Latest / Pharmacy Podcast Network / The Pharmacist’s Role in Hospice | Geriatric Pharmacy Focus
Transcript
- 0:05Speaker 1: You are listening to the global network of podcasters dedicated
- 0:09Speaker 1: to the pharmacy profession. Welcome to the Pharmacy Podcast Network.
- 0:27Speaker 2: We have an aging population taking more medications than ever before.
- 0:31Speaker 2: On this podcast, I will interview experts in geriatric medicine
- 0:35Speaker 2: to gain insights so we can provide optimal care to
- 0:37Speaker 2: patients in their golden years. I'm your host, doctor Tammer Ruggles,
- 0:40Speaker 2: and this is the Geriatric Pharmacy Focus. Hello and welcome
- 0:47Speaker 2: to episode twenty two of the Geriatric Pharmacy Focus. And
- 0:50Speaker 2: today is all about pharmacist role in hospice care. And
- 0:54Speaker 2: today with me is Carrie Creps. She is the director
- 0:58Speaker 2: of Clinical Services at Pharmacy Associates in Alabama. We met
- 1:03Speaker 2: at the American Society of consult Pharmacist meeting a couple
- 1:07Speaker 2: years ago and not last year, but I believe it
- 1:09Speaker 2: was the conference before. We ended up at the same
- 1:11Speaker 2: table at a case studies discussion and immediately hit it
- 1:15Speaker 2: off and talked about deep perscribing. And Carrie also has
- 1:19Speaker 2: a passion for deeperscribing. She loves our older adults. She's
- 1:22Speaker 2: a preceptor and just a passion for appropriate medication use
- 1:26Speaker 2: in our older adults, and so I'm so thankful to
- 1:29Speaker 2: have her here. So Carrie, welcome, and if you can
- 1:32Speaker 2: maybe just tell us a little bit about yourself.
- 1:34Speaker 1: Well, hello, thank you for having me. It's such an
- 1:36Speaker 1: honor to be here. When I first met you, I
- 1:39Speaker 1: remember telling you I felt like I was getting to
- 1:41Speaker 1: meet like a pharmacy rock star, So it was very exciting,
- 1:45Speaker 1: and so it's exciting to be here today too. I've
- 1:49Speaker 1: been a consultant pharmacist since two thousand and six, so
- 1:53Speaker 1: I'm coming up on twenty years in the business and
- 1:56Speaker 1: I've been a pharmacist.
- 1:57Speaker 3: For Oh, I'm going myself.
- 2:00Speaker 1: I have been a pharmacist since two thousand and two,
- 2:03Speaker 1: so I did about four years of I did my
- 2:07Speaker 1: time in retail and decided that that was not going
- 2:09Speaker 1: to be the long term life for me, and so
- 2:13Speaker 1: I came into long term care and absolutely love it.
- 2:16Speaker 3: So this is a wonderful area to practice in. I
- 2:20Speaker 3: love it.
- 2:21Speaker 2: Oh, it's so good to hear you're good at it,
- 2:23Speaker 2: and you certainly don't look like you've been practicing that
- 2:25Speaker 2: long to you. And as far as hospice goes, the
- 2:29Speaker 2: first question I have for you was, what do you
- 2:31Speaker 2: see as the pharmacist role in hospice care.
- 2:35Speaker 1: Well, you know, we've got a bunch of different pharmacists
- 2:38Speaker 1: down through the chain of everything that gets done in
- 2:41Speaker 1: long term care. But obviously we're responsible for dispensing the
- 2:44Speaker 1: medications and making those available to the patients in our
- 2:47Speaker 1: long term care facilities in a timely manner, and at
- 2:51Speaker 1: the same time, we're assessing the drug interactions and allergies
- 2:55Speaker 1: when these new medications for hospice care are added on.
- 2:59Speaker 1: And then there's also the possibility of deprescribing when of
- 3:05Speaker 1: other medications that are currently on board when we start
- 3:10Speaker 1: the medications for hospice care. We may not immediately do it,
- 3:13Speaker 1: but at least it's on our radar of Hey, we
- 3:15Speaker 1: may eventually want to taper off of some of the
- 3:17Speaker 1: medications that we're on as we start to use the
- 3:22Speaker 1: hospice comfort measure type medications.
- 3:25Speaker 2: Yeah, I think pharmacists plays such a big role, not
- 3:27Speaker 2: only in the dispensing and getting medications to the patient
- 3:30Speaker 2: in a timely manner, but also assessing those allergies, what
- 3:34Speaker 2: pent and pain medications might work the best for a patient,
- 3:37Speaker 2: What do we do if they're agitated or shortness of
- 3:39Speaker 2: breath or just all the different things that come with
- 3:42Speaker 2: hospice care. And what I did want to know is
- 3:46Speaker 2: is there regulations for hospice care, like there is the
- 3:50Speaker 2: State Operations Manual for skill nursing facilities.
- 3:54Speaker 1: So the State Operations Manual does not carve out a
- 3:58Speaker 1: separate set of regulations for hospice patients are for hospice care.
