Latest / Tom's Hirschsprung's Podcast / Episode 115 - With Hana Walker

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Episode 115 - With Hana Walker · Tom's Hirschsprung's Podcast

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  Speaker 1: You are listening to Tom's Hirshprung's Podcast, a space where
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  Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
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  Speaker 1: live with it, care for someone who has it, or
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  Speaker 1: just want to understand more, this podcast is for you.
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  Speaker 1: Each episode, we will explore real stories and honest conversations
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  Speaker 1: about a condition that often goes unheard. Thank you for
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  Speaker 1: tuning in. Hello, and welcome to episode one hundred and
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  Speaker 1: fifteen of Tom's Hirshprungs Podcast. I joined this evening by Hannah,
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  Speaker 1: and we have a fascinating story to tell. Welcome to
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  Speaker 1: the podcast, Hannah, Thank you.
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  Speaker 2: I'm so excited to be here and share my stories.
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  Speaker 2: Thank you.
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  Speaker 1: It's it's a fascinating one and obviously I'll let you
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  Speaker 1: let you tell it and get into it, but it's
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  Speaker 1: it's story. I think people will really it's possibly can't
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  Speaker 1: even believe it's that sort of it's that incredible. I
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  Speaker 1: guess incredible might be the word. But but yeah, I
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  Speaker 1: guess it's up to you kind of where you want
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  Speaker 1: to start from. But over to you. Thank you. Yeah.
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  Speaker 2: So I feel like I have some notes because I
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  Speaker 2: wanted to try and keep everything in chronological order because
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  Speaker 2: I feel like I can get all over the place
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  Speaker 2: really easily. But I'm twenty four. I have always since
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  Speaker 2: I was young. I always had these like chronic stomach
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  Speaker 2: issues from the time I was young. I think my
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  Speaker 2: earliest memory was maybe age four, and I mean up
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  Speaker 2: and like from newborn to age four, I don't really
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  Speaker 2: have any memories. But talking to my parents, they said
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  Speaker 2: I was pretty normal. I was born in a birthing center,
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  Speaker 2: so I wasn't born in a hospital, so they didn't
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  Speaker 2: have nurses and doctors coming to check on me and
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  Speaker 2: be like did she did she poop? Like all that,
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  Speaker 2: So they I was born at three pm in the
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  Speaker 2: birthing center and my parents were home by six pm,
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  Speaker 2: so they didn't really they were like, yeah, she's good.
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  Speaker 2: Good the ghost. So I went home and my mom
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  Speaker 2: said the midwife came maybe a couple days later and
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  Speaker 2: was like how's she doing? Like how is she looking?
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  Speaker 2: How are you feeling?
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  Speaker 1: All that?
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  Speaker 2: So I actually did pass school as a new born.
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  Speaker 2: I don't know how much, but I think I'll get
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  Speaker 2: into this later, but I think that's why my doctors
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  Speaker 2: were like, definitely can't be hershrungs like you passed the
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  Speaker 2: stool when you were a baby, Like that's one of
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  Speaker 2: the major things they look for. So I think since
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  Speaker 2: I did pass the school, they were like, hey, she's good.
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  Speaker 2: So I I don't know. Growing up, I always had
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  Speaker 2: like chronic pain and like just this constant bloating and fatigue.
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  Speaker 2: I was always tired. I was very active as a kid,
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  Speaker 2: but I remember like coming home from school and saying,
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  Speaker 2: I need to take a nap. I'm exhausted, and my
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  Speaker 2: mom's like, you're seven, Like why are you so tired?
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  Speaker 2: And I just I have a memory of coming home
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  Speaker 2: from school and my stomach was hurting really really badly,
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  Speaker 2: and I was I like was leaned over the couch
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  Speaker 2: and I was kind of like rocking back and forth
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  Speaker 2: like a laboring mom. And my mom delivers babies, and
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  Speaker 2: she's like, you look like you're like a laboring mom.
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  Speaker 2: And my doctors were saying, like maybe that's her way
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  Speaker 2: of trying to like get things moving because I was
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  Speaker 2: so like constipated and I had so much backed up
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  Speaker 2: in there that like that movement kind of helped me
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  Speaker 2: like be able to pass a little bit of stool.
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  Speaker 2: But I from a young age, like I was on laxatives.
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  Speaker 2: I was taking me relax like twice a day. My
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  Speaker 2: doctors were like, I don't know, like it's definitely not hershprungs,
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  Speaker 2: like that was ruled out. When I was a kid,
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  Speaker 2: I had a workup done it Children's hospital. I think
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  Speaker 2: I was about eight years old, and they did some testing.
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  Speaker 2: I don't really remember what it was, but I think
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  Speaker 2: they did like two procedures and they were like, it's
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  Speaker 2: definitely not hersprungs. And they were at Children's hospital, so
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  Speaker 2: I think kind of specialized in that. I'm not too sure,
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  Speaker 2: but they were like, it's not that, so let's just
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  Speaker 2: keep her on like the same laxative regimen. And nothing
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  Speaker 2: was working. I remember like I would just always it
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  Speaker 2: would be coming out the other end, like I would
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  Speaker 2: be sick, like throwing up, but it wasn't working down there.
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  Speaker 2: So as a kid, obviously I don't want to be
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  Speaker 2: drinking that stuff. I don't want to be taking pills
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  Speaker 2: at like nine years old, so I would hide the pills.
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  Speaker 2: I would pretend to drink my medicine. And my parents
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  Speaker 2: and I had the like a really kind of interesting
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  Speaker 2: relationship growing up because they were like, we want to
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  Speaker 2: help you, and we want to make you feel better.
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  Speaker 2: But I was like, the medicine's not working and like
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  Speaker 2: no one's listening. So I went to the same pediatrician
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  Speaker 2: until I was like eighteen, and then I started seeing
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  Speaker 2: a new doctor at a new hospital and I got
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  Speaker 2: a GI specialist I think when I was like nineteen
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  Speaker 2: or twenty, and same testing, like let's do a colonoscopy
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  Speaker 2: and endoscopy, like all of these things, and they were
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  Speaker 2: like the findings are normal. Like they'd show me the
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  Speaker 2: report and be like everything's normal, and it's not this,
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  Speaker 2: it's not that. So I think it was really frustrating,
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  Speaker 2: especially as I got older, because I was like, obviously,
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  Speaker 2: if I could have this not happen, I would want that,
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  Speaker 2: Like I don't want to be in chronic pain. I'll
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  Speaker 2: try all these medications. But I think constantly doing that
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  Speaker 2: was just doing like more damage to my body in
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  Speaker 2: the end, because I was like taking all of these
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  Speaker 2: medications and none of it was working. So it was
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  Speaker 2: kind of just this cycle that I was stuck in.
