Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / AUTISM Advocacy in 2019 (Where Are We Headed?)

Transcript

AUTISM Advocacy in 2019 (Where Are We Headed?) · Aspergers & Autism Podcast [The Aspie World] AuDHD

• 0:07
  Hey guys, welcome back to the astral World podcast again.
• 0:10
  I'm so sorry that this has been a delayed episode.
• 0:13
  I feel like there's been a backlog.
• 0:14
  I think I missed a week of uploading and it's all my fault
• 0:17
  because I've been so busy with other things and recording
• 0:19
  videos on my camera could have broke anyway enough excuses were
• 0:23
  back with the afterworld podcast in this week's episode or in
• 0:27
  this specific episode for the movie to this week.
• 0:29
  There is a cliff I took from a video of me. talking not an
• 0:41
  Autism event here on Anglesey where I live about what the
• 0:45
  advocacy is that I do. So autism.
• 0:47
  Advocacy in 2019. The where is where is it headed?
• 0:51
  What am I doing? How do I inspire people one of
• 0:53
  the things I'm doing with the astral world.
• 0:54
  So yeah, you might enjoy this one something a little bit
• 0:57
  different than what I normally do is actually taken from a live
• 0:59
  talk. So I hope you enjoy and if you
• 1:01
  want to support this podcast and donate money to the podcast hit
• 1:04
  that funding by a quotient is there because literally we're
• 1:07
  using a tiny microphone on an iPhone you can do at patreon.com
• 1:10
  forward slash the To be World. Thanks guys.
• 1:12
  Peace. I mean it's difficult because I
• 1:17
  can only talk for hours. Okay, so I'm going to condense
• 1:20
  everything into a 20-minute kind of presentation.
• 1:23
  I've done this presentation, maybe twice or three times four
• 1:26
  is already so actually pretty cool.
• 1:29
  So yeah, I'm done and this is my brand or like I don't know what
• 1:33
  you want to call them a professional name is that ask me
• 1:35
  world. I have a diagnosis of Asperger
• 1:38
  syndrome ADHD OCD and dyslexia, and I'm also an international
• 1:41
  best-selling author and three languages and I currently four.
• 1:46
  Like what I do for work. And advocacy is I YouTuber or
• 1:49
  social media influence where I influence educate people about
• 1:53
  like my personal life experiences and things like
• 1:55
  that, which is kind of cool. So like I said call the ask me
• 1:57
  world my channels currently 71 almost seventy two thousand
• 2:00
  subscribers, which is crazy. I got about 1.6 million
• 2:04
  individual views every single 28 day cycle, which is crazy good
• 2:08
  and it's crazy good because of the amount of people who are
• 2:10
  watching again educated and learning things, which is really
• 2:13
  really awesome. One of the things I'm trying to
• 2:15
  do is Build Authority through what I'm doing so that we can
• 2:20
  then try and and take something that's like, you know, an army
• 2:23
  of people online who have a condition or want to better
• 2:27
  educate the world with the condition and then take that to
• 2:30
  more political aspects like rather than just having autism
• 2:32
  our let's make it a standard, you know like that.
• 2:34
  Lots of really bugs me. So that's one of the things
• 2:35
  we're trying to do also have ADHD, so I'm talking really
• 2:38
  really really really fast. I'm very very sorry and I don't
• 2:41
  have caffeine or sugar anymore, but it's still it's difficult to
• 2:45
  slow down. So anyway, Condense everything
• 2:46
  to 20 20 minutes or so. So you guys can have some Q&A as
• 2:49
  well also. So yeah, I'm basically talk
• 2:52
  about my experiences of living with ASD online.
• 2:55
  That's what I do on YouTube. I upload like videos every
• 2:58
  single week. My book is my book at the best
• 3:02
  seller Baca got out in the US and the UK is about kind of my
• 3:06
  experiences and how you Star Wars to kind of help.
• 3:09
  I don't know feel more normal in society.
• 3:12
  It's cause it's a cool book. Anyway enough of my rambling of
• 3:16
  My self promotion. So is this going to work if I
• 3:18
  press I know is that I have to click it.
• 3:20
  It's going to do it do it. Hey, so YouTube Okay, cool.
• 3:25
  So, like I said, I'm kind of well known for my YouTube
• 3:29
  advocacy. So what I do is I upload videos
• 3:31
  on YouTube every single week talking about cool fun life
• 3:34
  experiences, but all the you know things that pull and what I
• 3:37
  do is I get a chance to put videos that have myself that you
• 3:41
  know, all my life experiences things that I never realized
• 3:43
  will valuable to people all the times I've lived.
• 3:46
  Because you know, I've done a lot in 32 years and and the
• 3:50
  people just absolutely love it and educates so many people it's
• 3:53
  phenomenal and the amount of people that I've helped change
• 3:57
  their lives, which is crazy. It's super super awesome.
