Latest / Tom's Hirschsprung's Podcast / Episode 98 - With Courtney Crawford

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Episode 98 - With Courtney Crawford · Tom's Hirschsprung's Podcast

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Speaker 1: You are listening to Tom's Hirshprung's Podcast, a space where
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Speaker 1: we talk openly about living with Hirshprung's disease. Whether you
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Speaker 1: live with it, care for someone who has it, or
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Speaker 1: just want to understand more, this podcast is for you.
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Speaker 1: Each episode, we will explore real stories and honest conversations
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Speaker 1: about a condition that often goes unheard. Thank you for
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Speaker 1: tuning in. Hello, and welcome to episode ninety eight of
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Speaker 1: Tom's Hirshbrung's Podcast. I am delighted to be enjoyed all
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Speaker 1: the way from New Zealand. Courtney Crawl for Courtney, Welcome
0:56
Speaker 1: to the podcast.
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Speaker 2: Thank you. It's an honor. Really, honestly, it's the first
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Speaker 2: time I've actually met anyone with firs shprng's disease.
1:04
Speaker 1: Oh really, I do hear that. I mean, to be honest,
1:08
Speaker 1: I've before started this podcast. I was in the same situation.
1:11
Speaker 1: I you know, we kind of end up thinking, we
1:14
Speaker 1: know we're not the only ones, but we kind of
1:19
Speaker 1: feel a little bit like it sometimes. I don't know
1:21
Speaker 1: if you're very similar to that, where you know that
1:23
Speaker 1: there are people, there must be someone out there with hirshprugs.
1:25
Speaker 1: Otherwise we wouldn't have been diagnosed with it. But at
1:28
Speaker 1: the same time, at the same time, we're not exactly
1:33
Speaker 1: you know, you're not exactly going to bump into five
1:36
Speaker 1: Hirschbrugs people on the street.
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Speaker 2: Well, after I got my GP changed to one who
1:43
Speaker 2: was looking after me pro surgery, which I'll discussed shortly.
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Speaker 2: He had been in the medical field for about forty
1:51
Speaker 2: something years and he said I was his second client
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Speaker 2: with firs Shprong's disease. Sorry, he was just a bit
1:59
Speaker 2: beckled and over one by the whole thing.
2:02
Speaker 1: I could imagine it was. Yeah, I mean, it's it's again.
2:06
Speaker 1: It's something that I'll probably go into this a little
2:08
Speaker 1: bit later, but especially with a you know, because you
2:13
Speaker 1: see GPS about it, there are some much are a great,
2:16
Speaker 1: fantastic you know that they'll at least heard of the condition,
2:20
Speaker 1: and there are some quite a few who don't or
2:23
Speaker 1: they sort of miss misunderstand I guess what it might be.
2:30
Speaker 1: But if we kind of go back to I guess
2:33
Speaker 1: the beginning of your story, would you like to start
2:37
Speaker 1: from there?
2:38
Speaker 2: Yeah, yeah, So, I mean we'll go to the very
2:43
Speaker 2: beginning where I was diagnosed with incomprisis and we're going
2:48
Speaker 2: to call that a misdiagnosis. Now I was seven years
2:53
Speaker 2: old and I was out of hospital trying to get
2:57
Speaker 2: my gap to function proper and now Incoan priesss was
3:03
Speaker 2: I had been told it was where I couldn't control
3:06
Speaker 2: my Belle movements. So there were periods where I was
3:10
Speaker 2: completely backed up, and then other periods where I was
3:13
Speaker 2: just having to get cleaned out completely, which not funp
3:18
Speaker 2: for a private school kid. But posts that and being
3:25
Speaker 2: hospitalized with a nose tube, I my Belle didn't exactly
3:32
Speaker 2: work properly. I was having a movement once every couple
3:35
Speaker 2: of weeks. I thought, Okay, well maybe I've experienced some
3:37
Speaker 2: permanent damage. So as long as things are moving along
3:40
Speaker 2: sweet as as the way it is, and then we're
3:45
Speaker 2: going to speed up to January last year of twenty
3:49
Speaker 2: twenty four, where I was having some challenges and that
3:59
Speaker 2: was my last bell movement back in January twenty twenty
4:02
Speaker 2: four to Friday surgery. By March, I had taken a
4:06
Speaker 2: holiday for the first time in six months. Because I
4:08
Speaker 2: was working full time at that phase and hiding it
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Speaker 2: from everyone that I was having some serious gut discomfort.
4:16
Speaker 2: I was bloated. I was passing gas. Sorry for the
4:21
Speaker 2: I don't know how what that would be about.
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Speaker 1: This, go for it, honestly, honestly, I mean the things
4:26
Speaker 1: I've heard you wouldn't believe. So yeah, absolutely, go for it.
4:30
Speaker 1: Be as graphic and as detailed as you like.
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Speaker 2: But yeah, so I was hiding it from my workmates
4:38
Speaker 2: and all of that. So when I she can go
4:40
Speaker 2: up in the hospital, everyone was kind of like, what
4:43
Speaker 2: has happened? And I was throwing up on holiday with
4:49
Speaker 2: my friend and my friend was like, I need to
4:52
Speaker 2: take you to hospital. This is not right. I was
4:54
Speaker 2: about five hours away from home, and I thought, no,
4:56
Speaker 2: I'm going to go to my GP as soon as
4:58
Speaker 2: get back to all Planes, which is where I was
5:00
Speaker 2: living at that time, and get help from her. Now,
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Speaker 2: the problem with that GP I had was there was
5:11
Speaker 2: she was the token doctor for certain demographics here in
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Speaker 2: news and I think there was a bit of a
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Speaker 2: lost and translation, loss of culture understanding around the whole thing,
5:23
Speaker 2: and also with being in Auckland. You know, you see
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Speaker 2: a person, you spit them out, see a person spit
5:28
Speaker 2: them out, it's very just kind of yeah, and I
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Speaker 2: needed someone who was going to not only addvocate for me,
5:33
Speaker 2: but also really investigating. She didn't, she really didn't, and
5:40
Speaker 2: so I went to her in April after I got
5:42
Speaker 2: back from my holidays, and I had to wait for
5:43
Speaker 2: two weeks to get that help. And then from far
5:50
Speaker 2: well after that appointment, I was given suppositories enemas laxaters.
5:55
Speaker 2: None of it worked. None of it worked at all.
