Latest / Shawna and LaLa: Life Beyond The Mic / When Life Hands You Tragedy
Transcript
- 0:00Speaker 1: From the heart of the city, where the beat meets
- 0:03Speaker 1: the rhythm of your day.
- 0:06Speaker 2: It's Shawna m.
- 0:13Speaker 3: What's up. You're listening to Shauna and Lalla. Check us
- 0:16Speaker 3: out at Shauna and Lala dot com on all social
- 0:19Speaker 3: media platforms at Shauna and La La. You could follow
- 0:23Speaker 3: me on Instagram at the Real Shawna May and.
- 0:27Speaker 1: Check me out at Bella Underscore Lalla one two five.
- 0:31Speaker 3: School is back in session. I cannot believe it.
- 0:35Speaker 1: I know, I hate it every year. I say it
- 0:38Speaker 1: every year. I hate when my son goes to school
- 0:41Speaker 1: because then he's not home. And besides that, it's just
- 0:44Speaker 1: like I think, heaving to get up early. He's in
- 0:48Speaker 1: middle school now, so it's six o'clock. I have to
- 0:50Speaker 1: get up, get him going, and then he you know,
- 0:53Speaker 1: he's out the door by seven. But still it's like, oh,
- 0:55Speaker 1: I just want to sleep in if I could.
- 0:59Speaker 3: Well, we were talking earlier that you know, both of
- 1:03Speaker 3: us and not just both of us, a lot of us,
- 1:06Speaker 3: a lot of people that we both know have been
- 1:08Speaker 3: having trouble sleeping. And I've always had trouble sleeping, but
- 1:13Speaker 3: this has been like insane. Yeah, it's almost like every
- 1:17Speaker 3: hour I'm up tossing, turning. You know, I'm up from
- 1:20Speaker 3: two to four then you know, six o'clock and it's
- 1:24Speaker 3: so annoying.
- 1:26Speaker 1: I don't know. My sister said, oh, it's the moon.
- 1:27Speaker 1: There's a lunary clips or something like that. So I'm
- 1:30Speaker 1: all right, it needs to hurry itself up and get
- 1:33Speaker 1: you know, do what has to do, and let's go
- 1:35Speaker 1: because I need my sleep. Yeah it's I don't.
- 1:38Speaker 3: Know, but you're affected by it all the time.
- 1:40Speaker 1: Yeah, every month, every full moon, that whole week and
- 1:44Speaker 1: like a few days after I don't sleep and I'm like, oh,
- 1:47Speaker 1: it must be the full moon. I look at my calendar. Yeah,
- 1:50Speaker 1: it is a full moon. So it affects me certain people.
- 1:53Speaker 1: They say the moon affects certain people. It doesn't also
- 1:56Speaker 1: for women. A lot of women who get their mental
- 1:59Speaker 1: during the moon, and I do too, so it's kind
- 2:02Speaker 1: of my mental cycle syncs up with the full moon.
- 2:05Speaker 1: I'm like a witch or something. Now. I don't know,
- 2:08Speaker 1: but yeah, hopefully the moon figures her crap out and
- 2:13Speaker 1: I can get some sleep soon.
- 2:15Speaker 3: Well, it has never affected me that I noticed up
- 2:19Speaker 3: until like last week.
- 2:21Speaker 1: Yeah, but that's what my sister said. It was a
- 2:23Speaker 1: lunar eclipse, so something was stronger. I guess something more
- 2:27Speaker 1: crazy this time.
- 2:28Speaker 3: Well, everything is just has been crazy here, not just
- 2:32Speaker 3: in the environment, in the weather, by.
- 2:35Speaker 1: The world, in the world.
- 2:36Speaker 3: It has just been insane.
- 2:39Speaker 1: Like I just, I don't know, very draining. I feel
- 2:44Speaker 1: like lately the world, the environment, that just even the
- 2:47Speaker 1: moon is just draining me, draining my emotional state, my
- 2:51Speaker 1: mental state.
- 2:52Speaker 3: It's like, oh my god, yes, I I'm just that's
- 2:56Speaker 3: how I feel. It was very drained. I always feel drained,
- 3:01Speaker 3: as you know. I went for iron infusions to give
- 3:04Speaker 3: me more energy, and that did not work out very well.
- 3:11Speaker 1: As always, yeah, as.
- 3:12Speaker 3: Usual, something always goes wrong. I was so excited, you know,
- 3:16Speaker 3: the first two times that I had the iron infusions,
- 3:19Speaker 3: I did not have a reaction. I was so excited.
- 3:22Speaker 3: And the third time we go in and they give
- 3:25Speaker 3: me the infusion and my feet swell up and they're
- 3:30Speaker 3: burning and tingling and I can't feel my feet and
- 3:35Speaker 3: they overdosed me.
- 3:37Speaker 1: Yeah, it's insane, Like the medical world is just we
- 3:42Speaker 1: always say this, The lack of common sense in the
- 3:45Speaker 1: medical world is just shocking. It doesn't shock me anymore,
- 3:49Speaker 1: but it is shocking when you come to think like
- 3:51Speaker 1: these people go to school for how long? And yeah,
- 3:55Speaker 1: they're so smart and they can't think of the simplest
- 3:58Speaker 1: little things that are common.
- 3:59Speaker 3: See, come on, Yeah, they did blood work on week
- 4:02Speaker 3: two and supposed to do it on week four. Week two,
- 4:05Speaker 3: they did the blood work, the machine didn't read it. Okay, fine,
- 4:09Speaker 3: I said, I will come back. They said, no, we'll
- 4:11Speaker 3: wait till your next appointment. I go in for my
- 4:15Speaker 3: third infusion. They do the blood work and you know,
- 4:18Speaker 3: I don't know. I don't think anything of it, and
- 4:21Speaker 3: they just they'd give me the infusion. And what they
- 4:24Speaker 3: should have said was, hey, let's wait for your blood work.
- 4:27Speaker 1: So what Shauna was saying is week two and four
- 4:30Speaker 1: they have to do her blood work to check her
- 4:31Speaker 1: ferretin levels, yes, to see her iron levels. Okay, like, hey,
- 4:35Speaker 1: did the first infusion work or the second one, Let's
- 4:38Speaker 1: check your levels to see where you're at if you're
- 4:39Speaker 1: better now. They didn't do that because there was a
- 4:42Speaker 1: problem with that blood result. So they're like, oh, we'll
- 4:45Speaker 1: do your blood before your third infusion. And you know,
- 4:49Speaker 1: Seana is not supposed to know this stuff, but they
- 4:51Speaker 1: should have been like, let's because we didn't check it
- 4:53Speaker 1: week two. Let's check it before we give her this
- 4:56Speaker 1: third infusion.
- 4:57Speaker 3: Exactly, and they did not. So I ended up calling
- 5:01Speaker 3: them and saying, you know, this is what's going on
- 5:04Speaker 3: with me. They asked me if I'm having trouble breathing,
- 5:07Speaker 3: if my throat was closing, blah blah blah, and I said, no,
- 5:10Speaker 3: but my feet are swallowing up. But I can't move
- 5:12Speaker 3: my ankles.
- 5:13Speaker 1: And your leg's hurt. Right.
- 5:15Speaker 3: My legs were in so much pain, excruciating pain from
- 5:19Speaker 3: the swelling and just from being overloaded with iron, and
- 5:24Speaker 3: my toes couldn't bend. I couldn't feel my toes. I
- 5:28Speaker 3: guess that is due to them being well swollen. So
- 5:32Speaker 3: I go to urgent Care, and urgent Care was arguing
- 5:35Speaker 3: with me that it's not the infusion, it's a blood clot.
- 5:39Speaker 3: But what they did not tell me was that the
- 5:43Speaker 3: iron infusions, if you have too much iron, that can
- 5:47Speaker 3: cause a blood clot. They did not say it that way.
- 5:50Speaker 3: They kept saying the it's not the iron infusion, it's
- 5:53Speaker 3: a blood clot. It's a blood clot. Go to the ear,
- 5:56Speaker 3: go to the ar. And I'm not going.
- 5:57Speaker 1: To the er.
- 5:58Speaker 3: I'm here. I know it's not a blood clot. I
- 6:01Speaker 3: know it's the infusion. It literally happened ten fifteen minutes.
- 6:06Speaker 3: We pulled in the driveway and I got out of
- 6:08Speaker 3: the car and I'm like, my feet are burning, Like yeah,
- 6:11Speaker 3: it was almost like I was stepping on a uh patio,
- 6:16Speaker 3: A hot patio, A hot patio. Yeah, in the summer,
- 6:19Speaker 3: with no shoes on. That's what it felt like.
- 6:21Speaker 1: She's the crazy thing is she She's called the infusion
- 6:26Speaker 1: center first and said, hey, I'm having a reaction. I
- 6:29Speaker 1: just left there.
- 6:29Speaker 3: Oh yes, and they said. The lady said to me,
- 6:32Speaker 3: it wasn't my nurse that I spoke to, but she
- 6:35Speaker 3: was on she knows me, and she said, hold on,
- 6:38Speaker 3: let me look at the list of side effects and
- 6:42Speaker 3: see if those side effects are on the list. So
- 6:45Speaker 3: she looks at it and she says, well, those side
- 6:47Speaker 3: effects aren't on the list, so go to urgent care
- 6:51Speaker 3: or go to the.
