Latest / Tom's Hirschsprung's Podcast / Episode 86 - With Kirstie and Aubrey Law

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Episode 86 - With Kirstie and Aubrey Law · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshbrung's Podcast, a space where
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Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
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Speaker 1: live with it, care for someone who has it, or
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Speaker 1: just want to understand more, this podcast is for you.
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Speaker 1: Each episode, we will explore real stories and honest conversations
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Speaker 1: about a condition that often goes unheard. Thank you for
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Speaker 1: tuning in.
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Speaker 2: Hello, and welcome to episode eighty six of Tom's Hirshprung's Podcast.
0:49
Speaker 2: I'm delighted to be joined by two guests, the Satando
0:53
Speaker 2: joined by both Kirsty and Aubrey. Welcome to the podcast,
0:56
Speaker 2: both of you. Now, this is a unique story that
1:03
Speaker 2: I'm fascinated to find out about. I'm sure everybody listening
1:07
Speaker 2: is as well, because you both have hirshbrongs. But you
1:12
Speaker 2: both have very different types of hirshbrongs and very different
1:17
Speaker 2: stories that I'll presume will go through in time. So
1:23
Speaker 2: I will leave it to you to start off.
1:27
Speaker 3: Yeah, So I Kirsty, I was born with long segment hirshbongs.
1:33
Speaker 3: I've lived a very normal life for someone who's got hirshbungs.
1:38
Speaker 3: I am very much a success story for hirshbongs, definitely.
1:43
Speaker 3: And then I had my son. He's fourteen, he does
1:47
Speaker 3: not have hirshbongs. Everything is fine, normal, And then we
1:52
Speaker 3: had this one and Aubrey has something quite like you said,
2:00
Speaker 3: something unusual. She has total intestinal a ganglion osis, which
2:06
Speaker 3: basically means that she has hirshbumbs in all of the
2:09
Speaker 3: small and large intestine. Nothing is unaffected. So yeah, yeah,
2:15
Speaker 3: she has the most severe type of hirshbumbs she can get.
2:19
Speaker 2: Yeah, and that's I mean, we were just talking a
2:22
Speaker 2: little bit off air and trying to sort of work
2:24
Speaker 2: out just how rare that is, because I know the
2:29
Speaker 2: general rule and general consensus is one in five thousand,
2:34
Speaker 2: how true false that is. I don't think we'll ever
2:36
Speaker 2: know the real number. But to have Tia, I won't
2:41
Speaker 2: go through the whole name because I'll never pronounce it correctly.
2:45
Speaker 2: To have ti A, we were thinking around one in
2:49
Speaker 2: a million. I mean, we're talking, you know, rarest of
2:53
Speaker 2: rare types of hirshbrungs here, which she's for the phenomenally rare.
3:02
Speaker 2: So I guess in terms of Aubrey's story, and I
3:07
Speaker 2: know you said you have a son as well, that
3:10
Speaker 2: doesn't have hirsh bruns. Yeah, so I guess we'll we
3:12
Speaker 2: kind of start with with Aubrey Aubrey story and Aubrey
3:16
Speaker 2: being born.
3:18
Speaker 3: Yeah. So I had a totally normal pregnancy, and that
3:22
Speaker 3: in itself is quite is good because I know that
3:25
Speaker 3: a lot of people with hirshbungs do struggle with fertility
3:28
Speaker 3: and things like that. Unfortunately. I know that I've met
3:31
Speaker 3: a few people who have, but I've never had that problem.
3:33
Speaker 3: And I know that that's something that a lot of
3:34
Speaker 3: people will be happy to hear because I know that
3:37
Speaker 3: a lot of people with little girls probably do worry.
3:39
Speaker 3: But I've never had any problems like that, No fertility problems,
3:44
Speaker 3: everything with smooth, smooth pregnancy. Nothing. Actually, when I had
3:47
Speaker 3: my pregnant with my son, I actually did speak to
3:50
Speaker 3: a doctor about hairshbungs disease and he just turned around
3:52
Speaker 3: and said, your child will not have hirshbrongs. A lot
3:54
Speaker 3: of doctors still believe that it's not genetic, but I
3:58
Speaker 3: knew it was. I think it's quite obvious that it is,
4:02
Speaker 3: in my opinion. So then when I had all break,
4:06
Speaker 3: we didn't really talk about it much. It wasn't ever
4:08
Speaker 3: really brought up. I think that's something that really needs
4:10
Speaker 3: to change. That's something that I'm really passionate that needs
4:13
Speaker 3: to change. I think that when doctors need to be
4:16
Speaker 3: more aware of women who have hirshbungs, that it can
4:19
Speaker 3: happen because, like I say, I was totally blindsided by this,
4:24
Speaker 3: not blindsided in the fact that she had hirshbungs, but
4:27
Speaker 3: I think obviously what actually happened. I was and then
4:32
Speaker 3: I had her. She was fine, her rapt gas scool
4:34
Speaker 3: was actually really really good. She was really really really healthy.
4:37
Speaker 3: She was born at thirty seven weeks, but that was
4:40
Speaker 3: just because of me I had. I was, I had
4:43
Speaker 3: like a liver problem. I can't remember. It's called like
4:45
Speaker 3: a pregnant it's a pregnancy thing. But she was fine,
4:48
Speaker 3: got into she was fine, got like a nine app
4:51
Speaker 3: gasc or, she was she looked really good, she was chunky,
4:56
Speaker 3: she was great, and then it was just perfect. I
5:01
Speaker 3: can't everything just went so perfect. And then we I
5:07
Speaker 3: think it was about when she was about twelve hours old.
5:09
Speaker 3: I want to say, she's not pood And obviously I
5:14
Speaker 3: knew that that was the the hirshbun thing, and I was,
5:17
Speaker 3: I already was. I remember I kept looking in and nappy,
5:19
Speaker 3: I kept smelling like phantom smells and thinking she started
5:23
Speaker 3: pair when I was so excited, and I said to
5:25
Speaker 3: my ex partner, I was like, she's not pood and
5:27
Speaker 3: he was like, she's okay, everything's all right. And then
5:32
Speaker 3: she vomited. She did the vomit, the black vomit, and
5:36
Speaker 3: then after that it went really really quick. It was
5:38
Speaker 3: just really crazy. Like the doctor came in, grabbed a
5:40
Speaker 3: van to the nick you with her, started doing X
5:45
Speaker 3: rays and then he came to me and said, we
5:47
Speaker 3: don't think anything's wrong. There's not a there's not a blockage.
5:50
Speaker 3: But obviously, like I knew that, they still talk about
5:54
Speaker 3: it like they don't really know what it is, and
5:56
Speaker 3: I don't blame them, but I know, and I knew that.
