Latest / Tom's Hirschsprung's Podcast / Episode 128 - With Stephanie Luster

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Episode 128 - With Stephanie Luster · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshbrung's podcast, a space where
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Speaker 1: we talk openly about living with hirshprng's disease. Whether you
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Speaker 1: live with it, care for someone who has it, or
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Speaker 1: just want to understand more, this podcast is for you.
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Speaker 1: Each episode, we will explore real stories and honest conversations
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Speaker 1: about a condition that often goes unheard. Thank you for
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Speaker 1: tuning in.
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Speaker 2: Hello, and welcome to episode one hundred and twenty eight
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Speaker 2: of Tom's Hirshbrongs podcast. I'm delighted this evening to be
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Speaker 2: joined by Stephanie. Stephanie, welcome to the podcast.
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Speaker 3: Hello, thank you, thank you for having me me.
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Speaker 2: Oh, it's so very welcome. Thank you so much for
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Speaker 2: well accepting my DM and coming on. No, very very
1:09
Speaker 2: glad to have you, and really excited to hear the
1:13
Speaker 2: story of your daughter with ershbrons. Those who've seen a
1:17
Speaker 2: lot with ershbroms will know that it's mainly sort of
1:22
Speaker 2: a male dominated condition, So I'm always very glad to
1:27
Speaker 2: have female voices as well, because I think that's really
1:31
Speaker 2: really important to represent so well. But I guess we
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Speaker 2: will start from the very beginning over to you.
1:41
Speaker 3: Very beginning buckle up. It's a start. And if I'm
1:45
Speaker 3: doing this, I promise I'm not crying, or maybe I
1:47
Speaker 3: will eventually. But my eyes are watering from, like I said,
1:51
Speaker 3: just being outside today. So yeah, we let's see. We
1:57
Speaker 3: had our third baby, girl Aila, in twenty three. She
2:02
Speaker 3: was our surprise baby. She was I have two girls,
2:06
Speaker 3: so we have a running streak of girls in our
2:09
Speaker 3: in our family, I'm the oldest of three girls. My
2:12
Speaker 3: middle sister has three girls, and so I had two girls.
2:16
Speaker 3: And so when I found out I was pregnant, I
2:18
Speaker 3: was like, Okay, hopefully, you know, let's see if it's
2:20
Speaker 3: the boy, for it's going to be a girl. And
2:22
Speaker 3: so we were hoping that it was a boy. But
2:25
Speaker 3: it's okay, Ala King and we were excited. We were
2:30
Speaker 3: just gearing up to have her. And it was kind
2:35
Speaker 3: of bittersweet because our second was born with a heart
2:38
Speaker 3: and defect called pulmonaristenosis, and so we went through a
2:41
Speaker 3: really really tough and scary time with her that I
2:44
Speaker 3: honestly did not know. I did not want more kids.
2:48
Speaker 3: My husband definitely wanted more kids, and so I think
2:50
Speaker 3: he was holding out for the boy. Go figure. So
2:53
Speaker 3: when we finally we were pregnant with her. We thought, okay,
2:55
Speaker 3: maybe this is the boy. I had no reservations. I
2:58
Speaker 3: was hoping that, you know, nothing was to be wrong.
3:01
Speaker 3: I had to go to like it's called an MFM
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Speaker 3: and you know, fertile medicine doctor and had to have
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Speaker 3: weekly sonograms and ultra sallend just to make sure that
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Speaker 3: the baby was okay and she wasn't going to have
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Speaker 3: a heart defect like her other baby, and so we
3:15
Speaker 3: were cleared for that, and so I thought, okay, this
3:17
Speaker 3: is good, this is great. Everything is that it'd be normal.
3:20
Speaker 3: We went in for delivery. The delivery was beautiful and fast.
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Speaker 3: It was my third baby with my first rodeo, and
3:26
Speaker 3: so when we had her, a breastfed and so she
3:29
Speaker 3: latched right on and it was just going great and
3:32
Speaker 3: we were just so in awe and just in love
3:34
Speaker 3: with her. And then she starts spitting up. Honestly, within
3:39
Speaker 3: I want to say, like an hour or two of
3:41
Speaker 3: her being born, and after eating, she just started spitting up.
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Speaker 3: And I remember the nurses and the doctors telling me
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Speaker 3: that that was normal, that she probably swallowed amiotic fluid.
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Speaker 3: But you know, you have a mother instinct that I
3:55
Speaker 3: just knew, Okay, this does not sound normal. I don't
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Speaker 3: think this is normal. And so it just got progressively worse,
4:02
Speaker 3: and then she just refused to eat. And then the
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Speaker 3: bile or spit up that she was spitting up turned green.
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Speaker 3: It was like an ugly green color, and so we
4:14
Speaker 3: I ended up saving it like kind of like on
4:16
Speaker 3: a little broke cloth, and I showed the pediatrician when
4:20
Speaker 3: she came in, and when she took one look at it,
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Speaker 3: she was like, oh my goodness, she has to go
4:23
Speaker 3: down to Nick you. And I remember just freezing, like, well,
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Speaker 3: what do you mean? What does that mean? What's going on?
4:28
Speaker 3: And so she was like, we're just gonna take her
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Speaker 3: down to Nick you. It's just gonna you know, check her,
4:31
Speaker 3: make sure she doesn't have a blockage or and so
4:34
Speaker 3: when they started seeing things like this, you start freaking
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Speaker 3: out a little bit. You're like, okay, what what's happening? Like,
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Speaker 3: what's what's going on? And so they took her down
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Speaker 3: to nick you. Mind you had just given birth like
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Speaker 3: twenty four hours prior, so I was still very very
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Speaker 3: sore and I wanted to see her, and they were like,
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Speaker 3: you gotta wait. And so me being the person I am.
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Speaker 3: I was just like, no, I waited till everyone's asleep,
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Speaker 3: the nurses, my mom and the nurses are awake, but
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Speaker 3: my husband's asleep, and the nurses, I don't know where
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Speaker 3: they were. I picked up the door and seeing me one,
5:00
Speaker 3: so I walked all the way down to where Aila was,
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Speaker 3: and I just remember, you know, putting my hands on
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Speaker 3: her and just like praying over her and just trying to,
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Speaker 3: you know, really having that one on one talk with
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Speaker 3: the Lord. I'm very much a believer in in my faith,
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Speaker 3: and so that is what definitely helped to keep me
5:17
Speaker 3: grounded insane in that moment. And she was in the
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Speaker 3: nikki for like five days. They kept doing testing, they
5:25
Speaker 3: kept trying to figure out what was wrong with her.
