Latest / Tom's Hirschsprung's Podcast / Episode 121 - With Paul Leonard-Morgan

Transcript

Episode 121 - With Paul Leonard-Morgan · Tom's Hirschsprung's Podcast

0:02
Speaker 1: You are listening to Tom's Hirshprungs Podcast, a space where
0:05
Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
0:09
Speaker 1: live with it, care for someone who has it, or
0:12
Speaker 1: just want to understand more, this podcast is for you.
0:15
Speaker 1: Each episode, we will explore real stories and honest conversations
0:19
Speaker 1: about a condition that often goes unheard. Thank you for
0:22
Speaker 1: tuning in, Hello, and welcome to episode one hundred and
0:47
Speaker 1: twenty one of Tom's Hirshbrun's Podcast. I'm delighted this afternoon
0:51
Speaker 1: to be joined by Scottish b After Award winner, a
0:54
Speaker 1: man who has also written music for the two thousand
0:57
Speaker 1: and eight US Olympic team as well as Cyberpunk twenty
1:01
Speaker 1: seventy seven, and also, most recently, a man who's written
1:05
Speaker 1: the music for the Netflix hit Netflix documentary The Manisphere,
1:10
Speaker 1: Paul Leonard Morgan.
1:12
Speaker 2: Paul, welcome, Thank you very much.
1:14
Speaker 3: Should I get my weights out? It's like, yeah, hey, well,
1:16
Speaker 3: welcome to the Manisphere. Yeah, bizarre week. Actually there's another
1:22
Speaker 3: film out, pretty Lethal, which came out yesterday in the
1:24
Speaker 3: Erma and Maddie's Ego and all this kind of stuff,
1:27
Speaker 3: and it's yeah, it's all, it's all a bit bonkers,
1:30
Speaker 3: but nothing to meet.
1:32
Speaker 2: Yes, you too, it sounds like it's been. It's been
1:35
Speaker 2: quite a quite an interesting and busy time. So thank
1:39
Speaker 2: you so much for making time in your your incredibly
1:41
Speaker 2: hectic schedule for me. It's it's very much appreciated. But
1:46
Speaker 2: something I didn't mention in the intro kind of the
1:49
Speaker 2: reason why you're here, I guess, which you know would
1:52
Speaker 2: be helpful, is that you have a daughter. So with Hirshbrungs,
2:00
Speaker 2: would you like to take us, I guess back to
2:04
Speaker 2: when she was born, back to back to the beginning for.
2:06
Speaker 3: Us, I absolutely will, But before I do that, I
2:10
Speaker 3: will also say that the randomness of my career. I
2:15
Speaker 3: did a film two three years ago with Zocalletti, Gig
2:22
Speaker 3: and Nate, and I had no idea that she had
2:24
Speaker 3: Hirshbrungs until then. You know, you gradually follow people, do
2:27
Speaker 3: you get to meet the actors and everything, and yeah,
2:29
Speaker 3: all right, you know, and then I was like follow,
2:32
Speaker 3: likedown what she follows Hirshprungs. Blah blah blah blah blah.
2:35
Speaker 3: I was like, that's weird. So yeah, there's this random
2:37
Speaker 3: small world berry.
2:40
Speaker 2: Well, I guess that's also one person that we've that
2:43
Speaker 2: we've met in person in common. I've also met her
2:47
Speaker 2: at a Hirshbrungs conference.
2:49
Speaker 3: They go seven steps to Kevin Bacon. So yes, anyway, yes,
2:54
Speaker 3: and my daughter, what do you want to know? She
2:58
Speaker 3: was born in Glasgow. So we'd been kind of me
3:03
Speaker 3: and my wife had been back and forth to the States.
3:06
Speaker 3: We weren't living here, but I was starting to do
3:08
Speaker 3: quite a lot of soundtrap work over here. Got an
3:11
Speaker 3: elder daughter called Naomi, who's a couple of years older
3:15
Speaker 3: than Zoe, and then we just decided that we'd have
3:17
Speaker 3: Zoe back in Glasgow. Yeah, surrounded by family, you know,
3:21
Speaker 3: support and all that kind of stuff boomed randomly. I mean,
3:27
Speaker 3: I won't give you all the groups and details, but
3:28
Speaker 3: she was she was accidentally born in the bathroom, just
3:31
Speaker 3: like it was all over Christmas, and it was two
3:33
Speaker 3: weeks late and all of that, and we're like, oh,
3:35
Speaker 3: God's sake. So then my wife's parents went home, so Hamilton,
3:40
Speaker 3: it was just like a litt'll give you a shout
3:41
Speaker 3: and it's all happening and it's just like, oh, delivered
3:45
Speaker 3: at home. But my wife absolutely kicked out. She was
3:47
Speaker 3: amazing and yeah, and so we're just like, okay, this
3:51
Speaker 3: is cool, we got this, We're fine. You know, there's
3:53
Speaker 3: ambulance guy's first ever deliver it at home, so this
3:57
Speaker 3: is amazing. I haven't cut the corders. No, that's my job,
4:02
Speaker 3: and give me those. And then three days later the
4:06
Speaker 3: same midwife but we'd had with Naoni and it's bizarre
4:10
Speaker 3: because you don't really have midwives over here. I'm in
4:12
Speaker 3: La now, so you don't really have midwives over here,
4:14
Speaker 3: but in the UK obviously fantastic NHS. And she called,
4:18
Speaker 3: she's like, how's it going. We're just like, oh, we're good. Yeah,
4:21
Speaker 3: we got this. We're fine, you know, child number two.
4:25
Speaker 3: And she's like, what am I just pop in? You know,
4:27
Speaker 3: because I'm just on the other side of the park
4:28
Speaker 3: in Glasgow. You just walk everywhere. So we're just like, oh,
4:31
Speaker 3: we come around for a cup of tea, you know,
4:33
Speaker 3: all good. And she came around and and she kind
4:36
Speaker 3: of checked Zoe out and she was like, don't mean
4:40
Speaker 3: to stress you, but you should probably get at the
4:43
Speaker 3: hospital like now. So Andy my wife was like why
4:48
Speaker 3: and she's like, well, she hasn't peoped up muconium and
4:51
Speaker 3: she she hasn't done any of this stuff, she hasn't
4:54
Speaker 3: pooped it out. It's all a bit weird. And she's
4:56
Speaker 3: also looking quite her Summ's looking plate. And so Andy
5:03
Speaker 3: took her off to hospital and she basically stopped breathing
5:06
Speaker 3: the moment that she got to hospital and there was
5:09
Speaker 3: a doctor. It was a Saturday, I think it was,
5:12
Speaker 3: and there was a doctor on call and he was
5:16
Speaker 3: just like, I know what this is, and no one
5:22
Speaker 3: knew what THEGG was and he was one of like
5:23
Speaker 3: nine specialists in the world that dealt with hirspruns and
5:27
Speaker 3: he happened to be on call that day. They rushed
5:30
Speaker 3: Zoey off, got a breedy again, down, I mean, utterly horrific.
5:35
Speaker 3: Then yeah, got a breedy again, and he said, bright, okay,
5:39
Speaker 3: well this is what it is. I can't prove it yet,
5:41
Speaker 3: but this is what it is, and could trying to
5:44
Speaker 3: work out, as you know, is it Hirsbrung's, is it not?
5:48
Speaker 3: What's this? What's this? What is hirshbrngs all that kind
5:50
Speaker 3: of stuff, And so they started doing some tests, came
5:54
Speaker 3: up being conclusive, did some more tests, but you know,
5:56
Speaker 3: it's just literally three days old and you're like, oh
5:59
Speaker 3: my god, You're life is falling apart, and they're like, right,
6:02
Speaker 3: she might have spina bifida, she might have this. And
6:05
Speaker 3: of course you're looking up all these words, going these
6:07
Speaker 3: mean nothing to me, and all I know is that
6:10
Speaker 3: our life is going to change dramatically. But yeah, and
6:14
Speaker 3: then about another three or four days later, he's like,
6:18
Speaker 3: we're going to do some more tests. This is it.
6:20
Speaker 3: You know, I know this, I specialize in this. It's
6:24
Speaker 3: just so bizarre that he's the guy that was on cool.
6:26
Speaker 3: So he did the test and he's like, ha ha,
6:28
Speaker 3: you know, so we're now bought in. This is the
6:31
Speaker 3: wonderful Glasgow Children's Hospital, which again was called Your Killing
6:36
Speaker 3: those days we didn't even know it bloody existed, and
6:38
Speaker 3: this was one mile down the road from our house. Yeah,
6:41
Speaker 3: incredible place. So it was a very very long two
6:46
Speaker 3: or three months when we're in there and we didn't
6:48
Speaker 3: know if she's going to make it or not. And
6:49
Speaker 3: then he calls us in Carl his name was doctor Carl,
6:53
Speaker 3: and he says, right, so you know, we're going to
6:57
Speaker 3: do this operation called a pull through, and we're like,
7:01
Speaker 3: do we have any options if it's just like going
7:03
Speaker 3: to be honest. No, also going to be honest. Not
7:07
Speaker 3: every kid makes it, you know, at this age. But
7:10
Speaker 3: he said, yeah, you've got about a sixty forty chance.
