Latest / Tom's Hirschsprung's Podcast / Episode 38 - With Steffy and Samantha Little

Transcript

Episode 38 - With Steffy and Samantha Little · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshprung's Podcast, where I provide
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Speaker 1: a look into the remarkable experiences of the most inspiring
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Speaker 1: people around Hirshprung's disease and sports.
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Speaker 2: Hello and welcome to episode thirty eight of Tom's Hirshprung's podcast.
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Speaker 2: The Double Guest one that I have today, I have
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Speaker 2: one returning guest and one new guest, So please welcome
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Speaker 2: Steph and some man Polittle. Welcome to the podcast. Hi
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Speaker 2: by Welcome back again Steph, and welcome for the first time, Sabantha.
1:01
Speaker 2: We're going to talk about well, this is part two
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Speaker 2: for you, Steph, and we talked a lot about your
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Speaker 2: Hirshbrun's journey. We talked a little bit about Samantha's Hirschbrung's
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Speaker 2: journey as well from a medical point of view. This
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Speaker 2: one's more going to be well in my wheelhouse about
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Speaker 2: sports and in your wheelhouse as well about sport. If
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Speaker 2: there's two things I love talking about, it is Hirshbrungs
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Speaker 2: and sport. So that's why both of you are absolutely
1:27
Speaker 2: perfect for this podcast. So we will chat a lot
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Speaker 2: of sport, we will chat a little bit about Hirshbrungs,
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Speaker 2: how you've both coped with that in your own sporting
1:37
Speaker 2: lives as well. And we'll be touched on briefly at
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Speaker 2: the end or back end of last episode about your
1:46
Speaker 2: time Steph in playing netball and playing netball regionally. I
1:53
Speaker 2: think we'll start there. Do you just want to give
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Speaker 2: a little bit of background into how you got into
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Speaker 2: netball and how you got to sort of county level
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Speaker 2: and got quite high.
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Speaker 3: Yeah. I was actually I wanted to join basketball, but
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Speaker 3: I had a friend kind of brought me into joining netball,
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Speaker 3: and then I was fell in love with it. My
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Speaker 3: first season, I became runner up MVP. Yeah, it was
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Speaker 3: pretty coold, and because I was tall for my age,
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Speaker 3: even though I'm quite short now. I I was defender
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Speaker 3: so GK and g D and then loved that begged
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Speaker 3: to be attacks so G A, G A and g S.
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Speaker 3: And my first ever goal, I was standing at the
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Speaker 3: top of the D and I got it in, Oh wow,
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Speaker 3: very top of the d in the D, but at
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Speaker 3: the very very top of the D straight into the net.
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Speaker 3: It was pretty awesome. And then they finally realized I
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Speaker 3: was actually a good shoot up. I played netball for
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Speaker 3: eight years. I was playing at an indoor center and
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Speaker 3: I was scouted, but unfortunately I had to turn it
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Speaker 3: down because I was having bought reconstruction because of the
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Speaker 3: nerve damage due to a harsh box surgery that went wrong.
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Speaker 2: Yep.
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Speaker 3: And then after that I had to give it up
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Speaker 3: because it just became too much. My ankles would swow up,
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Speaker 3: my knees would swow up, and my doctors just kept saying,
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Speaker 3: if you keep going, you're going to end up in
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Speaker 3: a wheelchair. And that just gets the life out of me.
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Speaker 3: So I unfortunately.
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Speaker 2: Yeah. And was it just netble you were doing at
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Speaker 2: the time, or were you doing any other sports?
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Speaker 3: Not netball was like dix to seven days a week.
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Speaker 3: H Yeah. I was playing three four games, umpiring three
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Speaker 3: four games. And if I was umpiring and there was
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Speaker 3: like a team that really wanted me on their team
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Speaker 3: to fill in, I'd had to bribe them and not
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Speaker 3: play wings because not many people like wings. You've got
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Speaker 3: to be a special breed to light wings.
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Speaker 2: I'm gonna just going up and down, up and down,
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Speaker 2: up and down if you want.
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Speaker 3: Okay, wings are needed. Wings are needed, Okay, but it's
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Speaker 3: just not my thing. I like the fun of trying
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Speaker 3: to get the ball away from the goal or getting
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Speaker 3: the ball into the goals. So the wings they've got
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Speaker 3: their purpose, but it's just not for me.
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Speaker 2: Fair enough, excellent. And if we're also talking a little
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Speaker 2: bit about your sporting journey as well, Samantha, we know
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Speaker 2: that your your big passion is swimming. When did you
5:02
Speaker 2: get into swimming?
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Speaker 4: Well, I've been swimming my whole life, but not really
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Speaker 4: like competitive, but because I've also got asthma, Mom decided
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Speaker 4: to get me into swimming to strengthen my lungs. So
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Speaker 4: I used to get hospitalized like what two three times
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Speaker 4: a year, Yeah, because of my ass they're being so bad.
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Speaker 4: And then with the swimming it really helped. And then
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Speaker 4: Mum like kind of bribed me into doing a race,
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Speaker 4: and then I fell in love with it, and four
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Speaker 4: years later, I'm still enjoying it and I've gone to
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Speaker 4: States twice. I'm self taught butterfly, which is incredible. Not
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Speaker 4: many people can do botfly, and my main strokes also butterfly,
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Speaker 4: which means like the stroke that you always do and
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Speaker 4: it's your favorite stroke. And for in fact, Christyle isn't
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Speaker 4: actually classified as a main stroke, which surprises a lot
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Speaker 4: of people.