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  Speaker 2: And I when I was about twenty, I was out
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  Speaker 2: with my friends and I had to go to the
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  Speaker 2: bathroom but I couldn't pee. I couldn't urinate. So I
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  Speaker 2: was really worried because I was like, this is really weird.
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  Speaker 2: Like obviously I'm consummating all the time, like I can't
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  Speaker 2: like pass any stool, but I was like, why can't
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  Speaker 2: I pee? That's really weird. So I was like sitting
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  Speaker 2: there for ten minutes, nothing was coming out. I was
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  Speaker 2: so in pain. I like my belly was really distended.
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  Speaker 2: I was super uncomfortable. I went home, ended up going
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  Speaker 2: to the er and they gave me a catheter and
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  Speaker 2: drained out like two leaders of urine. So I think
• 6:56
  Speaker 2: within the span of maybe like six hours, I accumulated
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  Speaker 2: that much and then it wasn't coming out. So they
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  Speaker 2: were super worried, but they ended up sending me home
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  Speaker 2: with the catheter in. I came back a couple of
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  Speaker 2: days later had it removed, and I mean, it's an er.
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  Speaker 2: So I told them about like my chronic constipation, and
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  Speaker 2: they did an ultrasound and they were like, we can
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  Speaker 2: see that all of this stool is really compacted and
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  Speaker 2: it's kind of weighing on your your like other organs,
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  Speaker 2: and that's why you weren't able to pee. So that
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  Speaker 2: was really scary. That was the first time that that
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  Speaker 2: happened to me, and I think it was kind of
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  Speaker 2: a realization of like this is getting really bad and
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  Speaker 2: affecting me in a way but had never affected me before.
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  Speaker 2: So that happened again like six months later, and then
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  Speaker 2: like a couple months later, and I was in the
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  Speaker 2: urgent care and emergency room a lot for not being
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  Speaker 2: able to urinate. So I ended up switching insurance when
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  Speaker 2: I was about almost almost twenty two, I think, and
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  Speaker 2: I saw a new GI doctor and then she was like,
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  Speaker 2: I'm out of options. I don't know what to do,
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  Speaker 2: Like we've done all the testing, we've done, like all
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  Speaker 2: the medications, like we don't know what it is. And
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  Speaker 2: she kind of just like sent me on my merry way,
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  Speaker 2: and I was crying to my mom and I'm like,
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  Speaker 2: this is so frustrating, Like I became such an advocate
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  Speaker 2: for myself, but I feel like I don't know. I
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  Speaker 2: felt like I wasn't being heard and kind of just
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  Speaker 2: like okay, like you'll figure it out, like it's nothing
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  Speaker 2: like too serious, even though I feel like it was
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  Speaker 2: really serious. So one thing I will like jump back
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  Speaker 2: to since I was a kid, I always I was
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  Speaker 2: chronically constipated, and I had something called enco paresis, which
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  Speaker 2: is like the leaking around the stool and the colons.
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  Speaker 2: So as a kid and growing up as like a
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  Speaker 2: teenager and stuff experiencing that and always having like anxiety,
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  Speaker 2: and it came to like the bathroom where like anything
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  Speaker 2: like that. Like I feel like my childhood was really
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  Speaker 2: different because I wasn't going to sleepovers, I wasn't going
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  Speaker 2: to the pool. I wasn't like, I didn't like going.
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  Speaker 1: To the beach.
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  Speaker 2: I didn't I was really embarrassed. And I think it
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  Speaker 2: kind of goes back to like my parents and I
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  Speaker 2: relationship where they were like why are you doing this?
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  Speaker 2: And I'm like, I'm a teenager, Like if I could
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  Speaker 2: help it, of course I would. It's like so embarrassing
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  Speaker 2: and really hard. So that was like my main concern,
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  Speaker 2: especially growing up in my twenties. I was like, I
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  Speaker 2: can't be living like this, Like my quality of life
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  Speaker 2: was just awful. So when I met with the GI doctor,
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  Speaker 2: I was explaining to her all of my concerns. I
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  Speaker 2: was like, I honestly will try anything that I haven't
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  Speaker 2: tried already, and she was just like, I don't know
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  Speaker 2: what else to do. So I met with a colorectal
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  Speaker 2: surgeon and it was my first time ever meeting with
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  Speaker 2: the one, so I didn't really know what to expect.
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  Speaker 2: I knew a surgery was probably in my future, I
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  Speaker 2: just didn't know what kind. And met with him. He
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  Speaker 2: did like just a normal like work up exam, and
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  Speaker 2: he's like, Okay, obviously they've ruled out X y Z,
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  Speaker 2: let's talk about the other options. And the first thing
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  Speaker 2: he brought up to me was the awest tome bag
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  Speaker 2: and he's like, you know, if you've tried everything up
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  Speaker 2: to this point, nothing's worked like I could do this
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  Speaker 2: for you, like it's worked for like a lot of
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  Speaker 2: my other patients that experience symptoms similar to yours. And
• 10:39
  Speaker 2: I was crying. And I think I was crying because
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  Speaker 2: I was nervous, of course, but I think it was
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  Speaker 2: like a relief that maybe something could finally work for me.
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  Speaker 2: So that was in May of twenty twenty four, and
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  Speaker 2: my surgery was scheduled for October. He was super busy
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  Speaker 2: and backed up with the surgeries and everything like that,
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  Speaker 2: so he was like, if you can get through these
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  Speaker 2: next couple months, which you know, living my whole life
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  Speaker 2: and having to go a couple more months wasn't a huge.
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  Speaker 1: Deal, but.
