Latest / Tom's Hirschsprung's Podcast / Episode 90 - With Wim Predhomme

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Episode 90 - With Wim Predhomme · Tom's Hirschsprung's Podcast

• 0:02
  Speaker 1: You are listening to Tom's Hirshprung's Podcast, a space where
• 0:05
  Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
• 0:09
  Speaker 1: live with it, care for someone who has it, or
• 0:12
  Speaker 1: just want to understand more, this podcast is for you.
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  Speaker 1: Each episode, we will explore real stories and honest conversations
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  Speaker 1: about a condition that often goes unheard. Thank you for
• 0:22
  Speaker 1: tuning in. Hello, and welcome to episode ninety of Tom's
• 0:47
  Speaker 1: Hirshprungs Podcast. I am delighted to be joined by metal
• 0:51
  Speaker 1: artists and paraglider Wim Prentham. Wim, Welcome to the podcast.
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  Speaker 2: Hello Tom, Thank you very nice. You that you charge
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  Speaker 2: of me to to invite you to your podcast. Very nice. Yeah,
• 1:08
  Speaker 2: we are not here to talk about diabetics or we
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  Speaker 2: are here about histron So yeah, I have a histrong
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  Speaker 2: disease and I am forty six years old. I am
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  Speaker 2: I live in Antwerp, Belgium, and my life started, as
• 1:27
  Speaker 2: I told you, forty six years ago and they saw
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  Speaker 2: that something was wrong with me. So they taught to research,
• 1:38
  Speaker 2: to do some research and the verdict was that I
• 1:44
  Speaker 2: had historm disease. So in the first one and a
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  Speaker 2: half years. They I have had six surgeries. They tried
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  Speaker 2: first in the first three times they tried to fix
• 1:58
  Speaker 2: it but in one hospital, and then I have the
• 2:03
  Speaker 2: three surgeries in another hospital. So but and the specialist
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  Speaker 2: they told me, yeah, within years it will become more
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  Speaker 2: normal and he will be behave like a normal being,
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  Speaker 2: normal human being, human being. Being. Excuse me, and but
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  Speaker 2: all my ute I have all my life, it is
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  Speaker 2: never being gone. I watched the whole but during my
• 2:32
  Speaker 2: huge it's correct huge. Then I have always have some problems,
• 2:38
  Speaker 2: but I was wasn't aware of them. I shot in
• 2:43
  Speaker 2: my pants all the time, but at that time I
• 2:47
  Speaker 2: just do it. But and afterwards when the kids said, whoa,
• 2:50
  Speaker 2: what is the smell? And I said, oh, yeah, what
• 2:52
  Speaker 2: is that smell? So I knew from oh fuck, I
• 2:55
  Speaker 2: shot my pants and uh, sitting in my pants was
• 2:59
  Speaker 2: still my was still until the age of sixteen, I
• 3:02
  Speaker 2: think something like that. And when I go to to
• 3:06
  Speaker 2: I played soccer football every time in the dressing rooms,
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  Speaker 2: I had to make sure that I was the first
• 3:13
  Speaker 2: in the dressing rooms to clean, to to undress myself
• 3:17
  Speaker 2: and and and put my dirty pants away and everything.
• 3:20
  Speaker 2: And I always went backwards to the shower because my
• 3:25
  Speaker 2: ass was full of shit so that they couldn't see, uh,
• 3:29
  Speaker 2: what was going on. And also yeah, during my first
• 3:36
  Speaker 2: years of my life, I have also some inflammation of
• 3:42
  Speaker 2: my belly balloon inside your belly that holds holds all
• 3:47
  Speaker 2: the organs together, and that starts to inflame. And they
• 3:54
  Speaker 2: told my parents, yeah, we have to give them some antibiotics,
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  Speaker 2: but it's very heavy antibiotics. And and my parents asked, oh,
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  Speaker 2: what will happen then, Yeah, if we don't, there is
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  Speaker 2: a chance he will die. If we give it to him,
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  Speaker 2: then there is a chance that he's hearing will be
• 4:15
  Speaker 2: less or he can be become death. And my parents said, yeah,
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  Speaker 2: it's it's it's it's choosing between life and death. So
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  Speaker 2: they starts the antibiotics and it makes like that my
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  Speaker 2: hearing vessels of how how you coup not a vessel,
• 4:32
  Speaker 2: but the it's some some kind of hearing here here,
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  Speaker 2: like like hearing heres, And it's like a corn field
• 4:41
  Speaker 2: in a corn field, when you touch it, it will bend,
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  Speaker 2: but if you drive over it with a car, it
• 4:50
  Speaker 2: will snap and you can't put it back again because
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  Speaker 2: it's it's broken. And so all my life. Also, I
• 5:00
  Speaker 2: suffered from that period that they give me the heavy
• 5:06
  Speaker 2: life saving antibiotics. Yeah, I always had the dream to
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  Speaker 2: become a pilot, an airline pilot, and unfortunately it wasn't
• 5:16
  Speaker 2: possible anymore because, Yeah, the the historn was the cause
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  Speaker 2: of also of my hearing problems, not directly, of course,
• 5:27
  Speaker 2: but because of the cure. And that were first six
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  Speaker 2: surgeries and last year in twenty twenty four I had
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  Speaker 2: in twenty twenty four September twenty twenty four, almost a
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  Speaker 2: year ago, I had the seventh surgery because I had
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  Speaker 2: in twenty twenty during corona period, I also was fourteen
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  Speaker 2: days in the hospital with an I call it a crisis,
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  Speaker 2: A crisis, a period when my intestines are rotated because
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  Speaker 2: they start to rotate because all of the scar tissues
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  Speaker 2: into my belly from all the surgeries and because of
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  Speaker 2: the scar issues. And that's something I always say to people.
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  Speaker 2: As long as you can close everything between your neck
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  Speaker 2: and your hits, let it close. It's not the long
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  Speaker 2: you can leave it closed it to better, because once
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  Speaker 2: they start cutting it, you have a lot of chance
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  Speaker 2: that it becomes that you will have the scar issues
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  Speaker 2: and then it will start to the skin inside will
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  Speaker 2: start to have you said that the sticker. Yeah. Fuse
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  Speaker 2: for example, if you have two fingers and you will
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  Speaker 2: cut your one finger, you cut off the skin from
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  Speaker 2: both fingers, but very but not only the upper skin,
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  Speaker 2: but the full skin, and you will bind those fingers together.
