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Special AMA (Ask Me Anything) episode · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshprunk's Podcast, where I provide
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Speaker 1: a look into the remarkable experiences of the most inspiring
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Speaker 1: people around Hirshprung's disease and sports.
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Speaker 2: Hello and welcome to a special Ask Me Anything edition
0:43
Speaker 2: of Tom's Hirshprunk's Podcast. Now we're doing this on the day,
0:48
Speaker 2: so September the eighth. It will be out within about
0:51
Speaker 2: an hour or so of me recording this, so it's
0:53
Speaker 2: just making sure that everybody had time to put in
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Speaker 2: their questions. There will be twelve questions in total, and
1:02
Speaker 2: thank you so much to everybody who's submitted questions. There's
1:06
Speaker 2: a quite a variety of questions of topics that people
1:10
Speaker 2: wanted to talk about wanted to ask me, which is fantastic.
1:14
Speaker 2: So thank you ever so much for everybody who has
1:17
Speaker 2: submitted the question. Without further ado, we will start. Some
1:24
Speaker 2: people have submitted more than one question, which is great,
1:26
Speaker 2: So I'll tell you who the questions from if they've
1:29
Speaker 2: given a name, there is one without a name, and
1:31
Speaker 2: then we'll answer their questions. So first question comes from Charlotte,
1:37
Speaker 2: So Charlotte or her episode will be going out this week.
1:43
Speaker 2: We'll be going out this Thursday episode thirty six. She
1:47
Speaker 2: submitted a couple of questions. We go with the first one,
1:50
Speaker 2: which is quite a difficult one to start off with,
1:52
Speaker 2: I think the most difficult out of all of the
1:55
Speaker 2: questions submitted, and she asks, if you could change your
1:59
Speaker 2: health so that you had so that you were never
2:02
Speaker 2: born with hirsh Sprung's disease, would you this? And I've
2:09
Speaker 2: mulled this over quite a bit. This is a quite
2:12
Speaker 2: a tricky one to start and I think the short
2:17
Speaker 2: answer would be no. There have been a lot of
2:23
Speaker 2: times where I wish I didn't have Hirshprung's disease, a
2:26
Speaker 2: lot of times where I would happily swap it out
2:30
Speaker 2: and change it. But and there's there's a lot of
2:34
Speaker 2: things to do with Hirshprungs that are very nice, that
2:37
Speaker 2: are very nice at all, and we've we've gone through
2:40
Speaker 2: them many times on the podcast. But what it has
2:46
Speaker 2: given me is a lot of resilience in terms of
2:53
Speaker 2: physical pain, but in terms also pushing through bart I
3:01
Speaker 2: think it's given me. It's also given me this wonderful
3:04
Speaker 2: opportunity to talk about hirshprungs on the podcast. It's given
3:10
Speaker 2: me a lot of knowledge in the medical field. A
3:13
Speaker 2: lot of things that I know about health well being
3:17
Speaker 2: come from a lot of hospital trips, going to back
3:21
Speaker 2: and forth Great Ormond Street in London, going to various
3:25
Speaker 2: appointments and have learned a lot from it. I've also
3:31
Speaker 2: marriaged through the podcast to meet so many wonderful people
3:35
Speaker 2: that wouldn't have happened had I not been diagnosed with hirshpruns.
3:41
Speaker 2: And it is a very difficult question. I could easily
3:45
Speaker 2: go the other way and say if I could change
3:49
Speaker 2: it now, or if I could change it thirty two
3:51
Speaker 2: years ago and just not have hirsprungs and not go
3:55
Speaker 2: through all the operations and not go through you know,
3:59
Speaker 2: the pay and the issues I've gone through, and just
4:03
Speaker 2: change it. I could very easily go the other way
4:07
Speaker 2: and say yes. But I do believe that in a
4:12
Speaker 2: way we are who we are and that you will
4:18
Speaker 2: be dealt difficult situations in life and they will give
4:24
Speaker 2: you the ability to push through those difficult situations. So yes,
4:29
Speaker 2: it's a very tricky one, a very tricky one to
4:32
Speaker 2: start with. But in the short answer, now I wouldn't
4:37
Speaker 2: because hirshprungs doesn't define who I am. I am a
4:44
Speaker 2: lot of other things rather than just having hirshbrungs. I
4:48
Speaker 2: know I talk about it a lot in this podcast,
4:51
Speaker 2: but I believe it's a part of me, and I
4:57
Speaker 2: think in sure, no, I wouldn't change I think there'll
5:00
Speaker 2: be a lot of people that will feel differently to me,
5:03
Speaker 2: And please, if you do, feel free to get in
5:06
Speaker 2: touch if you want to answer any of these questions
5:09
Speaker 2: as well. But there are a lot of people who
5:13
Speaker 2: would just take it away in an instant that I
5:15
Speaker 2: think for me, as much as it's pained me over
5:21
Speaker 2: the years that as been very, very difficult at times,
5:27
Speaker 2: I don't think. I don't think I would change it.
5:30
Speaker 2: I don't think I would. Question two comes from Rebecca,
5:36
Speaker 2: who was also another podcast guest. She was episode thirty three.
5:42
Speaker 2: We talked a lot about endometriosis, something that I was
5:45
Speaker 2: very unaware of before starting the podcast. She writes, would
5:51
Speaker 2: there be any advice you would give to parents that
5:54
Speaker 2: have a child born with hirshprungs. This, again, is a
5:58
Speaker 2: tricky one because I tend to steer away from advice
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Speaker 2: because I'm not qualified. I'm not a doctor, I'm not
6:04
Speaker 2: in the medical field. I always say that I don't
6:07
Speaker 2: give any medical advice whatsoever because of that fact of
6:13
Speaker 2: not being qualified, and even if I was qualified, I
6:16
Speaker 2: think handing out the vice without actually seeing somebody in
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Speaker 2: the first place is irresponsible. But what I try to
6:26
Speaker 2: do on this show is to bring you stories of
6:32
Speaker 2: people who have hirshprungs and other associated conditions, but mainly hirshbrungs,
6:38
Speaker 2: and show people that so much is possible. So many
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Speaker 2: people who have hirshbungs have gone to have fantastic careers
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Speaker 2: in all kinds of fields. I mean, I know, probably
6:54
Speaker 2: the more the more popular episodes that people have listened
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Speaker 2: to are the two actors that I've had in Louis
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Speaker 2: Healy and Zoe Coletti, and both born with hirshbrums. Both
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Speaker 2: had a lot of complications when they were younger, but
7:09
Speaker 2: both have gone I mean, they're both in their early twenties,
7:12
Speaker 2: but have done so much already and I'm sure will
7:16
Speaker 2: do an enormous amount in the future. But in terms
7:20
Speaker 2: of advice, aren't really give specific advice. But what I
7:30
Speaker 2: would say is to listen to the interviews of people
7:32
Speaker 2: who who have hirshbrums and of parents who have children
7:37
Speaker 2: with hirshbrums and see what they achieve and see what
7:42
Speaker 2: can be what they've done throughout their careers. I've had
7:47
Speaker 2: a lot of parents on here, some with children who
7:52
Speaker 2: are very young. A parent on quite a few weeks
7:57
Speaker 2: ago with a child that's was very very young, just
8:02
Speaker 2: over a year old, and we talked about we talked
8:06
Speaker 2: about various stays in hospital, we talked about the condition
8:11
Speaker 2: he has as well. I've also talked to parents with
8:14
Speaker 2: child with children if you are just starting school, four
8:18
Speaker 2: or five, six years old. And then just this week
8:22
Speaker 2: gone I had Nicole and Benjamin perryon Benjamin's eleven. So yeah,
8:28
Speaker 2: another different stage going through Hirshbrung's. So there are a
8:32
Speaker 2: lot of episodes out there with children different ages. And
8:36
Speaker 2: then I've had people in their twenties Louis A Shepton
8:41
Speaker 2: being one and her dad see Louis and Zoe are
8:44
Speaker 2: both in their twenties, and then me in my thirties.
