
25:41
Speaker 2: if you don't, then those parasites can really cause a
25:44
Speaker 2: lot of havoc in your digestive system. So uh, and
25:47
Speaker 2: these babies like they're really they're really sensitive, and so
25:54
Speaker 2: obviously we wanted to do what we can to like
25:56
Speaker 2: get rid of parasites. But he had like a lot
25:58
Speaker 2: of parasites. And the bacteria that the doctor that this
26:01
Speaker 2: doctor saw was specifically bacteria found in hospitals from hospital equipment.
26:09
Speaker 2: So I thought that was very interesting and that's what
26:12
Speaker 2: really made me want to like stop doing directal irrigations.
26:17
Speaker 2: So but what so, So, yeah, doing all my research
26:21
Speaker 2: on the surgery for Hirshbrun's disease and then talking to
26:26
Speaker 2: his surgeon and asking him very hard questions that maybe
26:30
Speaker 2: not a lot of people ask him because they just
26:32
Speaker 2: do whatever the doctor says, I'm like, okay, bottom line,
26:37
Speaker 2: it really looks to me like like he has the
26:40
Speaker 2: same posing risks whether he does the surgery or not,
26:45
Speaker 2: because because yes, right now he's struggling with constipation. If
26:50
Speaker 2: if we go through with the surgery, yes everything can
26:53
Speaker 2: go great. He may not have any issues for the
26:55
Speaker 2: rest of his life. That sounds amazing, But that's not
26:59
Speaker 2: You can't guarantee me that one, And he says, no,
27:01
Speaker 2: I can't. He says, yes, that could happen. But he
27:06
Speaker 2: could also still be at risperon arcolitis. He can also
27:10
Speaker 2: deal with severe constipation. He can also possibly experience incontinence
27:17
Speaker 2: throughout the rest of his life. He could possibly need
27:19
Speaker 2: a repeat surgery. So everything, I'm like, you know where
27:24
Speaker 2: we're at right now. For our individual case, it sounds
27:28
Speaker 2: like the best thing for my sign is to just
27:31
Speaker 2: approach his his condition with the whole body approach and
27:36
Speaker 2: just trying to manage it with an intact colony.
27:41
Speaker 1: Yeah, Dad, it's such an interesting It's such an interesting topic,
27:46
Speaker 1: especially with Hirshbrung's because everybody, like you said, everybody is different,
27:51
Speaker 1: and I think sometimes the one size fits all approach
27:56
Speaker 1: isn't necessarily possible the way to go about it. I'm
28:02
Speaker 1: always open minded with hirsh Bruns and treatments and whatnot,
28:08
Speaker 1: because the last couple of years of doing this, I've
28:11
Speaker 1: learned so much of just everybody's different stories, and I'll
28:16
Speaker 1: be really interested to sort of follow how your story
28:22
Speaker 1: goes because if let's say, I mean, if you know,
28:27
Speaker 1: everything continues the way it is and it's all going
28:29
Speaker 1: really well, you know, you could very much be a
28:33
Speaker 1: medical phenomenon in years to come.
28:36
Speaker 2: Yeah, when I believe the body is so smart and
28:41
Speaker 2: it's like our body is capable, you know, way more
28:44
Speaker 2: than we give it credit for. And because we know
28:49
Speaker 2: we know what we know. You know, we know that
28:51
Speaker 2: that surgery can correct like certain things and uh, and
28:55
Speaker 2: that's just what people feel safe with just going with
28:58
Speaker 2: what you know, what what what doctors know? But yeah,
29:02
Speaker 2: I feel like testing you know, the boundaries and seeing
29:06
Speaker 2: like if there's other routes is really like I I
29:11
Speaker 2: that's that's what. That's what we're doing here. And I
29:14
Speaker 2: feel it like that's best and down the road because
29:18
Speaker 2: I know they are doing research on like you know,
29:21
Speaker 2: some cell therapy and and things like that that I
29:24
Speaker 2: talked with his GI specialists and I know they're just
29:27
Speaker 2: in like the beginning stages of that. But I would
29:31
Speaker 2: rather like I would rather have my son be a
29:34
Speaker 2: guinea pig for that, like we'll be first in line
29:37
Speaker 2: like volunteers. Trito. If anyone's watching this that knows more
29:42
Speaker 2: about like some cell therapy and needs, uh, like when
29:45
Speaker 2: it gets into the like working on human bodies and
29:50
Speaker 2: experimenting on like on actual like cases with human bodies,
29:56
Speaker 2: because I know they're doing like mice or something right now,
29:59
Speaker 2: but I I would much rather do that than like
30:02
Speaker 2: go through with the surgery. Like I would be very
30:05
Speaker 2: interested in knowing like how the body can develop and adapt.