5:59
Speaker 3: I knew that's what it was. But then unfortunately there
6:02
Speaker 3: was no where I had her. They don't operate on babies,
6:06
Speaker 3: so we went we had to go to Old High.
6:08
Speaker 3: That's where they took us because there was no beds
6:11
Speaker 3: in Manchester, so we went up in Older Hay. She
6:14
Speaker 3: got blue lighted to Older High and then we traveled
6:17
Speaker 3: up and we met doctor Kenney. He came up to
6:21
Speaker 3: meet us, and he was sort of doing all of
6:24
Speaker 3: the normal tests, checking it that she had a rectamole,
6:27
Speaker 3: checking the all of the usual things. Took her for
6:30
Speaker 3: an X ray and he sort of said to me.
6:32
Speaker 3: I said to him, it's hirsh Bungs. And he so
6:35
Speaker 3: he said to me, all, what makes you think that?
6:37
Speaker 3: And I said, I've got hirst Bungs. And that's when
6:39
Speaker 3: that's when the balls. He was like, right, okay, that's
6:41
Speaker 3: when the ball sort of started rolling. And I think
6:45
Speaker 3: it's all a blur, Tom. So I'm just gonna have
6:47
Speaker 3: to just tell you a little bits that I remember. Really,
6:51
Speaker 3: he took her for an X ray and he sort
6:53
Speaker 3: of cane that night. This was when she was one
6:55
Speaker 3: day old, and he said that our bowel looked weird
6:59
Speaker 3: on the on the X face, said that it look
7:02
Speaker 3: like it hadn't developed much since she was in since
7:06
Speaker 3: she was in my belly. Really, he said it was
7:08
Speaker 3: like a worm. He said it was a then. So
7:11
Speaker 3: then I think the next day she went for operations,
7:14
Speaker 3: put in a central line and started on TPN because
7:18
Speaker 3: obviously she couldn't eat, she wasn't taking anything, and I
7:21
Speaker 3: think he sort of suspected it at that point, but
7:25
Speaker 3: obviously you don't know, you're not one hundred percent sure.
7:28
Speaker 3: So he did live biopsies with the with the what's
7:34
Speaker 3: it called the lab, the lab, you know, sending them out.
7:40
Speaker 2: Yeah, and he said that he just.
7:42
Speaker 3: Kept going and going and going and going and going,
7:44
Speaker 3: and there was nothing there. I think from what I remember,
7:49
Speaker 3: I think he did quite a lot. But then he
7:52
Speaker 3: stops and then he took her back the next day
7:55
Speaker 3: and he said, there's not any There's not there. So
7:59
Speaker 3: then he sort of started talking to me about TPN,
8:04
Speaker 3: about what that meant, about how they'd probably have to
8:10
Speaker 3: get in contact with Birmingham to get the scene for
8:13
Speaker 3: a bowel transplant to just get assessed. And it was
8:19
Speaker 3: just as you can imagine, it was just like, oh
8:22
Speaker 3: my god, it was just all I remember. They took
8:25
Speaker 3: her in, then they took her in a couple of
8:26
Speaker 3: days after because they needed to put in tubes. They're
8:29
Speaker 3: putting tubes in a stomach and the end of a
8:33
Speaker 3: bowel instead of a stoneA. She had sort of these
8:35
Speaker 3: like shed Beoley capitis basically one coming out of the stomach,
8:38
Speaker 3: won coming out of a bowel, and drained into a bag.
8:41
Speaker 3: And I just remember that day my mom and dad
8:43
Speaker 3: came down to take us for a walk when it
8:46
Speaker 3: was happening, because I was, as you can imagine, I
8:48
Speaker 3: was just like a mess. We were walking around, just
8:50
Speaker 3: like we didn't know where we were, obviously, we didn't
8:53
Speaker 3: let Liverpool, just walking around and I got a call
8:55
Speaker 3: and I honestly I thought she'd thought she'd gone, I
8:58
Speaker 3: honestly because they called me straight way and I remember
9:01
Speaker 3: saying she's gone, She's got because that's how ill she was.
9:03
Speaker 3: I just I think I was just it sounds awful,
9:06
Speaker 3: but I was just so expecting it. And we ran
9:09
Speaker 3: back and that's when he's sort of like, this is
9:12
Speaker 3: it's bad. It's bad. And it came in and you know,
9:18
Speaker 3: like when a doctor comes in and puts his arm
9:20
Speaker 3: around you, you know it's not good.
9:22
Speaker 2: Yeah it.
9:24
Speaker 3: No, no, never makes it. I mean, but is fantastic.
9:27
Speaker 3: But I think he could tell that he even he felt,
9:30
Speaker 3: you know, it was a scary thing. But then after
9:35
Speaker 3: that it was sort of it was hard. But then
9:39
Speaker 3: I remember everyone sort of started changing the tune and
9:41
Speaker 3: was sort of like like this is what we're this
9:43
Speaker 3: is the cars we've been dowt. Let's let's get on
9:46
Speaker 3: with it and let's let's just get her, get her well,
9:50
Speaker 3: get her as well as she can. So she started
9:53
Speaker 3: TPM so that it's like a feed, intravenous like feeding.
10:02
Speaker 3: And then eventually we got to Manchester. After a month
10:05
Speaker 3: in Older Hay, we went to Manchester and yeah, that's
10:09
Speaker 3: when the recovery started. She was in for seven months
10:13
Speaker 3: and yeah, yeah, and she's been on TPN now since
10:20
Speaker 3: one day old right, she has a stone now. The
10:25
Speaker 3: tubes were removed eventually. I think she was about four
10:28
Speaker 3: when we finally got to get rid of the tubes.
10:31
Speaker 3: Got a Mickey button instead and a stone instead, which
10:34
Speaker 3: was so so much better that those those tubes. She
10:36
Speaker 3: was like so like four years. She had like these
10:38
Speaker 3: big tubes coming out of her with like draining these
10:41
Speaker 3: bags on the end, and that was just a nightmare.
10:43
Speaker 3: I don't think we could have harried on like that.
10:45
Speaker 3: But she's not really well. They said that she wouldn't
10:48
Speaker 3: be able to eat ever, because if she at about
10:51
Speaker 3: what would be too much. She's become dehydrated. But she
10:53
Speaker 3: eats a lot. She eats, don't yea. I know that
10:59
Speaker 3: for some it'st differ, which is what I was saying,
11:01
Speaker 3: like even with people who have TIA, their story will
11:05
Speaker 3: be different than somebody else's. Which is just the crazy
11:08
Speaker 3: thing about hirshbuns because I know that some people don't
11:10
Speaker 3: eat at all, but all were lost a McDonald's don't. Yeah,
11:17
Speaker 3: And I think that's sort of like the thing about hirshbues.