• 3:59
  That's why I do I love doing it. I've worked very closely with
• 4:02
  the national autistic Society also ambitious about autism and
• 4:06
  some other random companies like u.s.
• 4:08
  USA based companies don't have anything standard in the u.s.
• 4:11
  Kind of like a national system Society.
• 4:13
  So yeah, I work at all these kind of companies and one of the
• 4:16
  reason why I chose YouTube because YouTube has a user
• 4:19
  platform of 1 billion 300 million active users.
• 4:22
  And that's incredible. What a lot of people to reach.
• 4:24
  So a lot of people use advocacy on Facebook and try and reach
• 4:27
  out on other social media platforms.
• 4:28
  But YouTube is the second largest search engine in the
• 4:31
  world next to Google and also uses the Google smart brain
• 4:33
  algorithmic techniques. So that's pretty pretty awesome.
• 4:36
  That's why I use YouTube to do it.
• 4:37
  So yeah, it's cool. It comes with issues actually
• 4:41
  though because I'm on YouTube all the time.
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  I literally went to Ellie in June last year.
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  Do a networking thing for YouTube and it's huge conference
• 4:49
  called VidCon. So I had a guy come with me as
• 4:51
  my assistant helps me travel because I have issues with
• 4:53
  traveling and things like that. And as soon as I stepped off the
• 4:55
  plane going through TSA in La something like oh my God, I've
• 4:58
  seen on YouTube blah blah and so it presents itself with
• 5:01
  interesting situations where I like to distance myself from an
• 5:04
  audience because I'm sorry my computer recording videos, but
• 5:06
  then also when I'm in the public people want to come to talk to
• 5:09
  me about my advocacy and that's kind of weird because I'd you
• 5:12
  know, I did that online so I wouldn't have to speak to your
• 5:15
  face. Anyway enough about that YouTube
• 5:18
  is really interesting because as Open Access freedom of speech
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  which is very very powerful, especially if we're doing things
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  from a personal perspective. There's no kind of closed book
• 5:26
  it off to follow any kind of bizarre guidelines.
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  Okay, unless you like you're stupid and filming silly things,
• 5:32
  you know, there are guidelines for that.
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  But typically you can say what you want and freedom of speech
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  and you don't really get judged to get haters, but he is
• 5:37
  everywhere you got to double all the way but the idea of YouTube
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  is that it's open access free and it builds something quite
• 5:43
  interesting which is community. So what I do, My channel is I
• 5:46
  also build a community of people who can help other people.
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  So what I wanted to do is when I first started advocacy people
• 5:54
  would like email McDonald about this.
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  Well, this will do this. So I got about 10,000 emails
• 5:57
  every single month and I'm like I get to 10,000 emails a month
• 6:00
  or so was I God so what I needed was a system for people to help
• 6:03
  each other because that's how I believe a society will push
• 6:06
  yourself forward. So I said, I have Facebook
• 6:08
  groups and I also set up like YouTube Community groups on
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  YouTube so that My that works phenomenally.
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  Well, and one of the one of the biggest things my channel does
• 6:21
  is so there's two things educate people in certain aspects of
• 6:25
  autism or any kind of like Spectrum condition ADHD and
• 6:31
  stuff. We are also deeply want talking
• 6:32
  about those things depression anxiety.
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  All those lovely things that come with it and it educate
• 6:38
  those people in those areas and it also helps people find
• 6:40
  diagnosis because I did a video on like a step-by-step guide
• 6:43
  like how you know, because that's one of the biggest People
• 6:46
  say oh, you know, I believe I'm on the Spectrum or whatever and
• 6:48
  then they say, oh I do I go from here.
• 6:50
  So that's one of the things that kind of guide them through this
• 6:52
  process, which is powerful. But the second thing I try to do
• 6:56
  because obviously a large portion of my audience people
• 6:59
  who are on the Spectrum I try to inspire so like I want to be
• 7:04
  this like cause for inspiration to empower people on the
• 7:06
  Spectrum to do something super super awesome.
• 7:08
  So I left school with no qualifications because obviously
• 7:13
  I was in school in the 90s and let's face.
• 7:15
  Face it the 90s was a terrible time for supporting people with
• 7:19
  ASD. So I was basically in the
• 7:22
  additional needs part of the school, but it was terrible, you
• 7:26
  know, like it for mathematics. We have to Circle tennis racket
• 7:28
  to stuff. It was really really
• 7:29
  unstimulating and terrible and I got in trouble a lot because
• 7:32
  it's a tell the teachers why they were wrong a lot of the
• 7:33
  time with the history and science nonsense because they
• 7:36
  were actually wrong and it's weird and I realized that a lot
• 7:38
  of primary school teachers don't even have a degree in science as
• 7:41
  on a teaching science. That's quite interesting.