30:10
Speaker 2: So one of the things that Haysten is taking every day,
30:13
Speaker 2: it's called ambertose And this is a supplement. You can
30:18
Speaker 2: look it up. It's by this company called man Man Tug.
30:23
Speaker 2: But anyways, so the amber toase, it helps sell rejuvenation
30:30
Speaker 2: and it helps your cells and like sell like connectivity
30:36
Speaker 2: like with other cells, and it just helps your body
30:39
Speaker 2: like rejuvenate faster. He's been taking this, and I'm I'm
30:44
Speaker 2: just really curious, like how well the body can adapt
30:48
Speaker 2: and like learn to manage itself even with lacking something
30:54
Speaker 2: like how you know, he's he's growing, He's he's turning
30:59
Speaker 2: find mental like this weekend, and I feel like I
31:02
Speaker 2: feel like his body's like learning to adapt with what
31:05
Speaker 2: it has. So because I mean, mother, a person's born
31:10
Speaker 2: blind or you know whatever, Like the body learns in
31:13
Speaker 2: other ways to adapt for the you know, just for
31:18
Speaker 2: the body in order to survive. Like that's just how
31:21
Speaker 2: like our brains work. So yeah, the like the body's
31:26
Speaker 2: really really smart. And I yeah, Hasten will just be
31:30
Speaker 2: kind of an interesting case to see if if he
31:34
Speaker 2: can gap to that. And also just with that's like
31:37
Speaker 2: if he if he needs his whole life to be
31:40
Speaker 2: glue and free, Jerry free, soy free, you know, have
31:42
Speaker 2: like a very specific diet, Like I'm willing to do that.
31:46
Speaker 2: I'm willing to teach him, you know, like how to
31:49
Speaker 2: manage this instead of like having to teach him how
31:53
Speaker 2: to manage a colostomy back or you know all these
31:57
Speaker 2: things like you got to pick into you gotta a
32:00
Speaker 2: battle basically, so I would much rather battle this. We've
32:03
Speaker 2: got like a whole body approach.
32:06
Speaker 1: Definitely. I think stem cell really really interesting topic because
32:12
Speaker 1: I speak to like you said, if other doctors are listening,
32:17
Speaker 1: and I know other doctors do listen because they've told
32:19
Speaker 1: me that they do, so hopefully they're listening to this
32:22
Speaker 1: one as well. But stem cell's really really interesting because
32:27
Speaker 1: I was talking to a surgeon, actually my surgeon who
32:32
Speaker 1: operated on me thirty odd years ago several times, and
32:38
Speaker 1: we were talking about Hirshbrung's and sort of whether it's
32:43
Speaker 1: curable or whether you know whether it's going to be
32:47
Speaker 1: stay as it is now for now until the end
32:49
Speaker 1: of time, and he was very much of the opinion
32:53
Speaker 1: that not within years, but more within sort of several
32:57
Speaker 1: years to maybe a decade or so. He was very
33:01
Speaker 1: very I don't know put words in his mouth here,
33:04
Speaker 1: but he was very kind of optimistic that the experiments
33:10
Speaker 1: going on at the moment are pushing more towards a
33:16
Speaker 1: cure as opposed to where we are at the moment,
33:20
Speaker 1: which is more kind of the management stage of Hirshbrungs.