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Speaker 2: There was no there was no floor, there was all
6:00
Speaker 2: completely blocked. At the time, I didn't know. I was
6:03
Speaker 2: just not feeling great. And then I went back a
6:06
Speaker 2: month later and said, this is not working. Can we
6:08
Speaker 2: try something else, which is where she gasoled me on
6:10
Speaker 2: my sugar levels. Because I was tired as heck, barely
6:15
Speaker 2: sleeping and just struggling to focus at work and trying
6:19
Speaker 2: to stay awake going to and from work. I was
6:21
Speaker 2: born asleep from the public transport, and so I got
6:25
Speaker 2: chastised for that. I was being patronizing conversated and told
6:29
Speaker 2: to change my diet and eat different foods and all
6:32
Speaker 2: that sort of thing, and she gave me some waxule
6:35
Speaker 2: and dismissed me basically just like that. Three weeks later,
6:42
Speaker 2: I had a really good fact mate, Calvin, who had
6:45
Speaker 2: been in my ear for about a week, and he
6:47
Speaker 2: was just every day going go to the hospital, go
6:49
Speaker 2: to the hospital, go to the hospital, and to a
6:51
Speaker 2: point where I was. One night, I had eaten a
6:54
Speaker 2: homemade mince pie, which was delicious, but not so great,
7:00
Speaker 2: and you've thrown it up the next morning, unfortunately. So
7:05
Speaker 2: I tried. I helped in the hot showers to kind
7:08
Speaker 2: of alleviate some of the pain, and I I was
7:12
Speaker 2: so bloated, I looked about nine months pregnant. And the
7:16
Speaker 2: friend of my stomach was so hard, which is why
7:18
Speaker 2: I think I'd delayed it for so long, because I
7:20
Speaker 2: was scared it was gut cancer, just by how hard
7:22
Speaker 2: my run of my stomach was. And after the shower,
7:28
Speaker 2: I was bleeding from the rictum and I got so
7:31
Speaker 2: brightened by there, and I can't ignore this anymore. I'm done.
7:34
Speaker 2: I'm going to walk into ED. So I walked into
7:37
Speaker 2: the reception and said I haven't had about move in
7:39
Speaker 2: five months, and they're like, right, you're off, tree are
7:41
Speaker 2: straight away. We're going to try and get this sorted.
7:45
Speaker 2: One of the ED doctors tried to give me lexedors
7:48
Speaker 2: and dismissed me and discharged me straight away. Again. Thankfully,
7:53
Speaker 2: there was actually a Scottish doctor there who looked at me,
7:58
Speaker 2: found my stomach and thought, no, I want to see
8:00
Speaker 2: tea of this. I'm gonna have a look and actually
8:02
Speaker 2: get a get a good picture. I had obstruction in
8:05
Speaker 2: my large call on that was one meter long, and
8:11
Speaker 2: my rectum itself was ten centimeters dilated from impaction, so
8:15
Speaker 2: I've permanently damaged my rectum. They tried three or four
8:22
Speaker 2: procedures of disempaction which ended up ripping my rectum and
8:26
Speaker 2: I had to get it surgically stitched up and botox
8:30
Speaker 2: slightly to help kill it. Ah, And he's like, right,
8:35
Speaker 2: we're going to take you in and go in for
8:36
Speaker 2: the surgery. I'm going can I have a day's rest
8:38
Speaker 2: because this, like, I can't even simp my backside right now,
8:41
Speaker 2: I'm sore. So he explained the colostomy and the fact
8:48
Speaker 2: that I was going to go in for it. One
8:50
Speaker 2: hour later, the advocate specialist came and introduced the whole
8:54
Speaker 2: thing and explained a little bit draw a hole, like
8:58
Speaker 2: draw a silk on my stomach where the hole was
8:59
Speaker 2: going to go. And then two days later I went
9:03
Speaker 2: in for the surgery and worke up with the klostomy.
9:05
Speaker 2: So but yeah, So with the with the Hirshprungs and
9:12
Speaker 2: how it came around was I had actually had up
9:15
Speaker 2: my father who lives here in Tarigo where I live now,
9:18
Speaker 2: and gone, hey, Dad, I don't want need to panic,
9:21
Speaker 2: but I'm in hospital and he's like, holy cow drops
9:25
Speaker 2: everything gets to Auckland. And so the moment he comes
9:29
Speaker 2: in prior to my big surgery and my my surgeon
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Speaker 2: was going, we think it's hirsh sprungs. Your technical breath
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Speaker 2: the boxes and my dad is like, oh yeah, she
9:39
Speaker 2: she all those boxes. She's had this problem since she
9:42
Speaker 2: was three or four. And I think that changed their
9:44
Speaker 2: attitude and their panic around the whole the whole thing
9:47
Speaker 2: and where I was at. So it was kind of
9:51
Speaker 2: good to have him there, but also I was spiraling
9:53
Speaker 2: and going why did I know this information? Why did
9:56
Speaker 2: I not you know, had this? They did a biops
10:00
Speaker 2: during the procedure of the colostomy for the hirst Sprungs.
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Speaker 2: It came back negative, and then post surgery, I went
10:07
Speaker 2: back six months later, December last year, to do another
10:10
Speaker 2: biopsy after I had healed some and I have found
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Speaker 2: out when they do the biopsis for hairsprungs. It's actremely
10:17
Speaker 2: difficult to fully fully diagnose it because they have to
10:21
Speaker 2: get the right piece of the intestine to come back
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Speaker 2: and actually say yes, it's hirsprungs. So both biopsies are gone.
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Speaker 2: Well it's kind of inconclusive. We're not one hundred percent sure,
10:34
Speaker 2: but you've ticked a rebox. I'm going, okay, Well, there
10:36
Speaker 2: is no other explanation for this, and my gut has
10:41
Speaker 2: died on me. It was diseased by this time. They
10:43
Speaker 2: took it out and it was a full meter of blockage.
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Speaker 2: So I've lost two thirds of my large and teste
10:50
Speaker 2: and I am now part of the stomach community at
10:53
Speaker 2: thirty four years old. But yeah, so that's a very
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Speaker 2: very short kind of explanation of it. I mean, when
11:01
Speaker 2: I left Auckland and came to Tarangar, I asked for
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Speaker 2: my document records, and this is dating back to when
11:06
Speaker 2: I was about three or four years old, in multiple
11:08
Speaker 2: king about ninety something pages here roughly of file documents
11:14
Speaker 2: from my GPS from specialists here in Tarango when I
11:18
Speaker 2: was a child, all of it. So it was the
11:20
Speaker 2: hush for the income precist diagnosis, my hospitalization with cleaning
11:24
Speaker 2: my guts out all that, and when I saw it,
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Speaker 2: I just spiraled. Yeah, so that's basically my story and
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Speaker 2: since then, I mean, it's really cool to connect with
11:39
Speaker 2: people who have stomas, but it's hard to find someone
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Speaker 2: with fish prints it is.
