Latest / The Healthy Diabetic / #391: Clinical Knowledge vs. Lived Experience - Why Knowing About Diabetes & Living With It Are Completely Different Things - Charity Dimas

Transcript

#391: Clinical Knowledge vs. Lived Experience - Why Knowing About Diabetes & Living With It Are Completely Different Things - Charity Dimas · The Healthy Diabetic

• 0:15
  SPEAKER_02: Welcome back.
• 0:16
  SPEAKER_02: This is episode number 391 of the Healthy Diabetic Podcast.
• 0:21
  SPEAKER_02: I'm your host, Coach Ken Kaniss.
• 0:22
  SPEAKER_02: If you don't know much about my story, I was diagnosed with type 1 diabetes at the age of 25 in 2007.
• 0:28
  SPEAKER_02: And I'm the founder of Stimplifying Live with Diabetes, a diabetes health coaching company that bridges the gap between your medical team and the daily complexities that you face every single day living with this condition between your doctor's appointments.
• 0:41
  SPEAKER_02: I truly believe that every single one of us living or caring for someone with type 1 diabetes only has one job, and that's to figure out what's going to work for you.
• 0:49
  SPEAKER_02: If you're looking for new perspectives and new ideas on how to live with diabetes, you've come to the right place.
• 0:55
  SPEAKER_02: As always, before we get started, please remember that nothing that you hear on this podcast should be considered medical advice or otherwise.
• 1:00
  SPEAKER_02: Please always consult your medical team before making any changes to your diabetes management.
• 1:06
  SPEAKER_02: Okay, I got a fabulous guest for you guys today.
• 1:09
  SPEAKER_02: I'm so excited for you to share this one with you.
• 1:12
  SPEAKER_02: I got to sit down with charity.
• 1:14
  SPEAKER_02: Her friends call her Jay, and she is a type 1 diabetic.
• 1:18
  SPEAKER_02: She was actually just diagnosed in March of 2026, or just this year, which hasn't been a diabetic for even a year yet.
• 1:27
  SPEAKER_02: So she's brand spaking news.
• 1:29
  SPEAKER_02: We talked a lot about her diagnosis.
• 1:31
  SPEAKER_02: We talked a lot about her journey so far, what she's learned so far.
• 1:35
  SPEAKER_02: But also she has an interesting perspective because she's worked in the clinical setting.
• 1:41
  SPEAKER_02: She worked in EMS for eight years.
• 1:43
  SPEAKER_02: She's done nursing school.
• 1:45
  SPEAKER_02: She studied dietetics.
• 1:47
  SPEAKER_02: And through all of that stuff, she because she came from the clinical realm, I guess the clinical space, she had a really good understanding of what type 1 diabetes was.
• 1:59
  SPEAKER_02: But one of the interesting things from this conversation, from having the clinical experience and then being thrown into the world of type 1 diabetes, like her world was like overturned, and we talked really deep into that, the mental capacity of that, the physical capacity of that, how you know her clinical experience helped her, but also she had to learn a lot because the clinical aspect didn't give her some things that she really needed and you know, managing type one.
• 2:29
  SPEAKER_02: So this is just it's such a fascinating.
• 2:32
  SPEAKER_02: I'm so excited for this episode.
• 2:34
  SPEAKER_02: It's such a fascinating episode for all kinds of different reasons.
• 2:38
  SPEAKER_02: But so without further ado, let's get with type one diabetic charity.
• 2:43
  SPEAKER_00: So I'm charity.
• 2:44
  SPEAKER_00: I usually go by Che.
• 2:45
  SPEAKER_00: I work in healthcare compliance for an organ procurement organization.
• 2:49
  SPEAKER_00: So yeah.
• 2:51
  SPEAKER_00: Yeah.
• 2:52
  SPEAKER_00: So anytime you have a deceased organ donor in my region, we're the ones who go in and do the surgeries for organ and tissue, which is very interesting.
• 3:04
  SPEAKER_00: And I've learned more about pancreases than I ever thought I would, especially since before I started there, I hadn't been diagnosed with diabetes yet.
• 3:11
  SPEAKER_02: Oh wow.
• 3:11
  SPEAKER_02: How long have you been there?
• 3:13
  SPEAKER_00: I only started there in February.
• 3:15
  SPEAKER_02: Okay.
• 3:15
  SPEAKER_00: So I'm fairly new there.
• 3:17
  SPEAKER_00: Okay.
• 3:18
  SPEAKER_00: And but before that, I was a dietetics major and then I changed majors to go EMS and I worked EMS for a lot of years.
• 3:29
  SPEAKER_00: Then I went to nursing school and changed majors again the second time I went back to school.
• 3:36
  SPEAKER_00: Because I'm really good at that.
• 3:38
  SPEAKER_02: I mean, that's your care that's your job.
• 3:39
  SPEAKER_02: That's your career right there.
• 3:40
  SPEAKER_02: Just changing majors.
• 3:41
  SPEAKER_02: I mean, that's something exactly like me.
• 3:43
  SPEAKER_02: I changed my major three times.
• 3:45
  SPEAKER_00: I know.
• 3:46
  SPEAKER_00: I'm like, I yeah, went to school, changed my major, finished, went to school, changed my major, finished.
• 3:51
  SPEAKER_04: That's even better.
• 3:52
  SPEAKER_04: That's even better.
• 3:54
  SPEAKER_00: I know.
• 3:55
  SPEAKER_00: So finished in health science emphasis and healthcare risk management.
• 4:00
  SPEAKER_00: And now I'm back in school a third time working on a triple master's degree because I couldn't just settle on one major.
• 4:06
  SPEAKER_02: Um girl.
• 4:08
  SPEAKER_02: That's some major stuff right there.
• 4:10
  SPEAKER_02: Like a triple are you're doing all three in one at one time?
• 4:14
  SPEAKER_00: All three at one time.
• 4:15
  SPEAKER_00: So they do kind of go together well.
• 4:17
  SPEAKER_00: It's an MBA, a master's in data analysis, and a master's in risk management.
• 4:23
  SPEAKER_00: And so I grouped those together, especially.
• 4:26
  SPEAKER_00: So I was diagnosed with diabetes in March of this year, which was a whole whirlwind, and especially right after changing jobs, getting a new job.
• 4:39
  SPEAKER_00: And I don't know where you want me to go from here.
• 4:42
  SPEAKER_02: Well, I think so.
• 4:43
  SPEAKER_02: Let's go here because you how long were you in nursing?
• 4:47
  SPEAKER_00: So I worked EMS for eight years, and then I worked as a medical assistant, and I actually did a lot of type 2 diabetes education at my medical assisting job because it was a family practice office.
• 4:59
  SPEAKER_00: Did that for about three years, and then I was in nursing school.
• 5:03
  SPEAKER_00: I was halfway through my second set of clinical rotations when I changed majors to health science.
• 5:09
  SPEAKER_02: Okay.
• 5:10
  SPEAKER_02: So the the reason I asked that is because, like in all of these things that you've been able to accomplish, all these things, all these certs, all these, all these degrees, all these things that you've gone into, you you you had a pretty it sounded like you had a pretty decent idea about diabetes, type one and type two.
• 5:31
  SPEAKER_00: I knew quite a bit going into it, which was great.
• 5:34
  SPEAKER_00: It definitely helped the clinical information stick for me, but learning to live with it as the patient was a paradigm shift for sure.
• 5:44
  SPEAKER_02: Okay.
• 5:44
  SPEAKER_02: Talk about that.
• 5:45
  SPEAKER_02: What what what about what about the having to go through the paradigm shift?
• 5:50
  SPEAKER_02: Like, talk about that a little bit.
• 5:53
  SPEAKER_00: Yeah.
• 5:53
  SPEAKER_00: So, I mean, from the clinical perspective, I would just look at it and it's like, okay, you've got your your evidence, you've got your data, you've got the outcomes you want to see, you know what the medications are and how they're supposed to react in the body.
• 6:06
  SPEAKER_00: And on the clinical side, no one teaches the clinicians that all the other things that affect your blood sugar.
• 6:13
  SPEAKER_00: Like in all the time I was educated about diabetes, I didn't know how much hormones impacted blood sugar, and I didn't know how much like sleep deprivation or stress.
• 6:23
  SPEAKER_00: And living with it, it taught me like, okay, like, yeah, I know what this should be doing on paper.
• 6:29
  SPEAKER_00: I know what the clinical aspect says should be happening here, and that is not what I'm seeing in my body.
• 6:34
  SPEAKER_00: Um, so it definitely taught me to give myself a lot of grace, and it also helped me understand truly that like the data set that you received from your CGM or your pump or like any of those tools that you use to track your diabetes, those things don't work if you don't have the context.
• 6:53
  SPEAKER_00: You need context to make sense of the data.
• 6:56
  SPEAKER_00: And that, like, again, it made it in some ways easier for me to have the diagnosis and be like, well, I know all these things, so I don't need to learn how to count carbs and I don't need to learn how to dose insulin or how to even give a shot.
• 7:11
  SPEAKER_00: Like, I knew those things and I even taught those things to patients.
• 7:16
  SPEAKER_00: But it was also like I had this like bias almost that, like, oh, like this is how you should be able to manage it, so it shouldn't be that hard.
• 7:24
  SPEAKER_00: And it made me really hard on myself for a long time.
• 7:28
  SPEAKER_02: Hmm.
• 7:29
  SPEAKER_02: Did you have you felt in this at the beginning part of this journey?
• 7:33
  SPEAKER_02: Because you're still brand new, have you ha have you felt like because you're saying that you've been hard on you on yourself?
• 7:42
  SPEAKER_02: Have you felt like I've got all this clinical experience?
• 7:46
  SPEAKER_02: I shouldn't I should understand how to deal with this thing.
• 7:49
  SPEAKER_02: And I definitely is that where like is that where like you being hard on yourself, is that where that's maybe coming from?
• 7:56
  SPEAKER_00: Probably.
• 7:57
  SPEAKER_00: I'm also just very much a perfectionist.
• 8:00
  SPEAKER_00: Like things have to be the right way.
• 8:02
  SPEAKER_00: I'm particular about it.
• 8:05
  SPEAKER_00: Um but also like you feel like if you understand something, you should be able to accomplish the the end goal of every time.
• 8:16
  SPEAKER_00: Right.
• 8:17
  SPEAKER_00: And understanding and doing are not the same thing.
• 8:20
  SPEAKER_02: 100%.
• 8:22
  SPEAKER_02: I j I think it's very interesting as we as we go down this rabbit hole of of the clinical versus the actual lived experience.
• 8:37
  SPEAKER_02: It breaks my heart when I hear people say that oh, I'm gonna go on an insulin pump next month and that'll change everything.
• 8:45
  SPEAKER_02: Or I hope that will change everything.