33:24
Speaker 1: I think people have Hirshbrungs into several different guys, as
33:27
Speaker 1: we mentioned, but people manage them in different ways. Whether
33:31
Speaker 1: it's washouts, whether it's irrigations, whether it's with a stoma,
33:35
Speaker 1: with an ace without stonma, whatever it may be. Everybody
33:39
Speaker 1: kind of manages in their own way, whether it's diet
33:42
Speaker 1: as you mentioned as well. But to have a potential,
33:48
Speaker 1: whether it's regrowing ganglion cells or whether to have a
33:52
Speaker 1: potential cure in decades would be really really interesting. And
33:59
Speaker 1: I'm following up with having doing this podcast for a while,
34:04
Speaker 1: you make sort of connections within the doctoring world, and
34:07
Speaker 1: I'm following up with lots of people. So hopefully when
34:10
Speaker 1: you know, if I'm still doing this in ten years
34:12
Speaker 1: time her who knows, But then hopefully we'll have more
34:18
Speaker 1: of an idea. I'm not saying that we will have
34:20
Speaker 1: a cure. I'm not saying that for a second. But
34:23
Speaker 1: it's interesting that they are pursuing it, and pursuing it
34:29
Speaker 1: quite hard in a lot of places, not just in
34:32
Speaker 1: the UK, but in America as well, doing lots of
34:36
Speaker 1: different tests to see to see if they can regrow
34:41
Speaker 1: ganglion cells, which I think is is really really interesting
34:46
Speaker 1: and just on the point of ganglion.
34:48
Speaker 2: So sorry, go on really quick, Like my how I
34:52
Speaker 2: think about it, Like we're in you know, twenty twenty
34:54
Speaker 2: five here, Like if you can grow a fetus outside
34:58
Speaker 2: of a womb, you know, you can freaking turn a
35:02
Speaker 2: male into a female like these days sick, Like why
35:05
Speaker 2: can't we give my son gangrion cells? Like that is
35:09
Speaker 2: That's like what I've asked, certain, you know, that's just
35:12
Speaker 2: my question. I'm like, why why can't we because I'm sure,
35:17
Speaker 2: I'm sure we can't, like it seems like no braver
35:20
Speaker 2: to me. So yeah, with stumcil therapy, with what you know,
35:24
Speaker 2: the research are doing, I do hope that we find
35:27
Speaker 2: you know, yeah, like a cure for this of how
35:30
Speaker 2: to better manage it.
35:32
Speaker 1: Yeah, yeah, definitely, I think. Well, I mean, any doctors
35:36
Speaker 1: that are listening, then tell me, tell me why we
35:38
Speaker 1: can't grow ganglion cells. Because I'm not a doctor, I
35:41
Speaker 1: have no idea. I'm not even going to a stends like.
35:44
Speaker 2: I know, CLEAs like, I don't.
35:47
Speaker 5: Know, like.
35:50
Speaker 1: I don't know. I but I'm I'm optimistic having spoken
35:55
Speaker 1: to this this surgeon that yeah, that he well he's
36:00
Speaker 1: very optimistic and he knows a trillion times more than
36:04
Speaker 1: I do about everything. So yeah, I'm really it'd be
36:09
Speaker 1: really really interesting to follow that up in several years
36:13
Speaker 1: type and especially you know, if we were to have
36:19
Speaker 1: more of a whether it's a cure or whether it's
36:22
Speaker 1: a better way of managing however it comes, would obviously
36:26
Speaker 1: be very important for well children who are a few
36:29
Speaker 1: months old at the moment, Like, should be really really interesting.
36:33
Speaker 1: So there's another part that you said in your story
36:36
Speaker 1: when the doctors mentioned that ganglion cells were nearby but
36:41
Speaker 1: not in the right place. What did they mean by that?
36:45
Speaker 1: Because I've never heard that before.
