Latest / Crohn's & Colitis Unfiltered / Fighting for her gut: Melissa’s relentless battle with ulcerative colitis
Transcript
- 0:06I wasn't really familiar with ulcerative colitis.
- 0:09I mean, I knew of it, but I didn't know the ins
- 0:12and outs of it. And the doctor was like, oh,
- 0:14you have ulcerative colitis, come back in a couple
- 0:17of months, let the dust settle. And like really
- 0:20wasn't. overly informative or overly tactful
- 0:24for the diagnosis. So I was kind of left on my
- 0:27own to sort of digest it and take it all in and
- 0:30figure it out. This is Melissa, who got diagnosed
- 0:34with ulcerative colitis at age 46 in Boston,
- 0:37Massachusetts. Melissa's journey is one of inspiration.
- 0:42Not too long after her diagnosis, doctors recommended
- 0:45she have surgery to remove her colon. But Melissa
- 0:48refused. She was not ready to let go of her intestines.
- 0:52Today, she's telling us all about her IBD experience.
- 0:57This is Talking S*** presented by Colitis Unfiltered.
- 1:00My name is Franck Tabouring and Melissa, welcome
- 1:03to the show. Thank you, Frank. Glad to be here
- 1:05today. So let's get right into it. I think, you
- 1:09know, what's really easier for the audience is
- 1:12to maybe set a little bit of a context. So it'd
- 1:14be great for you to maybe give us a very brief
- 1:18summary of your IBD journey, you know, from diagnosis
- 1:21to today. Tell me a little bit about your timeline.
- 1:25So going back, I was first diagnosed in 2018.
- 1:29And I first started having symptoms of diarrhea,
- 1:34urgency, and was really quite sick and was hospitalized
- 1:37for about 12 days. And I was treated with IV
- 1:42antibiotics, like I had a parasite or something.
- 1:45And it wasn't until the last day where they did
- 1:48a colonoscopy on me and they said I had ulcerative
- 1:50colitis. And I was literally sent home to let
- 1:54the dust settle. And I had lost a ton of weight
- 1:57and progressively got more and more sick where
- 2:00I was blacking out. Led me to go see another
- 2:04doctor for another opinion. At that point, my
- 2:07hemoglobin and hematocrit were at critical low
- 2:10numbers and I needed blood transfusion and was
- 2:12hospitalized again. And I was then started on
- 2:17some IV Remicade. and that eventually ended up
- 2:21not working for me. And then I went advanced
- 2:25to another medication called Intivio. That didn't
- 2:29work. I eventually then went to a third opinion
- 2:32and found another doctor who was really not afraid
- 2:36to push the envelope and do a combination drug
- 2:39therapy to try to knock me into remission. And
- 2:42that was really what set me straight was this
- 2:46third doctor. So it was like a very long journey
- 2:49to get stabilized. And in the meantime, everybody
- 2:53wanted to take my colon out. When I was hospitalized,
- 2:57and when I was hospitalized, it was days at a
- 2:59time, I'm talking 12 days in the hospital, and
- 3:03they were all at my bedside, ready to remove
- 3:05my colon. And I wasn't having it. I didn't want
- 3:09to have my colon out. I thought I was young.
- 3:12If there's another way out, By golly, I was going
- 3:14to fight for it. And I did. So anyways, I found
- 3:18my way, found the right doctor, found the right
- 3:21remedy, the right prescription, and was able
- 3:24to get stabilized. But it took a long time. It
- 3:27took a couple of years. So you said that, you
- 3:30know, the symptoms just showed up. Like, how
- 3:32did you realize something was wrong? The diarrhea
- 3:37that I was having was not like I had a bug. or
- 3:42like a stomach flu, something like that. There
- 3:45was urgency, the consistency. Then I started
- 3:51rectal bleeding. And so it wasn't long where
- 3:53I'm like, oh boy, what's going on here? This
- 3:56isn't normal. This isn't a normal type of bug.
- 4:00And I was really wiped out, exhausted, where
- 4:04I was flat lying and couldn't lift my head. I
- 4:07was literally brought out in an ambulance. Wow.