- 4:02Speaker 1: But what they do is they basically overlay hospice specific
- 4:07Speaker 1: requirements on top of the standard nursing home regulations.
- 4:10Speaker 3: So the standard nursing home.
- 4:13Speaker 1: Regulations apply in the long term care setting, but then
- 4:17Speaker 1: on top of that, if you were going to bring
- 4:19Speaker 1: hospice into the mix as well, there are some requirements
- 4:23Speaker 1: that have to be included for hospice care, such as
- 4:26Speaker 1: the coordination of care between the hospice agency and the
- 4:29Speaker 1: facility to make sure all bases are covered. And then
- 4:33Speaker 1: the contract is required with a hospice agency, so the
- 4:37Speaker 1: facility has to have a written agreement with the hospice
- 4:41Speaker 1: provider outlining the services that the hospice provider provides to
- 4:45Speaker 1: the patient, and then they delegate out the responsibilities accordingly.
- 4:49Speaker 1: So I can tell you as a practitioner, I've never
- 4:52Speaker 1: actually seen.
- 4:54Speaker 3: Any of these documents. I've never seen the contract.
- 4:57Speaker 1: I know that they exist and they have to get
- 4:58Speaker 1: signed before hospice care can begin on a patient, but
- 5:03Speaker 1: it's not something that's typically in the medical chart.
- 5:07Speaker 3: It's just a document that's kept on file.
- 5:09Speaker 1: But both the hospice and the facility are responsible for
- 5:16Speaker 1: shared care planning, and of course that's such a big
- 5:18Speaker 1: thing with you know, CMS and our survey teams and
- 5:22Speaker 1: things like that, so the state operations may know really
- 5:24Speaker 1: isn't great about differentiating between a patient with say like
- 5:28Speaker 1: a rehab potential, like a knee replacement or a hip
- 5:30Speaker 1: replacement patient that's there to get better and go home,
- 5:34Speaker 1: compared to a hospice or palliative care patient. The same
- 5:37Speaker 1: rules apply, but there are some extra responsibilities expected when
- 5:42Speaker 1: a patient is placed on hospice.
- 5:45Speaker 2: The only contracts I've seen when a patient is placed
- 5:48Speaker 2: on hospice, or the only documentation I typically see is
- 5:52Speaker 2: you know the list of medications what hospice is going
- 5:55Speaker 2: to cover, but the patient is responsible for covering and
- 5:58Speaker 2: so I think working in the pharmace, that's the documentation
- 6:01Speaker 2: we see. Of course, I need to know, like who's
- 6:04Speaker 2: paying for this morphine. Who's paying for you know, the
- 6:07Speaker 2: loasapam is it hospice, is it the patient? And so
- 6:11Speaker 2: that is that's helpful documentation to see. But yeah, that's
- 6:13Speaker 2: all I've ever seen too when it comes to contracts.
- 6:17Speaker 2: And so there is that layer of yes, the hospice patients,
- 6:22Speaker 2: you know, we still have to abide by all the
- 6:23Speaker 2: CMS regulations, right, and then on top of it, hospice
- 6:27Speaker 2: regulations also need to be followed. And it does seem like,
- 6:31Speaker 2: you know, speaking of the role of the pharmacist, I
- 6:34Speaker 2: do catch a lot of open ended PRN you know, lorazapam,
- 6:40Speaker 2: halo paratles that need those end dates, and that does
- 6:43Speaker 2: seem to be a struggle for me when it comes
- 6:45Speaker 2: to hospice getting those end dates.
- 6:48Speaker 1: And I will say, you know, that's always been a
- 6:51Speaker 1: source of contention for me because we know that the
- 6:53Speaker 1: regulations say that if.
- 6:55Speaker 3: You're on a PRN.
- 6:56Speaker 1: Psychoactive medication, it needs a fourteen day stop date and
- 6:59Speaker 1: you have to right it every fourteen days. And I've
- 7:02Speaker 1: always said when I explain this to my students, when
- 7:05Speaker 1: I'm explaining to them the regulations, because of course students
- 7:08Speaker 1: have no background in some of these rules.
- 7:11Speaker 3: I explain to them, I will fight to my death.
- 7:15Speaker 1: That is a hill I will die on to protect
- 7:18Speaker 1: my facility. If a should a surveyor get upset with
- 7:21Speaker 1: us for having a PRN on a hospice resident, so
- 7:27Speaker 1: I explain to them kind of why it looks this
- 7:29Speaker 1: way and why that rule is there, which I do
- 7:32Speaker 1: understand and respect. But I also I have never had
- 7:35Speaker 1: a surveyor question a hospice patient that has an open
- 7:40Speaker 1: ended PRN.
- 7:41Speaker 3: I think it's coming down the road.
- 7:43Speaker 1: It probably will happen at some point in time, but
- 7:46Speaker 1: so far it has not been an issue. I do
- 7:49Speaker 1: wish that our regulations would sort of carve out some
- 7:54Speaker 1: exceptions for hospice, but I think it's like an unspoken rule.