- 6:52Speaker 1: Er, and so basically telling her it's not from the
- 6:55Speaker 1: infusion exactly when we know it is from the infusion.
- 6:58Speaker 3: Right. So after I go to urgent care, I go home.
- 7:02Speaker 3: They gave me an oral steroid in urgent care and
- 7:06Speaker 3: they had me stay there for like another half hour
- 7:10Speaker 3: and the lady comes in and she's like, how's your legs?
- 7:12Speaker 3: I was like getting bigger. She's like, oh no, this
- 7:14Speaker 3: should not be happening. So she said, by the time
- 7:19Speaker 3: that she came in, the swelling should have gone down
- 7:22Speaker 3: at least a little bit. It did not. She said
- 7:24Speaker 3: to me, well, I called the hematologist on call and
- 7:29Speaker 3: he said that it's not related to the infusion. And
- 7:33Speaker 3: I said, it is related to the infusion. It happened
- 7:37Speaker 3: fifteen minutes after the infusion. M hm, So I go.
- 7:41Speaker 3: She says, listen, Okay, go home, she said, but promise
- 7:44Speaker 3: me if it gets worse, you'll go to the er.
- 7:46Speaker 3: I said, of course I will. So the next day
- 7:49Speaker 3: I go back to urgent Care and what do you know,
- 7:52Speaker 3: my level was a two sixty seven the day of
- 7:56Speaker 3: that I got that infusion, which is high. So the
- 7:59Speaker 3: following day I went back to Lurgerent Care and it
- 8:01Speaker 3: was to seventy eight I think, or to seventy seven,
- 8:06Speaker 3: which is even higher. So my doctor called me and
- 8:10Speaker 3: you know, he apologized and he's like, oh, I got
- 8:13Speaker 3: you in a pickle. And he's a great guy. But
- 8:18Speaker 3: you know, I said, they really should have chucked my
- 8:21Speaker 3: levels beforehand, and you know I would have even come back, yeah,
- 8:26Speaker 3: you know, a different day.
- 8:27Speaker 1: And that's where the lack of common sense comes into
- 8:29Speaker 1: play exactly.
- 8:30Speaker 3: And then I went to the infusion center to tell
- 8:34Speaker 3: them what happened, and the nurse there pretty much gas
- 8:37Speaker 3: lit me and was telling me that it couldn't have
- 8:41Speaker 3: been been.
- 8:42Speaker 1: Nope, not it, it's not nope, sorry, sorry, highly unusual.
- 8:45Speaker 1: It wouldn't be the iron infusion. I was there, guys,
- 8:48Speaker 1: I Shanna could tell you. I was livid. I had paperwork,
- 8:51Speaker 1: I printed up case reports and she's left out this
- 8:54Speaker 1: part a quick Google search. When Shauna texted me the
- 8:57Speaker 1: first time it happened, Hey, I just got back from
- 8:59Speaker 1: my infusion. Feet are swollen this. I just did a
- 9:01Speaker 1: quick Google search.
- 9:02Speaker 3: Yes, I did too.
- 9:03Speaker 1: And that's a common side effect of iron infusions. A
- 9:06Speaker 1: common side effect. It wasn't rare, it's common. And these
- 9:10Speaker 1: nurses look at a sheet instead of let me it's
- 9:13Speaker 1: not on the sheet, but let me google that.
- 9:15Speaker 3: Yeah, they didn't do that.
- 9:16Speaker 1: It's like, no, one wants to just go the extra mile.
- 9:19Speaker 4: No, because doctor Google. They don't believe in doctor Google.
- 9:22Speaker 4: But doctor Google's right exactly. So it's it's just crazy.
- 9:27Speaker 3: It just boggles my mind. It's crazy to me, you know.
- 9:30Speaker 3: And all I kept thinking to myself is we are
- 9:33Speaker 3: in the cancer center. What are they doing to the
- 9:36Speaker 3: other patients that actually have cancer and are getting chemo
- 9:40Speaker 3: radiation and all that. Are they overdosing them too? Because
- 9:44Speaker 3: it's not their job to look at the blood test results,
- 9:48Speaker 3: because that's what they told me, That's what that girl said.
- 9:50Speaker 1: It's not our job too.
- 9:51Speaker 3: The doctor prescribes the infusion, we give the infusion. They
- 9:55Speaker 3: want blood work, week two, week four, We draw it.
- 9:58Speaker 3: It's not our job to look at it. It's the
- 10:00Speaker 3: patient's job to look at it. And if they if
- 10:02Speaker 3: they have questions, they need to contact the doctor. And
- 10:06Speaker 3: I said, well, who would have known?
- 10:09Speaker 1: They took your blood two seconds before your infusion, so
- 10:11Speaker 1: the right thing would have been, you know, sorry, your
- 10:14Speaker 1: blood work didn't work last week when we did this,
- 10:17Speaker 1: So why don't we take the blood now? Are you
- 10:19Speaker 1: okay with coming back later before we give you the
- 10:22Speaker 1: iron infusion so your doctor can see your blood results?
- 10:25Speaker 3: Exactly? Well, in fairness, I would have seen them first,
- 10:29Speaker 3: I think, and then I would have because they come
- 10:32Speaker 3: to my phone.
- 10:33Speaker 1: Oh oh oh blood result. Yeah, I didn't know what
- 10:35Speaker 1: he meant, like seeing the nurse fer stuff.
- 10:36Speaker 3: Oh yeah, No, the blood test results go to your
- 10:39Speaker 3: my chart and I could see them pretty much before the.
- 10:42Speaker 1: Doctor, so you would have known.
- 10:44Speaker 3: So I would have seen like, hey, there it's high
- 10:47Speaker 3: let me call the doctor and make sure that he
- 10:49Speaker 3: still wants me to get this infusion. Yeah, he would
- 10:52Speaker 3: have said, like he told me on the phone, you
- 10:55Speaker 3: didn't you didn't need a third one, and you definitely
- 10:58Speaker 3: don't need a fourth one, so cancel your appointment.
- 11:01Speaker 1: Yep. Yeah, it's it's really in this we always talk about.
- 11:05Speaker 1: This is advocating for yourself. Now we know, and now
- 11:08Speaker 1: you know, showing us spreading the message, like before you
- 11:10Speaker 1: get infusions for any kind of supplement or whatever, check
- 11:13Speaker 1: your blood work. Make sure because you can get overdosed.
- 11:16Speaker 1: You could, like she said, you can get it a
- 11:18Speaker 1: blood clot. It could be really serious. So yeah, and
- 11:21Speaker 1: these doctors and nurses need to do their job more.
- 11:25Speaker 1: And these nurses can't just say if they're working in
- 11:27Speaker 1: a cancer and fusion center, that's a big deal and
- 11:29Speaker 1: they should double check. And I told the lady that,
- 11:33Speaker 1: and she didn't agree with the nurse and she didn't
- 11:35Speaker 1: want to agree that this was from the iron in fusion.
- 11:37Speaker 1: So doctors gaslight you. They don't want to do simple
- 11:40Speaker 1: searches online and just advocate for yourself. You know, that's
- 11:44Speaker 1: that's the best thing that you can do.
- 11:46Speaker 3: I know, I really hope that that urgent care doctor
- 11:49Speaker 3: that me and you both saw, because you were actually
- 11:51Speaker 3: at the urgent care the same time. I was. Yeah,
- 11:56Speaker 3: I hope that he did call the hospital and say
- 12:00Speaker 3: something to them. Yeah, he said he was going to.
- 12:03Speaker 3: He said this shouldn't have happened. He couldn't believe that
- 12:07Speaker 3: we came in with case studies.
- 12:09Speaker 1: Yeah, He's like, I've never had a patient bring in
- 12:11Speaker 1: case studies. I'm like, well, I that's what I do.
- 12:14Speaker 1: That's what I do because I've done this before, and
- 12:17Speaker 1: you guys don't know something, so I gotta teach you.
- 12:19Speaker 3: And you know, he was very thankful, and he actually
- 12:23Speaker 3: from those case studies and the research that me and
- 12:27Speaker 3: Lalla bought him, he actually did do extra blood work
- 12:32Speaker 3: and he did run me run tests for different things,
- 12:36Speaker 3: and all the blood work pretty much came back normal. Yes,
- 12:39Speaker 3: I mean it was a little off because my iron
- 12:42Speaker 3: levels were so high, but in retrospect everything was normal,
- 12:46Speaker 3: thank god.
- 12:46Speaker 1: Yeah.
- 12:47Speaker 3: I meet with the hematologist this week, and that's the
- 12:51Speaker 3: other thing. I couldn't get into see the hematologist or
- 12:54Speaker 3: a hematologist until this week.
- 12:57Speaker 1: Yeah.
- 12:57Speaker 3: So it's just it's crazy to me. The medical just
- 13:00Speaker 3: absolutely just broken.
- 13:04Speaker 1: I know, we need a lot of updating on it.
- 13:06Speaker 1: You know, it's not the worst in the world, but
- 13:08Speaker 1: it's definitely you know, we gotta count our blessings where
- 13:12Speaker 1: we can, but it can use a lot of work.
- 13:14Speaker 3: Yes, And the judicial system is even broken now that
- 13:19Speaker 3: Judge Frank Carprio.