8:46
Speaker 2: So people through different stages of their life with hirshbrums.
8:53
Speaker 2: And it's not to say that it will be the
8:57
Speaker 2: same for everybody. I think that's really important to point
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Speaker 2: out out. But I think the more stories you listen
9:06
Speaker 2: to the more you can take from them. Some parts
9:09
Speaker 2: won't be relevant, some parts won't be relevant to two people,
9:13
Speaker 2: but some may well be. And I would say we
9:18
Speaker 2: listen to listen to those episodes because you might just
9:22
Speaker 2: find something in there and think, oh, I didn't know that,
9:24
Speaker 2: or that might be useful to try. Because we do
9:29
Speaker 2: we do talk about various medical procedures that people have
9:32
Speaker 2: gone through. I don't I don't endorse them necessarily or
9:36
Speaker 2: say that you should do this or should do that
9:39
Speaker 2: that you might think, actually, this has been important or
9:42
Speaker 2: that's been important. We're right. Thirdly, is onto Vicky. Now,
9:49
Speaker 2: before I get to Vicky's question, I will just mention
9:53
Speaker 2: I know I've I put it on my Facebook page
9:55
Speaker 2: and Instagram page as well, about the fundraiser, the excellent
10:00
Speaker 2: fundraiser that she's doing in the month of September. So
10:07
Speaker 2: she's raising money for guts UK, the charity guts UK,
10:12
Speaker 2: and the aim of what she's doing in this month
10:17
Speaker 2: is to try and get to a goal of five
10:22
Speaker 2: thousand kilometers, whether that be running, walking, cycling, however you
10:27
Speaker 2: want to travel, try and get to a goal of
10:31
Speaker 2: five thousand kilometers because see one in five thousand children
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Speaker 2: in the UK are born with hirshbruts and really across
10:43
Speaker 2: the world, one in five thousand ball with hirshbrums. So
10:48
Speaker 2: that's the aim of trying to get five thousand kilometers.
10:53
Speaker 2: She has had an excellent response. Just prior to recording
10:57
Speaker 2: this will be about five minutes ago, she has just
11:00
Speaker 2: put out an Instagram post about how how lovely she
11:03
Speaker 2: says all of the responses have been and the amount
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Speaker 2: of people that have messaged her and contributed, whether it
11:12
Speaker 2: be financially or through doing kilometers, walking, running, cycling, as
11:20
Speaker 2: you can blow it away by also thank you to
11:22
Speaker 2: everybody who's who's donated and everybody who sated their time
11:27
Speaker 2: or money or whatever it might have been to the cause,
11:30
Speaker 2: which is fantastic. But I would say as well that
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Speaker 2: if you would like to contribute to the goal, please
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Speaker 2: sign up by emailing five k HD Awareness at gmail
11:45
Speaker 2: dot com and then you can send the exercise you've
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Speaker 2: done the cross. I also put it if I've done
11:54
Speaker 2: some running, whether it be me or me and my dog,
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Speaker 2: I'd put it on my stories as well, and then
12:02
Speaker 2: just make sure you tag them in and so that
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Speaker 2: they know. Also. The post goes on to say and
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Speaker 2: if you're able any donation big or small with me
12:11
Speaker 2: in the world to us and help fund crucial research,
12:14
Speaker 2: and you can donate at the just Giving page which
12:17
Speaker 2: will be www dot JustGiving dot com forward slash page
12:22
Speaker 2: forward slash five thousand km or as in the number
12:27
Speaker 2: four hirshbrums. So if you would like to donate, however
12:31
Speaker 2: big or small, please feel free to do so. And
12:34
Speaker 2: if you want to do any exercise towards the five
12:37
Speaker 2: thousand kilometer goal, again please feel free to do so.
12:42
Speaker 2: It's an excellent charity cus UK and it's a fantastic
12:46
Speaker 2: thing that the Vicky's doing as well, along with along
12:51
Speaker 2: with Kai Bignell, Kate Barnett as well, and Emily Barnett
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Speaker 2: as well, So fantastic, fantastic work by all of them.
13:04
Speaker 2: Look onto Vicky's question and she asks, was there any
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Speaker 2: particular age or moment when your parents felt it would
13:13
Speaker 2: be helpful for you to get extra support living with hirsprungs,
13:17
Speaker 2: maybe emotionally or practically. Again, this is another one. It's
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Speaker 2: very different for everybody, depending on what type of hers
13:28
Speaker 2: approach you have, whether you have any other associated conditions
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Speaker 2: with hirshprungs. But for me, no again would be the
13:38
Speaker 2: short answer. It's I had most of my surgeries before
13:46
Speaker 2: before I could even remember, before the age of two. Really,
13:50
Speaker 2: then has another one at nine, another one at twelve,
13:55
Speaker 2: another one at twenty three. So in the ten I've
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Speaker 2: had seven, I don't remember. With the stoma surgery at nine,
14:05
Speaker 2: when I had my ace mylonne stoma put in, obviously
14:09
Speaker 2: I couldn't do sport for a couple of weeks. The
14:12
Speaker 2: same with the adhesions removal when I was twelve, Mister
14:18
Speaker 2: Cup semi final that day, which was very annoying. But
14:22
Speaker 2: with the stonema surgery at nine, in terms of practically
14:29
Speaker 2: it was having to do the washouts, iving to do
14:31
Speaker 2: those by myself. Those were a bit tricky. Obviously the
14:37
Speaker 2: star with tried to put a cathter into a stoma
14:41
Speaker 2: and then all the various syringes of saline and whatever
14:47
Speaker 2: else was in there as well. Through was was tricky,
14:52
Speaker 2: But essentually, you know, got to doing that by myself,
14:57
Speaker 2: and then I think really in turn was a schooling.
15:02
Speaker 2: I remember at the age of nine when I first
15:08
Speaker 2: had the stona, I also had a bag with it
15:11
Speaker 2: as well. And obviously a lot of primary school you
15:16
Speaker 2: spent sitting on a carpet, whether it's listening to stories
15:21
Speaker 2: or lessons or whatever it might be, and I couldn't
15:24
Speaker 2: do that, so I had a chair. But that's really
15:29
Speaker 2: all of the practical side of it. I think the adhesions,
15:36
Speaker 2: the adhesion removal. When I was twelve, so I said,
15:40
Speaker 2: missed the Cup semi final, but then really was back
15:44
Speaker 2: with playing sport within a couple of weeks. And then
15:49
Speaker 2: the final surgery, which was my stona reversal or second
15:53
Speaker 2: stone reversal, should I say, when I was twenty three.
15:56
Speaker 2: That took place roughly around Christmas time, so as I
16:02
Speaker 2: was working in schools at the time, it was fairly
16:06
Speaker 2: convenient for me that I could just have that surgery.