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  Speaker 2: Yeah, that time came. I went to the hospital. They
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  Speaker 2: admitted me like a couple days prior. They had me
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  Speaker 2: try and drink go lightly. They had me try and
• 11:20
  Speaker 2: drink a bunch of you know, laxative maxge tray all
• 11:23
  Speaker 2: those fun things, and nothing was working. So he's like, Okay,
• 11:26
  Speaker 2: we tried it. That was the last time we'll ever
• 11:29
  Speaker 2: do that. And then I had my awesome surgery on
• 11:33
  Speaker 2: October tenth of twenty twenty four, and yeah, so it's
• 11:38
  Speaker 2: been over a year now, but it's it's crazy. I
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  Speaker 2: feel like that I never thought that that would be
• 11:45
  Speaker 2: the thing that fixed me. But I woke up and
• 11:49
  Speaker 2: obviously looking at that bag on my stomach, it was
• 11:53
  Speaker 2: really hard. I feel like I never I never thought
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  Speaker 2: it would have come to something like that. But I'm
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  Speaker 2: very grateful and I've been living the last like year
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  Speaker 2: and couple months pain free for the most part. I've
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  Speaker 2: only been to the doctor like a couple times since
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  Speaker 2: then for like checkups and everything, but the bloating and
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  Speaker 2: the fatigue and nausea and all that is gone. I'm
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  Speaker 2: not on any medications. I can live a pretty normal
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  Speaker 2: life now, So it's really crazy just thinking about where
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  Speaker 2: I came from and where I am now and how
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  Speaker 2: long it took, of course, but yeah, my colorectal surgeon
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  Speaker 2: was the one that diagnosed me with hershprungs, and yeah,
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  Speaker 2: so I think it was it was relieving to get
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  Speaker 2: an answer and kind of like, this is what's wrong,
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  Speaker 2: and you know, like even though it took us up
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  Speaker 2: until this point, this is what you have and this
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  Speaker 2: is how we can help you. And there, Yeah, I
• 12:53
  Speaker 2: still don't know how I made it this far. He
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  Speaker 2: doesn't really know either, but yeah, yeah, I guess that's
• 13:01
  Speaker 2: kind of all of it in a nutshell. But I've
• 13:03
  Speaker 2: been living really really like my quality of life has
• 13:08
  Speaker 2: improved a lot since getting my AST. Me so super
• 13:12
  Speaker 2: grateful for that.
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  Speaker 1: But yeah, wow, I mean that sounds like enormous amount
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  Speaker 1: to go through for well over twenty years. And I
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  Speaker 1: think one important part you made at the start was
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  Speaker 1: that you passed the mconium, which I know and you
• 13:31
  Speaker 1: know as well, is it's something where the symptom of
• 13:37
  Speaker 1: hirshprungs is obviously not passing them maconium. But I think
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  Speaker 1: it's also really important to note that it's not the
• 13:43
  Speaker 1: be all end all of herd brumps because you passed
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  Speaker 1: the mcconium. I passed mcconium as well, so it's not
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  Speaker 1: it's you can do that and still have hirshprungs. So
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  Speaker 1: when was because you mentioned the hirshprungs was constantly ruled
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  Speaker 1: out throughout your childhood. It's like, well, you can't have it,
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  Speaker 1: you can't have it, you can't have it. When was
• 14:05
  Speaker 1: sort of the first time it was brought up and
• 14:09
  Speaker 1: then kind of dismissed. Was that really early on or
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  Speaker 1: was it just a constant throughout?
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  Speaker 2: I would say it was kind of early on. I think.
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  Speaker 2: I think I was at the doctor all the time
• 14:21
  Speaker 2: as a young kid and like a toddler and growing
• 14:24
  Speaker 2: up and stuff. But my earliest memory of like age
• 14:27
  Speaker 2: seven or eight, when I went to Children's Hospital and
• 14:30
  Speaker 2: I had that whole work up done there and they
• 14:33
  Speaker 2: did a bunch of testing. I think that was the
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  Speaker 2: first time since you know, probably like my doctor in
• 14:38
  Speaker 2: the very beginning when I was just born, said no,
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  Speaker 2: it's not hrshprungs. We heard it again at Children's and
• 14:44
  Speaker 2: they were like, it can't be hershrungs, like if she
• 14:47
  Speaker 2: passed the stool as a baby, and you know she's
• 14:51
  Speaker 2: going like she's passing stool still, like it can't be hershruns.
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  Speaker 2: But I was even as a kid, only pooping like
• 15:01
  Speaker 2: once every week maybe or like every as I got older,
• 15:05
  Speaker 2: it got really bad. I think I was going like
• 15:08
  Speaker 2: once every almost two weeks, and it was painful and
• 15:12
  Speaker 2: not fun.
• 15:14
  Speaker 1: Doesn't sound like a lot of fun at all.
• 15:16
  Speaker 2: Yeah, yeah, that's And.
• 15:20
  Speaker 1: Obviously you know, and I know that you are a
• 15:24
  Speaker 1: huge advocate for you know, speak up and oustomes and
• 15:30
  Speaker 1: for if something doesn't feel right then saying that it
• 15:34
  Speaker 1: doesn't feel right. And obviously from a young age you
• 15:38
  Speaker 1: knew you knew that, so that something wasn't right. You
• 15:41
  Speaker 1: know you're only going once every week and a half,
• 15:44
  Speaker 1: ten days, two weeks, whatever it is. Yeah, you know
• 15:47
  Speaker 1: that something's not right. That must be so frustrating to
• 15:50
  Speaker 1: then be told by different specialists that you know, it's, oh, well,
• 15:59
  Speaker 1: you know, there's nothing we can do. Was there a
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  Speaker 1: point of view that thought, well, is this just me?
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  Speaker 1: Is this just like yeah, how my life is going
• 16:07
  Speaker 1: to be forever?
• 16:08
  Speaker 2: Yeah? One hundred percent. I think I got to a
• 16:12
  Speaker 2: time in my life where I think I was like
• 16:14
  Speaker 2: a teenager. I was probably in like middle school, and
• 16:17
  Speaker 2: I was like, Okay, obviously, if this were happening when
• 16:20
  Speaker 2: I was a kid, I would have probably been better
• 16:23
  Speaker 2: by now. It probably would have just fixed itself, or
• 16:26
  Speaker 2: if something was seriously wrong, I would have been told so.
• 16:29
  Speaker 2: And I kind of just was like is it in
• 16:32
  Speaker 2: my head? Like am I making it worse? Like am
• 16:35
  Speaker 2: I doing this on purpose? And that was again a
• 16:39
  Speaker 2: huge thing with my parents. They were like, you're a teenager,
• 16:43
  Speaker 2: like get it together. We potty trained you or tried
• 16:45
  Speaker 2: to potty train you, and obviously it didn't work. And
• 16:48
  Speaker 2: I don't blame them. I think it's it's really hard
• 16:51
  Speaker 2: with hirsh Bruns, I think too, because but really just
• 16:55
  Speaker 2: any any like illness. I don't really know, but like
• 16:59
  Speaker 2: I think it was really hard. There was a lot
• 17:01
  Speaker 2: of back and forth of like, Okay, if you can
• 17:03
  Speaker 2: fix this, like fix it, you can walk to the bathroom,
• 17:06
  Speaker 2: you can go and not have accidents and not leak
• 17:10
  Speaker 2: in like your underwear and all this stuff. But I
• 17:13
  Speaker 2: was I feel like I was constantly like no, like
• 17:16
  Speaker 2: it's something more, something that's out of my control. And
• 17:20
  Speaker 2: I was told to try like a number of things,
• 17:23
  Speaker 2: like change your diet, try like maybe it's stress, maybe
• 17:27
  Speaker 2: it's anxiety. I was even in therapy from a really
• 17:30
  Speaker 2: young age, and they thought that could fix it. But
• 17:33
  Speaker 2: obviously it was something way deeper than that.