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  Speaker 2: Then they will grow to together. Then it will be
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  Speaker 2: become then it will be one finger after a while,
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  Speaker 2: and then it's the same inside if you if they
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  Speaker 2: cut it. There is some I don't know, I don't
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  Speaker 2: maybe the same collagen collage gen. Yeah, I think that's right. Yeah,
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  Speaker 2: I can see it here. Call again, Yeah, the same
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  Speaker 2: word coll again collagen. But the collagen from your upper
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  Speaker 2: skin on the outside of your body body is different
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  Speaker 2: from the collagen on the inside of your body. So
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  Speaker 2: it's something with with oxygen and everything. But from the
• 7:45
  Speaker 2: moment that inside of your inside collagen is uh, broad,
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  Speaker 2: I don't know what is uh. I'm sorry, Tom, and
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  Speaker 2: I really appreciate this. When when when the inside collagen
• 8:03
  Speaker 2: is exposed from oxygen and it starts to change from structure,
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  Speaker 2: and that's why they told me last year is September,
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  Speaker 2: there is a possibility the check you have a great
• 8:19
  Speaker 2: a high chance that this is not your love surgery
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  Speaker 2: because the collagen, it's it's like a wound that is healing.
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  Speaker 2: So in the beginning I could, After in September twenty
• 8:34
  Speaker 2: twenty four, I could go to the toilet. After months
• 8:37
  Speaker 2: I have it was okay to go to the toilet.
• 8:40
  Speaker 2: I have no problem to go to the toilet. But
• 8:44
  Speaker 2: after a while it's it's I noticed that that with
• 8:48
  Speaker 2: with with eating some normal food and and and not
• 8:52
  Speaker 2: the light food like they said, I start to notice
• 8:58
  Speaker 2: that it becomes called again. But I drink every day.
• 9:03
  Speaker 2: I take some medication, not some medication. I take a
• 9:07
  Speaker 2: lot of medication, something for my stomach. Stomach to a maltillium.
• 9:14
  Speaker 2: It's called materillium. But it's a medication for your stomach.
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  Speaker 2: That's that will activate your stomach and it will act
• 9:25
  Speaker 2: like a shredder, you know, a shredder for for yeah, yeah,
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  Speaker 2: so then it will activate your stomach like a streader.
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  Speaker 2: And then my also, I take some medication. It's not
• 9:38
  Speaker 2: paid by the the welfare or how you said that,
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  Speaker 2: it's I have to pay it for you. There is
• 9:43
  Speaker 2: no reduction from the healthcare institutions. It will cost me
• 9:50
  Speaker 2: about one hundred euros a month. And also but that's okay,
• 9:55
  Speaker 2: that's okay. When I feel good with it, it's okay.
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  Speaker 2: And I also take some moviical Movi coal. They give
• 10:03
  Speaker 2: it to the elders in the the homes in the
• 10:08
  Speaker 2: eldest one. Yeah, and it's it's a product that you
• 10:13
  Speaker 2: have to solve in water and it just makes your
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  Speaker 2: your yeah ship. But she is not the right for that.
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  Speaker 2: That was your species fecies. Yeah, yeah, very soft. So
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  Speaker 2: they your testing don't have any problems anymore. But the
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  Speaker 2: thing is with here strong. I've noticed the doctors always say,
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  Speaker 2: oh here strong the last and normally the last part
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  Speaker 2: of your column is infected. That's most of the time.
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  Speaker 2: And you also can have here strong in your tin
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  Speaker 2: in testings with your you have your large intesting if
• 11:01
  Speaker 2: you have your colon. But I realized and I know
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  Speaker 2: now that people with heresprum also their whole system, digestion
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  Speaker 2: system is infected. So I always tell to people, so
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  Speaker 2: a normal human being has one billion nerves inside your
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  Speaker 2: your digestion system, but someone with heresprum has maybe five
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  Speaker 2: hundred millions. So that's what I feel. I feel that
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  Speaker 2: my whole digestion system is lazy. I'm lazy from from Natural.
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  Speaker 2: I'm not really lazy, but I like to be lazy,
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  Speaker 2: you know, I would. My favorite quote is from Oscar Wild.
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  Speaker 2: You know Oscar Wild. Oh, yes, and my favorite is
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  Speaker 2: I think it was Oscar Wild and he said, uh,
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  Speaker 2: the most intelligent thing to do is to do nothing. Yeah,
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  Speaker 2: and that just sitting in your chair and doing nothing,
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  Speaker 2: not eating your nails or not, just do nothing. Put
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  Speaker 2: your hands on your lap and just do nothing. And
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  Speaker 2: and right not to sleep, just watch and just do nothing.
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  Speaker 2: But that's one of my that's also one of my
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  Speaker 2: favorite sports, doing nothing. But I have to learn that
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  Speaker 2: what is I also see a human body like a car.
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  Speaker 2: You have, for example, in the digestion system is the
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  Speaker 2: it's the digestian system is the fuel, the fuel and
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  Speaker 2: uh stuff from the car the heart of the engine.
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  Speaker 2: Then you have the brains of the electronics. Your legs
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  Speaker 2: are the tires. Your arms and legs are the tires.
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  Speaker 2: But I don't see myself as as a Porsche or
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  Speaker 2: Ferrari or Lamborghini. But yeah, maybe I watched a porch
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  Speaker 2: or of lamborghinie, but I haven't got the brakes of
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  Speaker 2: of the fuse system of Lamborghinie. So everything was Lamborghinie.
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  Speaker 2: But and I want to act like a Lamborghinie and
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  Speaker 2: I rite. But every time I did that because I
• 13:46
  Speaker 2: have only left one third of my column is left,
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  Speaker 2: so they took two outside. And so it's like you
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  Speaker 2: put for example, if you take a Lamborghini and you
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  Speaker 2: put and you put some some breaks from vauxhel in
• 14:09
  Speaker 2: in Europe, it's it's open. But some vauxhel I know,
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  Speaker 2: I know that car exists in the in the UK.