16:09
Speaker 2: I think I missed maybe the last week or two
16:14
Speaker 2: of the term, and then the rest of it was
16:17
Speaker 2: Christmas holidays, so really then it was just recovering over
16:21
Speaker 2: the Christmas holidays and then was back to work in January.
16:26
Speaker 2: Whenever the date was we went back. So in terms
16:30
Speaker 2: of by parents thinking there's a particular moment apart from
16:35
Speaker 2: the surgeries, there wasn't really a moment that they thought,
16:39
Speaker 2: right we need to need to get him help, or
16:43
Speaker 2: we need to do this for him or that for him.
16:46
Speaker 2: I think I was lucky enough really that my parents
16:49
Speaker 2: wanted to me to be sort of quote unquote normal
16:55
Speaker 2: as much as possible. So that was taking part in
16:58
Speaker 2: everything many sports related to, part of every sport under
17:03
Speaker 2: the sun. Every time the school team had any saying,
17:07
Speaker 2: any kind of team, hockey, rugby, cricket, football, tennis, whatever,
17:11
Speaker 2: I would do it. And to me that was was
17:14
Speaker 2: almost the way of being, of being normal, of being,
17:20
Speaker 2: of normalizing everything. And in terms of my hirshprungs, unless
17:23
Speaker 2: I felt pain, which was from time to time, I
17:27
Speaker 2: didn't really think about it all that much, and certainly
17:32
Speaker 2: at that age, schooling age, I didn't really want to
17:34
Speaker 2: be seen as different as well. So if i'd had so,
17:40
Speaker 2: if I'd needed something that would have helped me along,
17:44
Speaker 2: I'm sure they would have provided, but I didn't really
17:48
Speaker 2: feel as though I needed anything specific to live with hirshprunks.
17:56
Speaker 2: The fourth question comes from Charlotte again and she says,
18:03
Speaker 2: what are you grateful for I've learned from hirshbrng's disease,
18:09
Speaker 2: and this I think probably will center around this podcast,
18:14
Speaker 2: and just the amount of things that I've learned, I
18:25
Speaker 2: think coming from interviewing a lot of people, I have
18:31
Speaker 2: learned a lot about Hirshbungs disease in terms of the
18:35
Speaker 2: different types as well. I wasn't too clear, and I'll
18:39
Speaker 2: freely admit I didn't know a lot about Hirshbrngs disease
18:43
Speaker 2: before starting this up, and I'll talk about there's another
18:46
Speaker 2: question coming soon about why did I start the podcast,
18:50
Speaker 2: and I'll explain a little bit more then. But I
18:52
Speaker 2: didn't know a lot about Hirshbrog's disease before starting, and
18:59
Speaker 2: I have now learned there are five different types of
19:01
Speaker 2: Hirschbrung's disease, which again had no idea beforehand. Those five really,
19:08
Speaker 2: I mean some as well as being Hirshbrung's being a
19:11
Speaker 2: red rare condition itself, there are rarer types of Hirshprungs
19:18
Speaker 2: within hirshprungs, if that makes sense. There are five in particular.
19:23
Speaker 2: I mean, I have the most common, which is short segment,
19:27
Speaker 2: so about eighty percent of cases will be short segment.
19:30
Speaker 2: There is ultra short segment as well, where you're just
19:34
Speaker 2: missing ganglion cells in the last one or two centimeters
19:40
Speaker 2: that might not acquire surgery long segment and top to
19:44
Speaker 2: quite a few people who have long segment hirshprungs. It's
19:48
Speaker 2: about fifteen to twenty percent cases. They're missing ganglion sales
19:52
Speaker 2: in the first third of the colon total colonic hirshprungs,
19:57
Speaker 2: so were the missing ganglion cells in the higher colon.
20:01
Speaker 2: I do have a couple of interviews coming up very
20:03
Speaker 2: shortly in October that have people with total klonic hirshprungs,
20:09
Speaker 2: So this is about five percent of cases. In rarer cases,
20:15
Speaker 2: a small bow might be also affected as well. And
20:18
Speaker 2: then there is total intestinal and ganglianosis, which funnily enough,
20:24
Speaker 2: I did have a message from somebody yesterday who has this,
20:27
Speaker 2: and I haven't met many people with this condition at all,
20:33
Speaker 2: and this person's very willing to come on the podcast
20:35
Speaker 2: that the episode might be sort of mid to late
20:38
Speaker 2: October at this stage with the sort of backup of
20:41
Speaker 2: episodes that I have, but I'm very very keen to
20:46
Speaker 2: shine a light on this episode as well. So this
20:49
Speaker 2: is obviously is rareer and this is the absence of
20:55
Speaker 2: ganglion cells from the duodenum to the rect, so there's
21:01
Speaker 2: no gangling sales during that passage there, So that again
21:07
Speaker 2: learning a lot about Hirschbrung's disease. In terms of grateful
21:12
Speaker 2: I think it's more just understanding my condition of short
21:16
Speaker 2: segment and appreciating that there are several other types out there,
21:23
Speaker 2: and appreciating also, as I'll go into later, that there
21:29
Speaker 2: are so many different experiences with Hirshbrungs. It's not really
21:34
Speaker 2: a case of you have it and then everybody will
21:37
Speaker 2: end up being saved. Really really different and I guess
21:43
Speaker 2: the podcast is it's important for that really in trying
21:50
Speaker 2: to highlight that there are By the time all of
21:55
Speaker 2: the episodes I have recorded go out, there will be
21:57
Speaker 2: twenty three Hirshbrungs related So it's either with people who
22:02
Speaker 2: have the condition, or parents of children who have the condition,
22:06
Speaker 2: or in the case of the one just released this
22:11
Speaker 2: week in the colon Benjamin, that's both so one parent
22:15
Speaker 2: of child that has Hirshprungs and Benjamin obviously having Hirsprungs himself.
22:19
Speaker 2: So they are and they're all different. They're all different
22:23
Speaker 2: in terms of their experiences, in terms of what they've
22:26
Speaker 2: done with their lives, in terms of sometimes that surge.
22:30
Speaker 2: I mean, the pool three obviously is the pull through,
22:32
Speaker 2: and everyone has that, so there are some similarities between
22:35
Speaker 2: them all, but in terms of experiences, completely different, completely different.
22:44
Speaker 2: So I'm incredibly grateful to have learned so much about
22:49
Speaker 2: the condition itself and really the people around the condition.
22:54
Speaker 2: Question five or five and six both come from Rebecca,
22:58
Speaker 2: who's question two as well, well, But question five from Rebecca.
23:04
Speaker 2: If there was one thing that you could change in
23:06
Speaker 2: the world about chronic illness is slash Hirshbrum's disease, what
23:11
Speaker 2: would it be? And I my short answer really would
23:18
Speaker 2: be the pain. And I think all pain, emotional, physical,
23:22
Speaker 2: mental pain that comes with the condition. But I think
23:26
Speaker 2: that would be cheating, so I think I'll probably just
23:28
Speaker 2: have to choose one, either physical or emotional, and I
23:37
Speaker 2: think out of that I would choose the emotional pain.
23:41
Speaker 2: I think that that really just comes from a personal experience.