• 17:36
  Speaker 1: Yeah. Yeah, and again that's come back to that word again, frustration.
• 17:41
  Speaker 1: That's got to be when you know that something is
• 17:44
  Speaker 1: physically the matter, you know that something is physically not right,
• 17:49
  Speaker 1: but you're being told it's it's an emotional issue, it's
• 17:53
  Speaker 1: a mental issue. It's this, that and the other. I
• 17:56
  Speaker 1: can't and it's almost I don't know about the gas
• 17:59
  Speaker 1: lighting is the right word. Possibly it is the right word.
• 18:03
  Speaker 1: It's that No, actually yeah, it is the right word.
• 18:07
  Speaker 1: But it being told constantly that you're the one that's wrong,
• 18:13
  Speaker 1: and you know, you know in your heart of hearts
• 18:16
  Speaker 1: that it's not. And I just to have to go through,
• 18:20
  Speaker 1: you know, not just childhood of all of that. And
• 18:24
  Speaker 1: I understand where people are coming from when they say, well,
• 18:26
  Speaker 1: if it was Hirshprung's, it would have been sorted. But
• 18:29
  Speaker 1: you are a prime case where people can be diagnosed
• 18:32
  Speaker 1: late on it has it has happened, you know, several times.
• 18:36
  Speaker 1: I've heard of people who've been diagnosed in their late
• 18:39
  Speaker 1: teens early twenties, and it's and I we were talking
• 18:44
  Speaker 1: a little bit off air that I just I find
• 18:49
  Speaker 1: incredible how you got through that time. You know, was
• 18:52
  Speaker 1: there anything that you did that kind of alleviated any
• 18:58
  Speaker 1: of the chronic pain or anything that you that you know,
• 19:01
  Speaker 1: you had sort of good days and bad days, or
• 19:03
  Speaker 1: was it just every day was just a bad day.
• 19:07
  Speaker 2: I would say I I did have days that were
• 19:11
  Speaker 2: a little easier and where it didn't seem as bad.
• 19:14
  Speaker 2: I think the prime time in my life where I
• 19:17
  Speaker 2: kind of felt it getting better and kind of had
• 19:19
  Speaker 2: that hope that maybe this is going to be fixed
• 19:22
  Speaker 2: was around high school, so I was like fifteen to
• 19:25
  Speaker 2: maybe like seventeen or eighteen. I was super active. I
• 19:29
  Speaker 2: was dancing. I was on the cheer team in high school.
• 19:32
  Speaker 2: And I think being super active and always moving around
• 19:36
  Speaker 2: kind of helped my body kind of be able to
• 19:40
  Speaker 2: alleviate some of that like constipation, because I was like
• 19:44
  Speaker 2: moving so much. I was drinking a lot of water,
• 19:46
  Speaker 2: I was eating semi healthy. I don't know, but I
• 19:49
  Speaker 2: think I was along with the medications that weren't working.
• 19:52
  Speaker 2: I think the combination of being healthy and active it
• 19:56
  Speaker 2: kind of helped my body move things along a little bit.
• 20:00
  Speaker 2: But for the most part, I mean, I have a
• 20:02
  Speaker 2: lot of bad days, but I think it just became
• 20:05
  Speaker 2: like that was my normal. Like I woke up every
• 20:08
  Speaker 2: morning with a stomach ache. I'd cry to my mom
• 20:10
  Speaker 2: and be like, please don't send me to school today,
• 20:12
  Speaker 2: and like I just don't feel good. And I think
• 20:16
  Speaker 2: it just I became accustomed to living like that, and
• 20:20
  Speaker 2: it was kind of like I'm comfortable being uncomfortable because
• 20:24
  Speaker 2: that was my normal. So it was just every day
• 20:27
  Speaker 2: was just this constant cycle of discomfort and pain. And
• 20:32
  Speaker 2: I think I kind of just was like, Okay, if
• 20:35
  Speaker 2: I'm gonna have a stomach ache, I'm gonna like eat
• 20:37
  Speaker 2: this ice cream, even though my stomach's already hurting, Like
• 20:39
  Speaker 2: it's gonna hurt anyway. It's gonna hurt when I wake up.
• 20:42
  Speaker 2: Like it was just this like this constant thing, so.
• 20:46
  Speaker 1: Well it's hurting anyway, I might as well just do whatever.
• 20:48
  Speaker 1: It's still gonna make it. Ye that that's it's Yeah,
• 20:55
  Speaker 1: it's interesting when you say your sort of you know,
• 20:58
  Speaker 1: new normal was just being in pain the whole time.
• 21:02
  Speaker 1: I mean, that's that's awful. You know. It's this idea that, oh, well,
• 21:08
  Speaker 1: I'm just going to be in pain all the time,
• 21:10
  Speaker 1: and that's sort of on that sliding scale of you know,
• 21:14
  Speaker 1: if you had your normal day, be everybody else's really
• 21:18
  Speaker 1: bad day, but to you, it's just a normal day.
• 21:21
  Speaker 1: And a good day is when you've probably been not
• 21:23
  Speaker 1: in no pain, but just in less pain, you know,
• 21:26
  Speaker 1: which is is just it's just absolutely awful. And but
• 21:32
  Speaker 1: I guess what was it like being sort of finally listened.
• 21:37
  Speaker 3: To it was.