- 4:11One thing that I sometimes think about is this
- 4:13very moment where, at least for me, I was sitting
- 4:16in the doctor's office and he broke the news
- 4:17to me, right? He said, I'm afraid it's not good
- 4:20news. You have ulcerative colitis. And to me,
- 4:23so many questions popped into my head. I was
- 4:24like, wait, what? So I want to ask you, whatever
- 4:27physician diagnosed you, how did he or she break
- 4:31the news to you? And also when you heard this
- 4:34term ulcerative colitis, what went through your
- 4:36mind? Wasn't really familiar with ulcerative
- 4:40colitis. I mean I knew of it I but I didn't know
- 4:43the ins and outs of it and at the time I had
- 4:46been so sick and was hospitalized not knowing
- 4:49what it was Part of me was like a relief that
- 4:52it wasn't cancer You know cuz I didn't know what
- 4:56it was and then the ulcerative colitis was like
- 5:00I Was a little overwhelmed at first to be honest.
- 5:03I you know, I had to you know Take it back and
- 5:07it was the doctor was like, Oh, you have ulcerative
- 5:09colitis. Uh, come back in a couple of months,
- 5:11let the dust settle. And like really wasn't overly
- 5:15informative or overly tactful for the diagnosis.
- 5:19So I was kind of left on my own to sort of digest
- 5:23it and take it all in and figure it out. So,
- 5:26uh, it wasn't a great experience in many ways
- 5:29on many levels. Right. So basically. the first
- 5:33time you heard the term, the doctor didn't necessarily
- 5:35go into details and explain to you, hey, this
- 5:37is an inflammatory bowel disease, nothing really,
- 5:40just said, this is it. No, it wasn't until I
- 5:42got to the second doctor that I really got some
- 5:45great information. I think this is a common problem
- 5:50for a lot of people with colitis. At least the
- 5:52stories that I hear is that either doctors write
- 5:55it off or they just write it off as IBS or they
- 5:57don't really follow up. Personally, Because you're
- 6:00working as a nurse as well, right? Why is it
- 6:03that doctors don't really take the time or don't
- 6:05really listen to the patient and become more
- 6:07proactive right away? Well, I can tell you one
- 6:10thing that I encountered is that there's gastroenterologists
- 6:15that are general gastroenterologists, and then
- 6:18there's gastroenterologists that are specialized
- 6:20in IBD. And that makes a whole world of difference
- 6:24because, you know, The guy I saw first he could
- 6:28been a specialist in in reflux disease, you know
- 6:31or saw everything But does he really you know
- 6:34live and breathe ulcerative colitis and Crohn's
- 6:36disease on a daily basis? No, you know, he's
- 6:38because he's a general gastroenterologist I did
- 6:42not believe he knew the ins and outs of the ulcerative
- 6:46colitis So it really took finding someone that's
- 6:49super specialized in inflammatory bowel disease
- 6:52to sort of treat someone, you know, the best
- 6:57way possible. You mentioned at the beginning,
- 7:00but could you quickly take us through the types
- 7:02of medications that you went through sort of
- 7:04and which ones worked and which ones didn't work?
- 7:07Yeah. So at first I was on mescalamine. Then
- 7:11I went to Remicade. Then I went to Intivio every
- 7:16eight weeks. Then when I got to the doctor that
- 7:20was the specialist in IBD, She put me on Zeljanz
- 7:27in conjunction with Antivio every four weeks.
- 7:31And it was that combination of those two medications
- 7:36that really knocked me into remission. So then
- 7:40I was able to wean off of the Zeljanz and maintain
- 7:44the Antivio. And that's where I'm at today is
- 7:48on the Antivio. But I went have recently gone
- 7:50from every four weeks to every six weeks. That's
- 7:54great. Antivio, that's exactly the treatment
- 7:56that I am on now. And for me also, it's been
- 7:59the most stable one. Very glad to hear that this
- 8:01is the one that keeps you in remission and that's
- 8:03actually the one that keeps me in remission right
- 8:04now as well. I was on prednisone too during in
- 8:07-between while I was finding the right doctor.