5:27
Speaker 3: I went to Google. I know they tell you not
5:29
Speaker 3: to go to Google, but I googled what could be
5:32
Speaker 3: the reason, and it was crazy enough. Her sprungs came up.
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Speaker 3: I'd never heard of it, and I even pronounced it wrong.
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Speaker 3: I think I thought it was a here here sprungs
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Speaker 3: or here. I don't know, but I remember looking at
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Speaker 3: that word and I remember turning to my husband saying, look,
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Speaker 3: this is all the symptoms that Aila has. Do you
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Speaker 3: think this is what she has? And he's like, oh
5:51
Speaker 3: my gosh, stay off Google. And so I just said, okay,
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Speaker 3: I took a deep breath, I prayed, and I said
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Speaker 3: I'm to stay off Google and just let them figure
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Speaker 3: it out. Dated up sending a surgeon from a children's
6:03
Speaker 3: hospital near us to do a biopsy. And then when
6:09
Speaker 3: the doctor came in, that's when she said, She's like, okay,
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Speaker 3: she's positive for her shrungs. And my heart just dropped
6:16
Speaker 3: and I was like, man, what is this?
6:20
Speaker 1: You know?
6:20
Speaker 3: And I looked at my husband. I was like, see,
6:22
Speaker 3: I told you. But she was transferred to Children's hospital.
6:28
Speaker 3: So we rode in the ambulance over to over to
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Speaker 3: Children's hospital. And when we got there, she remember it
6:34
Speaker 3: was so overwhelming because the nurses and the staff and
6:36
Speaker 3: everybody was just coming in and just asking us questions
6:39
Speaker 3: and telling us all these things that I remember vividly
6:42
Speaker 3: just breaking down crying and telling the doctors and nurses
6:44
Speaker 3: I can't I don't know what's going on. I just
6:46
Speaker 3: need to take a step back. I just know that
6:50
Speaker 3: she was gonna have surgery the next day. You know.
6:51
Speaker 3: They told me she was set for surgery. You know,
6:56
Speaker 3: it was really hard because my five day old was
6:58
Speaker 3: going to have surgery the next day for six hours,
7:02
Speaker 3: and that was super scary and just like, what is happening?
7:06
Speaker 3: And there were talks of, hey, we don't know how
7:09
Speaker 3: severe hirsch Bruns is. We don't know. There's different types.
7:11
Speaker 3: There's long long segment, short segment, there's total klonic. And
7:15
Speaker 3: so they said, we're going to go in and kind
7:17
Speaker 3: of try to test the ganging cells and see if
7:21
Speaker 3: we can find any present or if they're missing. And
7:24
Speaker 3: I remember in the middle of surgery, they gave us
7:26
Speaker 3: a call and told us this is not what we
7:30
Speaker 3: hoped for, but it looks like she's her whole large
7:34
Speaker 3: in colon colon is affected and we're going to have
7:37
Speaker 3: to do an iliostomy, which you know, I had never
7:40
Speaker 3: heard of the term iliostomy. I just basically in a nutshell,
7:44
Speaker 3: what I had heard of was colostomy back, even though
7:47
Speaker 3: the proper term was ostidy I think some b so
7:55
Speaker 3: I just remember just crying, being like, what is life
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Speaker 3: going to be like with a bag? And how long
8:03
Speaker 3: will she have this bag? And what does recovery look like?
8:06
Speaker 3: And it was tough and it was even tougher because
8:10
Speaker 3: a month prior, my sister in law had lost her baby.
8:15
Speaker 3: She had was still born, and so we were still
8:18
Speaker 3: mourning that and then this happened, and it was just
8:21
Speaker 3: it was a lot on me emotionally. Again, if it
8:23
Speaker 3: weren't for the Lord, I would have lost my marbles.
8:28
Speaker 3: But here we are, and we spent almost two months
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Speaker 3: at children's nick You just you know, it was going
8:36
Speaker 3: from we could give her, give her only a certain
8:39
Speaker 3: amount of food and see if she wasn't dumping, and
8:42
Speaker 3: then if she dumped, then we'd have to give her
8:44
Speaker 3: some replacement medicine and fluids. And then they were like, okay,
8:49
Speaker 3: you can breastfeed. No, don't breastfeed. And so one day
8:51
Speaker 3: they were like, okay, breastfeed and I breast but her
8:54
Speaker 3: and they said, you know, don't limit her. And I was, man,
8:57
Speaker 3: I don't think they had under a seminemy. I was,
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Speaker 3: I was like a cat. I produced so much milk.
9:01
Speaker 3: So she ate, she went to town and shortly after
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Speaker 3: she just dumped and dumped and dumped, and they were like, okay,
9:06
Speaker 3: don't breast feed, don't do that. And so it was
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Speaker 3: it was a lot. It was an emotional rollercoaster. Learning
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Speaker 3: how to change the bag and put the bag on
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Speaker 3: for the first time was horrendous. It was very traumatizing
9:22
Speaker 3: for her and for me, and I remember just crying
9:25
Speaker 3: and looking at the nurses and doctor like I, I
9:28
Speaker 3: don't know if I can do this, Like I this
9:30
Speaker 3: is this is a lot. And then we were two
9:34
Speaker 3: months in the hospital and we were just desperate to
9:36
Speaker 3: go home that they said, Okay, you're gonna have to
9:39
Speaker 3: go on TPN, and so she had that port ivy
9:44
Speaker 3: in her chest and so I brought home a fragile
9:47
Speaker 3: two month old with TPN, with a stoma and ostame
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Speaker 3: bag and just they're like, here, here you go. So
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Speaker 3: it was, it was scared. It was. It was very
10:01
Speaker 3: scary to say the least.
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Speaker 2: Wow, I mean when you said it was a heck
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Speaker 2: of a story, you weren't kidding.
10:08
Speaker 3: I left a lot of stuff out.
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Speaker 2: Yeah, no, we will definitely get to get to all
10:13
Speaker 2: of that. But the I can't imagine when when you're
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Speaker 2: going in, like you said, third baby, going in thinking Okay,
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Speaker 2: I've done this before two times, I kind of know
10:27
Speaker 2: what to expect, I know what I'm doing, et cetera,
10:30
Speaker 2: et cetera. And then two months later, or well, not
10:35
Speaker 2: only even two months, but a matter of days later,
10:39
Speaker 2: two months after leaving the hospital, but a matter of
10:42
Speaker 2: hours and days later.