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Speaker 2: That surprised me, especially as we're we're recording this at
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Speaker 2: the moment in the middle of the Paralympics or Paralympics
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Speaker 2: have just started, Olympics has just finished. As we were
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Speaker 2: recording at the end of August. I thought freestyle was well,
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Speaker 2: do what you want basically, but but no, I didn't
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Speaker 2: realize that wasn't a classified stroke. And I know me
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Speaker 2: and you, Steph, we were talking a little bit about
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Speaker 2: Samantha swimming before, just a little bit off air, about
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Speaker 2: how she had ASPA and then came into swimming, and
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Speaker 2: you talked a little bit about because of the swimming
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Speaker 2: and keeping up the fitness and the gym work, et cetera,
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Speaker 2: et cetera, her immune system has improved. How have you
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Speaker 2: seen that sort of overtime?
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Speaker 3: There's been less hospitalizations with her asthma, which has been great.
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Speaker 3: She hasn't been going blow on me, which is so scary.
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Speaker 3: Samantha's a non wheeze asthmatic, so a lot of asthmatics
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Speaker 3: they've got a wheeze and then people would know that
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Speaker 3: an asthma attack is coming. Samantha doesn't have that wheeze.
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Speaker 3: She has the wheeze where she's having the asthma attag
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Speaker 3: but not prior right, Yeah, so very kind of rare
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Speaker 3: asthma apparently, very scary because there's no warning. She can
7:28
Speaker 3: she knows it's coming, and.
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Speaker 4: It's coming, but it's hard to like say, like I'm
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Speaker 4: about to have an aspera attack.
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Speaker 2: Help, yeah, with a lot of breath. No.
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Speaker 3: But then, because she's got to eat a diet that
7:46
Speaker 3: is keeping up her stemina and stuff, we he's had
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Speaker 3: to work out watch inflames her bows, what sets her
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Speaker 3: bowels off, what makes her you don't go the toilet frequently,
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Speaker 3: and stuff. So we've done like a dairy elimination, we've
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Speaker 3: done it like a gluten Apparently she may be Celiac,
8:09
Speaker 3: so we need to go get her tested for Celiac's disease. Unfortunately,
8:13
Speaker 3: we're hoping she doesn't because that will just make life
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Speaker 3: rule for her, because then otherwise we've got to eat
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Speaker 3: gluten free pasta and that's just not okay Nope, I
8:24
Speaker 3: mean from the Italians.
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Speaker 2: Well, yeah, you are proper pasta, don't it exactly?
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Speaker 3: So yeah, it will make life a bit tricky, but
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Speaker 3: we'll cross that bridge when we get to it. We
8:39
Speaker 3: do have we both started eating more gluten free stuff.
8:44
Speaker 3: We do eat a lot of like lactose free or
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Speaker 3: dairy free products, but sometimes even just laptose free doesn't work.
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Speaker 3: But last night we had a laptose free creamy like
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Speaker 3: chicken and pasta, and well we'll both seek from it. Oh,
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Speaker 3: no good, and it's completely left chose pray.
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Speaker 2: Oh so.
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Speaker 3: Very strange, we both. Sam was like, are you sure
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Speaker 3: it was like chaste very much? Well, that's what it's said.
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Speaker 2: I think, Yeah, I'm gonna trust the packet. I presume.
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Speaker 3: It's so that big dairy intolerant, but I will never
9:30
Speaker 3: give up chocolate for that, which is true.
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Speaker 2: There's certain things you can't live without. And yeah, chop
9:37
Speaker 2: chop let's definitely one of them.
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Speaker 3: No, and Sam looks and teller, so not too much.
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Speaker 2: But just just speaking of diet as well, I know
9:49
Speaker 2: you want you want to touch on kind of a
9:52
Speaker 2: weight loss journey that you've been on STEPH as well.
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Speaker 2: What sort of made you think, oh, I want to
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Speaker 2: to do this now.
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Speaker 3: My best friend and I went to pink at the
10:10
Speaker 3: beginning of the year, and so last year when we
10:13
Speaker 3: bought the tickets, I said to her, we can't be
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Speaker 3: a skinny and a fat best friend going to pink.
10:20
Speaker 3: We got to be two skinny friends going to pink
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Speaker 3: and she got She used to get so upset with
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Speaker 3: me when I said that, I'll call myself out because
10:28
Speaker 3: I was overweight, but I was still very muscly. But
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Speaker 3: I was like, no, I'm not happy with my weight,
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Speaker 3: so let's let's do this. Let's let me lose weight.
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Speaker 3: My first goal was se many ah, yes, seventy five kilos,
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Speaker 3: and I got to that. My next goal is sixty
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Speaker 3: five kilos, and I dis I went into a calorie deficit.
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Speaker 3: I lowered the carbs and some people might be listening
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Speaker 3: to this and be like, oh, you don't have to
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Speaker 3: do that. I lowered it because of the gluten, right, Yeah,
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Speaker 3: So I started reducing the amount of gluten I was
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Speaker 3: taking in. But then a lot of gluten free products
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Speaker 3: are hiring cabs, okay, which makes it really tough as well.