11:19
Speaker 3: She can't like even a doctor now always says to
11:22
Speaker 3: me like, you can't compare one child to another, And
11:27
Speaker 3: in some ways that's I find that really really frustrating
11:30
Speaker 3: because obviously I've made loads of friends. I've be like
11:34
Speaker 3: lots of TIA friends, and if you get advised off one,
11:39
Speaker 3: you could take it to your doctor and it won't
11:40
Speaker 3: apply to your child because your child's so different. And
11:45
Speaker 3: it's just it's, yeah, it's absolutely crazy how the world
11:49
Speaker 3: is so different, like you were saying, it's just absolutely mad.
11:52
Speaker 3: But the people that we met, and I know that
11:54
Speaker 3: you were talking about like the older Hay meet up
11:56
Speaker 3: and everything. I was saying that the people that we met,
11:59
Speaker 3: like you know, Mule's mum shoving Honestly, like, I don't
12:03
Speaker 3: know what we would have done without without meeting people.
12:07
Speaker 3: It was just such a hard time. But then hearing
12:10
Speaker 3: these stories and hearing seeing these things, like we've had
12:14
Speaker 3: moments where a doctor said to us, we need to
12:17
Speaker 3: remove a gall bladder because she's got gallstones. And I've
12:20
Speaker 3: gotten them to these people that I know and said, tell,
12:23
Speaker 3: what do you think about this? What have you been told?
12:26
Speaker 3: And then someone will turn around to me and say,
12:28
Speaker 3: I don't think you should do that because this is
12:29
Speaker 3: what I found out. And then I took it back
12:31
Speaker 3: to my doctor and we've made these decisions. And I
12:33
Speaker 3: honestly think that's why she's so well, because we all
12:35
Speaker 3: work together to realize maybe we shouldn't do that, maybe
12:39
Speaker 3: we should do that. And I think getting out there
12:41
Speaker 3: and getting a community and binding out things you can't
12:44
Speaker 3: It does take a village to do this, and I
12:46
Speaker 3: think you can't eat. Research is so important. I just
12:50
Speaker 3: I spent hours researching everything. From the moment she was born.
12:53
Speaker 3: I was just trying to find people. I knew that
12:54
Speaker 3: there must be more people out there like Aubray and
12:59
Speaker 3: I was just sat on my fare in Older Hay,
13:00
Speaker 3: just like trying to find people to like posting on
13:02
Speaker 3: all the groups. Has anyone got as anyone's child got
13:04
Speaker 3: this blah blah blah, And yeah, it's just been so helpful,
13:09
Speaker 3: it really hasn't. I think that the hospitals have, actually
13:12
Speaker 3: her hospital have learned things because she does thinks that
13:15
Speaker 3: she's not supposed to do like eat, And was just
13:19
Speaker 3: so thankful that she's doing so well because she really is.
13:22
Speaker 3: She's doing really, really well. And maybe I wish that
13:26
Speaker 3: I could go back now to when she was born
13:28
Speaker 3: and seals now because even though the diagnosis is bad,
13:33
Speaker 3: it doesn't have it's not that black cloud that I
13:38
Speaker 3: thought it was going to be. We live alive. She
13:39
Speaker 3: lives a life, to go to school, She goes to
13:41
Speaker 3: mainstream school. She if you like, if you saw her,
13:47
Speaker 3: you won't think that there's anything wrong with her, That's all.
13:49
Speaker 3: A lot of people are shocked when they find out
13:51
Speaker 3: something wrong with her.
13:53
Speaker 2: Yes, that's the thing, isn't it. I mean when when
13:56
Speaker 2: people talk about her sprungs and know if you were
14:00
Speaker 2: to line ten people up in a row and pick
14:03
Speaker 2: the one who has hirshprungs would have a clue.
14:06
Speaker 3: It's a blessing and a curse though, because I know
14:09
Speaker 3: that she doesn't get a lot of the help that
14:10
Speaker 3: she needs a lot of the time because people that
14:13
Speaker 3: she looks so well. We've had fights, and I know
14:17
Speaker 3: that I think that a lot of people will understand
14:18
Speaker 3: that EHCP in school, trying to get that, trying to
14:21
Speaker 3: get the help that she needs because she looks so well,
14:25
Speaker 3: trying to explain to people that she comes home and
14:27
Speaker 3: gets hopped up to pumps and fed. They don't understand
14:32
Speaker 3: because she eats as well. And it's just trying to
14:34
Speaker 3: talk to people about it. It's yeah, it's really difficult.
14:39
Speaker 3: But we're glad you were, aren't we.
14:43
Speaker 2: She's very well, so good to hear. I mean, I again,
14:47
Speaker 2: I hear so many different hirshprung stories. And this is
14:52
Speaker 2: why I really wanted to have both of you on,
14:54
Speaker 2: because this is not just a different Hirshprung story. This
14:59
Speaker 2: is I mean, we were talking, you know, rarest of
15:03
Speaker 2: rare stories at Aubrey. I'll come to you give you
15:08
Speaker 2: a chance to chat as well. I guess when people say, oh,
15:14
Speaker 2: your hirshbrungs is really really rare, do you like being
15:18
Speaker 2: really really rare or do you like being really rare?
15:23
Speaker 2: What do you like about it?
15:27
Speaker 3: I don't know, you like the in the cree y.
15:30
Speaker 2: Yeah, does it kind of key thing? Actually I'm more
15:35
Speaker 2: special in a way. Yeah, yeah, fantastic, excellent, Yeah, because
15:41
Speaker 2: it is. It is very Yeah, I don't like the
15:45
Speaker 2: phrase very unique, but it is incredibly incredibly unique and rare.
15:50
Speaker 2: And I guess have you ever come across anybody else
15:54
Speaker 2: with t i A.
15:57
Speaker 3: We went to met Samuel, right, We went down to
16:04
Speaker 3: one of his one of the Chartiers parties, so that
16:07
Speaker 3: was nice. We actually have a picture of all of
16:09
Speaker 3: the Tia children. I think it's on Samuel's Facebook. I
16:15
Speaker 3: think I have to send it to you. And it's
16:18
Speaker 3: a nature of like all of the little Tia babies
16:21
Speaker 3: and all girls, which is crazy because hirsh One's is
16:23
Speaker 3: more prevalent in boys. So I don't know this was
16:26
Speaker 3: this was about five years ago, but all of the
16:28
Speaker 3: babies that were with Tia girls, Wow, that's that's course.
16:35
Speaker 2: Yeah, but no, you're right when you say he's more
16:39
Speaker 2: prevalent in boys, because I think it's.
16:41
Speaker 3: I think actually all the children that I've met bar
16:44
Speaker 3: One have been girls who've got this.