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Speaker 1: You're absolutely right, and that's that's a heck of a story.
11:49
Speaker 1: By the way, that is a heck of a story.
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Speaker 1: And again, for those who are audio listening to this
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Speaker 1: rather than watching on YouTube, that is a there's a
12:01
Speaker 1: hefty stack of paper you've got there, I mean, you
12:05
Speaker 1: know that that is for anyone with hersbrugs. I was
12:09
Speaker 1: very similar. You know, you have the biggest folder out
12:12
Speaker 1: of you know, generally most people in the hospital. We
12:17
Speaker 1: can remember that for myself, you know, when whenever, because
12:20
Speaker 1: they bring the trolley through with all of the folders,
12:22
Speaker 1: and I always knew when I was next because mine
12:24
Speaker 1: is the biggest. And I imagine it's similar for you
12:27
Speaker 1: as well.
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Speaker 2: Wow. Yeah, I mean I didn't even know that my
12:32
Speaker 2: large and testine head turned necrostic when I was in hospital.
12:37
Speaker 2: It was post surgery. And in my youngest sibling, I
12:40
Speaker 2: say sibling because of their identity, is actually a viet
12:46
Speaker 2: nurse so they have some fornarization of low jargon, I
12:52
Speaker 2: guess you could say. And one of the nurses had
12:55
Speaker 2: actually accidentally left the note taking computer at the door
13:00
Speaker 2: of my bedroom. So my sister, well sibling, had walked
13:05
Speaker 2: to the computer take a look and saw the word
13:07
Speaker 2: across it, and I was like, wow.
13:11
Speaker 1: Well that's yeah, not great.
13:15
Speaker 2: I was days away from CITs us, and I was
13:17
Speaker 2: very lucky but also thankful that I didn't have to
13:21
Speaker 2: fight my recovery in fight that sits us because it
13:24
Speaker 2: had it kind of ruptured and inficted me.
13:28
Speaker 1: Yeah, I mean this is obviously you know, I've met
13:32
Speaker 1: a few people who've had it. I mean I had
13:35
Speaker 1: it myself, and it's not it's not something to be
13:39
Speaker 1: messed with. It. It's very very very serious stuff. But
13:45
Speaker 1: it's yeah, I mean, it's the things that really get
13:48
Speaker 1: me is the medical gas lighting. Really, I mean, and
13:53
Speaker 1: that that kind of you you know that something is wrong.
13:59
Speaker 1: I mean all the Simpsons you described, you know, sort
14:03
Speaker 1: of having something that is is very very clearly you
14:07
Speaker 1: know a major issue in being told I will that
14:10
Speaker 1: she diet. Oh, it's you know this and that and
14:13
Speaker 1: the other. I mean that that is that's that's extraordinary
14:18
Speaker 1: really that that wasn't you know, people didn't investigate that
14:21
Speaker 1: further or go actually that, you know, and it took
14:25
Speaker 1: another doctor after you'd already been to the hospital then
14:28
Speaker 1: to take another doctor to go actually, but thankfully that
14:32
Speaker 1: doctor was was there and and and saw you you
14:36
Speaker 1: know it, you know, because otherwise it would be obviously
14:41
Speaker 1: a awful situation.
14:43
Speaker 2: Well, the one who actually said I want to see
14:46
Speaker 2: tea because it was really kind of concerned. He was
14:50
Speaker 2: the first one who actually touched my stomach physically in
14:54
Speaker 2: thought that hardness is not right, that's not that should
15:00
Speaker 2: be what it is. And so that kind of justified
15:03
Speaker 2: the CT and that instigated the whole process of speeding
15:06
Speaker 2: things up. So, I mean, if I ever met him,
15:09
Speaker 2: I would love to just thank him basically because he
15:12
Speaker 2: was the decision to get me admitted. I would definitely
15:21
Speaker 2: say it was very difficult because I had to learn
15:23
Speaker 2: to walk again and learn to sit up again post surgery.
15:26
Speaker 2: I had a laparotomy, so, which is a huge incision
15:30
Speaker 2: from your ribcage straight through the middle of your belly
15:34
Speaker 2: down to pasture belly button, and it's about twenty to
15:36
Speaker 2: thirty cinemas long. So I lost my core muscles for
15:39
Speaker 2: about I'm gonna say the better part of four weeks.
15:43
Speaker 2: It took me. It took me a week to sit,
15:46
Speaker 2: and it took me two weeks to walk, and that's
15:51
Speaker 2: just walking around the ward. And I got discharged two
15:53
Speaker 2: and a half weeks after surgery, basically, and I spent
15:58
Speaker 2: three weeks at my family horn where it was hard
16:03
Speaker 2: enough kind of trying to walk around, and then walked
16:06
Speaker 2: the end of my driveway and then walked. The next
16:09
Speaker 2: milestone was walking four hundred and fifteen meters to the
16:12
Speaker 2: dairy to grab a drink and then walk back again.
16:16
Speaker 2: And that was definitely a very very hard part about it.
16:19
Speaker 2: And building my strength up again. I mean I lost
16:22
Speaker 2: twenty two kgs in two weeks I was hospitalized. I
16:27
Speaker 2: went from double digits, no sorry, triple digits to down
16:30
Speaker 2: to double digits in the space of two weeks. There
16:35
Speaker 2: were It's funny, I remember when I had started walking.
16:39
Speaker 2: Actually I was just about to go back onto food,
16:43
Speaker 2: like solid food rather than liquids. And I would weigh
16:46
Speaker 2: myself one day and I would be like nine nine
16:49
Speaker 2: kgs and then two days later I was down to
16:52
Speaker 2: ninety seven. I was just going to how was this
16:53
Speaker 2: way coming off me? Like, it's nuts, it really is.
16:59
Speaker 2: I mean the piece that they took academy was six kgs.
17:01
Speaker 1: Alaren, well, that that'll that'll help you know, that will
17:05
Speaker 1: take the way lost down if they take out six CAGs.
17:10
Speaker 1: I mean you said you sort of you had to
17:13
Speaker 1: meet a long blockage as well. I mean obviously and
17:17
Speaker 1: with the stomach being so hard, obviously that that's going
17:19
Speaker 1: to be weighing a lot as well, I would imagine.