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  Speaker 2: So you take a Lamborghini and you put some vaux
• 14:19
  Speaker 2: On breaks on that Lamborghinie. You can drive very fast
• 14:24
  Speaker 2: and everything, but at a certain point the brakes will fail. Yeah,
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  Speaker 2: and then the whole car failed. And that's the same
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  Speaker 2: I think with with people who has a chronicle disease
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  Speaker 2: in general. And I have that that, Uh, I start
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  Speaker 2: to notice that I have to listen more so I
• 14:47
  Speaker 2: can work for one hour metal creation. I have to
• 14:52
  Speaker 2: grind a lot, I have to to to do a
• 14:55
  Speaker 2: lot of stuff. But I have also in my little
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  Speaker 2: guard I always now certainly with this weather, I put
• 15:03
  Speaker 2: a share inside and I work one hour, I go
• 15:07
  Speaker 2: to rest for one hour one and a half hour,
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  Speaker 2: I'm going for the rest. Then afterwards I work again.
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  Speaker 2: So my problem is I put it on my Instagram.
• 15:20
  Speaker 2: For example, I made the basement grid just for someone.
• 15:27
  Speaker 2: I made the basement grid so that the water and
• 15:30
  Speaker 2: that people could not But every house has some basement
• 15:34
  Speaker 2: grid so that you can have some air inside and everything.
• 15:39
  Speaker 2: But I work fifteen hours on it, but a normal
• 15:45
  Speaker 2: person could do it in three days. For example, I
• 15:49
  Speaker 2: worked on it three weeks. Yeah. For example, also paragliding.
• 15:54
  Speaker 2: I like paragliding, but you have a lot of disciplines
• 15:56
  Speaker 2: in paragliding, racket sports. You have tennis, you have padel,
• 16:02
  Speaker 2: you have ping pong, you have that. It's the same
• 16:05
  Speaker 2: with paragliding. And I like to fly at the coastline
• 16:11
  Speaker 2: because you can fly a half an hour. You can
• 16:14
  Speaker 2: land immediately, you drink something, you take a nap, you rest,
• 16:20
  Speaker 2: you do it again. So that's I also have an
• 16:25
  Speaker 2: in invalid. I don't know where. I will search it up.
• 16:28
  Speaker 2: Well while I speak, but I don't work officially anymore
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  Speaker 2: because of the high level of disease. I start, I stopped.
• 16:43
  Speaker 2: I need a lot of rest uh and uh wait.
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  Speaker 2: I will search it up disabilities status. I have a
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  Speaker 2: disability status from the government, and I have kind of
• 17:00
  Speaker 2: welfare every every month. But that's also good. It's a
• 17:09
  Speaker 2: good thing from the bad thing for me. I like
• 17:15
  Speaker 2: to enjoy life. But and people see my Instagram and
• 17:19
  Speaker 2: they always see me. I also did some modeling work
• 17:23
  Speaker 2: as a professional model when I was twenty, back in
• 17:27
  Speaker 2: the days when I was more beautiful. But I also
• 17:33
  Speaker 2: did some Mister Belgium contest and everything. Yeah I wanted
• 17:39
  Speaker 2: to do that and and and but but after yeah,
• 17:47
  Speaker 2: I can't tell you so much. But but I I
• 17:51
  Speaker 2: I start to realize that that beauty and everything what
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  Speaker 2: we see in the world on Instagram, on Facebook, we
• 18:00
  Speaker 2: always our most beautiful and besest moments on it. But
• 18:06
  Speaker 2: and people when they see me insert uh and sure,
• 18:12
  Speaker 2: because they see that I that I look good. That's
• 18:16
  Speaker 2: that's what people always told me. Oh yeah, yeah, you
• 18:20
  Speaker 2: look good and and and oh yeah you could do it.
• 18:23
  Speaker 2: But and it's very hard to get some recognition, recognition
• 18:28
  Speaker 2: how you said that other people people don't. It's when
• 18:35
  Speaker 2: they have the flu or a stomach flu or every flu,
• 18:39
  Speaker 2: when they are sick in there and they have diarrhea
• 18:42
  Speaker 2: and everything. Then they start to understand what it is
• 18:46
  Speaker 2: because I tell them I have it every day. I
• 18:48
  Speaker 2: have that feelings. I have that feelings, and it's every
• 18:54
  Speaker 2: day that it decides for me what I can do. Yeah, definitely,
• 19:04
  Speaker 2: that disease decides for us a chronicle patient, even for
• 19:11
  Speaker 2: cancer and everything. It's always in your mind. It never
• 19:16
  Speaker 2: goes away. And that is something I from my last
• 19:23
  Speaker 2: surgery in September, when I was almost a month in
• 19:27
  Speaker 2: the hospital because they cut my belly. They first wanted
• 19:31
  Speaker 2: to see after twenty twenty they suggested me the the
• 19:35
  Speaker 2: treasure the specialist they proposed to go and WA's into
• 19:42
  Speaker 2: the belly by surgery just to see what is wrong
• 19:45
  Speaker 2: and with the sticky and because because I told you
• 19:49
  Speaker 2: about the collagen and everything, how it looks. And we
• 19:54
  Speaker 2: can fly to Mars, we will fly to Titan a
• 19:57
  Speaker 2: moon of statun We will we can turjury. Some do
• 20:03
  Speaker 2: turgery from the UK. The the the churgeon is in
• 20:08
  Speaker 2: the UK and it can do a turgury. In Los Angeles.
• 20:12
  Speaker 2: We can do a lot of things. We have electric cars,
• 20:14
  Speaker 2: we have everything. But they cannot see on a scan
• 20:23
  Speaker 2: or on our X X ray photograph. They cannot see
• 20:28
  Speaker 2: exactly what is going on. And that's something I trust
• 20:36
  Speaker 2: most of the time. I trust the doctors, but I'm
• 20:39
  Speaker 2: always very skeptical because my research what I have done,
• 20:44
  Speaker 2: like like taking some products and see how long it
• 20:48
  Speaker 2: takes before it comes out again, or coronoscopy, coronos copy
• 20:54
  Speaker 2: and everything. But it's that research are still the same
• 21:00
  Speaker 2: as it were as they were thirty years ago. Wow,
• 21:05
  Speaker 2: so that I have the disability stages, I will tell
• 21:10
  Speaker 2: you why I have the disability stages. I have the
• 21:12
  Speaker 2: disability staggies because they it's aware, it's a rare disease.
• 21:20
  Speaker 2: They don't know. I was in April also one week
• 21:24
  Speaker 2: in the hospital because of my column rotation. I have
• 21:28
  Speaker 2: that because of the stickiness. I call it stickiness. I
• 21:32
  Speaker 2: call it the crisis. And they told me. I had
• 21:36
  Speaker 2: four specialists and two children at my bed in my
• 21:41
  Speaker 2: room in the hospital, and they said, yeah, mister Pradam,
• 21:45
  Speaker 2: it's we don't know what to do. We can't help you.