• 8:47
  SPEAKER_02: And I think one of the most powerful things that you said was that you can have all the tools in the world, but if you don't have the context on how to actually use that tool, it doesn't matter.
• 8:59
  SPEAKER_04: Absolutely.
• 9:00
  SPEAKER_02: And and that is like something that I feel like I really wish every single person living with type 1 diabetes really truly understood.
• 9:08
  SPEAKER_00: Yeah.
• 9:09
  SPEAKER_00: It's hard to understand, and it makes you ask whether the system supports the outcome we expect.
• 9:14
  SPEAKER_00: Because if you think, oh, like the pump system will help support this outcome, or switching to MDI will help support this outcome, it doesn't do that.
• 9:22
  SPEAKER_00: And you really have to have compassion for the individual who's trying to manage not just the data set, but the circumstances that lead to that data set.
• 9:31
  SPEAKER_00: And compassion and curiosity, like if you if you don't stay curious, the amount of data that we get, the amount of information that's blown in our faces from our CGMs, it's it's gonna be overwhelming and it's gonna be frustrating.
• 9:44
  SPEAKER_00: And you just have to remember, like, slow down and ask, okay, what led to this high?
• 9:48
  SPEAKER_00: What led to this low?
• 9:49
  SPEAKER_00: Why is my body not doing this?
• 9:51
  SPEAKER_00: Like, what did I eat yesterday?
• 9:52
  SPEAKER_00: Where am I for me, especially because I'm a girl, where am I at in my cycle?
• 9:57
  SPEAKER_00: I just went, I live up in Utah and we went to California and the elevation changed mess with my blood sugar, and I didn't expect that at all.
• 10:04
  SPEAKER_00: And again, just being compassionate for yourself and then also being curious about what the data's trying to teach you.
• 10:11
  SPEAKER_00: Yeah.
• 10:12
  SPEAKER_02: So I think compassion is a really interesting concept because I feel like I 100% agree with you.
• 10:22
  SPEAKER_02: Where when we think about compassion, one of the most important things I feel like living with type 1 diabetes is giving yourself that grace and giving yourself that compassion.
• 10:33
  SPEAKER_02: But then when you're coming up against a wall and other parts of your life, whether it's from the clinical per part, whether it's from friends and family, whether it's from job, whether it's from other different other things, relationships, you're coming up against this wall that doesn't that you don't feel compassion, you don't feel heard, you don't feel listened to.
• 10:53
  SPEAKER_02: It now makes the compassion that you give yourself even harder to take.
• 10:57
  SPEAKER_00: Yeah.
• 10:59
  SPEAKER_00: So I heard someone say once that you have to love yourself more than you love anyone else.
• 11:08
  SPEAKER_00: Um I hated it when I first heard it.
• 11:11
  SPEAKER_00: I was like, no, I don't like that.
• 11:12
  SPEAKER_00: Like you have to be, I mean, my name's Cherry.
• 11:15
  SPEAKER_00: You have to be charitable, you have to be kind, you have to love other people, you have to let other people in.
• 11:19
  SPEAKER_00: But if you don't take care of yourself, like how can you expect anyone else to love you and want to take care of you if you're not willing to do it for yourself?
• 11:27
  SPEAKER_02: Yeah, yeah.
• 11:29
  SPEAKER_02: I think that's such a a really interesting concept, too, because it also isn't just about diabetes, but it's about life and and living life, right?
• 11:39
  SPEAKER_02: You gotta take care of yourself, right?
• 11:41
  SPEAKER_02: As a parent, you gotta take care of yourself because if you don't, that's going to bleed over into your relationships and it's gonna bleed over into you raising your kids.
• 11:52
  SPEAKER_02: And it's it's it's so interesting the mental aspects of everything because it really can put us in a really hard space and a hard, hard place.
• 12:03
  SPEAKER_00: Yeah, it can.
• 12:05
  SPEAKER_00: And a lot of people don't talk about like the side of grief with diabetes.
• 12:10
  SPEAKER_00: When you're a newly diagno diagnosed diabetic, there's a lot of grief and you absolutely go through the stages of grief.
• 12:15
  SPEAKER_00: There's all five of them.
• 12:16
  SPEAKER_00: And if you aren't patient with yourself and going through with those, and other people aren't patient with you, it's going to affect you and it's going to affect your relationship with the disease in the long term, also.
• 12:28
  SPEAKER_00: Um just more on the mental aspect of it.
• 12:32
  SPEAKER_00: People don't talk about people don't like to talk about grief.
• 12:34
  SPEAKER_00: It's an uncomfortable subject for a lot of people because no one wants to talk about something that's that hard and that misunderstood.
• 12:42
  SPEAKER_00: Yeah.
• 12:43
  SPEAKER_02: So you're saying that people don't want to talk about it from the clinical perspective as a practitioner or or as the patient?
• 12:48
  SPEAKER_02: Or both?
• 12:49
  SPEAKER_00: I think both.
• 12:50
  SPEAKER_00: I think both.
• 12:52
  SPEAKER_00: I when in 2017, my husband and I, our second daughter passed away when she was a baby.
• 12:59
  SPEAKER_00: And that I learned more about grief from that experience than anything else in my life.
• 13:06
  SPEAKER_00: And she it was, I mean, obviously it was challenging, but la watching the practitioners around me, they were just, oh, you're having a hard time.
• 13:14
  SPEAKER_00: Let's put you on an antidepressant just for a couple months until you feel better.
• 13:18
  SPEAKER_00: Or, oh, well, let's push you off onto a therapist and like let's not take the time to find one that works really well for you.
• 13:24
  SPEAKER_00: Let's just give you to the first one whose name pops up when I do a search.
• 13:29
  SPEAKER_00: And like, even from a clinical perspective, like you'd occasionally get like a medical assistant who would sit there and listen to you, but you know they're not like yeah, they're just doing their job, they're going through the motions, they're they're not that bought into it.
• 13:43
  SPEAKER_00: Um but learning how to support you both yourself and the people around you and the grief that you're experiencing is it's not a skill most people have.
• 13:57
  SPEAKER_00: And then tying it back into the diabetes world, like being diagnosed, it's not just hard for me.
• 14:02
  SPEAKER_00: It's hard for my kids, it's hard for my husband.
• 14:04
  SPEAKER_00: They're learning a whole new world too, watching me learn how to navigate this disease and manage it.
• 14:11
  SPEAKER_00: And it's made, I mean, we still travel all the time, but it's made travel look different.
• 14:16
  SPEAKER_00: And like it it does affect the kids.
• 14:19
  SPEAKER_00: And we were at my son's football game the other day, and a kid on his team came up to me and he goes, I don't like you've got he's like, Do you have diabetes?
• 14:27
  SPEAKER_00: He saw my devices and he obviously knew enough to know what it was.
• 14:30
  SPEAKER_00: Yeah, he was weird at all.
• 14:31
  SPEAKER_00: And I'm like, Yeah, I do.
• 14:32
  SPEAKER_00: Like, what do you want to know?
• 14:34
  SPEAKER_00: And he's like, Well, I just uh diabetes freaks me out.
• 14:37
  SPEAKER_00: And he's like seven years old, right?
• 14:40
  SPEAKER_00: And I was like, Oh, really?
• 14:41
  SPEAKER_00: Why does it freak you out?
• 14:43
  SPEAKER_00: And he goes, He's like, the stuff on your skin is weird.
• 14:46
  SPEAKER_00: And then he like ran off and played football and he didn't think anything of it.
• 14:50
  SPEAKER_00: And but then my my son was there and he watched it and he goes, Yeah, I don't know if I like having a mom with diabetes.
• 14:57
  SPEAKER_00: And I was like, Okay, well, let's unpack this a little bit.
• 15:00
  SPEAKER_02: Yeah, let's let's please unpack this a little bit, yeah.
• 15:04
  SPEAKER_02: Yeah, that's crazy.
• 15:07
  SPEAKER_02: What was your conversation with them?
• 15:09
  SPEAKER_02: If you're okay with like, because this is a very this is a I think this is a really interesting thing because not just from the adult that has kids, adult having diabetes like yourself and has kids, but also from the caregiver the parent perspective on having to deal with like these types of questions.
• 15:27
  SPEAKER_00: Yeah.
• 15:28
  SPEAKER_00: So we we always say there's no bad questions.
• 15:31
  SPEAKER_00: I know everyone says that, but so we talked about it, and I was like, okay, well, what makes you what makes you not like having a mom with diabetes?
• 15:38
  SPEAKER_00: And he's like, well, it makes makes me different with my friends.
• 15:41
  SPEAKER_00: And I was like, okay, and is it bad to be different?
• 15:44
  SPEAKER_00: And he's like, well, no, not really.
• 15:45
  SPEAKER_00: And I was like, okay, does it like does it bother you when I have to take shots?
• 15:50
  SPEAKER_00: And he's like, well, the needles can be scary, but no, that doesn't bother me.
• 15:53
  SPEAKER_00: And we we kind of went through a bunch of things.
• 15:56
  SPEAKER_00: Does it this aspect?
• 15:57
  SPEAKER_00: Is it that aspect?
• 15:58
  SPEAKER_00: Is it that we we count carbs as a family?
• 16:01
  SPEAKER_00: We have a little whiteboard in our kitchen and we write out the carbs and the skill that I'm teaching my kids because why not?
• 16:07
  SPEAKER_00: Yeah.
• 16:08
  SPEAKER_00: Um and like, does it bother you that we slow down meals to be able to count carbs together?
• 16:14
  SPEAKER_00: Or does right like trying to pinpoint what the issue was.
• 16:18
  SPEAKER_00: And really at the end of the day, the issue for him was that it's misunderstood.
• 16:23
  SPEAKER_00: He didn't like that people in his circles misunderstood it because he he had several friends at school who were, oh yeah, you get diabetes from being fat, or oh, you get diabetes from eating too much sugar, or it's weird to have something that makes you different.
• 16:40
  SPEAKER_00: And that's true with any disability that makes you different.
• 16:43
  SPEAKER_00: I have a nephew who uses a wheelchair and like like people want people stare.
• 16:48
  SPEAKER_00: People want to ask questions and then they don't, and like then you don't get to have that normal human interaction of hey, I like your t-shirt, right?
• 16:57
  SPEAKER_00: It's it's always a comment about the device or the thing that makes you stand out and not necessarily in a positive way.
• 17:05
  SPEAKER_02: Yeah.
• 17:05
  SPEAKER_00: Or people avoid you altogether.
• 17:07
  SPEAKER_02: And I think the other aspect to this, too, is the individual who doesn't take the opportunity to go through those questions.
• 17:20
  SPEAKER_04: Yeah.
• 17:20
  SPEAKER_02: I feel like that type of individual is unfortunately the individual that also feels judged by wearing their devices and having diabetes out in front of the entire world.
• 17:34
  SPEAKER_02: And I think that's another, for me, that's another sad piece because that's what that was me.