7:14
Speaker 3: So like, but that doesn't well, it's weird, isn't It
7:17
Speaker 3: doesn't sound very much to me, like when you've got
7:20
Speaker 3: a new kid there and so you've gone through the
7:22
Speaker 3: trauma of sort of giving birth at home and he's
7:25
Speaker 3: gonna say complete rock star. Then we had a checked
7:28
Speaker 3: out and then we get you off to your kill
7:30
Speaker 3: and then he's like, oh, sixty forty chance for living.
7:33
Speaker 3: So anyway, so yeah, I'm really got your choice. So
7:36
Speaker 3: he did the pull through and you kind of again,
7:40
Speaker 3: you know, your life is ups and downs. As you know,
7:42
Speaker 3: it's kind of like issuy, okay, you're not issue. Okay
7:45
Speaker 3: not They kind of said, well, pull through kind of work,
7:49
Speaker 3: but didn't. We're going to do another bit because we
7:53
Speaker 3: pulled it through and it seems to be working this
7:55
Speaker 3: part of it, but not really. But and she's got
7:58
Speaker 3: medium medium length whatever. So yeah, so it's very bizarre,
8:04
Speaker 3: isn't it. When they explained that, well, she's not really
8:06
Speaker 3: got to have a colon and we're going to pull
8:08
Speaker 3: through and then they're going to do this, but there
8:09
Speaker 3: are three time marks in her stomach. That's it. Well,
8:13
Speaker 3: which still to me is bloody mental the fact that
8:17
Speaker 3: they can do all of this twenty surgery kind of
8:19
Speaker 3: through their keyhole surgery. So yeah, and then we had
8:23
Speaker 3: another So I'd say this was probably after a month
8:27
Speaker 3: they did this surgery again. It was like weeb thirteen
8:30
Speaker 3: years again now, but it was about another month is
8:32
Speaker 3: about months she was in then did the surgery, and
8:34
Speaker 3: then about another month and a half she was in hospital.
8:37
Speaker 3: And yeah, so I mean that was that was how
8:41
Speaker 3: it came about.
8:43
Speaker 2: Wow. I mean and like you said, with the surgery,
8:47
Speaker 2: I mean I go back to well thirty four years
8:51
Speaker 2: when I had mine, and I mean I'm scarred all
8:54
Speaker 2: over the place, you know, massive grace scars. Yeah, and
8:58
Speaker 2: we're talking, you know, from one to the other. So
9:01
Speaker 2: it just fascinates me that, what ten twenty years on,
9:05
Speaker 2: they're doing keyhole and you know, you've got these sort
9:09
Speaker 2: of small dots of seeing them with you know, parents
9:12
Speaker 2: have sent me photos of their children's scars, and it
9:16
Speaker 2: just it just fascinates me that I think that's that's
9:20
Speaker 2: really good for I think it's really good for the future,
9:25
Speaker 2: because I think it's it's it's gonna be, you know,
9:28
Speaker 2: obviously the less, the less sort of scars that you have.
9:33
Speaker 2: I think it's it's gonna be probably a lot harder
9:36
Speaker 2: to notice, I guess.
9:37
Speaker 3: Yeah. I mean we always said to Zoya's like, this
9:39
Speaker 3: is your war wound. You know, you got this, and
9:42
Speaker 3: the graduate's going away, and we're just like no, no, no,
9:44
Speaker 3: I want you to have a but yeah, absolutely bonkers.
9:50
Speaker 3: What they can do, as I say to like, you
9:51
Speaker 3: separate it from your in size to them, pulled through
9:55
Speaker 3: to them, kind of reso and all that kind of stuff.
9:57
Speaker 3: It's bonkers. So definitely sort of then you know the
10:03
Speaker 3: grim side of it. They give you these big metal
10:05
Speaker 3: tools to keep on pushing up a bottom to kind
10:08
Speaker 3: of keep it nice and open and all that kind
10:10
Speaker 3: of stuff. Was a pretty miserable kind of three off. Again,
10:14
Speaker 3: I can't remembers about three months. I think it was
10:17
Speaker 3: different sizes, and yeah, you got this little kid who
10:20
Speaker 3: you don't want to hurt. It won't hurt. We're looking
10:22
Speaker 3: at the game really, you know, So that wasn't particularly pleasant.
10:27
Speaker 3: But I think then the hardest part, honestly was we
10:31
Speaker 3: saw him for the first week, and then the next week,
10:34
Speaker 3: and then to sorry him the surgeon, and then another
10:37
Speaker 3: two weeks, and then you split it out, and then
10:38
Speaker 3: it was a month, and then it was once every
10:41
Speaker 3: two months, and we said, well, look, you know, we're
10:44
Speaker 3: thinking of heading off to the States for a bit
10:47
Speaker 3: because I say, would already been back and forth with
10:49
Speaker 3: my job writing music. And so it's brilliant. So he's
10:54
Speaker 3: then started skyping doctors at the LA Children's Hospital to
10:59
Speaker 3: start teaching them about hersprongs, which is absolutely amazing. You know.
11:04
Speaker 3: It's just like, yeah, we all have this thing that
11:06
Speaker 3: we had, like liking to share our knowledge. We don't
11:07
Speaker 3: really think of that for the doctors, and he's just like,
11:09
Speaker 3: I've got this cool new surgery, right, hey, La, I
11:13
Speaker 3: want to have a skype skype how long it was
11:17
Speaker 3: so that that was pretty cool, But I mean, I
11:19
Speaker 3: would say that the hardest part of it, and we
11:22
Speaker 3: didn't realize there was a community at that stage. You know,
11:24
Speaker 3: we had no idea really what hirschbrongs was. You started
11:28
Speaker 3: doing your research. AOL was invented in those days, so
11:31
Speaker 3: you know, the internet did exist. But the hardest part
11:36
Speaker 3: was definitely over the years, yo Zoe had problems in
11:41
Speaker 3: the sense that she just had no control, so she
11:44
Speaker 3: would keep on pooping left, front and center. And as
11:47
Speaker 3: she started to go to school at four and five,
11:51
Speaker 3: and we're like, shit, you know this is not great,
11:55
Speaker 3: and you don't know if it's connected to hirshbrongs on not.
12:01
Speaker 3: So yeah, we went and got like these little nappy pads,
12:04
Speaker 3: diaper pads whatever that you line her underwear with. But yeah,
12:10
Speaker 3: kids are shit. So going off to school at five
12:12
Speaker 3: years old and you're kind of a little bit smelly,
12:14
Speaker 3: and it's like, okay, listen, you've got to try and
12:16
Speaker 3: go to the toilet if you feel it coming. And
12:18
Speaker 3: you're trying to train a trainer up to me, what
12:20
Speaker 3: the hell do we know? But you're trying to get
12:23
Speaker 3: look if you can feel it. And yeah, we speak
12:24
Speaker 3: to the doctor and say like, no, does she still
12:26
Speaker 3: have the same awareness and he was like, no, you know,
12:30
Speaker 3: she will gradually train into it. It tends to happen
12:32
Speaker 3: when they're about ten or eleven, but at this stage
12:36
Speaker 3: she will gradually just kind of feel it, but she
12:37
Speaker 3: won't have as much warning as other people. Basically, and
12:42
Speaker 3: again I'm just speaking from my experiences I'm sure everybody's
12:45
Speaker 3: got different experiences, but so we were just like, okay,
12:47
Speaker 3: So it's like, Zoe, if you feel anything buzzy, run
12:50
Speaker 3: out of perhaps classroom. Do you make the teachers aware
12:53
Speaker 3: that she's going to have this issue? Most of them
12:56
Speaker 3: are pretty cool about it, but at the same time
12:59
Speaker 3: you're trying not to make it a big deal. But
13:02
Speaker 3: it was incredibly frustrating as a parent when she comes
13:04
Speaker 3: home and she's pooped her pants and everything, you know,
13:07
Speaker 3: and it's like, oh god, sorry, and not going to lie.
13:11
Speaker 3: As a parent, you're starting to lose it with her.
13:13
Speaker 3: When you get to about seven years old, you're just like, oh,
13:17
Speaker 3: come on, you're being lazy now, and of course it's not.