- 13:21Speaker 1: Oh I know he died.
- 13:23Speaker 3: Oh my god, it's so so sad.
- 13:27Speaker 1: Oh it's been it's been one heartbreak after another. I
- 13:30Speaker 1: feel like this month. I'm honestly, I was crying all yesterday,
- 13:34Speaker 1: just so emotional over the stabbing. I'm sure everyone's seen it,
- 13:39Speaker 1: heard about it of Arena and I. When I first
- 13:43Speaker 1: saw it, of course, came in the news, I'm like, oh,
- 13:45Speaker 1: another crime. I was upset. Then last night I saw
- 13:50Speaker 1: the whole footage and guys, it wasn't the stabbing wasn't
- 13:56Speaker 1: traumatizing to me. It was upsetting, of course, disgusting, evil.
- 14:00Speaker 1: But what was what traumatized me and what really messed
- 14:03Speaker 1: me up was the people that just sat there and
- 14:08Speaker 1: watched her die. And that broke my heart and I'm
- 14:12Speaker 1: gonna start crying again. I was sobbing for hours at
- 14:15Speaker 1: my house last night because I was you see the video,
- 14:17Speaker 1: this poor girl she stabbed. They see that she stabbed.
- 14:21Speaker 1: I'm not expecting them to stop the man from stabbing
- 14:24Speaker 1: because you know, my husband's a cop. He tells me
- 14:27Speaker 1: that people are more afraid of a criminal with a
- 14:29Speaker 1: knife versus a gun. Knives are very dangerous. Yeah, Mike
- 14:33Speaker 1: said that, like that that's their worst case scenarios when
- 14:35Speaker 1: someone has a knife, because they can get to you
- 14:38Speaker 1: in a few seconds and do a lot of damage.
- 14:40Speaker 1: You know, I don't know why, that's what he tells me. So,
- 14:45Speaker 1: And you can't really with a gun. You could wrestle
- 14:46Speaker 1: it away when you're close to them, but a knife,
- 14:48Speaker 1: it's hard. You're gonna hurt yourself trying to get that
- 14:50Speaker 1: the knife away from them. So I didn't expect anyone
- 14:53Speaker 1: to jump in and like made the guy stop stabbing
- 14:56Speaker 1: her because it all happened in a few seconds. But
- 14:58Speaker 1: what I did expect was some common human decency, a
- 15:02Speaker 1: human heart to go run over to her and say
- 15:05Speaker 1: are you okay? And put some pressure on that wound
- 15:08Speaker 1: and comfort her and say you're gonna be okay or
- 15:10Speaker 1: I'm sorry, are you you know, give her some love,
- 15:13Speaker 1: give her some some sort.
- 15:15Speaker 4: Of comfort, or call nine one one.
- 15:17Speaker 1: And the girl was looking at them in shock and
- 15:20Speaker 1: like like help me, you know, with her eyes and scared,
- 15:24Speaker 1: and they stared at her and they looked away, and
- 15:26Speaker 1: the one guy ran away, and she just she died
- 15:30Speaker 1: by herself. And the last thing this poor girl knew
- 15:34Speaker 1: was evil. And that breaks my heart that she all
- 15:38Speaker 1: she knew was fear and evil, and not that those
- 15:40Speaker 1: people could have saved her life because she was bleeding
- 15:43Speaker 1: so bad, but just the human touched the human comfort
- 15:47Speaker 1: like you you know me, Shauna. Shauna has been with me.
- 15:50Speaker 1: We've talked about this multiple times. I jump into every
- 15:53Speaker 1: situation she does when I shouldn't. She does, so I
- 15:58Speaker 1: scare Shaona. I don't care how small I am. I
- 16:01Speaker 1: don't care that I'm a woman. I will jump into
- 16:03Speaker 1: any situation to try to save someone or help someone.
- 16:06Speaker 1: And and that's why I think it really hurts me
- 16:10Speaker 1: or disgusts me that they they couldn't even do as
- 16:12Speaker 1: simple are you okay, honey, are you're gonna be fine?
- 16:15Speaker 1: Everything's you know, something to comfort her. They couldn't do that.
- 16:18Speaker 1: You couldn't even do words. You couldn't give her words
- 16:21Speaker 1: of comfort.
- 16:21Speaker 3: The girl that was sitting across from her was just
- 16:24Speaker 3: sitting on her phone.
- 16:24Speaker 1: Right. She looked over, she saw what happened. She looked
- 16:27Speaker 1: at her. They made eye contact, and she looked out
- 16:29Speaker 1: the window like eh, and the girl falls over and
- 16:32Speaker 1: is dying on the floor. And the girl still looks
- 16:35Speaker 1: and doesn't get up.
- 16:35Speaker 3: Oh, I didn't see that part.
- 16:37Speaker 1: It was just it was horrible. It was it traumatized
- 16:39Speaker 1: me more so. Like I said, the stabbing was horrible,
- 16:42Speaker 1: but it was traumatizing watching her die alone when there
- 16:46Speaker 1: was people around her that could have comforted or tried
- 16:48Speaker 1: to put pressure on that wound and no one did.
- 16:51Speaker 1: And it really, it like made me so disappointed in
- 16:54Speaker 1: humanity and it's broken my heart completely. I just I
- 16:59Speaker 1: just keep thinking about those last moments for her, of
- 17:01Speaker 1: just being alone when she didn't have to be. It
- 17:05Speaker 1: speaks volumes. I always bring this up about humans. Now,
- 17:09Speaker 1: Is that we've lost this connection. We've lost some sort
- 17:12Speaker 1: of connection where every I was watching a lot of
- 17:15Speaker 1: Instagram reels where people are saying they witnessed someone get
- 17:18Speaker 1: hit by a car and no one did anything. They
- 17:21Speaker 1: all pulled out their phones to record it, and all
- 17:25Speaker 1: their brain is thinking, Oh, I can't wait to post
- 17:27Speaker 1: this online or I can't wait to send this to
- 17:29Speaker 1: this one. How did we get to this point? What
- 17:32Speaker 1: happened to humanity? And like, I don't understand when that
- 17:37Speaker 1: one time that the guy was about to kill himself
- 17:39Speaker 1: and jump off the bridge and I saw him. I remember,
- 17:42Speaker 1: I told you, so many people just walked past him,
- 17:44Speaker 1: drove past him, no one did anything. I had to
- 17:49Speaker 1: tell my husband pull the car over, that guy's gonna jump,
- 17:52Speaker 1: and my husband wouldn't let me go over to him
- 17:54Speaker 1: because God forbid. So I had to watch my husband
- 17:57Speaker 1: go there and talk him down. So but I'm like,
- 18:00Speaker 1: how many people passed him? How many people didn't give
- 18:03Speaker 1: a crap? How did we get to this point that
- 18:06Speaker 1: we're not looking out for each other, that we're not
- 18:08Speaker 1: helping each other, And it really it's like, I'm so
- 18:11Speaker 1: fearful for my babies in the future. Are we losing
- 18:14Speaker 1: Are we losing compassion? Are we losing that connection with
- 18:18Speaker 1: other human beings? Like it's the phones are not helping that.
- 18:21Speaker 1: That's all people's brains want is Oh, I gotta film this.
- 18:24Speaker 1: I don't want to help. I don't want to get involved.
- 18:26Speaker 1: I'm just gonna film it and go viral. That's what
- 18:28Speaker 1: I feel like it is, especially this younger generation. So
- 18:31Speaker 1: it's like, how do we get that back? How do
- 18:33Speaker 1: we go backwards and bring back humanity, compassion, decency, helping
- 18:37Speaker 1: each other out? I don't know. And they say in
- 18:40Speaker 1: these moments to look for the good, but it's like
- 18:44Speaker 1: it's so hard right now. And you just said we
- 18:47Speaker 1: just got breaking news.
- 18:48Speaker 3: Yeah. Charlie Kirk, who is a activist. He goes to
- 18:52Speaker 3: different colleges and speaks. He was at Utah University and
- 18:56Speaker 3: he just got shot.
- 18:58Speaker 1: Oh my god.
- 18:59Speaker 3: I thought it was gonna be a college student. It
- 19:02Speaker 3: was not. It looks to me to be like an
- 19:04Speaker 3: older man. Yeah, and they did get him. They handcuffed him.
- 19:08Speaker 3: He is now with the police.
- 19:11Speaker 1: Just one thing after another. It's horrible. He has babies.
- 19:14Speaker 1: No matter your political views, guys, no matter our political beliefs,
- 19:19Speaker 1: we cannot be doing this to each other. You love
- 19:22Speaker 1: him or hate him. He has babies at home, he
- 19:24Speaker 1: has a family. There's no need for this violence. I
- 19:28Speaker 1: don't know. I gotta look for the good. I gotta try.
- 19:32Speaker 1: It's just very hard lately, it really is.
- 19:35Speaker 3: Our prayers are with Charlie and all his family.
- 19:39Speaker 1: His poor wife. I can't even imagine right now, his
- 19:42Speaker 1: poor wife and his kids. Oh God, we need to stop.