• 17:38
  SPEAKER_02: That was me.
• 17:39
  SPEAKER_02: Didn't I wore my devices everywhere, but I didn't ever say anything.
• 17:44
  SPEAKER_02: When people would ask me questions, I wouldn't take the opportunity to have the human interaction, human connection, educate people.
• 17:50
  SPEAKER_02: I was just like, ah, just diabetes, and then just walk away from it.
• 17:54
  SPEAKER_02: Where when I started having those conversations, I felt so empowered.
• 18:00
  SPEAKER_02: I felt so much more confident in everything that I was doing because I was choosing or I was making the choice to be able to have that conversation and actually educate that person instead of feeling judged because they're asking a specific question because they don't really know or they have they are curious or whatever it is.
• 18:20
  SPEAKER_00: Yeah.
• 18:21
  SPEAKER_00: And I think most people are well-intentioned.
• 18:24
  SPEAKER_00: So even when their questions come across as judgmental, like obviously a seven-year-old kid who's saying the stuff on your skin is weird that's not necessarily well-intentioned, but he didn't mean it maliciously.
• 18:34
  SPEAKER_00: Yeah.
• 18:35
  SPEAKER_00: He's just saying what he feels and he's saying what he thinks, and he's seven.
• 18:38
  SPEAKER_00: But like most people, if they come up, oh, what's that thing on your arm?
• 18:42
  SPEAKER_00: It's they take the minute to teach them.
• 18:44
  SPEAKER_00: It's not that they're they're not trying to be rude, they're not trying to be inconsiderate, but like they probably actually want to know.
• 18:52
  SPEAKER_00: They probably don't know, and they right, like they're looking for information.
• 18:58
  SPEAKER_04: Yeah, they're very curious.
• 19:00
  SPEAKER_02: Yeah.
• 19:02
  SPEAKER_02: So interesting.
• 19:04
  SPEAKER_02: Okay, let's uh let's shift gears for a second.
• 19:08
  SPEAKER_02: I I'm very curious about your personal diabetes journey, how it's going, what's been the most impactful thing that you've learned so far.
• 19:20
  SPEAKER_02: Let let's let's go down that rabbit hole.
• 19:22
  SPEAKER_02: I'm very curious about this.
• 19:24
  SPEAKER_00: Yeah, so my diagnosis, I was actually thinking about it the other day, and I think I can pinpoint the very beginning of when I started having some beta cell dysregulation.
• 19:38
  SPEAKER_02: Okay.
• 19:38
  SPEAKER_00: Because I so again, I live in Utah.
• 19:41
  SPEAKER_00: I was in Dallas for a work thing, and I went to Papadose because I love Papadose.
• 19:46
  SPEAKER_00: My dad's from Louisiana.
• 19:48
  SPEAKER_00: Um, so like love that that love the Cajun food.
• 19:52
  SPEAKER_00: Um, and after the meal, I my mouth went really numb.
• 19:56
  SPEAKER_00: And I was like, oh, what's this?
• 19:57
  SPEAKER_00: Like, am I allergic to something?
• 19:59
  SPEAKER_00: And it started happening somewhat regularly after that, and then it stopped after a while.
• 20:07
  SPEAKER_00: But I think, like after having like low blood sugars and knowing what low blood sugar feels like, I was like, those episodes that I was having back in 2021, starting in like June 2021, where I thought I was having an allergic reaction, I think it was my beta cells misfiring insulin in relationship to the meal that I was eating and making my blood sugar go low.
• 20:30
  SPEAKER_00: Um so like there's no way for me to prove that, but I like to think that that's that was like the very first sign.
• 20:41
  SPEAKER_00: Um and then in October of 2025, I started losing weight really rapidly.
• 20:50
  SPEAKER_00: I was, I mean, I've always been a gymnast, a runner, I do yoga, I stay relatively active.
• 20:57
  SPEAKER_00: I also have kids that are in football and golf, and we play play pickleball all the time.
• 21:02
  SPEAKER_00: So we we move our bodies a lot.
• 21:04
  SPEAKER_00: And starting in October of last year, I started dropping weight.
• 21:08
  SPEAKER_00: I was was at like 147 pounds, and by the time I was diagnosed, I'd gotten all the way down to 92 pounds.
• 21:15
  SPEAKER_00: Um so I lost more than a third of my body weight.
• 21:18
  SPEAKER_00: Wow and which was wild.
• 21:21
  SPEAKER_02: Yeah.
• 21:22
  SPEAKER_00: I'm back up to like I'm like I'm back up to 110, so I've gained like 20 pounds in the last six months.
• 21:28
  SPEAKER_00: Yeah.
• 21:28
  SPEAKER_00: But it's been a lot of work.
• 21:31
  SPEAKER_00: Um but so just like losing weight rapidly, and like we couldn't figure out what was going on.
• 21:38
  SPEAKER_00: And my like right when I first started losing weight in that like first month, one of the doctors that I worked with, because I was at the medical clinic, was like, well, let's just run an A1C on you.
• 21:50
  SPEAKER_00: And my A1C was normal.
• 21:52
  SPEAKER_00: Um so he was just like this was a this is a this was in aug this was no like first week of November 2024.
• 22:00
  SPEAKER_02: Okay.
• 22:01
  SPEAKER_00: So like I had noticed, like, it's like I'm suddenly losing weight and I'm not trying to.
• 22:05
  SPEAKER_00: And like I want to preserve my muscle mass, but like I don't know what's going on.
• 22:11
  SPEAKER_00: My AONC was normal, so I didn't think much of it.
• 22:14
  SPEAKER_00: And we kind of left it there.
• 22:17
  SPEAKER_00: He was like, okay, AONC is normal.
• 22:19
  SPEAKER_00: I was like, hey, diabetes is off the table.
• 22:21
  SPEAKER_00: And like I just I kept losing weight and losing weight and losing weight.
• 22:25
  SPEAKER_00: And then I started working for the organ procurement organization.
• 22:29
  SPEAKER_00: And we had a donor who he was a teenage kid who had passed away from DKA.
• 22:36
  SPEAKER_00: And the family elected to donate organs.
• 22:39
  SPEAKER_00: But like looking at that, I was like, you know, and he the family even knew he was diabetic.
• 22:46
  SPEAKER_00: He was just not taking care of himself because he was 16, and that's sometimes what teenage boys do.
• 22:55
  SPEAKER_00: So we had the patient pass away from DKA, and I was like, you know, like I know all the signs.
• 23:01
  SPEAKER_00: I know my A1C was normal.
• 23:03
  SPEAKER_00: You know, five months ago when we checked it, that like there's something going on here and I'm not doing well.
• 23:10
  SPEAKER_00: So I went into an endocrinologist and she started testing me.
• 23:15
  SPEAKER_00: And my my actually my auto antibodies were all negative.
• 23:20
  SPEAKER_04: Wow.
• 23:20
  SPEAKER_04: Okay.
• 23:21
  SPEAKER_00: So she's like, she's like, okay, like no autoantibodies.
• 23:24
  SPEAKER_00: It might not be type one, but she's like, let's let's just check your C peptide also.
• 23:27
  SPEAKER_00: Like she didn't think to do that on the first test.
• 23:30
  SPEAKER_00: But she's like, she's like, you might be like a type two subtype, but like we'll we'll figure this out.
• 23:35
  SPEAKER_00: I'm also on a heart medication that can cause blood sugar fluctuations.
• 23:41
  SPEAKER_00: That she was like, she's like, so like like the elevated blood sugars that we're seeing, like they could be a side effect of your heart medication, it could be type two subtype, your type one auto antibodies are all negative.
• 23:51
  SPEAKER_00: So we're not gonna worry about that, but let's go ahead and see your C peptide.
• 23:55
  SPEAKER_00: My C peptide was at a 0.09.
• 23:58
  SPEAKER_00: And she's like, definitely not type two subtype.
• 24:01
  SPEAKER_00: Yeah.
• 24:02
  SPEAKER_00: So like in type two, you expect that to be high.
• 24:04
  SPEAKER_04: Yeah.
• 24:05
  SPEAKER_00: So like, and that's when I that's how I was diagnosed.
• 24:11
  SPEAKER_02: Um so are you officially Lada or you officially type one?
• 24:16
  SPEAKER_00: They officially labeled it type one, but like I don't know how much.
• 24:24
  SPEAKER_00: I'm like, it sounds more like Lada, but it does sound like more like Lada.
• 24:29
  SPEAKER_02: Yeah.
• 24:30
  SPEAKER_02: Interesting.
• 24:32
  SPEAKER_02: A1C normal.
• 24:34
  SPEAKER_02: No auto.
• 24:35
  SPEAKER_00: Five months before.
• 24:36
  SPEAKER_00: Yeah.
• 24:36
  SPEAKER_00: A1C normal five months before.
• 24:38
  SPEAKER_00: When I finally got diagnosed, my A1C had gone up.
• 24:41
  SPEAKER_00: It was only like an eight, which isn't like crazy high, but but it was like the C it was the C peptide that Yeah.
• 24:50
  SPEAKER_02: What was your fasting blood sugar?
• 24:53
  SPEAKER_02: Did they test that when you went in for the C peptide?
• 24:56
  SPEAKER_00: Uh when I went in for the C peptide, I want to say it was like 270 something.
• 25:00
  SPEAKER_00: Okay.
• 25:01
  SPEAKER_00: But but it was like that was like the very first test.
• 25:04
  SPEAKER_00: That wasn't at the same time as the C peptide, because they had determined that like my blood sugars were not normal.
• 25:10
  SPEAKER_00: So they had started me on insulin.
• 25:14
  SPEAKER_00: The right before they were like, and let's go ahead and test your C peptide.
• 25:18
  SPEAKER_00: Yeah.
• 25:19
  SPEAKER_00: Got it.
• 25:19
  SPEAKER_02: Um that's crazy.
• 25:21
  SPEAKER_00: Yeah.
• 25:21
  SPEAKER_00: So not the typical diagnosis story you hear, though.
• 25:25
  SPEAKER_02: No.
• 25:27
  SPEAKER_02: Not at all.
• 25:29
  SPEAKER_02: Not at all.
• 25:30
  SPEAKER_02: But that's cool because it's unique, right?
• 25:32
  SPEAKER_02: It's it's it's a unique story.
• 25:35
  SPEAKER_02: Like, yeah, that's crazy.
• 25:37
  SPEAKER_02: Most stories I hear, like you hear, I mean you hear all kinds of stories, but not many times I don't think I've ever really heard A1C being normal.
• 25:47
  SPEAKER_02: I know it's five months before, but A1C being normal, autoantibodies negative.
• 25:53
  SPEAKER_02: Like wow.
• 25:54
  SPEAKER_00: She's like, she's like autoantibody negative is really rare.
• 25:57
  SPEAKER_00: Um it does happen, but I mean it Wow, yeah.