10:43
Speaker 3: Twenty four hours later, or Well was turning to say.
10:45
Speaker 2: Down, no, exactly, the whole the whole world completely changes
10:49
Speaker 2: and suddenly you've then and the water bazes me about
10:54
Speaker 2: parents in your situation is just how much you have
10:57
Speaker 2: to learn in that time. Suddenly you go from not
11:01
Speaker 2: knowing the word hirshprungs to having to be almost an
11:03
Speaker 2: expert in it, knowing about stobas, to then having to
11:07
Speaker 2: know how to care for a stoma stoba bag all
11:10
Speaker 2: of the wipes and accessories and all of that stuff. Yeah,
11:15
Speaker 2: how did you? How did you find all of that?
11:19
Speaker 3: You know? So, I'm a heavy believer in nothing happens
11:26
Speaker 3: to my mistake. And so I was working in medical
11:30
Speaker 3: device sales prior I'm a real estate agent now, but
11:33
Speaker 3: prior to that, I was working in medical device sales.
11:35
Speaker 3: And I crazy enough, I worked with a cardiologist. So
11:42
Speaker 3: when my second had heard deal, I was like, oh,
11:44
Speaker 3: I know, I know all about this, and just I
11:46
Speaker 3: think what prepped me was just I was in the
11:48
Speaker 3: medical field for so long doing sales, and so I
11:51
Speaker 3: came across a lot I knew. I knew of terminology.
11:55
Speaker 3: I just didn't know of hirshprungs and that terminology. But
12:01
Speaker 3: and I'm just a really quick learner. And so when
12:05
Speaker 3: the nurses just prepped us on as much as they
12:09
Speaker 3: could right on how to change the OSome bag, how
12:12
Speaker 3: to flush out the ivy at the TPN, I think
12:16
Speaker 3: that one was a lot scarier for me, just because
12:20
Speaker 3: they they scare you and say, hey, you got to
12:22
Speaker 3: watch out for infections, you got to watch out for this.
12:25
Speaker 3: And and there was a moment where her ivy just
12:29
Speaker 3: wasn't flushy, and there was a moment where she had fever,
12:31
Speaker 3: and so I'm like, oh my gosh, your mind automatically
12:34
Speaker 3: goes to does she have an infection? So I took
12:36
Speaker 3: her in and ended up being that it just get
12:40
Speaker 3: there's a kink. They had to go in and refix it.
12:43
Speaker 3: And so there we go. That was that issue. And
12:46
Speaker 3: then she was only on TPN for six months, thank god,
12:50
Speaker 3: And so she ended up getting off at six months,
12:52
Speaker 3: and then she had the ostomy for a year and
12:57
Speaker 3: a half and got better easier. I would say, in
13:03
Speaker 3: a sense, just because you do it so many times
13:06
Speaker 3: that you start, it's just practice makes perfect. And I
13:10
Speaker 3: think what again got me through was my faith and
13:14
Speaker 3: just I have that mentality of this is my child,
13:17
Speaker 3: and so I have to do what I have to do.
13:19
Speaker 3: I think a mother's love is we will go to
13:22
Speaker 3: the ends of the of the world for our child.
13:25
Speaker 3: And so I kind of became obsessive just reading up
13:30
Speaker 3: on all kinds of things hirshbrungs, looking at videos. I
13:33
Speaker 3: even looked up, like you said, on TikTok or Instagram
13:36
Speaker 3: like HaShas of hirshbrung hashtag Hirshbruns and other families and
13:39
Speaker 3: what they did, and joined Facebook groups for Hirshprungs.
13:45
Speaker 2: And so.
13:47
Speaker 3: I just said, Okay, this is what we're faced with.
13:49
Speaker 3: I don't know why, I don't know what the purpose is.
13:52
Speaker 3: One day I may know. One day I may never know,
13:54
Speaker 3: but this is what we have to do, and I
13:57
Speaker 3: just better suck it up in a sense and do
14:00
Speaker 3: what I got to do for my little one.
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Speaker 2: Yeah, I mean, like you say, so, social media gets
14:05
Speaker 2: a lot of stick for for a lot of the
14:09
Speaker 2: bad stuff that's on it, but it is really used correctly.
14:13
Speaker 2: It is InCred incredible tool. You know, I wouldn't be
14:17
Speaker 2: able to do this without social media. I wouldn't be
14:19
Speaker 2: able to reach out to you or or to anybody else.
14:22
Speaker 2: So so I think again used correctly, it's there's so
14:28
Speaker 2: so much really good information, whether it be about Hirshprung's
14:31
Speaker 2: or other stuff about Hershprong. Yeah, about Heirshprong's and other stuff.
14:38
Speaker 2: It's just really really useful. And I know you mentioned
14:41
Speaker 2: two or three times there and something that I have
14:45
Speaker 2: brought up in lots of other episodes, that is, is faith,
14:50
Speaker 2: which I find incredibly important in my life. And is
14:55
Speaker 2: that something that has sort of been with you sort
15:00
Speaker 2: throughout your life or is that something you've sort of
15:04
Speaker 2: leaned on I don't know if that's the right word
15:06
Speaker 2: since your daughter was born.
15:09
Speaker 3: So I've always known God. I didn't grow up in
15:13
Speaker 3: the church. I didn't grow up where our families went
15:16
Speaker 3: to church. Actually my husband did. He grew up going
15:20
Speaker 3: to church every Sunday and just you know, strengthening his faith.
15:26
Speaker 3: I knew of God. My mom introduced me to God.
15:30
Speaker 3: So there's difference between these different religions, right, And so
15:33
Speaker 3: I am very much a person that's like, it's not
15:36
Speaker 3: about religion, it's about relationship. And so I do consider
15:40
Speaker 3: myself a Christian, but the focus is more so on
15:45
Speaker 3: relationship with Christ and just knowing that He is our
15:49
Speaker 3: savior and knowing what he did for us and diying
15:51
Speaker 3: on the Cross. And so when I was younger, I
15:54
Speaker 3: knew of God. It wasn't until I met my husband
15:57
Speaker 3: and we started going to church and I started just
15:59
Speaker 3: really growing my faith going to church with him, and
16:03
Speaker 3: then it got honestly, my faith got deeper prior to
16:08
Speaker 3: even having kids, because when my husband and I got married,
16:11
Speaker 3: we struggled to even have kids. We had three miscarriages.
