Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / This Is Why Girls With Autism Are ALWAYS Forgotten

Transcript

This Is Why Girls With Autism Are ALWAYS Forgotten · Aspergers & Autism Podcast [The Aspie World] AuDHD

• 0:00
  This is why girls with autism are always forgotten.
• 0:03
  About all that coming up, Hey guys, welcome back to the Ashley
• 0:13
  world. My name is Dan, I have autism,
• 0:15
  ADHDOCD, and dyslexia, and I make weekly videos on this type
• 0:19
  of content. So if you're new around here and
• 0:20
  you'd love to learn more about that subject, then head over and
• 0:23
  hit the subscribe button by clicking that notification bell
• 0:26
  down below. And also, if you're watching
• 0:27
  over on Facebook, we should give this page a like and follow to
• 0:30
  see more videos just like this one.
• 0:32
  And if you're watching on Instagram, make sure to follow
• 0:35
  my profile for weekly and daily updates and videos on autism
• 0:39
  from me. OK, all that's all the way guys.
• 0:42
  What's going on? Welcome back to the ass.
• 0:44
  We will to the place where we think differently daily.
• 0:46
  What is up Different thinkers man, I love making videos and I
• 0:49
  love giving you guys gifts. Which is why I have a free
• 0:52
  Autism Hacks PDF book. So if you want to download free
• 0:55
  Autism Life Hacks PDF book from me, you can't do with the kind
• 0:58
  of here on the end slate of this video and in the description
• 1:01
  down below and it's just cool it's free for you.
• 1:04
  I've got you back, fam. All right guys, what's going on?
• 1:07
  I've been doing a lot of videos recently on girls on the autism
• 1:11
  spectrum because I feel like girls with autism are always
• 1:14
  like, I like the second day. You know, they ever always talks
• 1:18
  about boys with autism. Nobody really talks about girls
• 1:20
  with autism. And there are so many, like
• 1:22
  loads of my friends are girls who are on the autism spectrum.
• 1:24
  I've done loads of videos with those.
• 1:25
  And if you'd like to learn more about it, I've put the playlist
• 1:27
  in the link down below in the description of this video.
• 1:29
  But in terms of, like girls in the autism spectrum and and, you
• 1:34
  know, not getting diagnosis or getting misdiagnosed, I'm not
• 1:37
  even getting the appropriate help and attention that they
• 1:40
  need. Oh my goodness.
• 1:41
  It's like an epidemic that, like, girls are three times less
• 1:44
  likely to be diagnosed than males, which has no relevance at
• 1:47
  all, only other than like, some shocking fact.
• 1:50
  But I want to split three reasons.
• 1:52
  While girls have probably forgotten about on the autism
• 1:54
  spectrum, I've done a video similar to this.
• 1:56
  But I thought I'd missed out some kind of information.
• 1:58
  And I wanted to do it so that I've got everything that I
• 2:00
  wanted to possibly talk to you about in this video.
• 2:03
  Because let's face it, at the end of the day, I want to give
• 2:05
  you guys as much information as possible.
• 2:07
  And you're awesome and I love you.
• 2:08
  And I'm trying to make sure that you guys don't feel alone and
• 2:11
  you always have someone to turn to.
• 2:12
  And I have as much information as possible.
• 2:13
  So yeah, let's get into the video.
• 2:16
  Kick it. I don't know why I did that.
• 2:18
  I'm so sorry everybody. Right.
• 2:21
  So the first one here is old data.
• 2:23
  Now, most if not all of the data that was created on autism
• 2:27
  research for autism was created for the diagnostic criteria, but
• 2:31
  based upon research that was done on males about on the
• 2:34
  autism spectrum. So you got to think about this
• 2:36
  right. When they were setting up all
• 2:38
  the details for diagnosing people with autism and what
• 2:41
  criteria could go into a diagnostic.
• 2:43
  They were looking at a model of a male's perspective and a male
• 2:48
  specific model of someone in the autism spectrum.
• 2:51
  So when you try and relate that information to a girl in the
• 2:54
  autism spectrum, it's not going to fit.
• 2:56
  Let's just be be perfectly honest, you know, it's never
• 2:59
  going to fit because the brains are different.
• 3:01
  They're all different than everybody, but they're all
• 3:02
  different between males and females.
• 3:04
  That's why we have males and females.
• 3:05
  You know that they're different people.
• 3:06
  There's different things going on here.
• 3:07
  So you can't just take diagnostic that was made for
• 3:10
  males and then just smack onto a female and if oh, they didn't
• 3:12
  pass. So that means they haven't got
• 3:13
  autism? No, it means that the test
• 3:15
  wasn't adequate for the person you're trying to test.
• 3:19
  I mean, like, yeah, it's weird, right?
• 3:21
  You wouldn't test a giraffe on how well it can swim, right?
• 3:25
  I don't actually. Drafts.
• 3:26
  Maybe I'll swim really well. But, you know, compared to like
• 3:28
  a dolphin, it's not a fair test, You know, it's ridiculous.
• 3:30
  You test the dolphin and how good it could swim.
• 3:32
  It come up with 10 out of 10 did it with the giraffe.
• 3:34
  It probably failed miserably, but it doesn't mean that the
• 3:37
  dolphin is better equipped than the OK, this metaphor is getting
• 3:42
  rubbish, but you know what I mean.
• 3:43
  It's like you have them a test that's adequate for the person
• 3:46
  you're testing, right? Otherwise it just doesn't work.
• 3:48
  So, old criteria, old data, super, super annoying.
• 3:53
  But it's part of the problem when my girls, I've really