16:47
Speaker 2: It's interesting, yeah, really interesting. And I don't know because
16:52
Speaker 2: I had a speaking to somebody else about this and
16:54
Speaker 2: they had a theory that you that even though it's
17:00
Speaker 2: more prevalent in boys, I think it's three in every
17:02
Speaker 2: four Hershbung's taste as of boys, girls potentially are more
17:08
Speaker 2: open about it. He might seem more more girls who
17:14
Speaker 2: talk about having it, but it doesn't necessarily mean that
17:17
Speaker 2: they're on it's less of a split, if that makes sense.
17:20
Speaker 3: Yeah, it makes you wonder whether it's more it gets
17:23
Speaker 3: more severe and obviously and just brainstorming. But I think
17:27
Speaker 3: we were told by genetics that from what they've seen,
17:29
Speaker 3: it seems to get worse as it goes down the
17:33
Speaker 3: line in a family. But then again, Samuel Wl's had
17:36
Speaker 3: a baby and it's it's not got CIA, So I
17:38
Speaker 3: don't think that that that is a thing. Yeah, that
17:41
Speaker 3: just blows my mind that she might be able to
17:43
Speaker 3: have a baby who doesn't have it as severe as her.
17:46
Speaker 3: It blows my mind that she could technically have a
17:48
Speaker 3: baby that's got IT less severe than her. It's just
17:52
Speaker 3: it's it's just a crazy, crazy, crazy disease. But it's
17:57
Speaker 3: it's so so interesting, and I know that the teams
18:00
Speaker 3: that are involved in it are so passionate about it,
18:02
Speaker 3: but it's just such a shame that it's not got
18:05
Speaker 3: the attention that it needs, because I really do think
18:09
Speaker 3: that I'm hoping that maybe in Aubay's lifetime, or maybe
18:12
Speaker 3: always children's lifetime, they come up with something it can help.
18:18
Speaker 3: But we're still you know, even though she's doing so well,
18:21
Speaker 3: we still it's still were their flight. Every two weeks,
18:24
Speaker 3: we're having book, she's having bloods because TPN affects the liver,
18:29
Speaker 3: it puts a lot of strain on the liver. So
18:31
Speaker 3: at the moment, we're very very watching, very very closely
18:34
Speaker 3: because I live is quite high. We've been to Birmingham
18:36
Speaker 3: for a transplant assessment when she was a baby, and
18:39
Speaker 3: she still sees Birmingham now like every couple of years.
18:42
Speaker 3: She sees them because I know that that's a possibility
18:45
Speaker 3: that one day she may need a vowel transplant. But
18:50
Speaker 3: the way I see it, I try and I'm not
18:52
Speaker 3: always positive, trus My mum and dad will tell you
18:54
Speaker 3: that I'm not always positive. But the way I try
18:57
Speaker 3: and see it is at least is this options. You know,
19:02
Speaker 3: if if something happens with the bad, there's an option,
19:05
Speaker 3: and that's what I always hold on to, these things
19:08
Speaker 3: that we can do. It's not sort of end of line,
19:11
Speaker 3: these things that we can do. But like this when
19:14
Speaker 3: she when they're a baby, I feel like it's so
19:16
Speaker 3: much worse. Like pulling lines. She had so many different lines.
19:18
Speaker 3: She's got central lines, so she used to pull them,
19:20
Speaker 3: they used to talk, she used to get infections. But
19:23
Speaker 3: this line that she's got now she's had it for
19:25
Speaker 3: four years, I think, so it gets easier as they
19:29
Speaker 3: get old. It definitely really really does. Yeah, it really does.
19:35
Speaker 3: But like these there's been I still see doctors now
19:39
Speaker 3: and I'm thirty seven, and I think recently I actually
19:42
Speaker 3: saw a doctor. Oh no, it was when I went
19:44
Speaker 3: to see Aubrey's surgeon. He said that he'd never met
19:47
Speaker 3: an adult with hirshbungs. So it's still really really really
19:51
Speaker 3: like you. Still I still meet people who say, out
19:54
Speaker 3: of I've never heard of hirshbungs, I've never seen hershbungs.
19:56
Speaker 3: I've never met anyone with harsh ones, and people still
19:59
Speaker 3: it's still blows doctor's minds when I've been going and
20:01
Speaker 3: I say I've got hairshbungs. It's still even though it's
20:06
Speaker 3: like we were saying, you feel like you meet so
20:08
Speaker 3: many people with hairshbums. It's still at that point where
20:12
Speaker 3: people it's just like you've got hairshbums, she's got heshbum
20:14
Speaker 3: I blow with people's minds when I tell them, and
20:17
Speaker 3: people are always so interested.
20:19
Speaker 2: Absolutely, And we were talking a little bit off there
20:22
Speaker 2: about genetics as well, and I know you wanted to
20:26
Speaker 2: share a little bit of a really interesting a bit
20:31
Speaker 2: about genetics that you found out, but it kind of
20:36
Speaker 2: it is very surprising when I hear and it's not
20:39
Speaker 2: just judents told me this, but other people as well,
20:41
Speaker 2: when doctors say to them, oh, your child won't have hirshbrungs,
20:46
Speaker 2: and you have it that you've had a child without hirshbrungs,
20:50
Speaker 2: so this child won't have hersh bruns. And I just
20:53
Speaker 2: think being so definitive and saying this will happen or
20:58
Speaker 2: this won't happen, it's such a dangerous road to go
21:02
Speaker 2: down because very clearly when they said we won't have hirshbrums,
21:08
Speaker 2: very clearly they were wrong. So I just that kind
21:10
Speaker 2: of definitive is really really difficult.
21:13
Speaker 3: Yeah, like you say, it really is dangerous because even
21:15
Speaker 3: though I knew that it was genetics, what if I didn't,
21:19
Speaker 3: and even at that point, even though I did, it
21:22
Speaker 3: was still a massive shock. And I do think, like
21:25
Speaker 3: I said to you, I think a lot more used
21:27
Speaker 3: to be put into informing people with hirshbun what can happen,
21:33
Speaker 3: what can happen, not to scare them. And I would,
21:36
Speaker 3: you know, obviously I would still have had Aubrey and
21:39
Speaker 3: everything all that, but I kind of wish I was
21:42
Speaker 3: more prepared in it. I'm lucky that I had the
21:48
Speaker 3: support of my family and I had the support of
21:51
Speaker 3: a dad, and I had a lot of people that
21:53
Speaker 3: I could get through it. But it just scares me
21:55
Speaker 3: just to think if you couldn't or it's just so yeah,
21:58
Speaker 3: they need they really need to more. People need to
22:01
Speaker 3: be more aware a bit, definitely, And yeah, it's was crazy.