• 26:02
  SPEAKER_00: She's like, she's like, you're not shaped like a typical type 2 diabetic.
• 26:06
  SPEAKER_00: Most type 2 diabetics aren't, you know, 5'5 and under 100 pounds.
• 26:12
  SPEAKER_02: Yeah.
• 26:13
  SPEAKER_02: And that she that she's saying that before the C peptide test.
• 26:17
  SPEAKER_00: Yeah, she was saying that before the C peptide test.
• 26:19
  SPEAKER_02: Yeah, okay, okay, cool, cool, cool.
• 26:21
  SPEAKER_00: So that's so she's like, let's test your C peptide to see if we can figure out if this is type 1 or like medication induced or insulin resistance or something else.
• 26:34
  SPEAKER_02: Yeah.
• 26:35
  SPEAKER_02: Well, I will say that it's actually good that she had the insight to do all three tests at some point.
• 26:44
  SPEAKER_02: Right?
• 26:44
  SPEAKER_02: A1C five months earlier, then the auto antibody test, and then the C peptide test.
• 26:49
  SPEAKER_02: You got all those tests before like before someone else would even get the any of them.
• 26:56
  unknown: Yeah.
• 26:56
  SPEAKER_02: Right.
• 26:56
  SPEAKER_02: So that that's really cool that she had that insight to do more testing and didn't just automatically say, Oh, you're an adult, you're probably type two.
• 27:06
  SPEAKER_04: Yeah.
• 27:07
  SPEAKER_02: Because that happens so often.
• 27:09
  SPEAKER_02: It happens so often.
• 27:10
  SPEAKER_02: It's so I cannot believe how much that still happens.
• 27:13
  SPEAKER_02: It's so insane.
• 27:15
  SPEAKER_02: It is so insane.
• 27:16
  SPEAKER_00: And the statistic now is like 70% of type one diagnoses are in people over the age of 24.
• 27:23
  SPEAKER_00: I think I read that statistic.
• 27:25
  SPEAKER_00: I could be quoting it wrong.
• 27:27
  SPEAKER_02: It was six, it was it was around sixty percent about two, three years ago.
• 27:31
  SPEAKER_00: Yeah.
• 27:32
  SPEAKER_02: So that gives you that gives you an insight into how fast it's moving in the adult population.
• 27:41
  SPEAKER_02: And I believe, don't quote me on this, but I believe it was almost flip-flopped before COVID.
• 27:48
  SPEAKER_02: Which is also really crazy to think about.
• 27:51
  SPEAKER_00: Yeah.
• 27:51
  SPEAKER_00: I also wonder though, just because there is more information out there, people are being educated better at this point.
• 27:57
  SPEAKER_00: How many of it of how many of the old type 2 diabetes diagnoses and people who are labeled type 2 diabetic, insulin-dependent type 2 diabetic, how many of them were actually type 1 and just mislabeled?
• 28:11
  SPEAKER_00: Right?
• 28:12
  SPEAKER_00: How accurate is the historical data?
• 28:15
  SPEAKER_03: Yeah.
• 28:15
  SPEAKER_00: Because again, data analysis, you need context for all your numbers or else they don't work.
• 28:20
  SPEAKER_02: What's the biggest, what what is the biggest thing that you see in your profession of data analysis that makes the data that we see?
• 28:28
  SPEAKER_02: Like if I go on, let's say I go on Google and get a data point from a research study or whatever, whatever it is, like what is the thing that kind of makes that data point like, yeah, no, that doesn't, that doesn't really add up.
• 28:42
  SPEAKER_00: I mean, you're gonna want to look at first who is giving you that data point and do they have any eggs in the basket, right?
• 28:51
  SPEAKER_00: Are they trying to make themselves look better with this data point?
• 28:55
  SPEAKER_00: Are they a truly a neutral third party?
• 28:57
  SPEAKER_00: Who's sponsoring that data point?
• 28:59
  SPEAKER_00: Who's your sample set?
• 29:01
  SPEAKER_00: Who are you asking to be able to get that data from?
• 29:04
  SPEAKER_00: How biased is it going to be?
• 29:06
  SPEAKER_00: What was the exclusion criteria to be able to get to that point?
• 29:10
  SPEAKER_00: You you just have to ask good questions to make sure you understand where it's coming from, who's bought into it, and then how they're trying to apply it.
• 29:21
  SPEAKER_00: Because like if you ask five people who work at one restaurant if they would eat at their restaurant, and you say 100% of people said yes, they'd eat at this restaurant, like yeah, you sampled five people who work there.
• 29:34
  SPEAKER_00: Of course they're gonna say they would eat there.
• 29:36
  SPEAKER_02: Exactly.
• 29:37
  SPEAKER_02: Right?
• 29:37
  SPEAKER_02: Yeah.
• 29:38
  unknown: Yeah.
• 29:38
  SPEAKER_00: Um but I think you need to look at the question they're asking to get there.
• 29:43
  SPEAKER_02: Yeah.
• 29:44
  SPEAKER_02: I love that you said that because so many people think that the that the information that they're seeing is fact.
• 29:52
  SPEAKER_02: And people don't understand how to look at the data and do data biases and and actually figure out and ask these questions.
• 30:00
  SPEAKER_02: So I'm I'm really happy that you that you brought that to light.
• 30:04
  SPEAKER_02: That makes me so happy.
• 30:06
  SPEAKER_00: Yeah.
• 30:06
  SPEAKER_00: But also like, you have to do it to yourself too.
• 30:09
  SPEAKER_00: If you're looking at your time and range, like like I when I look at time and range, like they say stay 70 to 180, and I'm like, okay, I can stay 99% time and 70 to 180, but like, what am I at if I'm trying to stay like 70 to 130?
• 30:26
  SPEAKER_00: Like, because that's going to lead to longer longevity and better health for me than because like if I'm 99% of the time between 130 and 180, then I'm still 99% between 70 and 180.
• 30:40
  SPEAKER_00: But that's a lot higher of numbers.
• 30:43
  SPEAKER_00: And then like if you're looking at your fluctuations, if you're looking at your standard deviations from your mean and what is your mean, those numbers are like they're not just numbers on a screen.
• 30:54
  SPEAKER_00: There's something that's going on inside your body that's going to have an effect on your blood vessels and the your circulation and your organs, your like your long-term metabolic function, the way your brain works, your risk for Alzheimer's, um, your dental health, your eye health, like all of those things are tied to those numbers, and they're not just pretty things that show up on a screen and draw our attention away from whatever else we're doing during the day.
• 31:19
  SPEAKER_02: Yeah, we we I would say probably five, I mean, as early maybe as even five to six years ago, everything was about A1C.
• 31:28
  SPEAKER_02: That was the only number people looked at.
• 31:31
  SPEAKER_02: And now people are looking more, which is good at time and range, but like but I don't think that's not the end story either, though.
• 31:38
  SPEAKER_02: Yeah, people I don't think that people are actually looking at what actually matters and and the context of what you're saying with the data behind what that number actually means.
• 31:48
  SPEAKER_02: And like for me, I I specifically have my settings set to 65 to 150.
• 31:55
  SPEAKER_02: So if I'm 64, I'm out of range.
• 31:57
  SPEAKER_02: If I'm 151, I'm out of range.
• 32:00
  SPEAKER_02: So like when we talk about like, oh, you should be 75, you know, 70 between 70 and 80% plus time and range, it's like, okay, well, that's really hard when your settings are set from 65 to 150.
• 32:13
  SPEAKER_02: So it's it the the for me the biggest the biggest data point is what my average blood sugar is throughout four from the day from a 24 hour period.
• 32:24
  SPEAKER_02: Because if I'm close to my target, then I know I had a really, really good day, which is my target's 100.
• 32:29
  SPEAKER_02: That's what I every single decision I make is to get back to 100, whether I'm low, whether I'm high, whatever it is.
• 32:36
  SPEAKER_02: And so I think that having, like you're saying, context in those data points is like really, really important.
• 32:42
  SPEAKER_02: So I'm glad I'm I'd love that you brought that up.
• 32:45
  SPEAKER_00: And I would argue, so I I like to look at my average glucose for the day, but I also I love that standard deviation number because yeah, the the larger that gap, if you've got a standard deviation of say 80, that's gonna be doing you're going on so many roller coasters.
• 33:01
  SPEAKER_00: The damage that's being done to your body, the stress of going high than low, then high than low, it's gonna be so much more than if you can keep a standard deviation of like 22 or 30 or something.
• 33:11
  SPEAKER_00: Because like if your goal is 100 and you're 75% of the time between 80 and 120, like that that 20-point standard deviation is a lot easier on your body, and it's going to be beneficial for you in the long run, even more than your oh yeah.
• 33:27
  SPEAKER_00: Like I was in your 65 to 150.
• 33:31
  SPEAKER_00: You're in that range.
• 33:32
  SPEAKER_00: It's good.
• 33:33
  SPEAKER_00: But like how much of your time is even closer to your target.
• 33:38
  SPEAKER_02: Yeah.
• 33:38
  SPEAKER_02: Yep.
• 33:39
  SPEAKER_02: Yep.
• 33:39
  SPEAKER_02: So which is yeah, which is what you're saying, you know, the the both of those numbers are really important.
• 33:43
  SPEAKER_02: Yeah, love it.
• 33:44
  SPEAKER_02: Yeah.
• 33:44
  SPEAKER_02: Love it.
• 33:46
  SPEAKER_02: What what's been the most impactful thing that you've learned so far?
• 33:50
  SPEAKER_00: Oh, most impactful thing.
• 33:52
  SPEAKER_00: Probably just be curious.
• 33:54
  SPEAKER_00: It's really easy to get frustrated by the condition, get frustrated by a single number.
• 33:59
  SPEAKER_00: And if you instead turn it into like, I'm frustrated by this, and ask, like, what is this?
• 34:08
  SPEAKER_00: What led to this?
• 34:10
  SPEAKER_00: How can I change this and ask good questions about the things instead of just saying, okay, I tossed my hands up, I quit, I'm done.
• 34:18
  SPEAKER_00: It makes it easier, and then also just reminding yourself, like you have to you have to be patient with yourself again.
• 34:27
  SPEAKER_00: The that compassion for yourself and that curiosity are the two biggest things, probably.
• 34:33
  SPEAKER_02: Yeah.
• 34:34
  SPEAKER_02: I love that.
• 34:36
  SPEAKER_02: What do you do you feel like you you have in the past, you know, what's almost six months?
• 34:43
  SPEAKER_02: Um have you ran into some challenges with your mental health, with your identity with diabetes?
• 34:54
  SPEAKER_02: Have you run into those emotions?
• 34:56
  SPEAKER_00: I I don't think I I mean I've definitely had days where I'm feeling burnt out and I'm just like there's the decision fatigue.