16:15
Speaker 3: One of them was a topic I was at risk
16:17
Speaker 3: of losing a fallopian tube, and so we went through
16:20
Speaker 3: hell and back. And I strongly believe again that that
16:24
Speaker 3: was the Lord prepping me for Aila and he knew
16:28
Speaker 3: all that I was gonna have to go through later
16:30
Speaker 3: on down the line. And so when I was going
16:32
Speaker 3: through those miscarriages, I developed severe anxiety and panic attacks.
16:36
Speaker 3: I had developed depression, and so I really had to
16:39
Speaker 3: tap into my faith and tap into to even going
16:43
Speaker 3: to therapy. You know, I think there's a lot of
16:45
Speaker 3: stigma against that as well. And so I used therapy, faith,
16:49
Speaker 3: and to be honest, even medication to get my mental
16:52
Speaker 3: health back healthy. And once I was strong enough, I
16:57
Speaker 3: think absolutely it prepped me for were the things that
17:00
Speaker 3: I was going to go through whenever I had my kids.
17:02
Speaker 3: So faith has been something that it's always been with me,
17:06
Speaker 3: but it hasn't developed and grown unless I'd gone through
17:10
Speaker 3: these horrible things.
17:12
Speaker 2: So yeah, absolutely extraordinary, Absolutely extraordinary. I mean, you were
17:17
Speaker 2: you were right at the start when you said this
17:19
Speaker 2: is I mean, it's not a I don't know if
17:21
Speaker 2: there is attatude such a thing as a typical Hirshprunk story.
17:23
Speaker 2: I don't think there is one, but but this certainly isn't. No,
17:30
Speaker 2: But I mean, oh wow, there's Yeah, so much has
17:34
Speaker 2: happened in and I guess that's the thing. I guess
17:36
Speaker 2: that's the thing with Hirshprunk. So much happens in a
17:38
Speaker 2: short space of time, doesn't it. Yeah, And you know
17:42
Speaker 2: you've got hospital visits and you've got surgeries and whatnot,
17:46
Speaker 2: And I guess when the surgery comes along, you said
17:49
Speaker 2: that sort of six hour surgery was just the longest
17:53
Speaker 2: six hours of your life. Yes, what what do you
17:58
Speaker 2: I mean, I guess there's only so many like coffee
18:00
Speaker 2: shops you can visit and had places you could walk
18:03
Speaker 2: and what did you do to sort of pass the time?
18:06
Speaker 3: So my in laws so sweet, they came and sat
18:10
Speaker 3: with us. They knew that this was going to be
18:12
Speaker 3: a really hard moment for us, and then my parents
18:16
Speaker 3: watched my other two kids. Community. That was something that
18:21
Speaker 3: definitely helped us and get us through. We could not
18:23
Speaker 3: have done this with out our community. I'm just so
18:25
Speaker 3: grateful and thankful that we do have just really involved family,
18:30
Speaker 3: his parents, my parents, our siblings. He has a sister,
18:33
Speaker 3: I have two sisters, and so everyone was just very
18:36
Speaker 3: much hands on deck and just helping us during that time.
18:40
Speaker 3: And so I remember our in law's coming and sitting
18:42
Speaker 3: with us and talking with us and praying with us
18:45
Speaker 3: and just trying to keep us, excuse me, distracted as
18:48
Speaker 3: much as we could possibly be. I also remember I'm
18:51
Speaker 3: a real estate agent during that time. Man, you can
18:54
Speaker 3: get kind of ugly with real estate realtures in real
18:57
Speaker 3: estate because they just fight you on so many things.
18:59
Speaker 3: But I remember a realtor calling me and just getting
19:02
Speaker 3: really nasty with me about about something and I just
19:04
Speaker 3: literally told her, ma'am, I am in children's hospital right
19:07
Speaker 3: now with my baby who is five days old, literally
19:11
Speaker 3: fighting for her life, having surgery right now. I do
19:13
Speaker 3: not have time for this. And I remember being like, oh,
19:16
Speaker 3: I'm sorry, and I'm like, yeah, so this house situation,
19:20
Speaker 3: I'm like, I this is this, I don't care right now.
19:23
Speaker 3: What're what you're talking about is I don't care. And
19:25
Speaker 3: so but just again I think faith, community and just
19:31
Speaker 3: holding on to that and just knowing that I'm grateful
19:34
Speaker 3: for the people that I did have, because I do
19:35
Speaker 3: know and I've heard the stories of people that have
19:39
Speaker 3: had to go through this surgery with no family, and
19:43
Speaker 3: so my heart goes out to those families and those
19:45
Speaker 3: and those moms and they are just super heroes and
19:49
Speaker 3: and and every way. Just community and faith is what
19:54
Speaker 3: got me through that horrible five hour surgery. And then,
19:59
Speaker 3: you know, I thought, you think once once you get
20:04
Speaker 3: over something that hard and traumatic at the beginning, you're like,
20:07
Speaker 3: it's going to be smooth sailing from here. That was
20:10
Speaker 3: off the case at all. That was just like the
20:13
Speaker 3: beginning of just so much that that happens with having
20:19
Speaker 3: hirsprungs and and it's hard because too with Hirshprings, Like
20:24
Speaker 3: you said, every situation is different that you just you
20:28
Speaker 3: want to playbook. You want to know, Okay, if I
20:30
Speaker 3: go through this, this is going to happen. If I
20:32
Speaker 3: go through that, that's gonna happen. And there were so
20:35
Speaker 3: many unknowns and and what I guess was hard. But
20:39
Speaker 3: the hardest part was even the doctors don't know it's
20:42
Speaker 3: so rare. And I just heard that so many times.
20:45
Speaker 3: It's so rare. Every case is different. And I just
20:48
Speaker 3: had her physician be honest with me and just say
20:51
Speaker 3: there's still stuff that we're learning about this disease. And
20:53
Speaker 3: I'm I think that crushed me because I'm like, what
20:55
Speaker 3: do you mean? Like, no, I want you to know
20:59
Speaker 3: everything so that we can you can help me. And
21:01
Speaker 3: it just wasn't that. So I have conversation my haus
21:05
Speaker 3: all the time, even even it's so silly to think,
21:07
Speaker 3: but like I think about my you know, my daughter
21:10
Speaker 3: and when she grows up and you know, when she
21:11
Speaker 3: wants to have children one day, like are my grandkid's
21:13
Speaker 3: gonna have this? Or is she gonna have problems getting pregnant?
21:16
Speaker 3: She can have problems when she's pregnant, and so you
21:18
Speaker 3: think of all these things and you try not to,
21:20
Speaker 3: but it just your mind just starts going that. You're
21:22
Speaker 3: just like, so, then I have to bring myself back
21:25
Speaker 3: to center and just remember, hey, the Lord is here,
21:28
Speaker 3: the Lord's bagging through a lot, and so just continue
21:31
Speaker 3: holding on to.