17:24
Speaker 2: Yeah, so yeah, that whole meat weighed six kgs when
17:27
Speaker 2: they had fully removed it. I mean, I still try
17:33
Speaker 2: to come to terms with the fact that like it
17:35
Speaker 2: was rotten that had died, which is just nuts. And
17:42
Speaker 2: during my recovery process at home before I returned to work,
17:46
Speaker 2: when I if I returned too soon, ah, I resulted
17:52
Speaker 2: in having some PTSD which I had to resolve this year.
17:56
Speaker 2: And it's great that I've had that time to do that.
17:59
Speaker 2: And I'm I've been ticked off. I'm all good, but
18:05
Speaker 2: it was very difficult in trying to get painkillers and
18:10
Speaker 2: any other medication that I might need for day to
18:14
Speaker 2: day after discharge, because they kept telling me, no, you've
18:17
Speaker 2: got to go back to your doctor. I'm like, the
18:19
Speaker 2: doctor is the one that caused me to be where
18:21
Speaker 2: it was like, no, not gonna talk to her like her.
18:27
Speaker 2: We opened up an investigation on her as a form
18:31
Speaker 2: of formal complaint and it was handled internally and privately
18:37
Speaker 2: with the medical center, and I was able to get
18:41
Speaker 2: free nurse care for the remainder of twenty twenty four.
18:44
Speaker 2: I was able to get about four to six free
18:47
Speaker 2: sessions with my new GP, and I was also able
18:51
Speaker 2: to barter and get the best GP at the medical center.
18:54
Speaker 2: And he was the one that had been there for
18:57
Speaker 2: forty years, and he told me at one point, it's
18:59
Speaker 2: just you're the second person I've come across with Hirshprung's disease.
19:05
Speaker 2: He's been in the midical field for forty years. It's
19:07
Speaker 2: just it's nuts to find out how rare it is.
19:12
Speaker 2: I've yet to meet someone who has gone as long
19:16
Speaker 2: as I have without being diagnosed for thirty three years.
19:21
Speaker 1: Yeah, same, I haven't. I haven't seen that. I mean,
19:25
Speaker 1: and I beat people with hers sprugs every day, you know,
19:28
Speaker 1: I yeah, I mean, this is again really why I
19:31
Speaker 1: wanted you on because your story as well as big
19:34
Speaker 1: about hirshprungs. Is is fascinating. And thirty thirty three years,
19:41
Speaker 1: I mean I've yeah, I've not seen kind of even
19:45
Speaker 1: half of that length. I mean when and again for
19:48
Speaker 1: people who because I have people who do listen to
19:50
Speaker 1: this show who are not who don't have hirsprungs or
19:52
Speaker 1: don't necessarily know you know a lot about it but
19:57
Speaker 1: want to know more. The general diagnosis is within forty
20:01
Speaker 1: eight hours. So thirty three years and forty eight hours
20:05
Speaker 1: is is pretty pretty far apart, you know. So that's
20:11
Speaker 1: what we're talking about here, Like you know, we're we're
20:15
Speaker 1: we're not talking about a I mean, not that there
20:18
Speaker 1: really is a straightforward case of hirshbrungs. We're certainly not
20:21
Speaker 1: talking about a straightforward case of hirshbrungs here, are we?
20:25
Speaker 2: No? I mean, like, so help me understand here, what like,
20:31
Speaker 2: how do people left with kirshprungs without ending up in surgery? Work?
20:34
Speaker 1: My head, that's a really good question. I'm not adopted,
20:39
Speaker 1: but I I I sometimes listen to stories, and I
20:44
Speaker 1: listen to your story, and I think, how how on
20:49
Speaker 1: earth is that even possible to do that to? You know,
20:56
Speaker 1: I mean I'm kind of surprised all the blockage didn't
21:00
Speaker 1: happen a lot sooner. Really, Yeah, it.
21:05
Speaker 2: Probably could have when I was about seven years old,
21:09
Speaker 2: if because I had memories as a child having like
21:15
Speaker 2: talising problems and having incidences at school where I couldn't
21:19
Speaker 2: control my bowels, and so obviously like they thought that
21:24
Speaker 2: the problem was actually between my hips rather than in
21:27
Speaker 2: my actual intestines. And maybe that was the only sign
21:33
Speaker 2: of it. But maybe because of the lack of information
21:36
Speaker 2: on the standing around hershprunks here in New Zealand, they
21:39
Speaker 2: just diagnosed it as incompress because that's about as common
21:44
Speaker 2: as hers sprunx. They're saying it's one every seven to
21:48
Speaker 2: like fourteen people have an episode of incompress in their
21:53
Speaker 2: life at least. Yeah, so maybe that's where the misdiagnosis happened.
22:00
Speaker 2: But I when I was seven years old, as I mentioned,
22:02
Speaker 2: I ed up in the hospital. I was very very blocked,
22:07
Speaker 2: very backed up, and very uncomfortable, and so I remember
22:12
Speaker 2: being it took five adults depend me down on a
22:14
Speaker 2: hospital beard and shobby and a nose troube and to
22:18
Speaker 2: give me to take the laxatives. So I'm thinking, what
22:21
Speaker 2: is it called clean PRIP, the clean PRIP medication to
22:25
Speaker 2: have it done through my nose and into my stomach
22:27
Speaker 2: to wash me out. And I had that nose troupe
22:31
Speaker 2: for about three months of when I was about seven
22:34
Speaker 2: years olds. I ended up going to school with it
22:36
Speaker 2: on at one point. I think from some very light memory.
22:42
Speaker 2: It's very hard to recall.
22:44
Speaker 1: Yeah, yeah, that's definitely And you mentioned about it kind
22:51
Speaker 1: of trauma and PTSD as well, and that is something
23:00
Speaker 1: I tend to see not often, but I think it's
23:05
Speaker 1: more and more common as time's gone on with things
23:08
Speaker 1: like hersprungs, because you are going I mean, you go
23:13
Speaker 1: through an awful lot and obviously you've been through a
23:16
Speaker 1: lot more than most you know, and those kind of
23:20
Speaker 1: instances are going to whether consciously or subconsciously, they are
23:26
Speaker 1: really going to affect us, I would imagine.
23:31
Speaker 2: Yeah, So when I sought out some help through my GPA,
23:36
Speaker 2: we got me aligned to speak to a psychologist to
23:40
Speaker 2: be specialized as in surgical trauma and just trauma's general.
