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Ireland Rejects First-Ever Friedreich’s Drug | Cork News
Ireland’s health service is refusing to cover a groundbreaking new drug for Friedreich’s Ataxia, a rare and devastating neurological disease affecting about 200 people, due to its staggering €160 million price tag. The National Centre for Pharmacoeconomics says the cost per patient—€280,000 annually—is unsustainable, even though the drug is the first of its kind approved by the EU and FDA. Patients, devastated by the decision, are rallying and lobbying politicians in a fierce fight to gain access. Other countries like Scotland and the Netherlands face similar hurdles, highlighting a global…
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