13:20
Speaker 3: And then you hate yourself for saying that. And it's
13:21
Speaker 3: like for this this constant battle because you've got everything
13:24
Speaker 3: else going on in life and like, tidy your room? No, well,
13:27
Speaker 3: is this a sign that you're.
13:28
Speaker 2: Not starting to go question everything?
13:34
Speaker 3: Story of my life? But yes, I mean. And the
13:36
Speaker 3: weird thing is, you know, you're speaking to your parents
13:38
Speaker 3: and you're speaking to different people about it, and we
13:42
Speaker 3: found a face group your page, and we started going
13:44
Speaker 3: on that a bit, and you realize that everybody's got
13:46
Speaker 3: the same issues, and it just went away. It was
13:52
Speaker 3: really weird. It wasn't like an overnight thing. It was
13:56
Speaker 3: just we suddenly realized after about kind of four all
14:00
Speaker 3: months and I want to say she was maybe eight, Yeah,
14:05
Speaker 3: something like that, but yeah, we suddenly realized that, oh,
14:07
Speaker 3: hang on, when is the last time we had to
14:09
Speaker 3: buy a pack of these things? And you could only
14:11
Speaker 3: get them in the UK. They didn't exist in the US.
14:13
Speaker 3: So we're literally buy four or five of these boxes
14:17
Speaker 3: of these underwear liners, send them to our parents, her grandparents,
14:23
Speaker 3: and then they would send them over in this brown bag,
14:25
Speaker 3: and we're like, customs ever saw this? This is gonna
14:27
Speaker 3: look really weird. Look what's in these liners? Cocaine?
14:34
Speaker 2: The other thing you do?
14:34
Speaker 4: Drugs smuggling shrungs? Would you yeah, the customs would customers
14:43
Speaker 4: have a field day there?
14:45
Speaker 3: Yeah, So anyway, thank goodness, be not doing that at
14:48
Speaker 3: the moment.
14:50
Speaker 2: No, it's good. But it's interesting though, you know, because
14:53
Speaker 2: hush farms can be like that sometimes, where you can
14:55
Speaker 2: have all of these issues and all of these these problems,
14:57
Speaker 2: whether it's pain, whether it's whatever, and then they just
15:01
Speaker 2: sort of randomly go away rather than anything sort of
15:05
Speaker 2: any medication or any sort of treatment or whatever. And
15:08
Speaker 2: then sort of I don't want to say grow out
15:12
Speaker 2: of it, but it kind of did. It sort of
15:14
Speaker 2: feel that way.
15:15
Speaker 3: It definitely felt that way necessarily going back and they
15:19
Speaker 3: gave us these big metal rods, as they say, after
15:21
Speaker 3: her operation, and we had to keep on putting those
15:23
Speaker 3: upper bottom and company what they were called for her.
15:27
Speaker 3: She'd be in tears. And then obviously as a parent,
15:29
Speaker 3: oh my god, record, so he says, now, obviously I
15:32
Speaker 3: don't remember that good, but apparently that was to help
15:37
Speaker 3: the scar heal perfectly so that then she's got a
15:39
Speaker 3: nice open thing. So it was like, okay, fine, we'll
15:43
Speaker 3: do this. So say that was for kind of two
15:46
Speaker 3: three months. Then I feel like, job done with that. Okay,
15:49
Speaker 3: that's fine. Now we just got to try getting on
15:52
Speaker 3: with it, because if you didn't use those then the
15:54
Speaker 3: whole would be too small or I can't remember her.
15:57
Speaker 3: So but yeah, it definitely felt like she just suddenly
16:01
Speaker 3: grew out of it. And it was weird because then
16:03
Speaker 3: you remember the conversation going. He said, Look, it happens
16:06
Speaker 3: to different people at different times. Sometimes it never fully
16:10
Speaker 3: heals and you don't have total control. Other times you're
16:15
Speaker 3: perfect control from five or six And to say Zoe,
16:19
Speaker 3: I seem to remember it was about eight or nine.
16:21
Speaker 3: But I say, for me, it was just the weird
16:23
Speaker 3: thing of we suddenly realized it was like, oh was
16:26
Speaker 3: that yesterday? Oh was that last week? Was that last night? Oh?
16:30
Speaker 3: We just haven't Oh excellent, it seems to be good.
16:34
Speaker 3: And the shit thing is I say, like, I don't
16:38
Speaker 3: use Facebook tons when I'm on the occasionally to keep
16:40
Speaker 3: in touch with relations and stuff back in the UK.
16:43
Speaker 3: And when I'm on there and just say, Hirschbunk's group
16:48
Speaker 3: comes up, and you see the people going through the
16:50
Speaker 3: same stuff, and there are people in the US and saying, Hey,
16:53
Speaker 3: should we go and see blah blah blah doctor blah
16:55
Speaker 3: blah blah. And of course over here it's hey, you're
16:57
Speaker 3: going to mortgage your house to go and just have
16:59
Speaker 3: a meeting. And we're thinking, like, all of this in
17:02
Speaker 3: the UK was on the NHS. If we'd have over
17:04
Speaker 3: over here, we would be bankrupt, you know. But it
17:08
Speaker 3: was the fact that it was the kids hospital, which
17:12
Speaker 3: we knew nothing about, and the fact that it was
17:15
Speaker 3: a mile away from us. The fact that the doctor
17:17
Speaker 3: was on duty that night. It was all of this
17:18
Speaker 3: weird whatever you believe it. You know, it was like, yeah,
17:22
Speaker 3: thanks big guy, you know, or big woman, whatever you
17:25
Speaker 3: are kind of thing, thank you for keeping an eye us,
17:27
Speaker 3: because then, yeah, it was it was just that whole
17:31
Speaker 3: thing of actually having someone to speak to. And I
17:33
Speaker 3: think that's the issue is when not that many people
17:37
Speaker 3: know about it. Yeah, and again, wonderful kind of on
17:40
Speaker 3: share detectives. Now with Google you can work things out
17:42
Speaker 3: for yourself or at least kind of find people in
17:45
Speaker 3: this Facebook group or wherever it is that you are
17:47
Speaker 3: on your podcast. But then you know, there wasn't that
17:52
Speaker 3: much talk about it, so you're kind of left your
17:54
Speaker 3: own devices going, is it cerebral palsy? Is It's kind
17:57
Speaker 3: a bit of what is it? You know, the doctor's
17:59
Speaker 3: mentioning all these and you don't know what it is,
18:00
Speaker 3: and you're just lipping terrified.
18:03
Speaker 2: Yeah, absolutely, I can imagine. I mean, I mean, I know,
18:07
Speaker 2: you know, Facebook groups are great at all, but they
18:10
Speaker 2: are everything and anything that they are everybody's problems all
18:15
Speaker 2: at once, and you think, Okay, I'm scrolling through and
18:17
Speaker 2: is this to do with me? And what's this, and
18:20
Speaker 2: what's that? And so, I mean Facebook groups are great,
18:24
Speaker 2: but I think, yeah, I mean, certainly, when I'm similar
18:27
Speaker 2: to when I was growing up, I never knew anyone
18:29
Speaker 2: with hirshprungs. I never you know, because it's even if
18:33
Speaker 2: you were close to I know we said this a
18:35
Speaker 2: little bit before, but even if you were a mile
18:38
Speaker 2: away from someone with hirshprungs, you can't tell if they
18:41
Speaker 2: have hirshbrungs or not, you know, And you know, it's
18:45
Speaker 2: not like we walk around with a great big sign
18:47
Speaker 2: on our back saying hirshprungs. It doesn't, you know, it
18:53
Speaker 2: doesn't sort of tom Ah, it's a shape.
18:58
Speaker 3: I went through all that to find out.
19:02
Speaker 2: Yeah, but I know that. I guess, you know, in
19:08
Speaker 2: terms of meeting people with hurstprungs, were certainly talking to
19:12
Speaker 2: people with hirsprungs. All have a un awareness of it.
19:16
Speaker 2: At least. It's probably a little bit more more common
19:19
Speaker 2: now now that we've got you know, Instagram, Facebook and whatnot.
19:23
Speaker 2: But I know because you've told me as well, just
19:28
Speaker 2: as we were speaking before, that you have also met
19:31
Speaker 2: somebody else another Zoey with hirs sprungs as well. How
19:35
Speaker 2: did that sort of come about.