- 8:10I was taking prednisone like crazy because it
- 8:14was stopping the bleeding and I was taking it
- 8:17totally against medical advice. But I was so
- 8:21afraid to have my colon out. I was like, if it's
- 8:23going to stop the bleeding and buy more time
- 8:25till I can find the right doctor and get the
- 8:27right answer. I was doing that, you know, which
- 8:31is not good to be on long term steroids. Exactly,
- 8:35yes. And I mean, I always personally refer to
- 8:38prednisone as sort of a blessing and a curse,
- 8:40right? Blessing because it can help you short
- 8:43term, but curse, you know, all the side effects
- 8:45and what it does to your body. How did you experience
- 8:48the prednisone? Did you have very notable side
- 8:50effects? This is a question that a lot of people
- 8:52with colitis that I talked to and they struggle
- 8:53with prednisone. What was your experience being
- 8:56on that medication? Yeah, I mean, the ulcerative
- 8:59colitis has brought so much you know, with body
- 9:02image. I mean, there was one point I had lost
- 9:04a lot of weight because everything I was, you
- 9:06know, consuming was going right through me. And
- 9:09then when I was on long -term prednisone, I had
- 9:12like a 30 pound weight gain. I had, you know,
- 9:16hair loss. I had weight gain. I had mood swings.
- 9:22I mean, yeah, not good side effects, but it saved
- 9:27me because I was stopped bleeding and it bought
- 9:30me some time. So you're absolutely right, the
- 9:33blessing and the curse. You mentioned earlier
- 9:36that you were advised or was recommended to you
- 9:39to just remove your colon to beat this disease
- 9:43essentially, and you refused. What did you do
- 9:47mentally also for yourself in refusing to go
- 9:51that route? When the first doctor told me to
- 9:53go home and let the dust settle and I had gotten
- 9:55progressively worse and made it to that second
- 9:58doctor, He admitted me right away into the hospital.
- 10:02I needed blood transfusions. And he basically
- 10:04told me, I never would have let you out of the
- 10:06hospital in this condition, you know, back from
- 10:10the first doctor. And he basically said, you
- 10:13know, that they didn't do enough for me. It was
- 10:15like a fire extinguisher and a forest fire. You
- 10:18know, they just did not. you know do enough for
- 10:21me and he said that I had severe pan colitis
- 10:24which is colitis in the whole entire colon so
- 10:26there was not one section of my colon that was
- 10:30saveable and that I really was a candidate to
- 10:33have the the colon out and that I should really
- 10:35consider it and uh you know I said well I don't
- 10:39want to do that and that's he started me on the
- 10:41remicade and you know it wasn't long because
- 10:45I was on the remicade only a few months and he
- 10:47said It was it stopped working. I started having
- 10:50like the breakthrough bleeding and symptoms came
- 10:53right back within a few months and he says well
- 10:56I can start you on in tibio but really you should
- 10:59have the colon out and I I had a very hard time.
- 11:04I had a very very hard time, you know digesting
- 11:07that like what's gonna happen to my life? I was
- 11:09only 46 years old. Is that necessary? Is there
- 11:13anything out there that can you know get me out
- 11:16of this? And I just kept pursuing. I'm like,
- 11:20I need another opinion. I need to find another
- 11:22doctor. And it turned out that doctor one was
- 11:27not an IBD specialist. Doctor two was not an
- 11:30IBD specialist. The third one was. And by the
- 11:34time I got to her, she said, yes, you have a
- 11:38very severe case, but she was willing to sort
- 11:41of, you know, try things out and do some experimentation
- 11:46with the medications to see if I couldn't get
- 11:49to a remission where I had a chance of not getting
- 11:52my colon out. It's remarkable that you actually
- 11:55stuck with your opinion and you didn't listen
- 11:57to the doctors. And I understand that a lot of
- 11:59colitis patients out there, they get diagnosed
- 12:01at a stage where they actually don't have any
- 12:03other option anymore. And I think, you know,
- 12:05again, you know, sort of this lack of sort of
- 12:08subspecialty maybe is coming into play as well.