• 21:50
  Speaker 2: We can relight it everything, but we can't help you anymore.
• 21:54
  Speaker 2: We we we don't know what to do. And I
• 21:58
  Speaker 2: told you, I told them you can. Transplantation is it's
• 22:04
  Speaker 2: called it's the word trans from a heart from another
• 22:08
  Speaker 2: person to another person. You can take some even from picks.
• 22:13
  Speaker 2: They start, they they from picks they can take. But
• 22:18
  Speaker 2: they said, yeah, we can transplantate also intestines from bird.
• 22:26
  Speaker 2: They can only do it when you are in the
• 22:30
  Speaker 2: last phase of your life, to real longer, to make
• 22:36
  Speaker 2: really longer, to to lengen to to how you said,
• 22:40
  Speaker 2: to to make sure that your life will be a
• 22:44
  Speaker 2: little bit uh longer than a sort of yeah, exten extend, Yeah,
• 22:52
  Speaker 2: that's the word. If you are probably active, I don't
• 22:57
  Speaker 2: know the word. I'm sorry, it's pallative pallative care. Yeah,
• 23:03
  Speaker 2: if you are taliative, then they can extend your life
• 23:07
  Speaker 2: by do the transplantation from the in testing. But after
• 23:10
  Speaker 2: two years it's finished. Yeah, they that is still a problem.
• 23:18
  Speaker 2: So that's what I said. It's so the opposite in
• 23:23
  Speaker 2: the world that that that they can fly to Mars.
• 23:27
  Speaker 2: They can, they can. But I I start to questioning
• 23:36
  Speaker 2: everything in life, also the doctors, because there are a
• 23:42
  Speaker 2: lot of time that I was very mad and very
• 23:45
  Speaker 2: angry to everybody that I also go to psychiatrist because
• 23:51
  Speaker 2: I haven't. Yeah, I call it an na wait, the
• 24:00
  Speaker 2: problem of behavior a temperament. Yeah, I call it temperament,
• 24:06
  Speaker 2: but yeah, other people will call it aggressive. Aggressive. Ninety
• 24:13
  Speaker 2: five percent of my life i'm the most Not that
• 24:16
  Speaker 2: I'm saying it for myself, but I'm a very gentle
• 24:20
  Speaker 2: and very friendly guy, and I want to I'm very extravert,
• 24:26
  Speaker 2: you know. I always want to stay and tell everybody everything.
• 24:32
  Speaker 2: But five percent of the time, not top five. When
• 24:37
  Speaker 2: I feel that I'm not understand that the people don't
• 24:41
  Speaker 2: understand me, I can be very aggressive. I go to
• 24:46
  Speaker 2: psychiatrist for that. But it's something that came from from
• 24:52
  Speaker 2: when I was a child. I got bullied a lot
• 24:56
  Speaker 2: because because of my hearing problems, I cannot here very well.
• 25:01
  Speaker 2: The the the I said that I'm the the consonants
• 25:12
  Speaker 2: as the C the zep from Zoro, the consonants sorrow
• 25:20
  Speaker 2: consonant O like thousand consonants, Yeah conson sorry, yeah sorry.
• 25:27
  Speaker 2: I I and that I have also a problem. So
• 25:29
  Speaker 2: when you are standing behind me and you say, oh,
• 25:33
  Speaker 2: the Zoro is coming to uh is going to marry
• 25:39
  Speaker 2: with Citronella, Then I said, oh fuck, is it with
• 25:43
  Speaker 2: s H or is it with C? You know what
• 25:45
  Speaker 2: I mean? Yeah, no, I get it. And I got
• 25:49
  Speaker 2: bullied when I was I got bullied a lot, and
• 25:52
  Speaker 2: my dad he told me, but I was not weak.
• 25:56
  Speaker 2: So my dad, Tony, you go to the biggest bully
• 26:00
  Speaker 2: is and you hit them on the face. So they
• 26:03
  Speaker 2: will not have respect for you, but they will be
• 26:07
  Speaker 2: afraid of you. But they the the endrew result will
• 26:12
  Speaker 2: be the same. They leave you. They will leave you.
• 26:14
  Speaker 2: They will not bothery you again. And that's I have
• 26:18
  Speaker 2: a lot of friends, but I always I don't have
• 26:22
  Speaker 2: friends which we which I whom I see every week
• 26:26
  Speaker 2: for example, you know. And the good thing about the
• 26:31
  Speaker 2: paragliding is when I go paragliding, most of the person
• 26:35
  Speaker 2: the same persons are are there. I do I talk
• 26:38
  Speaker 2: with them, but I fly alone, you know. Yeah, I
• 26:42
  Speaker 2: like to be alone also because for example, when I
• 26:45
  Speaker 2: when I'm sick, uh, when I have the historm is
• 26:51
  Speaker 2: extra around, then then I will I want to be alone,
• 26:57
  Speaker 2: so because I know how to take care of it.
• 27:01
  Speaker 2: And yeah, and my wife shees he's always she's probably
• 27:08
  Speaker 2: she is healthy. That she is healthy. She has some
• 27:10
  Speaker 2: back problems, but how many people that's also about the
• 27:16
  Speaker 2: the the government and status. I have a lot of
• 27:22
  Speaker 2: people have back problems and they are our next problem
• 27:25
  Speaker 2: of short problems. But there are in Belgium. I think
• 27:29
  Speaker 2: at least one hundred surgeries back surgeries every day. Wow
• 27:35
  Speaker 2: so low yeah or fifty, but a lot of back
• 27:38
  Speaker 2: surgeries in all the hospitals. We have a lot of
• 27:41
  Speaker 2: hospitals here. But or an appendix problem and the appendix
• 27:46
  Speaker 2: you know the appendix Yeah, yeah, yeah, they cut it also,
• 27:49
  Speaker 2: so a lot of it. But it's our standard urgeries,
• 27:54
  Speaker 2: you know. So they they if you go to a
• 27:57
  Speaker 2: doctor or the government said, ah, you are a year
• 28:00
  Speaker 2: at home for your back. Now it's time to go
• 28:04
  Speaker 2: back to work. But with the Hisgeprung disease, which is
• 28:08
  Speaker 2: a rare disease, they don't know it. So that's that's
• 28:12
  Speaker 2: my benefits in life of having Hishprung disease, because that
• 28:18
  Speaker 2: makes that I can do the metal creations, that I
• 28:24
  Speaker 2: can go paragliding. But about the paragliding, about my disease.