• 3:55
  forgotten about having autism right now.
• 3:57
  It's really oh, it frustrates me.
• 3:59
  OK, so #2, it's different diagnostic criteria, you know,
• 4:02
  when diagnosing girls with autism, there'll be a complete
• 4:05
  different criteria for diagnostics.
• 4:08
  This is like different than males, obviously, because girls
• 4:11
  will have slightly different characteristics and traits of
• 4:14
  autism than males, right? Because girls have a more
• 4:18
  independent attitude, they will try and do things a little bit
• 4:20
  differently to males than autism spectrum.
• 4:23
  And it's a little bit more tricky to kind of spot autism in
• 4:25
  females because of this factor that the the traits are a bit
• 4:29
  different. And again, because of the fact
• 4:30
  that all the data that everybody has been researching was all
• 4:33
  done on males. But when you're looking forward
• 4:34
  to the future, when you're looking at females, you have to
• 4:37
  always remember this is a completely clean slate.
• 4:39
  What these behavioral characteristics tell us and
• 4:42
  what's going on here because females will display different
• 4:44
  characteristics than males. That's just a fact of life, you
• 4:47
  know, That's what it is. Yes, there will still be social
• 4:49
  interaction issues, yes, there will be century processing
• 4:51
  disorder issues, but some of the big main Balkans will be
• 4:54
  different because there is different diagnostic criteria
• 4:56
  for males to females. Now the National Autistic
• 4:58
  Society are rolling out courses and training to help people
• 5:01
  really understand this mass divide difference.
• 5:04
  But so far it's it's slow but sure at the end of the day, but
• 5:08
  it really does make a difference when we can actually understand
• 5:11
  the difference between the males and the females with their
• 5:13
  diagnostic criteria. But this is definitely one of
• 5:15
  the reasons why they've forgotten about this is this is
• 5:16
  100% reason why they've forgotten about.
• 5:18
  OK, so #3 is masking. Now masking is where an autistic
• 5:22
  woman will make make a mask for their issues and their
• 5:26
  difficulties to try and fit in in in normal typical social
• 5:29
  daily life, right. Even though they'll have
• 5:31
  difficulties with it, they will force themselves into situations
• 5:33
  that they don't don't feel comfortable in because they want
• 5:36
  to appear just like everybody else to kind of get through the
• 5:39
  day. It's a survival technique that
• 5:40
  girls would use more so than boys.
• 5:43
  As in boys in the Austin Spectrum will just kind of
• 5:45
  completely be lost with certain situations, whereas girls in the
• 5:47
  Austin Spectrum will kind of develop.
• 5:49
  It's a very clever way of kind of like societal survive
• 5:54
  situations where a girl will mask their traits so they can
• 5:57
  fit into that situation so that they can feel safer in that
• 6:00
  situation than being ousted or on the outside of that
• 6:04
  situation, which is just completely bonkers that we even
• 6:07
  have to do this. But social pressure, peer
• 6:08
  pressure, all these things kind of come in and they crash down.
• 6:10
  Right. So because of this when you're
• 6:13
  trying to diagnose a girl on the autism spectrum who may be
• 6:15
  displaying, you know, a masking kind of characteristic at that
• 6:18
  moment in time, you're fighting a losing battle.
• 6:21
  And some of the and the doctors are fighting a losing battle
• 6:23
  because they don't know what they're looking at because they
• 6:25
  haven't really thought, well, this girl could be masking is
• 6:27
  this, you know, they have to be clever about it And that
• 6:29
  diagnostic criteria for females has to be thought about
• 6:32
  cleverly. It has to be something new, has
• 6:34
  to be something that we haven't really done before because you
• 6:38
  have to always change and evolve with the pros and the cons here.
• 6:41
  Now this is shocking and it is probably one of the main reasons
• 6:45
  why girls are often missed off diagnosis.
• 6:48
  I've forgotten about as being part of the autism spectrum.
• 6:50
  But it doesn't take away from the fact that it happens and
• 6:54
  girls are only awesome spectrum. So we need to be looking at it
• 6:56
  differently. We need to be looking for
• 6:57
  resources. We need to be looking at new
• 6:59
  updated resources and things like the National Autistic
• 7:01
  Society and people like that just actually trying their best
• 7:04
  to make sure that everybody is not forgotten about and
• 7:07
  everyone's kind of like put into giving a fair opportunity and a
• 7:10
  fair chance of actually being diagnosed.
• 7:11
  Because there's so many females right now who are just
• 7:14
  struggling day-to-day with daily life and not getting a diagnosis
• 7:16
  because of these three factors and a bunch of others that are
• 7:19
  not their fault. It's not their fault.
• 7:22
  And I just wish that like we could just change it instantly,
• 7:24
  you know, and get everybody back together.
• 7:25
  But in terms of, yeah, in terms of that, you know, we're still
• 7:29
  fighting a fighting a battle here, but doing stuff like this
• 7:32
  is super awesome. Now if you think that this video
• 7:34
  could change somebody's life and help them, please share it on
• 7:36
  Facebook, Twitter and Instagram. And also if you are new around
• 7:39
  here, please give it subscribe. Gives me your thumbs up.
• 7:41
  Leave me a comment and I'll see you next time guys.
• 7:43
  Peace, yeah.