- 19:45Speaker 1: We need to come together. And I don't know if
- 19:48Speaker 1: that's possible. I really don't, but I'm praying every day
- 19:51Speaker 1: to God that it is possible. I gotta light in
- 19:54Speaker 1: the mood right now, Seana, because I'm I'm gonna be
- 19:56Speaker 1: in tears again. It's like I need, we need some
- 19:59Speaker 1: funny and some positivity.
- 20:01Speaker 3: Right Well, I have nothing funny that happened to me.
- 20:05Speaker 3: I mean besides my feet swallowing up like balloons. But
- 20:09Speaker 3: did you have anything funny that happened to you?
- 20:11Speaker 4: I mean, obviously you do, I always do.
- 20:13Speaker 1: But I want to share this funny story. I mean,
- 20:16Speaker 1: you probably remember showing. It just happened yesterday, So I
- 20:19Speaker 1: if you don't know, I have a Connoli catering business,
- 20:22Speaker 1: and I go to I have a mobile canoli bar
- 20:25Speaker 1: with all the top things. It's really really cool. So
- 20:27Speaker 1: I book a lot of parties, a lot of events.
- 20:29Speaker 1: And our friend from Texas text me and said, hey,
- 20:35Speaker 1: I have a client who's having a big party near you,
- 20:38Speaker 1: about a half hour away from you. Before I offer
- 20:40Speaker 1: your canoli car up to him, you know, is this
- 20:43Speaker 1: something that you'd be interested in? Do you even have
- 20:45Speaker 1: the time because it's tomorrow, you only have you know,
- 20:47Speaker 1: a day's notice. So I said, all right, just send me.
- 20:49Speaker 1: Let me see. She sends me the invitation to the
- 20:52Speaker 1: party and I'm like what, I'm reading it and shawn
- 20:56Speaker 1: I was with Shawna. She's like, what is it. I'm like,
- 20:58Speaker 1: I don't know. I don't even know what the word is.
- 21:01Speaker 1: And I read the invitation to her. It was in Yeah,
- 21:04Speaker 1: a lot of it was Yiddish and it said, with
- 21:08Speaker 1: gratitude to Hashem, you are warmly invited to a brisk mill,
- 21:14Speaker 1: and it was the other part was cut off. And
- 21:17Speaker 1: I said, what's a brice mill? For something for our
- 21:20Speaker 1: dear son? And Seana's like, starts she starts laughing. She's like,
- 21:25Speaker 1: you don't know what that is? I said, no, what
- 21:27Speaker 1: is it? She's like that's when they do the circumcision
- 21:30Speaker 1: of the child. And I'm like what, And I start
- 21:33Speaker 1: laughing because that even made it funnier that she wanted
- 21:36Speaker 1: me to serve Canoles at this baby circumcision. Like you
- 21:41Speaker 1: think about it. You know, Canoli the shape of Connoli
- 21:44Speaker 1: and people always joke about that all the time. So
- 21:47Speaker 1: I started dying. So I messaged this friend back and
- 21:50Speaker 1: I'm like, hey, do you know what that is? And
- 21:54Speaker 1: she's like, no, what is it? So we call her
- 21:57Speaker 1: and we tell her and she starts dying laughing. She's like, oh,
- 22:00Speaker 1: oh my god, I am so glad. I you know,
- 22:02Speaker 1: I reached out first before offering it up to him,
- 22:05Speaker 1: and this is crazy, and you know, we're laughing and
- 22:07Speaker 1: I'm like, yeah, you wanted me to serve Canoli at
- 22:09Speaker 1: a circumcision, you see how Like so she was dying,
- 22:14Speaker 1: but yeah, she's like, I thought it was a baby shower.
- 22:17Speaker 1: It was like a baby shower, So I thought it
- 22:21Speaker 1: was really funny, and you know, it did lift my spirits.
- 22:24Speaker 1: Yesterday I was dying.
- 22:25Speaker 3: We're still laughing about it to that. Yeah, we're in
- 22:28Speaker 3: a group text and just cracking up. Yeah, congratulations to
- 22:32Speaker 3: that family. That had congratulations, new little bundle of joy.
- 22:37Speaker 1: And you know we can add some more positivity to
- 22:39Speaker 1: the show. We talked to the most amazing and gorgeous
- 22:43Speaker 1: let me say gorgeous girl.
- 22:44Speaker 3: I love her.
- 22:45Speaker 1: Yeah, she she her name is Chelsea Hill, so sweet,
- 22:49Speaker 1: she's a mama, and we had an amazing interview with her.
- 22:53Speaker 1: So that should lift our spirits.
- 22:55Speaker 3: On the show. Today we have CEO and influencer Chelsea Hill,
- 23:02Speaker 3: and I have followed her for years. I followed her.
- 23:06Speaker 3: I don't even know how I found you. I think
- 23:09Speaker 3: I was just maybe searching the Abilities Expo probably or
- 23:13Speaker 3: you know, disabled like entertainer or disabled influencer or something.
- 23:19Speaker 3: And because we are trying to get into that space,
- 23:23Speaker 3: and I just love your content and love what you do,
- 23:26Speaker 3: and I just had to have you on the show.
- 23:29Speaker 2: Oh, thank you so much. I'm excited to chat with
- 23:32Speaker 2: you guys.
- 23:32Speaker 3: Yes, so I know you were in a horrible, horrible
- 23:37Speaker 3: car accident at seventeen, But how did that change your life?
- 23:41Speaker 3: Obviously that was life changing.
- 23:43Speaker 2: Yeah, you know my entire life. I grew up knowing
- 23:47Speaker 2: I wanted to be a dancer. I didn't really know
- 23:49Speaker 2: what that meant, but I was like I want to
- 23:51Speaker 2: be touring and beyond music videos. Like I would wake
- 23:55Speaker 2: up every morning and before school I would watch just
- 23:57Speaker 2: like so many music videos on like mtvv one, like
- 24:01Speaker 2: all the time. That's what I just grew up watching.
- 24:03Speaker 2: And I was like, I want to be in music videos.
- 24:05Speaker 2: So I knew I wanted to be a dancer, but
- 24:07Speaker 2: I didn't know what that like meant or like how
- 24:10Speaker 2: that would transpire into like a career. I knew I
- 24:13Speaker 2: wanted to move to Los Angeles, but being classified as
- 24:17Speaker 2: disabled at the age of seventeen, I was like, what
- 24:19Speaker 2: does that mean? I didn't know anybody with really a disability.
- 24:22Speaker 2: I didn't know anybody with the spinal cord injury. So honestly,
- 24:25Speaker 2: it flipped my entire world upside down, same with my
- 24:28Speaker 2: family and my friends. And I felt like in the beginning,
- 24:32Speaker 2: you know, relearning how to just like sit in my
- 24:35Speaker 2: body was just you know, it was everything was different. Everything.
- 24:41Speaker 3: Yeah, I can't even imagine. I mean, I was born
- 24:44Speaker 3: with CP and I had to learn how to do
- 24:47Speaker 3: things differently.
- 24:49Speaker 2: Yeah. One of my first friends when I got injured,
- 24:52Speaker 2: her name is Kayla, and she is incredible. She reached
- 24:57Speaker 2: out to me because she lived in the town next
- 24:59Speaker 2: to me and she had strip with palsy, and she
- 25:02Speaker 2: would just be like, let's go get dinner, let's go
- 25:04Speaker 2: get lunch, let's go and I was like okay, like yeah,
- 25:07Speaker 2: and we were just talking about things about just being disabled,
- 25:10Speaker 2: and you know, she was disabled her whole life. So
- 25:12Speaker 2: like being able to know somebody that early on into
- 25:15Speaker 2: my injury was really really helpful.
- 25:17Speaker 3: Yeah. I have found that, you know, people kind of
- 25:21Speaker 3: enter your life and then they leave you. You know,
- 25:24Speaker 3: you don't fit what their life is going to be,
- 25:26Speaker 3: but that's fine.
- 25:27Speaker 2: Yeah, I think, you know, with a lot of my
- 25:29Speaker 2: friends in high school and stuff like I think, just
- 25:32Speaker 2: naturally in high school your friends go off and they
- 25:34Speaker 2: go to college. I thought I was going to go
- 25:36Speaker 2: off and go, you know, to college like my friends
- 25:38Speaker 2: and move out of my town. And that just wasn't
- 25:41Speaker 2: in the cards for me. I guess you could say. Yeah,
- 25:45Speaker 2: And so you know, my friends, we all still stay
- 25:47Speaker 2: in touch. But I love being able to watch them
- 25:49Speaker 2: go off and do their own thing. But I kind
- 25:51Speaker 2: of felt like, okay, well what about me, Like, now
- 25:54Speaker 2: what do I do? I'm you know, paralyzed, still in
- 25:56Speaker 2: my hometown. And then I was like, well, I'm going
- 25:59Speaker 2: to move to Los Angele. So I was on a
- 26:00Speaker 2: reality show, but that that brought me to to kind
- 26:04Speaker 2: of like, you know, see what the next step would be.
- 26:07Speaker 3: And what reality show were you on?
- 26:09Speaker 2: I was on a show called push Girls on the
- 26:11Speaker 2: Sundance Channel.
- 26:13Speaker 4: Okay, yeah, yeah, I know that's awesome.
- 26:17Speaker 3: So what are the roletts and what inspired you to
- 26:22Speaker 3: create that movement? It's a huge women's movement. We love it.