• 28:31
  Speaker 2: I live in Antwerp. It's a flat region here. We
• 28:33
  Speaker 2: call it the flatlands. It's not really the flatland, but
• 28:36
  Speaker 2: the low countries. Hey, we call it the glow countries.
• 28:41
  Speaker 2: But mountain flying, for example, then I have to go,
• 28:44
  Speaker 2: then I have to drive three hours or if I
• 28:46
  Speaker 2: want to go to Front then I have to drive
• 28:48
  Speaker 2: at least six hours. But the problem is the wealth.
• 28:53
  Speaker 2: The healthcare in France is not the same as in Belgium.
• 28:58
  Speaker 2: In Belgium and Holland and probably be the also you're okay,
• 29:01
  Speaker 2: it's very good healthcare. Also a lot of nurse and
• 29:05
  Speaker 2: they feed you. The nurses will feed you when you needed.
• 29:09
  Speaker 2: But in Spain, I know it's from Spain, the nurses
• 29:13
  Speaker 2: only come to inject you with some medication, but they
• 29:17
  Speaker 2: don't help you to to to dress when you also
• 29:21
  Speaker 2: have the all the the probes and everything into your body.
• 29:26
  Speaker 2: They only do that, but they don't feed you. They
• 29:29
  Speaker 2: don't talk with you, they don't come to visit you.
• 29:32
  Speaker 2: In Belgium, also the nurse you can do. You can
• 29:35
  Speaker 2: talk with them. You have psychologists, they come to your room,
• 29:38
  Speaker 2: they talk with you during the day. In the hospital.
• 29:42
  Speaker 2: They say you have to stay in the hospital to
• 29:45
  Speaker 2: take some rest. But believe me, in the hospital in
• 29:48
  Speaker 2: Belgium you can't rest because every time, all the time,
• 29:52
  Speaker 2: there are people in your room, doctors, churches, are church
• 29:56
  Speaker 2: and specialists every time and they start at six o'clock
• 30:01
  Speaker 2: in the morning. Wow, yeah, but that but it's very good.
• 30:07
  Speaker 2: But that's also I'm always afraid to leave the house
• 30:14
  Speaker 2: for a longer period. I I I I've developed during
• 30:20
  Speaker 2: the years also some o c D, you know, obsessive
• 30:26
  Speaker 2: county disorder. It's a good thing when I make some
• 30:30
  Speaker 2: metal creation because I can't stop and it has to
• 30:33
  Speaker 2: be perfect, and and and and. But but when I go,
• 30:40
  Speaker 2: for example, to France, the the the Intestine, Intestine and
• 30:45
  Speaker 2: colon rotation, they come out of nowhere, like I told you,
• 30:50
  Speaker 2: like the Lamborghini. Yeap. When I'm there, I take my
• 30:54
  Speaker 2: medication or when I feel good mentally, Oh, everything is good.
• 31:00
  Speaker 2: The weather, we find that the air is fantastic, a
• 31:03
  Speaker 2: lot of friends. Everybody is happy. Everybody wants to go
• 31:07
  Speaker 2: up and and we go. But then I start when
• 31:10
  Speaker 2: I feel good, then I start to take my medication.
• 31:14
  Speaker 2: Sometimes I have to drink one leader of that movehicle.
• 31:18
  Speaker 2: I have a bottle, special bottle for me with with
• 31:22
  Speaker 2: and on the bottle it's a it's a symbol from
• 31:25
  Speaker 2: a mustache, from musta, so that the children and everybody
• 31:30
  Speaker 2: knows that it is from that that they will not
• 31:33
  Speaker 2: drink it. Uh As soon as you try, then you
• 31:36
  Speaker 2: notice that it is not water. But but it's I
• 31:42
  Speaker 2: have to take the medication today for tomorrow or the
• 31:46
  Speaker 2: day after, you know. So if I'm in the in
• 31:49
  Speaker 2: the in the paragliding scene and I don't take my
• 31:53
  Speaker 2: medication because I feel very good, the day after the
• 31:58
  Speaker 2: two days after, I will comes sick. And when I
• 32:01
  Speaker 2: am sick, there sometimes when the rotation in the column appears,
• 32:10
  Speaker 2: then the pain is indescribable. For example, I I I
• 32:17
  Speaker 2: cut myself in my hands with the grinding machine. I
• 32:22
  Speaker 2: have some foot twisted, I have some I have three motorcycles,
• 32:30
  Speaker 2: uh total total broken accidents. But the pain, it's like
• 32:40
  Speaker 2: kidney like kidney problems. People who have some kidney stone problems,
• 32:44
  Speaker 2: they can they feel what it is. But when I
• 32:48
  Speaker 2: have that pain, I cannot stand on my legs again
• 32:55
  Speaker 2: because I have to bend my my, my, my my
• 32:59
  Speaker 2: legs to to my belly, because when I don't, the
• 33:05
  Speaker 2: belly starts to blow up like a balloon. The typical
• 33:08
  Speaker 2: symbol of histroom is also a balloon, as we know.
• 33:13
  Speaker 2: And everybody who has some histroom will recognize and the
• 33:20
  Speaker 2: and will admit that the feeling of having a balloon feeling.
• 33:27
  Speaker 2: But when the colon starts to rotate, it will Uh,
• 33:31
  Speaker 2: it's like a balloon from a clown. You know that
• 33:35
  Speaker 2: the clinic clowns. They start they make bicycles and and
• 33:39
  Speaker 2: and and all figures with the balloons, but they twish
• 33:43
  Speaker 2: the balloons. And that's the same what happens with the
• 33:46
  Speaker 2: colon and my other intestines. When I have the crisis,
• 33:50
  Speaker 2: then the the and then it means that everything from
• 33:55
  Speaker 2: that twisted up to my mouth is blocked and it
• 34:02
  Speaker 2: can't go away, and it starts to I don't know
• 34:06
  Speaker 2: the words, and it starts to make some air. Yeah,
• 34:10
  Speaker 2: so said the well yeah yeah. And when it starts
• 34:17
  Speaker 2: yeah fermentation, fermentation, okay, yes, yeah, yeah, start to ferment
• 34:23
  Speaker 2: and it starts to normally. They they saw in the
• 34:28
  Speaker 2: in the past many times. A normal column has the
• 34:32
  Speaker 2: diameter of about five centimeters. In UK, I always forget
• 34:37
  Speaker 2: it's five. I think it's two inches.