- 8:00Speaker 1: But it's okay if it's hospice, but in other circumstances
- 8:03Speaker 1: it's not okay. But it is not written down anywhere.
- 8:06Speaker 2: Yeah, I mean, when you look at the State of
- 8:08Speaker 2: Operations manual, they leave zero exceptions in there. But I
- 8:11Speaker 2: agree it would be so nice if they carved out
- 8:13Speaker 2: exceptions for our hospice patients, for sure, I agree. So,
- 8:18Speaker 2: what are some of the more commonly used medications used
- 8:21Speaker 2: in hospice for both those pain and non pain symptoms.
- 8:25Speaker 1: So for the non pain type circumstances like anxiety and
- 8:31Speaker 1: shortness of breath, a benzo dasea pain is common, and
- 8:34Speaker 1: the most common one I see in hospice circumstances is
- 8:38Speaker 1: liquid out of Van or out of Van intensil is,
- 8:41Speaker 1: I think it's brand name, and sometimes we call that
- 8:45Speaker 1: air hunger where the respirations slow down and they slow
- 8:49Speaker 1: down significantly, and then after an extended amount of time
- 8:52Speaker 1: without breath, the patient takes a big, deep breath that
- 8:55Speaker 1: can make it can be kind of loud and make noise,
- 8:59Speaker 1: and it sounds like struggling to get oxygen. So we
- 9:01Speaker 1: call that air hunger, and so out of Van even
- 9:04Speaker 1: though we know it slows down respirations, it seems counterintuitive
- 9:08Speaker 1: to use that, but it does kind of calm down
- 9:11Speaker 1: the anxiety associated with that.
- 9:13Speaker 3: Air hunger and struggling to breathe.
- 9:16Speaker 1: So that's the most common one that I see use
- 9:19Speaker 1: for anxiety or agitation and shortness of breath, and then
- 9:24Speaker 1: for pain, we usually see non tablet forms of medication,
- 9:29Speaker 1: so not solid dosage forms.
- 9:33Speaker 3: Liquid morphine or roxanol is.
- 9:35Speaker 1: Its brand name, is usually the most common one that
- 9:39Speaker 1: I see used in my setting because there is some
- 9:43Speaker 1: mucosal absorption, just like the liquid out of van it
- 9:46Speaker 1: can be absorbed sublingually and it's a very small volume
- 9:49Speaker 1: of liquid that's actually needed.
- 9:51Speaker 3: I think it's twenty milligrams per mili liter, so you
- 9:54Speaker 3: could actually give a quarter of a millileter and that
- 9:59Speaker 3: provides adequate pain control.
- 10:00Speaker 1: Often it doesn't last very long, so you have to
- 10:03Speaker 1: give it about every hour or two hours.
- 10:06Speaker 3: But that's a great product to use.
- 10:08Speaker 1: But sometimes you also see some other options, like especially
- 10:12Speaker 1: if giving something through the mouth is not ideal, so
- 10:17Speaker 1: sometimes you'll see rectal positories use transdermal patches, especially if
- 10:22Speaker 1: they can't, you know, take medications orally. And then thirdly,
- 10:26Speaker 1: I would say one of the major problems we see
- 10:30Speaker 1: near and I'm talking very near the end of life
- 10:34Speaker 1: is oral secretions can be excessive near the end of life,
- 10:38Speaker 1: and that causes some choking or aspiration, coughing, and sometimes
- 10:42Speaker 1: even drooling if they're breathing through their mouth. And so
- 10:46Speaker 1: a lot of our hospice companies will use the atropine
- 10:50Speaker 1: eye drops sublingually to kind of dry up saliva, and
- 10:55Speaker 1: then they also typically order pr in suctioning of the
- 11:02Speaker 1: mouth to get rid of some of those thick secretions
- 11:05Speaker 1: that can trigger coughing, and just to kind of help
- 11:10Speaker 1: keep the patient cleaned up.
- 11:11Speaker 3: Things like that.
- 11:13Speaker 2: I see that a lot as well. I also see
- 11:16Speaker 2: I don't even know how to pronounce this. Yes, so
- 11:20Speaker 2: you can get a sublingual tablet, And I see that
- 11:24Speaker 2: used a lot for secretions as well. But I'm with you.
- 11:26Speaker 2: When it comes to my hospice patients, most of them
- 11:29Speaker 2: are on liquid morphine, liquid lorazipam, some atropine or something
- 11:34Speaker 2: for excess secretions, and then sometimes also liquid HaLow paradal.
- 11:39Speaker 2: That's the most common medications I see used in hospice.
- 11:43Speaker 2: That seems to be a good mix of medications that
- 11:46Speaker 2: provide comfort. But when it comes to those medications, you know,
- 11:50Speaker 2: we know in our older adults, using multiple c ands
- 11:53Speaker 2: active medications at one time can cause some side effects,
- 11:56Speaker 2: especially sedation, respiratory depression. How do you sort of balance
- 12:00Speaker 2: out those side effects with the benefit of the medication.
- 12:04Speaker 1: Well, I think you really have to streamline therapy and
- 12:08Speaker 1: you want to make sure there's not a lot of duplications.