• 35:04
  SPEAKER_00: I know it drives my husband crazy because like I used to be relatively decisive about like, okay, this is what I'm making for dinner.
• 35:12
  SPEAKER_00: We're having dinner now, and it's like just choosing what to eat for dinner can feel overwhelming, not because choosing dinner is overwhelming, but because I am worn out on making choices about things.
• 35:23
  SPEAKER_04: Yeah.
• 35:25
  SPEAKER_00: So that's been hard for me, and I know it's driving him crazy because he'll be like, okay, like, do you like we're in California?
• 35:30
  SPEAKER_00: He's like, Do you want to go to Disney or Universal?
• 35:33
  SPEAKER_00: And I'm like, like, I was like, just tell me what to do.
• 35:38
  SPEAKER_00: Don't make me make a choice.
• 35:40
  SPEAKER_02: Yeah, yeah.
• 35:40
  SPEAKER_02: I've made enough choices today.
• 35:42
  SPEAKER_02: This is on you right now.
• 35:43
  SPEAKER_00: Right.
• 35:44
  SPEAKER_00: And he and he's like, he keeps coming back to like, but I just want to make you happy.
• 35:47
  SPEAKER_00: And I'm like, it would make me happy if you make the choice.
• 35:49
  SPEAKER_02: You just make the choice yourself.
• 35:53
  SPEAKER_00: Oh, that's so funny.
• 35:55
  SPEAKER_02: It sounds so familiar.
• 35:58
  SPEAKER_00: But like, again, I I really believe in building systems that support the outcome I want.
• 36:05
  SPEAKER_00: So if we just hey, here's our menu for the week, then I don't have to make that choice.
• 36:09
  SPEAKER_00: It makes the decision fatigue go away, which makes the burnout less intense.
• 36:14
  SPEAKER_00: And it helps a lot.
• 36:16
  SPEAKER_00: And it also makes it so my husband's not frustrated with me for not making choices.
• 36:20
  SPEAKER_02: Um Yeah.
• 36:22
  SPEAKER_02: Well, I love that because you're you're you are setting yourself and the family up for success instead of perpetually being in the same habit of like, I don't want to make a decision, I don't want to make this choice right now.
• 36:35
  SPEAKER_02: And like, you know, like you're you're setting yourself up for success, which is perfect.
• 36:39
  SPEAKER_00: Yeah.
• 36:39
  SPEAKER_00: It also helps with like pre-bulsing for meals.
• 36:42
  SPEAKER_00: If I already know what I'm going to make instead of throwing something together on the fly, it's like, okay, I know what this meal is, I know how to dose for this meal, and then I can do it.
• 36:50
  SPEAKER_00: And if I'm like throwing together a recipe that I've never made before, it's like, okay, I have to do the calculations all along while I'm building out this meal.
• 36:59
  SPEAKER_00: And right, like, oh, if I'm gonna add a little bit of extra sauce, that's gonna add how many carbs?
• 37:04
  SPEAKER_00: And um so building the sus building the systems that support success help a lot with the mental aspect as well, not just the physical aspect.
• 37:16
  SPEAKER_00: Um the sense of identity, it's again, I've got cardiac issues as well.
• 37:22
  SPEAKER_00: I've got autoimmune cardiac issues, which I had kind of accepted that that's actually why I have a heart tattoo.
• 37:30
  SPEAKER_00: It's for my heart tattoo.
• 37:31
  SPEAKER_00: I love it.
• 37:31
  SPEAKER_00: Um but that kind of got me in the mindset of like, I'm already taking injections for my heart meds.
• 37:38
  SPEAKER_00: I take an injection once every five, seven days for my heart.
• 37:44
  SPEAKER_00: I'm already the the family member who's chronically ill.
• 37:49
  SPEAKER_00: So it like diabetes was another label, but it wasn't an identity shift for me.
• 37:56
  SPEAKER_00: Um but if I hadn't had the cardiac issues before, I think it would have been a lot harder.
• 38:02
  SPEAKER_02: Yeah.
• 38:03
  SPEAKER_02: You already dealt with a chronic condition, the mental stuff that comes along with that, and you just add on another one, like yeah, that makes total sense.
• 38:17
  SPEAKER_02: What do you what do you feel like with what do you feel like's been the hardest thing to deal with?
• 38:24
  SPEAKER_00: Managing other people's reactions.
• 38:26
  SPEAKER_02: Oh yeah.
• 38:27
  SPEAKER_02: Oh my gosh, yes, yeah.
• 38:28
  SPEAKER_00: Like, like we so we did family pictures, and let me see.
• 38:33
  SPEAKER_00: I don't know if you can see it in this picture behind me.
• 38:36
  SPEAKER_00: It's kind of hard to see, but I've got a picture behind me that my omnipod's on my arm and it's visible.
• 38:44
  SPEAKER_00: And so we did family pictures with my entire extended family.
• 38:47
  SPEAKER_00: And I had one member of the family, not the person who is in charge of coordinating outfits and not the person who was paying for the pictures, who said, You're gonna hide your devices for the pictures, right?
• 38:58
  SPEAKER_00: And I was like, I hadn't even thought about it, but because you said that I'm going to bedazzle my omnipod now and make it as obvious as I can.
• 39:07
  SPEAKER_00: Um, you're not gonna tell me what to do, excuse me.
• 39:15
  SPEAKER_00: And I've got I've got that nephew who uses a wheelchair, and I was like, does does he have to hide his wheelchair or is he allowed to use that in the pictures?
• 39:22
  SPEAKER_02: What'd she say?
• 39:23
  SPEAKER_02: What'd she say?
• 39:24
  SPEAKER_00: Oh, I gotta know what's she well, it's different.
• 39:27
  SPEAKER_00: Like he needs that.
• 39:28
  SPEAKER_00: She had no the word she actually said to me was he needs that.
• 39:33
  SPEAKER_00: He needs that.
• 39:34
  SPEAKER_00: I was like, you don't think I need this?
• 39:36
  SPEAKER_00: Oh my god.
• 39:37
  SPEAKER_01: What am I supposed to do?
• 39:37
  SPEAKER_01: Just it's day three.
• 39:38
  SPEAKER_01: You mean just rip it off?
• 39:41
  SPEAKER_00: Yeah, so I like I went out of my way to like make my omnipod as obvious and loud as I possibly could just to annoy her because I'm a petty person and that's amazing.
• 39:54
  SPEAKER_02: I'm so glad that you did that.
• 39:56
  SPEAKER_02: I'm so glad that you did that.
• 39:58
  SPEAKER_00: I'm like, But it was just people are people are gonna people are gonna say what they're gonna say, they're gonna think what they're gonna think, but managing their reactions can be difficult.
• 40:11
  SPEAKER_00: And knowing when to say something, because like I had a coworker who was like, he's like, Oh, now that you have like your heart tattoo, he's like, Are you going to get a a matching tattoo of a sugar pump?
• 40:23
  SPEAKER_00: And I was like, It's like, do I want to correct him to insulin pump?
• 40:27
  SPEAKER_00: Do I want like do I want to have this discussion right now?
• 40:30
  SPEAKER_02: Yeah.
• 40:31
  SPEAKER_00: And I like at the end of the day, I was like, right now is not the time or place.
• 40:35
  SPEAKER_00: I'm just I was like, yeah, I should probably get a diabetes tattoo at some point.
• 40:40
  SPEAKER_00: Very like, and so like instead of like saying the exact words he did, I just made it so it was the correct words.
• 40:47
  SPEAKER_04: But it's like a sugar pump.
• 40:51
  SPEAKER_04: I think a sugar pump.
• 40:54
  SPEAKER_00: He was like, yeah, it injects sugar into my body.
• 40:57
  SPEAKER_00: That like I hadn't heard that one before because most people are like, you can't have sugar.
• 41:01
  SPEAKER_02: I've never heard sugar pump before.
• 41:04
  SPEAKER_02: Ever.
• 41:05
  SPEAKER_00: Yeah, neither had I.
• 41:07
  SPEAKER_00: But people just say things, but also like the people who take time to learn are the best.
• 41:13
  SPEAKER_00: And I've got this other coworker who she is so funny.
• 41:18
  SPEAKER_00: And she made she made banana bread for the whole office, and she made a cream cheese frosting to go with it, and she's like cutting up the banana bread and putting frosting on it.
• 41:25
  SPEAKER_00: She didn't have a piece, and then she gives me an extra scoop of frosting.
• 41:28
  SPEAKER_00: She's like, I'm giving you extra frosting because you're the only person who doesn't have to worry about getting diabetes from this.
• 41:33
  SPEAKER_00: And I was like, I love you so much right now.
• 41:37
  SPEAKER_01: But you're so wrong.
• 41:38
  SPEAKER_01: Oh, that's hilarious.
• 41:40
  SPEAKER_00: But like, at least it wasn't the like, oh, you can't have this because you're diabetic, right?
• 41:45
  SPEAKER_00: Like, yeah.
• 41:46
  SPEAKER_00: Which I would have like way rather have the other side.
• 41:51
  SPEAKER_00: Because like it was just genuinely well-intentioned, and she's trying to make me laugh, and she did make me laugh.
• 41:58
  SPEAKER_00: But it's like, where where do you draw the line for those conversations?
• 42:01
  SPEAKER_00: That's the hardest thing, is like, how do I manage their reactions?
• 42:04
  SPEAKER_00: How do I decide when to speak up versus hold my tongue?
• 42:09
  SPEAKER_00: Because I'll tell you what I think, I'll tell you how it is in my world.
• 42:13
  SPEAKER_00: I'm not afraid to tell you that you're up.
• 42:16
  SPEAKER_00: Like, do I really want to be that person?
• 42:19
  SPEAKER_02: Yeah, I want to be that person.
• 42:21
  SPEAKER_02: I totally want to be that person.
• 42:23
  SPEAKER_00: But it's like, how much time do we have for this?
• 42:26
  SPEAKER_02: Yeah, right, right.
• 42:27
  SPEAKER_02: But but I will say, and this is important for everyone listening, what you're saying is 100%, I believe is is 100% a important thought process, which is it's up to you to understand or it's up to you to decide when and how you have that conversation with somebody, and if you have that conversation with anybody, with that person.
• 42:52
  SPEAKER_02: Because I think so many people get so irritated with those with those comments that they think they have to just jump in and have a conversation about it, or defend themselves when it's your choice.
• 43:05
  SPEAKER_02: You can just be like, oh, I'm good, and leave it at that.
• 43:09
  SPEAKER_02: So it I I think that's also a very important piece to all of it because we absolutely have the choice to to say something or not say something, to keep our mouths shut or not keep our mouth shut.
• 43:21
  SPEAKER_02: And if you like I I'm I'm 100% nine times out of ten gonna be stopped in my tracks and have that conversation just because of who I am.
• 43:31
  SPEAKER_02: But I will also say that other 1% where I'm out and I'm just like, I don't want to deal with this right now.