21:31
Speaker 2: That absolutely and just going back to the phone call
21:35
Speaker 2: you got from the real estate agent, I don't think
21:37
Speaker 2: I would have been that polite of just saying that
21:39
Speaker 2: for the record if I received that phone all at
21:43
Speaker 2: that time.
21:46
Speaker 3: You get so wordy. Yeah, I wanted to say him
21:50
Speaker 3: choice words, but I just I was like, Lord, I
21:54
Speaker 3: don't want to mess up. I don't want to curse
21:55
Speaker 3: this lady out and then my baby's and surgery. You're like,
21:57
Speaker 3: you just sinned, you just did. That's so I.
22:01
Speaker 2: Want to be nice, But you're right with with Hirshprungs.
22:04
Speaker 2: And there's I get messages from people quite often and
22:09
Speaker 2: they tend to try and talk in absolute fact, which
22:13
Speaker 2: is so difficult with Hirshprungs. And people say to me, well,
22:16
Speaker 2: if you have it, then your children will have it,
22:18
Speaker 2: will not necessarily or if they're male or female, then
22:22
Speaker 2: they'll have it or not that's not necessarily because I've
22:25
Speaker 2: not I know people who do. I know people who don't.
22:27
Speaker 2: I know you have females who've had it, but they've
22:30
Speaker 2: gone on to have children who don't have to hirshprun
22:34
Speaker 2: and all different types. So there really isn't, like you say,
22:37
Speaker 2: a playbook for just if you have this type of harshprungs,
22:42
Speaker 2: then this will happen in the future. They just unfortunately
22:46
Speaker 2: maybe in future there will be maybe maybe maybe maybe
22:50
Speaker 2: by the time your daughter is old enough to have children,
22:54
Speaker 2: there might be more research out there.
22:56
Speaker 3: Who knows, And that's what my husband said, Yeah, that's
22:58
Speaker 3: exactly be said. So I have onto that too. I'm like,
23:00
Speaker 3: you're right, I.
23:02
Speaker 2: Mean, there's more, probably more research going on now I
23:05
Speaker 2: think than there ever has been. I mean certainly over here,
23:09
Speaker 2: and I know REACH in America and Canada are doing
23:12
Speaker 2: an awful lot.
23:14
Speaker 3: Yeah here two of us, but yeah.
23:18
Speaker 2: Yeah, no, there seems to be an awful lot. So
23:20
Speaker 2: hopefully in a decades time or whatnot, or maybe longer
23:24
Speaker 2: hopefully winging. Oh yeah, like said, it hasn't been plain
23:34
Speaker 2: sailing since surgery diagnosis. Would you like to expand on
23:40
Speaker 2: that a little bit more?
23:41
Speaker 3: So she had her stoma. We that was another decision.
23:47
Speaker 3: We just didn't know when the right time was to
23:49
Speaker 3: do the pool through surgery. We I was actually holding
23:55
Speaker 3: out on the pool through as long as possible, just
23:57
Speaker 3: because I heard so many horror stories of the pool
24:01
Speaker 3: through of the diaper rash. I honestly was so scared,
24:05
Speaker 3: and even her uh, the nurse practitioner in her office,
24:08
Speaker 3: was just like, honestly, if you can hold out, I
24:11
Speaker 3: would hold out. And so we intended to realistically wait
24:17
Speaker 3: until she was old enough to potty train to do
24:21
Speaker 3: the pull through so that it would lessen the load.
24:25
Speaker 3: I guess that also did not happen. We had to
24:29
Speaker 3: do her pool through at a year and a half,
24:31
Speaker 3: and it was just because everything was going great, she
24:35
Speaker 3: had her stoma and then she got her first round
24:40
Speaker 3: of easy with her stoma, and I thought, I thought,
24:43
Speaker 3: you can't get easy with the stoma. I thought that
24:45
Speaker 3: easy was more so whenever you have the pool through.
24:48
Speaker 3: So when that happened, it was just it kind of
24:51
Speaker 3: just blew my mind, Like I was so confused. I'd
24:53
Speaker 3: never heard of that, And so we ended up going
24:57
Speaker 3: she ended up going under and they realized she had
24:59
Speaker 3: a stricture near her stoma side, and so they ended
25:04
Speaker 3: up opening it up as much as possible, and then
25:09
Speaker 3: they asked me to begin irrigating through her stoma, and
25:16
Speaker 3: I know that was that was crazy. We had to Again,
25:19
Speaker 3: I'd never heard of that either. I was like, I
25:21
Speaker 3: had heard of irrigations after you have the pull through
25:24
Speaker 3: and you irrigate through through the bottom. And so when
25:27
Speaker 3: they told me I had to start irrigating her through
25:29
Speaker 3: the stoma and put this red rubber catheter in through
25:32
Speaker 3: the stoma and inject the saline and let it flush
25:35
Speaker 3: chef like basically flushing her out. I was like, that
25:38
Speaker 3: sounds really painful and really uncomfortable. And she hated it.
25:43
Speaker 3: I mean, it was just it was it was hard.
25:48
Speaker 3: And then it got to the point where we were
25:52
Speaker 3: doing that and still the stricture kind of happened again
25:57
Speaker 3: where it was she wasn't really unless we did the
26:02
Speaker 3: irrigation through the stroma, and again it was painful, and
26:05
Speaker 3: then there was a time where her stoma got purple
26:08
Speaker 3: and it was like cutting off and so I kind
26:10
Speaker 3: of freaked out and that's when they were like, Okay,
26:14
Speaker 3: it's the stricture again. And so at that point, they
26:18
Speaker 3: were like, we could go in and fix the stricture again,
26:21
Speaker 3: or you can just go in and just do the
26:23
Speaker 3: pull through. At that point, I looked at my husband
26:26
Speaker 3: and I said, you know what, I think it's time.
26:29
Speaker 3: I think we've done all that we can do now.
26:32
Speaker 3: I think let's go ahead and do the pool through.