• 21:41
  Speaker 2: I like, I find it hard to like find the
• 21:44
  Speaker 2: words because I feel like saying I'm grateful and like
• 21:47
  Speaker 2: saying it changed my life as such an understatement. I
• 21:50
  Speaker 2: feel like this doctor I like sat down with him
• 21:54
  Speaker 2: and my mom came with me to the appointment, and
• 21:56
  Speaker 2: he just sat there and like hit record on his
• 22:00
  Speaker 2: and was like, I'm gonna record all of this just
• 22:02
  Speaker 2: so I have it and I can go transcribe it
• 22:04
  Speaker 2: into my notes and so I don't miss anything. And
• 22:07
  Speaker 2: I was like, yeah, totally good. Like I don't know,
• 22:10
  Speaker 2: like I just I felt like I was like, Okay,
• 22:13
  Speaker 2: he's actually going to listen to everything I say, like
• 22:15
  Speaker 2: there will be like a written thing or printed out
• 22:18
  Speaker 2: thing with everything I've said. And I think it was
• 22:23
  Speaker 2: such a relief and I was so excited. I feel
• 22:28
  Speaker 2: like knowing I was getting the awes Tome bag was
• 22:32
  Speaker 2: was the harder part for me, of course, but I
• 22:36
  Speaker 2: was like, if this is it, and this can be
• 22:38
  Speaker 2: like my relief and help me live a more normal
• 22:42
  Speaker 2: life and lead me to be able to do the
• 22:46
  Speaker 2: things I want to do, Like why would I not
• 22:49
  Speaker 2: do this? So I think, yeah, I was super grateful,
• 22:52
  Speaker 2: super happy, and just I always had like a negative
• 22:59
  Speaker 2: like thought when I thought about like the doctor, the
• 23:02
  Speaker 2: hospital or anything like that, like I'm like, they don't listen,
• 23:05
  Speaker 2: they don't like want to help me, Like it's so frustrating.
• 23:09
  Speaker 2: And I definitely gave up when I was younger. I
• 23:11
  Speaker 2: feel like I was like, this is just how it's
• 23:13
  Speaker 2: gonna be. But I think meeting with that doctor when
• 23:16
  Speaker 2: I did, came at the perfect time and he was
• 23:19
  Speaker 2: just like I want to help you. I like, this
• 23:22
  Speaker 2: is what I do, this is why I do what
• 23:23
  Speaker 2: I do. So I'm super grateful and very blessed to
• 23:27
  Speaker 2: have met him and his team that helped.
• 23:30
  Speaker 1: Me absolutely But that makes perfect sense that your negative
• 23:35
  Speaker 1: thoughts around hospitals, and I think that's the same with
• 23:40
  Speaker 1: a lot of people, especially because it's not a happy place.
• 23:43
  Speaker 1: So certainly wasn't a happy place for many, many heady years, because,
• 23:47
  Speaker 1: as you've said, you go to whether it be children's
• 23:51
  Speaker 1: or whether it be a different hospital, and everyone either
• 23:55
  Speaker 1: says the same thing, or they haven't listened, or they're
• 23:59
  Speaker 1: just kind of been you know, just oh, world, take
• 24:03
  Speaker 1: this and you know, disappear around my sight type thing.
• 24:06
  Speaker 1: So naturally you're going to turn up to hospital appointments,
• 24:10
  Speaker 1: I presume going, oh, here we go again. Here's here's
• 24:13
  Speaker 1: another you know, I'm going to sit here, They're going
• 24:16
  Speaker 1: to tell me a bunch of things that I don't believe,
• 24:18
  Speaker 1: and then I'm going to disappear again, and then I'll
• 24:20
  Speaker 1: be back in a few weeks because my stomach will
• 24:22
  Speaker 1: hurting it. Yeah, but it's so that makes absolute sense
• 24:28
  Speaker 1: that that you had, you know, negative thoughts around that,
• 24:31
  Speaker 1: and and but so good that you found someone who certainly,
• 24:35
  Speaker 1: you know, look like he wanted to really help and
• 24:39
  Speaker 1: wanted to because being in pain the whole time is
• 24:43
  Speaker 1: not normal, you know. It's so I mean and I
• 24:49
  Speaker 1: guess you probably had the same thought. You know, am
• 24:51
  Speaker 1: I going mad here? Or am I just you know,
• 24:55
  Speaker 1: being in pain is not a normal thing. If the
• 24:57
  Speaker 1: body is in pain, the body is telling you something.
• 25:01
  Speaker 1: It's telling you that something somewhere isn't right, you know,
• 25:07
  Speaker 1: and and in the end there's going to be something
• 25:10
  Speaker 1: that's going to you know, fix that or medication or whatever.
• 25:14
  Speaker 1: So I guess it's yeah, I guess that was kind
• 25:17
  Speaker 1: of a relief that you sort of thought, actually being
• 25:19
  Speaker 1: paid all the time isn't normal. I don't have to be.
• 25:21
  Speaker 2: A bit something was wrong. Actually I knew it.
• 25:26
  Speaker 1: Yeah, yeah, but it's no, that's really good that you
• 25:31
  Speaker 1: found someone who kind of listened in the end. And
• 25:35
  Speaker 1: it's but I want to talk a little bit about
• 25:38
  Speaker 1: the ostome as well, because I know you're a really
• 25:40
  Speaker 1: really good advert for advocate. Advert advocate that's their advocates
• 25:45
  Speaker 1: the right word. Sorry, I'm struggling with words that a
• 25:51
  Speaker 1: really really good advocate for surgery. And obviously there are
• 25:56
  Speaker 1: people who have hirshbrungs and have ostomes, or they have
• 26:02
  Speaker 1: pace my owns, or they have various types of stomas,
• 26:06
  Speaker 1: and there are people who have no Stomas, such is
• 26:08
  Speaker 1: the way with Hirschbrungs. It's so it's so different for everybody.
• 26:12
  Speaker 1: But how have you kind of transitioned over the last
• 26:18
  Speaker 1: a couple of years or so since yea twenty twenty
• 26:23
  Speaker 1: four into having asked me, what's that transition been?