19:38
Speaker 3: Yeah, So I was working with this film called Gigi
19:40
Speaker 3: and Nate, which was probably four years ago or something,
19:46
Speaker 3: three or four years ago, and I was just, yeah,
19:48
Speaker 3: I was standing there's the premiere of it over here
19:51
Speaker 3: in La and yeah, I was just when I was
19:55
Speaker 3: chatting away to her and her boyfriend, and everyone's always
19:59
Speaker 3: very quickly. It was the star. You can't speak to
20:01
Speaker 3: them because there just another person. You know that they
20:05
Speaker 3: might have a very fancy trailer, but you know, and
20:07
Speaker 3: then they're out kind of thing. But you know, it's
20:10
Speaker 3: it's very hard to expose people. It's just everybody's the same, right,
20:13
Speaker 3: and everybody has a job, and all right, I don't
20:16
Speaker 3: feel I've had a job. My one job was claim
20:18
Speaker 3: piano in dance school when I was at the Conservatire
20:20
Speaker 3: in Glasgow. But I've never had a job job because
20:22
Speaker 3: it's a passion. I get the right music, it's amazing.
20:24
Speaker 3: And if the actors are the same, they're just like
20:26
Speaker 3: someone's paying us to do this. Got we've lucked out.
20:28
Speaker 3: This is cool but yeah and just yeah, we've got
20:31
Speaker 3: chatted to her, as are saying, and so it just
20:33
Speaker 3: kind of swapped yourselves and it was only then that
20:34
Speaker 3: I saw that she follows Hirshbruns and looks like, you
20:40
Speaker 3: follow Hirshbuns, how do you fool Hershbrums? And then there's
20:42
Speaker 3: a page to it and there's that, and so I
20:43
Speaker 3: did a bit of research. I was like, no frigging way.
20:46
Speaker 3: You know, she says, oh, zoe you're on her Instagram.
20:49
Speaker 3: Zo Collett, Yeah, yeah, I'm do whatever I have Hirshbruns.
20:53
Speaker 3: I was like, that's an interesting thing to say in
20:55
Speaker 3: your profile. Not I'm amazing, Not I'm a brilliant actor.
21:00
Speaker 3: You might know me from such roles. That's you know,
21:02
Speaker 3: credit fact. It was like, oh, yeah, I've got hersprungs.
21:05
Speaker 3: I'm also an actor. I was like, that's a pretty
21:07
Speaker 3: cool thing to.
21:07
Speaker 2: Do, you know. Yeah, absolutely so Zoey. Zoey is really cool.
21:12
Speaker 2: Although that she came to her as many people know,
21:15
Speaker 2: she came to a conference that we had in Liverpool
21:19
Speaker 2: last year last year last February, did a did a
21:23
Speaker 2: really good presentation. She was over here filming and she
21:27
Speaker 2: she came down in an excellent presentation and yeah, she
21:31
Speaker 2: was fantastic, met everybody, and I think it's it's one
21:34
Speaker 2: of those isn't it where you know, if you want someone.
21:37
Speaker 2: I know there's lots of finding to be lots of
21:41
Speaker 2: parents who have children with Hirschbrungs and they want someone
21:44
Speaker 2: to look up to, They want someone to they can
21:47
Speaker 2: look at and go, oh, well they have Hirshprungs, but
21:50
Speaker 2: they're doing really, really well. And I think she's excellent.
21:53
Speaker 3: For that absolutely. And again, you know, I go back
21:57
Speaker 3: to it when you're told by the doctor, yeah, you're
21:59
Speaker 3: in fish Zobe was three days old and she'd rushed
22:01
Speaker 3: to hospital, and your brain is just a bog and
22:04
Speaker 3: you're trying to keep things normal for your eldest kid.
22:06
Speaker 3: So we're taking it in turns. You know, I'm at
22:08
Speaker 3: a hospital doing on the late shifts, Andy's article during
22:11
Speaker 3: the day, but you're literally just playing tag at bathtime
22:15
Speaker 3: with Nick Nami or eldest just so she feels there's
22:18
Speaker 3: some normality. But your life is just an up egal
22:22
Speaker 3: and particularly when you don't know what things are, you're
22:25
Speaker 3: kind of like, oh, this is this is the worst,
22:28
Speaker 3: this is this is just awful. So I think that
22:32
Speaker 3: was the thing where it's kind of like, well, it's
22:34
Speaker 3: you're always in life, want someone just to go it'll
22:37
Speaker 3: be okay. And if you've got someone to look up to, say,
22:41
Speaker 3: and whatever your role is, whether you want to look
22:43
Speaker 3: up to an actor or you want to look up
22:44
Speaker 3: to someone working in a shop, doesn't matter as long
22:47
Speaker 3: as it's kind of like, fine, they're elder and they've
22:51
Speaker 3: got on with it and they're living with it and
22:54
Speaker 3: it doesn't actually seem to have that many long term
22:56
Speaker 3: repercussions and it's awesome. And I think that was my thing.
23:00
Speaker 3: So when Zoe was in the hospital, I think it
23:06
Speaker 3: was about this. She'd had the operation, she had the
23:09
Speaker 3: next beair. She was fine. Obviously she's still in NICO
23:13
Speaker 3: and the intensive care. But I think there were two
23:15
Speaker 3: things with that children's hospital. One was the fact that
23:19
Speaker 3: the nurses were just incredible. And I know one always
23:24
Speaker 3: goes on in the NHS clap that will help them
23:28
Speaker 3: in life. Here have a sandwich. Oh no, I can't
23:30
Speaker 3: afford it. It doesn't matter, but we buton'. But they
23:33
Speaker 3: were absolutely amazing. And two nurses you remember so clearly,
23:38
Speaker 3: and one's called Marnie, and she was she was just
23:42
Speaker 3: the most brilliant person. And you're in a complete state
23:45
Speaker 3: as a parent, and she just one night. I remember
23:48
Speaker 3: she was. She got Zoe out of her little incubator
23:51
Speaker 3: and Zoe's all attached with all of these color shebs
23:54
Speaker 3: and everything. She takes her out. What's what she said, Oh,
23:59
Speaker 3: don't worry. They come and detached the whole time. So
24:02
Speaker 3: she got her out. She could see I was really upset,
24:04
Speaker 3: and I gave Zoe a hug and yeah, just teeny
24:07
Speaker 3: tiny thing, and she was amazing. And there was this
24:11
Speaker 3: other nurse who lost There was a teddy that our
24:15
Speaker 3: neighbor over here gave sent sent over and Zoe's literally
24:21
Speaker 3: had this teddy from day two. I think was reopened
24:24
Speaker 3: it on the day two of her life, because the
24:26
Speaker 3: first day was a little bit. Over's tidy up their
24:29
Speaker 3: hats a bit, and we took her into the hospital.
24:35
Speaker 3: And every single picture that we have on Zoe, I
24:37
Speaker 3: did like a little journal every single day. You know,
24:39
Speaker 3: here's a picture, here's a picture. There's things that he
24:41
Speaker 3: try as a parent, just to try and rationalize and
24:43
Speaker 3: keep more so, teddy was in all those pictures. And
24:45
Speaker 3: there was one day they taken the sheets and I
24:50
Speaker 3: went to go and get Zoe and get Zoe you know,
24:53
Speaker 3: doing doing swats with Andy where's Teddy. Teddy's nowhere? Oh
24:58
Speaker 3: my god, Oh my god. It's like ugily ridiculous, makes
25:01
Speaker 3: no bloody difference, but that's the thing that you're focusing on.
25:05
Speaker 3: So one of the nurses was absolute bloody product. She's like, well,
25:09
Speaker 3: we changed the sheets. However, many hours ago she went
25:11
Speaker 3: all round the hospital to find the shoot where the
25:14
Speaker 3: sheets had gone down and had We got a picture
25:17
Speaker 3: of her like three floors down or whatever, holding up
25:19
Speaker 3: bloody Teddy which was wrapped in this sheet. She's been
25:22
Speaker 3: through all of the sheets, worked out where it's gone
25:24
Speaker 3: down the shooting. We're just like these bringing nurses and
25:27
Speaker 3: Nickey are just amazing. So when Zoea was fine, she's
25:32
Speaker 3: still in the hospital. My best let Aidan, who lived
25:36
Speaker 3: in LocHal Omand, which is about forty minutes away from
25:39
Speaker 3: their old children's the old Children's whatever they call now
25:44
Speaker 3: the Glasgow of Children's Hospital. Yeah, they changed their name
25:47
Speaker 3: from York Killed. But so he said, look, there's this
25:49
Speaker 3: thing called a kilt walk which is being done for charity.
25:54
Speaker 3: And the kiltwalk was the thing done by Tom what's
25:57
Speaker 3: the name, Tom Farmer, Tom Hunter, the guy that owned
26:00
Speaker 3: quick Fit. So I think he started it up or
26:03
Speaker 3: the Glasgow again. Need to forgive me because it was
26:05
Speaker 3: about thirteen years ago, so I'm trying to remember that
26:07
Speaker 3: of the whole details. But they did this thing where
26:09
Speaker 3: it's like, right, everybody walks twenty six miles in a
26:12
Speaker 3: kilt and you start off at hand and home are
26:16
Speaker 3: the greats, and then you walk throue Glasgow through the
26:20
Speaker 3: various parks, you walk all the way up the River Clyde,
26:24
Speaker 3: all the way up et cetera, and then you get
26:26
Speaker 3: to Loch Omens and you finish at Alexandria on the loch.