- 26:29Speaker 2: Thank you. You know. I honestly just wanted friends. Honestly,
- 26:35Speaker 2: in the very beginning, I just wanted to meet other
- 26:36Speaker 2: people that were like me. And because of Push Girls,
- 26:40Speaker 2: I kind of had this like platform on social media
- 26:42Speaker 2: that I could. I reached out to some girls and
- 26:44Speaker 2: I was like, Hey, do you want to come, you know,
- 26:46Speaker 2: hang out in my hometown. Do you want to maybe
- 26:48Speaker 2: dance and can get dinner, We'll have some sleepovers. And
- 26:51Speaker 2: six of them said yes, We'll all six of them.
- 26:53Speaker 2: I reached out. She said yes, and so they came
- 26:55Speaker 2: to my hometown in twenty twelve and we did dance classes,
- 27:00Speaker 2: we went to dinner, we will rolled around Target. We
- 27:02Speaker 2: had to sleepover some house. They were literally sleeping on
- 27:04Speaker 2: the floor of my house, Like I don't know, we
- 27:07Speaker 2: honestly didn't know what we were doing back then, and
- 27:09Speaker 2: it was just really nice to be able to like
- 27:10Speaker 2: be in my hometown and show also my hometown like
- 27:13Speaker 2: I'm not the only person that has a spinal cord
- 27:15Speaker 2: injury that's young, you know, I'm not the only person
- 27:18Speaker 2: that like made a mistake and became paralyzed. Like that
- 27:21Speaker 2: was really like my driving force is I wanted friends,
- 27:24Speaker 2: and I also wanted to show my community that, like
- 27:26Speaker 2: I wasn't the only person that was like young disabled
- 27:29Speaker 2: and wanted to like move on with their lives. At
- 27:31Speaker 2: the time, so because my accent in my hometown was
- 27:33Speaker 2: so big, nobody knew of anybody really with the disability,
- 27:37Speaker 2: and so for me, I started because I wanted something.
- 27:41Speaker 2: And then now it's I don't know, every year it's
- 27:44Speaker 2: different because every year we have like different girls that
- 27:46Speaker 2: come in, and it's been really cool to see girls
- 27:48Speaker 2: come and be part of Rolettes and then be like,
- 27:51Speaker 2: oh wait, I want to go back to college, or
- 27:53Speaker 2: I really love photography, or I want to go get married.
- 27:55Speaker 2: Like it's really really cool to kind of see this
- 27:57Speaker 2: like evolution and Rolettes is kind of just grown with me,
- 28:01Speaker 2: you know, like when I was I don't know, twenty
- 28:04Speaker 2: one when I first started it, maybe twenty one, I
- 28:06Speaker 2: hear it, maybe something like that. Two and to where
- 28:10Speaker 2: I am now thirty three and I'm married with a kid.
- 28:12Speaker 2: You know, it's it's really cool to just see how
- 28:14Speaker 2: it's just blossomed and grown. I can't wait to see
- 28:17Speaker 2: what the future holds.
- 28:18Speaker 3: Did you ever imagine you'd be working with Lady Gaga?
- 28:24Speaker 2: No? Never. It's crazy because actually one of the first
- 28:28Speaker 2: songs that I danced to when I was paralyzed was
- 28:32Speaker 2: a Lady Gaga song, and it was crazy to see that,
- 28:35Speaker 2: like me performing for my first time in my wheelchair
- 28:39Speaker 2: was to a Lady Gaga song. It was like in
- 28:41Speaker 2: the mix. And to now be like, oh my god,
- 28:44Speaker 2: I was in one of her like fan music videos.
- 28:45Speaker 2: It's just a really cool, full circle moment, and it
- 28:48Speaker 2: makes me want to like go back and hug that
- 28:50Speaker 2: like little seventeen year old Chelsea that was like in
- 28:52Speaker 2: the hospital and be like it's gonna be okay. So
- 28:55Speaker 2: that's just really cool. So definitely full circle.
- 28:58Speaker 3: Amazing.
- 28:59Speaker 1: That's a dream come true.
- 29:00Speaker 3: I know.
- 29:02Speaker 1: Thanks, So you're not only the CEO of Rolettes. But
- 29:05Speaker 1: you're a disabled mom a performer, and how do you
- 29:08Speaker 1: juggle I'm a mom, so how do you juggle both
- 29:10Speaker 1: motherhood and running a business and traveling? Like, how do
- 29:14Speaker 1: you do that?
- 29:15Speaker 2: I will be honest, there's times I don't. There is
- 29:18Speaker 2: times I cannot handle it. Sometimes I'm like, wow, I
- 29:21Speaker 2: really bid off more than I can chew, for sure.
- 29:24Speaker 2: But I will say that it takes a village, and
- 29:30Speaker 2: I'm really trying to figure out a way to show
- 29:34Speaker 2: how it takes a village because I don't want everyone
- 29:36Speaker 2: seeing like, oh, she's doing it all because I don't
- 29:39Speaker 2: like I have an incredible team behind me. I have
- 29:41Speaker 2: an incredible like the rolettes are amazing. Connor who runs
- 29:44Speaker 2: the social media, is amazing. Brias our COEO. You know,
- 29:47Speaker 2: we brought on a board, so like, I am really
- 29:50Speaker 2: trying to show that, like Rolette's experience is not it's
- 29:53Speaker 2: not just me anymore. It is so many more people
- 29:56Speaker 2: behind the scenes. So I will say it takes a village,
- 30:00Speaker 2: and I feel like I really built up for this
- 30:03Speaker 2: moment to be able to be like, Okay, I can
- 30:04Speaker 2: kind of take a step back, and Rolettes are self
- 30:07Speaker 2: sufficient rolettes experience is self sufficient, and I can just
- 30:10Speaker 2: like some days just be mom and not be like, Okay,
- 30:13Speaker 2: I have the CEO hat on, then I have a
- 30:15Speaker 2: friend hat on, and then I'm mom, and then I'm wife,
- 30:17Speaker 2: and then I'm oh, yeah, I'm disabled too. So I
- 30:19Speaker 2: have all of that stuff on top of it. Like
- 30:21Speaker 2: it's it is a lot, but it takes a village,
- 30:24Speaker 2: it really really does. And I can't say that I
- 30:26Speaker 2: do it all on my own because I don't.
- 30:29Speaker 1: Oh that's good, you need the sport. Everybody needs a
- 30:32Speaker 1: support and I wish that everyone could have support, and
- 30:34Speaker 1: they're not us moms. We have a lot on our
- 30:38Speaker 1: plates and a lot that no one even sees what
- 30:40Speaker 1: do they call it, the yeah, invisible like checklists, and
- 30:43Speaker 1: I had constantly going.
- 30:45Speaker 2: On rush absolutely and it's crazy that, like, you know,
- 30:48Speaker 2: I never grew up around like kids younger than me, right,
- 30:52Speaker 2: Like I was the baby of the family, so like
- 30:54Speaker 2: all my cousins were like all older than me, and
- 30:56Speaker 2: I was always like the baby. My mom is the
- 30:58Speaker 2: baby of you know, her sisters, and I was the
- 31:00Speaker 2: baby of all my cousins. So growing up like I
- 31:03Speaker 2: was never around kids, so I didn't really understand like, oh,
- 31:06Speaker 2: moms have a lot, Like I always knew they did, right,
- 31:09Speaker 2: But then being a mom, holy moly, Like you're not
- 31:14Speaker 2: only thinking about like all of your stuff for the checklist,
- 31:16Speaker 2: and you're like packing the lunches and then you're getting
- 31:18Speaker 2: them ready and then bathtime, you know, nighttime routine war.
- 31:22Speaker 2: It's honestly, it's a lot of fun. It's a lot
- 31:24Speaker 2: of fun. But I will say, like when I feel
- 31:27Speaker 2: like I have too much on my plate, it's that's
- 31:31Speaker 2: when I'm like, whoa, Okay, I have to figure out
- 31:33Speaker 2: like how to get things off my plate now, you.
- 31:35Speaker 3: Know, Yes, yeah it's hard. I mean I don't have kids,
- 31:39Speaker 3: but I see what goes through.
- 31:41Speaker 2: Yeah, it's a lot, but yeah, and then adding on
- 31:43Speaker 2: the disability factor of it, you know, like scheduling yourself
- 31:46Speaker 2: or like making sure you're resting, getting off your butt,
- 31:49Speaker 2: making sure you're going to the bathroom, like making sure
- 31:52Speaker 2: you have all your catheter is, making like it's you know, yeah,
- 31:55Speaker 2: it's a lot. And yeah, being pregnant also with the disability.
- 31:59Speaker 2: I being pregnant, I loved it. I was living my
- 32:03Speaker 2: best life. The first three months, I was incredibly sick,
- 32:06Speaker 2: but I was little my best life. But it definitely
- 32:10Speaker 2: I feel like being pregnant made me realize like how
- 32:14Speaker 2: truly truly strong like I was, you know, like I
- 32:18Speaker 2: was like it was all also probably all the hormones.
- 32:20Speaker 2: I was like, I could take on the world, you know,
- 32:22Speaker 2: And now I'm like, oh my god, that was a lot.
- 32:25Speaker 1: It is a lot. It is, especially when you have
- 32:28Speaker 1: an illness or disability. It's it's a whole different ballpark.