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Speaker 3: I stopped having gluten free, reduced dairy, and loa sugar. Yeah,
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Speaker 3: and that that seemed to work, but a lot of
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Speaker 3: a lot of gym. There was a lot of gimmy involved,
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Speaker 3: which is fun.
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Speaker 2: Yeah, absolutely absolutely, So, just briefly talking about gym work,
12:01
Speaker 2: and how important that is, I guess for the both
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Speaker 2: of you. When did we talked a little bit about
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Speaker 2: your your weight lost journey, Steph, And when did you
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Speaker 2: start to start to do a bit of gym work.
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Speaker 3: I started in twenty twenty. I reached out to Leish
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Speaker 3: and I said, I want to get fit out because
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Speaker 3: I was going to be a bridesmaid for my best
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Speaker 3: friend at the time, who's who was who got married
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Speaker 3: in twenty twenty, and I said I'd just I was
12:44
Speaker 3: a little better for her in the bridesmaid Sorry. I
12:51
Speaker 3: reached out for her and she I was walking her
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Speaker 3: pug at the time, dog walking her pug, so we
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Speaker 3: basically change services. She gave me personal training and then
13:07
Speaker 3: I walked her dog and I said to her, I'll
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Speaker 3: never be able to lunch, I'll never be able to
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Speaker 3: squat with just waitever have perfect form. I won't never
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Speaker 3: be able to do a sit up, and I can't
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Speaker 3: lift over sixteen kilos And it's all because of what
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Speaker 3: the doctor said. The lunging and the squatting is because
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Speaker 3: of my deformed foot, because of the surgery gone wrong
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Speaker 3: when I was younger, and then the sit ups and
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Speaker 3: anything coore was because of all the surgeries I've had
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Speaker 3: because of hersh runs on my stomach. And she's like, yeah,
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Speaker 3: we'll see about that. Let's get you in. Let's since sessy,
14:00
Speaker 3: let's change that. And I was like, I was like,
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Speaker 3: I go, you're the personal trainer, let's go. But it
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Speaker 3: also took me five years to find a personal trainer
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Speaker 3: that was it scared to give me a go. A
14:17
Speaker 3: lot of them just went nup, you're too risky. I'm
14:21
Speaker 3: not gonna not gonna train you. Leif has a different mindset.
14:27
Speaker 3: Leif has got a mindset of we'll work with what
14:31
Speaker 3: we've got and let's get you stronger. So that's what
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Speaker 3: we did. Within I think six months of me working
14:41
Speaker 3: out with her, he had me squatting with a barbell
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Speaker 3: on my back with a box underneath me, and it
14:51
Speaker 3: was basically touch and go on the box with the
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Speaker 3: bar bell. And then last year, no beginning of this, dear,
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Speaker 3: I did a back barber back squad of sixty seven
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Speaker 3: and a half kilos without any box underneath me.
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Speaker 2: Wow wow, yeah, pressive, incredibly impressive. And we've been talking
15:19
Speaker 2: a little bit about your PBS or what you can
15:24
Speaker 2: do in terms of deadlift, squat squats. You mentioned sixty
15:27
Speaker 2: seven and a half deadlift is now in the three
15:32
Speaker 2: figures one hundred kg, which is fantastic, and then bench
15:37
Speaker 2: press of fifty seven and a half, and it just
15:41
Speaker 2: goes to show I mean, obviously, yes, I know, I
15:44
Speaker 2: reiterated this point that everybody's different, et cetera, et cetera.
15:48
Speaker 2: But just because you have her Sprungs or you have
15:50
Speaker 2: a chronic illness, it doesn't mean that you know things
15:53
Speaker 2: should necessarily be off limits to you, and you or
15:56
Speaker 2: both of you are our testament to that. I will
16:00
Speaker 2: pick up on one point he says, it's it's a
16:03
Speaker 2: shame that you had so many pets that said, no,
16:07
Speaker 2: don't want to work with you, you're too risky, et cetera,
16:10
Speaker 2: et cetera, because I now see, especially on Instagram, a
16:14
Speaker 2: lot of I follow a lot of pets and have
16:17
Speaker 2: had a couple actually on this show actually specialize in
16:22
Speaker 2: working with people with chronic illness. And then and Taylor
16:28
Speaker 2: plans to them. Obviously Hirshprung's being sort of affecting stomach
16:33
Speaker 2: it then and affecting core then Will kind of has
16:38
Speaker 2: a lead on to everything. Yeah, but I think that's
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Speaker 2: fantastic that you found somebody who said, no, let's let's
16:47
Speaker 2: work together. Let's let's try and get you know, the
16:51
Speaker 2: absolute best out of you as possible. So we kind
16:57
Speaker 2: of told don't do sit ups, don't do this, don't
17:00
Speaker 2: do that, or was it sort of like, well it
17:03
Speaker 2: probably his best. You don't.
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Speaker 3: The sit up. So I was told I'll never be
17:08
Speaker 3: able to do. So they're like, don't try and ever try,
17:13
Speaker 3: don't think you've got to ever do or sit up?
17:17
Speaker 3: Do you wait? You won't be able to do it.
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Speaker 3: You don't have the the core strengths, you don't have
17:22
Speaker 3: the muscles there, they're all being cut up, YadA, YadA, YadA.