• 43:37
  SPEAKER_02: Like, I'm done.
• 43:38
  SPEAKER_02: Like, would I respond to this person, but that's about it.
• 43:41
  SPEAKER_02: And then I'm walking away.
• 43:43
  SPEAKER_02: So I I think that's a I think that's an important piece to all this, and I'm glad that you brought that piece up on how you deal with it because it's so many people think that they have to just jump into action and defend themselves when you you you don't have to defend yourself.
• 43:58
  SPEAKER_00: You don't have to engage.
• 44:00
  SPEAKER_00: But I also like I try to make it very clear that I'm more than willing to talk about diabetes, right?
• 44:05
  SPEAKER_00: Like we have we call it the absurdity chat.
• 44:08
  SPEAKER_00: It's just a Microsoft Teams channel where it's all of our random thoughts that are non-work related.
• 44:14
  SPEAKER_00: And it like most of it's us posting pictures of our pets.
• 44:17
  SPEAKER_00: Um but the other day I accidentally took 10 units of insulin instead of one unit of insulin.
• 44:24
  SPEAKER_00: And I'm on a 1 to 20 insulin to carb ratio.
• 44:27
  SPEAKER_00: So I was like, crap, I need 200 grams of carbs right now.
• 44:34
  SPEAKER_00: So I opened the fridge and I'm like, I'm drinking seven ounces of maple syrup because that's about 200 grams of carbs.
• 44:41
  SPEAKER_00: And afterwards I go into the absurdity chat and I was like, if you had to consume 200 grams of carbs in under 15 minutes, or you will die, what would you eat?
• 44:52
  SPEAKER_01: What was the answer?
• 44:54
  SPEAKER_01: Well, it's gonna be good.
• 44:55
  SPEAKER_01: What was some of the answers?
• 44:56
  SPEAKER_00: Someone was like, she's like, entire loaf of sourdough bread.
• 44:59
  SPEAKER_00: I hope that's enough carbs.
• 45:00
  SPEAKER_00: I could add honey butter if I needed to.
• 45:03
  SPEAKER_00: And someone else posted a link to a local restaurant that has these like lemon ricotta pancakes, and two pancakes is 170 grams of carbs, which like blew my mind.
• 45:14
  SPEAKER_00: That is so many carbs and pancakes.
• 45:18
  SPEAKER_01: Well, but then you're adding syrup to those pancakes, so it's like it's really not 170, it's probably more closer to 300.
• 45:26
  SPEAKER_00: I know, it's insane.
• 45:28
  SPEAKER_00: So, like, and so people were coming up with the wildest things, but then they're like, where did this question come from?
• 45:33
  SPEAKER_00: And so I explained, and they're like, Oh my gosh, are you okay?
• 45:36
  SPEAKER_00: And like, yes, I am safe, I'm fine, like, it's all under control.
• 45:40
  SPEAKER_00: But then the conversation turned.
• 45:42
  SPEAKER_00: If you had to drink seven ounces of a condiment to save your life, like carbs are not carbs, but if you had to drink seven ounces of a condiment to save your life, which condiment would you choose?
• 45:54
  SPEAKER_00: And again, it's the absurdity chat.
• 45:56
  SPEAKER_00: Things get crazy.
• 45:57
  SPEAKER_00: People are like, like anything but ketchup.
• 45:59
  SPEAKER_00: I will drink anything but ketchup.
• 46:00
  SPEAKER_00: Someone else is like, I need marshmallow fluff.
• 46:03
  SPEAKER_00: Marshmallow fluff?
• 46:06
  SPEAKER_00: How is that a condiment?
• 46:08
  unknown: Marshmallow?
• 46:09
  SPEAKER_00: I, you know, I like I don't think they were thinking this, but there is a local restaurant by me that makes sweet potato fries with rosemary on them, and they serve them with marshmallow fluff to dip the fries in.
• 46:18
  SPEAKER_00: So um, I don't like potatoes and I don't like french fries, so I don't eat them, but you know, in that context, they're condiment.
• 46:31
  SPEAKER_00: Someone else was like, like, does aou for like French dip sandwiches count as a condiment?
• 46:36
  SPEAKER_00: I could drink seven ounces of that.
• 46:37
  SPEAKER_00: And I was like, that does not count, that is soup.
• 46:41
  SPEAKER_00: But like people someone was like, I drink seven ounces of Chick-fil-A sauce.
• 46:45
  SPEAKER_00: But like the these discussions, like I I opened them up intentionally in light-hearted ways to make it clear that I'm comfortable talking about this.
• 46:57
  SPEAKER_00: I don't mind if you approach me with questions, like there's there's no question that's too dumb or too like serious or not serious.
• 47:05
  SPEAKER_02: Like have you have you this is just a funny question?
• 47:11
  SPEAKER_02: Have you dropped diabetes questions in there, like to educate people before?
• 47:16
  SPEAKER_02: Hey, like what would you do in this situation?
• 47:18
  SPEAKER_02: And like you're just kind of like actually putting it in there to see if people understand diabetes.
• 47:23
  SPEAKER_00: I I hadn't ever done it on purpose, but I also will say I'm very, very blessed.
• 47:30
  SPEAKER_00: I don't know how it worked out this way, but my direct supervisor, she's like the department head, she her previous job before this one, she was running a nursing floor at a hospital down in Texas.
• 47:42
  SPEAKER_00: And she said on her team of 10 nurses on her team, seven of them were type 1 diabetics.
• 47:49
  unknown: What?
• 47:50
  SPEAKER_00: But like, I was like, what?
• 47:52
  SPEAKER_00: What?
• 47:54
  SPEAKER_00: Seven on her team.
• 47:56
  SPEAKER_00: Did she have type one diabetics on her team of ten people that she was managing at her previous job?
• 48:03
  SPEAKER_00: So, like, well, I'm the only one like on her team now.
• 48:06
  SPEAKER_00: Like, when anytime my CGM alerts, whether it's high or low, because she doesn't know the differences in the tones, anytime my CGM goes off, she pulls Swedish fish out of her desk and starts throwing them at me.
• 48:17
  SPEAKER_00: Um exactly, like, here's a fish, here's a fish, get some sugar in your body.
• 48:22
  SPEAKER_01: That's a lot of fun.
• 48:23
  SPEAKER_00: Um which like she's so fun.
• 48:27
  SPEAKER_00: I just absolutely adore her.
• 48:29
  SPEAKER_00: But like she she gets it, and like when I'm having a bad blood sugar day, she gets it, and she's so understanding because she had a lot of experience being exposed to it at her previous job.
• 48:42
  SPEAKER_00: Lucky me.
• 48:43
  SPEAKER_00: Yeah, yeah.
• 48:44
  unknown: Wow.
• 48:44
  SPEAKER_00: But like the rest of the team, like we there's one girl on the team whose husband was type 1 diabetic until he got a kidney pancreas transplant in 2017.
• 48:54
  SPEAKER_00: And so, like, you know, he hasn't had to deal with it since 2017.
• 48:58
  SPEAKER_00: His body still hasn't rejected the new pancreas, which is awesome for him.
• 49:02
  SPEAKER_00: It's been almost 10 years.
• 49:03
  SPEAKER_02: So you got a kidney and a and a pancreas.
• 49:06
  SPEAKER_00: Yeah.
• 49:06
  SPEAKER_00: So I don't know, people don't realize this, but if you are type 1 diabetic on the wait list for a kidney transplant because you're in renal failure, you can actually be listed for a kidney pancreas transplant, and you can get both.
• 49:19
  SPEAKER_00: You can't get a pancreas without a kidney in the U.S.
• 49:22
  SPEAKER_00: transplant systems, but you can be listed for both kidney and pancreas if you are on the wait list for a kidney already from renal failure and a type 1 diabetic.
• 49:33
  SPEAKER_02: Okay, so just so I just so I uh heard you correctly, you can't in the US, you can't do pancreas and kidney, but you can do kidney and pancreas if you're on the kidney wait list.
• 49:48
  SPEAKER_00: Yep.
• 49:49
  SPEAKER_00: So if you just need a kid or if you just need a pancreas, they won't list you for pancreas and then give you a kidney, also.
• 49:56
  SPEAKER_00: But if you need a kidney and your type 1 diabetic, you can get listed for kidney and pancreas.
• 50:01
  SPEAKER_00: But in the organ transplant world, pancreases are very, very, very finicky.
• 50:06
  SPEAKER_00: And frequently, if they are in the way, the liver is a much more successful organ to donate.
• 50:13
  SPEAKER_00: It's an easier organ to transplant.
• 50:14
  SPEAKER_00: We've got more tech for it.
• 50:16
  SPEAKER_00: If you can't get to the liver for whatever reason, they will just cut through the pancreas to get to the liver.
• 50:21
  SPEAKER_00: Um so like pancreas is like low on the totem pole for recovery techniques.
• 50:30
  SPEAKER_00: Um, but there are instances where you can get a kidney pancreas transplant, which is completely different than like recovering pancreatic isolate cells for things like that are going on with the Elodon trials and things that are going on with like islet cell research, because those are covered under well, right now they're covered under pharmaceuticals, but for our purposes in the organ donation world, they're covered as a tissue recovery, not an organ recovery.
• 50:56
  SPEAKER_02: Which is which we want it to be the other way, right?
• 50:58
  SPEAKER_00: We want it to be an organ we we want them to be classic, we want them to be classified as human tissues.
• 51:06
  SPEAKER_00: So the same thing is like if you need like an ACL repair and you're using a cadaver tendon or ligament, those are covered under the like the FDA jurisdiction as recovered human tissues.
• 51:18
  SPEAKER_00: Right now, again, I could be saying this a little bit wrong, but they are right now covered as a biologic pharmaceutical product, and we want them to be covered as a human source tissue, um, not a pharmaceutical.
• 51:35
  SPEAKER_02: Which is the whole point of the what the Alliet Act.
• 51:38
  SPEAKER_02: Yeah.
• 51:39
  SPEAKER_00: Which is Senator Mike Lee, who's from here in Utah, is actually the senator who sponsored that.
• 51:45
  SPEAKER_02: Um which is so crazy it still hasn't gone through and been voted on.
• 51:50
  SPEAKER_00: It is on oh, as of I want to say like the 15th of this month.
• 51:55
  SPEAKER_00: If you go to like the FDA list, you can actually see where it's been put into Donald Trump's desk for an executive order to be signed off on it or not signed off on it.
• 52:07
  SPEAKER_00: But they're asking for it to be pushed through as an executive order.
• 52:11
  SPEAKER_02: What so would be interesting.
• 52:13
  SPEAKER_02: Yeah, so why is it being pushed?
• 52:15
  SPEAKER_02: Is it because they because I'm I'm hasn't it been voted on already and it hasn't and it hasn't passed?
• 52:21
  SPEAKER_00: I don't I don't know those details.