22:08
Speaker 3: It's just I'm still in I've still sometimes for shocks
22:12
Speaker 3: that it all happened, honestly, but that you can tell
22:15
Speaker 3: she's she's fine, a little bit sleepy, but oh no,
22:21
Speaker 3: she's never tired. But I blame the Tenis. I blame
22:24
Speaker 3: the TPN because the TPN has got so much sugar
22:27
Speaker 3: in it, so we always say, like we think it's
22:28
Speaker 3: like giving her a red bull. She goes on a
22:30
Speaker 3: TPN at eight o'clock and she's like, like she had
22:34
Speaker 3: a red bull, isn't it? Actually she's really good with
22:38
Speaker 3: the TPN now it's got like she can still walk
22:42
Speaker 3: around on it. It's it's we would worried. We thought
22:46
Speaker 3: she was going to be hopped up to like a
22:47
Speaker 3: dripstand all day. But she has a lott of backpack
22:51
Speaker 3: that you can put it in, and yeah, it's just
22:54
Speaker 3: part of her. I don't I think it'd be weird
22:55
Speaker 3: not doing it now. It really just just becomes part
22:57
Speaker 3: of your life.
22:58
Speaker 2: Yeah, It's one of those It's one of those things,
23:00
Speaker 2: isn't it hershrungs? Because we when all three of us
23:05
Speaker 2: got hirshprungs or were diagnosed with heirsprungs, we were too
23:08
Speaker 2: young to register it. So you know, I know you've
23:12
Speaker 2: you've seen it, Kirsty from both points of view as
23:16
Speaker 2: a patient and as a mother as well, so you
23:19
Speaker 2: view probably slightly differently from this because you've seen it
23:22
Speaker 2: from both ends. But when we're all diagnosed with hirschbrongs,
23:25
Speaker 2: we just we all have it. We don't know any different.
23:29
Speaker 2: So I guess we had no choice really but to
23:31
Speaker 2: sort of crack on with life.
23:33
Speaker 3: It definitely made me have a lot more like respect
23:36
Speaker 3: from a mum and dad for what they went through,
23:38
Speaker 3: because I also think that it must have been a
23:41
Speaker 3: little bit worse for them because I knew what hirshbungs
23:45
Speaker 3: was and I lived in a time when we had
23:48
Speaker 3: social media and I could get in contact with other people.
23:51
Speaker 3: They was just totally They couldn't do that. There was
23:54
Speaker 3: nothing like that, and they'd never heard of hershbums before.
23:57
Speaker 3: So I can't imagine how scary it must be. Fair
23:59
Speaker 3: and even now like families who have a baby and
24:01
Speaker 3: it's got hirshbums, can't imagine how scary that is, not
24:05
Speaker 3: knowing what it is, because if anything, I had it,
24:07
Speaker 3: I knew what I was dealing with, which made it
24:12
Speaker 3: even though it was hard, it made it easier because
24:15
Speaker 3: I knew. I knew what hirshbums was. I knew what
24:18
Speaker 3: life would look like. Not in a TPN side, but
24:23
Speaker 3: I was sort of I was kind of ready for
24:26
Speaker 3: it if if you can, if you can be I
24:28
Speaker 3: had it in my mind that it could happen, So
24:31
Speaker 3: I have a lot of respect for people who it
24:33
Speaker 3: just happens too. I can't even I can't imagine how,
24:36
Speaker 3: you know, as a sporadic thing. I just can't even imagine.
24:39
Speaker 2: No, I mean, I speak to so many people on
24:42
Speaker 2: here where they they had no Hirshbrungs in the family whatsoever,
24:48
Speaker 2: and then they have a child and then have all
24:51
Speaker 2: of the sort of well sometimes they have all of
24:53
Speaker 2: the symptoms, sometimes they don't, and then they hear this
24:56
Speaker 2: word hirshbrungs and it's not used in everyday life, or
25:00
Speaker 2: certainly it might be everyday life, but it's not in
25:04
Speaker 2: everybody else. And I just, yeah, I don't know. I
25:08
Speaker 2: don't know how that would feel. I mean, people and
25:13
Speaker 2: they tell me how it feels, but I don't.
25:15
Speaker 3: We can't ever imagine because we were always gonna we'd
25:18
Speaker 3: always be a little bit prepared for it or know
25:21
Speaker 3: about it. I know that like a lot of hot
25:25
Speaker 3: The good thing is, I think that when I don't
25:28
Speaker 3: know about you, Tom. But when I was had, many
25:31
Speaker 3: didn't really know what was wrong with me. They opened
25:33
Speaker 3: me up a lot. I had a lot of operation.
25:36
Speaker 3: They thought I assisted by brosis, they thought I had
25:39
Speaker 3: all these things. So I've got lots and lots of
25:42
Speaker 3: She's got less scars than me. She's got one like
25:44
Speaker 3: perfect one, and I'm just covered in them because they
25:49
Speaker 3: didn't know what it was. The good thing is now,
25:51
Speaker 3: I think when you go in with these symptoms, when
25:53
Speaker 3: a baby throws up the like pershbong or at least
25:55
Speaker 3: a check for it.
25:56
Speaker 2: Yeah, yeah, I think that's where everything's come along a
26:01
Speaker 2: lot more. But when I when I speak to people
26:03
Speaker 2: like you and me and people of our era, we
26:08
Speaker 2: have like these massive scars. I presume you're similar, you
26:12
Speaker 2: know where it's sort of all across the stomach and
26:15
Speaker 2: you know, all over the place. Whereas now, I mean
26:19
Speaker 2: pull throughs are being done through keyhole surgery, you've got
26:22
Speaker 2: this little like tiny scar.
26:25
Speaker 3: I'm thinking hair scars kidden buy a stowa bag? Is
26:28
Speaker 3: that small? Like you can't she can't see it. When
26:31
Speaker 3: she's got a stowemabag on, you can't see it. And
26:33
Speaker 3: then I'm like, let's to her and I'm.
26:36
Speaker 2: Yeah, yeah, and it's it's But that shows I'm really
26:41
Speaker 2: glad in a way with that because that shows real progress. Yeah,
26:45
Speaker 2: in thirty odd years, you know, things have have really
26:49
Speaker 2: moved on to the point where you know you're having
26:52
Speaker 2: sort of these little scars, and it's not because scars
26:57
Speaker 2: can be a funny one. Scars can kind of be
27:00
Speaker 2: you know, people can embrace them, people cannot like them.
27:04
Speaker 2: So to have them sort of smaller and more discreet,
27:07
Speaker 2: I think is is Yeah.
27:10
Speaker 3: Really, I know that it bothered me a lot when
27:12
Speaker 3: when I was younger, and I think that I still
27:17
Speaker 3: remember this, even though I don't remember much about being
27:19
Speaker 3: an old Hay, because I think you go into some
27:20
Speaker 3: sort of like, you know, into a hole when you
27:23
Speaker 3: child's ill. Remember when doctor Kenny came down and he
27:26
Speaker 3: sort of we're going to operate, he must have thought
27:28
Speaker 3: of mad looking back, he must have thought, why is
27:30
Speaker 3: this woman worried about this? Out of everything? But I
27:33
Speaker 3: said to him, said, can you please, please please make
27:35
Speaker 3: sure that you do Can you do a small scarf?