36:47
Speaker 5: I know, Ray It kind of made me wonder if, like,
36:51
Speaker 5: who knows what is the normal amount of dingling on
36:55
Speaker 5: cells in like OKRWN you know, and and average was
37:00
Speaker 5: talking about this, but how many people have opened up
37:02
Speaker 5: to me about their bowel movements, because yeah, that's not
37:05
Speaker 5: just like a normal topic that people talk about, but
37:07
Speaker 5: it's maybe.
37:08
Speaker 2: A questions like oh maybe I have hushprings, so yeah,
37:12
Speaker 2: what is like the normal about So it makes me
37:15
Speaker 2: think that like, yeah, wherever they took the biopsy, you know,
37:20
Speaker 2: like yeah, maybe there wasn't gingham cells there, but yeah
37:26
Speaker 2: yeah they like so they said they were nearby. So
37:29
Speaker 2: he had a like he had some but maybe just
37:32
Speaker 2: not like a lot. So maybe maybe some people just
37:37
Speaker 2: are born We're all just born with different amounts of
37:40
Speaker 2: ganglion cells. And some people can get by throughout their life.
37:44
Speaker 2: Some people struggle with constipation throughout their life. But yet
37:49
Speaker 2: like so to me, maybe Hasten doesn't like he maybe
37:54
Speaker 2: he doesn't have like true hirshprings disease because he doesn't
37:58
Speaker 2: have all the symptoms and he is not sick, you know,
38:02
Speaker 2: like because I see with a lot of cases, like
38:05
Speaker 2: on these pages that I'm on Facebook, is that their
38:07
Speaker 2: babies they're they're sick, you know. There their two year
38:10
Speaker 2: olds have been sick since they were diagnosed and they
38:13
Speaker 2: have the surgery, you know, and they've been sick their
38:15
Speaker 2: whole wives and they've gone into like some people some
38:19
Speaker 2: of these stories like they go into the hospital and
38:21
Speaker 2: are coliitis once a month. Like, these babies are sick.
38:25
Speaker 2: They're having a hard time feeding, they're having a hard
38:27
Speaker 2: time keep things down, and they know they're spinning everything up,
38:31
Speaker 2: so they're not gaining weight. They're not on their they're
38:36
Speaker 2: not on their on their their growth chart like following
38:40
Speaker 2: along with their growth chart, and so they're behind. They
38:44
Speaker 2: have low you know, they're they're they have low. Their
38:49
Speaker 2: weight is down, like it's just hard for them to
38:51
Speaker 2: to keep on weight. So hay Sin is a very healthy,
38:56
Speaker 2: happy boy. He's not sick. He does it. I mean
38:59
Speaker 2: that he's fit's up sometimes but it's like a normal
39:02
Speaker 2: baby spin up like and yeah, like nothing about that
39:07
Speaker 2: kid is is sick. He's following perfectly along with his
39:10
Speaker 2: growth chart. So to me, yeah, his giant squecials was
39:14
Speaker 2: the key. Yeah, he doesn't have like this you know,
39:16
Speaker 2: typical hirshbrings disease. And then yeah, just like there were
39:21
Speaker 2: like hirshbrings disease, Like why it just makes you think
39:24
Speaker 2: it's called the disease because a lot of people, I
39:27
Speaker 2: don't know, I don't believe it's being managed in like
39:31
Speaker 2: the best way to make these babies healthy and have
39:33
Speaker 2: a healthy digestive system, especially like without inflammation, and that
39:39
Speaker 2: they are they're sick and they're just like greater risk
39:43
Speaker 2: of getting sick just because of just what we know now.
39:47
Speaker 2: So I want there to be more research done, more
39:51
Speaker 2: just looking at like holistic ways of working with the
39:56
Speaker 2: body instead of like doing interventions that work against body.
40:00
Speaker 1: That makes absolutely sense, as I think, because.