23:45
Speaker 2: I can deal with physical pain a lot more and
23:49
Speaker 2: or a lot better, should I say, And I think
23:53
Speaker 2: it's also potentially easier to see physical pain as well
23:58
Speaker 2: that people are in not always, not always, some people
24:01
Speaker 2: do hide it incredibly well, and I think those with
24:04
Speaker 2: chronic hourses generally hied it really really well, but I
24:09
Speaker 2: would I would get rid of the emotional toll that
24:13
Speaker 2: it takes because it again I'm generalizing a little bit here,
24:18
Speaker 2: but I would presume that everybody who's gone through a
24:21
Speaker 2: chronic illness has had some sort of emotional pain attached
24:27
Speaker 2: to that, so and then that's really difficult to see
24:31
Speaker 2: with a lot of people, So I would I would
24:34
Speaker 2: definitely take that away that question. Rebecca also asks there
24:41
Speaker 2: are a lot of chronic illnesses, which ones would you
24:44
Speaker 2: like to know more about? And this is interesting and
24:47
Speaker 2: I'll go back to her episode on this because I
24:51
Speaker 2: didn't know hear anything really about endometriosss. I knew little
25:00
Speaker 2: bit about what it was, but it was only after
25:04
Speaker 2: doing the research for her episode actually that I then
25:10
Speaker 2: realized how common it was one in ten women on average,
25:18
Speaker 2: and also the weight for diagnosis being in and around
25:23
Speaker 2: eight months plus is really really difficult, and I really
25:32
Speaker 2: wanted to know more about that as well, and so
25:36
Speaker 2: I've ended up doing a lot more research about it.
25:39
Speaker 2: Even though it isn't something that will affect me because
25:42
Speaker 2: it affects women only, it's something that I really want
25:47
Speaker 2: to know more about and might do another podcast in
25:53
Speaker 2: the future with somebody with the demetriosis, and it's just
25:58
Speaker 2: something I I think it is really important to highlight
26:03
Speaker 2: as well. There's a lot of what I do on
26:05
Speaker 2: this is raising awareness, and I think it's really important
26:09
Speaker 2: to highlight just how common that is and how painful
26:13
Speaker 2: that can be as well. So I've been led to
26:16
Speaker 2: believe and told, but just how how difficult that is
26:22
Speaker 2: to live with. I don't think really gets the amount
26:28
Speaker 2: of attention that it deserves, but I think I think
26:33
Speaker 2: that would be my answer now question seven. Question seven
26:42
Speaker 2: comes from Clark. Now. Clark is the host of Chronically
26:50
Speaker 2: the Sickest podcast and she has left two questions, so
26:56
Speaker 2: we'll go with question seven first, and she asks how
27:01
Speaker 2: did you get into advocacy work? So my advocacy work
27:06
Speaker 2: is with Reach Reach HD. They have they were set
27:12
Speaker 2: up mainly in America. They also have a Canadian branch
27:15
Speaker 2: as well. I've had a couple of their board members
27:19
Speaker 2: in Liz Crawford and Nicole Perry on as well. But
27:25
Speaker 2: in terms of how did I get involved, really, I
27:30
Speaker 2: had Liz on the podcast and she was somebody I
27:34
Speaker 2: really really wanted on because she being on the board
27:40
Speaker 2: and really an intentional part of REACHHD, the largest charity
27:48
Speaker 2: with Hirshprung's in the world. I thought that was incredibly
27:51
Speaker 2: important to aver On and she was absolutely fantastic. How
27:55
Speaker 2: she fits in everything she does with her advocacy, were
28:03
Speaker 2: her modeling company, believe she she owns a Rose Beach
28:08
Speaker 2: house as well, and how she does it all no idea,
28:13
Speaker 2: absolutely no idea how many of that, how many hours
28:17
Speaker 2: in the day you would need to do to do
28:18
Speaker 2: all of the work she does. But then they put
28:23
Speaker 2: out a post on Instagram asking for people to be ambassadors,
28:27
Speaker 2: and I thought, well, this is perfect. I mean I
28:31
Speaker 2: pretty much pretty much do that already with having the podcast,
28:36
Speaker 2: and it would just make sense to be to be
28:39
Speaker 2: part of REACH. So I emailed asked if I could
28:43
Speaker 2: be part it, could be an ambassador, and they accepted.
28:48
Speaker 2: And then as to date, I believe I'm their only ambassador.
28:53
Speaker 2: But but I thought it would it just it just
28:56
Speaker 2: made sense. It just made sense. So that was really
29:00
Speaker 2: how I got involved, just by seeing a post and
29:06
Speaker 2: at the emailing pretty much. Clark also asks why did
29:11
Speaker 2: you start the podcast? Now? I touched on this earlier
29:13
Speaker 2: and I said, I wouldn't go into too much detail
29:15
Speaker 2: because I had another question like this coming up. And
29:19
Speaker 2: this really started at the start of the year or
29:22
Speaker 2: so back end of twenty twenty three, I think late
29:24
Speaker 2: mid to late December twenty three, and this kind of started.
29:30
Speaker 2: The idea of it started with my younger brother. So
29:34
Speaker 2: I have two younger brothers, one older brother and the
29:38
Speaker 2: one just below me. He's a year younger than me, Andrew,
29:42
Speaker 2: and he runs a podcast to do with type one
29:47
Speaker 2: diabetes called Team Type one Style. They also run a
29:50
Speaker 2: cycling team. They do a lot of advocacy work, and
29:54
Speaker 2: they do go to various shows and also run this
30:01
Speaker 2: podcast as well. They've had various guests on with type one.
30:05
Speaker 2: Obviously that's a little bit easier than trying to get
30:08
Speaker 2: and guests with Hirshbruns being a more well known condition,
30:16
Speaker 2: although there are quite a few that don't know that
30:19
Speaker 2: there are two types of type one and type two,
30:23
Speaker 2: and the idea really came from his podcast. There are
30:27
Speaker 2: three of them that do that, and I saw it
30:31
Speaker 2: was going really well, and I saw that they were
30:33
Speaker 2: making a real difference and people were messaging and saying
30:38
Speaker 2: that thanks for this and that, and I'm you know,
30:42
Speaker 2: but they also spend a little bit more lifestyle advice
30:45
Speaker 2: because they have people who are qualified on the show
30:47
Speaker 2: to do that, whereas I didn't two but I then
30:51
Speaker 2: started to think, actually, could I do something like that
30:55
Speaker 2: with hirshbruns. So I had a look around to see
30:59
Speaker 2: if there was somebody doing that already. And chances are
31:02
Speaker 2: if there was somebody doing that already, I'd probably tried
31:05
Speaker 2: to message them and try and get on the show
31:09
Speaker 2: or work with them or do something or other to
31:13
Speaker 2: help to help them. But they're apart from one or
31:18
Speaker 2: two medical podcasts that mentioned hirshbrong disease or had an
31:22
Speaker 2: episode about hirshbrng's disease that but they came from a
31:29
Speaker 2: very medical field, obviously being a medical podcast, But there
31:33
Speaker 2: was nothing out there that really said, Okay, but what's
31:37
Speaker 2: it like to live with and what can you achieve? Yeah,
31:44
Speaker 2: while still having hirshprans and you know that my whole
31:48
Speaker 2: philosophy of it shouldn't stop you doing this and that
31:52
Speaker 2: and the other. And you know, everybody's different. And I'm
31:56
Speaker 2: not saying that there won't be challenges, because there are
31:59
Speaker 2: enormous challenges, but there are so many people who who've
32:03
Speaker 2: gone to do so many amazing things, as I mentioned before,
32:08
Speaker 2: but that was really it. There was nothing out there.