23:44
Speaker 2: So she was able to help me through a method
23:48
Speaker 2: of I'd like to kind of destroy it, like keepnotherapy.
23:52
Speaker 2: She gets you to quology your eyes and visualize the
23:57
Speaker 2: trauma that you go through in she doesn't. So the
24:01
Speaker 2: trauma's on the TV screen and you're watching the TV screen,
24:03
Speaker 2: and then you're watching yourself watch the TV screen, and
24:06
Speaker 2: so you're able to understand your emotions and where you're
24:10
Speaker 2: where you react, and how you know what happens and
24:14
Speaker 2: how your emotions respond. So it helped me identify getting
24:22
Speaker 2: so emotional and what my triggers were. And it was
24:25
Speaker 2: around the fact that I really lost autonomy and self
24:28
Speaker 2: advocacy during my hospitalization process. It was the fact that
24:32
Speaker 2: in that kind of sense, I was in a hospital
24:35
Speaker 2: bed waiting to go in for surgery and they were
24:37
Speaker 2: making me sign off documents, going okay, so in the CT,
24:41
Speaker 2: you know your risk of because of the radiation, your
24:45
Speaker 2: risk of getting cancer is increased by five c and
24:47
Speaker 2: you're going, okay, well, I don't want to rest cancer,
24:51
Speaker 2: but I don't want to I want this problem resolved,
24:54
Speaker 2: So I'm going to have to sign it. And it's
24:56
Speaker 2: that whole like you have to do it for the nastgia,
24:58
Speaker 2: you have to do it for so many things, going Okay,
25:01
Speaker 2: I don't want to feel us pain, I don't want
25:03
Speaker 2: to feel this discomfort and that if I don't proceed
25:08
Speaker 2: forward with what they're trying to need to do, I'm
25:10
Speaker 2: not going to be here next week. And so you're
25:13
Speaker 2: your back is up against a hard warnd. Having such
25:17
Speaker 2: a short time frame to go from okay, you're going
25:20
Speaker 2: to get a stroma too, you wake up from with
25:23
Speaker 2: a stroma two days, it's not enough for the brain
25:28
Speaker 2: to handle that. I mean, I've met so many people
25:31
Speaker 2: with crons and flitters who battle their illnesses for a
25:36
Speaker 2: decay before they end up for the style, so they
25:37
Speaker 2: have that decay to fight the whole process and come
25:42
Speaker 2: to terms of the fact that they need one.
25:46
Speaker 1: Yeah, that was that's a really good point you mentioned
25:49
Speaker 1: actually that I was going to bring that up because
25:52
Speaker 1: you're just the time that took between Yeah, there's there's
25:57
Speaker 1: no time to do any research. There's no time to
25:59
Speaker 1: do any I mean, you know, I know you said
26:02
Speaker 1: you had the patient advocate person come in and basically say,
26:10
Speaker 1: you know, this is this effectively, this is what a
26:13
Speaker 1: STMA is, you know, and this is what it's going
26:16
Speaker 1: to look like. But that's that's that's nowhere near enough information,
26:23
Speaker 1: you know for something that is I mean, it is
26:27
Speaker 1: life changing, you know, Stonma's and there are you know,
26:31
Speaker 1: they are huge parts of your life, you know, in
26:34
Speaker 1: terms of the way life changes. And to have that
26:39
Speaker 1: two sort of forty eight hours to sort of process
26:42
Speaker 1: it just simply isn't enough time.
26:45
Speaker 2: No no, So it was definitely kind of a shock
26:50
Speaker 2: to hear my assersion go, we're going to resolve it,
26:53
Speaker 2: but we're going to have to reroute your richter basically
26:57
Speaker 2: and put it on your stomach, and we're going to
26:59
Speaker 2: have a specialist who of the cakes and speaks to
27:01
Speaker 2: people about getting stoners. So she she showed up what
27:05
Speaker 2: a bed look big, it looks like, she showed how
27:07
Speaker 2: it worked, and then she kind of got me to
27:10
Speaker 2: sit and stand and drew my stomach where the hole
27:13
Speaker 2: was going to go, like I mentioned before, and we
27:16
Speaker 2: did it to try and navigate, you know, whether or
27:18
Speaker 2: not I would be able to change if I was
27:19
Speaker 2: sitting or if I was standing. And of course at
27:21
Speaker 2: the time I was so bloated, I looked nine months pregnant.
27:24
Speaker 2: So we've had put it in a location thinking with
27:30
Speaker 2: me being so big, that's where it's going to sit.
27:32
Speaker 2: But of course I lost a cracked down a weight.
27:37
Speaker 2: I'm happy with there where upsets, but yes, it was
27:39
Speaker 2: definitely like when she came in, I wish I had
27:41
Speaker 2: a chance to ask the questions and I didn't get
27:45
Speaker 2: that opportunity because I didn't know what to ask.
27:50
Speaker 1: I mean, it was just in that time.
27:53
Speaker 2: Yeah, yeah, absolutely, and of course, I mean thankfully I
27:59
Speaker 2: was actually of so I was in the older building
28:05
Speaker 2: when I was first invested, and after my surgery and
28:09
Speaker 2: I was able to sit up, they actually moved me
28:11
Speaker 2: to a brand new building that had opened up while
28:13
Speaker 2: I was recovering, so I was one of the first
28:16
Speaker 2: patients to be in the whole brand new building that
28:18
Speaker 2: handles I guess you could call them a liet of surgeries,
28:22
Speaker 2: but it really specializes in people who have massive gut
28:26
Speaker 2: issues because between the old building and the new building
28:29
Speaker 2: is a pullway and the whole week niques to the
28:31
Speaker 2: surgery rooms. So yeah, that was a huge announcement on
28:38
Speaker 2: the news back in July last year. Now how it
28:42
Speaker 2: opened and it was really cool, so mean that I
28:46
Speaker 2: ended up having my own bathroom in bedroom, which was
28:50
Speaker 2: nice to have that kind of privilege. And when you
28:55
Speaker 2: get in message, you know when you have this throw
28:58
Speaker 2: they have a technico box you have to before you
29:00
Speaker 2: get discharged. It was solids and keep them down, be
29:07
Speaker 2: able to walk without a walker, so yeah, and be
29:14
Speaker 2: able to shower on my own, and be able to
29:17
Speaker 2: change my stumer on my own with no subervision. I
29:20
Speaker 2: had to take those four boxes before they let me go,
29:23
Speaker 2: which was you know, it was good And it was
29:26
Speaker 2: interesting that they had that criteria because when I relocated
29:29
Speaker 2: back my family home here in Twitdonger, I had nurses
29:33
Speaker 2: who visited the first two weeks every two or three
29:37
Speaker 2: days to help me change my stommer and going okay, well,
29:40
Speaker 2: if they're helping me, obviously there's a different standard of
29:42
Speaker 2: requirements down here in Tarigo because apparently people get discharged
29:47
Speaker 2: from hospital without even knowing how to handle changing it.