17:29
Speaker 3: So last year I did my first sit up. It
17:33
Speaker 3: was just me and my husband in the gym and
17:36
Speaker 3: he was doing a sit up but his backwards saw
17:39
Speaker 3: that day, so I was like, here, this is what
17:41
Speaker 3: helps me. And I used to hold a dumb bell
17:44
Speaker 3: like this as momentum to get me up and the
17:49
Speaker 3: weight went from five kilos down to one kilo to
17:53
Speaker 3: no kilos and I was like, let's see if I
17:57
Speaker 3: can do it, because I could do crunches. And then
18:00
Speaker 3: this day I was like before I did it. I
18:03
Speaker 3: said to Peter, my husband, I was like, record me
18:06
Speaker 3: because if I do, you one, I want it on video.
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Speaker 2: You want to see it?
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Speaker 3: Yeah? Yeah, And all you can see him in the
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Speaker 3: video is that I sit up. I look at him.
18:19
Speaker 3: I'm so happy. I'm crying because I've got to sit
18:23
Speaker 3: up down up and it took me four years, yeah,
18:28
Speaker 3: four years to be able to do a sit up,
18:29
Speaker 3: but I did it.
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Speaker 2: That's absolutely fantastic. I think that that is awesome. That
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Speaker 2: is absolutely brilliant. And is that video been shared anywhere?
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Speaker 2: Does anybody else see it? Or is it just with you?
18:44
Speaker 3: No? I've shared it on TikTok and Kicking host Brungs
18:47
Speaker 3: is lead in the art and my Instagram and it's everywhere.
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Speaker 2: I'll have to seek that out, I have. I haven't
18:53
Speaker 2: seen it. I'd love to see it. I will. I
18:56
Speaker 2: will definitely seek that out because that's fantastic and I
18:59
Speaker 2: think it for people with herstprong's, I know we've got
19:02
Speaker 2: to be careful of our stomachs and things like that,
19:04
Speaker 2: but it does go to show that you you know,
19:08
Speaker 2: with four years of four years of practice. Yeah, it
19:12
Speaker 2: does amaze me constantly how how much people are able
19:17
Speaker 2: to do, you know, after sometimes being told you can't
19:21
Speaker 2: do this, or you can't do that, or you shouldn't
19:23
Speaker 2: do this or shouldn't do that. But that's absolutely fantastic.
19:27
Speaker 2: And I'll bring you in as well, Samanthro, because you
19:30
Speaker 2: do quite a lot of gym work as well. Do
19:33
Speaker 2: you have any sort of specific plans that you follow
19:36
Speaker 2: in the in the gym, anything that you are particularly
19:40
Speaker 2: working towards.
19:42
Speaker 4: At the moment, yeares, But that's because I've got best
19:45
Speaker 4: star artists in my left shoulder, so we're just trying
19:48
Speaker 4: to work on that so then I can.
19:50
Speaker 3: Get better with my swimming. So we're currently just kind
19:56
Speaker 3: of worth on that. We're doing a lot of like
20:01
Speaker 3: machine and free weight work, strengthening, strengthening the rotator cuff
20:07
Speaker 3: around the birth sidis and that was another thing like
20:14
Speaker 3: doctors and physios and all that were like rest, rest, rest,
20:20
Speaker 3: and we have found that the more she rested, the
20:26
Speaker 3: worse it was because everything around it was weakening because
20:29
Speaker 3: she wasn't using it. And now that she's sporting and
20:33
Speaker 3: can go to the gym with me under my subervision
20:36
Speaker 3: and we're getting the gym workouts in, so we go
20:39
Speaker 3: in we go do her shoulder exercises and then we
20:43
Speaker 3: go and do a circuit together. And ever since we've
20:47
Speaker 3: done that, in the last six weeks, there's been huge improvements.
20:52
Speaker 3: So she went from swimming six days a week to
20:56
Speaker 3: swimming once or twice a week and only last and
21:00
Speaker 3: now like half an hour forty minutes at max. Now
21:04
Speaker 3: she's lasting the two one and a half to two hours,
21:07
Speaker 3: and she's swimming multiple times a week.
21:10
Speaker 2: Plastic.
21:12
Speaker 3: And then at swim meets she do a couple of
21:16
Speaker 3: races and then you have to cancel because like scratch
21:21
Speaker 3: the races because she beat in so much pain. And
21:26
Speaker 3: back in August August, yeah, a couple of weeks ago
21:31
Speaker 3: she did her nurse's end of truly, no it's August. Anyway,
21:38
Speaker 3: she did her first swim meet and she swam all
21:41
Speaker 3: four races, including one hundred meter freestyle. And we've been
21:46
Speaker 3: scratching that first six months. Wow it yeah, they were
21:51
Speaker 3: my favorite races. So there was four races. There was
21:54
Speaker 3: one hundred meter freestyle, fifty meter freestyle, fifty meter butterfly,
21:59
Speaker 3: fifteen in a backstroke and I have not done backstroke
22:03
Speaker 3: in training prior to mice for Meat. Two three months maybe,
22:10
Speaker 3: And then when I raced backstrokes that night, my coaches
22:14
Speaker 3: literally said to me, they were like, try your best.