- 12:10Speaker 1: So you may have a patient and I'm just going
- 12:14Speaker 1: to try to generalize and think of like a typical
- 12:17Speaker 1: hospice patient who has been declining and maybe already was
- 12:23Speaker 1: suffering from anxiety and agitation. So they have an order
- 12:28Speaker 1: on board for let's say, our prosalam four times a day,
- 12:34Speaker 1: and then they get put on hospice because they've had
- 12:38Speaker 1: a decline and we're going to add to it out
- 12:42Speaker 1: a van. So now we've got two bins of days
- 12:45Speaker 1: and fans on board. That's where I like to cut
- 12:47Speaker 1: out the duplications. If we're going to add the hospice medications,
- 12:50Speaker 1: I'm all for it, but I want to cut out
- 12:53Speaker 1: and taper off of anything that may be a duplication.
- 12:57Speaker 1: And then I also want to look at are there
- 12:59Speaker 1: some opportunity used to get rid of some other things?
- 13:01Speaker 1: But it's it all has to really be personalized to
- 13:07Speaker 1: the resident and kind of the status of the resident.
- 13:10Speaker 1: When I was when I first started consulting as a
- 13:13Speaker 1: new consultant, when I thought someone was put on hospice,
- 13:17Speaker 1: I thought.
- 13:18Speaker 3: They were going to pass within the next seventy two hours.
- 13:20Speaker 1: I thought that meant they are calling in the priest,
- 13:24Speaker 1: we're reading the last rites we.
- 13:25Speaker 3: You know, But after twenty years of doing this.
- 13:29Speaker 1: I've seen patients come off of hospice because they no
- 13:32Speaker 1: longer met the qualifications. They were on hospice for two
- 13:34Speaker 1: and a half years, and they actually weren't at the
- 13:37Speaker 1: end of life.
- 13:37Speaker 3: They were just kind of going through a rough pad.
- 13:40Speaker 2: Oh yeah.
- 13:41Speaker 1: And then you also see patients who don't make it
- 13:43Speaker 1: through the night after the contract assigned.
- 13:45Speaker 3: So everything is just so personalized.
- 13:48Speaker 1: You really have to take it on a case by
- 13:50Speaker 1: case basis to really look at those side effects and
- 13:54Speaker 1: balance the risk versus benefit of the medication regiment. On hand,
- 14:00Speaker 1: I don't want to go through and just bushwhack everything
- 14:03Speaker 1: that they're on just because we put them on hospite.
- 14:06Speaker 3: I want to look at it on.
- 14:10Speaker 1: A case by case basis and make some recommendations and
- 14:14Speaker 1: kind of prioritize what are we trying to treat here.
- 14:17Speaker 1: Are we trying to keep them calm because they're agitated.
- 14:19Speaker 1: Are we trying to treat pain because they've got metastatic
- 14:22Speaker 1: cancer and it's very painful and it's all over their body.
- 14:26Speaker 1: Or are they just not responsive anymore and they're in
- 14:28Speaker 1: a deep state of sleep.
- 14:30Speaker 3: You know what? You know, you just kind of have
- 14:32Speaker 3: to prioritize.
- 14:33Speaker 2: It's a little bit different for each patient. It does
- 14:36Speaker 2: seem like the hospice providers around here do try to
- 14:39Speaker 2: start with lower doses of luazopam and morphine see how
- 14:44Speaker 2: the patient does if they're still in too much pain
- 14:46Speaker 2: or too much shortness of breath will increase it. But
- 14:49Speaker 2: I think that's, you know, their method of trying to
- 14:51Speaker 2: figure out, okay, what is the lowest dose that's going
- 14:54Speaker 2: to control their pain, make them comfortable, but yet keep
- 14:57Speaker 2: them alert and have a good quality of life and
- 14:59Speaker 2: able to visit with their family if they come, and
- 15:02Speaker 2: then reassess. But of course it comes down to what
- 15:04Speaker 2: the patient wants, you know. Does the patient want to
- 15:07Speaker 2: feel no pain and be you know, and is okay
- 15:10Speaker 2: with being a little bit sedated, or would the patient
- 15:13Speaker 2: rather feel a little pain but be awake when their
- 15:15Speaker 2: loved ones show up. So I think, you know, it's
- 15:17Speaker 2: a conversation with the patient, what are your goals, what
- 15:20Speaker 2: matters to you, and then go from there.
- 15:23Speaker 1: Right and hopefully we have that opportunity to be able
- 15:26Speaker 1: to have that conversation with the patient. Sometimes they decline
- 15:29Speaker 1: quickly and we're not able to have that conversation and
- 15:32Speaker 1: we have to defer to the family or the sponsor,
- 15:35Speaker 1: And you know, I really.
- 15:37Speaker 3: Try to.
- 15:40Speaker 1: I try to be available to make any suggestions that
- 15:43Speaker 1: I can to be helpful. But a lot of times,
- 15:45Speaker 1: you know, like you said, the hospice companies kind of
- 15:47Speaker 1: have their standard order list that they just go down
- 15:49Speaker 1: and check the boxes of what they need.