- 12:11The same thing happened to me and this was while
- 12:14I started on Remicade and after about a month
- 12:16or two, it didn't really work quite yet. I was
- 12:18feeling better, but my doctor basically told
- 12:20me, listen, if this doesn't work, this is maybe
- 12:24something that we should consider, right? Surgery.
- 12:26And I still remember to this day, I was actually
- 12:28sitting ironically enough on the toilet and I
- 12:32sort of processed everything and I said, no.
- 12:34And I just said, this is not going to happen.
- 12:37So over the years, I thought to myself, Listen,
- 12:40everybody always talks about sort of brain -gut
- 12:42connection, right? And I'm the first one to say
- 12:46that certainly the medication, the treatment
- 12:49was what pulled me into remission. But I always
- 12:53said, I think the mindset sort of keeping that
- 12:56strength, it probably helped a little bit. I
- 12:59don't want to say that it sort of kept me from
- 13:02using my colon, but What's your stance on sort
- 13:06of like using your mind and having just sort
- 13:09of, I don't know, either positive mentality or
- 13:10fighting spirit and how it can help somebody
- 13:14through, through struggles. Oh, I'm all about
- 13:17it. Do you believe that? Absolutely. The perseverance,
- 13:20the determination, you know, I also, you know,
- 13:23it had a lot of stress in my life. So I, you
- 13:26know, I meditation yoga, then I got into, you
- 13:29know, diet. changes. And, you know, certainly
- 13:33I will never discount my gastroenterologist that,
- 13:36you know, saved me and all the wonderful things
- 13:40that, you know, the medicine field is doing,
- 13:42but they were not into diet recommendations.
- 13:45I can't tell you how many times I was told you
- 13:48can eat a regular diet. It's autoimmune. You
- 13:51can do what you want. It doesn't matter what
- 13:53you eat. You have your colon's failing, you know,
- 13:56get your colon out. But I got to tell you when
- 13:59I did all of those things, the stress management
- 14:02and, and the food changes, you know, and, and
- 14:06the mindset things started, you know, to turn
- 14:09around. So, um, I'm a firm believer in all of
- 14:12those things to that, you know, we, we, our bodies
- 14:15can heal ourselves and, and there's a lot of
- 14:18things that you can do. Yep. Yep. I think it's
- 14:21a really good combination of having that fighting
- 14:24spirit, the mindset, and then the right doctor,
- 14:27the right treatment plan. And, uh, you actually
- 14:29have a, worthy shot of experiencing remission
- 14:32and staying in remission. So speaking of remission,
- 14:36actually, once we get better, once we heal, even
- 14:40though we know it's not a cure, so we should
- 14:42never take remission for granted. A lot of us
- 14:45we sort of reflect on our choices we make in
- 14:48life, especially to our bodies. What sort of
- 14:51lifestyle changes have you made, you know, since
- 14:55remission or what lifestyle changes have helped?
- 14:58you better manage your disease. Yeah. I mean,
- 15:02that's a great question. You know, and this is
- 15:05one good thing about this whole IBD journey for
- 15:09me is that it put me in a place where I am ultra
- 15:14conscious about my sleep, my stress, my diet,
- 15:19all of those things I am, you know, ultra conscious
- 15:23on a daily basis. So that's a good thing, whether
- 15:26you have IBD or not, right? So that's been sort
- 15:31of the blessing here is being have this conscious
- 15:34contact about wellness on a regular basis. How
- 15:39has this disease changed you as a person? Well,
- 15:44I've learned not to take anything for granted.
- 15:48Health is wealth. I mean, What if you know when
- 15:51you have like a close call like that and you're
- 15:54hospitalized, you know for days on end I mean,
- 15:57I wasn't working. I wasn't I wasn't near family.