22:17
Speaker 3: We're not going to be looking for times because you
22:19
Speaker 3: haven't swummer and your shoulders saw like, we're not going
22:22
Speaker 3: to expect times. I came out of that pool second
22:25
Speaker 3: place and nearly three second personal best.
22:31
Speaker 2: That's what tis thing.
22:32
Speaker 3: Congratulations, it's incredible. Yeah, that's awesome.
22:37
Speaker 2: That's so so good to hear. And what's that kind
22:40
Speaker 2: of attributed to? Is that sort of the gym work
22:44
Speaker 2: and the swimming together, and what would put that down to?
22:50
Speaker 4: Just everything just focusing on my shoulder, put it everything
22:55
Speaker 4: into my shoulder.
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Speaker 3: Just it is focusing about it and just having cores
23:00
Speaker 3: that believe in her. So the coach that she's got
23:03
Speaker 3: currently left her old swim club and had moved to
23:08
Speaker 3: this new swim club that Samantha's that now, And we
23:13
Speaker 3: went to an AFL Australian Football League game and Samantha
23:19
Speaker 3: rain into her old coach and the coach was like,
23:22
Speaker 3: come to my club, come to my club, will fix
23:24
Speaker 3: your shoulder, We'll get you swimming again, We'll fix your technique,
23:27
Speaker 3: blah blah blah. Anyway, Samantha came saturnessary. She goes, mom,
23:32
Speaker 3: guess what, guess who are ran into. I'm like, I
23:34
Speaker 3: don't know who. She goes trainer and I was like yeah,
23:38
Speaker 3: and she because she wants me to come skim for
23:40
Speaker 3: her club. I was like, I've told you if you
23:42
Speaker 3: want to follow her, we'll follow her. Anyway, we did
23:46
Speaker 3: the I did the leap. Sam was like, I don't know,
23:49
Speaker 3: because she wanted to be like one club only and
23:52
Speaker 3: you know, be faithful to her club and everything. And
23:55
Speaker 3: then she's like, but I really want Trina anyway, So
24:01
Speaker 3: I did the lead. I made the decision for her.
24:03
Speaker 3: I was like, no, we're moving. We did the trial.
24:06
Speaker 3: She made friends on the day after three years of
24:08
Speaker 3: being at this other club and not making any friends
24:10
Speaker 3: at all, and now there's like a group of them
24:14
Speaker 3: that book every day. Are you swimming tonight? You swimming tonight?
24:19
Speaker 3: Like you better be swimming tonight, that sort of stuff,
24:24
Speaker 3: and this is fantastic. So having the coaches and friends
24:30
Speaker 3: and it's a different environment, it's fun again for her.
24:35
Speaker 3: It's not just swimming, because when suddenly becomes just swimming
24:39
Speaker 3: or just stimming, it becomes at all you don't enjoy it,
24:43
Speaker 3: so then you don't want to do it. So now
24:45
Speaker 3: it's like a social thing for her, and because it's
24:48
Speaker 3: a social thing, she's getting better at it and she's
24:50
Speaker 3: actually swimming and she's not focusing on the pain because
24:53
Speaker 3: she wants to still be there with her friends and
24:56
Speaker 3: all that sort of stuff. But that's also you know,
25:00
Speaker 3: he's looking getting her shoulders stronger. The coach is looking
25:03
Speaker 3: at her technique and go, hey, this is what you're doing,
25:06
Speaker 3: this is why it hurts. How about you try this
25:09
Speaker 3: way instead and let me know. And then Sam does
25:13
Speaker 3: the new way and goes, oh, that doesn't hurt, all right,
25:15
Speaker 3: let's do that. And then because of that, her times
25:19
Speaker 3: are also dropping. So the three other races she kind
25:25
Speaker 3: of gained time, but not too much time. But her
25:29
Speaker 3: technique was amazing. She got so much good appraisal after
25:34
Speaker 3: her races and they're like, that's the best you've ever
25:36
Speaker 3: swum in so long. Even her old coach at the
25:42
Speaker 3: swim meet was like, Sam, you haven't sworn by that
25:44
Speaker 3: ages and Traina's like, yeah, I told her to do
25:48
Speaker 3: this this and then he goes, oh, I didn't even
25:49
Speaker 3: notice that, and yeah, it just makes just makes a
25:53
Speaker 3: difference when you've got a coach that believes in you
25:57
Speaker 3: with me personal training, and like Sam's got the same
26:01
Speaker 3: personal trainer. So the person my personal trainer is my
26:04
Speaker 3: best friend and Sam calls it Auntie. That's is the
26:08
Speaker 3: relationship we've got now. And then Sam has a connection
26:12
Speaker 3: with her coach and the new coach. And when you've
26:16
Speaker 3: got someone that believes in you, you're all your inspiration
26:20
Speaker 3: and your drive is so much more.
26:23
Speaker 2: Yeah, that's definitely no, that's that's absolutely fantastic. And congratulations
26:29
Speaker 2: on your your PB as well. That's that's brilliant. But
26:33
Speaker 2: he is, as you said, it's about so in my
26:38
Speaker 2: sort of decade and a bit in coaching, it's very
26:40
Speaker 2: much about coaching people. You know, you don't necessarily coach
26:43
Speaker 2: the sport, you coach the person and you need that.