• 26:27
  Speaker 2: Like? I feel like really tough. I feel like I
• 26:33
  Speaker 2: only show the really good parts, like on my TikTok
• 26:37
  Speaker 2: and in the videos I make. I try to be
• 26:39
  Speaker 2: very positive because I think I just I try and
• 26:42
  Speaker 2: look at life in a very positive way. And I
• 26:44
  Speaker 2: feel like when I was told I was getting my
• 26:46
  Speaker 2: ass to me, I was again I think I said
• 26:49
  Speaker 2: this earlier crying. I was excited, but I was super
• 26:53
  Speaker 2: nervous for what that was going to look like for
• 26:54
  Speaker 2: me and being like a young woman too. I feel
• 26:58
  Speaker 2: like I had never really heard of like an awes
• 27:01
  Speaker 2: to me or like what that was, And if I
• 27:03
  Speaker 2: did hear of it, I was like, oh, like, I
• 27:05
  Speaker 2: think older people have that, Like I don't think younger
• 27:08
  Speaker 2: people have that. And I think right before my surgery,
• 27:12
  Speaker 2: I was going on Instagram and TikTok and looking it
• 27:14
  Speaker 2: up and I was finding people online like Paula the
• 27:18
  Speaker 2: girl that makes like the bag covers. And then Sarah
• 27:20
  Speaker 2: she's the model and I think she lives in Canada,
• 27:23
  Speaker 2: but I love I loved seeing Max. I was like, wow,
• 27:26
  Speaker 2: like they're young like me, and they're like totally rocking
• 27:30
  Speaker 2: it is. I'm like, it can't be like as bad
• 27:32
  Speaker 2: as what I'm thinking it'll be like. So getting my
• 27:36
  Speaker 2: awes to me and waking up that day and looking
• 27:39
  Speaker 2: at it for the first time, I think totally freaked
• 27:42
  Speaker 2: me out. But every day that went by, I think
• 27:45
  Speaker 2: was a little easier. I think it was an adjustment
• 27:48
  Speaker 2: learning how to change it and care for it and
• 27:51
  Speaker 2: make sure I was staying healthy. And then also just
• 27:56
  Speaker 2: like the mental aspect of it, like my body image
• 27:59
  Speaker 2: and you know, looking in the mirror and now I
• 28:01
  Speaker 2: like have a bag that's permanently attached to my body,
• 28:05
  Speaker 2: Like I never really see myself without it other than
• 28:08
  Speaker 2: you know, changing it and I look in the mirror,
• 28:11
  Speaker 2: and it's really hard some days because I'm like, like
• 28:14
  Speaker 2: there was a time when but back then I was
• 28:17
  Speaker 2: I was so sick. So it's like I don't even
• 28:18
  Speaker 2: want to go back to that because I feel like
• 28:21
  Speaker 2: I've adjusted to this life and living pain free and
• 28:25
  Speaker 2: having such like a different outlook on life now. I
• 28:28
  Speaker 2: feel like I'm just really grateful. So I think living
• 28:32
  Speaker 2: with an oustemia, I wouldn't trade it for anything. I
• 28:34
  Speaker 2: feel like it truly like saved my life and gave
• 28:37
  Speaker 2: me like brand new lease on life. I don't know,
• 28:40
  Speaker 2: so I think I have I have bad days, of course,
• 28:44
  Speaker 2: but I think majority of my days are really good
• 28:46
  Speaker 2: days now. And I'm total advocate for it because I
• 28:50
  Speaker 2: think it can really change your life.
• 28:53
  Speaker 1: Absolutely. I think that's brilliant. You mentioned a couple of
• 28:56
  Speaker 1: people there who who have osterlies or Austin bags, but
• 29:03
  Speaker 1: to a lot of their social media in a positive light,
• 29:07
  Speaker 1: which I think is brilliant because I think it's so
• 29:11
  Speaker 1: so easy, especially with chronic illness, to be negative, to say,
• 29:14
  Speaker 1: oh this hurts, and that hurts, and you know and
• 29:17
  Speaker 1: and and that's okay to say, you know, to be
• 29:19
  Speaker 1: sort of upfront and honest, like we happen for the
• 29:21
  Speaker 1: last half an hour and say, look, there are times
• 29:24
  Speaker 1: when things that you know, when things are for But
• 29:28
  Speaker 1: I do love the way that you know, you are
• 29:30
  Speaker 1: very positive about it. And it's whether it's a lot
• 29:36
  Speaker 1: more common than it was maybe ten years ago or
• 29:39
  Speaker 1: so or whether we just see it more because you
• 29:43
  Speaker 1: will be your might be you follow a lot of
• 29:45
  Speaker 1: people with stomach illnesses and ostermies, And whether we just
• 29:49
  Speaker 1: see it more because of social media, I don't know,
• 29:53
  Speaker 1: but there certainly seems to be a lot of people
• 29:57
  Speaker 1: who who have domes of various kinds, and I think
• 30:03
  Speaker 1: yourself included, have become such great advocates and real inspirations
• 30:09
  Speaker 1: for people, because again, it's one of those things, like
• 30:15
  Speaker 1: anything in life, whether it be a sport or whether
• 30:17
  Speaker 1: it be a medical condition, if you see somebody, people
• 30:22
  Speaker 1: can tell you all you like that this will be
• 30:24
  Speaker 1: like this, and this will be like that. But actually,
• 30:25
  Speaker 1: if you see someone like yourself doing really well with
• 30:30
  Speaker 1: an osterby, I guess that makes a lot more difference
• 30:33
  Speaker 1: than someone telling.
• 30:34
  Speaker 2: You totally yeah that is yeah, I think yeah. I
• 30:40
  Speaker 2: don't know. Seeing it and like seeing people post about it,
• 30:43
  Speaker 2: I was like, Okay, they're living like normal lives. They're
• 30:47
  Speaker 2: going out, they're going to the beach, they're traveling, they're
• 30:50
  Speaker 2: you know, playing sports. I don't know, so I think
• 30:52
  Speaker 2: it was it was really nice. Seeing all that kind
• 30:55
  Speaker 2: of gave me like peace of mind and made me
• 30:58
  Speaker 2: a little less scared.
• 31:01
  Speaker 1: I guess, yeah, yeah, because again I can imagine it's
• 31:06
  Speaker 1: especially if you haven't had because again with with hirshprung,
• 31:09
  Speaker 1: some people have stoma and then they might have it reversed.
• 31:13
  Speaker 1: But obviously you weren't diagnosed at the tipe where everyone
• 31:17
  Speaker 1: else is usually diagnosed. So having so you hadn't had
• 31:22
  Speaker 1: the stona before or and so then see having a
• 31:26
  Speaker 1: stona then kind of yeah, it becomes a huge, huge
• 31:32
  Speaker 1: change in life. But what kind of things, you know,
• 31:37
  Speaker 1: are you able to go out more now? And this
• 31:40
  Speaker 1: that the other sort of hours sort of life changed,
• 31:43
  Speaker 1: I guess socially.
• 31:45
  Speaker 2: Yeah, I feel like in the beginning it took me
• 31:48
  Speaker 2: a couple months to kind of get out and start
• 31:51
  Speaker 2: seeing friends again and doing what I love to do.
• 31:55
  Speaker 2: I used to go line dancing all the time. I
• 31:58
  Speaker 2: still kind of do, but I wasn't going as often
• 32:02
  Speaker 2: back then because I was healing and all that. But
• 32:04
  Speaker 2: getting back into that and hanging out with friends, and
• 32:07
  Speaker 2: you know, it took me a while to like go
• 32:10
  Speaker 2: to the beach for the first time with it, or
• 32:12
  Speaker 2: go swimming with it, or even like take a shower
• 32:15
  Speaker 2: with it. Like I don't know, I feel like there
• 32:17
  Speaker 2: were a lot of things where I was really nervous
• 32:20
  Speaker 2: to but I was able to like tell my friends.