- 32:31Speaker 1: And then you're met with doctors probably I don't know
- 32:33Speaker 1: if you went through that where they're like, I've never
- 32:35Speaker 1: dealt with this before. Let's figure this out and let
- 32:37Speaker 1: you know.
- 32:38Speaker 2: Yeah, I my, it's interesting, Like and I wish I
- 32:42Speaker 2: could just talk to a board of doctors and be like,
- 32:46Speaker 2: can we figure out how to make streamlining disability and
- 32:50Speaker 2: pregnancy better because I feel like for the nine months,
- 32:53Speaker 2: I was like so diligent about making sure that my
- 32:56Speaker 2: anstaesiologist knew like I have spine, I have a spine injury,
- 33:00Speaker 2: I have rods in my back. I made sure everyone
- 33:03Speaker 2: knew what was going on, and literally they were like, oh, yeah,
- 33:06Speaker 2: it'll be fine. I went in to give birth and
- 33:09Speaker 2: they were like, we can't give you an epideral, and
- 33:11Speaker 2: I was like, excuse me, what what you knew I
- 33:15Speaker 2: was coming in for the last nine months and you
- 33:17Speaker 2: all of a sudden can't do it. So I just
- 33:19Speaker 2: wish like if they knew that ahead of time, that
- 33:22Speaker 2: they would have been like, hey, these are the other
- 33:24Speaker 2: steps we're going to make. And I could have been
- 33:26Speaker 2: ready for it because I labored for sixteen hours with
- 33:29Speaker 2: no pain meds. Because so I was like, all right, fine,
- 33:32Speaker 2: I'm gonna be awake from my daughter's birth. And I
- 33:35Speaker 2: fought and fought and fought and then ended up not
- 33:37Speaker 2: working out. But yeah, I just wish I could like
- 33:40Speaker 2: be more involved in that, I know, educational process of it,
- 33:44Speaker 2: you know.
- 33:44Speaker 1: Yeah, maybe that's the next step for you, you know, right, yeah.
- 33:48Speaker 2: Maybe maybe baby number two.
- 33:51Speaker 3: I think we have to educate these doctors, you know.
- 33:55Speaker 3: I have found that that is my mission is to
- 33:58Speaker 3: educate these doctors. I think they know it all and
- 34:02Speaker 3: say like, not everyone is the same. Yeah, everyone is different,
- 34:06Speaker 3: and we know our bodies.
- 34:09Speaker 2: Yeah exactly, And sometimes they have to actually listen to
- 34:12Speaker 2: us because I think sometimes we also know what's going
- 34:14Speaker 2: on in our bodies and we're not all the same. Right,
- 34:17Speaker 2: like every spinal cord injury is not the same. Every
- 34:19Speaker 2: person with cerebral palsy isn't the same. Like it's very interesting,
- 34:23Speaker 2: but yeah.
- 34:24Speaker 3: Yeah exactly. I mean they I remember I just was
- 34:27Speaker 3: supposed to get an MRI don and they wouldn't do
- 34:30Speaker 3: it because my arms don't extend and I had rods
- 34:33Speaker 3: in my spine and they went through the whole thing
- 34:36Speaker 3: and the cardiologist was like, are you kidding me.
- 34:40Speaker 1: I'm like, yeah, they wouldn't do it.
- 34:42Speaker 2: They wouldn't do it, and she's like crazy. It's also
- 34:47Speaker 2: too I went to get an MRI on my shoulder
- 34:49Speaker 2: because I tore my shoulder. I have a tear in
- 34:52Speaker 2: both my shoulders actually, but in my left shoulder. It
- 34:54Speaker 2: was last year, and they like put me through the
- 34:57Speaker 2: ring or trying to figure out if I could go
- 34:59Speaker 2: get an MRID. I was like, you guys, I could
- 35:01Speaker 2: get an MRI and they're like, well, you can't go
- 35:03Speaker 2: to this facility because like you have to walk to
- 35:05Speaker 2: the MRI table. I said no, I don't like what.
- 35:08Speaker 2: So I literally fought them and fought them and I
- 35:10Speaker 2: almost like filed something. So I was like, you guys,
- 35:12Speaker 2: this is discrimination, Like I can transfer from my chair
- 35:16Speaker 2: to the MRI machine, like you guys don't have to
- 35:18Speaker 2: lift me. It was it was like just when people
- 35:22Speaker 2: don't when they're not educated, and then they just assume,
- 35:25Speaker 2: they just like shut it down. So yeah, I think
- 35:27Speaker 2: the more we can advocate and the more we can
- 35:29Speaker 2: talk about things, the better.
- 35:31Speaker 3: Yeah.
- 35:31Speaker 1: I think that they find they cover their buck by
- 35:34Speaker 1: just shutting you down. I don't know, it's scary. It's
- 35:37Speaker 1: scary for the person going through it. Like you probably
- 35:39Speaker 1: not scared, but you know, like what the heck's going on? Yeah,
- 35:42Speaker 1: when I was pregnant with my astome, my guy I know,
- 35:46Speaker 1: was like, you can't give birth, don't You can't give
- 35:50Speaker 1: birth naturally, we can't do a C section. I said, well,
- 35:52Speaker 1: then how's the baby coming out? I don't know. I
- 35:54Speaker 1: don't know how it's going to come out. You have
- 35:56Speaker 1: scar tissue. And I was scared. And I think that
- 35:59Speaker 1: if a doctor doesn't know, they shouldn't just say that
- 36:01Speaker 1: to you. They should go research it first so you
- 36:03Speaker 1: don't freak like I'm like, oh, this baby's fucking me.
- 36:06Speaker 2: Like, yeah, like baby's coming out either way, I wear
- 36:09Speaker 2: another it's coming out.
- 36:12Speaker 1: Yeah, But yes, we have to figure out a way
- 36:15Speaker 1: to get doctors to understand this and advocate for ourselves.
- 36:18Speaker 1: And it's a lot of extra work.
- 36:20Speaker 3: Yeah, So how do you handle doubts of discouragement, especially
- 36:27Speaker 3: as a CEO and a leader that every woman looks
- 36:32Speaker 3: up to. I mean, you have a huge fan base.
- 36:36Speaker 3: Our disability community follows you. My personal friends in wheelchairs,
- 36:42Speaker 3: they follow you. My one friend, I was like so
- 36:44Speaker 3: excited that I was interviewing you. I was talking to
- 36:47Speaker 3: her about it, and she's like, oh, I want to
- 36:49Speaker 3: take her class, like her experience. She's like, but she's like,
- 36:52Speaker 3: I'm just so nervous. She's like I just talked myself
- 36:55Speaker 3: out of it. You have to not do that, Like
- 36:58Speaker 3: you can't do that.
- 36:59Speaker 2: Yeah. So I will say one thing, I there's sometimes
- 37:04Speaker 2: a part of me that's like I don't give a
- 37:06Speaker 2: I don't care, you know, like where I'm like I'm
- 37:08Speaker 2: gonna do whatever I want. I'm gonna do whatever I want.
- 37:11Speaker 2: But then there's another side of me that's like I'm
- 37:14Speaker 2: terrified that I'm gonna make the wrong move or I'm
- 37:16Speaker 2: gonna like do something wrong. And I think like both
- 37:21Speaker 2: personalities can like exist where you can be like bals
- 37:25Speaker 2: the wall, like, let's go I don't care, Like, let's
- 37:28Speaker 2: build an entire role, let's experience and then figure it
- 37:31Speaker 2: out when we get there. And then the other side
- 37:33Speaker 2: of me is like, well, I don't want to mess
- 37:35Speaker 2: up and I don't want you know. So I think,
- 37:37Speaker 2: like I do doubt myself a lot, but also I
- 37:41Speaker 2: don't if that makes sense, Like I think sometimes I'm
- 37:44Speaker 2: like I have this like imposter syndrome that like we
- 37:48Speaker 2: would talk about in Bounless Babe Society that like I
- 37:51Speaker 2: think it's normal to feel like this imposter syndrome to
- 37:54Speaker 2: be like is this really me? Because I mean on
- 37:56Speaker 2: social media, people are like, oh my gosh, like and
- 38:00Speaker 2: then for me, I'm like, listen, I'm just like you guys,
- 38:02Speaker 2: Like I just have been doing social media for ten years,
- 38:06Speaker 2: so like, you know, I'm not new to this world
- 38:09Speaker 2: of like social media. But like I think when people
- 38:11Speaker 2: get to know me and they see me, they realize
- 38:13Speaker 2: that I'm just like their other friends, you know. Yeah,
- 38:17Speaker 2: but yeah, I think, like, yes, I doubt myself a lot,
- 38:20Speaker 2: but also I think what pushes me with Rolette's experience
- 38:25Speaker 2: is a few things, Like I started it because I
- 38:29Speaker 2: wanted that I grew up in the competitive dance world,
- 38:32Speaker 2: and when I became paralyzed, I was like, wait, there's
- 38:34Speaker 2: no platform for people with disabilities to like compete, and
- 38:37Speaker 2: there's no platform for like a community of people like
- 38:40Speaker 2: all girls just to get together and hang out like what.