32:11
Speaker 2: There was nothing out there. Nobody had done podcast. People
32:16
Speaker 2: have talked about it from time to time, but an
32:18
Speaker 2: actual dedicated podcast with people with the condition, there was
32:25
Speaker 2: nothing out that. So I decided to just put out
32:29
Speaker 2: an advert basically say look, I'm going to do this.
32:33
Speaker 2: I'm going to call it Toms Hirschbarn's Podcast. It wasn't
32:36
Speaker 2: a difficult marketing choice. I thought I'd just keep it really,
32:40
Speaker 2: really simple. I could have tried to think of a
32:43
Speaker 2: catchy name, and there are some wonderful catchy names out
32:46
Speaker 2: there with podcasts with people who are far better wordsmiths
32:49
Speaker 2: than I. But I thought, no, keep it simple, keep
32:54
Speaker 2: it basic, one on one marketing, name, what it is,
32:59
Speaker 2: who for all of that stuff, And so just just
33:05
Speaker 2: basically put out an advert, you know, he wants to
33:08
Speaker 2: appear on the podcast, and then just started searching all
33:10
Speaker 2: over Instagram for just typing in the word Hirshbrungs seeing
33:15
Speaker 2: who pops up. I was incredibly fortunate with so many
33:21
Speaker 2: guests to start with, none more so than Kyler Thompson,
33:26
Speaker 2: who was absolutely fantastic talking about her daughter, Bella, who's
33:33
Speaker 2: very sadly just passed, very very sad news. But I
33:41
Speaker 2: interviewed her at the start of January and might be
33:45
Speaker 2: yes start of January, and we had a bann hour
33:50
Speaker 2: and a half conversation. Two parts. The first part is
33:53
Speaker 2: Bella's medical journey. The second part is Kyler's advocacy work.
33:57
Speaker 2: If you haven't checked those out, please do they are.
34:00
Speaker 2: She is a wonderful, wonderful woman, just fantastic, credible person.
34:09
Speaker 2: But I had no idea about pacing, timing, anything to
34:15
Speaker 2: do with running podcasts because I'd never worked in any
34:18
Speaker 2: kind of media or done anything like this before. But
34:21
Speaker 2: I I did it. I knew it was going to
34:24
Speaker 2: be a two part episode, and the old wanted to
34:26
Speaker 2: split one into medical and one into advocacy. I wasn't
34:30
Speaker 2: sure how long it would go. I thought, maybe you
34:35
Speaker 2: might do you know, half an hour and half an
34:38
Speaker 2: hour or twenty five and twenty five or something like that.
34:41
Speaker 2: The first part ended up being an hour, the second
34:45
Speaker 2: part ended up being half an hour. So I had
34:46
Speaker 2: no idea about pacing or anything like that. And then
34:51
Speaker 2: the idea was also two and I'll touch on this
34:56
Speaker 2: as well in my final questions. I won't go into
35:00
Speaker 2: it too much, but the idea was to release those
35:03
Speaker 2: episodes once every two weeks, because I thought there there'd
35:06
Speaker 2: be no way I'll get a hirsch Brong's person every
35:11
Speaker 2: single week and I haven't done in fairness, but with
35:15
Speaker 2: it being a two parter, I didn't want people to wait, yeah,
35:20
Speaker 2: two weeks for the next for the next part, I
35:22
Speaker 2: wanted that to be the next week, so I thought, well,
35:25
Speaker 2: I have to I'll then have to release it the
35:27
Speaker 2: next week and then the rest is history from there,
35:30
Speaker 2: and been doing weekly episodes now for the last forty weeks.
35:33
Speaker 2: So it's that was really how it how it all
35:37
Speaker 2: started and why it started. But yeah, thanks to Andrew
35:41
Speaker 2: really for his for his podcasts and seeing how well
35:44
Speaker 2: that went, and then I thought, well I can I
35:46
Speaker 2: can do something myself, and I've been incredibly rerevitibly fortunate
35:51
Speaker 2: to have the people that I've had. I couldn't do
35:54
Speaker 2: it without guests. That that's something that's so important. I know,
35:58
Speaker 2: this is really mean my first roper solo episode, because
36:05
Speaker 2: it kind of has to be. But to do a
36:08
Speaker 2: solo episode every week, we'd be impossible. So I need
36:12
Speaker 2: I need guests that they make the podcast survive, and
36:16
Speaker 2: I've loved every single one of them has brought something
36:20
Speaker 2: unique in their story, and I'd take this opportunity as
36:26
Speaker 2: well just to say thank you so much to everybody
36:29
Speaker 2: who's come on. Everybody, because everybody gives up their time,
36:31
Speaker 2: you know, and and whether they're in a lot of
36:35
Speaker 2: the people that I've spoken to are in different time zones.
36:38
Speaker 2: There are a couple of them that have taken place
36:40
Speaker 2: at one two in the morning my time, but everyone
36:45
Speaker 2: gives up the time to come and talk to me
36:48
Speaker 2: about their condition and share very personal information as well.
36:52
Speaker 2: I think that's something that's not quite talked about enough,
36:55
Speaker 2: that people come on here and they willingly talk about
36:58
Speaker 2: very personal medical whether it be operations, surgeries, incidents, whatever
37:07
Speaker 2: it might be that happened to them. They come on
37:09
Speaker 2: the show, they talk about they talk about some very
37:13
Speaker 2: personal information. And to take this opportunity really to say
37:17
Speaker 2: thank you to everybody, both past presence one of those
37:21
Speaker 2: that are out at the moment, and the future episodes
37:24
Speaker 2: they are coming out. As I said, we thirty by
37:26
Speaker 2: the time you hear this, thirty five episodes. If you
37:29
Speaker 2: hear this today on the eighth. Thirty five episodes are out,
37:34
Speaker 2: and obviously thirty six with Charlotte will be going out Thursday.
37:40
Speaker 2: I'll do the advert for that on Monday. But there
37:42
Speaker 2: are forty episodes recorded, so we are booked up to
37:46
Speaker 2: the tenth of October at the moment, which is fantastic,
37:50
Speaker 2: and there will be episode thirty eight, thirty nine and
37:57
Speaker 2: forty are all Hirshprung's related as well, so that that
38:02
Speaker 2: bumps the figure up to twenty three. So yes, very
38:05
Speaker 2: very pleased with how it's going, with how it's gone.
38:10
Speaker 2: But yeah, so that's on to question nine. Question nine
38:14
Speaker 2: from Sam Sam asks are there any other podcast you
38:20
Speaker 2: would recommend or listen to? And I'd say absolutely so
38:24
Speaker 2: that this I've found, especially with Instagram and a lot
38:31
Speaker 2: of the guests I've had, that this is about a community.
38:34
Speaker 2: It's not about just my podcast and only listen to
38:38
Speaker 2: my podcast. Please go and listen and seek these people
38:43
Speaker 2: out as well. Yes, this is the only Hirshbrungs podcast.
38:46
Speaker 2: There are people who've had Hirshprung's guests on, but this,
38:51
Speaker 2: this really is the only one. But there are some
38:54
Speaker 2: some very good podcasts out there specifically you people that
39:00
Speaker 2: I've had on as well and people that I haven't
39:04
Speaker 2: Bow Chronicles with Niki Kirkpatrick. I was on there talking
39:08
Speaker 2: about Hirshprung. She also came onto my podcast. She's done
39:12
Speaker 2: a fantastic job, really really good job. Has a little
39:16
Speaker 2: bit more general when it comes to about issues. Then
39:20
Speaker 2: there's so many episodes out there, has been going since
39:25
Speaker 2: a round about April. I think the production quality is fantastic.