29:52
Speaker 2: So yeah, no, no good. Thankfully, now that I've relocated
30:00
Speaker 2: to BacT to my family home beck in March this year,
30:03
Speaker 2: I was able to find a fantastic doctor who really
30:07
Speaker 2: educates and really loves to research in investigates, so I'm
30:11
Speaker 2: going to hold on to her as much as I can.
30:13
Speaker 1: Yeah, definitely.
30:16
Speaker 2: I came across a person here in New Zelana who
30:19
Speaker 2: speaks on one of our radio shows called beacheans it.
30:22
Speaker 2: He's coherently going through a quietest journey, and he has
30:26
Speaker 2: a phrase and it's very much health as wealth and yeah,
30:31
Speaker 2: which completely changes your aspect about your life and what
30:34
Speaker 2: your priority is.
30:36
Speaker 1: Yeah, most I had. I've heard that saying before, and
30:41
Speaker 1: it's absolutely true, absolutely true. You know, when and especially
30:47
Speaker 1: anybody who has been through surgery or chronic illness of
30:52
Speaker 1: any kind, you know, the just how important health is.
30:58
Speaker 1: I mean, if you haven't been through that sort of journey,
31:02
Speaker 1: if you've generally you haven't had any operations, or you've
31:06
Speaker 1: generally just been pretty well, then first of all great,
31:10
Speaker 1: but secondly, possibly don't quite have the same perspective as
31:16
Speaker 1: somebody who's been through multiple surgeries, who's maybe had to
31:20
Speaker 1: advocate for themselves quite a lot. It's it really, Yeah,
31:26
Speaker 1: it really is. It's an excellent saying, but it is
31:31
Speaker 1: really something that sticks with especially those I think with
31:34
Speaker 1: chronic illness.
31:36
Speaker 2: Yeah. I was listening to one of your other podcasts
31:40
Speaker 2: a while ago, and I was wondering, is there a
31:43
Speaker 2: connection with the whole GAT issue when it comes to
31:47
Speaker 2: Hirshprung's in the immune system? How does that work?
31:51
Speaker 1: Ah, I don't know. Yeah, not a doctor. I don't
31:57
Speaker 1: know what people tell me. Again, it's so different from
32:08
Speaker 1: person to person. That's why hirshprungs is so difficult to
32:15
Speaker 1: sort of put in a box. Really, it's so so tricky.
32:18
Speaker 1: But yeah, I mean, people do tell me that they
32:22
Speaker 1: do have a slightly weakened immune system or maybe slightly
32:25
Speaker 1: more susceptible to things like colds, coughs, things through the
32:28
Speaker 1: winter because they have hir shprungs, all because potentially they've
32:33
Speaker 1: had a lot of surgeries as well. Again, this isn't
32:36
Speaker 1: medical advice. It's just what people have told me because
32:39
Speaker 1: they've had a lot of surgeries. Obviously you have more surgeries,
32:42
Speaker 1: you know, you have potentially weaker parts of the body
32:45
Speaker 1: and weaker immune system and all of that stuff. But
32:48
Speaker 1: it's yeah, I mean, but that's just what some people
32:52
Speaker 1: have told me. But again that's all. It's all individual.
32:56
Speaker 1: In terms of actual like proper science, I haven't seen anything.
33:03
Speaker 1: I mean, it's I think it's a great thing to
33:04
Speaker 1: be investigated. I would I think that would be something,
33:11
Speaker 1: you know, and it maybe been investigated already and I
33:15
Speaker 1: just haven't seen it. And if anybody listening has, you know,
33:18
Speaker 1: because I do miss stuff. But if anybody has seen that,
33:24
Speaker 1: by all means, you know, drop me a message and
33:27
Speaker 1: send some stuff over to me or or post it
33:30
Speaker 1: or whatever. Because I think that's I think that's really
33:35
Speaker 1: really interesting, because it's yeah, I think I think surgeries
33:40
Speaker 1: play a play a massive part in Hirshprung's just in general,
33:47
Speaker 1: because I think I think they do. I think again,
33:53
Speaker 1: because a lot of surgeries, possibly not in your case,
33:57
Speaker 1: but a lot of surgeries are done when we're too
34:00
Speaker 1: young to speak, we're too young to really notice them
34:03
Speaker 1: or anything. But I think that plays a massive part
34:09
Speaker 1: on you as a person, to those types of surgeries
34:12
Speaker 1: when you just you don't necessarily know what's going on.
34:19
Speaker 1: But it's yeah, I don't know what you think about
34:22
Speaker 1: that as well.