- 38:42Speaker 2: So I was just like, all right, I want to
- 38:44Speaker 2: I want to start it. So my dad really plays
- 38:48Speaker 2: a big role in that, where he was like, well,
- 38:50Speaker 2: let's just do it. Like he never would be like well,
- 38:53Speaker 2: I don't know how. He'd just be like all right,
- 38:55Speaker 2: let's do it, like okay, And I think, yeah, like
- 38:58Speaker 2: we'll figure out as we go. And I think, like
- 38:59Speaker 2: how that mentality early on into my diagnosis was like
- 39:04Speaker 2: a blessing because I never saw no as an answer.
- 39:08Speaker 2: I never saw a door that I couldn't unlock. You know,
- 39:10Speaker 2: I may not have been able to have the key,
- 39:12Speaker 2: but I could find it and I could unlock it
- 39:13Speaker 2: kind of thing. So I think with everyone that it's
- 39:17Speaker 2: nervous to go to Rolette's experience, I think it's one
- 39:19Speaker 2: of those things that you kind of just got to
- 39:21Speaker 2: give it a try and just say fuck it and
- 39:24Speaker 2: go yeah, because you know, you never know who you're
- 39:27Speaker 2: gonna meet every single year. Rolette experience is so different
- 39:30Speaker 2: from the last. Like you may have a great time
- 39:32Speaker 2: one year and the next year might be like, all right,
- 39:34Speaker 2: this was okay, or you might then the next year
- 39:36Speaker 2: might be like that was the best experience ever. So
- 39:39Speaker 2: it just depends on the year, depends on who's going,
- 39:42Speaker 2: and depends on how you go into the weekend mentally
- 39:45Speaker 2: as well.
- 39:46Speaker 3: So if somebody wanted to sign up, is it is
- 39:49Speaker 3: it in one place? So like my friend would fly
- 39:52Speaker 3: out to California.
- 39:53Speaker 2: Yeah, So usually what it is is we have it
- 39:55Speaker 2: at the Sheraton right by Lax. So we always have
- 39:58Speaker 2: it at Lax now blest my gosh, five years because
- 40:01Speaker 2: it's right by a central you know, airport. So then
- 40:05Speaker 2: you fly into Lax, there's an accessible shuttle that picks
- 40:07Speaker 2: you up, takes you the Sheraton, and then you just
- 40:09Speaker 2: stay there the whole time. So we picked the Sheraton
- 40:12Speaker 2: because it's actually the only hotel in California that has
- 40:16Speaker 2: forty four accessible rooms. Every other place has like max
- 40:20Speaker 2: twenty one rooms that are accessible. When you have two
- 40:23Speaker 2: hundred and fifty minimum people in wheelchairs coming in from
- 40:26Speaker 2: all over the world, doesn't really work. So we actually
- 40:29Speaker 2: have like multiple hotels that we do room blocks with,
- 40:32Speaker 2: but you stay there the whole time, and it's usually
- 40:35Speaker 2: like a Thursday to Sunday. This year was Wednesday was
- 40:38Speaker 2: our Boundless Talent Showcase, and then Rolltz Experience started Thursday.
- 40:42Speaker 2: Next year, twenty twenty six, we are switching it up
- 40:44Speaker 2: a little bit more, so we'll probably be announcing that
- 40:48Speaker 2: in like November this year.
- 40:50Speaker 3: But awesome, Yeah, And do you go? Do you personally
- 40:54Speaker 3: go every year?
- 40:55Speaker 2: Well, every single year. I haven't missed one year.
- 40:57Speaker 1: Oh my gods, amazing.
- 40:58Speaker 2: And even for twenty twenty we went fully virtual. We
- 41:01Speaker 2: literally produced an entire show like top not Show in
- 41:04Speaker 2: twenty twenty. It was legit. It was so cool. Now
- 41:08Speaker 2: every year I go, JJ goes, my husband goes. This year,
- 41:12Speaker 2: I actually got reminded that like I am not what's
- 41:18Speaker 2: the word, like, I'm not a superwoman. Saturday morning, my
- 41:22Speaker 2: uti hit me like a ton of bricks and I
- 41:27Speaker 2: was so incredibly sick. Saturday morning, I was like prolonging.
- 41:31Speaker 2: I was like drinking water, drinking cambrid juice, taking my Alura,
- 41:34Speaker 2: like taking all the stuff ones and then Saturday my
- 41:37Speaker 2: body shut down. Seven months of planning roles experience like
- 41:41Speaker 2: and he was like, remember you're disabled, you need to chill.
- 41:44Speaker 2: And so I was sick from like all night Saturday
- 41:48Speaker 2: morning till like three o'clock in the afternoon, and I just.
- 41:52Speaker 3: Oh, my gosh.
- 41:53Speaker 1: Yeah, you can't plan for everything, right, It's horrible. It's horrible.
- 41:56Speaker 2: Yeah, And I was like crying in my hotel room.
- 41:59Speaker 2: I have vlogged. I have a second vlog coming out
- 42:01Speaker 2: next week, but I was like crying in my hotel
- 42:03Speaker 2: room because I just felt like I was letting everyone down,
- 42:05Speaker 2: you know, like it was my first year. I was
- 42:07Speaker 2: gonna be able to teach the kids class and do
- 42:09Speaker 2: a music video with them, and I just felt so bad.
- 42:13Speaker 2: But I'm not superwoman. I can think, but I'm not.
- 42:16Speaker 3: Yeah, well we know that.
- 42:19Speaker 1: Yeah, you have to take care of yourself and it
- 42:23Speaker 1: does suck. Your body's gonna tell you slow down. You know,
- 42:26Speaker 1: I'm in charge exactly.
- 42:30Speaker 3: So if you could go back and talk to your
- 42:32Speaker 3: younger self before your accident, what would you tell her now,
- 42:36Speaker 3: knowing what you've built and achieved being disabled and being
- 42:43Speaker 3: an adult.
- 42:43Speaker 2: Now, I would honestly tell her that I would just
- 42:49Speaker 2: say it, hold on tight. Because this is gonna be
- 42:51Speaker 2: a wild ride and everything that you've ever wanted is
- 42:55Speaker 2: going to be the same but different, and you're gonna
- 42:59Speaker 2: be able to go and do everything you want. It's
- 43:01Speaker 2: just gonna look a little different. And I don't think
- 43:03Speaker 2: I would tell her everything that would happen, but I
- 43:06Speaker 2: would just be like, trust me, you'll be okay, you know,
- 43:09Speaker 2: Like I think so many people look at us and
- 43:12Speaker 2: they're like, oh my gosh, they can't walk, and it's like,
- 43:14Speaker 2: that's the least of my worries at this point. Yeah, ladder,
- 43:17Speaker 2: the bow, the like bone density. I'm like, we got
- 43:19Speaker 2: other things we have to deal with, like other things
- 43:21Speaker 2: you have to worry about later in life. Like the
- 43:23Speaker 2: walking is I can achieve. I can achieve everything I
- 43:26Speaker 2: want and not walk Like that's fine. It's the it's
- 43:30Speaker 2: the actual, like what happens to our body that I'm like, Okay,
- 43:33Speaker 2: I need your body, you know.
- 43:35Speaker 4: So, yes, I suffer from IBS.
- 43:38Speaker 2: Yeah, so I feel your girl. Yeah rough, it's rough,
- 43:42Speaker 2: and a lot of people don't realize like walking at
- 43:44Speaker 2: the least of a lot of our worries, especially when
- 43:46Speaker 2: you've like been your whole life disabled, like you're like
- 43:49Speaker 2: I have other things that I wish could like be
- 43:51Speaker 2: easier than just walking, you know.
- 43:53Speaker 3: So yeah, I have trouble walking far distances, so I
- 43:56Speaker 3: have like a little transport chair, and I find you
- 44:00Speaker 3: probably have found that some of these transport chairs are
- 44:05Speaker 3: not built for us, Like there's not a small chair
- 44:10Speaker 3: for me. So I'm in this like ginormous thing and
- 44:15Speaker 3: it's just it's a mess. I mean, I'll probably see
- 44:18Speaker 3: you at the Abilities Expo and yeah, you're gonna be like.
- 44:21Speaker 1: Wow, but it's crazy.
- 44:24Speaker 3: That yeah, I don't have And they actually when I
- 44:26Speaker 3: was at the Abilities Expo, they said there's not a
- 44:29Speaker 3: market for small chairs for adults. I said, I'm not
- 44:32Speaker 3: the only four foot thirty six year old, Yeah, with
- 44:36Speaker 3: a disability, trust me, there's a market.
- 44:38Speaker 2: There is, Yeah, And I think people don't they just
- 44:41Speaker 2: look at it. It's such like a wide scope where
- 44:43Speaker 2: it's like if some if one person needs it, there's
- 44:46Speaker 2: way more people that need it. They just don't know
- 44:48Speaker 2: how to like advocate for their self, or they're not
- 44:50Speaker 2: like out there quote unquote enough, or you know, there's
- 44:54Speaker 2: there is if you need it, there's a lot of
- 44:56Speaker 2: other people that need it. And that's why I think
- 44:57Speaker 2: I've learned about just like what I do is with
- 45:00Speaker 2: Rollot's experience. I'm like, if I needed it, then I
- 45:03Speaker 2: literally put out on social media. We went from thirty
- 45:05Speaker 2: two people to one hundred and fifteen in one year.
- 45:08Speaker 1: Like wow.