- 16:00I was away at a hospital. I mean so really, you
- 16:04know Not taking anything for granted and and
- 16:09really prioritizing health Without that, you
- 16:13know, what have you got I basically prefer to
- 16:17as my IBD journey, where we're actually the actual
- 16:20disease is a blessing and a curse as well, right?
- 16:24Curse because we suffered a lot, but then a blessing,
- 16:26it just sort of allows us to revaluate our lives.
- 16:30How do you relate to that, that IBD being both
- 16:33a blessing and a curse? Does that resonate with
- 16:35you? It totally resonates and probably very similar,
- 16:38you know, to you. The curse is definitely All
- 16:43of the suffering. I mean it was it was so stressful
- 16:46navigating the health care system the doctors
- 16:48Finding the right medication, you know, and then
- 16:51all the physical suffering. I mean I had You
- 16:54know weight loss. I had weight gain. I had hair
- 16:56loss. I mean You know the fatigue, you know,
- 17:00I had low iron levels all of that stuff I mean
- 17:03that that was definitely, you know the curse
- 17:05and and and having this, you know disorder and
- 17:09disease and then of course, you know On the flip
- 17:12side, the blessing, I have learned so much about
- 17:16the disease. I'm able to help other people. I've
- 17:22learned about diets and foods and supplements
- 17:25and wellness. I don't think I ever probably would
- 17:28have tried doing yoga or meditation prior to
- 17:32this. So there's a lot of blessings. That's great
- 17:37to hear. You mentioned when you were at your
- 17:40worst, you sort of were not able to be around
- 17:43family so much. How has the disease, especially
- 17:46also when it was active, impacted your relationships
- 17:48with your friends, with your family? And also
- 17:52how did they react? And I'm sure they didn't
- 17:55know much about ulcerative colitis either. Was
- 17:57it difficult for them to understand the disease?
- 18:01How did you communicate with them? What was that
- 18:05like for you? Yeah, that was a little challenging.
- 18:08I'm one to isolate. I don't want to talk shit
- 18:13with everybody. So it was a little challenging.
- 18:18It's not like you could say, oh, I'm diabetic.
- 18:22It's a lot easier to say something like that
- 18:25than to say, I have diarrhea. I mean, I guess
- 18:32that caused a little bit of separation and a
- 18:35little bit of a barrier with, you know, talking
- 18:37to people and communicating. You know, people
- 18:40say, how are you? And it's like, you know, you
- 18:43don't want to say, oh, well, I went to the bathroom
- 18:4510 times or I'm bleeding. You know, those are
- 18:48not things that you necessarily want to talk
- 18:50about. And it becomes challenging to have conversations
- 18:53about your health, you know, even when it's with,
- 18:56you know, close friends and family. It's sometimes
- 18:59was challenging. Yeah, you mentioned the word
- 19:03isolation. And I think that's definitely also
- 19:06something that happened to me when I was flaring
- 19:07and I was at my worst. I actually wanted to be
- 19:09alone. I sort of retracted into my own bubble
- 19:11and wanted to suffer basically by myself in silence.
- 19:17So yeah, how did you navigate your flares? And
- 19:19did you also experience this sort of isolated?
- 19:22feeling or not wanting to be close to anybody.
- 19:24Yes, I absolutely did. I mean, I wanted to be,
- 19:27you know, home. I wanted to be near the bathroom.
- 19:31I certainly didn't feel social, didn't feel like
- 19:34having fun, didn't want to go out. I mean, when
- 19:37I, during a flare and to go out, I mean, that's
- 19:40if I had to go somewhere, I'm packing a change
- 19:43of clothes and thinking ahead about where's the
- 19:46bathroom and how long am I going to be and how
- 19:49long is the drive? And you know, so I didn't
- 19:51want to deal with any of that. It was just like,
- 19:54leave me alone. I'm not going anywhere. I'm not
- 19:56talking. I'm not doing anything. We don't have
- 19:59the energy at that point to actually do anything
- 20:03or literally care about anyone else but ourselves,
- 20:06right? So it's one of those moments where it's
- 20:08actually okay to be very, very selfish. And I
- 20:11always advocate for that, you know, take care
- 20:13of yourself first, and everybody else has to
- 20:16wait, right? So what advice would you have for
- 20:23people like friends and family supporting someone
- 20:26with IBD, someone that is entering a tough stretch
- 20:31or is flaring constantly, what would you tell
- 20:33these people who are around the person like that?
