Latest / Inchstones with Sarah | Autism Advocacy & Caregiver Stories / Belonging Is More Than Being Allowed in the Room | Brooks Herring on Disability & Music

Transcript

Belonging Is More Than Being Allowed in the Room | Brooks Herring on Disability & Music · Inchstones with Sarah | Autism Advocacy & Caregiver Stories

• 0:00
  Speaker A: Hey everyone. Welcome back to the Inchstones podcast. As you know, there are so many conversations that I love to have about disability that begin with what someone needs, right? Services, therapies, supports, accommodation, safety, care. And today's conversation begins somewhere much, much simpler. It begins with a young woman hearing a song she loves and having. Oh, man, I'm getting choked up here. At the intro. Songs she loves and having the absolute time of her life today. My guest here is Brooke Herring. He's a Nashville based singer, songwriter, Navy veteran. Go Navy. A former physical therapist, and someone whose relationship with disability began long before the video of his went viral. Brooks grew up alongside his brother who has down syndrome. And we're going to talk today about how being a sibling shaped the way he sees people and understands disability and really ultimately the experiences, the audience that are in front of him. And you know, recently Brooks was performing when the parents of a young woman with disabilities told him how much she loved to hear a particular song. And he played it and she recognized it and she lit up and that video reached millions of people. And I just, again, once I saw it, I had to reach out because something that the Inchstones mission is at its core is why and how something so ordinary feels so extraordinary to so many of us. So, Brooks, welcome to the Inchstones podcast.
• 1:23
  Speaker B: Thank you so much for having me.
• 1:24
  Speaker A: I want to begin where it began. Before we talk about music, tell me about your brother and what it was like to grow up along someone with disability and how did that shape, you know, how you understand it as a, even as a man and a musician.
• 1:37
  Speaker B: So to, to be fully transparent, I mean, we didn't grow up next to each other. So my little brother is the same age as my oldest son. He just turned 21. He's actually two months younger than my oldest son. I was already enlisted in the Navy when my brother was born, so I didn't get to spend a lot of time with him as he was growing up, you know, but, but the more I was able to be home and especially after I got out and I moved back to South Carolina and started spending more time with my mom, I, I got to spend a lot more time with Mark and, and really, you know, just get a, a, a, a, a bird's eye view or, or you're like an up front, you know, up close and personal view of that world. And you know, since, since I got out of the military, I mean, I, I love going to see Mark. I mean, it's just, it, it just, he is his own light, you know,
• 2:26
  Speaker A: you know, there's, you know, I'm glad that you clarified that. It also allows us to have a conversation that family doesn't have to mean growing up alongside it. Family can mean having what you said is a bird's eye view. And I always talk and say ad nauseam, getting a bird's eye view. I would welcome a documentarian team into my life because you need to have a bird. You need to have an intimate view inside the walls of a home or a place of residence to understand that light and know that it's very deeply complex and it sits right next to the really hard challenges. You can. You can from the outside. You know, sometimes it's only the glossy positives of that light you want to go on the inside, and you see the complexity of it. But that dichotomy is why it becomes so powerful, whether you're an older brother and sibling or not. And coming in and out and even.
• 3:12
  Speaker B: Even without, you know, without having, like, grown up together. I mean, we. We have a great relationship. I mean, you know, every time I call mom, I can hear Mark in the background. Bubba.
• 3:21
  Speaker A: That's right. You know, that's right. That's right.
• 3:23
  Speaker B: Every time he goes to a camp, you know, my mom will reach out. She'll be like, hey, you know, Mark's going to this camp and he wants you to go with him. And I just. I just love, you know, I love that. The relationship that we have. And I love, you know, being one of his. His go to people.
• 3:35
  Speaker A: Yeah, that's that invisible thread. You can't really divorce. Once you are integrated into the world of a. Of a human with. Of an individual with special needs, you realize how much they know what connection really is. I call it a life luxury. You can't purchase it. There are people that would. That would pay so much fricking money to have that kind of acknowledgement and connectivity that you cannot buy. So I, you know, you're, You're. You're speaking to the. You're preaching to the choir here. You know what? Let's. So then let's. Let's go back. Let's go now. Let's talk about this. This, this video. You know, what did you know about that young woman before that moment? And what happened when you realized how much hearing that that particular song was going to mean to her?