39:30
Speaker 2: I think Nicky's a lovely person. She's absolutely brilliant. So
39:36
Speaker 2: so he's talked to really good interviewer. Definitely definitely seek
39:40
Speaker 2: out bou Chronicles. I think that's really good. Tay does
39:44
Speaker 2: life as well. I have spoken to her a little
39:46
Speaker 2: bit as well. She has some fantastic interviews. I believe
39:51
Speaker 2: she also does some radio work for the BBC that
39:54
Speaker 2: I've seen the I've Become Determined podcast. Weird Dennis and
40:01
Speaker 2: Chris both have been on My show episode twenty one.
40:06
Speaker 2: I believe it was Chris twenty three Dennis. Two really
40:10
Speaker 2: good guys, two really easy to talk to. The episodes
40:15
Speaker 2: are only about twenty minutes or so, so there's sort
40:17
Speaker 2: of a bite size episode and then sometimes they do
40:20
Speaker 2: a longer episode and cut it up into three four,
40:25
Speaker 2: three or four episodes that really really good guys would
40:31
Speaker 2: definitely recommend by listening to those who'd listen to that
40:35
Speaker 2: or those episodes every time. Every time they come out
40:37
Speaker 2: as well, they usually come out on a Thursday. I
40:40
Speaker 2: know they haven't done one for a couple of weeks,
40:43
Speaker 2: so they really sort of every fortnight or so, or
40:47
Speaker 2: they might do one a week sometimes, but they usually
40:51
Speaker 2: come out the same day as mine. Be on the
40:54
Speaker 2: pouch with Rachel that is coming up, that's coming up
41:03
Speaker 2: very shortly, so Rachel's episode with me will be episode forty.
41:10
Speaker 2: Rachel somebody I've wanted on four ages and I did
41:17
Speaker 2: message her, I believe at the start of the year
41:21
Speaker 2: because I saw she had Hirshbrungs. She has a child
41:24
Speaker 2: with Hirshbrungs, and I thought, well, she should be absolutely perfect,
41:26
Speaker 2: and she is absolutely perfect for the podcast. But I
41:29
Speaker 2: think the mistake I made was that she had just
41:33
Speaker 2: had a baby. When I messaged, I didn't realize, so
41:37
Speaker 2: I said sorry to her since asking her to come
41:41
Speaker 2: straight on the podcast after having a baby was a
41:44
Speaker 2: bad choice by me. But we have we have managed
41:47
Speaker 2: to get Rachel Long, which is fantastic, and her Beyond
41:50
Speaker 2: the Pouch, Her Beyond the Pouch podcast, and then they
41:56
Speaker 2: haven't released one for a while. It's Rachel and Louise
42:02
Speaker 2: and again another really good insight into what it's like
42:07
Speaker 2: really to live with the stoma. So everybody on there
42:10
Speaker 2: has either has or had a stoma, and the talk
42:16
Speaker 2: about similar things to me really in terms of what
42:19
Speaker 2: it's like to live with and how it might perfect
42:22
Speaker 2: from daily life. And it's it's just another really nice,
42:25
Speaker 2: lighthearted podcast. And then something a little bit different that
42:31
Speaker 2: I that I listened to as well is called Who's
42:34
Speaker 2: Tom and Dick, And this podcast, again it's more it's
42:42
Speaker 2: more about I mean, they talk about sort of cancer,
42:47
Speaker 2: heart disease, but they talk about it in a really
42:49
Speaker 2: sort of nice, lighthearted way. It's not it's not a
42:52
Speaker 2: medical podcast at all. And it's it's with with two guys,
42:58
Speaker 2: Patrick Watsmer and Martin Weavers. Martin Weavers I know a
43:04
Speaker 2: little bit more because he is well, his son is
43:09
Speaker 2: my neighbor, so that's how I really got into that podcast.
43:13
Speaker 2: But Martin used to do a lot of stand up comedy.
43:17
Speaker 2: He has appeared on TV quite a bit sort of
43:20
Speaker 2: over I think some of the seventies, eighties, maybe nineties
43:24
Speaker 2: as well, but another really high production, high quality, good
43:29
Speaker 2: laugh of the podcast, really really good. So yeah, those
43:32
Speaker 2: are really sort of the five that I listened to.
43:34
Speaker 2: There are others as well that are really good, but
43:37
Speaker 2: if I went through every single one that I've ever
43:39
Speaker 2: listened to, would be here all day. So but yeah,
43:42
Speaker 2: those those are five. So thank you Sam for your
43:44
Speaker 2: question number ten with Jordan, who asks who would you
43:49
Speaker 2: like to interview next? And this is and this wasn't
43:53
Speaker 2: just Jordan, this was a number of people that asked
43:56
Speaker 2: this as well, And that's always a tricky one for me,
44:01
Speaker 2: and my answer is usually the same, which is, whoever
44:04
Speaker 2: has the best you know, whoever has a really good story,
44:07
Speaker 2: you know, and I will listen to have everybody on
44:12
Speaker 2: who's got a really good story to tell, and everybody
44:15
Speaker 2: I've had on all forty episodes with people with fantastic stories.
44:19
Speaker 2: Obviously people with Hirshbrum's stories would be more relevant to
44:26
Speaker 2: the show. But I think I've seen this question asked
44:31
Speaker 2: a lot with other podcasters as well, and they're generally
44:37
Speaker 2: and it's each to their own, but I see a
44:40
Speaker 2: lot of podcasters when they they say, oh, well this
44:43
Speaker 2: celebrity or want that celebrity, or you know, mister Cron's colliitis,
44:46
Speaker 2: so on this person, you know, and that there would
44:49
Speaker 2: be great, they'd be absolutely fantastic. But for me, I
44:53
Speaker 2: get as much joy out of the quote unquote celebrity
44:59
Speaker 2: podcast than I do out of the non celebrity podcast.
45:03
Speaker 2: And I love talking to anybody who is passionate about
45:08
Speaker 2: what I'm passionate about, which is raising awareness of hirshprungs
45:12
Speaker 2: or other associated conditions. And really, that's what I would
45:17
Speaker 2: say to that is that you know, I might not
45:20
Speaker 2: even have found the next person that I want to
45:24
Speaker 2: interview next. I mean that there are there are obviously
45:27
Speaker 2: a couple of more people out there who I'd love
45:32
Speaker 2: to interview, but really it's just anybody who's got a
45:35
Speaker 2: great story. And I think in terms of celebrities who've
45:44
Speaker 2: talked about their condition, see I would like to interview
45:47
Speaker 2: them because you know, I know that their condition exists.
45:51
Speaker 2: But I'm sure there are a lot of people and
45:53
Speaker 2: maybe people listening to the vodcast now who have hirshprungs
45:58
Speaker 2: and would love to talk about it. And if you do.