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  So leaving school with no complete no qualifications of Ro
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  I decided that I was getting into the sump like every with
• 7:49
  ASD kind of get into this the rut where they feel kind of
• 7:51
  detached from reality a little bit and then you think oh, you
• 7:55
  know, it's difficult to get into this kind of social Norm routing
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  where people do this again University and I go partying and
• 8:00
  all crazy and it's cool and they'll you know and all this
• 8:02
  weird Rat Race nonsense. So I was like hugging us and I
• 8:05
  got us a really low part then I thought well, I really like to
• 8:08
  focus on some crazy stuff. You ask me anything about 9/11.
• 8:11
  I know it's really more than gross.
• 8:12
  But I know everything there is to know about 9/11.
• 8:14
  We actually did a presentation. On a one this like a competition
• 8:17
  for putting together the factual knowledge on the scientific data
• 8:21
  in the 911 dust, which is really boring but very very exciting so
• 8:25
  I know everything about it and I realized that I could actually
• 8:28
  hyper focus on something for a long time a lot about its that
• 8:31
  was like, oh my dyslexic, right? So I've got like an attempt in
• 8:37
  an inkblot and walk across the page, but I also have a book
• 8:41
  out. So one of these things I wanted
• 8:42
  to do is change my perspective and my viewpoint and life.
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  Being like this person who is very low instead of low on
• 8:48
  self-esteem to push myself forward to doing crazy cool
• 8:51
  things. So the first thing I did was I
• 8:54
  wanted to set goals and it is what I try to do to inspire
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  people with ASD is say like if you have a goal on idea you want
• 9:01
  to do something will set your mind to it and do it and I'm
• 9:04
  like living proof of that because I played music for many
• 9:07
  years the first thing I did I wanted to play music and get a
• 9:10
  wrap it out. Right so I decided that I wanted
• 9:12
  a CD out in Japan. They don't know why it was just
• 9:14
  a cool idea the time because Japan is a cool music scene.
• 9:16
  So when you nobody in Japan can't speak a word of Japanese
• 9:19
  and managed to get my band's album signed to a label in Japan
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  released got this number five in the charts in Japan, which is
• 9:25
  crazy which is super cool. So that was one thing all the
• 9:27
  way then the next thing was leaving school and or
• 9:29
  qualifications was crazy, but I always loved science and I
• 9:32
  always loved learning about things.
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  So I decided to do a degree in chemistry.
• 9:36
  I don't know why I'd kind of not regret it, but when I realized
• 9:39
  what the hardest degree probably do, it was interesting with the
• 9:42
  workload for timing because obviously it didn't interact.
• 9:45
  With my bad sleeping habits, so I did a degree in chemistry and
• 9:48
  now obviously I'm a chemist which is why interesting but
• 9:51
  obviously having no qualifications to go into the
• 9:52
  green chemistry is quite fascinating for anybody and then
• 9:56
  with YouTube. So one of the things I wanted to
• 9:59
  do, it was create a job as well because I've worked in different
• 10:02
  kind of factors and I've always kind of had to leave because
• 10:05
  I've had emotional issues. So it's really embarrassing to
• 10:08
  go to work and then you have this huge meltdown and I like
• 10:10
  what's wrong and I have no idea so they're like, okay so then my
• 10:12
  doctors like you can't work more than this many hours and think
• 10:15
  And who's going to give somebody a job for two days a week?
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  And how was I going to pay the bill?
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  So I realized that I had to create something creative for
• 10:22
  myself so I could you know be this person who lives in society
• 10:26
  country sought society and isn't kind of like depressed all the
• 10:28
  time. So YouTube was that platform for
• 10:30
  me, but I had to learn about it. So going from no subscribers.
• 10:34
  Don't do nothing on YouTube and watching like countless hours of
• 10:38
  people how to use algorithmic SEO which is how you like search
• 10:42
  engine optimization on YouTube. How do you get your channel to
• 10:45
  come up first? YouTube so people see your
• 10:46
  videos and it grows basically I say idea so I watched all these
• 10:50
  like channels on these TV shows on how to do it in on these
• 10:53
  experts tell me about SEO. Excuse me.
• 10:56
  I'm one of the best things was and this is crazy in like
• 10:59
  January of 2018. I was watching the show called
• 11:03
  video influencers where these guys talk you through how to
• 11:06
  make your channel cool and he's got these guys the expert then I
• 11:09
  got really obsessed with it, like everybody else for that.
• 11:11
  History gets really obsessed with something and I was like,
• 11:13
  oh my God, I love this algorithmic.
• 11:15
  SEO it's mathematics. It's just amazing.