- 15:52Speaker 2: You talked about patients being discharged off hospice sometimes. I'm
- 15:56Speaker 2: sure you've seen this too. I'll have a patient go
- 15:58Speaker 2: on hospice, stop all their meds and they've breaken right up.
- 16:03Speaker 2: You know.
- 16:04Speaker 3: I've had that.
- 16:05Speaker 2: Happen a few times where they were I believe, just
- 16:08Speaker 2: suffering from polypharmacy. Yes, when we cut down on the meds,
- 16:13Speaker 2: they feel a whole lot better.
- 16:15Speaker 1: Yeah, it's a testament to de prescribing, and the de
- 16:18Speaker 1: prescribing works. You know, You've got patients that are ninety
- 16:23Speaker 1: plus years old in a skilled nursing facility and they,
- 16:26Speaker 1: throughout their life have gone to see different specialists in
- 16:29Speaker 1: different physicians, dentists, dermatologists, cardiologists, you name it. They have
- 16:35Speaker 1: seen all sorts of different people for different ailments, and
- 16:38Speaker 1: they feel like the appointment was a failure. If they
- 16:42Speaker 1: don't leave without a script in their hand, or if
- 16:44Speaker 1: they leave without a script in their hand and they
- 16:45Speaker 1: feel like the appointment was a failure.
- 16:47Speaker 3: And so over time, all.
- 16:49Speaker 1: These medications have been added to their daily regimen, and
- 16:53Speaker 1: then they decline so much that they have to go
- 16:55Speaker 1: into a skilled nursing facility, and we just continue all
- 16:58Speaker 1: those medications without question. So if you back off of
- 17:02Speaker 1: some of those medications that might not be benefiting them,
- 17:05Speaker 1: then all of a sudden, they park back up and
- 17:08Speaker 1: they're not even a hospice patient anymore because it was
- 17:11Speaker 1: the medications that were bogging them down. So I'm im
- 17:15Speaker 1: a huge fan and I'm always so encouraged when i
- 17:18Speaker 1: see patients kind of bounce back just because we got.
- 17:21Speaker 3: Rid of some things.
- 17:22Speaker 2: Love it. So when it comes to deprescribing, when a
- 17:27Speaker 2: patient goes on hospice, looking at the medication list, they
- 17:31Speaker 2: might be on all sorts of medications, a fiery medication,
- 17:34Speaker 2: blood pressure statins, so many different medications. How do you
- 17:39Speaker 2: decide or how do you help with the decision making
- 17:42Speaker 2: when it comes to what should we keep on board
- 17:44Speaker 2: and what's appropriate to de prescribe at this time.
- 17:47Speaker 1: It absolutely has to do with the condition of the patient,
- 17:52Speaker 1: and it's really just a balancing act of using some
- 17:56Speaker 1: common sense but customizing it to that patient and where
- 18:00Speaker 1: they are in their hospice journey. I hate when people
- 18:04Speaker 1: use that term their journey, but it is kind of
- 18:06Speaker 1: a journey in this situation. So, like I said, sometimes
- 18:10Speaker 1: you have patients who last for seventy two hours on hospice.
- 18:14Speaker 1: Sometimes you have patients who last for two and a
- 18:16Speaker 1: half years and come off of hospice, and then you
- 18:18Speaker 1: have some who don't make it through the night, and
- 18:20Speaker 1: then everywhere in between. So one of my favorite strategies
- 18:24Speaker 1: to teach my students is how different hospice can look, because,
- 18:29Speaker 1: like I said, I thought hospice meant we're at the.
- 18:32Speaker 3: End of life, call in the family, calling the priest.
- 18:35Speaker 1: So one of my responsibilities as a consultant pharmacist in
- 18:41Speaker 1: my facilities is to dispose of medications that are no
- 18:45Speaker 1: longer in use, so whether the patient has deceased, or
- 18:48Speaker 1: the medication's been discontinued, or the medications expired.
- 18:51Speaker 3: So we have to dispose of narcotics, and.
- 18:54Speaker 1: We also have to make sure that the records are
- 18:56Speaker 1: in order and all doses are accounted for. And one
- 18:59Speaker 1: of my favoravorite things to show my students is a
- 19:01Speaker 1: very typical textbook hospice document, which is the patient who
- 19:07Speaker 1: receives two doses of morphine and then passes peacefully. So morphine,
- 19:13Speaker 1: as you know, comes in a thirty mL single you know,
- 19:17Speaker 1: a single person bottle, and a lot of times you
- 19:22Speaker 1: give a dose of point two five milli leaders to
- 19:25Speaker 1: a patient and then maybe an hour or two later
- 19:28Speaker 1: another dose and then the resident is deceased and it's
- 19:32Speaker 1: not that the morphine did that, it was just that
- 19:33Speaker 1: that's what helped them peacefully take their last breaths and
- 19:36Speaker 1: pass on. And so that's a very typical situation of
- 19:43Speaker 1: hospice and giving hospice meds. But then there's also in
- 19:47Speaker 1: that same stack of documents that we're going through, we'll
- 19:50Speaker 1: see a patient who got thirty seven doses of morphine.