40:03
Speaker 2: It sounds like something like something like like like like
40:07
Speaker 2: leprosy that's like that can get like worse and worse
40:10
Speaker 2: and worse.
40:11
Speaker 5: You know.
40:13
Speaker 2: Yeah, yeah, no, I know they I know what you do. Know.
40:17
Speaker 1: No, we've got slightly old topic, but it's cool. I
40:19
Speaker 1: guess My final question really is the future for Haysten.
40:24
Speaker 1: What what do you see in his sort of near future?
40:28
Speaker 2: So so I asked, I taught. I mean I talk
40:31
Speaker 2: a lot about this with his Jerry specialists because we
40:34
Speaker 2: I mean, we are going to be starting him on
40:35
Speaker 2: solids in a month. And so how I look at
40:39
Speaker 2: it is, we're just going like he needs you know,
40:44
Speaker 2: high fiber low like like low you know, sugars like
40:50
Speaker 2: anything that can cause inflammation in his body, like he
40:53
Speaker 2: can't have, Like we're just not even going to risk it.
40:56
Speaker 2: So we're just going to keep him on very like
40:59
Speaker 2: just like high fiber foods and just do all that
41:04
Speaker 2: we can keep him on the probiotics, on all these
41:07
Speaker 2: supplements and if you know, and so we'll we'll see
41:11
Speaker 2: how it goes. Like I wanted to talk to his
41:13
Speaker 2: GI specialists, if ye know, just whatever whatever we can
41:16
Speaker 2: do to keep his duels soft and easy to digest
41:20
Speaker 2: and pass. So that will be that will be pretty
41:25
Speaker 2: telling like how things are going to be going from
41:27
Speaker 2: there on out once he turned six months. So but
41:32
Speaker 2: I mean, talking about this GI specialist, I'm like, okay,
41:35
Speaker 2: so let's see like worst case scenario. I mean worst
41:39
Speaker 2: cause snowia before surgery obviously, cause surgery is like my
41:42
Speaker 2: last resort because once in a while, like I will
41:47
Speaker 2: give he's in like a suppository. Like if he's congested
41:51
Speaker 2: and he's just having hard I'm like relaxing and like spelling,
41:55
Speaker 2: then I'll give him this pository. Sorry quick, sorry to
42:00
Speaker 2: be off topic. My brain is all over the place.
42:02
Speaker 2: But with the suppository, so times that that we use
42:07
Speaker 2: the suppository, like when I stopped irrigations, I would use
42:11
Speaker 2: the windy you know, and to help him like pass
42:13
Speaker 2: gas kind of like t I would call it, like
42:15
Speaker 2: we would decompress him. I'm like, all right, it's time
42:18
Speaker 2: to decompress him, so he us the windy get out
42:20
Speaker 2: all this gas. If he hadn't pooped, we would use
42:23
Speaker 2: a suppository. And talking to a surge and I'm like,
42:27
Speaker 2: what if we just depository morning and night instead of irrigated,
42:30
Speaker 2: He's like, yeah, that's fine. Yeah, like as long as
42:33
Speaker 2: you're getting if you feel like it's getting everything out,
42:35
Speaker 2: which like I felt like it was like okay, and
42:38
Speaker 2: like it just made no sense because I felt like
42:40
Speaker 2: suppositoring him took literally six you know, within sixty seconds
42:44
Speaker 2: everything would come out. That took fifteen to twenty minutes
42:48
Speaker 2: to like flush him out with this irrigation and at
42:51
Speaker 2: least with this suppository he was still like pushing, because
42:54
Speaker 2: with irrigations, he's not You're not pushing at all, Like
42:57
Speaker 2: you're doing everything for him and it's ruining. That got
43:00
Speaker 2: to brain connection. So anyway, the suppository was really helpful
43:05
Speaker 2: and like replacement of of irrigations. Like I said, I
43:08
Speaker 2: was letting his surgeon know all of this the whole time,