34:24
Speaker 2: I mean I kind of I mean we can always
34:27
Speaker 2: go I wish we you know, we could have, should
34:29
Speaker 2: have didn't kind of process and the whole looking back
34:32
Speaker 2: and what did and didn't happen because with with myself,
34:40
Speaker 2: I mean being having got issue problems as a child,
34:45
Speaker 2: in having those accidents at school and being hospitalized with
34:51
Speaker 2: what we thought was incompresis if they had done a
34:56
Speaker 2: bit more of an in depth investigation or if persh
34:59
Speaker 2: Brungs was a bit better, maybe I might have ended
35:01
Speaker 2: up with stoma at a younger age maybe, or I
35:04
Speaker 2: might have had other surgeries to really investigate. But it's
35:11
Speaker 2: you know, there's not enough information here in New Zealand
35:16
Speaker 2: for people who know about it. I had a fantastic surgeon,
35:22
Speaker 2: Sahad Yassiri, who was mentored by the head of the
35:29
Speaker 2: Gut Foundation slash Stroma Foundation in Auckland, and he actually
35:35
Speaker 2: went back to his mentor and said, I've got this
35:38
Speaker 2: patient who's a bit of a curve boy. I don't
35:40
Speaker 2: know how to navigate it. I didn't know he had
35:42
Speaker 2: done that actually until I had connected to the Auckland
35:46
Speaker 2: stomer community after being discharged, and the mentor was there
35:53
Speaker 2: speaking about all the different types of Stormer surgeries. The
35:56
Speaker 2: different types. So you have yourglostomy eurostomy he lost to me,
36:02
Speaker 2: and then you have the different types of procedures. So
36:06
Speaker 2: I had what was called a Hartman's procedure where they
36:09
Speaker 2: fully disconnect the rectum from the larger testine and manage
36:14
Speaker 2: to salvage whatever they can of the larger testine. So
36:17
Speaker 2: I have half meter left and then you have others
36:21
Speaker 2: where it's like a fold where the tube it's kind
36:25
Speaker 2: of folded over, pinched together, and you have this soma
36:29
Speaker 2: kind of pitched up at the top, which means there
36:32
Speaker 2: can be a bit of a backwash inside the testine
36:34
Speaker 2: and leakage and all sorts of the other problems. So
36:37
Speaker 2: it was very enlightening and interesting, but it was definitely
36:43
Speaker 2: intriguing to meet him firsthand and hear that he had
36:46
Speaker 2: been the mentor to my surgeon, and I became a
36:50
Speaker 2: bit of a case study for my surgeon, which is
36:52
Speaker 2: why I went back in December for that biotyat to
36:56
Speaker 2: confirm the diagnosis. And of course to this day, I
37:00
Speaker 2: what has happened was that my first throngs itself was
37:04
Speaker 2: in my large and testine that they surgically removed. I
37:08
Speaker 2: mean I tacked every box, but they couldn't get a
37:11
Speaker 2: sample to confirm the actual diagnosis clinically, which is annoying,
37:18
Speaker 2: but I mean I still stand by the fact that
37:20
Speaker 2: like when you've got a rich box text, then clearly
37:24
Speaker 2: it's obviously there. It's just that they can't get a
37:28
Speaker 2: physical evidence to prove it that. Yeah, I mean, I
37:35
Speaker 2: lived my life as best as I could, and it
37:38
Speaker 2: just got to a point where it was a doer
37:41
Speaker 2: dying moment, I guess, And I probably should have gone
37:47
Speaker 2: and just ignored my GP when I was visiting who
37:52
Speaker 2: I should respond stract to D I could even should
37:55
Speaker 2: have been.
37:57
Speaker 1: But hindsights are wonderful. I say, it's a you know,
38:01
Speaker 1: I mean, there's there's no way that you would be
38:04
Speaker 1: able to know that at the time, No chance chants so.
38:09
Speaker 1: But in terms of the stoma and everything after the
38:14
Speaker 1: the surgery, I know you talked about things that you
38:17
Speaker 1: had to do after the surgery, But in terms of
38:20
Speaker 1: life now with the stoma, how is life now sort
38:24
Speaker 1: of compared to where it was pre stoma?
38:28
Speaker 2: Really good? Really good. I mean, I, as mentioned, I
38:31
Speaker 2: reconcile my PTSD and the trauma from the surgery. I
38:37
Speaker 2: am currently unemployed, but the employee. That's because the employment
38:40
Speaker 2: situation is really bad in New Zealand right now. It's
38:43
Speaker 2: really bad. And I am about audy eight applications deep
38:47
Speaker 2: and trying to find a job. So it's it's pretty
38:50
Speaker 2: pretty tough. But I mean I went from not being
38:54
Speaker 2: able to have lactose to enjoying yoga every day and
38:58
Speaker 2: enjoying milk in all that that kind of thing. I
39:02
Speaker 2: do miss steak. I mean I could possibly have steak,
39:07
Speaker 2: but then you have to really really really chill it down.
39:10
Speaker 2: So I kind of just go, Okay, well, if it's
39:12
Speaker 2: a risk, I'm going to avoid it. And the same
39:15
Speaker 2: for nuts. Nuts can cause a blockage or internal damage
39:18
Speaker 2: and it could end up with going back in football
39:21
Speaker 2: surgery to kind of salvage the the damage that then
39:24
Speaker 2: up causes with the stoma. So again, I just cut
39:27
Speaker 2: that out of my diet completely. But it has really
39:31
Speaker 2: kind of resolved the whole intestinal issues because I went
39:34
Speaker 2: from not having a balve moment until you know, two
39:37
Speaker 2: weeks time to now having about moment every day or
39:40
Speaker 2: every second day. So there was a bit of an
39:43
Speaker 2: adjustment and realizing that every two days is actually healthy
39:47
Speaker 2: to have a balt moment instead of every two weeks
39:51
Speaker 2: or every month order it was or fire. Yeah, I
39:59
Speaker 2: mean there I was an adjusted kind of thing with
40:03
Speaker 2: I'm going to the gym to try and rebuild my
40:06
Speaker 2: muscles and being able to stand on my feet for
40:08
Speaker 2: long periods of time because the fatigue.
40:10
Speaker 1: Is real.
40:12
Speaker 2: And there are techniques. I mean, I saw your videos.
40:15
Speaker 2: If you're doing crunches on Instagram and I'm going I can't.
40:20
Speaker 1: But I just tried to think of an exercise that
40:26
Speaker 1: was stomach related that was that was by feeling behind
40:30
Speaker 1: it and something I could try and get five thousand
40:32
Speaker 1: done without it, because I thought, well, you know, I
40:35
Speaker 1: didn't want to go like five thousand miles or something
40:38
Speaker 1: because that was never going to happen or kilometers. So
40:41
Speaker 1: I had to try and yeah, I had to try
40:42
Speaker 1: and think of something.
40:44
Speaker 2: Very fair, very fair, but yeah, no, it's it's definitely
40:47
Speaker 2: an exercise I can't do. So there are various other
40:51
Speaker 2: exercises with strengthening my shoulders and my arms. Cardio is
40:55
Speaker 2: a big one. Assisted weights are really helpful, but lying
41:01
Speaker 2: on my stomach is just a bit of an anxiety
41:03
Speaker 2: and juicing thing. And the other part of it was
41:07
Speaker 2: a post surgery was having the courage to put on
41:12
Speaker 2: a piece of a pair of some some clothing. I
41:15
Speaker 2: don't know what you call it. Here in New Zealand,
41:16
Speaker 2: we call it talks and go hop into the pool
41:22
Speaker 2: because it's a I mean, the stomach bag is very
41:26
Speaker 2: much kind of stuck to your stomach through like a
41:29
Speaker 2: monouca honey and like a gel or something. It's like
41:33
Speaker 2: a sticky thing that sticks on your skin, so you're
41:37
Speaker 2: worried that water will lubricate it and cause the bag
41:40
Speaker 2: to come off. I've been swimming once post sagery and
41:45
Speaker 2: getting getting dressed was definitely kind of like, don't have
41:48
Speaker 2: you've been to like, don't help you just get dressed
41:51
Speaker 2: and go to the coal You're okay, But yeah, it was.