26:31
Speaker 3: So he was like, I'm going to do this to
26:34
Speaker 3: raise money for children's hospital. And of course I haven't
26:38
Speaker 3: slept for about two and a half months. I'm completely pried.
26:43
Speaker 3: I was just like, oh, you fuck it. Well, if
26:45
Speaker 3: you're going to do it, I guess I gotta have to.
26:49
Speaker 3: And there was a thing then where if you had
26:50
Speaker 3: a group of five, then you could say who the
26:53
Speaker 3: money went to. You know, all the money would go
26:55
Speaker 3: to your charity rather than being split amongst how many charities.
26:59
Speaker 3: So we got some of my wife's cousins, one of
27:04
Speaker 3: our neighbors. More we basically wrote them all in. We're
27:07
Speaker 3: all completely unfit, you know. I used to do a
27:11
Speaker 3: lot of sport and then year between this and work
27:13
Speaker 3: and everything. So the five of us met at hand
27:17
Speaker 3: and Zoe's got out of hospital I think literally three
27:20
Speaker 3: days before, and I got my agent over here, got
27:25
Speaker 3: all my friends over here here in la that everyone
27:29
Speaker 3: back in Glasgow, and I think we've raised something like
27:31
Speaker 3: twenty thousand quid, which was like amazing, we bankrupt everybody
27:36
Speaker 3: and yeah, and it was shucking it down with rain
27:40
Speaker 3: and it didn't matter. It was like, Zoe's out of
27:41
Speaker 3: the hospital, this is amazing. You know, got cramped every
27:44
Speaker 3: single mile weh I got and it was mental. There
27:47
Speaker 3: were probably like I don't know if five thousand people
27:49
Speaker 3: in kilts all doing this walk, and it was a
27:51
Speaker 3: walk at that stage. So I was like, okay, that's awesome,
27:54
Speaker 3: and it was like this wonderful celebration and everybody came
27:57
Speaker 3: out and it was you know, okay, a little bit
28:01
Speaker 3: a little bit teary, shall we say, but it was awesome.
28:04
Speaker 3: And then the next year I was like, okay, well
28:06
Speaker 3: look we'll do it again. And the Kilt Walk still
28:08
Speaker 3: goes on now it's quite a big thing. In Scottland.
28:11
Speaker 3: They have one in Aberdeen, one in Dundee, one in Glasgow.
28:14
Speaker 3: I think they might do Edinburgh as well. But it's
28:17
Speaker 3: it's become this big thing and you get to know
28:20
Speaker 3: the community that do this. Kilk walks all about raising
28:23
Speaker 3: money for charity and so on, and everyone has everyone
28:26
Speaker 3: has their own charities that mean something to them, don't they.
28:29
Speaker 3: So second year I was like, okay, I'm going to
28:31
Speaker 3: do it again and I'm going to it's my way
28:32
Speaker 3: of saying thanks to the children's hospital that saved Zoe's life.
28:36
Speaker 3: And so did it again. But it then found I
28:40
Speaker 3: then found out that I was going to be in
28:41
Speaker 3: the States of working on a film and I couldn't
28:44
Speaker 3: be back in Glasgow. I was like, crab well, I've
28:45
Speaker 3: already started to collect all the sponsorship. I was like,
28:47
Speaker 3: what am I going to do? So I was like,
28:49
Speaker 3: all right, I'll do the kilk walk over here. So
28:53
Speaker 3: I did the kilt walk over here, twenty six miles
28:55
Speaker 3: in the la heat in this very very kind of
28:58
Speaker 3: proper woolen gilt. It was hot, man. And then I've
29:01
Speaker 3: had a friend over here that kind of joined me
29:03
Speaker 3: for some of the miles and various friends just came out.
29:06
Speaker 3: And it's quite sweet then because like all these American friends,
29:09
Speaker 3: which is getting a bit of tart and plaid as
29:12
Speaker 3: they call it, and just might be a sash, or
29:14
Speaker 3: it might be this. Some people had kind of a
29:16
Speaker 3: mini skirt or whatever. They would come and join me
29:18
Speaker 3: for a mile here and there, and I think we
29:20
Speaker 3: raised again, like maybe ten thousand quid or something. But
29:23
Speaker 3: it was just it was just me and it was awesome.
29:25
Speaker 3: Like I remember getting to the farmer's market, which is
29:29
Speaker 3: where you go and get your veggies and fresh fruit
29:32
Speaker 3: and vege and all that kind of stuff. And there's
29:34
Speaker 3: a very la one called the grove, which is where
29:36
Speaker 3: all the sleds hang out, and someone I was going
29:39
Speaker 3: around with my sporn and my kilt, and I opened
29:42
Speaker 3: up the sporn and people would just be putting like
29:44
Speaker 3: dollar bills in or ten dollar bills, and I had
29:46
Speaker 3: my t shirt on for the Children's hospital, you know,
29:49
Speaker 3: and so so many people getting pictures done. And the
29:51
Speaker 3: whole point was like it's a thank you to the
29:53
Speaker 3: children's hospital, and it's an awareness, you know, to try
29:56
Speaker 3: and waise awareness for hersh bruns. Except for one of
30:00
Speaker 3: the policeman at the grove Farmer's Mark because it's quite
30:02
Speaker 3: a well to do place. He saw me from side on,
30:05
Speaker 3: so all he could see was someone putting their hand. Right,
30:10
Speaker 3: that's not a word of a lie, So the police
30:12
Speaker 3: excuse me. He's giving you cart down podcast like no, no, no,
30:15
Speaker 3: it's a sporn you don't understand. So he was awesome
30:18
Speaker 3: and he was like, well what is this. I was like, well, yeah,
30:20
Speaker 3: this said my children's, my daughter's life, et cetera. So
30:23
Speaker 3: is it right? He said, well, I'm going to be
30:25
Speaker 3: down at Santa Monica Pier. I'm driving down there now,
30:28
Speaker 3: which was still about another kind of sixteen miles. So
30:33
Speaker 3: he was like, find me when you're down there. So
30:35
Speaker 3: he went down there. I got this picture just sprawled
30:39
Speaker 3: across his car in my killed when we got down
30:42
Speaker 3: People buy into it, you know. And that's the thing is,
30:44
Speaker 3: it doesn't matter what the culture is. It doesn't matter
30:46
Speaker 3: whether it's America or whether it's the UK. When you're
30:48
Speaker 3: wherever it is, when you tell someone something that actually
30:52
Speaker 3: means something to you, then people, if you're honest and
30:57
Speaker 3: you're truthful about it, people get into it. And then
31:00
Speaker 3: every year after that, I started doing a kilkwalk. So
31:03
Speaker 3: it's like, okay, well what my men do Now It's
31:05
Speaker 3: three years since so he was born, so I can't
31:08
Speaker 3: just do twenty six miles because people going to get
31:10
Speaker 3: bored with this. So suddenly I was like right and
31:12
Speaker 3: kind of go to do a cycle ride from Santa
31:14
Speaker 3: Monica Peer to the Griffith Park Observatory, which is twenty
31:17
Speaker 3: six miles, and so you go past like the Hollywood
31:21
Speaker 3: Sign and you do all this kind of stuff. I
31:23
Speaker 3: was trying to make it interesting for the people back
31:24
Speaker 3: in the UK that were sponsoring me, and then get
31:26
Speaker 3: up started to do that with two people, oar Bell
31:30
Speaker 3: and Jade. One was from Running Club because I started
31:32
Speaker 3: running then and our bell's a music agent, not mine.
31:36
Speaker 3: They've kind of cycled up with me, and it's got
31:38
Speaker 3: this git of a hill at the end and you're
31:40
Speaker 3: like no. As we left Santomnica Peer at about four
31:43
Speaker 3: maybe four thirty am, yes, it's pitch black. Get up
31:46
Speaker 3: there and then Andy and the kids met me up there.
31:49
Speaker 3: So our kids now are maybe three and four and
31:52
Speaker 3: a half or something. Get some bacon rolls or whatever,
31:55
Speaker 3: and then we started. I started the walk, the long
31:59
Speaker 3: walk back back to Santa Monica here. So then the
32:02
Speaker 3: next year it was like, okay, well what am I
32:03
Speaker 3: going to do now? Okay, next year I did a
32:05
Speaker 3: paddle board, so it was like, okay, everything had to
32:08
Speaker 3: have twenty six miles and so it's like twenty six
32:10
Speaker 3: miles up, twenty six miles back, twenty six meters on
32:13
Speaker 3: a paddle board or one hundred and twenty six or whatever.