- 19:54Speaker 1: So there's everything is just so personalized, as unique as
- 20:00Speaker 1: the hospice process of death and dying is deprescribing as
- 20:04Speaker 1: equally as unique, and just like you, deprescribing as a
- 20:09Speaker 1: passion of mine across all areas of long term care,
- 20:12Speaker 1: and there's a huge opportunity at the end of life
- 20:14Speaker 1: to de prescribe, and it really just means using common
- 20:17Speaker 1: sense tailored to the individual at hand. And I really
- 20:20Speaker 1: don't ever want to withhold medication that would be life
- 20:23Speaker 1: sustaining or just medication that someone needs to feel that
- 20:27Speaker 1: their best. But I don't want to burden them with
- 20:31Speaker 1: medications that could be causing problems, or I don't want
- 20:34Speaker 1: to be helping a situation that's no longer a priority.
- 20:37Speaker 1: I'm not worried about their bone density. I'm not worried
- 20:40Speaker 1: about giving them calcium plus vitamin D in their last three.
- 20:43Speaker 3: Days of life. I'm not worried about statins.
- 20:47Speaker 1: If you've made it to ninety two years old and
- 20:50Speaker 1: you're on a statin, I think the medication has done
- 20:52Speaker 1: its job at that point.
- 20:53Speaker 3: And you knows.
- 20:55Speaker 1: As thankful as I am for things like statins. They
- 20:59Speaker 1: do tend to make you. They can cause some muscle pain,
- 21:03Speaker 1: and I don't want to cause any pain in someone
- 21:04Speaker 1: that where pain is a priority.
- 21:09Speaker 3: And even you know this can be kind of a
- 21:11Speaker 3: slippery slope.
- 21:12Speaker 1: But some of those psychoactive meds that our patients are on,
- 21:16Speaker 1: if they're on hospice and they are on morphine and
- 21:19Speaker 1: audavan and haldal and atropine drops.
- 21:22Speaker 3: They may not even be communicating with us.
- 21:24Speaker 1: So if they're in a deep state of sleep, I
- 21:27Speaker 1: don't think that they need their zyprexa. You know, not
- 21:30Speaker 1: to pick on zyprexa. I'm just you know, pointing out that.
- 21:34Speaker 1: But also one of the first things I look for
- 21:37Speaker 1: considering the setting of a nursing home is are we
- 21:41Speaker 1: on dementia medications like aircept and namenda. Those medications are
- 21:47Speaker 1: intended to slow down the process of dementia and maybe
- 21:53Speaker 1: slow the progress of the disease down. They have already
- 21:56Speaker 1: done their job at this point, and so those are
- 21:58Speaker 1: two things that I like to take off as quickly
- 22:01Speaker 1: as possible, just because it's.
- 22:04Speaker 3: No longer serving that patient.
- 22:08Speaker 1: Medications like incontinence medications, the patient's probably already incontinent anyway,
- 22:13Speaker 1: So those are those and those have a huge burden
- 22:17Speaker 1: on that patient. They can cause a lot of problems
- 22:19Speaker 1: the anticholinergic properties of them. If we can get rid
- 22:23Speaker 1: of those medications, they might be a little bit more
- 22:25Speaker 1: alert and awake and able to possibly even eat and
- 22:30Speaker 1: be a little more aware of their surroundings by taking
- 22:34Speaker 1: those medications out of the.
- 22:38Speaker 3: Medication cup for them.
- 22:40Speaker 1: So I really just try to reduce that pill burden
- 22:43Speaker 1: where I can. And you know, but there's some other things.
- 22:50Speaker 1: From a personal standpoint, I went through hospice with my
- 22:52Speaker 1: father in law back in twenty nineteen, and one of
- 22:56Speaker 1: the things that kept him alive artificially that I did
- 23:01Speaker 1: not know was a nasal canula of oxygen. And we
- 23:07Speaker 1: could not figure out why he was still hanging on.
- 23:10Speaker 1: And of course we didn't want to we didn't want
- 23:13Speaker 1: to speed up the process in any way. But a
- 23:15Speaker 1: lot of times hospice companies will order a nasal canula
- 23:19Speaker 1: of oxygen and you know, just maybe at two liters,
- 23:22Speaker 1: not a high rate of oxygen, but it can be
- 23:26Speaker 1: very uncomfortable to keep a nasal canula of oxygen on.
- 23:30Speaker 1: And he was always pulling at his oxygen. It bothered
- 23:34Speaker 1: him and kind of agitated him a little bit. And
- 23:37Speaker 1: when we finally gave him a break from that nasal
- 23:39Speaker 1: canula of oxygen, he slipped away. And we thought, and
- 23:45Speaker 1: here I am, I work in this industry. No one
- 23:48Speaker 1: told me that that would keep someone alive artificially.
- 23:54Speaker 3: You know, he had not eaten in a couple of weeks.