• 34:40
  Speaker 3: Yeah, I mean I still work in centimeters only act you.
• 34:43
  Speaker 2: Work in centimeters or not? I do? Yes, okay, say
• 34:47
  Speaker 2: what else? Then? Don't five? Five six centimeters? But when
• 34:52
  Speaker 2: that occurs in my belly. They have measured some twelve
• 34:57
  Speaker 2: centimeters eleven twelve centimeters of the colon. So it's like
• 35:03
  Speaker 2: a balloon. If you blow it up, and you blow
• 35:06
  Speaker 2: it up and you let it off the air off,
• 35:08
  Speaker 2: and you do it some one hundred times, then the
• 35:12
  Speaker 2: balloon the rubber will become weak. And after and you
• 35:20
  Speaker 2: do it one hundred times and one hundred and one times,
• 35:24
  Speaker 2: it will collapse because it becomes weak. And it's the
• 35:28
  Speaker 2: same with your intestines. And that's the danger with also
• 35:33
  Speaker 2: when you have heart attack and your blood vessel burst,
• 35:38
  Speaker 2: then you have a problem. Then you you bleed to
• 35:40
  Speaker 2: death inside. And it's the same with with for example,
• 35:44
  Speaker 2: Matthew Perry. You know, of course, the actor Matthew Perry
• 35:48
  Speaker 2: from Friends. He died unfortunately, but he also had an
• 35:56
  Speaker 2: intestine burst in testing that that and he was fourteen
• 36:01
  Speaker 2: days in a coma long before. And then when that happened,
• 36:07
  Speaker 2: you have fifty percent then that you survived because when yeah,
• 36:13
  Speaker 2: it's I can tell a lot. But the main thing
• 36:18
  Speaker 2: is I start with the intestine problem and everything I
• 36:24
  Speaker 2: don't go. That's my point. I don't like to go
• 36:27
  Speaker 2: paragliding alone. I could go this weekend, I go go
• 36:31
  Speaker 2: to the Vox to the Vosques. It's in five hundred kilometers.
• 36:34
  Speaker 2: It's in the East trans very nice region. I can go,
• 36:39
  Speaker 2: but then I have to go alone. But when I
• 36:41
  Speaker 2: have a problem there, the hospital is one hour away
• 36:48
  Speaker 2: then and the pain is indescribable. The good thing about
• 36:54
  Speaker 2: it is I'm a legal junkie. I love it. They
• 36:59
  Speaker 2: start to give me some morphine, some a morphine product.
• 37:03
  Speaker 2: It's called the deep dollor it's a I call it diepy.
• 37:08
  Speaker 2: And when I get that, then I behave like Leonardoo
• 37:14
  Speaker 2: DiCaprio in Wolf of Wolf Street when he drives Lamborghini.
• 37:20
  Speaker 2: I then they also give me a mix of morphine
• 37:26
  Speaker 2: and catamine. Oh wow, I'm sorry. Yeah, I'm not gonna
• 37:29
  Speaker 2: take I'm gonna not make an advertisement for drugs. But
• 37:35
  Speaker 2: I love it. I don't do drugs. I don't drink.
• 37:40
  Speaker 2: I only drink once in the year. Once a year,
• 37:42
  Speaker 2: I take Xanax and I drink ten beers in a
• 37:46
  Speaker 2: half an hour time when I go to tomorrow Land.
• 37:48
  Speaker 2: You know tomorrow Land. Yeah, it's one of the biggest
• 37:52
  Speaker 2: dance festivals. And then I also forget about my problems. Yeah,
• 38:00
  Speaker 2: but that's something with a lot of people. And that's
• 38:05
  Speaker 2: the problem with a lot of people who are chronicle
• 38:08
  Speaker 2: who have a chronicle disease, because they have it, they
• 38:12
  Speaker 2: experience it every day, they start to I said that,
• 38:20
  Speaker 2: because they experience it every day, they they put some
• 38:26
  Speaker 2: stress on their body. They think about it and about thinking.
• 38:31
  Speaker 2: It's like oh, oh, oh, I'm afraid of water. I'm
• 38:34
  Speaker 2: afraid of water. And someone tells you, oh, you have
• 38:37
  Speaker 2: to go to swim, then you start to having stress
• 38:41
  Speaker 2: in advanced And then but if they blindfolded you and
• 38:47
  Speaker 2: they go to swimming pool and they take off the
• 38:53
  Speaker 2: blindfold and they push you into the pool, then there
• 38:59
  Speaker 2: is a chance that that that and of course with
• 39:04
  Speaker 2: with with the reason that with with the knowledge that
• 39:07
  Speaker 2: that person can swim of course, yeah, yeah, in the water,
• 39:12
  Speaker 2: and and and then he will swim and he will
• 39:15
  Speaker 2: be mad and everything, but he don't will have the stress.
• 39:19
  Speaker 2: But when you tell it an how in advance, there
• 39:22
  Speaker 2: is a good chance he will be some not vomiting,
• 39:27
  Speaker 2: but that he will that person will feel sick. Yeah,
• 39:32
  Speaker 2: and and that's also in in the in the hospital,
• 39:35
  Speaker 2: they also they often give me a mix of some
• 39:39
  Speaker 2: morphine product and ketamine. Yeah, yeah, that is awesome, It
• 39:46
  Speaker 2: is really awesome. I often think when when when will
• 39:51
  Speaker 2: I be sick again. But the first hours before the
• 39:55
  Speaker 2: hospital are like going that I'm going to die. Then
• 39:59
  Speaker 2: then it's really felt like I'm going to die. But
• 40:03
  Speaker 2: once in the hospital and they put that needle in
• 40:05
  Speaker 2: my arm or my hands, I know the good stuff
• 40:10
  Speaker 2: is coming. Yeah, and I'm not afraid to die anymore.
• 40:14
  Speaker 2: I I I am. I. Like I said, I told
• 40:21
  Speaker 2: my wife a few months ago, we were driving in
• 40:23
  Speaker 2: the car ark it was a nice day, and I
• 40:27
  Speaker 2: told her, you know, I'm gonna like what I say now,
• 40:30
  Speaker 2: but I'm ready to live this life. I really accept it.
• 40:37
  Speaker 2: I accept my I accept myself. I'm I I am,
• 40:44
  Speaker 2: I am waiting. It's it's okay, if I IF I.