46:01
Speaker 2: Please please feel free to get in touch either via Facebook,
46:06
Speaker 2: Tom's Hirstprom's podcast, Instagram, Tom's Underscore, Hirshprung's Underscore podcast, and
46:13
Speaker 2: come and share your story, because I think everybody has
46:17
Speaker 2: something to offer. I've spoken to people beforehand that said, oh,
46:23
Speaker 2: well I haven't I don't think I've got a lot
46:24
Speaker 2: to share. I don't think I've got a lot to
46:26
Speaker 2: talk about, or I'm not sure or whatever, And actually
46:31
Speaker 2: then we end up going forty five minutes and well
46:35
Speaker 2: we don't really pause for breath, and they've got loads
46:38
Speaker 2: of finds out, they've got loads to talk about. So
46:42
Speaker 2: I think that's that's something that's really important. If you think, oh,
46:47
Speaker 2: I don't think I like to share, but I don't
46:48
Speaker 2: think I've got a lot to talk about, chances are
46:50
Speaker 2: you probably have an awful lot to talk about. So
46:53
Speaker 2: if you want to, please please get in touch. The
46:58
Speaker 2: eleventh question two more ago, So eleventh of question I've
47:04
Speaker 2: sort of answered a little bit before, but there was
47:07
Speaker 2: no name given on this one, but it was what
47:13
Speaker 2: was the original was the original idea only to talk
47:16
Speaker 2: about Hirshprungs. And I think I've answered a little bit
47:20
Speaker 2: before but yes, it was go once every two weeks
47:24
Speaker 2: only talk about Hirshprungs. But I think the problem with
47:28
Speaker 2: that twofold one was there's just simply a lack of
47:34
Speaker 2: Hirshbrungs people that I tried to contact so many people,
47:38
Speaker 2: and I think it's it's another one of those issues
47:43
Speaker 2: where if you've done three episodes, then people are probably
47:50
Speaker 2: less likely too because you don't have a reputation, so
47:53
Speaker 2: less likely to come on, less likely to talk if
47:57
Speaker 2: you've done a few episodes, rather than if you go
48:00
Speaker 2: to them with twenty five episodes and say, you know,
48:03
Speaker 2: would you like to come on? You know, I think
48:07
Speaker 2: going to people with when I've talked to agents and
48:11
Speaker 2: I've talked to various people, it's gonna be in order
48:16
Speaker 2: to have people to come on the podcast, it's a
48:21
Speaker 2: lot easier going to them with twenty five episodes than
48:24
Speaker 2: it is going to them with four starts, or if
48:29
Speaker 2: you did one every two weeks. You actually wouldn't go
48:31
Speaker 2: with them with twelve episodes. For example. I know that
48:36
Speaker 2: that when I was talking to because I've no surprises,
48:40
Speaker 2: you had to go through agents to get Louis, and
48:45
Speaker 2: it's agents lovely wonderful woman called Beck's and she was
48:50
Speaker 2: absolutely fantastic. But we were sort of back and forth
48:53
Speaker 2: back and forth via email for maybe three four months.
48:59
Speaker 2: And because obviously that you know, they have to know
49:02
Speaker 2: you know, I'm not going to ask anything stupid. You know,
49:05
Speaker 2: I'm not gonna I'm not gonna surprise him with some
49:07
Speaker 2: question he doesn't want to ask or answer, so you know,
49:11
Speaker 2: they have to suss me out. And that's absolutely fine,
49:14
Speaker 2: and I I wouldn't have that that any other way,
49:20
Speaker 2: but I think with that, And then I had a
49:29
Speaker 2: conversation with Louis Bayer phone him up, and he he
49:37
Speaker 2: wasn't so sure, necessarily not because he didn't want to
49:39
Speaker 2: appear on the podcast, but because he wasn't sure how
49:43
Speaker 2: much about Hirstprungs that he wanted to say as such,
49:47
Speaker 2: or that he knew about should I should I say?
49:50
Speaker 2: And but we chatted for about maybe ten minutes or so,
49:55
Speaker 2: and I, you know, I said, I love to have
49:58
Speaker 2: him on, and it's more about you know, as the
50:00
Speaker 2: person and what they achieve and you can achieve this,
50:03
Speaker 2: and you can achieve that with Hirshprungs. And then we
50:06
Speaker 2: sort of agreed a date to do and and then recorded,
50:12
Speaker 2: and it was absolutely fantastic. Are real pro It was
50:15
Speaker 2: absolutely fantastic. But I think trying to find people with
50:21
Speaker 2: Hirshprungs who is one of the issues, one of the
50:24
Speaker 2: problems because it's one in five thousands, and then it's
50:28
Speaker 2: even rarer in terms of people that want to share.
50:31
Speaker 2: So I think that that was one of the issues
50:34
Speaker 2: of trying to go every week. Hence I wanted to
50:37
Speaker 2: once every two weeks. But actually I'm very glad that
50:40
Speaker 2: one once every week and having that bank of episodes
50:43
Speaker 2: obviously helped with getting people on board. And also I
50:50
Speaker 2: think as well, the other the other part that well
50:57
Speaker 2: I wanted to sort of highlight Chrome's colitis and you
51:00
Speaker 2: see as well, is that there are people with those
51:02
Speaker 2: conditions with fantastic stories and they're not the same as Hirshprungs,
51:08
Speaker 2: but they have similarities with Hirshprungs, and I think if
51:14
Speaker 2: you just cut those people out, I mean, somebody has
51:17
Speaker 2: plenty of people who who've been on my podcast, but
51:19
Speaker 2: somebody's been on twice. He is Laura O'Reilly, who has
51:23
Speaker 2: a brilliant story, a fantastic story of triumph of her
51:28
Speaker 2: sickness journey and shares a lot of it on Instagram.
51:31
Speaker 2: But her her story is a fantastic one to share.
51:37
Speaker 2: And if I said, and she's also a fantastic supporter
51:41
Speaker 2: of the podcast as well, shares a lot of stuff,
51:43
Speaker 2: likes a lot of stuff. And if I said to her, no,
51:48
Speaker 2: you can't come on because you're younger, hirshbrungs, I think
51:51
Speaker 2: I'd be doing a lot of people a disservice. And
51:54
Speaker 2: I think it is one of the most of I
51:56
Speaker 2: think it's in the eleventh or twelfth most listened one
52:00
Speaker 2: out of out of thirty five so far, and a
52:05
Speaker 2: lot of people are interested in that story. And I
52:09
Speaker 2: think I think I'd be doing a disservice if I
52:12
Speaker 2: if I didn't have people with those conditions on't see
52:16
Speaker 2: you try and get I think it's just over sixty percent,
52:20
Speaker 2: might be about near the nearer sixty five percent Hirshprung's
52:23
Speaker 2: people at the moment by the time the fortieth episode
52:25
Speaker 2: goes out, and I'm trying to get between sixty to
52:29
Speaker 2: seventy percent. If I can have if I can have
52:32
Speaker 2: a month where I have three whether it be three
52:36
Speaker 2: out four or three out five, podcasts that are Hirshprungs related.
52:41
Speaker 2: Then then I'd be very happy. And I think I'm
52:45
Speaker 2: getting there, But obviously you have to build up the
52:48
Speaker 2: bank of episodes in order to get it's a chicken
52:51
Speaker 2: and egg situation. You have to build up the bank
52:53
Speaker 2: of the episodes in order to get more people with
52:58
Speaker 2: hirshprungs to come on. And I'm not just talking the
53:02
Speaker 2: celebrities at this stage. Yeah, there are there are a
53:05
Speaker 2: lot of people who have come on, you know our
53:09
Speaker 2: message at the very beginning, and now sort of seeing
53:13
Speaker 2: that there's you know that this is a more legitimate podcast.