32:15
Speaker 3: So I've got this brilliant picture of me jumping in
32:17
Speaker 3: the kilt kind of all that, and gradually for me
32:19
Speaker 3: it was suddenly just like, okay, this is great. I'm
32:21
Speaker 3: raising awareness for hirshbrongs, I'm raising awareness for the children's hospital.
32:24
Speaker 3: I'm also sending loads of pictures back to all the
32:26
Speaker 3: nurses and doctors back there, just going you freaking rock
32:29
Speaker 3: and ya. We'd send them random pizzas because obviously eight
32:32
Speaker 3: hour time difference between LA and blassgo. So sometimes in
32:36
Speaker 3: a Friday night we just send pizzas and say, hey,
32:38
Speaker 3: give send this up to nic who nurses you know,
32:40
Speaker 3: say who it's from, just give them a random thing.
32:43
Speaker 3: And so as the years progressed, then it was like, okay, well,
32:46
Speaker 3: Zoe's five, am I going to do now, right, everybody,
32:51
Speaker 3: I want you, I'm stopping bankrupting you because if you
32:53
Speaker 3: all donated enough, this is now about celebrating Zoe's life.
32:57
Speaker 3: So I want everyone to donate five quid, five bucks
33:00
Speaker 3: or five fifty five, so you know, I just giving you.
33:03
Speaker 3: Just see this page of like five dollars fifty five.
33:06
Speaker 3: Some gave fifty five, some gave five hundred and fifty five.
33:08
Speaker 3: But it wasn't the point. It was just I said,
33:10
Speaker 3: I want everyone to write a nice note to the
33:13
Speaker 3: doctors and nurses at the children's hospital. And it was awesome.
33:18
Speaker 3: You You'd have like three, four or five pages and
33:20
Speaker 3: we printed it out and send it off, and you know,
33:23
Speaker 3: just it was just sending a whole load of love
33:25
Speaker 3: their way. And then there was another year where it
33:27
Speaker 3: was like, okay, right, it's the sixth year. What the
33:30
Speaker 3: hell am I going to do? So it was like, right,
33:32
Speaker 3: I can't do sixty six miles? Can I? If I
33:35
Speaker 3: cycled a bit and I think we've just moved house.
33:37
Speaker 3: And then it was like, okay, right, if I cycle
33:40
Speaker 3: down to Santa Monica and then I'm going to run
33:44
Speaker 3: and I'm going to go to sixty six composers. So like,
33:47
Speaker 3: this is meeging being geeky. I was like, sixty six
33:50
Speaker 3: composers in the Hollywood. There are thousands of them. You know,
33:54
Speaker 3: I'm rubbish. Yeah, there are very good ones. There are
33:56
Speaker 3: you know, even worse than me. Just you know, I'm
33:59
Speaker 3: pretty lower aisle. But it was like, right, sixty six studios,
34:03
Speaker 3: this is awesome. So got down to some of course composers.
34:06
Speaker 3: We work late into the night. Yeah, that's when the
34:09
Speaker 3: brain goes, oh, goot, this great idea. So one of
34:11
Speaker 3: the composers said, here, we can start at my house
34:13
Speaker 3: because I'm normally working at four thirty am. So I
34:16
Speaker 3: literally left home. I think I cycled. I left at
34:19
Speaker 3: one o'clock am, cycled in the pitch black, didn't hadn't
34:23
Speaker 3: looked at root because we're in, just moved. I was like,
34:25
Speaker 3: and it was this bastard hill with a head, flashlight
34:29
Speaker 3: on your head, and it's I don't have a fancy bike.
34:31
Speaker 3: So it's kind of going along like this. Got down
34:34
Speaker 3: to this guy Dave Buckley's house and Harry Griggs and
34:36
Speaker 3: Williams who at the time, Harry Grison Williams was like
34:38
Speaker 3: this massive composer who is just one of the sweetest
34:42
Speaker 3: guys out and he was working on some Disney film.
34:46
Speaker 3: So I go down there. He said, do you want
34:48
Speaker 3: to beer? I was like, dude, it's four am. I've
34:50
Speaker 3: got to start running for t He's like, come on.
34:52
Speaker 3: I was like, no, no, I've got to get so. Yeah,
34:55
Speaker 3: they're finishing for the night I started for and I
34:58
Speaker 3: started running to Yeah. I had this big sheet of
35:01
Speaker 3: paper and in the spaw and I've got my phone,
35:03
Speaker 3: I've got a battery pack, and I've got like a
35:06
Speaker 3: map of basically roughly where I'm going to be going.
35:09
Speaker 3: Because as you're going along now, you're trying to tag
35:12
Speaker 3: I was going children in the hospital, and you're trying
35:14
Speaker 3: to tag all the people, and you keep posting because
35:16
Speaker 3: all the people that are sponsored, you're trying to give
35:17
Speaker 3: them updates. Here's me with Harry, here's me here, here's
35:20
Speaker 3: me that. And of course your juice is running out
35:23
Speaker 3: on the phone, so you're trying to sort of keep
35:25
Speaker 3: it connected. But of course spawn's a little sore and
35:28
Speaker 3: it's kind of going like that, and you are literally running.
35:30
Speaker 3: So I'm running marathons now, twenty six miles and trying
35:34
Speaker 3: to go through and composers were getting in touch, like
35:38
Speaker 3: massive composers going, look, you don't know me, but I
35:40
Speaker 3: heard what you're doing. Do you want to pop into
35:42
Speaker 3: my studio? They think that a mile away from where
35:45
Speaker 3: I'm going to be isn't very far, which is true
35:48
Speaker 3: if you're doing one. But suddenly you're getting a chance
35:50
Speaker 3: to go to one the biggest composer of the world.
35:52
Speaker 3: And then like that, that, that that, and I think
35:54
Speaker 3: I ended up running forty miles that day, and like, yeah,
35:59
Speaker 3: I started doing marathons, that's all fine, but forty miles,
36:03
Speaker 3: Like my legs were falling off, and I'd already cycled
36:05
Speaker 3: twenty six whatever. So in the end it turned out
36:08
Speaker 3: at sixty six point six six sixty six miles whatever,
36:11
Speaker 3: I was dying. It took twenty three hours. I finished
36:13
Speaker 3: at eleven fifty eight. Andy, my wife, she came down
36:16
Speaker 3: to support me for the last three miles because I
36:18
Speaker 3: just my legs were giving in. But this is now
36:21
Speaker 3: what I'm known for. And sorry, very long story. Some
36:23
Speaker 3: chat quite a lot, But what I love is the
36:26
Speaker 3: fact that now you know, I do these left, right
36:29
Speaker 3: and center every year and people know me as this
36:32
Speaker 3: crazy scotsman. I know it don't sound Scottish, but people
36:34
Speaker 3: know me as this crazy scotsman who does that kilt
36:37
Speaker 3: run thing, and because I shake it up every year
36:40
Speaker 3: and do all these crazy things, it's that whole thing
36:43
Speaker 3: like why do you do it again? First proms and
36:45
Speaker 3: so it's just nice being able to drop that in
36:48
Speaker 3: and then you know, people are like, oh, yeah, that
36:50
Speaker 3: was how is how is zoy doing these days? You know,
36:52
Speaker 3: it's making it normal.
36:55
Speaker 2: Absolutely. I love it. I absolutely love it, and I
36:57
Speaker 2: love more the fact that but you said, if you
37:02
Speaker 2: do sort of twenty six miles, maybe people think, oh right, okay,
37:06
Speaker 2: well it's another twenty six, the twenty six twenty six.
37:08
Speaker 2: I love the fact that it's different, and I love
37:11
Speaker 2: the fact that you're able to be creative with it
37:13
Speaker 2: as well, and you can go right, I'll do a
37:15
Speaker 2: bit of paddleboarding, I'll do I've seen lots of the photos.
37:19
Speaker 2: I've seen lots of the little clips on Instagram. It's
37:22
Speaker 2: one with you with a Is it an elephant? I
37:25
Speaker 2: think it's an elephant. I think so, I think that's
37:29
Speaker 2: the one. But yeah, I love I love all of
37:32
Speaker 2: that stuff, and I love the fact that it's you
37:36
Speaker 2: can be creative with it, and it's all a little
37:38
Speaker 2: a little bit different, and then it all ties into well,
37:41
Speaker 2: how old Zoey is at the time.
37:42
Speaker 3: I guess, yeah, totally, And I think that's the thing,
37:46
Speaker 3: you know, li shit at the moment, isn't it for everybody?