27:39
Speaker 3: L can you do it neat as you possibly can?
27:41
Speaker 3: And then I've shown him my belly, and I said,
27:42
Speaker 3: because I really don't want her to have to go
27:44
Speaker 3: through what I've gone through in my life. And he did,
27:49
Speaker 3: and a scar is perfect. But I think I always
27:51
Speaker 3: think he must have thought, this really isn't important, but
27:54
Speaker 3: it was to me because I just thought I really
27:58
Speaker 3: didn't want us to have to go through that, because
28:00
Speaker 3: you know, when you remember things that bothered you, you think,
28:03
Speaker 3: I think, and I just thought, what you did, you
28:06
Speaker 3: did it really really well. So I'm really really pleased.
28:08
Speaker 3: Even though it's such a small drop in the ocean,
28:11
Speaker 3: I know that I just didn't want her to have
28:13
Speaker 3: to go through that amongst everything else she's got going on.
28:17
Speaker 3: And I don't think it would have bothered her, to
28:19
Speaker 3: be honest. She's so she's so she doesn't have she
28:23
Speaker 3: just gets on with it. She's so so amazing and
28:26
Speaker 3: people commented on it all the time, how good she is.
28:29
Speaker 3: She's so good in hospital, in Hospiballo because she's in
28:33
Speaker 3: so often, the like family towards now she knows the
28:36
Speaker 3: more she walked around like she owns the place. That's
28:38
Speaker 3: what everyone laughs about. She's like when she's in, she
28:40
Speaker 3: thinks she's the queen of the war, don't you, But
28:43
Speaker 3: I am. But she loves it and she actually doesn't
28:49
Speaker 3: mind because she's she's just grow. You got a lot
28:52
Speaker 3: of attention, don't yeah, of the nurses. So yeah, it's
28:57
Speaker 3: just we do have a success story. Really, even with
29:00
Speaker 3: this type, I'd say we have these we have problems
29:04
Speaker 3: every day is not good. We have problems, stonemas, stonas
29:09
Speaker 3: as a baying in my life at the moment, Stona's exploding,
29:15
Speaker 3: stonemas leaking. That's about it, as TPN and like the
29:19
Speaker 3: more the important crazy stuff, that's fine, that's easy. That
29:26
Speaker 3: takes ten minutes every night, set it up. You have
29:29
Speaker 3: to be stebile everything. But we've got it down. I
29:31
Speaker 3: think I could do it blindfolded. Now do that. But
29:35
Speaker 3: it's just the stonmas, the stomas having there's a picture
29:38
Speaker 3: of me when I was a baby with my stoma,
29:40
Speaker 3: and honestly, they're no different to wild They're worth it
29:42
Speaker 3: seven years ago. Like it looks like that did not
29:45
Speaker 3: like they're not come on much at all, have the stomas.
29:48
Speaker 2: It's just they are they are they well they could do.
29:56
Speaker 3: Yeah they do. It just takes yess you what do
30:00
Speaker 3: you feel about your stonema? You don't mindy stonemayar head, No,
30:05
Speaker 3: she's not o good.
30:08
Speaker 2: So again, I don't know whether it's just because of
30:10
Speaker 2: the bubble we're in, but I see people with stomas
30:13
Speaker 2: all the time for of all sorts of conditions. It's
30:15
Speaker 2: not not just sprugs. And again, when I don't know
30:19
Speaker 2: if you were the same as me. But when I
30:22
Speaker 2: had my stoner at nine, I thought, well, stoner is
30:26
Speaker 2: associated with people with hirsh sbrugs and that was it.
30:30
Speaker 2: I didn't realize other conditions had stoners as well. Were
30:33
Speaker 2: you aware as well?
30:34
Speaker 3: Yeah, well I got I had my pull through when
30:37
Speaker 3: I was about four three four, so I don't even
30:42
Speaker 3: remember having a stonma. To be honest, I don't remember
30:44
Speaker 3: having it, but I think, yeah, I understand what you mean.
30:51
Speaker 3: But when I was yeah, I think I always thought
30:53
Speaker 3: that it was just hirshbums on your bowel problems, just
30:55
Speaker 3: hirshbum for Instagrams. An amazing thing now because we watch
30:58
Speaker 3: people who've got this stoma. Babe. So she's like she
31:02
Speaker 3: she looks like a Barbie and she loves watching her
31:06
Speaker 3: and mister Crohn's and Colita. She was watching his videos
31:10
Speaker 3: Jackman that we watched the other day with the stonema, remember, Yeah,
31:14
Speaker 3: So I like showing her that, and she she's really
31:18
Speaker 3: really nonchalant about her STONMA. I think she just knows.
31:21
Speaker 3: She's just like this is mister. I always say to
31:22
Speaker 3: her people nice at school. Yeah, does anyone ever ask
31:25
Speaker 3: about it? Yeah? And I just tell them. I just
31:27
Speaker 3: tell them that I'm pouring my stoma. She just you
31:32
Speaker 3: don't mind, dear, She'll show where she has it out,
31:35
Speaker 3: or she'll took it in. She doesn't mind walking around
31:38
Speaker 3: with it. And I'm so like pedantic about not making
31:42
Speaker 3: her put it in, not making her suck it in,
31:45
Speaker 3: because I just don't ever want to think she needs
31:47
Speaker 3: to or what to always know that if she wants
31:49
Speaker 3: to wear it out, she can wear it out. Do
31:51
Speaker 3: what you want, because I just want to. I never
31:53
Speaker 3: want to knock this confidence that she's got, and I
31:57
Speaker 3: just hope no one ever does, because I just think
32:00
Speaker 3: you just need to just make sure that they're so comfortable.
32:04
Speaker 3: But I've always been really obsessed with just making sure
32:07
Speaker 3: that she just doesn't let it hold back, doesn't let
32:11
Speaker 3: she she does everything that other children do. And this
32:16
Speaker 3: is the first time I've actually ever started and spoke
32:18
Speaker 3: about her having hersh bums, because I used to be like, oh,
32:23
Speaker 3: I don't when she was little. Obviously, she doesn't mind
32:26
Speaker 3: now in a way, she can sort of give consent
32:28
Speaker 3: about it because she knows what we're talking about. She
32:31
Speaker 3: knows that we're coming around her and talking about it.