• 32:23
  Speaker 2: And of course it's kind of an awkward topic because
• 32:26
  Speaker 2: I feel like, you know, you don't really understand unless
• 32:30
  Speaker 2: you're going through it. But I think I have such
• 32:34
  Speaker 2: a great support system that really can you know, empathize
• 32:38
  Speaker 2: and understand to an extent how it affects me and
• 32:43
  Speaker 2: all that. But my parents have been great. I have
• 32:47
  Speaker 2: two brothers that have been super supportive about it as well.
• 32:50
  Speaker 2: I met my boyfriend maybe like six months after my surgery,
• 32:55
  Speaker 2: so meeting him and telling him about it was really
• 32:58
  Speaker 2: nerve wracking, but he has some knowledge of what it
• 33:02
  Speaker 2: was and kind of just sharing my story. I think
• 33:06
  Speaker 2: he was super understanding and super supportive about it. So
• 33:11
  Speaker 2: although I was really nervous, I think telling him and
• 33:14
  Speaker 2: telling friends and even family and just describing what it
• 33:18
  Speaker 2: is and how it affects me, I think that was
• 33:21
  Speaker 2: the scariest part. But I did that. I'm able to travel.
• 33:24
  Speaker 2: I went on a cruise, I went on a plane.
• 33:27
  Speaker 2: I like, I've been able to do a lot of stuff,
• 33:29
  Speaker 2: and so I think although it affects me to an extent,
• 33:33
  Speaker 2: I think I can like the pros significantly outweigh the cons,
• 33:37
  Speaker 2: and even then with the cons, I'm like, what's so
• 33:39
  Speaker 2: bad about it? Like I have to change it every
• 33:42
  Speaker 2: like a couple of days. But that's ten minutes and
• 33:44
  Speaker 2: then I'm good in all my way.
• 33:46
  Speaker 1: So yeah, that's brilliant. Well, I guess ten minutes is
• 33:50
  Speaker 1: a lot better than being twenty four hours chrodic tide
• 33:54
  Speaker 1: if you do.
• 33:55
  Speaker 2: We do the bat line.
• 33:57
  Speaker 1: Yeah, it's it's it doesn't sound you know, it doesn't
• 34:00
  Speaker 1: sound so much of a much of a chure. But yeah,
• 34:04
  Speaker 1: that's brilliant though, that you have such an amazing support
• 34:07
  Speaker 1: network and a support system. And like you said, I
• 34:12
  Speaker 1: guess it is, you know, pretty nerve wracking when you
• 34:15
  Speaker 1: tell family members and partners because you think, you know,
• 34:19
  Speaker 1: will they understand, will they you know, will they you know,
• 34:24
  Speaker 1: get what I'm going through or why I have this
• 34:26
  Speaker 1: or you know whatever. But I guess when you tell
• 34:31
  Speaker 1: people that, I guess some people reacted in different ways.
• 34:34
  Speaker 1: But it's so good to hear that they were so supportive.
• 34:38
  Speaker 1: Did they want to kind of know more about it
• 34:41
  Speaker 1: or was it just kind of oh okay, cool and
• 34:43
  Speaker 1: move on. Yeah?
• 34:44
  Speaker 2: Yeah, I think with my parents, my mom's and nurse,
• 34:48
  Speaker 2: like I said earlier, so she delivers babies, so it's
• 34:52
  Speaker 2: different because her specialty is not like GI stuff, but
• 34:56
  Speaker 2: she would help me change it. And my nurse was
• 35:00
  Speaker 2: come and help me do like bad changes in the beginning,
• 35:02
  Speaker 2: and my mom was super involved, saying with my dad,
• 35:05
  Speaker 2: he was like, I think a little freaked out via
• 35:08
  Speaker 2: at first, understandably so I mean I couldn't even look
• 35:11
  Speaker 2: at it. I think for a couple of weeks I
• 35:13
  Speaker 2: was so freaked out by it. But yeah, my parents
• 35:17
  Speaker 2: have been great. My brothers are like, you know, like
• 35:20
  Speaker 2: we don't judge you. It is what it is, Like
• 35:22
  Speaker 2: you're living such a better life now, so it's like
• 35:25
  Speaker 2: so happy for you.
• 35:27
  Speaker 1: Yeah, that's brilliant. And and your boyfriend the same as
• 35:30
  Speaker 1: it just got a you know just yeah, was he
• 35:35
  Speaker 1: just the same as everyone else?
• 35:37
  Speaker 2: Well he yeah, he's been he's been great. He he's
• 35:40
  Speaker 2: super understanding. I think I like talk about it and
• 35:45
  Speaker 2: I'm more like, like I don't know, like self conscious
• 35:48
  Speaker 2: of it than he is. Like he's like it's part
• 35:50
  Speaker 2: of you, but it's not like completely who you are,
• 35:53
  Speaker 2: and like it doesn't change how I feel about you
• 35:56
  Speaker 2: or change, like you know it like it's there, and
• 36:01
  Speaker 2: like I'm so glad it may like helped you feel
• 36:03
  Speaker 2: better and you know, has led us to be able
• 36:06
  Speaker 2: to like do all these things like travel and and
• 36:09
  Speaker 2: do all those fun things.
• 36:11
  Speaker 1: So it's brilliant. That's amazing. No, that's because it's absolutely right.
• 36:16
  Speaker 1: You know, you your quality of life is you know,
• 36:21
  Speaker 1: I presume on a thousand times better than it was,
• 36:23
  Speaker 1: or certainly is You've described it a thousand times better
• 36:26
  Speaker 1: than it was, you know, pre ostome. And I think
• 36:32
  Speaker 1: you're you're you're very much living proof when people maybe
• 36:36
  Speaker 1: get concerned when they hear the word stoma or you
• 36:39
  Speaker 1: you know, because presumably you were given a choice as
• 36:42
  Speaker 1: to whether you you had it or not. And yeah,
• 36:45
  Speaker 1: a lot of people have to make that choice and
• 36:48
  Speaker 1: they maybe think, oh, it's you know, it's permanent and
• 36:50
  Speaker 1: it's going to be like this or like that. But
• 36:53
  Speaker 1: you are living proof that, you know, when when people
• 36:57
  Speaker 1: do have a stonema, you know, lives can very much, yeah,
• 37:01
  Speaker 1: improve tenfold, I guess totally. Yeah.
• 37:05
  Speaker 2: I feel like that's why I'm such a big advocate
• 37:07
  Speaker 2: and like I post online and stuff. I think it's
• 37:10
  Speaker 2: really nerve wracking posting being vulnerable and like showing it
• 37:14
  Speaker 2: and showing like the reality to it, because I don't
• 37:16
  Speaker 2: like to just show like, oh it's perfect all the time.