37:50
Speaker 3: It says me sitting in my love you studio in
37:51
Speaker 3: La But it really is. There's so much crap going on,
37:54
Speaker 3: there's so much negativity, and you can go, I'm so overwhelmed,
37:56
Speaker 3: and then you're just like, what can I actually do?
37:59
Speaker 2: Right?
37:59
Speaker 3: Well, all we can do is I'm quite a positive
38:02
Speaker 3: person and I think I like to celebrate other people.
38:04
Speaker 3: So it's just like, all right, well, I'm gonna bring
38:06
Speaker 3: some goodness here. I'm going to bring some joy in
38:08
Speaker 3: all of this and just hopefully people have a bit
38:10
Speaker 3: of a laugh at the kilt walk things that I do.
38:12
Speaker 3: And then yeah, and it's just about kind of saying
38:16
Speaker 3: thanks and celebrating rather than saying, hey, look, I know
38:19
Speaker 3: everyone's skinned that. Hey can everyone give me twenty quid
38:22
Speaker 3: you and you say a thing, it's just like, I'll
38:23
Speaker 3: screw that. You know, she's ten give me ten p
38:26
Speaker 3: give me one dollar you, because then it resets because
38:28
Speaker 3: you got up to nine ninety nine, it's like, right,
38:30
Speaker 3: give me ten dollars ten or whatever. And then we
38:33
Speaker 3: got when we moved over, we started then going like okay, well,
38:36
Speaker 3: as we now live over here, we andy and I
38:41
Speaker 3: started saying, well, look we will match dollar for dollar
38:45
Speaker 3: whatever has been given in pounds up to x amount
38:50
Speaker 3: and we'll give it to our LA Children's Hospital as
38:52
Speaker 3: we're here, and we go fair lovely. We've never had
38:55
Speaker 3: to use them, thank god, but it's always just the
38:56
Speaker 3: knowledge that they were there. We did. So all of
39:00
Speaker 3: the money from the kilt walks all go to the
39:03
Speaker 3: h to Too Good Glossy Children's Hospital, and then we
39:07
Speaker 3: do a check every year for so last year she
39:11
Speaker 3: was thirteen, so it was last year she was twelve.
39:14
Speaker 3: She just turned thirteen. God was getting expensive, so it
39:17
Speaker 3: was like, okay, we're going to do two thousand and
39:19
Speaker 3: thirteen dollars and thirteen cents or whatever. So it's all
39:23
Speaker 3: the things. And again it's just the visual element which
39:26
Speaker 3: then Glossily Children's Hospital, like filbms go right, all the elevens,
39:29
Speaker 3: all the twelves, twelve, twelve or the thirteen, but a
39:32
Speaker 3: lot about three years ago Aidan, the guy that started
39:35
Speaker 3: the kilt walk with me, he died just suddenly. He
39:40
Speaker 3: was like one best mate and it was gassed before
39:42
Speaker 3: he was turning fifty. So he had always said she'd
39:46
Speaker 3: do the big one sometime, and you do one in
39:49
Speaker 3: LA and then get on a plane and you know,
39:51
Speaker 3: come and do it in the UK. So I was
39:54
Speaker 3: just like, obviously was devastated that he die and I
39:56
Speaker 3: was like, do you know what a sodd let's do it.
40:00
Speaker 3: And it was I think it was the tenth year.
40:02
Speaker 3: And so I did it here and instead of saying
40:07
Speaker 3: you know, no, I don't want to bankruptc you, but
40:10
Speaker 3: just like, look everyone, what does want the ship in
40:12
Speaker 3: ten cored or one hundred quid or whatever, that'd be
40:14
Speaker 3: absolutely awesome. I really want to go to tam Braide
40:16
Speaker 3: and did the kill walk here. Started at the house,
40:20
Speaker 3: went down to Malibu and then running along and of
40:23
Speaker 3: course it is running because try and get twenty six
40:25
Speaker 3: miles in to other stuff. So you're running twist. It's
40:29
Speaker 3: absolutely rating hot. You're running along the pch and running
40:31
Speaker 3: into direct It was ugly bizarre running as directors of
40:34
Speaker 3: films I worked with who were just walking out their
40:36
Speaker 3: dogs at like ten am, what are you doing? So
40:38
Speaker 3: they were having their pictures taping the morning.
40:40
Speaker 2: I've got to keep going.
40:41
Speaker 3: I've got to carry on to carry got to Lax
40:44
Speaker 3: with two hours to spare, and I think that was
40:47
Speaker 3: like twenty eight miles, twenty nine miles something like that.
40:49
Speaker 2: Uh.
40:50
Speaker 3: A mate, Richard, he came along, was one of the
40:53
Speaker 3: best mates. He's from Scotland, he lives here. He's a writer.
40:56
Speaker 3: He came and did loads of me. Diana one of
40:58
Speaker 3: our crazy German friends. She takes pictures every year. She's
41:01
Speaker 3: a professional photographer, so it's like Robbie Williams everything else
41:03
Speaker 3: kind of thing. So she has taken all these fantastic pictures.
41:06
Speaker 3: We got to the fair ground at Santa Monica Piers.
41:08
Speaker 3: She takes all these pictures. I was like, right, gon't stop.
41:10
Speaker 3: Got to get going to Lax, which is still another
41:13
Speaker 3: from there, about another ten miles. Get to Lax. As
41:15
Speaker 3: I say, Richard has driven down earlier in the day
41:18
Speaker 3: with my bag to get on the plane and then
41:20
Speaker 3: he's got an uber back to come and do. I
41:23
Speaker 3: think he did probably like sixteen miles of the or something.
41:25
Speaker 3: So he's an absolutely legend. And then yeah, and then
41:28
Speaker 3: got to lah there's a picture of me hugging him
41:31
Speaker 3: and our crazy friend Lucy, who came into all miles.
41:34
Speaker 3: So again it's just the fact that everybody comes along.
41:36
Speaker 3: It's a celebration of life's celebration of friendship. I get
41:39
Speaker 3: on that plane, Oh god, my legs are dying, and
41:42
Speaker 3: of course, like you know, beat your legs are up
41:44
Speaker 3: there somewhere in a coll going look, oh god, not
41:49
Speaker 3: gonna lie. I had a few beers on the plane
41:50
Speaker 3: and then get on get off at heathrowt and I
41:54
Speaker 3: was seizing up. I was like, I've got to keep walker.
41:56
Speaker 3: I got to keep walker. I've got to keep walking.
41:57
Speaker 3: So this was now Saturday eve. They've done the kilt
42:01
Speaker 3: walk on the right. Yeah, I've done the kilt walk
42:03
Speaker 3: on a Friday. It's an overnighter. Get into Heathrow Saturday
42:06
Speaker 3: evening and this random guy comes up with He says,
42:11
Speaker 3: were you doing your kilk walk in La yesterday? I
42:14
Speaker 3: was like yeah. He was like, I saw you going
42:18
Speaker 3: down the Hollywood blo wasn't only blue Butt, I saw
42:21
Speaker 3: you down the Santa Monica here whatever it was. So
42:24
Speaker 3: he asked to have a picture so you can do
42:26
Speaker 3: post it on Instagram whatever, get on the planes glass,
42:28
Speaker 3: he said, why that's what I'm going to Glasgow all right,
42:30
Speaker 3: som So I get to Glasgow. It's now Saturday night,
42:35
Speaker 3: about ten pm, and the Glasgow kilk Walk is Sunday morning,
42:39
Speaker 3: and you've got to get down there for about six am.
42:42
Speaker 3: And of course I'm jet lags, so I can't sleep anyway.
42:44
Speaker 3: Plus I've done my flipping kilt walk the day before,
42:46
Speaker 3: so I'm seizing up my bodies all over the place.
42:48
Speaker 3: So I just ended up down in Glasgow Green, which
42:50
Speaker 3: is where it starts at this big park, at maybe
42:54
Speaker 3: like five am. And then all of Aidan's friends were
42:56
Speaker 3: flying a friend that had died. They all flew over
42:58
Speaker 3: from Belfast, so there is probably like fifteen of us
43:02
Speaker 3: there in summer cart from sun Land. A bunch of
43:04
Speaker 3: us all met up in Glasgow Green, had a hug,
43:07
Speaker 3: and then we were celebrating Aiden's life as much as that.
43:09
Speaker 3: So then we did the kilt walk there for twenty
43:11
Speaker 3: six miles. Got to the end, so I'm not going
43:13
Speaker 3: to lie, like fifty two miles in two days is
43:16
Speaker 3: pretty brutal. So at the end, and then I flew
43:20
Speaker 3: back to Glasgow. I flew back to LA the next
43:21
Speaker 3: day so and British Airways thank you very much. The
43:25
Speaker 3: jet wasn't working, so they made us walk down the
43:28
Speaker 3: steps to get on the runway to walk back up
43:30
Speaker 3: and I was like, is this a joke? I can't
43:33
Speaker 3: move my legs and did but yeah and again yeah.