53:16
Speaker 2: I'm not just going to do five episodes and then
53:18
Speaker 2: go Now I can't be bothered anymore, you know. I
53:20
Speaker 2: Am going to continue on and on and on hopefully, Yeah,
53:25
Speaker 2: as long as I can manage. And it's I think
53:32
Speaker 2: there are people who've then seeing, right, Okay, this is
53:34
Speaker 2: a this is a legitimate thing. You know we're going
53:36
Speaker 2: to I'll come on this podcast now because you know
53:41
Speaker 2: we've done all of these episodes and lot. It's not
53:44
Speaker 2: saying that's for everybody. I'm not talking about anybody in particular,
53:47
Speaker 2: but I think it is. It is just important to
53:50
Speaker 2: build up that bank of episode so that you just
53:52
Speaker 2: increase legitimacy and that that's that's really that one. The
53:58
Speaker 2: final question because I'm well where I've nearly gone an hour.
54:02
Speaker 2: The final question comes from Craig question twelve, and he says,
54:07
Speaker 2: how easy is it to get hirsh Brun's guests? And
54:09
Speaker 2: I think I've talked a little bit about this, and
54:13
Speaker 2: it really just depends on people and their time, and
54:18
Speaker 2: you know, as I mentioned with with Louis as well,
54:21
Speaker 2: going through his agent, because you have to go through
54:24
Speaker 2: the proper means. And that was about three four months
54:28
Speaker 2: talking messaging, Yeah, making sure that that wasn't going to
54:36
Speaker 2: ask anything stupid or you know. And also yeah, another
54:40
Speaker 2: thing that I say as well, I offer when we
54:45
Speaker 2: do the podcast, I'll say, you know, I'll send it
54:47
Speaker 2: to you first so that you're happy with it before
54:50
Speaker 2: before we can send it out. I think that was
54:53
Speaker 2: about three four months of messaging, then had a ten
54:56
Speaker 2: minute call, sorted it out I think for the next
55:00
Speaker 2: week or something like that, did the podcast, and then
55:03
Speaker 2: sent out a week later, and it might have been
55:05
Speaker 2: two weeks later. So all in all it was probably
55:08
Speaker 2: around about five months. But actually by the time we
55:10
Speaker 2: had a chat we recorded, it's probably maybe only like
55:13
Speaker 2: three weeks. And also it's it's time as well, it's
55:17
Speaker 2: finding the time. But there are some people, as I mentioned,
55:21
Speaker 2: I think with with Harvey, we we talked on the
55:26
Speaker 2: Wednesday or Wednesday morning, we talked, we recorded Wednesday night,
55:32
Speaker 2: it then went out Thursday morning, so things things could
55:36
Speaker 2: happen very quickly. And and same with with Zoe Coletti
55:41
Speaker 2: as well. I think that that was just a message
55:45
Speaker 2: on Instagram, just messaged on Instagram said you know, would
55:48
Speaker 2: you like to take part? Et cetera, et cetera. She
55:52
Speaker 2: I think left a comment on the Louis episode saying
55:56
Speaker 2: that she, you know, she really enjoyed it, which was
56:00
Speaker 2: the mind blowing really and I'd ever thought that she'd
56:08
Speaker 2: messaged or message back or anything like that, and she
56:12
Speaker 2: did and she said, yeah, we'd love to take part.
56:14
Speaker 2: And then we've sawt out of time and that was
56:16
Speaker 2: all that all came together within like a week or
56:19
Speaker 2: something like that. So sometimes it can take a matter
56:24
Speaker 2: of days. Sometimes it can take months. And I don't
56:29
Speaker 2: necessarily mind, you know, which way it is, so long
56:33
Speaker 2: as the guest is happy and comfortable. And that's really
56:38
Speaker 2: it for me in terms of how easy is it.
56:42
Speaker 2: You know, it's it's it's one in five thousand people.
56:45
Speaker 2: It's not it's not like finding people with an illness
56:49
Speaker 2: that you know, one in two or one in three
56:52
Speaker 2: or whatever people get or have been affected by. So
56:56
Speaker 2: he's always going to have its challenges, and I think
57:04
Speaker 2: it's it's been really really pleasing to see how many
57:11
Speaker 2: people want to come on, and how many people want
57:13
Speaker 2: to share, and how many people just sort of like
57:18
Speaker 2: it and listen to it. And I mean, the listening
57:20
Speaker 2: figures are going higher and higher at the moment, and
57:26
Speaker 2: you know, what I was expecting six weeks ago in
57:31
Speaker 2: viewing figures or listening figures is now a lot higher.
57:35
Speaker 2: I'm expecting a lot higher listening figures. So it really
57:39
Speaker 2: is going from strength to strength, and I just really
57:43
Speaker 2: want to see it continue that way. Get as many
57:47
Speaker 2: Hirshrunk's guests as possible. As I said before, you know,
57:49
Speaker 2: if I can get sixty to seventy percent, I'll be
57:52
Speaker 2: really really happy, really happy with that. But yeah, just
57:59
Speaker 2: very very please. But that wow, nearly an hour. That
58:06
Speaker 2: will catail the end of they asked me anything episode.
58:12
Speaker 2: Thank you to everybody to the twelve questions that were
58:17
Speaker 2: sent in. I hope I've done I hope I've done
58:20
Speaker 2: them justice. I hope you've got what you wanted out
58:23
Speaker 2: of those questions, but anybody is. If you're listening to
58:27
Speaker 2: this and it's sparked off another question, or if I
58:30
Speaker 2: haven't answered your question properly and you want a better explanation,
58:35
Speaker 2: feel free to message me and if you've got another question.
58:40
Speaker 2: Dms are always open. Facebook message always open Tom's Hirsprung's Podcast,
58:46
Speaker 2: and the same on on Instagram as well. Feel free
58:49
Speaker 2: to send a message and I will I will get
58:53
Speaker 2: back to you, or email Tom Hirshprung's Podcast at gmail
58:58
Speaker 2: dot com. Feel free to ask any questions you wish
59:04
Speaker 2: and I will and I will definitely get back to
59:07
Speaker 2: you because I think, you know, the more the more
59:11
Speaker 2: awareness we can have with Hirshprungs, the more awareness we
59:18
Speaker 2: can create, the I think the better, the better for everyone.
59:23
Speaker 2: So yes, as I said, thank you so much to
59:27
Speaker 2: everybody who sent their questions in, we might if I
59:30
Speaker 2: get more, we might do another one of these, but
59:33
Speaker 2: I thought we'll do one for Hirshprungs Hirshprung's awareness mon especially,
59:38
Speaker 2: but if we get another, if we get a load
59:41
Speaker 2: more and might do another one into maybe one for Christmas,
59:44
Speaker 2: maybe one in two three months time. But thank you,
59:49
Speaker 2: thank you to everybody who's listened, and you can find us,
59:54
Speaker 2: or you can find me at toms podcast on Facebook, Instagram,
1:00:02
Speaker 2: or email at Tom's Hirshbrungs Podcast at gmail dot com.
1:00:07
Speaker 2: Thank you very much, Thank you for listening to the podcast.
1:00:13
Speaker 2: Find us on Instagram at Tom's Underscore Hirshbrungs Underscore Podcast.
1:00:18
Speaker 2: Listen to previous episodes on Spotify by searching Tom's Hirshbrung's
1:00:22
Speaker 2: Podcast