- 23:56Speaker 1: He had a few SIPs of water here and there
- 24:00Speaker 1: it was the oxygen that was keeping him hanging on.
- 24:03Speaker 1: And we thought, had we have known, we wouldn't have,
- 24:06Speaker 1: you know, because we knew it was so uncomfortable for
- 24:08Speaker 1: him to keep on his face and he would pull
- 24:10Speaker 1: at it and it was and he was trying.
- 24:12Speaker 3: To tell us like, let me go.
- 24:14Speaker 1: So we gave him a break from the oxygen because
- 24:17Speaker 1: the hospice company came in to bathe them and shave
- 24:21Speaker 1: them and you know, have him clean and presentable to
- 24:23Speaker 1: the family. And when we took the oxygen off, that
- 24:27Speaker 1: was when his SATs dropped. And so I always try
- 24:30Speaker 1: to tell that story because it's not common sense, but
- 24:35Speaker 1: maybe maybe don't keep certain orders going if they're no
- 24:39Speaker 1: longer serving that patient very well.
- 24:42Speaker 2: So, yeah, you bring up so many good points at
- 24:45Speaker 2: the end of life. You know, are they having trouble swallowing.
- 24:48Speaker 2: If they're having trouble swallowing, it's a good point to
- 24:51Speaker 2: look at that and discontinue all the ones that aren't necessary.
- 24:54Speaker 2: Of course, it's a conversation with the family and the
- 24:57Speaker 2: caregiver and the patient to say, you know, what do
- 25:01Speaker 2: you want to keep on what aligns with your goals
- 25:04Speaker 2: right now? For treatment what doesn't align. And then there's
- 25:09Speaker 2: a paper that came out called Deprescribing for People with
- 25:12Speaker 2: Dementia a Roadmap, and it came out July twenty twenty five.
- 25:15Speaker 2: I really like it. It talks about deprescribing for patients with dementia.
- 25:19Speaker 2: But in there there's a tool that you can use
- 25:21Speaker 2: for all patients and it's from the University of California,
- 25:24Speaker 2: San Diego, and they have a couple different calculators. One
- 25:28Speaker 2: is a life expectancy calculator, but we know if our
- 25:31Speaker 2: patient's on hospice that they're predicted to live six months
- 25:34Speaker 2: or less. So the other tool that's on the website
- 25:38Speaker 2: is a time to benefit tool with medications, so you know,
- 25:42Speaker 2: if a medication is going to take a year, two years,
- 25:45Speaker 2: eight years to benefit, what's the sense in putting the
- 25:48Speaker 2: patient on it if they're on hospice. But with pain meds,
- 25:51Speaker 2: we know that there's very small time to benefit a
- 25:55Speaker 2: couple minutes, half hour hour, so those are likely to benefit.
- 25:59Speaker 2: But I think those tools are helpful to use for
- 26:02Speaker 2: patients with dinanja and use those tools along with the
- 26:05Speaker 2: treatment goals for the patients and carry over, and it's
- 26:07Speaker 2: pretty easy, you know, after those conversations, using those tools
- 26:11Speaker 2: to kind of decide what's going to benefit what's not.
- 26:15Speaker 2: I mean, even looking at diabetes treatment, yes we don't
- 26:18Speaker 2: want their blood sugar sky high and we don't want
- 26:21Speaker 2: them experiencing hypoglycemia. But other than that, we don't need
- 26:25Speaker 2: to keep their A one c at a certain goal exactly.
- 26:29Speaker 2: So it's just things like that that eliminate a few pokes.
- 26:34Speaker 2: Maybe check aus sugar once a day and see what's
- 26:36Speaker 2: happening or whatever it might be. But we certainly don't
- 26:39Speaker 2: need to burden the patient with that kind of thing.
- 26:41Speaker 2: And with my grandma too, when she was on hospice,
- 26:44Speaker 2: they kept her on donepezil, and my goodness, did that
- 26:47Speaker 2: make medication make her nose run and she would sit
- 26:50Speaker 2: there all day with a tissue. And finally I went
- 26:53Speaker 2: to visit her and I'm like, what are we doing
- 26:55Speaker 2: with the donepazil. She's already end of life, she doesn't
- 26:58Speaker 2: recognize any of us. There's no benefit to it, and
- 27:01Speaker 2: the poor ladies just sitting here wiping her nose constantly.
- 27:05Speaker 3: Let's just stop it, exactly.
- 27:08Speaker 2: I think just even making families aware of these are
- 27:11Speaker 2: the benefits but these are the risks and like you say,
- 27:15Speaker 2: what the incontinence means? Maybe the patient's not even able
- 27:18Speaker 2: to get up out of bed anymore, and so what
- 27:20Speaker 2: are we doing with an incontinence med? But it does
- 27:23Speaker 2: take someone to look through the med list and go
- 27:25Speaker 2: through each one to make an important decision of what
- 27:29Speaker 2: should stay and what shouldn't. And if you don't have
- 27:30Speaker 2: that conversation and just continue all of them, it's right
- 27:34Speaker 2: benefiting the patient.