26:46
Speaker 2: You need that, you need to basically know who you're
26:51
Speaker 2: coaching and know how to coach people because not every
26:54
Speaker 2: way works exactly the same. And but that's that's absolutely fantastic,
27:00
Speaker 2: So so well well done on that. And then inters shoulders.
27:06
Speaker 2: You mentioned the rotator cuff as well. I know a
27:10
Speaker 2: lot about I've torn it and torn mine three times.
27:13
Speaker 2: So if you're talking to somebody about cuffs, I've torn
27:18
Speaker 2: my left one. I mean there's four rotato cuffs too
27:21
Speaker 2: at the front too of the back. But yeah, I've
27:23
Speaker 2: torn mine three times, all playing the same cricket shot
27:26
Speaker 2: as well, So I just don't play that shot anymore.
27:31
Speaker 2: Just put that back of the locker and god, nah,
27:34
Speaker 2: and I'm fancy tearing it again. Thanks, But yes, yeah,
27:37
Speaker 2: one that knows about shoulder injuries are the yeah, me unfortunately.
27:42
Speaker 2: And it's just like saying, yeah, yeah, it just it
27:47
Speaker 2: just pings and it goes and it's yeah, it's and
27:49
Speaker 2: there's not. And you said as well about you were
27:53
Speaker 2: recommended rest, and I was recommended the same. When I
27:57
Speaker 2: first did mine, I was sixteen, so we're going back
28:00
Speaker 2: about sixteen years, sixteen seventeen years, and I was told
28:05
Speaker 2: to rest it, don't do anything with it, and then
28:09
Speaker 2: went to the physio and they said, well, if you
28:11
Speaker 2: do that, you'll end up with frozen shoulder. So it
28:15
Speaker 2: is as much as it does her. You've still got
28:18
Speaker 2: to do your exercises and this, that and the other.
28:20
Speaker 2: And it definitely sounds like you're keeping up with your exercises,
28:22
Speaker 2: which is fantastic. You also mentioned that your Facebook page
28:27
Speaker 2: that we touched on in the first part of your interview. Yeap,
28:32
Speaker 2: and as we sit here now the thirty first of
28:35
Speaker 2: August with hirsch Frung's month a day away, yeah, will
28:39
Speaker 2: you'd be seeing anything on the page sort of to
28:41
Speaker 2: mark that month because it is effectively your month. You
28:44
Speaker 2: invented it, so it's have you got anything to mark
28:49
Speaker 2: your own invention.
28:52
Speaker 3: I do post a bit more through September, getting people doing,
28:56
Speaker 3: like you know, send me their stories so I can.
29:01
Speaker 3: I'll repost my story as much as it gets repetitive,
29:05
Speaker 3: but sometimes there's new people on there that haven't actually
29:07
Speaker 3: read my story yet. I'll try and encourage people to
29:13
Speaker 3: post it. See what people are doing to celebrate hirst
29:17
Speaker 3: rungs away a month. Some people do charity walk, some
29:21
Speaker 3: people do picnics, it's yeah. Some people do fundraising through
29:27
Speaker 3: their schools. I don't do so much anymore. That's a
29:32
Speaker 3: bit too. He didn't can send swimming and all that
29:34
Speaker 3: sort of stuff kind of takes over, which is good.
29:39
Speaker 3: It's good. Maybe next year we'll organize a charity swim
29:43
Speaker 3: or something instead of a charity walk. Yeah, get the
29:47
Speaker 3: club to swim for it. Yeah, that'd be cool. Maybe
29:53
Speaker 3: do like a twenty four hour challenge or something. I
29:55
Speaker 3: don't know.
29:56
Speaker 2: Oh wow, yeah, that's that's it.
29:59
Speaker 3: A yeah, I'll post on the I'll post on the page.
30:09
Speaker 3: Do you want? Are you doing anything for it?
30:11
Speaker 2: I have been asked to. I mean, I'm sharing a
30:14
Speaker 2: few things for it, but I've been asked to share something.
30:20
Speaker 2: I'm sharing it on Facebook mainly rather than Instagram. Yeah something.
30:24
Speaker 2: Or Vicky bit Or contacted me and said, can you
30:27
Speaker 2: share something that she's doing because she's the mother of
30:31
Speaker 2: the hirsch franch child and they are hoping to get
30:37
Speaker 2: as many people as possible to complete five thousand kilometers,
30:41
Speaker 2: whether it be walking, running, cycling and what have you,
30:45
Speaker 2: off all over September. And obviously the reason being five
30:49
Speaker 2: thousand You both know this, but other people listening like
30:52
Speaker 2: not is that one in five thousand children are diagnosed
30:58
Speaker 2: with Hirshprung's disease. So five thousand kilometers sounded like, sounded
31:04
Speaker 2: like a good challenge to do. So yes, So that's
31:06
Speaker 2: what I will be doing for for September. So I've
31:11
Speaker 2: got to got to get out get running, which is fine.
31:14
Speaker 2: I love running anyway. So, I mean, I'm out near
31:17
Speaker 2: enough every day as it is.
31:19
Speaker 3: But yes, I want to do that. Can you do
31:21
Speaker 3: it for swimming?
31:23
Speaker 2: I'm sure you can. I'm sure, I'm sure you can
31:25
Speaker 2: have that.
31:26
Speaker 3: That's my challenge. I'm doing that challenge. You need to Okay,
31:32
Speaker 3: can you say it for me please?