• 40:47
  Speaker 2: When I was in the hospital in September last year,
• 40:51
  Speaker 2: I was so afraid of dying. I as I get
• 40:56
  Speaker 2: a lot of pills and and and medication to to
• 41:01
  Speaker 2: to stay relaxed because from the anxiety attacks. But yeah,
• 41:08
  Speaker 2: and but now the hetrong, I still have I before
• 41:13
  Speaker 2: we start this, uh, this meeting, uh this this podcast.
• 41:19
  Speaker 2: I took also some medication. So I think within in
• 41:23
  Speaker 2: half an hour, I have to I hope I have to.
• 41:25
  Speaker 2: Can I can go to the toilet again? But sometimes
• 41:30
  Speaker 2: if I take my medications and there is it's so
• 41:34
  Speaker 2: that's also a problem with our histron. My wife yesterday
• 41:38
  Speaker 2: see he asked me, whim, did you like the strims
• 41:43
  Speaker 2: and the streams and the and the bread and everything.
• 41:46
  Speaker 2: I said yeah, yeah, And she said you like it?
• 41:50
  Speaker 2: It is something different to eat, and I said, yeah,
• 41:53
  Speaker 2: of course, it's something different to eat. But I I
• 41:57
  Speaker 2: like to eat like a dog or cat every day
• 42:00
  Speaker 2: the same right, because I know when I eat everything
• 42:05
  Speaker 2: every day, an egg and some bacon, I don't have problems.
• 42:09
  Speaker 2: If I eat potatoes, or I eat bread, or I
• 42:12
  Speaker 2: eat right, then I have problems. Yeah, yeah, predictability, yeah,
• 42:18
  Speaker 2: and yeah it's but yeah, for my wife it's it's
• 42:24
  Speaker 2: I think it's sometimes it's more difficult for my wife
• 42:28
  Speaker 2: than it is for me, because a few weeks ago
• 42:33
  Speaker 2: I also have some serious I felt, oh, it's gonna
• 42:37
  Speaker 2: start again. I think my my intestiny is rotating again.
• 42:41
  Speaker 2: I can feel it, and then sometimes I try to
• 42:46
  Speaker 2: to to to to solve it myself. I have to tumble.
• 42:51
  Speaker 2: I always have to do a headstand. I have to
• 42:54
  Speaker 2: stand on my head because only then I can relieve
• 42:58
  Speaker 2: the air. I can fart you cannot fark when I'm
• 43:01
  Speaker 2: standing on my legs. Interesting, I have to lay down.
• 43:07
  Speaker 2: I have to lay I have to lay down at
• 43:09
  Speaker 2: least I have to be at least horizontal. Yeah too fart. So, yeah,
• 43:16
  Speaker 2: we haven't in our in my in the car, my wife.
• 43:19
  Speaker 2: We have an open roof, you know, and then I
• 43:23
  Speaker 2: can uh turn. I'm with my head where my blood
• 43:27
  Speaker 2: has to be, and with my legs up in the air,
• 43:29
  Speaker 2: and then I can. It's like, yeah, how you call
• 43:34
  Speaker 2: that that device when you have some scent in it
• 43:36
  Speaker 2: and you have to turn it around sand timer, san
• 43:40
  Speaker 2: timer exactly? Oh difficult, can it be? San timer? Yeah? Timer?
• 43:46
  Speaker 2: So I have to turn myself around so the air
• 43:49
  Speaker 2: can air is slider? Then then the then then then
• 43:54
  Speaker 2: I have to turn myself upside down too farth. Wow.
• 44:00
  Speaker 2: Always and the fermentation is always happening. Yeah, the moment
• 44:07
  Speaker 2: you eat or drink, there is always some fermentation. Every
• 44:11
  Speaker 2: person fought at least thirty times a day or at night,
• 44:15
  Speaker 2: but sometimes we even don't know it. We all have
• 44:18
  Speaker 2: a backpack to wear. But the thing is do you
• 44:25
  Speaker 2: accept it or don't or you don't or you do
• 44:29
  Speaker 2: not accept it? And if you accept yourself, then you
• 44:32
  Speaker 2: can be good in life. If you don't accept it,
• 44:36
  Speaker 2: you can't be good in life. You will always have
• 44:39
  Speaker 2: big problems. Like I said, healthy people that have thousands problems,
• 44:44
  Speaker 2: sick people have only one problem. I my best friend
• 44:50
  Speaker 2: told me, like you said, you start with high diggities.
• 44:53
  Speaker 2: We predom. He's a metal artist and he's a paraglider.
• 44:57
  Speaker 2: But in the first place, I'm a history. I have
• 45:01
  Speaker 2: here strung. That's my first rule. That's why I also
• 45:05
  Speaker 2: put it on my instac drama account that hestrong. Because
• 45:11
  Speaker 2: of course the genetical things from my mom and dad
• 45:14
  Speaker 2: also are very important. But the way I stand in
• 45:19
  Speaker 2: life now and how I see life is because of
• 45:22
  Speaker 2: the disease. And in one way, I'm grateful that I
• 45:28
  Speaker 2: have it, because now my visions and everything are quite
• 45:36
  Speaker 2: different than the normal person. I think and I often
• 45:42
  Speaker 2: write some quotes down I like from Oscar Wild, but
• 45:44
  Speaker 2: I have thousands of it in my in my mobile
• 45:47
  Speaker 2: phone and on a voice recorded. I have so many
• 45:50
  Speaker 2: quotes about life there is Life is about letting go. Yeah,
• 45:55
  Speaker 2: let go think. That's life. You have to let goa
• 45:59
  Speaker 2: think and a lot of problems is you have to
• 46:03
  Speaker 2: let go persons who are not good to You have
• 46:06
  Speaker 2: to let go people who go go who you love,
• 46:11
  Speaker 2: who has to die, who died. You have to let
• 46:15
  Speaker 2: go emotions, You have to let go everything. You have
• 46:19
  Speaker 2: to let go ship. Ye's my problem. You have a problem.
• 46:22
  Speaker 2: Let go ship. It's life is about let go things,
• 46:28
  Speaker 2: letting go, and the problem is often we cannot say
• 46:34
  Speaker 2: goodbye to it. Yeah, and that's the problem. That is
• 46:38
  Speaker 2: the problem. But life is about letting go things. And
• 46:43
  Speaker 2: the moment that you can realize that and you can
• 46:46
  Speaker 2: feel that, then you you are on the right way.