- 27:36Speaker 1: And that's really where our fabulous nurses that are taking
- 27:40Speaker 1: care of these patients really come in handy. I will
- 27:42Speaker 1: have a conversation with the nurses and be like, do
- 27:44Speaker 1: you really think that mister Smith still needs this? And
- 27:46Speaker 1: they'll say, no, is we have to crush the tablet,
- 27:49Speaker 1: we have to put it in some pudding, and we're
- 27:50Speaker 1: worried about him token on the pudding and sometimes we
- 27:53Speaker 1: go back and there's still a little bit of the
- 27:54Speaker 1: residue of the pudding in his mouth and we feel bad,
- 27:57Speaker 1: you know. So you know, there's so many opportunities, and
- 28:01Speaker 1: our nurses that are taking care of these patients really
- 28:05Speaker 1: can help us to personalize those recommendations. It is not
- 28:08Speaker 1: uncommon for me to put those type of recommendations in
- 28:11Speaker 1: my pharmacy report, because I'm communicating directly with the director
- 28:16Speaker 1: of nursing and the medical director who may not know
- 28:18Speaker 1: those little nuances about oh, well, we have to crush
- 28:21Speaker 1: the tablet up because he can't swallow a pill anymore,
- 28:24Speaker 1: and I didn't you know, the doctor doesn't know that
- 28:27Speaker 1: that's what's going on. And so I can kind of
- 28:29Speaker 1: bring them up to speed and say, are you sure
- 28:30Speaker 1: you want to keep this on board, and I'll say, no,
- 28:32Speaker 1: absolutely not, let's discontinue that. So it's really just me
- 28:35Speaker 1: being the vehicle talking to the experts in the area
- 28:39Speaker 1: and communicating it to their higher ups. And so I'm
- 28:42Speaker 1: really just the vehicle, but I can initiate those conversations
- 28:46Speaker 1: to help get rid of some things that are just
- 28:50Speaker 1: a burden to the patient. And I really try to
- 28:52Speaker 1: respect when the families are in the room. I try
- 28:56Speaker 1: to reduce as many interruptions in the day of providing
- 29:00Speaker 1: care as much as possible, so they can visit with
- 29:02Speaker 1: everybody they can have that time and it not be
- 29:05Speaker 1: so institutional and rigid with well, now we've got to
- 29:09Speaker 1: do blood sugars.
- 29:10Speaker 3: Now we've got to give them an insulin injection.
- 29:12Speaker 1: Now we need to do this wound care treatment, and
- 29:15Speaker 1: you have to do all this.
- 29:16Speaker 3: Let's just keep the patients comfortable and let them spend
- 29:19Speaker 3: time with their family.
- 29:20Speaker 2: That's right. I agree with you, and I agree that
- 29:25Speaker 2: nursing staff med aids, they have so much insight on
- 29:29Speaker 2: patients and what's necessary, what's not. They're with these with
- 29:32Speaker 2: these patients every day, might review their chart once a month,
- 29:36Speaker 2: so they know more than I do about if a
- 29:38Speaker 2: medication should be discontinued or not. So I have those
- 29:42Speaker 2: conversations with the people who are with them every day
- 29:44Speaker 2: to see how things are going exactly exactly.
- 29:48Speaker 3: That's been my experience as well.
- 29:51Speaker 2: Well. Thanks so much for this hospice discussion today. It's
- 29:54Speaker 2: been wonderful and it's so interesting to me to see
- 29:57Speaker 2: how similar things are in Alabama and North Dakot and
- 30:00Speaker 2: just all around. But it seems like things are pretty
- 30:04Speaker 2: much the same when it comes to hospice care.
- 30:06Speaker 3: I thought about that when I was preparing for this.
- 30:08Speaker 1: I thought, I wonder if it's just a regional thing
- 30:11Speaker 1: that we use atropine eye drops in the mouth, because
- 30:13Speaker 1: I remember the first time I read an order, I
- 30:16Speaker 1: thought oh, they typed this wrong.
- 30:18Speaker 3: They're not supposed to ft id drops in the mouth.
- 30:20Speaker 3: And I asked them about.
- 30:20Speaker 1: I said, is this an error? Did they mean to
- 30:23Speaker 1: type this? And they're like, yeah, that's what we do
- 30:26Speaker 1: on hospice pass. I was like, oh, you give them
- 30:28Speaker 1: eye drops in their mouth. So yeah, it is interesting
- 30:31Speaker 1: to know that they do it in other areas of
- 30:33Speaker 1: the country as well.
- 30:34Speaker 2: So yeah, well, thanks everyone for listening, and I will
- 30:37Speaker 2: put the Deeper Striving for people at dementia a roadmap
- 30:41Speaker 2: in the show notes and also a link to carries LinkedIn.
- 30:44Speaker 2: But if people want to find you and connect is
- 30:46Speaker 2: LinkedIn the best place to go.
- 30:48Speaker 3: That's a great place to find me.
- 30:50Speaker 2: All right, there you go, go find Carrie and everyone
- 30:53Speaker 2: have a great rest of your day.