One Pound, One Fight: Ruthee's Journey with Kabuki Syndrome
Tonight, you’re going to meet a little girl who has been fighting since the day she entered this world. Ruthee was born weighing just 1 pound, 6 ounces. She spent 284 days in the NICU, and there were times her mom, Holly, didn’t know if her little girl was going to survive. Today, Ruthee, who is a twin, is four years old and living with Kabuki syndrome, a rare genetic condition that has affected multiple areas of her life. Ruthee is nonverbal, has faced liver issues, is legally blind and continues working incredibly hard toward walking independently. Beside her is her twin sister, doing many…
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