31:33
Speaker 2: I will send it across to you. Yeah, and I'll
31:35
Speaker 2: post it on my page as well. How how that
31:41
Speaker 2: just sounds a silly question. But in five thousand kilometers
31:44
Speaker 2: in swimming? Is that? How how far do you swim?
31:47
Speaker 2: Sort of normally kilometers wise.
31:51
Speaker 3: Two to three kilometers are not sometimes four depends on
31:54
Speaker 3: how much we're doing.
31:55
Speaker 2: Okay, so yeah, so five five thousand would be a lot.
32:01
Speaker 3: Yeah, that's a lot.
32:02
Speaker 2: We're going to do five thousand and five thousand collectively.
32:05
Speaker 2: We'll try and do five.
32:07
Speaker 3: Ye not.
32:08
Speaker 2: Sorry I didn't mention that. It's not per person.
32:12
Speaker 3: Person. I'm like, I'm not sleeping bright.
32:15
Speaker 2: That would be insane. So yeah, sorry, it's it is.
32:20
Speaker 2: It is five thousand collectively. Sorry I should have I
32:23
Speaker 2: should have missed out one important detail.
32:28
Speaker 3: That's funny, all right, Yeah, all right, yeah I.
32:31
Speaker 4: Can do that.
32:32
Speaker 3: Great, I know that's something sweet. Okay, she would do
32:35
Speaker 3: that spelling on beaver walking fantastic.
32:40
Speaker 2: I have said to Vicky I will every every episode
32:43
Speaker 2: and this will be going out in September. Every episode
32:45
Speaker 2: in September. I will post it and advertise it and
32:49
Speaker 2: try and get as many people of board. And have
32:50
Speaker 2: found two more people. So all this work.
32:54
Speaker 3: Yeah, we read glad we put our kilometers in.
33:00
Speaker 2: So just post on I believe it's I should know this,
33:08
Speaker 2: really I should know this. The just post on Vicky's
33:19
Speaker 2: Facebook page. I believe I will double check.
33:22
Speaker 3: Okay, that's right. Message.
33:26
Speaker 2: Yes, So if you would like to contribute to the
33:29
Speaker 2: five thousand kilometer goal, you can sign up and just
33:35
Speaker 2: email five k HD Awareness at gmail dot com. Add
33:41
Speaker 2: your mileage whether you walk, swim, cycle, run, paddle, canoe,
33:48
Speaker 2: whatever you want to do, and then add to the
33:51
Speaker 2: five thousand kilometers and we'll see if we can. We'll
33:54
Speaker 2: see if we can crack it. But yeah, try and
33:56
Speaker 2: do all as a team, not as not as one
33:58
Speaker 2: person bird because you because I doubgue about it, Jip.
34:04
Speaker 2: But we'll see so just as we as we get
34:07
Speaker 2: towards the end here in terms, we've talked a little
34:11
Speaker 2: bit about the future. In terms of bits and pieces
34:14
Speaker 2: doing for for Hirshprung's awareness Month. But in terms of
34:18
Speaker 2: your swimming, Samantha, how far do you want it to
34:22
Speaker 2: carry you?
34:25
Speaker 4: I have very big goals, So for most swimming, I
34:29
Speaker 4: want to get to the Olympics and Commonwealth Games.
34:33
Speaker 2: Okay, yeah, plastic and the Olympics. Ye had twenty eight
34:38
Speaker 2: in a Los Angeles? Is that right?
34:41
Speaker 4: Yeah? Yeah?
34:41
Speaker 2: Bee, yep, yes, yeah. And when's the When's Commonwealth.
34:46
Speaker 3: Games twenty six? Yeah?
34:49
Speaker 2: Please?
34:50
Speaker 3: I'm pretty sure it's in London too. I think I.
34:54
Speaker 2: Should know that, and shouldn't I I should know that?
34:59
Speaker 3: Why is like and in Australia was going to take
35:01
Speaker 3: it over? I think, and.
35:05
Speaker 2: Then was yes it was supposed to be in Australia,
35:10
Speaker 2: and then.
35:12
Speaker 3: Made it in Melbourne. Oh, I got no idea. It's
35:19
Speaker 3: all up in the air. I think. I think it's
35:20
Speaker 3: between England and Australia at the moment.
35:25
Speaker 2: Ah, So it hasn't actually been. No, it hasn't actually been.
35:30
Speaker 2: As we're recording, it says that Glasgow could host it.
35:36
Speaker 2: Who knows that's nowhere near being. But yes, but no,
35:42
Speaker 2: I think it's still because I know it was supposed
35:44
Speaker 2: to be Victoria, but then it kind of yeah, I
35:47
Speaker 2: don't know, I don't know what happened, but anyway, but
35:50
Speaker 2: to try and get to the cold well, try and
35:52
Speaker 2: get to the Olympics. Obviously, wish you the very best
35:55
Speaker 2: of lot with all of those all of those goals
36:00
Speaker 2: and achievements, and then Steph for you as well. In
36:05
Speaker 2: terms of the future and the Facebook page and advocacy,
36:12
Speaker 2: what do you think that would look like.