26:34
Speaker 3: I did sublish research on pool throughs and honestly, who
26:40
Speaker 3: to do the pool through. I love our hospital. I
26:43
Speaker 3: think our hospital's great, but I think it's really really important,
26:47
Speaker 3: especially I'm any kind of Hirst friends kiddo, but especially
26:50
Speaker 3: for us and our a last total klonic. I wanted
26:54
Speaker 3: a colorectal surgeon to do the surgery. I didn't want
26:57
Speaker 3: just a general pediatric surgeon doing it. Yes, the surgeon
27:01
Speaker 3: that she had seen since birth, that who did the
27:03
Speaker 3: stoma had done pull throughs, but it wasn't anywhere near
27:13
Speaker 3: as many as I would have liked or felt comfortable with.
27:17
Speaker 3: And I just I knew there was a lot of
27:19
Speaker 3: things that can go wrong. I knew a mom who
27:24
Speaker 3: had a pull through done at that hospital. I was
27:27
Speaker 3: going to get it done. And I'm not I'm putting
27:29
Speaker 3: any blame on anybody, but I think her daughter ended
27:32
Speaker 3: up after surgery couldn't urinate for like six months and
27:36
Speaker 3: had to have a cafeter, And so I searched Hy
27:40
Speaker 3: and Lowe and the surgeon his name is doctor Mark Levitt.
27:44
Speaker 3: He's out of Children's.
27:45
Speaker 2: Yeah, he's like yeah he several times.
27:49
Speaker 3: Yes, he's like considered the godfather of hurstpryals. So a
27:55
Speaker 3: friend of mine who who also little one, was born
27:59
Speaker 3: with hers frims again, and it's crazy how that connection
28:02
Speaker 3: happened because I went to college with her sister and
28:04
Speaker 3: I had posted our hurstprungs and her sister sends me
28:06
Speaker 3: a message just like, hey, my nephew was just born
28:09
Speaker 3: with hirshprungs and it's so rare. And so we connected
28:12
Speaker 3: and again such a god thing because it's like what
28:15
Speaker 3: are the odds? So her and I got really close,
28:17
Speaker 3: and she told me that she was going to take
28:19
Speaker 3: her little boy to go to doctor Mark Levitt and
28:22
Speaker 3: do the surgery, and so I looked into it. I
28:24
Speaker 3: looked him up. He just had just a plethora of
28:28
Speaker 3: just good reviews and just knowledge and I was just like,
28:32
Speaker 3: that's it. He's our guy. So we traveled from we
28:35
Speaker 3: live in Texas. We traveled to Washington, d C. To
28:38
Speaker 3: do the surgery, and it was it was hard. Even
28:44
Speaker 3: with the best of the best surgeons, we still had
28:49
Speaker 3: a very, very tough time. She traveling back was horrible.
28:56
Speaker 3: We got on a plane and she was, you know,
29:00
Speaker 3: going so frequently, she had never gone before and just
29:03
Speaker 3: had a complete explosion on the plane and I changing
29:07
Speaker 3: a baby who just had a pull through surgery on
29:10
Speaker 3: a very tiny little plane bathroom was the worst. I
29:15
Speaker 3: think she was screaming, crying. I think I ended up
29:19
Speaker 3: breaking into tears. One of the flat tenants like knocked
29:21
Speaker 3: on the door and I opened it. I was like, yes,
29:23
Speaker 3: I need help. I need all the help I can get.
29:25
Speaker 3: This is chaotic. And I let them know she just
29:30
Speaker 3: had surgery. She's just pooped everywhere. And I told them,
29:33
Speaker 3: I was like, I'll be honest, it's everywhere, okay, like
29:36
Speaker 3: your bathroom is just covered and they were like, it's
29:39
Speaker 3: so They were so so nice, shout out to American
29:42
Speaker 3: Airlines and so they were so so nice. She ended
29:45
Speaker 3: up giving me some things to help me clean her
29:48
Speaker 3: up and then just kind of taped off that bathroom.
29:51
Speaker 3: Might not to use that bathroom. So and then we
29:55
Speaker 3: came home and the fear of what I didn't want
29:59
Speaker 3: to do, the pull through, the reasons why was the
30:02
Speaker 3: nasty diaper rash. We were so on top of this
30:05
Speaker 3: diaper that it didn't matter. She was going twenty times
30:10
Speaker 3: a day and we were putting all kinds of creams,
30:15
Speaker 3: all kinds of powders and everything that you can think
30:18
Speaker 3: of to get her little bottom used to it. And
30:22
Speaker 3: it just it was pure hell that went on for
30:26
Speaker 3: like two months where we battled this nasty rash. I
30:31
Speaker 3: lost weight because I wasn't eating, I wasn't sleeping. She
30:34
Speaker 3: was crying day in and day out, wasn't sleeping. And
30:39
Speaker 3: then I had a moment where I was like what
30:41
Speaker 3: did I do? What did I do? Were we supposed
30:44
Speaker 3: to do? This pull through? It was hell to say
30:49
Speaker 3: the least. And around that time, my husband was having
30:53
Speaker 3: a work trip and I didn't want to go because
30:55
Speaker 3: I was like, I can't leave her like this. And
30:57
Speaker 3: again my family, there's such a village. You're like, go
30:59
Speaker 3: unique rest. You're literally having bags in your eyes, you're
31:02
Speaker 3: getting skinny, you're not eating. They said just go, we'll
31:05
Speaker 3: take care of her, and I just remember going. We
31:08
Speaker 3: didn't even go far. It was like three or four
31:11
Speaker 3: hours where we live, and my mom just it's just
31:16
Speaker 3: a sat love her. She ended up getting her on
31:20
Speaker 3: a eating schedule and so every two or three hours
31:22
Speaker 3: she would give her rice and chicken and then just
31:24
Speaker 3: it was like playing rice and chicken so that it
31:26
Speaker 3: would thicken up her stool and just and then also
31:29
Speaker 3: my mom was like, I put on a schedule to
31:31
Speaker 3: give her a break, because if you're feeding her constantly,
31:33
Speaker 3: then she's gonna constantly go. And that worked. My mom said,
31:37
Speaker 3: she got her on this feeding schedule and got her
31:40
Speaker 3: on this like rice and chicken where it helped her
31:43
Speaker 3: her stomach. And when I came back, it was like
31:46
Speaker 3: my baby was a different person. And so I was like,
31:48
Speaker 3: thank the Lord that I ended up leaving and my
31:50
Speaker 3: mom ended up having that discernment and just knowing, hey,
31:53
Speaker 3: let's just try something different because I was just so
31:56
Speaker 3: tired that you can't think of and you can't think, can'tunction,
32:00
Speaker 3: and so yeah, so that was great. We went a
32:07
Speaker 3: very long time without her having any ecy episodes, and
32:11
Speaker 3: then in December of last year, we were headed to
32:15
Speaker 3: New York for Christmas time. I was like, the thing
32:17
Speaker 3: to do, and so we took our kids to New York.