• 11:18
  So I just completely obsessed with it for ages.
• 11:20
  My girlfriend hated it. She still does because I'm still
• 11:22
  obsessed with SEO marketing. And so and then I went to LA to
• 11:27
  this VidCon and the irony was I was actually interviewed by that
• 11:30
  channel. So from January, I was watching
• 11:32
  him and then in June I was interviewed on their Channel as
• 11:34
  an expert telling them how to grow their Channel which is
• 11:36
  quite interesting side exponential growth.
• 11:38
  So all that stuff. I find super super interesting
• 11:41
  and realizing that like, I'm just like anybody else on the
• 11:44
  structure. I'm so there's No limit to what
• 11:46
  you can do. So the inspiration part I love
• 11:48
  doing that. I call the awesome super power.
• 11:50
  So I try to get people to the so cool image isn't a stolen.
• 11:56
  So yeah, I didn't make this so it's cool.
• 11:59
  So I yeah, I try to get people to use autism has a superpower
• 12:02
  because a lot of people find it as it's really negative thing
• 12:05
  and it does impact people's lives and negatively I guess and
• 12:07
  I feel that from time to time but if you focus on the
• 12:10
  negative, it was a downward spiral.
• 12:12
  So what I try and do is I try and be as upbeat as possible
• 12:14
  videos to get Younger people or anybody who is surrounded by ASD
• 12:19
  or involved with it. It's a realize that there's
• 12:21
  super good potential. I because people say to me like,
• 12:23
  ah, you know, I've got no shot. No good focus in life, and I got
• 12:28
  no way of getting a job as a what your interests are gaming.
• 12:31
  I said, you know, there's a huge just to actually making videos
• 12:35
  online streaming yourself playing games crazy.
• 12:37
  They make way more money than I do and I like what and I say
• 12:40
  game testers create your own game.
• 12:41
  Why don't you do a degree where you learn how to code games be a
• 12:45
  game? Koda, why don't you be a
• 12:46
  graphical artist for games. There's so many different
• 12:49
  opportunities for people like if you're the best if you're the
• 12:51
  person who knows most about Pokemon that I love Pokemon, but
• 12:55
  if you're a person who's your main obsessions Pokemon what -
• 12:58
  like 9/11 then you could like really dig down and get
• 13:02
  everything in this know about Pokemon a be the best Channel on
• 13:04
  YouTube about Pokemon and people pay you to do it.
• 13:06
  So people kind of have this Focus that if you're not like
• 13:09
  working in a shop or an office or like going to building side,
• 13:12
  then you don't really have a career ahead of you which is
• 13:15
  Nonsense on moving forward especially with people with
• 13:18
  digital Age Technology and Millennials who are on the
• 13:21
  Spectrum who love technology. This is the coolest way to do it
• 13:24
  and I love doing that and I Empower so many people to do it.
• 13:28
  And yeah, it's just kind of like, I don't know why I find
• 13:32
  that part for filling also working with the national
• 13:34
  autistic society and other people raising awareness and
• 13:37
  raising understanding and the idea of the channel or the
• 13:39
  double the work that I do is like I said, I Empower people to
• 13:43
  use something positively and like push him Force being
• 13:46
  awesome, but I also educate people from real life
• 13:48
  experiences. So without further Ado I
• 13:50
  hopefully have rambled on for too many hours that moving
• 13:54
  forward in the future. What I'm doing is I'm going to
• 13:57
  try and mobile mobilize my online presence and that
• 14:02
  Authority have online to take it to like they'll societal levels
• 14:06
  and trying to change how things are and the last thing I'll say
• 14:09
  on that is basically how I view it is that if you go back to
• 14:11
  like the, you know, the 50s and the 40's wheelchair access and
• 14:13
  stores with never mandatory and if you had a A wheelchair then
• 14:16
  I'll get it for you. But like now it's like oh my
• 14:19
  goodness in that phase where there's no neurodiverse kind of
• 14:22
  like put shops and stuff at accommodating for people on the
• 14:24
  Spectrum and which really annoys me and they use like terrible
• 14:27
  lighting and it is all set up really really bad.
• 14:30
  And if you think that one in 60 people in the US and one in 100
• 14:33
  people in the UK is probably a bit more now have a diagnosis of
• 14:36
  ASD. That's a lot of people your kind
• 14:38
  of like leaving out of taking care of that.
• 14:41
  So that's one of things I'm going to try and do is move that
• 14:44
  move the times for Word and get people to really change how they
• 14:48
  are. So anyway, that's me, and I'm
• 14:50
  done. I'm done.
• 14:51
  Thank you for listening to me ramble on about nothing for
• 14:53
  ages. That's a cool picture, isn't it?
• 14:55
  Alright. Thanks a lot.