• 37:19
  Speaker 2: Like I talk about how it takes like the mental
• 37:21
  Speaker 2: toll on me and it's it's I do have bad days,
• 37:24
  Speaker 2: of course, but I think posting about it has kind
• 37:27
  Speaker 2: of been like an outlet for me, and it's kind
• 37:29
  Speaker 2: of therapeutic in a way because I feel like, you know,
• 37:31
  Speaker 2: it's one thing to like call my mom and be like, oh,
• 37:34
  Speaker 2: like I want to like rant to her about this,
• 37:36
  Speaker 2: but I'm like I want to post it online and
• 37:38
  Speaker 2: have people be able to see it and know that
• 37:42
  Speaker 2: like there's light at the end of the tunnel and
• 37:44
  Speaker 2: like if you do have an owes to me or
• 37:46
  Speaker 2: you're getting an awesome like life can be significantly better.
• 37:52
  Speaker 1: Yeah. No, that's brilliant and I love it as well.
• 37:55
  Speaker 1: And you're doing you know, by posting and by I
• 37:59
  Speaker 1: guess by doing this as well, you're doing the same
• 38:02
  Speaker 1: thing as the people you looked up to were doing. Yeah,
• 38:06
  Speaker 1: people like Sarah, So you're sort of carrying that on
• 38:09
  Speaker 1: as well, which I think is amazing And krudos to
• 38:13
  Speaker 1: you because I think that's fantastic, And just I guess
• 38:16
  Speaker 1: my last question really it's just kind of the future
• 38:21
  Speaker 1: for you. I know, we've talked about a lot medically
• 38:23
  Speaker 1: that's happened in the past, and you have your rhurostomy now.
• 38:27
  Speaker 1: But I guess, what do you sort of hope for
• 38:31
  Speaker 1: the future for you.
• 38:34
  Speaker 2: I would say it's hard because I feel like I
• 38:37
  Speaker 2: think about it sometimes, but I'm like, I don't know,
• 38:40
  Speaker 2: like I live in the now. But then I like
• 38:41
  Speaker 2: sit in my bed at night and I'm like, okay,
• 38:44
  Speaker 2: like I am getting older, Like I'm like.
• 38:46
  Speaker 1: What's sitting old? Fourth Yeah, I know.
• 38:51
  Speaker 2: I'm like, you know, I'm growing up. So I feel
• 38:55
  Speaker 2: like it's just I do think about my future a lot,
• 38:57
  Speaker 2: and I do have a temporary ostome. Technically speaking, I
• 39:02
  Speaker 2: have a colostomy. I do still have part of my
• 39:04
  Speaker 2: colon left. I have the opportunity for a reversal in
• 39:08
  Speaker 2: the future if I want it. I feel like I've
• 39:11
  Speaker 2: kind of been given the option whether to just keep
• 39:14
  Speaker 2: my ostome or try the reversal. If the reversal works, great,
• 39:19
  Speaker 2: If it doesn't, I'll have an illiostemy after that. So
• 39:24
  Speaker 2: I think I'm I like, I think of my life
• 39:28
  Speaker 2: in two different ways. Like, if I have to have
• 39:31
  Speaker 2: an ostome for the rest of my life, I've already
• 39:34
  Speaker 2: lived the last year with doing so much more than
• 39:38
  Speaker 2: I could have ever thought. So if I do have
• 39:40
  Speaker 2: to live the rest of my life with an ostomy,
• 39:42
  Speaker 2: like I'll be happy. If I get the chance to
• 39:45
  Speaker 2: have it reversed and I can be healthy without a
• 39:48
  Speaker 2: bad then that's great. But I feel like, I don't know.
• 39:53
  Speaker 2: I'm in school. I'm hoping to be an ultrasound tech
• 39:57
  Speaker 2: once I finish school, so that's kind of my career future.
• 40:02
  Speaker 2: But I think just living like I don't know, day
• 40:05
  Speaker 2: by day very positive and just keep sharing my story
• 40:08
  Speaker 2: and hope to I don't know, inspire people and just
• 40:12
  Speaker 2: I think it's important to keep advocating for yourself, especially
• 40:15
  Speaker 2: if you feel like deep down in your gut like
• 40:18
  Speaker 2: I don't know, like, just keep advocating and someone will
• 40:22
  Speaker 2: listen to you. I feel like it's easy to lose
• 40:24
  Speaker 2: hope and kind of just take it as it is
• 40:27
  Speaker 2: and be like, I think this is just how I'm
• 40:29
  Speaker 2: gonna have to live life. But I think, yeah, just
• 40:32
  Speaker 2: stand up for yourself and you know your body better
• 40:34
  Speaker 2: than anyone else.
• 40:36
  Speaker 1: Absolutely well, I think I wish you the best with
• 40:39
  Speaker 1: the ultrasound. I think you'll you've definitely come at it
• 40:42
  Speaker 1: with a.
• 40:42
  Speaker 3: Lot of experience, totally, so I think I think you'll
• 40:47
  Speaker 3: you'll be absolutely brilliant to that and that if anybody
• 40:51
  Speaker 3: does present with Hirshbrungs, you'll be able to tell them yep.
• 40:56
  Speaker 1: Fantastic. And I know you said just finally, you said
• 41:01
  Speaker 1: you do a lot of advocating on social medium on
• 41:05
  Speaker 1: Instagram and TikTok especially where can people find you on those?
• 41:12
  Speaker 2: So on my Instagram it's my life with Stella with
• 41:15
  Speaker 2: like an extra A at the end I can post on
• 41:19
  Speaker 2: my TikTok maybe like the link to that, but my
• 41:21
  Speaker 2: TikTok is the same as well, my life with Stella
• 41:24
  Speaker 2: with extra at So fantastic.
• 41:27
  Speaker 1: Well, thank you so so much for coming on.
• 41:29
  Speaker 2: It's been Thank you so much.
• 41:31
  Speaker 1: Another amasic story, incredible story, and I know it goes
• 41:36
  Speaker 1: without say, but I wish you all the best in
• 41:39
  Speaker 1: terms of your your health, your career as well, And
• 41:44
  Speaker 1: thank you so so much for coming on.
• 41:46
  Speaker 2: Thank you so much, Tom, I really appreciate it.
• 41:49
  Speaker 1: Thank you, thank you for listening and being part of
• 41:54
  Speaker 1: this growing community. If you have enjoyed the episode, don't
• 41:58
  Speaker 1: forget to subscribe, leave a review, and share it with
• 42:01
  Speaker 1: someone who might need it. You can connect with us
• 42:03
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• 42:07
  Speaker 1: name Tom's Hirsprung's Podcast. See you next week.