32:20
Speaker 3: We ended up catching the flu. We were all so sick.
32:24
Speaker 3: And you know, if hirshburn's kiddos, anytime they get a
32:27
Speaker 3: virus or sick or anything, they just they're at risk
32:30
Speaker 3: for EC. And so sure enough, she got EC. And
32:35
Speaker 3: we were all the way in New York slash New Jersey.
32:38
Speaker 3: We're staying with my family New Jersey, and we were
32:43
Speaker 3: faced with Okay, what do we do? I took her
32:46
Speaker 3: to a hospital in Jersey. My goodness, it is very
32:53
Speaker 3: scary and just disheartening to know that there's there's a
32:56
Speaker 3: lot of doctors that don't know hirshprungs. And I took
32:58
Speaker 3: her in there just saying, hey, we're from out of town.
33:03
Speaker 3: She has hirshpruns. I think she has ESY. I want
33:05
Speaker 3: to make sure she's not getting dehydrated. Can we start
33:07
Speaker 3: her on some you know, fluids, some flagels, something foddles.
33:10
Speaker 3: What they give them, I don't know. I don't know
33:13
Speaker 3: if that's the same name over there, but it's a
33:16
Speaker 3: it's a medication. It's an antibiotic that they kind of
33:19
Speaker 3: give they've given her to kind of help with the
33:23
Speaker 3: infection of easy. And he looked at me and said, yeah,
33:26
Speaker 3: she hashsprunch. Just give her some maralax. And so when
33:30
Speaker 3: he said that, I looked at my uncle, and my
33:32
Speaker 3: uncle took me. I said, let's go. We're not staying here.
33:36
Speaker 3: He has no idea.
33:38
Speaker 2: Just so.
33:40
Speaker 3: You can tell, he had no clue about Hirschbruns. This
33:42
Speaker 3: something he just read. He probably web mdd it before
33:44
Speaker 3: he walked in, googled it like okay, yeah no. And
33:48
Speaker 3: so we get on a plane, we come back home,
33:51
Speaker 3: and on the plane, she ends up projectile vomiting. She
33:55
Speaker 3: kind of got lethargic on me. It was such a
33:58
Speaker 3: scary experience. I remember calling, doing the little button call,
34:01
Speaker 3: asking if there was any medical professionals on the plane.
34:04
Speaker 3: Think the lore there was like three or four. There
34:06
Speaker 3: was a doctor on the plane. He checked her out,
34:09
Speaker 3: he says, she's okay. We had like kind of like
34:12
Speaker 3: a hydrating type drink that you can put in in
34:15
Speaker 3: a drink powder hydrinking powders, then put in a drink,
34:18
Speaker 3: gave her SIPs of that. Then when we landed, we
34:21
Speaker 3: ended up going to children's and they ended up putting
34:26
Speaker 3: her under and she had another stricture this time, you know,
34:29
Speaker 3: by the pool through sight, and gave her another round
34:34
Speaker 3: of botox and that was hard. I was like, I
34:37
Speaker 3: felt like we started all over again. But by the
34:41
Speaker 3: grace of God, she is doing well. We're still trying
34:47
Speaker 3: to get her to not have to have that medication,
34:52
Speaker 3: the antibiotics, because right now we're having to cycle it
34:56
Speaker 3: out every first of the month for like seven days.
35:01
Speaker 3: And they say, you know, kids with her shrines and
35:03
Speaker 3: especially total kalanig and they have she just has her
35:06
Speaker 3: small intestine. She's very in, very little of it. They
35:09
Speaker 3: get a lot of bacteria build up. And so that's
35:12
Speaker 3: kind of where we are now, just trying to figure
35:16
Speaker 3: out this easy career current episodes and bacteria build up.
35:22
Speaker 3: So yeah, I did a long winded answer to I
35:26
Speaker 3: don't even know what question.
35:28
Speaker 2: Though, it's it's all good going off on a tangent
35:31
Speaker 2: is is all good? We not that we did, but
35:33
Speaker 2: it's no, all all good. It's yeah. eNTRI Colitis is
35:39
Speaker 2: such a it's it's such an odd one really because
35:44
Speaker 2: again before doing this, I'd never heard of it, because
35:46
Speaker 2: I was very, very fortunate that I seem to have
35:50
Speaker 2: got everything else, but to get triclitis, so very very
35:55
Speaker 2: fortunate that I didn't get that, so I didn't really
35:59
Speaker 2: know anything about it until until I started doing this,
36:02
Speaker 2: and then obviously knowing that it can sort of reoccur
36:06
Speaker 2: on all of this stuff. But it's yeah, I mean,
36:10
Speaker 2: I guess, like you say, having family around, he's just
36:14
Speaker 2: so so important. And the chicken and rice diet is
36:19
Speaker 2: something I have heard before, so I guess it's it's
36:22
Speaker 2: sort of sort of try and be as sort of
36:25
Speaker 2: as plain as possible. I guess, yes, that's sort of
36:28
Speaker 2: to try and settle the bow. I guess b sort
36:33
Speaker 2: of the way to put it, and just another thing
36:37
Speaker 2: as well as he said with but he said traveling
36:41
Speaker 2: sort of three or four hours to places, I mean
36:44
Speaker 2: that to me is like the whole length of our country.
36:48
Speaker 2: So traveling three to four hours in America is like nothing.
36:51
Speaker 2: Traveling three to four hours in the UK is like
36:54
Speaker 2: the whole country.
36:55
Speaker 3: That's so funny now, and especially in Texas, like you
36:59
Speaker 3: can in Texas and for sure three or four hours
37:02
Speaker 3: in Texas, I mean you can travel eight hours in
37:06
Speaker 3: Texas like it's it's it's a big it's a big state.
37:10
Speaker 2: Yeah, I mean, well you could do interstate flights, can't you,
37:13
Speaker 2: whereas we like we don't really do into country. Yeah,
37:17
Speaker 2: traveling through to four hours to a place is like, well,
37:20
Speaker 2: then I'll be literally from one end of the country
37:22
Speaker 2: to the other. I'd forget that we are. We are
37:27
Speaker 2: quite a small nation and speak. I guess on that
37:32
Speaker 2: as well. With when you say you go going to
37:36
Speaker 2: a different doctor and they don't know about Hirshbruns. I
37:40
Speaker 2: guess sometimes we can almost be in like a Hirshbruns
37:45
Speaker 2: bubble where we're so used to it because we deal
37:48
Speaker 2: with it every day that when we come up with
37:51
Speaker 2: a medical professional and they clearly haven't got a clue
37:56
Speaker 2: because they've either like you say, just googled it five
37:59
Speaker 2: minutes before, or they've just gone, oh yeah, just take whatever,
38:05
Speaker 2: they relax or whatever it might be. I guess it's
38:09
Speaker 2: tricky sometimes because we have it day in day out,
38:14
Speaker 2: to then go to a medical professional and they don't
38:17
Speaker 2: know what it is. I guess that can be quite frustrating.