36:19
Speaker 3: I'm not sure. I'm kind of it sounds bad, but
36:24
Speaker 3: I don't really post on hash brons anymore. My life
36:28
Speaker 3: isn't as exciting anymore, I guess because I don't know
36:33
Speaker 3: for both of us in a good way. Our hirshbrongs
36:37
Speaker 3: is kind of leveled out that we've kind of both
36:41
Speaker 3: got under control. So I try and post all the
36:47
Speaker 3: good stuff, but then people go, well, that's not me, like,
36:53
Speaker 3: and there is bad stuff with hirshbrungs, and there's good
36:55
Speaker 3: stuff with hershprungs, And you're trying to post when good
37:01
Speaker 3: stuff happens in our lives. Not much medical stuff really
37:08
Speaker 3: happens anymore. It's good, Yeah, it's good.
37:12
Speaker 2: That's great.
37:13
Speaker 3: So I don't know when I first started medically, I
37:18
Speaker 3: wasn't okay, like Hirshprungs and gynecology issues and stuff. And
37:25
Speaker 3: this year I've been dealing a lot with eddometriosis and
37:31
Speaker 3: Hirshbrungs has played a role in that because it is
37:34
Speaker 3: on my bowels at the moment and because of all
37:37
Speaker 3: the adhesions, it's just sucking together. So it's like easy,
37:45
Speaker 3: easy transit for endometriosis at the moment. But and because
37:50
Speaker 3: of NDO needs like it needs to be taken out.
37:54
Speaker 3: But because of all the surgeries, they can't do this.
37:57
Speaker 3: All my previous surgeries, I can't do more surgery because
38:00
Speaker 3: it's too risky. So yeah, I'm just trying to wrap
38:04
Speaker 3: my head around all that. At the moment, I would
38:08
Speaker 3: like to see Hirshbrungs spread a bit more. And hearing
38:15
Speaker 3: people do these challenges is amazing. That's so cool. And
38:19
Speaker 3: people celebrating Hirshprung's Awareness months, it's really really cool, It's
38:25
Speaker 3: really cool. I'm pretty happy. It's one of my greatest
38:30
Speaker 3: moments after Sam obviously too. You know that Hirshprung's Awareness
38:39
Speaker 3: Month is because of me, not to come big headed, but.
38:43
Speaker 2: For it, I have as much self promotion as you like,
38:46
Speaker 2: I don't ever feel ashamed in self promotion.
38:49
Speaker 3: So no, this just and people celebrating it's pretty cool.
38:55
Speaker 3: It is pretty cool seeing people do books and and
39:00
Speaker 3: you do your podcast. That's really cool, Like pretty awesome.
39:06
Speaker 3: I always wanted to do my book, got no way to,
39:09
Speaker 3: no idea where to start. I'm not arty at all.
39:13
Speaker 3: I don't know how to write. My story could probably
39:17
Speaker 3: be elaborated a lot more. I'm a talk per, So
39:20
Speaker 3: if someone wants to write my own book, go for it.
39:23
Speaker 3: Having a book, yeah, but I can talk like this. Yeah,
39:29
Speaker 3: but just to until a microphone. Now you've lost me.
39:34
Speaker 2: That's fair enough, that's fair enough. Everybody definitely has their
39:37
Speaker 2: own their own talents and skills.
39:40
Speaker 3: Yeah, I can tap people's ear off. I'll go off
39:43
Speaker 3: on my own journey with this with the story. But yeah,
39:49
Speaker 3: I can't sit there and write it. I've tried. So
39:51
Speaker 3: many people said write a book, and I honestly just
39:55
Speaker 3: I can't. I get bored.
39:57
Speaker 2: But isn't it it's I've shared a couple this week.
40:02
Speaker 2: There's one by Jonathan o'connoch, who I had on episode eleven,
40:08
Speaker 2: who wrote a fantastic book about hirshprungs about his son,
40:11
Speaker 2: and then Jemma, who has just released the Well by
40:16
Speaker 2: the time this comes out, it will be about a
40:18
Speaker 2: month old or whatever, but it well but the abilities
40:20
Speaker 2: in Me foundation. She's just written a book about Hirshprung's
40:25
Speaker 2: disease as well, so it is definitely getting out there,
40:29
Speaker 2: and it's definitely I don't know whether I'm more just
40:32
Speaker 2: more aware of it than I was before, but I
40:35
Speaker 2: now see it so more more often than I used to.
40:40
Speaker 2: And as I know I've mentioned before on here, I
40:42
Speaker 2: never met anybody with Hirshprung's previously, so to me both
40:48
Speaker 2: of you, to meet so many people doing this podcast
40:51
Speaker 2: is just fantastic and the fact that we now have
40:53
Speaker 2: a dedicated month thanks to you is absolutely brilliant and
40:58
Speaker 2: I love it so just for me. Thank you both
41:02
Speaker 2: of you so much for your time, and I wish
41:05
Speaker 2: you all the best in the future.
41:08
Speaker 3: Same with you, Tom, good luck with your podcast. It's
41:10
Speaker 3: pretty awesome that you're joining us. Yeah, thanks for having us.
41:15
Speaker 3: It was fun talking about all of that stuff.
41:22
Speaker 1: Thank you for listening to the podcast. Find us on Instagram.
41:25
Speaker 1: Tom's Underscore, Hirshbrung's Underscore podcast. Listen to previous episodes on
41:30
Speaker 1: Spotify by searching Tom's Hirshbrung's podcast