43:11
Speaker 2: so I felt like we were doing everything very cautiously
43:13
Speaker 2: and safely. Okay, So going forward talking to you was
43:18
Speaker 2: GUI specialist, I'm like, hey, like you know, we're just
43:20
Speaker 2: case scenario. We suppository him once a day for the
43:24
Speaker 2: rest of his life. Like I asked it, like is
43:26
Speaker 2: that manageable and he said yes, or like b TK
43:32
Speaker 2: you know botox and it's and in sphincter to like
43:34
Speaker 2: relax it and things like that. I'm not super on
43:39
Speaker 2: board with botox just because like it is injecting him
43:42
Speaker 2: with I mean literally like toxins are in botox, like
43:46
Speaker 2: the full name and anyway, but so I don't really
43:50
Speaker 2: like that route. But if that was like kind of
43:52
Speaker 2: like a last case scenario, I would be willing to
43:54
Speaker 2: do that before surgery is botox, So there are things
43:59
Speaker 2: I haven't tried that I would be willing to try,
44:02
Speaker 2: so we'll just continue to see how Haysten does. But yeah,
44:08
Speaker 2: like I honestly I don't know for sure, like what
44:12
Speaker 2: the future holds if he ends up getting surgery in
44:17
Speaker 2: a year, in ten years, or you know whatever. But
44:21
Speaker 2: I am hoping that I can hold it off and
44:25
Speaker 2: keep him, you know, manageable, and keep everything manageable up
44:30
Speaker 2: until hopefully there is some kind of stum cell therapy
44:34
Speaker 2: and just more research done on what we can do
44:37
Speaker 2: for a lack of ginglion cells and the colon.
44:40
Speaker 1: Yeah, well let's hope so for the future. Thank you
44:43
Speaker 1: so much for coming on and sharing hasten story and
44:48
Speaker 1: just finally, where can people find you on social media
44:51
Speaker 1: and keep up to date with your story?
44:53
Speaker 2: Okay, So my TikTok is my I'm a dual life.
44:58
Speaker 2: Anyone needs an online virtual duel. I know how to
45:02
Speaker 2: help you have a baby very very quickly and as
45:06
Speaker 2: easiest as possible. So my TikTok is Labor of Love
45:10
Speaker 2: two four seven. I give really great tips on birth
45:15
Speaker 2: and pregnancy and labor and delivery and also postpart him.
45:19
Speaker 2: And then I'm also Labor of Love two for seven
45:22
Speaker 2: on Instagram. But My personal Instagram is Tiffo two four seven. Yeah,
45:29
Speaker 2: Ffo two four seven, or you can look me up
45:33
Speaker 2: on Facebook. I am Tiffney Smith on Facebook. There's a
45:37
Speaker 2: lot of a lot fantastic, or you can email me.
45:41
Speaker 2: Go ahead and email me Mama Lama two four seven
45:44
Speaker 2: at gmail dot com. M O M m A l
45:47
Speaker 2: l A m A two four seven at gmail dot com. Brilliant.
45:52
Speaker 1: Well, thank you so much, so much for coming on
45:54
Speaker 1: and I wish you and your family all the very
45:58
Speaker 1: very best for the future.
45:59
Speaker 2: Thank you so much. Tom, I'm just great to talk
46:01
Speaker 2: to you, and yeah, I am. I mean, I'm honestly
46:06
Speaker 2: excited for the future. I'm excited to see what the
46:07
Speaker 2: future holds. And we're all just, you know, kind of
46:10
Speaker 2: working together on this journey. It's exciting. So I hope
46:14
Speaker 2: you the best to you.
46:16
Speaker 1: Thank you, Thank you for listening and being part of
46:21
Speaker 1: this growing community. If you have enjoyed the episode, don't
46:24
Speaker 1: forget to subscribe, leave a review and share it with
46:27
Speaker 1: someone who might need it. You can connect with us
46:30
Speaker 1: on social media via Instagram, Facebook, and TikTok under the
46:34
Speaker 1: name Tom's Hirshprung's Podcast. See you next week.