38:19
Speaker 3: Oh, I was so mad. I was so upset, and
38:24
Speaker 3: even my uncle like he you know, he was new
38:27
Speaker 3: to this and so he I guess he was just
38:30
Speaker 3: looking at me like we're just gonna walk out. I
38:31
Speaker 3: was like, yep, walking out. He was like, all right,
38:34
Speaker 3: I'm gonna He's like, you're you're you're the expert on this,
38:38
Speaker 3: and I was like, sadly enough, you have to be,
38:41
Speaker 3: because we I've gone through this so many times where
38:45
Speaker 3: it is such a rare disease that there isn't a
38:48
Speaker 3: lot of people that know about it and honestly that
38:51
Speaker 3: know how to treat it. And it just gave me
38:54
Speaker 3: another sense of reassurance that I did the right thing
38:58
Speaker 3: for when I even did her her post pull through
39:00
Speaker 3: and just going to a co directal surgeon. I want
39:03
Speaker 3: someone who knows what they're doing and knows that hey,
39:07
Speaker 3: and has done several cases, and so because of that,
39:10
Speaker 3: it's just it's it's really frustrating. And so we're we're
39:14
Speaker 3: actually planning to go to Disney in a few weeks
39:16
Speaker 3: and I'm already like, Okay, I'm not going to a hospital.
39:20
Speaker 3: I'm gonna have her antibiotics on hand. I'm gonna have
39:23
Speaker 3: everything that I need to irrigate. I pretty pretty much
39:27
Speaker 3: know now. Sadly, I've become an easy expert on this
39:31
Speaker 3: and so I know exactly what to do. When she
39:33
Speaker 3: has it. Our nurse practitioner is just wonderful. She has
39:38
Speaker 3: helped us keep us out of the hospital so many
39:41
Speaker 3: times and just treat easy at home before it gets
39:45
Speaker 3: to the point where she gets lethargic, where she starts
39:47
Speaker 3: projectile vomiting, where she's just a different kid, and and
39:51
Speaker 3: so we can we can catch it really early on,
39:54
Speaker 3: immediately started on antibotics and irrigating her and kind of
39:57
Speaker 3: get her back on that diet. It's hard to just
40:01
Speaker 3: there was a time where I was just feeding her
40:02
Speaker 3: rice and chicken and just plain diet. She's a toddler,
40:05
Speaker 3: so she got over that very quickly, and so I'm
40:11
Speaker 3: just as a mom, I'm like, no, no, no, you take
40:13
Speaker 3: certain things and now I'm just kind of getting relaxed,
40:15
Speaker 3: like you're also a child, so I want you to
40:18
Speaker 3: enjoy to a certain extent some of the things that
40:21
Speaker 3: you like. She loves sugar nuggets, loves fries, So just
40:26
Speaker 3: trying to get her to eat but also kind of
40:31
Speaker 3: slow down is kind of a struggle. But again, we
40:35
Speaker 3: know what to do and what to look out for
40:37
Speaker 3: whenever we have trips and things planned. So I'm I'm
40:41
Speaker 3: ready this time. I wasn't ready that time, but I'm ready.
40:44
Speaker 2: This time excellent. And speaking on the future, you see
40:49
Speaker 2: you've got trips planned and etc. What do you sort
40:53
Speaker 2: of see for the future and sort of hope and expect.
40:56
Speaker 3: I guess, you know, only God knows the future. But
41:01
Speaker 3: what my hope and prayer is, and I one thousand
41:06
Speaker 3: percent believe it, is that you know, one day this
41:10
Speaker 3: will all be a thing of the past. We will
41:12
Speaker 3: have to irrigate her anymore. Ec won't be a thing.
41:15
Speaker 3: She can eat fairly anything that she wants wants, and
41:21
Speaker 3: that it doesn't affect her, that her small intestine just
41:26
Speaker 3: gets to acting like a large intestine and just it
41:31
Speaker 3: just that just doesn't affect her. I just don't want
41:32
Speaker 3: it to be where she has limitations on things that
41:37
Speaker 3: she eats. I don't want this to affect her mental health.
41:42
Speaker 3: I don't want her to feel like I'm born different.
41:45
Speaker 3: And so my prayer and hope is that as she
41:50
Speaker 3: grows older, it's just this is all going to be
41:52
Speaker 3: a thing of the past, and to be honest, that
41:54
Speaker 3: she won't even remember because she's so young. So that's
41:57
Speaker 3: my hope, that's my prayer, and I have faith and
41:59
Speaker 3: I know that it'll.
42:01
Speaker 2: Happen, absolutely, no, absolutely, and I wish all of you
42:06
Speaker 2: the very very best with that that she grows up,
42:10
Speaker 2: has a very happy, healthy life. Obviously got a lot
42:14
Speaker 2: of support around her, which is which is fantastic. So
42:18
Speaker 2: thank you, thank you ever so much for coming on
42:21
Speaker 2: and this has been a pleasure. But yes, wishing you
42:24
Speaker 2: all all the very very best for the future.
42:26
Speaker 3: Thank you, Tom, Thank you so much. It was an
42:29
Speaker 3: absolute honor and pleasure to be on the show. Thank
42:31
Speaker 3: you for doing what you're doing and bring awareness to
42:34
Speaker 3: Hirshbrungs and do this podcast that this is amazing. You're
42:38
Speaker 3: over there in the UK while we're here in Texas,
42:40
Speaker 3: and this is amazing that we were able to connect
42:42
Speaker 3: and do this. So I appreciate you as well.
42:45
Speaker 1: You're very welcome, all right, Thank you for listening and
42:51
Speaker 1: being part of this growing community. If you have enjoyed
42:54
Speaker 1: the episode, don't forget to subscribe, leave a review and
42:57
Speaker 1: share it with someone who might need it. You can
43:00
Speaker 1: connect with us on social media via Instagram, Facebook, and
43:04
Speaker 1: TikTok under the name Tom's Hirsprung's Podcast. See you next week.