• 52:24
  SPEAKER_00: I'm not intimately familiar with them, but also people need to understand that this getting passed is just one step of many.
• 52:32
  SPEAKER_00: People don't realize that to do a beta cell transplant for a type 1 diabetic patient, you need three to five deceased donors to give you enough beta cells for one type 1 diabetic patient.
• 52:44
  SPEAKER_00: So that is three to five people need to die to cure one type 1 diabetic patient.
• 52:50
  SPEAKER_00: Which that's a hard pill to swallow.
• 52:53
  SPEAKER_02: Is that just one infusion?
• 52:55
  SPEAKER_02: Like if we're talking, let's say as an example, the Elodon trial, is that just one infusion or is it like the going back multiple times?
• 53:05
  SPEAKER_00: My understanding of it, which again, my understanding could be slightly off.
• 53:10
  SPEAKER_00: Um so don't quote me as gospel truth.
• 53:12
  SPEAKER_00: Yeah, yeah.
• 53:13
  SPEAKER_00: Um, but my understanding of it is they do the beta cell transplant and then they do the infusions of tegoprobarts to stop your body from rejecting those and to tell your body to keep stimulating those to produce insulin.
• 53:25
  SPEAKER_00: So once you do the beta cell transplant, you don't need any more pancreatic cells put into your body.
• 53:31
  SPEAKER_00: You just need the treatment medication to keep it functioning in your body.
• 53:36
  SPEAKER_00: But again, I could be wrong.
• 53:38
  SPEAKER_02: I think you're no, I think you're correct.
• 53:40
  SPEAKER_02: I think you're correct.
• 53:40
  SPEAKER_02: Because I like hearing some of the ones from or from the people, the 11 patients or 12 patients now in the Elodon trial, I I don't think I remember them saying that they've gotten multiple islet cell transplants.
• 53:57
  SPEAKER_02: They're just going and getting appropriate.
• 54:00
  SPEAKER_02: Take a probar, yeah.
• 54:01
  SPEAKER_02: Interesting.
• 54:02
  SPEAKER_00: Yeah.
• 54:03
  SPEAKER_00: But so to do that islet cell transplant, though, you need three to five deceased organ donors to donate their pancreases.
• 54:11
  SPEAKER_00: And only three in one thousand people die in a manner that is compatible with organ and tissue donation.
• 54:16
  SPEAKER_00: And then of those, like not all the families consent to donation.
• 54:20
  SPEAKER_00: Lots of the families say, no, we don't like we don't want you to touch their body.
• 54:24
  SPEAKER_00: And then of those, the ones that like we do get consent for, if we have to cut through the pancreas to be able to get to the liver or the kidneys, we're gonna do that.
• 54:33
  SPEAKER_00: And then suddenly pancreases aren't recoverable.
• 54:35
  SPEAKER_00: We can't get those beta cells.
• 54:37
  SPEAKER_00: So it's like three to five people to treat one patient.
• 54:40
  SPEAKER_00: Like people are so excited.
• 54:42
  SPEAKER_00: The cure is right here, it's coming right now, and there's a lot of work to do.
• 54:46
  SPEAKER_00: There's still a lot going on with making lab grown beta cells, which like again, like everything has to go in phases.
• 54:52
  SPEAKER_00: We are closer to a cure than we were 20 years ago, but it's also not it's not here.
• 54:58
  SPEAKER_00: People are like, it's here, and we're just waiting for the FDA to release this because they're gatekeeping it, and that's not the case.
• 55:04
  SPEAKER_02: Yeah.
• 55:05
  SPEAKER_02: I I feel like it's closer than it ever has been.
• 55:09
  SPEAKER_02: And even before I heard about Elodon, like when Vertex come out, I was like, man, this is awesome.
• 55:16
  SPEAKER_02: This is crazy.
• 55:16
  SPEAKER_02: This is crazy.
• 55:17
  SPEAKER_02: Just because of just because of the all of the stuff, at least that I've heard about the drugs that they're using and how bad they are on beta cells, like in the in that in that trial.
• 55:30
  SPEAKER_02: And then the then Elodon comes out with their with tegaprubar, which sounds like it could be the next stage of this of all of this.
• 55:39
  SPEAKER_02: The interesting piece is when you think about something like Tegaprubar, and then you think about something like a kidney transplant or a pancreas transplant, or even both of them, the auto the autoimmune suppression medication you have to be on from the transplant per perspective, it's really interesting to watch what's happening with Tegaprubar.
• 55:59
  SPEAKER_00: Yeah, it's very interesting to watch.
• 56:01
  SPEAKER_00: But some, I'm like, also the other thing people don't think about is the patients who are going to be getting these treatments are the ones who are critically ill.
• 56:11
  SPEAKER_00: If you are a well-managed diabetic, you're gonna be the end of the list.
• 56:15
  SPEAKER_00: I'm sorry.
• 56:16
  SPEAKER_00: Like they're gonna try and save as many lives as they can.
• 56:19
  SPEAKER_00: And if you're keeping yourself alive just fine, like there's there's so many things have to happen before this is gonna be accessible to you.
• 56:29
  SPEAKER_00: And that's not to be a downer about it.
• 56:31
  SPEAKER_00: It's just like you gotta look at it realistically because if you have false hope, it's gonna end up crushing you.
• 56:37
  SPEAKER_02: Yeah.
• 56:37
  SPEAKER_02: My whole perspective on what I keep trying to tell people is like stop waiting, take care of yourself, take care of yourself now.
• 56:44
  SPEAKER_00: Stop waiting.
• 56:45
  SPEAKER_00: Just like go to the gym, drink your water, eat well, actually pre-bolis.
• 56:51
  SPEAKER_00: Like, if you're worried about weight, gain, like set aside calories for low treatments because you will have lows.
• 56:57
  SPEAKER_00: It's going to happen.
• 56:58
  SPEAKER_00: You're gonna have to eat calories, those calories still count towards your any goals that you set.
• 57:04
  SPEAKER_00: Like, watch your numbers, take care of yourself because if you don't take care of yourself, you can't rely on a cure that may or may not be here to save you.
• 57:15
  SPEAKER_04: Yeah.
• 57:17
  SPEAKER_00: And also right now, all these cures have continuing treatment that you need to do.
• 57:21
  SPEAKER_00: So if you're not managing your diabetes now, are you going to manage the treatments that you need afterwards?
• 57:28
  SPEAKER_02: Yeah.
• 57:29
  SPEAKER_02: I think the other aspect to this though, too, is if you're not managing your diabetes now and you get the cure, but you're still not managing the simple things that are going to improve your health and make and make this cure even work, it it you you have to be doing the things that like you're talking about, going to the gym, make sure you're eating good quality food, like doing all the things that you should be doing anyway as a human being to live a good healthy lifestyle.
• 57:58
  SPEAKER_02: I think that's a thing that people don't recognize.
• 58:01
  SPEAKER_02: And I think that that's also the thing, like when they hear you say, like, hey, if you're taking care of yourself, you should be, you're gonna unfortunately be at the back of the line.
• 58:10
  SPEAKER_02: Like, I could see some people say to themselves, well, I'm just not gonna take care of themselves, and I can go to the front of the line.
• 58:16
  SPEAKER_00: Yeah, and that's like it just doesn't really I I can hear, I can absolutely hear that.
• 58:20
  SPEAKER_00: But also, like, if you're at the back of the line, then who knows?
• 58:25
  SPEAKER_00: Like, what if someone else is further behind you?
• 58:27
  SPEAKER_00: Right.
• 58:27
  SPEAKER_00: And you, if you're taking care of yourself, if you make routines that make this manageable for you, is it gonna is it gonna kill you if you have to wait an extra year?
• 58:36
  SPEAKER_00: Is it gonna right?
• 58:37
  SPEAKER_00: Like, if you're taking care of yourself and you've got good routines and you have a sustainable lifestyle with the disease, then you're gonna be okay.
• 58:46
  SPEAKER_02: It's gonna be even better when you get the cure.
• 58:48
  SPEAKER_00: It will be even better when you get the cure.
• 58:51
  SPEAKER_00: And like my dad once asked, he was he was trying to prove a point.
• 58:56
  SPEAKER_00: I'm gonna use the same question to prove the same point.
• 58:58
  SPEAKER_00: He once asked me, he's like, Are restaurants good?
• 59:01
  SPEAKER_00: And I was like, I know, some are, some aren't, right?
• 59:05
  SPEAKER_00: Some people like you can you can be healthy with type 1 diabetes and you can be unhealthy with type 1 diabetes, and you can be healthy without it, and you can be unhealthy without it.
• 59:13
  SPEAKER_00: The diagnosis doesn't define your health.
• 59:16
  SPEAKER_00: Yep.
• 59:16
  SPEAKER_00: Your your caring for your body defines your health.
• 59:20
  SPEAKER_02: 100%.
• 59:21
  SPEAKER_02: Yeah, 100%.
• 59:22
  SPEAKER_02: I just I think that's so that's such an impactful statement, girl, because it's it's such an impactful statement because so many people don't understand that piece.
• 59:33
  SPEAKER_02: We were just having a conversation.
• 59:34
  SPEAKER_02: I was just having a conversation with Graham, my co-host, uh before we recorded.
• 59:39
  SPEAKER_02: And one of the things that we were talking about was the personality type of humanity.
• 59:48
  SPEAKER_02: At least in America, most people want accessibility it to be like really easy and not have to work hard for it.
• 59:57
  SPEAKER_02: Like those are the three components that people just want.
• 1:00:01
  SPEAKER_02: And then we were having a conversation about things like fast food, the accessibility of ultra-processed foods.
• 1:00:08
  SPEAKER_02: And and then I like bring I think back to like the conversation that we're having right now, where you were talking about how you set yourself, your f you and your family up for success because you plan.
• 1:00:20
  SPEAKER_02: And you make sustainable things, like you build sustainable systems.
• 1:00:25
  SPEAKER_02: And I think that that is so important because if you if you aren't thinking as with diabetes, your life as a sustainable system, as something that you can sustain forever, like you're just gonna keep going down this rabbit hole and this up and down with your health, with your diabetes, and with your mental health.
• 1:00:46
  SPEAKER_02: And it just it's a no wonder that so many people are struggling in in their life.
• 1:00:52
  SPEAKER_02: It's just it's so crazy to me because it's not it's not like it's rocket science.
• 1:00:56
  SPEAKER_02: It's not easy, but it's not like it's rocket science.
• 1:00:59
  SPEAKER_00: So you have to have those sustainable systems though, and you have to learn how to build a system that sets you up for success and is it makes things easier.
• 1:01:12
  SPEAKER_00: If you don't have a system, it's a lot harder.
• 1:01:13
  SPEAKER_00: If you are going on those blood sugar roller coasters, that is so much harder than choosing to wait 15 minutes in pre-bolus.