43:36
Speaker 3: I think we raised something like twenty five thousand quid
43:38
Speaker 3: or something for the children's hospital. So it was awesome.
43:40
Speaker 3: But more importantly it was about celebrating aiden, celebrating life
43:43
Speaker 3: and celebrating friendship.
43:46
Speaker 2: If ever, there was a definition of the big one,
43:49
Speaker 2: that is the big word. I mean, good lord, I
43:53
Speaker 2: mean that.
43:53
Speaker 3: Day is half muscles doing that.
43:55
Speaker 2: That's incredible.
43:57
Speaker 3: I mean.
44:00
Speaker 2: I think that that's a challenge and a half. But
44:02
Speaker 2: what iman well done for that? Because dadd is that's
44:05
Speaker 2: absolutely And.
44:07
Speaker 3: I think that's the thing that's kind of saying. It's
44:08
Speaker 3: not about me. Obviously, it's about me because my ego
44:11
Speaker 3: is massive, but it's more just about I think it's
44:16
Speaker 3: just that reminder of you. I think that's why I
44:17
Speaker 3: do it, and I like it as a reminder of
44:19
Speaker 3: how freaking lucky we are, how freakingly lucky are that
44:21
Speaker 3: children's hostile existed. How freaking luckily we are that the
44:24
Speaker 3: doctor was there, that was one of mine specialists in
44:26
Speaker 3: the world. Yet all of this and now there's more
44:28
Speaker 3: than mine specialist.
44:29
Speaker 2: Yay.
44:30
Speaker 3: But I think it's just to show that Hirschbrun doesn't
44:32
Speaker 3: have to be the thing that stops you. You know,
44:35
Speaker 3: it's crap, it's wallots, But I mean, do look at you.
44:38
Speaker 3: You're awesome, you know. So it's like everyone just does
44:40
Speaker 3: their thing. It's just making people aware that this is
44:43
Speaker 3: not the end. You know that there's support out there,
44:46
Speaker 3: there's people out there, and you can kind of do this.
44:48
Speaker 2: There are there are amazing, amazing people out there, absolutely
44:52
Speaker 2: one hundred percent with that. And just what we've got
44:54
Speaker 2: a couple of minutes just before we wrap up, in
44:58
Speaker 2: terms of the future of the walk, is there sort
45:01
Speaker 2: of future plans for it? Going, Hey, what damn it?
45:04
Speaker 3: Why have you got to ask for that? What am
45:06
Speaker 3: I supposed to do in twenty three hours and fifty
45:08
Speaker 3: eight minutes? So after the tenth year, And like COVID
45:15
Speaker 3: was funny because then where I live in the not
45:18
Speaker 3: the Hollywood Hills, but the hills just outside La So
45:21
Speaker 3: bizarrely enough, I mapped out, I was like, oh, I
45:23
Speaker 3: still want to do it. So then we're like, well, bizarrely,
45:28
Speaker 3: if I did every single road in this area, it
45:31
Speaker 3: was twenty six point five miles. It was utterly weird.
45:34
Speaker 3: So so I took a picture of everyone's cross streets
45:37
Speaker 3: and was like posting a go right, here goes. Do
45:40
Speaker 3: you want to buy a picture of your cross stream?
45:43
Speaker 3: So after the big one on the tenth I was
45:45
Speaker 3: kind of emotion drained, to be honest. So the eleventh year,
45:49
Speaker 3: I just did a walk by myself, didn't advertise or ownything.
45:53
Speaker 3: We just gave money to the children's hospital, and we
45:56
Speaker 3: gave money to our late children's hostel, the same amounts
45:58
Speaker 3: that it would have been, you know with the eleven
46:00
Speaker 3: in it. And then twelve I did it again. So
46:03
Speaker 3: this year I said to Andyan's my wife. I was
46:06
Speaker 3: just like, right, I'm going to do it again. It's
46:08
Speaker 3: not going to be this big, big thing now. I'm
46:10
Speaker 3: just kind of I think we've done ten years. That's good.
46:12
Speaker 3: But I do like the idea now of just having
46:15
Speaker 3: a bit of a laugh, because that was what it
46:17
Speaker 3: was always about. So and everyone was always just like, oh,
46:21
Speaker 3: I quite look forward to this day where I remember
46:23
Speaker 3: someone in the UK going, hang on, I went to
46:25
Speaker 3: bed and you were just starting do going so I
46:30
Speaker 3: feel like this lazy swine here have another ten quid
46:33
Speaker 3: out of guilt, big book bills they eat. Yeah, so
46:38
Speaker 3: I'm going to do it again. I've I've just got honestly,
46:40
Speaker 3: I've just got to work out what. Yeah, it's trying
46:42
Speaker 3: to keep the interest up. And it was like, well, right,
46:44
Speaker 3: you've seen La, You've seen the composers, you've seen this,
46:47
Speaker 3: so if you've got any ideas, you can put it
46:49
Speaker 3: out to your kind of well, if anyone's got any
46:50
Speaker 3: ideas what they want me to do this year, dropped
46:53
Speaker 3: on the line and maybe I'll do it. What do
46:55
Speaker 3: you want to see in La?
46:57
Speaker 2: Absolutely? Absolutely? Three? Yeah, yeah, well it could could be
47:02
Speaker 2: some great timing I think. I guess just just sort
47:08
Speaker 2: of finally, just to bring you back to Zoe to finish,
47:11
Speaker 2: how is how is Zoe? Now? Is she all all good?
47:14
Speaker 2: All fine?
47:16
Speaker 3: In the arts?
47:17
Speaker 2: Okay?
47:19
Speaker 3: Ironically Yeah, it's good choice of words. She's absolutely wonderful,
47:26
Speaker 3: she's thriving. There's no repercussions whatsoever. I mean, it's honestly,
47:31
Speaker 3: it's amazing. If she's a black belt karate, she's karate obsessed,
47:38
Speaker 3: and so again it's almost you couldn't hope for more
47:41
Speaker 3: seeing her. She had a black belt test last night,
47:44
Speaker 3: which is awesome, but yeah, but seeing her kind of
47:47
Speaker 3: doing that much activity, seeing her do much back when
47:50
Speaker 3: again I go back to thirteen years ago, we didn't
47:52
Speaker 3: know what the heck the future held. You're in this
47:55
Speaker 3: lost state to now just see a perfectly normal kid
47:59
Speaker 3: who now and then looks down at these three pinholes
48:02
Speaker 3: and goes like, oh, yeah, okay, I was pretty I
48:05
Speaker 3: was pretty badass. I was like, you are pretty badass.
48:08
Speaker 3: You came through that and you yeah, you get on
48:10
Speaker 3: with it, and yeah, love the pieces all good, brilliant.
48:14
Speaker 2: That is so so good to hear. But I just
48:16
Speaker 2: want to say thank you so so much. You've been
48:18
Speaker 2: incredibly entertaining. I've absolutely loved loved it to viewing you,
48:23
Speaker 2: and I wish you know all the best, probably for Zoe,
48:27
Speaker 2: for you, for your project. I know you're deep in
48:30
Speaker 2: several things at the moment, and all the very very bad.
48:33
Speaker 3: I tell you what, what's nice about this is a
48:35
Speaker 3: bit I said to you earlier. You know I'm doing
48:37
Speaker 3: lots of interviews for this pretty legal film at the
48:39
Speaker 3: moment and inside the manuscap of the leath REFILM and
48:43
Speaker 3: a lot of them you say the same kind of things.
48:45
Speaker 3: You know. This has been such a lovely refresher, just like,
48:48
Speaker 3: oh yeah, this Markus is good.
48:50
Speaker 2: That's light. You're not going to get on to another
48:53
Speaker 2: interview about Hirshbrugs. I can pretty much guarantee you right.
48:56
Speaker 3: Into a few of them this afternoon.
48:59
Speaker 2: Well, this is has been amazing. Thank you so so
49:02
Speaker 2: much for your time.
49:03
Speaker 3: So I'm keeping touch with the absolute pleasure and it's
49:05
Speaker 3: great see eating so well as well. All right, thank you, Zia.
49:13
Speaker 1: Thank you for listening and being part of this growing community.
49:16
Speaker 1: If you have enjoyed the episode, don't forget to subscribe,
49:19
Speaker 1: leave a review and share it with someone who might
49:22
Speaker 1: need it. You can connect with us on social media
49:25
Speaker 1: via Instagram, Facebook, and TikTok under the name Tom's Hirshprung's Podcast.
49:30
Speaker 3: See you next week.