32:33
Speaker 3: But I used to be I don't. I didn't like
32:35
Speaker 3: sharing about it when she was younger, just because not
32:39
Speaker 3: because I was ashamed or anything, but just thought that
32:41
Speaker 3: it was her it was her issues. But she is
32:46
Speaker 3: so aware of it now and she likes to talk
32:49
Speaker 3: about it, she likes she has she doesn't hide it,
32:53
Speaker 3: and I'm really proud of her.
32:55
Speaker 2: It's brilliant. And I guess one of the questions I
32:58
Speaker 2: was going to ask for you as well, Aubrey, like
33:02
Speaker 2: if somebody said to you, what's hirsprungs? What what? Because
33:07
Speaker 2: most people, you know, apart from us, haven't really heard
33:09
Speaker 2: of it. Somebody said to you, like one of your friends,
33:12
Speaker 2: and what's hirshprungs? What do you? What do you say?
33:14
Speaker 2: Because I I can't remember what I said when I
33:16
Speaker 2: was your age.
33:17
Speaker 3: I get a diseas so that I have fun?
33:22
Speaker 2: Who gives me a stam as? So Cook and Powell
33:25
Speaker 2: and it's the way's a wife. Yeah, I think that's
33:29
Speaker 2: a great explanation. I don't think. I don't think I
33:31
Speaker 2: have come up with anything so eloquent at your beach.
33:35
Speaker 2: I think that's that's brilliant because I think I think
33:37
Speaker 2: that's always a I mean, that's got to be a
33:40
Speaker 2: tricky one where because I can't imagine many people have
33:45
Speaker 2: heard of many of your friends have heard of the
33:47
Speaker 2: word hirsprungs before before you had it.
33:50
Speaker 3: I think mostly asked about your bag, don't you know?
33:55
Speaker 3: And what do you say about your bag when friends say?
33:57
Speaker 3: What's that? People? So I can m yeah, so.
34:10
Speaker 2: The simpler the better. Sometimes I think that's that's a
34:13
Speaker 2: brilliant net one.
34:13
Speaker 3: And she enters it herself in score, don't yeah, goes
34:17
Speaker 3: to the toilet and enters it, don't ye. Yeah. She's
34:22
Speaker 3: really really she's really grown up about it. Now she
34:26
Speaker 3: has somebody in school who helps change it, but she
34:30
Speaker 3: answers it herself. And she's come on, like I say,
34:34
Speaker 3: I wish I wish I could go back eight years
34:36
Speaker 3: and show myself Aubrey now, I really do, I really do.
34:41
Speaker 3: But it does it gets it does get better, doesn't it? Yeah?
34:46
Speaker 2: And I guess on that point, if there will possibly
34:50
Speaker 2: be somebody listening to this who may have a child
34:55
Speaker 2: with kirsch Brung's long segment t I A, would you
35:01
Speaker 2: if you could go back and say to them, you know,
35:04
Speaker 2: what would you what would you say to them?
35:07
Speaker 3: I'd say, reached out to people like I say the
35:12
Speaker 3: village that the Hirshbung's community is amazing and it's helped
35:15
Speaker 3: I can't even know, like I said, I cannot tell
35:17
Speaker 3: you how much people have helped me. And you know,
35:22
Speaker 3: contact people, ask for help. Don't be embarrassed because people
35:25
Speaker 3: want to help. People who have met through having orbit
35:29
Speaker 3: have been the nicest people I've ever met, and I'm
35:31
Speaker 3: friends with them, like we walked that I've got like
35:34
Speaker 3: people that are walked up and they've turned it. We
35:36
Speaker 3: don't just talk about Hirshbrum's now like we're friends. And
35:40
Speaker 3: then it gets better. It really really does. Every day
35:45
Speaker 3: it does. You might feel like your world has ended.
35:49
Speaker 3: That's what I did. I could not imagine how we
35:52
Speaker 3: were going to cope. I went. It was really really,
35:55
Speaker 3: really bad. I remember the nurse said to my ex,
35:59
Speaker 3: you said, will not even We're worried more worried about
36:01
Speaker 3: curses than were about Aubrey at the moment, because I
36:04
Speaker 3: would won't eat. It was just awful. But it gets better,
36:07
Speaker 3: It really really does. Yeah, Well you'll look back and
36:11
Speaker 3: you'll think, gosh, I can't I can't believe I did that.
36:15
Speaker 3: I can't believe I went through that, But you can
36:18
Speaker 3: do it. You definitely can do it.
36:19
Speaker 2: And yeah, yeah, I think it's amazing. Yeah, it's amazing.
36:24
Speaker 2: Sometimes the amount of strength we finally there is with
36:29
Speaker 2: people with herstrungs or whether it's as a pairent, it's
36:33
Speaker 2: amazing the amount of strength I've seeding people to get
36:37
Speaker 2: through something that I don't think they could have ever
36:41
Speaker 2: imagined would happen.
36:43
Speaker 3: But even up until four years ago when I became single,
36:48
Speaker 3: I didn't think I was going to be able to
36:50
Speaker 3: do this on my own again. It felt like I'd
36:52
Speaker 3: just got everything down, everything was fine, and then I
36:55
Speaker 3: ended up being on my own. And even then I thought,
36:57
Speaker 3: I cannot do this. I cannot look after this child
37:00
Speaker 3: on my own.
37:01
Speaker 2: But you can.
37:03
Speaker 3: You can. So it's like every life is going to
37:06
Speaker 3: throw things at you, but you can do it. And
37:08
Speaker 3: I think sometimes I just surprise myself sometimes if you
37:10
Speaker 3: can't believe it that I can't believe I'm doing that
37:12
Speaker 3: every night. I can't believe I'm doing that. But you
37:15
Speaker 3: do it, don't you? But you can do it. Gardia,
37:21
Speaker 3: she's funny. She's like she's just like my friend, really
37:24
Speaker 3: aren't you. Yeah, you are funny.
37:28
Speaker 2: Yeah, So that that's fantastic and it's so good to
37:32
Speaker 2: hear because I think a lot of people under asked
37:36
Speaker 2: if they message you, they message me and they want,
37:40
Speaker 2: you know, stories about herschbrongs. Obviously, we can't tell them
37:44
Speaker 2: what's going to happen in the future, you know, that
37:46
Speaker 2: would be silly, but we can always offer some good
37:50
Speaker 2: news stories. Yeah, And this is why I really wanted
37:54
Speaker 2: you growth on, because you both, you know, have been
37:58
Speaker 2: through a lot of things that people will never been
38:03
Speaker 2: through in the light, never even heard of in their life. Yeah,
38:06
Speaker 2: but you faced them head on and doing really really
38:12
Speaker 2: well with them. And I think that's such an amazing
38:16
Speaker 2: and powerful story to have, you know, and not not
38:20
Speaker 2: just hirshbrungs, but two different types of heirshbrull, and not
38:24
Speaker 2: just two different times, but to really, you know, one
38:28
Speaker 2: incredibly rare type.
