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Episode 1 an introduction to Toms Hirschsprung's Podcast (reupload) · Tom's Hirschsprung's Podcast

• 0:05
  You are listening to Tom's Hirschbrung's Podcast, where I provide a look into the
• 0:09
  remarkable experiences of the most inspiring people around Hirshprung's disease and sports. Hello and
• 0:39
  welcome to Tom's Hirshprung's Podcast. This is the very first episode and will act
• 0:45
  as an introduction into who I am, why I'm doing this, when and
• 0:50
  where it's going to be available, and who this is for. I'll also
• 0:54
  be inviting some very special guests to come and chat about their experiences with Hirschmung's
• 0:58
  disease and the positive steps that they're taking to not allowing Hirshbrun's disease to get
• 1:03
  in the way of what they want to do. Firstly, who am I?
• 1:11
  I am Tom, hence Tom's Hirshbrong's Podcast. I was diagnosed with Hirshbrung's
• 1:18
  disease a few weeks after birth and have been operated on many times. I'm
• 1:25
  currently on ten but not expecting anymore. I won't go through any of these
• 1:32
  today. This is just an introduction, but I will talk about some of
• 1:36
  those experiences on other episodes. I consider myself very fortunate with my hirshrungs disease
• 1:46
  Hirshbrong's disease, as it never stopped me from playing every sport growing up.
• 1:52
  I went on to play football and cricket at semi professional level, as well
• 1:56
  as working for Norwich City and Essex Cricket as a coach for just over a
• 2:00
  decade. In terms of how this podcast came about, I don't really think
• 2:07
  about my Hirshmung's disease from a day to day basis. But I saw my
• 2:13
  brother Andrew setting up a podcast for Type one Diabetes Team Type one Style shifting
• 2:22
  the perception of Type one diabetes for anybody who wants to listen to that,
• 2:28
  and the three of them share their experiences with diabetes. So I thought to
• 2:32
  myself, why not help people with Hirshbrung's disease, which brings me onto the
• 2:40
  three aims of the podcast. The first thing would be to help those affected
• 2:47
  by Hirshbrung's disease, whether that be people diagnosed, parents, careers, or
• 2:54
  just anybody who wants to know more. For example, if you're a teacher
• 3:00
  and it's had someone diagnosed with Hirshbrong's disease in your class and you haven't got
• 3:05
  a clue what it is. I'm here to help and the subject of helping.
• 3:10
  If you do have any questions on health, lifestyle, or if you
• 3:15
  have any comments about podcast at all, please email pompst Hirshprungs Podcast at gmail
• 3:21
  dot com and I'll be doing a question and answer in around a month's time.
• 3:25
  I'm hoping sort of middle to late February, so it least plenty of
• 3:31
  times for everyone to get their questions in. The Second aame would be to
• 3:37
  create a positive environment around hirshprungs. I'm going to do this in a fairly
• 3:42
  simple way, but just for context, hirshprongs disease affects one in five thousand
• 3:47
  people roughly, so eight billion people on the planet divide by five thousand,
• 3:54
  roughly one point six million people have hirshbrung disease. And I have found,
• 4:00
  as well as people contacting me, many people that would like to share their
• 4:03
  stories, including people involved in professional boxing, social media influence, influencers,
• 4:11
  students and doctors, as well as more. And I'm sure you'll find interesting
• 4:15
  as well as there. And whilst this story might not specifically apply to you,
• 4:20
  you may find that you can take some experiences from them and apply to
• 4:26
  your own life. The third aim is to be interactive. This may take
• 4:33
  the longest, but I want to build a friendly Hirschbrungs disease community where we
• 4:40
  can share stories and helpful hints. I understand that this is the most ambitious
• 4:46
  and there are already people doing this, such as Help for Hirshbrons in Australia
• 4:51
  that do some fantastic charitable work, especially with the NRL team, the Canterbury
• 4:58
  Banks Town Bulldogs and all local celebrities. But I want to create a worldwide
• 5:02
  community, and I know this won't happen overnight, but I feel it is
• 5:06
  as equally important as the other two. In relation to this. In relation
• 5:13
  to this, sorry and feel free to contact me on Instagram, at Tom's
• 5:17
  Underscore, Hirshbrum's Underscore podcast, or email Tom's Hirshbrum's podcast at gmont dot com.
• 5:26
  If you have a question or would like to be a guest, or
• 5:29
  if you want me to talk about any specific subject, then feel free to
• 5:34
  contact me on those platforms. I have nearly thirty two years of Hirshbrung's disease
• 5:41
  experience, so I'm sure I'll be able to find many personal stories that are
• 5:47
  the very least relatable, and to that point, I want to be transparent
• 5:55
  with this. I know that there might be some tricky past, so listen
• 6:00
  to it times, but I'd like to turn these into positives if I can.
• 6:06
  One example I can think off the top of my head would be that
• 6:12
  all the surgeries I've had have left me with a very high pain threshold,
• 6:20
  so things that would hurt others don't seem to hurt me in a strange way.
• 6:27
  I see that as a positive. I will be doing a special episode
• 6:31
  as well on Rare Disease Day on the twenty ninth of February twenty twenty four.
• 6:39
  Only happens once every four years, so we'll definitely have an episode ready
• 6:45
  for that day. But ultimately I would like to add that this will be
• 6:53
  available every fortnight, so starting on the eleventh of January, we will release
• 7:00
  an episode once a fortnight. If I have more guests or more topics to
• 7:10
  cover, then I may release them more frequently, but at the moment planning
• 7:15
  once a fortnight. You'll find all the details on Instagram at Tom's Underscore Hirschbrum's
• 7:24
  Underscore podcast, and the podcast will be on Spotify. I am hoping to
• 7:31
  add more platforms possibly iHeartRadio and Speaker, but definitely just Spotify to start with,
• 7:42
  and all the details as I say, it will be on Instagram.
• 7:46
  Lastly, I do want to say thank you very much for listening to this
• 7:49
  short introduction into what the podcast is going to be about. Hopefully it gives
• 7:55
  you some idea of where it's going. Any question, questions, or comments
• 8:01
  are very much appreciated. Again Instagram, Tom's Underscore Hirshbrungs Underscore Podcast, or
• 8:07
  email at Tom's Hirshbrongs Podcast at gmail dot com. Please feel free to share
• 8:15
  this with anyone you think would benefit from it, and I will talk to
• 8:20
  you all again in two weeks time. Thank you for listening, Thank you
• 8:31
  for listening to the podcast. Find us on Instagram at Tom's Underscore Hirshbrung's Underscore
• 8:37
  Podcast. Listen to previous episodes on Spotify by searching Tom's Hirshbrung's podcast