• 1:01:21
  SPEAKER_00: Right?
• 1:01:21
  SPEAKER_00: That is so much harder than saying, okay, I'm going to go spend a half hour on the treadmill.
• 1:01:26
  SPEAKER_00: I'm gonna get my run-in.
• 1:01:27
  SPEAKER_00: Like that is way easier than having six hours of prolonged hides later in the day.
• 1:01:35
  SPEAKER_00: If you want easy, like people are like, oh, it's so hard to get to the gym.
• 1:01:40
  SPEAKER_00: But is it that hard?
• 1:01:42
  SPEAKER_00: Isn't it isn't that easier than the alternative?
• 1:01:45
  SPEAKER_02: Yeah.
• 1:01:47
  SPEAKER_02: That's what people don't understand.
• 1:01:49
  SPEAKER_02: That's them.
• 1:01:50
  SPEAKER_02: They don't think about the alternative.
• 1:01:52
  SPEAKER_02: They want to think about the here and now.
• 1:01:55
  SPEAKER_02: And the fact that the here and now is not easy.
• 1:01:58
  SPEAKER_02: That that's that's the problem, I feel like.
• 1:02:01
  SPEAKER_02: I've seen it, I mean, I've seen it my entire career as a fitness coach.
• 1:02:04
  SPEAKER_02: Like that's the problem people have with going to the gym.
• 1:02:08
  SPEAKER_02: Outside of all the other the the mental stuff and the insecurity stuff, like that's also a problem.
• 1:02:13
  SPEAKER_02: But it yeah, life has to be sustainable.
• 1:02:17
  SPEAKER_02: It just has to be.
• 1:02:19
  SPEAKER_02: This is girl, this has been amazing.
• 1:02:21
  SPEAKER_02: Thank you so much for doing this.
• 1:02:23
  SPEAKER_02: Thank you.
• 1:02:23
  SPEAKER_00: I appreciate it.
• 1:02:24
  SPEAKER_02: Yeah, as as we get to the end here, my last kind of question for you is if you could leave like one to three pieces of advice to all the listeners that maybe they can put into action right now, what would that be?
• 1:02:41
  SPEAKER_00: Trade judgment for curiosity.
• 1:02:43
  SPEAKER_00: Build systems for real life and uh ask for support and use your care team.
• 1:02:49
  SPEAKER_02: Love it.
• 1:02:51
  SPEAKER_00: How uh when you th when you say care team not just your doctors, but but uh your community, your your spouse, your family, your your neighbors, your co-workers, anyone who is part of like anyone who's someone who loves you and cares about you and wants to support you for success, find like think of ways that they can help you and define it for them so they're able to and ask them for that help.
• 1:03:19
  SPEAKER_00: Like ask someone else to make the decision for you, ask right, like even if it's little, those things will still add up.
• 1:03:27
  SPEAKER_02: Yeah.
• 1:03:27
  SPEAKER_02: Yeah, I love that because it's I was just the I was curious what your definition was of care team because so many people when you hear care team and they just thinkers and nurses.
• 1:03:39
  SPEAKER_00: They just think that that the provider is anyone around you who wants to help take care of you and make sure you're taking care of yourself.
• 1:03:44
  SPEAKER_02: Love that.
• 1:03:45
  SPEAKER_02: It's awesome.
• 1:03:47
  SPEAKER_02: Thank you so much for doing this.
• 1:03:48
  SPEAKER_02: This was this was incredible.
• 1:03:50
  SPEAKER_02: Thank you.
• 1:03:50
  SPEAKER_02: I'm so glad I got to talk more about the organ piece.
• 1:03:55
  SPEAKER_02: We got to talk about that piece because I don't I don't get to talk about that very often.
• 1:03:59
  SPEAKER_02: And I'm not highly educated about it either.
• 1:04:01
  SPEAKER_02: So it's good.
• 1:04:02
  SPEAKER_02: I could talk about it for hours.
• 1:04:03
  SPEAKER_00: It's one of my favorite subjects.
• 1:04:05
  SPEAKER_02: That's awesome.
• 1:04:06
  SPEAKER_02: That's awesome.
• 1:04:07
  SPEAKER_02: Well, let's ask this last question in that in that realm.
• 1:04:11
  SPEAKER_04: Okay.
• 1:04:12
  SPEAKER_02: What what's a couple things that's important when we think about like your world?
• 1:04:18
  SPEAKER_02: What's a couple things that that we kind of have to really keep in the back of our head that you wish like everyone kind of knew?
• 1:04:27
  SPEAKER_00: I would say that like just organ donation world in general.
• 1:04:31
  SPEAKER_00: And again, like I'm not allowed to speak on behalf of my company, so I'm not even gonna label my company that way.
• 1:04:36
  SPEAKER_00: I'm staying far away from that.
• 1:04:38
  SPEAKER_02: Yeah.
• 1:04:40
  SPEAKER_00: Decide how you feel about organ and tissue donation and tell the people around you how you feel about it.
• 1:04:47
  SPEAKER_00: Because if they don't know what your wishes are, how are they going to be able to respect your wishes?
• 1:04:54
  SPEAKER_00: Know that if you if you are registered as a donor, if you pass away, that does not mean that you are automatically going to be a donor.
• 1:05:03
  SPEAKER_00: I can't count how many times we go to a family, we approach them, we say, hey, your loved one was on the registry.
• 1:05:10
  SPEAKER_00: That means they expressed an interest in donating organs.
• 1:05:14
  SPEAKER_00: How do you guys feel about this?
• 1:05:16
  SPEAKER_00: Let's have this discussion and make sure it's still the appropriate thing.
• 1:05:21
  SPEAKER_00: Um like if you're a registered donor, that does not automatically mean that we're gonna be vultures and just come in and recover your organs from your body.
• 1:05:29
  SPEAKER_00: It means that we're going to approach the family saying that you had made this, you had you had put yourself on the registry.
• 1:05:36
  SPEAKER_00: That does not mean that automatically that we're going to take them.
• 1:05:39
  SPEAKER_00: Just know that the healthier you are, A, if you ever end up in a situation where you need to receive an organ, it's going to put you in a better position to be able to receive it.
• 1:05:48
  SPEAKER_00: And B, the healthier you are if you end up in a situation where you need to, like if you are if you have passed away, your organs will make a bigger difference in someone's lives.
• 1:05:59
  SPEAKER_00: Healthier org Organs are easier to place.
• 1:06:01
  SPEAKER_00: They're more likely to go to children.
• 1:06:03
  SPEAKER_00: They're right.
• 1:06:04
  SPEAKER_00: You're going to make a bigger impact on the world.
• 1:06:06
  SPEAKER_00: Um and then nothing's black and white in it.
• 1:06:09
  SPEAKER_00: Everything's a grayscale, and everyone's just trying to make the best decision for everyone, for the families and the recipients and the patients at the end of the day.
• 1:06:18
  SPEAKER_02: Yeah.
• 1:06:19
  SPEAKER_02: My other question, and maybe you can answer this from a different perspective of organs as well.
• 1:06:27
  SPEAKER_02: My other question from this is as a type 1 diabetic, is there organs that are like off-limits on the hell?
• 1:06:34
  SPEAKER_02: You can't, you can't, obviously, outside of the pancreas.
• 1:06:37
  SPEAKER_02: So no, you can't donate this.
• 1:06:40
  SPEAKER_00: We look at any vascular damage, like the vascular damage from the blood sugar situation or fluctuations, long prolonged levels of high blood sugar damage those organs rapidly.
• 1:06:55
  SPEAKER_00: Even type 1 diabetics can frequently be like skin graft donors or long bone donors or like tendon and ligament donors.
• 1:07:02
  SPEAKER_00: We are less likely to be able to recover a healthy kidney.
• 1:07:05
  SPEAKER_00: But if we go in and we do the testing and all the testing shows that the kidney is healthy, then by all means, if your family consents to it, we can make that happen.
• 1:07:14
  SPEAKER_00: Type 1 diabetes is not an automatic disqualifier.
• 1:07:17
  SPEAKER_00: It just says that the OPO, the organ procurement organization, needs to do some additional testing to make sure that those organs will be safe for the recipient.
• 1:07:27
  SPEAKER_02: Is it kind of the same thing or not for giving blood?
• 1:07:32
  SPEAKER_02: Because I've heard that, like, oh, you can't give if you're type 1 diabetic, you can't give, you can't donate blood.
• 1:07:37
  SPEAKER_00: So I know for sure, because I had some time where I worked in plasma.
• 1:07:41
  SPEAKER_00: I know for sure type 1 diabetics cannot donate plasma.
• 1:07:44
  SPEAKER_00: Um I'm not sure about whole blood donation.
• 1:07:47
  SPEAKER_00: I haven't tried to donate whole blood since my diagnosis, and I'm not up to date on the current regulations of that.
• 1:07:52
  SPEAKER_00: Yeah.
• 1:07:53
  SPEAKER_00: I believe that they won't let you be whole blood donors, but it's not actually because of the blood quality, it's because of the risk to yourself.
• 1:08:00
  SPEAKER_00: Having a blood volume drop that high and that rapid can affect your body, and they want to keep you safe.
• 1:08:09
  SPEAKER_04: Got it.
• 1:08:09
  SPEAKER_00: But I could be incorrect, but I would assume that if you can't, that would be the reason why.
• 1:08:16
  SPEAKER_02: Gotcha.
• 1:08:17
  SPEAKER_02: All good stuff.
• 1:08:18
  SPEAKER_02: Thank you.
• 1:08:19
  SPEAKER_02: Thank you for that for that, for the organ explanation.
• 1:08:23
  SPEAKER_02: That made that that that was good.
• 1:08:25
  SPEAKER_02: That was good.
• 1:08:26
  SPEAKER_02: Yeah, that this has been great.
• 1:08:28
  SPEAKER_02: Thank you so much for doing this.
• 1:08:30
  SPEAKER_02: Everybody so much for having me.
• 1:08:32
  SPEAKER_02: Yeah, for sure.
• 1:08:33
  SPEAKER_02: Everybody, make sure that you reach out to Che.
• 1:08:36
  SPEAKER_02: She we will have her social media handles, anything else that she wants us to get connected with her with, so you can connect with her, say hi.
• 1:08:45
  SPEAKER_02: It's another dia buddy that you guys that I, you know, I'm you know, hell helping you guys find.
• 1:08:51
  SPEAKER_02: We all need dia buddies.
• 1:08:53
  SPEAKER_02: And yeah, make sure that you like and follow the show.
• 1:08:56
  SPEAKER_02: If you're new, if this is your new episode if you this is your first episode, say thank you so much again.
• 1:09:01
  SPEAKER_02: This has been amazing.
• 1:09:03
  SPEAKER_02: And uh, we will see everybody next time.
• 1:09:06
  SPEAKER_00: Thanks, Ken.