• 46:50
  Speaker 2: And every person at one time, one moment in their life,
• 46:56
  Speaker 2: they will see it, that letting go and they will
• 47:00
  Speaker 2: see it. And most of the people, the healthy people,
• 47:03
  Speaker 2: they see it when they will breathe their last breath.
• 47:08
  Speaker 2: Then they start to realize when all the elder links
• 47:12
  Speaker 2: in the in the resting homes or you said that
• 47:14
  Speaker 2: in the I said that, the resting home, the care
• 47:17
  Speaker 2: hun Yeah, care homes. Yeah, they they when they are
• 47:23
  Speaker 2: long enough there they they are relaxed. I've never seen
• 47:29
  Speaker 2: an older person jumping around and and and headbang or
• 47:33
  Speaker 2: or or or they accept life. They are ready to die.
• 47:39
  Speaker 2: You you you know what I mean, yeah, I'm, I'm, I'm.
• 47:44
  Speaker 2: I become forty seven years and my wish was I
• 47:49
  Speaker 2: want to live as long as long as I can
• 47:54
  Speaker 2: give my two children to the society. My son is
• 47:59
  Speaker 2: now eighteen years, my daughter is twenty years. They also
• 48:03
  Speaker 2: seen a lot of they seeing what happened with me
• 48:06
  Speaker 2: when I'm very sick in in October when I was
• 48:12
  Speaker 2: in the hospital. I came back at home and the
• 48:15
  Speaker 2: same day they I become again, very very sick with
• 48:19
  Speaker 2: forty one degrees fever. He has to He pulled me
• 48:24
  Speaker 2: out out of the bed. He wear me down the
• 48:28
  Speaker 2: stairs to the car. I often cried, but then I
• 48:34
  Speaker 2: cried and I really thought it was the last time
• 48:37
  Speaker 2: that I spat them. But it's all about accept yourself
• 48:44
  Speaker 2: and accept the situation that you are in and troubles.
• 48:49
  Speaker 2: If you write every trouble or the healthy people, if
• 48:52
  Speaker 2: you write every problem on a post it, you know,
• 48:55
  Speaker 2: post it that sticks to the write it down, put
• 48:58
  Speaker 2: it in in your desk and open the desk one
• 49:04
  Speaker 2: year later, and then look to all your problems that
• 49:07
  Speaker 2: you have. You will see that from the one hundred problem,
• 49:12
  Speaker 2: ninety nine problems are solved. M But that one problem
• 49:19
  Speaker 2: is to your health. And if you are if you
• 49:22
  Speaker 2: have heartrum or diabetics or cancer, it will be still there.
• 49:27
  Speaker 2: And even if a person with cancer is in remission
• 49:31
  Speaker 2: and and they said it is his thenzeb Clark, I
• 49:38
  Speaker 2: said that I don't know the word. It's yeah, wait,
• 49:46
  Speaker 2: this is the cleared cure, the clear then his still
• 49:52
  Speaker 2: will be feel some kind of fear the rest of
• 49:58
  Speaker 2: his life. I I feel always some fear. And other
• 50:03
  Speaker 2: person who I spoke with a lot of hear sprung
• 50:06
  Speaker 2: patients and they said, yeah, once a year or once
• 50:10
  Speaker 2: every so many months, I have to go to the
• 50:13
  Speaker 2: to the to the hospital for a few days. They
• 50:15
  Speaker 2: put a stomach trobe by the nose and they took
• 50:21
  Speaker 2: out all of the the stomach so that the interestings
• 50:25
  Speaker 2: can relax and can go back to the to to
• 50:29
  Speaker 2: the that point they had to work. But yeah, yeah,
• 50:36
  Speaker 2: I can talk for hours about about life, but I
• 50:40
  Speaker 2: think I have to to some some advice to to people.
• 50:44
  Speaker 2: Try try to accept yourself. Yeah, right, to let go,
• 50:50
  Speaker 2: try to let go of the fear. And I do it.
• 50:54
  Speaker 2: It's not the best way. I do it by the
• 50:57
  Speaker 2: good ways, by meditation. Every night, go in bed and
• 51:01
  Speaker 2: I start to meditate, and meditation is not always like
• 51:05
  Speaker 2: being h and pray. Like praying meditation and just feel yourself,
• 51:12
  Speaker 2: feel your body, close your eyes and tell you to yourself.
• 51:16
  Speaker 2: Close your eyes. You feel your eyes, Yeah, go down.
• 51:19
  Speaker 2: You feel your nose, you feel your nose holes, you
• 51:22
  Speaker 2: feel your mouth, and you go down to down under.
• 51:27
  Speaker 2: The problem is you can feel your eyes, you can feel,
• 51:30
  Speaker 2: you can control your eyes, You can control your nose,
• 51:32
  Speaker 2: your mouth, but you cannot control your heart. You cannot
• 51:36
  Speaker 2: control not by conscious being conscious you do control it.
• 51:42
  Speaker 2: But you can lower your heart rate. You can lower
• 51:45
  Speaker 2: your heart rate, right, you can, yes, read you start reading, exercisement,
• 51:51
  Speaker 2: you can lower your heart rate and or you can
• 51:53
  Speaker 2: make it higher. But that's my advice to everybody. Try
• 51:58
  Speaker 2: to accept yourself. And I have to be happy every
• 52:03
  Speaker 2: morning you wake up, because it's a gift. Absolutely it's now.
• 52:11
  Speaker 3: Yes, thank you, Thank you so much for that, and
• 52:13
  Speaker 3: thank you so much for sharing your story and coming
• 52:17
  Speaker 3: on and obviously I wish you all the very very
• 52:21
  Speaker 3: best in the future with your metalwork, your paragliding, and
• 52:26
  Speaker 3: most importantly, as you said, with your health.
• 52:29
  Speaker 2: Yeah, thank you, thank.
• 52:30
  Speaker 1: You, thank you for listening and being part of this
• 52:35
  Speaker 1: growing community. If you have enjoyed the episode, don't forget
• 52:39
  Speaker 1: to subscribe, leave a review, and share it with someone
• 52:42
  Speaker 1: who might need it. You can connect with us on
• 52:44
  Speaker 1: social media via Instagram, Facebook, and TikTok under the name
• 52:48
  Speaker 1: Tom's Hirshprung's Podcast.
• 52:51
  Speaker 2: See you next week.