• 4:17
  Speaker B: I didn't. I really didn't know anything at all. I. So I. I play at Jelly rolls every. Every Tuesday afternoon. It's. It's. You know, some days are busier than others. I remember that that night was, you know, it was pretty slow, so they were able to. To be, like, right up at the front, you know, next to the. The front corner of the bar. And it was. It was pretty. Pretty easy to. To tell that that, you know, she had disabilities. You know, she was there with her caretaker, who I later learned she was okay. Yep. And, you know, and it was just, you know, I just, you know, do my best to kind of, you know, make eye contact and sing towards them or to them, you know, just anything to make her feel seen. And, you know, and my. My girlfriend was there at the show, and she talked to them, and she came up to me and she was like, hey, her. Her favorite song. You know, Every rose has a thorn. Can. Can you do that? You know, I was like, yeah, absolutely. You know, without. Without even a second thought. It was just kind of like, yeah, that's what she wants to hear. Absolutely, I'll do that. And we started to play the song and. And her. Her mom brought her up to the stage and just. And there was just. There was a. There was a visible change in her demeanor that she was just excited and she was, you know, singing along and her face lit up. But I mean, just. Just to see. Just to see that. That little. That joy, you know, just from hearing that song. And so. And I saw the way she lit up, and so I just decided to. To go down to her and sing to her. You know, why not? I actually. I had no idea that my girlfriend was recording that video. I had no idea that she was recording in it. And I didn't even know that she posted it until, like, the next day.
• 5:51
  Speaker A: I love it.
• 5:52
  Speaker B: She. She has access to my social media. Like, she recorded the video and she cut it up, and she. She posted it on social media the next day. She was like, hey, this video is blowing out. I was like, you might want to
• 6:04
  Speaker A: check on your Instagram. Well, you know, there's so many things come to mind here. One, you know, I. My background is in, like, communication science, so I love the idea of, like, how our brain works when it comes to communication. Right. But specifically nonverbal communication and the way that the right hemisphere just lights up in. In the way in which words can't describe. And when I watched that, it was like, I wish I could do a dissertation. If I was, like, going back for my PhD on this exact moment, like, this is. This would be the foundational example in a study for me on nonverbal communication and the binding. The binding qualities, because it all and then from a spiritual lens, it is the thinnest veil of heaven, is what you did right there is that you, you were acting upon such a deep connectivity from whatever your experience has been as a man, and maybe what you learned through your brother Mark and absorbed to then being able and being put in that position to give that experience to someone. And I think that the reason these. I, I, you know, maybe I'm a glass half full kind of chick, but the reason those things go viral is because those people know. Know that too innately. And people want to see that. People want to see those moments where you weren't. You were reacting. You were reacting based on who you are. It was, it was an unconscious, subconscious moment for you to be like, absolutely, I'm down there, I'm down there. I'm giving the. And, and what you got back from that wasn't. The virility of the moment was actually what you experienced.
• 7:31
  Speaker B: Yeah, and I think it is actually. It goes, it, it, it stretches far before that. I mean, as far as, like, what I got out of it, I, I feel like I had already received something, you know, from, from that population that I'm trying to pay back. So I'm, I'm actually wearing this shirt right now from the Buddy Cruise. We went on the Buddy Cruise last year with my brother and my mom and I as a, as an artist and just, I'm so busy. I have so many things going on in my life and I have so many problems. You know, so many, you know, I've got songs I need to put out, I got shows I need to book and I got travel I need to pay for and this and that and this and that. And we got, we got to that ship and we got on board that ship and we got introduced to the whole Buddy Cruise crowd. And I mean, every disability from, from down syndrome, autism is just the whole. Everything was representative. I mean, there, there was, you know, there, there were children, there were adults, you know, there were wheelchairs, there were. There were other assistive devices and just like, just everything. And we got into that room the first night and they were so excited. They were so happy. They were so thrilled, full of joy, and just so happy to be there. And in that moment and throughout that week, I just realized, man, my problems are like this big, and it just really gave me a better perspective on life in general. And so I just try and pay that forward and pay that back.
