Take Part Founders and PYROXD-1 Parents - Matt and Maria Granados
ONCE UPON A GENE - EPISODE 179
Take Part Founders and PYROXD-1 Parents - Matt and Maria Granados
Matt and Maria Granados are the parents of 4-year-old Natalie, who suffers from a rare form of muscular dystrophy called PYROXD-1. They are the founders of the Take Part Foundation which helps to fund research for rare pediatric conditions.
EPISODE HIGHLIGHTS
Can you tell us a little bit about yourselves and your family?
We are a family of four, almost five, with one on the way. Natalie is our oldest daughter and she has a very rare form of muscular dystrophy that is labeled by the gene called…
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