41:54
Speaker 1: Yeah, that's a big thing. That that is a that
41:57
Speaker 1: is a huge thing for many reasons. Having you know,
42:04
Speaker 1: and I think you said you've been once, but I
42:06
Speaker 1: think once is great. I mean the fact you did
42:09
Speaker 1: it at all is amazing. I think to have to
42:12
Speaker 1: have soma and then to to to go in the pool,
42:17
Speaker 1: I think it's kudos to you because that that is
42:20
Speaker 1: that's amazing stuff.
42:22
Speaker 2: Thanks. I do follow a few people on Instagram that
42:25
Speaker 2: actually have elostomies and colostomies. So you've got me scha,
42:31
Speaker 2: who's mister clydis Currents And there's Aunt Locke I think
42:36
Speaker 2: his namers and he is the IBD likes. I followed
42:38
Speaker 2: the two of them. Ant and I have had a
42:40
Speaker 2: bit back and forth conversation, but it's it's so cool
42:44
Speaker 2: for them to advocate on social media about the whole thing,
42:47
Speaker 2: about the process and how they live their life and
42:50
Speaker 2: seeing that you can still gain a sense of existence
42:54
Speaker 2: in love from someone who understands your walk in your
42:58
Speaker 2: health journey and exitt you know, your your butthole is
43:03
Speaker 2: on your stomach.
43:05
Speaker 1: Basically it's a different place. But no, they are, They're
43:09
Speaker 1: brilliant and there I know they do so much for Again,
43:14
Speaker 1: I think one that was that Misha has crons and
43:19
Speaker 1: colds and the ant has ib D, and so even
43:22
Speaker 1: for people have two different conditions, they still advocate very
43:25
Speaker 1: much of the same thing in terms of stomachs. No,
43:28
Speaker 1: they're both. They're both absolutely brilliant. I do follow both
43:32
Speaker 1: of them. So they're they're they're really really good. But
43:35
Speaker 1: it's so good to hear that life is much easier
43:39
Speaker 1: for you now. That's that's so much good, so much,
43:42
Speaker 1: it's really really good to hear.
43:44
Speaker 2: Really yea, And I'm still on a lexile just to
43:49
Speaker 2: help things going every now, I mean, because I'm still
43:54
Speaker 2: navigating the diet process in learning how certain foods impacts
43:59
Speaker 2: the frequency of movement and how you know there are
44:03
Speaker 2: foods you probably shouldn't eat so much of bread and
44:06
Speaker 2: cheese can slow slow movement down and then other food
44:10
Speaker 2: other fibers can increase it. Ah, So the laxel definitely helps.
44:15
Speaker 2: But yeah, I come in too, excepting my little buddy.
44:21
Speaker 2: I call him Babbles because he makes babbling sounds when
44:24
Speaker 2: gas comes through, it sounds like it sounds like blowing raspberries,
44:28
Speaker 2: which is what I called it. Babels. Oh that. Yeah,
44:35
Speaker 2: he is now my little body that you know, as
44:37
Speaker 2: part of my life now. And I'm just trying to
44:44
Speaker 2: kind of, I don't know, walk on egg shells in
44:46
Speaker 2: regards to finding a job, because you kind of have
44:50
Speaker 2: to disclose the better your health journey but also declared
44:54
Speaker 2: that it's not going to impact your job. Yeah, and
44:57
Speaker 2: there is diffinitely I'm definitely facing some stigma around that
45:01
Speaker 2: a little bit, and so it's just trying to find
45:04
Speaker 2: the right words to communicate that to employers without going
45:09
Speaker 2: I'm not compromised. I've just had an adjustment to my lifestyle.
45:14
Speaker 1: Yeah. Yeah, and that takes that takes understanding from the employer.
45:18
Speaker 1: Doesn't that that you don't necessarily need to know everything
45:21
Speaker 1: about stobers or anything like that, but it just understanding,
45:25
Speaker 1: you know, then that would Yeah, that would go a
45:28
Speaker 1: long way, I imagine.
45:31
Speaker 2: Yeah, it was great to have this connection. I mean,
45:34
Speaker 2: it took me the better part of a year before
45:36
Speaker 2: I posted my first photo on Instagram of me at
45:39
Speaker 2: the gym going that was part of my life and
45:42
Speaker 2: whether I try and get healthy and mean, when that
45:44
Speaker 2: went off with like a few hundred views, I was like, Okay,
45:48
Speaker 2: I'm onto something here. I'm gonna want to add something
45:51
Speaker 2: else now. So I took a photo of the cardio
45:56
Speaker 2: I did on the treadmill and it took me half
45:59
Speaker 2: an hour to do two one awesome, Okay, so two commas.
46:02
Speaker 2: Now I'll get to three and four and then five
46:05
Speaker 2: and then I'd go do a marathon sometime next year.
46:07
Speaker 2: Fingers crossed not a metal one maybe.
46:10
Speaker 1: Yeah. Absolutely, that's so good. It's so so good to
46:14
Speaker 1: hear that. It has been brilliant, really really good to
46:17
Speaker 1: have you on have this chat and have a chat
46:19
Speaker 1: about about stoners and about Hirshprungs and just very quickly
46:24
Speaker 1: before we before we wrap up, and where can people
46:26
Speaker 1: you mentioned Instagram? Where can people find you follow you
46:30
Speaker 1: keep up to date with with everything that's going on.
46:33
Speaker 2: Sure, So my handle is at c r J Cwford
46:38
Speaker 2: in ZI that you can find me by looking up
46:41
Speaker 2: port Awward.
46:43
Speaker 1: Fantastic well, I wish you the very very best with
46:47
Speaker 1: with your journey and we'll be We'll be following on
46:50
Speaker 1: Instagram to see to see how you're getting on. Thank
46:53
Speaker 1: you so much for coming on.
46:55
Speaker 2: Cheers.
46:56
Speaker 1: Thanks Tom, Thank you for listening and being part of
47:01
Speaker 1: this growing community. If you have enjoyed the episode, don't
47:04
Speaker 1: forget to subscribe, leave a review and share it with
47:08
Speaker 1: someone who might need it. You can connect with us
47:10
Speaker 1: on social media via Instagram, Facebook, and TikTok under the
47:14
Speaker 1: name Tom's Hirshprung's Podcast. See you next week.