• 8:56
  Speaker A: You know, there's so much to be said for the power of the present moment, and I never In a million years, like would have chosen to be the mother of two children with such profound disabilities. Yet I was always a student in trying to learn through my faith or my own day to day how to stay present. You know, like, the biggest gift that they give you is that they're always present. They're never, they're never looking far, they're never reflecting so deeply to become paralyzed by their past choices. And they're not even looking down the road to think what they have. They need to do what they have to do. It's the greatest thing to be surrounded by humans that do that. And I think that's sometimes what the universe or God or, you know, life gives you in those moments, whether it's a buddy cruise, you know, for me, I get to go to my children's school a lot and just be around their classroom of other kids that are like them. And I think that, you know, you're hitting on the head like you press pause. But what you're given in that actually becomes the fuel for you to keep doing what you're doing. Do you, you know, you built obviously your career around performing for audiences and, you know, resilience and connection and life. Do you think, you know, do you think that your audiences understand more that your performances are more meaningful because of, you know, your life experiences and, and what you've chosen and building your life? I was reading before this that, you know, you've done a lot with not only just people with disabilities, but, you know, work with veterans too. And that's something that my, My own partner, my. He's a, he's a USMC vet. And there's a lot of overlap in that, in that world when it comes to, I guess people want to say therapeutic benefits, but that music is connective in both populations. Do you find it, find it true?
• 10:36
  Speaker B: I think the healing power of music is second to none. I think music and laughter are some of the most therapeutic things that we have in the world. And I just, I want to share the healing power of music with as many people as possible. You know, veterans, families with disabilities. Just not really specific, just, just. I want, just want to share it with as many people as possible. I think there's an unreal amount of power and music, you know, I.
• 11:02
  Speaker A: It was, it is not even. It was. It is seen as a little fringe or avant garde. I have had my daughter Milly who's 11 and has been drawn to music so clearly since she was a young toddler and actually did music therapy. And it was where her first words ever came out. And to be honest, she really only speaks when we're singing. And, you know, it's seen as such this fringe science or this, you know, put your tin hat on, you know, to get your child to connect. While I think that it's through the work that you do, the work that your. That your girlfriend caught and then got to display to the world, that proves, again, the power of music and connectivity. It's not just for individuals like you and I sitting here that can talk, that can share an experience that can. That can promote our work. It is for those who don't have those abilities that end up being the benefit of the typical world's, you know, choices and advocacy. So, you know, I want to just never forget that, you know, what. What do you think, you know, going forward, individuals like myself who are mothers and caregivers can do to. To reach out to artists like you or put ourselves in position where we feel comfortable enough going to shows? Is that something that you believe that the. That the music world is still trying to embrace more authentically like you do, or is it on the, you know, is it on the heels of what the advocacy world should be just asking more for?
• 12:29
  Speaker B: I think you should ask for more. I can only speak for myself as an artist, and I can only speak to what I've seen personally as far as concert experiences and how open it is to people with disabilities and families with disabilities. I know that from being told she and her mother have come to a few of my shows, and I will always do my best to make my performances as welcoming as possible to everyone. Being at a bar on Broadway, I don't really control a lot of that, but, I mean, they kind of controlled that by coming on a Tuesday afternoon, Tuesday evening, you know, as far as, you know, my recommendation to families, like, especially, like, starting out, you know, go. Go somewhere that has live music on a Tuesday or a Wednesday. It's not going to be, you know, crazy and packed and overstimulating like it would be on a weekend and. And find artists that are supportive of not. Not just. Not just welcoming people with disabilities, but kind of creating an environment that makes everyone feel welcome and makes everyone feel seen and isn't littered with, you know, the excessive drinking and drugs and profanity and whatever else, you know, And I have, I have. I'm certainly, you know, that used to be me. That used to be me. I've certainly been guilty of that. You know, I've been.
• 13:43
  Speaker A: Me too.
• 13:43
  Speaker B: I've been sober for almost two years and You're.
• 13:47
  Speaker A: You're right alongside. I'm almost three. Yeah.
• 13:48
  Speaker B: Very nice. Congrats.
• 13:50
  Speaker A: You as well.
• 13:51
  Speaker B: I'm just trying. I'm just trying to. I'm trying to not just be. I don't just want to be an artist. I want to be a role model. You know, I want to be an artist that can. Can be someone that kids look up to and that people can. Can look to as. As a positive role model and not just, you know, somebody that goes out and does dumb stuff because they're, you know, big and famous or whatever.