- 45:09Speaker 2: And that's when I was like the wow, more people
- 45:12Speaker 2: need it, you know. So I think that's with every industry.
- 45:14Speaker 2: I think that's like in the medical field, in dance, whatever.
- 45:18Speaker 2: But like, if you need it, someone else needs it,
- 45:20Speaker 2: you know, see it being done. If you want to
- 45:23Speaker 2: create it, create it because there'll be a lot of
- 45:25Speaker 2: people that need it, you know.
- 45:26Speaker 3: Yeah, except I'm not handy in the well in the
- 45:30Speaker 3: architecture space.
- 45:31Speaker 1: To somebody and I do some research.
- 45:34Speaker 3: You never know, yeah, you never know. What advice would
- 45:37Speaker 3: you give to young women with disabilities like us who
- 45:42Speaker 3: want to turn their passion into a career or a
- 45:45Speaker 3: business and be successful.
- 45:48Speaker 2: That's a great question. What would I say? I would say,
- 45:52Speaker 2: find other like minded people that are interested in the
- 45:56Speaker 2: same thing as you. If you can't find them, reach
- 45:58Speaker 2: out on social media and that doesn't work, then just
- 46:01Speaker 2: start it and get the word out there. Because I
- 46:04Speaker 2: feel like with me along my journey of last like
- 46:08Speaker 2: fifteen years of just pushing something that I was passionate about.
- 46:12Speaker 2: What I found is when you're passionate about something, it's
- 46:15Speaker 2: going to attract other people that are also passionate, or
- 46:18Speaker 2: that not only are passionate about what you're passionate about,
- 46:20Speaker 2: but they're passionate about you and they believe in you.
- 46:22Speaker 2: And I think if when people believe in you as
- 46:24Speaker 2: a person, then like you can take over the world.
- 46:27Speaker 2: Like I didn't know. I knew what I wanted with
- 46:31Speaker 2: Rollot's experience, but I didn't know how to get there.
- 46:33Speaker 2: So I was like, all right, I'm just going to
- 46:35Speaker 2: do it myself and show everyone what I want to do,
- 46:37Speaker 2: and that's what I've been doing. But I think what
- 46:40Speaker 2: I would tell someone is find someone that's like you,
- 46:43Speaker 2: that is interested in the same things, and if you
- 46:45Speaker 2: can't do that, then find people that are passionate about
- 46:47Speaker 2: you and that want to support you, and then it'll
- 46:50Speaker 2: all fall into place.
- 46:51Speaker 3: I think, Yeah, I love that.
- 46:53Speaker 1: I love it.
- 46:55Speaker 3: We need to take that advice.
- 46:56Speaker 1: Yes, yeah, if you can make people that's true, like
- 47:00Speaker 1: they fall in love with you, they'll fall in love
- 47:02Speaker 1: with anything you do and they will support you. Yeah,
- 47:05Speaker 1: sometimes more than your close people that are close to you,
- 47:07Speaker 1: you know.
- 47:07Speaker 2: Exactly, yes, yes, And I think too, like, you know,
- 47:12Speaker 2: really what I've done the last few years is really
- 47:14Speaker 2: just take a deep dive and like what do I
- 47:16Speaker 2: want Rolette experience to be? What do I want it
- 47:18Speaker 2: to look like? What do I want these women to
- 47:19Speaker 2: come in the doors? And what I want them to feel?
- 47:21Speaker 2: And I want them to feel community, sisterhood and connection
- 47:25Speaker 2: like whatever that means to them and whatever scale. And
- 47:29Speaker 2: I think like making sure that when you have an
- 47:31Speaker 2: idea like branding yourself and getting like your color is
- 47:35Speaker 2: getting your logo, and just like being consistent, people rely
- 47:38Speaker 2: on consistency. So I think there's a lot that you know,
- 47:42Speaker 2: there's a lot that comes to it, but I think
- 47:45Speaker 2: over time, once you're doing I think people will be like,
- 47:47Speaker 2: oh I get it. I want to help you.
- 47:48Speaker 1: Know, yeah?
- 47:51Speaker 3: Absolutely?
- 47:52Speaker 4: Is there anything else you would like us to mention?
- 47:55Speaker 2: So we have our Boundless Talent Showcase, which is actually
- 47:58Speaker 2: our fourth year of doing doing it. So we created
- 48:02Speaker 2: it Connor and I and Joe Connor and I on
- 48:05Speaker 2: the team. We both were competitive dancers before we were injured,
- 48:09Speaker 2: and so being paralyzed, we're like, why isn't there like
- 48:11Speaker 2: a competitive platform for the arts, Like, yes, there's Miss
- 48:15Speaker 2: Wheelchair California, Miss Wheelchair USA, but there's not like a
- 48:19Speaker 2: platform where everyone with disabilitis can come to and like
- 48:23Speaker 2: compete for like a title or compete for a trophy.
- 48:26Speaker 2: And I think for me growing up in that world,
- 48:28Speaker 2: I was like it it really like made me who
- 48:31Speaker 2: I am of being able to like strive for something
- 48:34Speaker 2: that was bigger than you know me. It was a
- 48:36Speaker 2: big trophy. So when Connor and I were like, all right,
- 48:39Speaker 2: let's do it, we started it. It's called Balance Talent
- 48:42Speaker 2: Showcase and it happens every year and this year was
- 48:45Speaker 2: our fourth year, and we have people that come and
- 48:48Speaker 2: compete on our stage and it's about we have dance performers,
- 48:52Speaker 2: we have solos, duos, trios, group numbers, we have singers, monologues.
- 48:58Speaker 2: We had an aerial us that came. She had a disability,
- 49:02Speaker 2: So yeah, it was it's been really really cool and
- 49:05Speaker 2: it's all ages, all gender, all disabilities, and everyone just
- 49:09Speaker 2: comes to showcase their their own talent, whatever that talent is.
- 49:13Speaker 2: It can be literally anything except for fire dancing of course,
- 49:17Speaker 2: but it's it's really really cool. So if someone doesn't
- 49:20Speaker 2: want to go to rolets Experience or or they can't,
- 49:22Speaker 2: they can always come and showcase their talent on the
- 49:25Speaker 2: stage and they can win a trophy and we have
- 49:27Speaker 2: grand prize, you know, we have cash prizes and yeah,
- 49:30Speaker 2: a lot of things. It's really cool. This year we
- 49:32Speaker 2: have so cool like over fifty so a contestant that
- 49:37Speaker 2: signed up and compete.
- 49:38Speaker 3: So yeah, wow, really, so how do our listeners if
- 49:42Speaker 3: they want to sign up? How can they do that?
- 49:45Speaker 2: So you just go to Rolettesexperience dot com and all
- 49:49Speaker 2: the roletts Experience information is there, and then all of
- 49:51Speaker 2: our Boundless Talent Showcase information is there as well.
- 49:55Speaker 3: Awesome. Thank you so much Chelsea for coming on the
- 49:58Speaker 3: show today. We really enjoyed high and we can't wait
- 50:02Speaker 3: to meet you at the next Abilities Expo, thank you,
- 50:06Speaker 3: or whenever we're in LA.
- 50:08Speaker 4: Yes, that would be so cool.
- 50:09Speaker 3: We're always traveling and.
- 50:11Speaker 1: If you're in New York, you'll hit us up. We'll
- 50:13Speaker 1: love to meet.
- 50:13Speaker 4: Will be some lunch, really, we will be Yep, when
- 50:17Speaker 4: are you going to be in New York?
- 50:19Speaker 2: The dates are not finalized yet, but we will be
- 50:22Speaker 2: in New York in twenty twenty six.
- 50:23Speaker 1: Oh awesome. Yeah, we'll have to link up if if
- 50:26Speaker 1: you have any free time. If you don't, that's fine.
- 50:28Speaker 2: Well no, absolutely, I will be letting you guys know
- 50:32Speaker 2: when we're coming to the East coast first.
- 50:35Speaker 3: Definitely let us know because we'd love to meet up
- 50:39Speaker 3: with you and our listeners.
- 50:41Speaker 1: Where can they follow her Chelsea Hill on all platforms.
- 50:45Speaker 2: Chelsea Hill on literally everything? Yeah, SEP, Twitter or X
- 50:50Speaker 2: or whatever it's called. I don't know. I don't have that.
- 50:52Speaker 1: Yeah, I don't either.
- 50:53Speaker 3: We don't either. We have enough with Instagram and.
- 50:57Speaker 1: Facebook, you too, Oh my gosh.
- 51:01Speaker 3: You know we need our own social media person. We
- 51:03Speaker 3: really do. And it's too much, too much to handle.
- 51:07Speaker 2: It is it is. Thank you guys so much for
- 51:09Speaker 2: having me. It's great to be able to chat with
- 51:11Speaker 2: you guys.
- 51:12Speaker 3: And that's the show for this week. Thank you so
- 51:14Speaker 3: much for tuning in. Check out our website Shaunaandlala dot com.
- 51:21Speaker 3: Check out our social media pages. Everything is at Shauna
- 51:24Speaker 3: and Laala. Be sure to follow me on Instagram at
- 51:27Speaker 3: the real Shawna May and check.
- 51:29Speaker 1: Me out at Bella Underscore La La one two five.
- 51:32Speaker 3: We will see you next week.