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Episode 1 - A short introduction into Toms Hirschsprungs Podcast · Tom's Hirschsprung's Podcast

• 0:54
  Hello, and welcome to Tom's Hirst Browns Podcast. This is the very first
• 0:59
  episode and will act as an introduction into who I am, why I'm doing
• 1:03
  this, when and where it's going to be available, and who this is
• 1:07
  for. I'll also be inviting some very special guests to come and chat about
• 1:11
  their experiences with Hirshmung's disease and the positive steps that they're taking to not allowing
• 1:18
  Hirshbrung's disease to get in the way of what they want to do. Firstly,
• 1:23
  who am I? I am Tom, hence Tom's Hirshprung's Podcast. I
• 1:32
  was diagnosed with Hirshprung's disease a few weeks after birth and have been operated on
• 1:38
  many times. I'm currently on ten but not expecting anymore. I won't go
• 1:46
  through any of these today. This is just an introduction, but I will
• 1:51
  talk about some of those experiences on other episodes. I consider myself very fortunate
• 2:00
  with my hirshmrungs disease it Hirshbrong's disease, as it never stopped me from playing
• 2:06
  every sport growing up. I went on to play football and cricket at semi
• 2:09
  professional level, as well as working for Norwich City and Essex Cricket as a
• 2:14
  coach for just over a decade. In terms of how this podcast came about,
• 2:21
  I don't really think about my Hirshmung's disease from a day to day basis.
• 2:28
  But I saw my brother Andrew setting up a podcast for Type one Diabetes
• 2:35
  Team Type one Style shifting the perception of type one diabetes for anybody who wants
• 2:40
  to listen to that, and the three of them share their experiences with diabetes.
• 2:46
  So I thought to myself, why not help people with Hirshbrong's disease,
• 2:53
  which brings me onto the three aims of the podcast. The first thing would
• 3:01
  be to help those affected by Hirshbrong's disease, whether that be people diagnosed,
• 3:08
  parents, careers, or just anybody who wants to know more. For example,
• 3:15
  if you're a teacher and has had someone diagnosed with Hirshprung's disease in your
• 3:19
  class and you haven't got a clue what it is, I'm here to help.
• 3:24
  And the subject of helping. If you do have any questions on health,
• 3:29
  lifestyle, or if you have any comments about podcast at all, please
• 3:34
  email pompst Hirshprung's podcast at gmail dot com and I'll be doing a question and
• 3:39
  answer in around a month's time. I'm hoping sort of middle to late February,
• 3:46
  so it least plenty of times for everyone to get their questions in.
• 3:51
  The second name would be to create a positive environment around hirshprungs. I'm going
• 3:57
  to do this in a fairly simple way, but just for context, hirshbrongs
• 4:01
  disease affects one in five thousand people roughly, so eight billion people on the
• 4:06
  planet divide by five thousand, roughly one point six million people have hirshbrung disease.
• 4:15
  And I have found, as well as people contacting me, many people
• 4:18
  that would like to share their stories, including people involved in professional boxing,
• 4:24
  social media, influence influencers, students and doctors, as well as more.
• 4:29
  And I'm sure you'll find interesting as well as there and whilst this story might
• 4:33
  not specifically apply to you, you may find that you can take some experiences
• 4:39
  from them and apply to your own life. The third aim is to be
• 4:46
  interactive. This may take the longest, but I want to build a friendly
• 4:54
  Hirshbrungs disease community where we can share stories and helpful hints. Unerstand that this
• 5:00
  is the most ambitious and there are already people doing this, such as Help
• 5:04
  for Hirshbrungs in Australia that do some fantastic charitable work, especially with the NRL
• 5:13
  team, the Canterbury Banks Town Bulldogs and several local celebrities. But I want
• 5:16
  to create a worldwide community and I know this won't happen overnight, but I
• 5:21
  feel it is as equally important as the other two. In relation to this.
• 5:28
  In relation to this, sorry and feel free to contact me on Instagram,
• 5:32
  at Tom's Underscore, Hirshbrum's Underscore podcast, or email Tom's Hirshbrums podcast at
• 5:40
  gmont dot com. If you have a question or would like to be a
• 5:44
  guest, or if you want me to talk about any specific subject, then
• 5:49
  feel free to contact me on those platforms. I have nearly thirty two years
• 5:55
  of Hirshbrung's disease experience, so I'm sure I'll be able to find many personal
• 6:02
  stories that are the very least relatable, and to that point, I want
• 6:09
  to be transparent with this. I know that there might be some tricky parts
• 6:15
  to listen to it times, but I'd like to turn these into positives if
• 6:19
  I can. One example I can think off the top of my head would
• 6:27
  be that all the surgeries I've had have left me with a very high pain
• 6:33
  threshold, so things that would hurt others don't seem to hurt me. In
• 6:42
  a strange way. I see that as a positive. I will be doing
• 6:46
  a special episode as well on Rare Disease Day on the twenty ninth February twenty
• 6:53
  twenty four. Only happens once every four years, so we'll definitely have an
• 6:59
  episode really for that day. But ultimately I would like to add that this
• 7:09
  will be available every fortnight, so starting on the eleventh of January, we
• 7:15
  will release an episode once a fortnight. If I have more guests or more
• 7:25
  topics to cover, then I may release them more frequently, but at the
• 7:29
  moment planning once a fortnight. You'll find all the details on Instagram at Tom's
• 7:39
  Underscore Hirschbrum's Underscore podcast, and the podcast will be on Spotify. I am
• 7:46
  hoping to add more platforms, possibly iHeartRadio and Spreaker, but definitely just Spotify
• 7:57
  to start with, and all the details, as I say it will be
• 7:59
  on on Instagram Lastly, I do want to say thank you very much for
• 8:03
  listening to this short introduction into what the podcast is going to be about.
• 8:09
  Hopefully it gives you some idea of where it's going. Any questions or comments
• 8:16
  are very much appreciated. Again Instagram, Tom's Underscore, Hirshbrung's Underscore podcast,
• 8:24
  or email at Tom's Hirshbrongs podcast at gmail dot com. Please feel free to
• 8:30
  share this with anyone you think would benefit from it, and I will talk
• 8:35
  to you all again in two weeks time. Thank you for listening