• 14:11
  Speaker A: Well, I think there's a. There's a lot of things here. One, I'm so glad you touched on environment because, you know, a lot of times women and mothers, caregivers like myself carry the weight of the world because we don't know what that environment's gonna look like. And I like. I like that you're saying, you know, try it at a. You know, go in consciously. No, control the controllables, right? Going on a Tuesday somewhere. Go experience something and know that again, my platform's Inchstones, right? Do the smallest thing that will help, you know, do this. Make. Make the conscious, smallest choice that might remove some of those variables that you can't control. And so I love. I love that being number one, because I myself tend to go off hours. Things with my kids simply because I can control the environment more from. I can't control everyone else's movements. I can control mine. So if there's less people around at first, it's a good thing to. It's a good trial always. I think also, too, and I want to make this really apparent, is that, you know, the girl and the young woman in the video that you had, it's a reminder to us that the extraordinary doesn't have to look so big and grand. You know, she was just simply hearing a song that she loved and, you know, just like any other fan does. And I think that we need to then use examples like that. And through your own power and what you created just because you were you as an artist reminds us all that it's okay to love what we love. It's okay to be ecstatic about a moment. It's okay to fall in love with a singular song. You know, I'm sorry to say that my Milly is not a deeply country music fan, but, man, she'll listen to Castle on a Hill by Ed Sheeran a thousand times a day. But, you know, I mean. I mean, literally, it's. It is. You turn that on. I'll have to send you a clip of it. That, that, that side of her mouth goes up and she puts her hands up to her face like this. I mean, she is so. She's like, give it more. Give it more, Mom. Give it more. And we go on a Jeep ride. We put that on. But I, it's okay to love what you love. And I think that those moments also, while they're reflected in disability community and they get viral moments like your girlfriend, wonderfully shared, it's a reminder to us all to find the things that light you up, find the song that lights you up, find the, Find the moment that lights you up, and don't be afraid to try and get and do it. And it takes the caregivers of children like mine and like your mom's and your brother Mark to know that it's okay to go out and do those things and then pivot and if it's not the right place, try a new. Try a new spot. You know, that kind of energy is. That kind of energy is worth being used and celebrated. So, you know, Brooks, thank you. Really, really appreciate your willingness to come on if. Is there anything that you'd like to share before, you know, we, we end here?
• 16:47
  Speaker B: And, and I just wanted to touch on like you were talking about, you know, just moments and enjoying those moments. And I think what we also need to, to understand and remember something that I learned as a, as a physical therapist and something that just, just, you know, again on the buddy cruise and hit home with this young lady at jelly rolls. Moments can, can be so much bigger than what we think they are. I mean, I've, I've seen, you know, I've seen men and women, you know, amputees, you know, be able to stand and be able to walk again for the first time in years. That moment to them is bigger than any football player winning a Super Bowl. It's bigger than any artist winning a Grammy or whatever. These, these moments, they'll, you know, they can. They can be life changing and they can be something that they'll never forget for the rest of their life. And we just, you know, have to remember that, that every single moment can. Can be something much bigger than just a moment.
• 17:37
  Speaker A: Couldn't have said it better myself, you know, thank you for sharing and showing this beautiful fan just losing her mind over a song that she loves because it pulls each of us that got to see that and continue to watch it reflect on what you just said. And maybe that's why so many people responded to it. You know, it contains. That video contains so many things that are so wonderful. That music and anticipation, favorite songs, people who understand you, nights out, being a part of something. And really the freedom to just completely lose yourself in a moment because you're having that much fun. You know, that's an Inchstones too. You can't really teach that or put that on a treatment plan. You know, you just. That's just a human having a really, really good night. Brooks, thank you for your music and for sharing, you know, this story with us and for your girlfriend for capturing it. I love a good woman intuition. That is a woman intuitive moment at its finest. So please thank her for me as well.
• 18:32
  Speaker B: Absolutely, I will.
• 18:33
  Speaker A: Y for reminding us that belonging isn't simply being allowed in the room, it's giving. It's getting to fully live in the room once you're there. So, Brooks, thank you again. I'll be sure to post actually the video on the episode summary of why we brought together to record here, but also where they can find you in Nashville and all the work that you're doing to positively affect your community through your work. So, Brooks Herring, thank you again for being here at Inchstones Thank you for having me.