- 20:36I would say not to ask too many questions, let
- 20:39them know that you're there for them and support
- 20:41them and ask them to let you know if there's
- 20:44anything that you know, that they that you need,
- 20:47you know, and provide space for that person if
- 20:50you're getting the feeling that they want to
- 20:52be alone, that that's okay. And I think that
- 20:55that's helpful to know both for the person that
- 20:59has the ulcerative colitis to know that people
- 21:02are there for you and they're only like a phone
- 21:04call away without being overly intrusive about
- 21:09what's going on and what the status is. I think
- 21:14the best thing that people can do is let you
- 21:18know that they're there but that actually wait
- 21:20for You know us to reach out to them. I think
- 21:23that that's the best sort of support that that
- 21:26they can show right? So one of the reasons why
- 21:30I started this initiative and why I also want
- 21:34to raise awareness about Colliders Crohn's IBD
- 21:37in general is I think there's a lot of common
- 21:39misconceptions still out there. There's a lot
- 21:41of stigma. There's actually a lack of awareness
- 21:43based on what you have experienced. What are
- 21:46some common misconceptions in your eyes about?
- 21:49colitis or IBD in general. I think people don't
- 21:54understand that as like a long -term chronic
- 21:57illness or that it's, you know, autoimmune. I
- 22:00think a lot of people confuse IBD with IBS and
- 22:06they don't, they just don't really understand,
- 22:08you know, the complexity of it. What do you think?
- 22:15Besides just trying to raise awareness and talk
- 22:17about it. Do you think there's anything else
- 22:19that we could do to educate people better? You
- 22:24know, I've seen a lot of activity more recently
- 22:27in the past year than in years prior like from
- 22:31the Crohn's and colitis foundation I see them
- 22:34doing a lot of marketing a lot of publicity a
- 22:37lot of events to raise awareness I think there's
- 22:41a lot, there's a movement. I see people on TikTok
- 22:47and other social media platforms that are very
- 22:51open, people that, young girls in bikinis that
- 22:54have colostomies. I feel like there's a lot more
- 22:58openness about it. So I feel like there's a movement
- 23:01out there that's going in the right direction
- 23:04to help people understand. And so today, we've
- 23:10kind of arrived at the present now. How are you
- 23:14feeling? You feel like you really have this disease
- 23:16under control for now? Are you feeling good?
- 23:20Do you feel strong again? Like, how are you feeling?
- 23:23I feel great. I feel great now. You know, the
- 23:27ulcerative colitis is in remission. I've recently
- 23:31been able to decrease my doses of the Antivio.
- 23:35I have my mental health things that I do. I have
- 23:39my diet that I follow. So yeah, I'm feeling fabulous
- 23:43and back to normal. That's really great to hear.
- 23:48Yeah, that's great. Perfect. So I have two questions
- 23:51for you before we wrap this up. We were actually
- 23:54talking right before we started recording a little
- 23:58bit about The difficult healthcare system, specifically
- 24:02United States, you were diagnosed there. I was
- 24:05diagnosed there and I suffered through my worst
- 24:07in the US as well. And, you know, one of the
- 24:10things that my doctor always told me was, Oh,
- 24:12you actually have very good insurance. And I
- 24:13thought, Oh, that's interesting. Great. But then
- 24:17oddly enough, the bills for the Remicade treatments
- 24:20showed up and I looked at the number and it said,
- 24:22$20 ,000 and show what the insurance would take
- 24:26care of. But then I saw amounts in the thousands
- 24:29of dollars that I would still have to pay out
- 24:32of pocket. So healthcare, this is one of the
- 24:35issues. Insurance, another issue where people
- 24:38who are newly diagnosed tend to struggle with
- 24:41sometimes, not just in the US, but mainly there
- 24:43as well. I think other struggles that people
- 24:46are experiencing is diet and how to handle that.