38:29
Speaker 3: When people you message me, I try and just always
38:31
Speaker 3: give the God the God, because I feel like there's
38:34
Speaker 3: so much bad that you could that your hair, the
38:36
Speaker 3: hair and off of that, and I just you know,
38:40
Speaker 3: I think sometimes you just need someone to say it's
38:43
Speaker 3: going to be.
38:44
Speaker 2: Oh, I yeah, and sometimes to kind of just say,
38:49
Speaker 2: you know, not to give advice or anything of that,
38:52
Speaker 2: as you know, we're not doctors or nurses or whatever,
38:55
Speaker 2: but just to kind of go, well, this is what's
38:57
Speaker 2: happened to me, you know, and you know this, this
39:02
Speaker 2: is kind of what's going on in the future. Just
39:04
Speaker 2: so and it's it's difficult. And I know you said
39:07
Speaker 2: about your situation when when all Brew's first diagnosed and
39:11
Speaker 2: you're thinking, you know, where's the light at the end
39:13
Speaker 2: of the tunnel, where's this where's the good news story
39:16
Speaker 2: that's like mine? And social media is brilliant for.
39:22
Speaker 3: That really finding that good news story with all of them.
39:30
Speaker 3: It was like, I don't think I could even put
39:34
Speaker 3: into words out like I know that you're doing that,
39:36
Speaker 3: like I said, you're doing that Hairshbun's family thing, and
39:39
Speaker 3: it's that it's just going to be so life changing
39:41
Speaker 3: to people, because it really is. And I think if
39:43
Speaker 3: you haven't been through it, you don't understand how much
39:46
Speaker 3: you need it. You really do, You've already don't do.
39:49
Speaker 3: And even now, I like when I'm in hospital, I'm
39:53
Speaker 3: always messaging them, like I say, it's just so important.
39:56
Speaker 3: It really really is seeing seeing children that not and
40:00
Speaker 3: it will like Aubray seeing them get married do things.
40:05
Speaker 3: I don't even think they understand how what it's like
40:07
Speaker 3: to watch them do well. And then you can think that,
40:11
Speaker 3: and then it gives your hope. You think, yeah, I might,
40:13
Speaker 3: I didn't think i'd ever be able to see these things.
40:15
Speaker 3: But then you think, we'll look at them doing that.
40:17
Speaker 3: She can do it, and it really really does give
40:21
Speaker 3: you hope. It really really does, and I think that
40:23
Speaker 3: it's just so valuable.
40:25
Speaker 2: Well, it really really is, absolutely and just what we
40:29
Speaker 2: got sort of five more minutes or so, just to
40:32
Speaker 2: kind of a word on the future, I guess for
40:35
Speaker 2: both of you really in terms of your respective conditions,
40:40
Speaker 2: what do you kind of see I guess the future
40:42
Speaker 2: for you, Kirstie, and all for your future as well.
40:49
Speaker 3: So I've been even though I am a success story,
40:51
Speaker 3: I've been able a few little problems. I think. I
40:54
Speaker 3: think it's probably as I'm getting I've done so well
40:58
Speaker 3: and I think I don't know, I don't know. I've
41:02
Speaker 3: not seen a gastro since I was fifteen and thirty
41:05
Speaker 3: seven now, so I've done really really well. But I
41:09
Speaker 3: had my goalbot about in August, and obviously by all
41:14
Speaker 3: and everything like that. I've been having a few problems,
41:15
Speaker 3: so I wondered genetics again and it was looking like
41:19
Speaker 3: maybe I could need a temporary stoma. Possibly, but I'm
41:24
Speaker 3: still but I think because of all but I'm not,
41:27
Speaker 3: I'm not. I don't mind having a stoma. Got a
41:32
Speaker 3: imagine what it'd be like with both of us and yeah,
41:35
Speaker 3: but yeah, but I'm doing well apart from that. It's
41:38
Speaker 3: just it might not be just trying to get to
41:40
Speaker 3: the bottom of a bit a few nigoes, but with you,
41:44
Speaker 3: I think I'm just gonna have to I don't know.
41:48
Speaker 3: I think she's doing really well. Hopefully it continues. Can't
41:53
Speaker 3: touch wood. Yeah, just got to sort of navigate six
41:58
Speaker 3: weeks holidays. That's the thing I'm a scared about right now.
42:02
Speaker 2: Huh, well, we'll we'll filled up forty five minutes of
42:05
Speaker 2: your six weeks. So yeah.
42:10
Speaker 3: Oh, she's darting to ask she wants she wants to
42:13
Speaker 3: say something. What do you want to say? Someone called
42:17
Speaker 3: Sery Caletti.
42:20
Speaker 2: Yes, I know Zoe, I know Zoe. Yeah, Zoey's fantastic.
42:24
Speaker 3: She's a YouTube but that I like watching.
42:27
Speaker 2: She's brilliant. She's absolutely fantastic. Yes, Zoey's been on the podcast,
42:35
Speaker 2: and she was at the Older Hay at the Older
42:38
Speaker 2: Hay conference as well, and she gave a brilliant, a
42:41
Speaker 2: brilliant speech about her life. Zoey's Zoey's fantastic.
42:45
Speaker 3: She's just very excited. Little prospects that she might watch
42:48
Speaker 3: this and realize who Aubrey is.
42:50
Speaker 2: Oh, absolutely we could, certainly, we can certainly message it.
42:54
Speaker 2: She might be listening now, Yeah.
42:58
Speaker 3: Yeah, she wants to watch. Who wants to pay dress
43:01
Speaker 3: to impress with her? Which is our pain?
43:03
Speaker 2: I'm mobile, I have seen the YouTube job and you
43:05
Speaker 2: have no idea what dress to his press is. I
43:07
Speaker 2: just have seen your business Greened.
43:13
Speaker 3: Well say thank you. It's fun to have a Habbin
43:15
Speaker 3: ask to you.
43:16
Speaker 2: No, no, not at all. Thank you so much, both
43:18
Speaker 2: of you for coming on. It's been so good to
43:21
Speaker 2: hear you as nice to Jewelry and both of you,
43:25
Speaker 2: and then I guess it just leaves and me really
43:28
Speaker 2: to say that I wish you both very very best
43:32
Speaker 2: in whatever you do in the future. Thank you so
43:34
Speaker 2: much for coming on. Thank you, thank you for listening
43:42
Speaker 2: and being part of this growing community. If you have
43:45
Speaker 2: enjoyed the episode, don't forget to subscribe, leave a review,
43:48
Speaker 2: and share it with someone who might need it. You
43:51
Speaker 2: can connect with us on social media via Instagram, Facebook,
43:54
Speaker 2: and TikTok under the name Tom's Hirshprung's Podcast.
43:58
Speaker 1: See you next week.