- 24:50And you and I both talked about this. You're
- 24:53sort of having an initiative that you're launching
- 24:57or in the process of launching in terms of trying
- 24:59to help people as well, right? Like, or coach
- 25:01them. Can you tell me a little bit about what
- 25:03your initiative is and what you're doing or planning
- 25:06to do in those fields and trying to help people
- 25:09out? Yeah, so I'm a nurse by background. I have
- 25:14spent many years actually working in the insurance
- 25:18industry. But I was also had many years experience
- 25:22as a case manager and doing motivational interviewing.
- 25:25So I am between my lived experience, personal
- 25:30and professional experience. I am opening it
- 25:34up to help people that are out there suffering,
- 25:36that need help navigating the health care system,
- 25:39that need help setting goals and making changes
- 25:42in their lifestyle. And so, you know, I feel
- 25:47like you know, I can give back and I'm looking
- 25:50forward to doing that. So I'm, you know, have
- 25:54my sub stack open and for anybody that wants
- 25:57to, wants to reach out, I can provide individualized
- 26:01coaching sessions or consulting. Perfect. I'm
- 26:04going to put that link as well into the show
- 26:06notes so that people can quickly access that.
- 26:09So then Melissa, my final question for you is
- 26:12one looking into the future. And this is how
- 26:16we want to we want to part. Do you think we'll
- 26:19see a cure to colitis in our lifetime? Oh, I
- 26:23know there's already been so many advances, even
- 26:26since I was diagnosed seven years ago in the
- 26:28medications. If you go on TV, there are so many
- 26:31new medications out there that it's just unbelievable.
- 26:36As far as a cure goes. Hmm. That's difficult
- 26:40to answer. I know things are going in great directions.
- 26:45but it seems to be going in the big pharma direction.
- 26:50As far as curing autoimmune disease, I don't
- 26:54know. That's a really tough question, a great
- 26:58question. You got me stumped on that one a little
- 27:00bit, but I think it's a holistic thing. I mean,
- 27:07autoimmune, pardon me, I can't help but think
- 27:10it's triggered by stress. you know, by our diets.
- 27:17There's a lot to this. And I think it's a question
- 27:21that we honestly can't really answer, but I'd
- 27:24like to ask it because, you know, we all have
- 27:25sort of our mindset and most of us, at least,
- 27:28you know, who've been living with the disease,
- 27:30who are in remission, we'd like to have this
- 27:33positive outlook, right? And as much as I myself
- 27:37would love to see a cure, I think the more treatments
- 27:40we can find, the better people have a shot at
- 27:43Going through a prolonged maintenance and remission
- 27:46of the disease as well. So I think progress is
- 27:49being made there. You're absolutely right. Well,
- 27:52Melissa, thank you so much. This has been a really
- 27:54fascinating conversation and I really want to
- 27:57applaud you as well for wanting to share your
- 27:59journey. I think this is really one of the key
- 28:01elements that we need in raising awareness. It's
- 28:04not just to talk about what the disease is and
- 28:06what it does, but to also share personal experiences
- 28:10because yes, Everybody is different, but we share
- 28:14a lot of the same issues, challenges and also
- 28:17victories as colitis patients. So thank you so
- 28:20much again for taking the time and sharing your
- 28:22story. And I wish you nothing but the best with
- 28:25your continuing remission. Thank you so much.
- 28:27I appreciate being here and best of luck to you.
- 28:31Thank you. That's it for today's episode of Talking
- 28:35S*** presented by Colitis Unfiltered. I'm Franck
- 28:38Tabouring and if this hit home, or hit your gut.
- 28:41Do us a favor, subscribe to the show and follow
- 28:44us at Colitis Unfiltered on YouTube, Substack,
- 28:48Instagram, Threads, TikTok and Reddit. We'll
- 28:51see you soon for more inspiring stories from
- 28:53the bathroom floor.