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Hope Found at Rock Bottom · The World Knowledge

• 0:00
  Speaker 1: Well, good afternoon, listeners. Thank you so much for listening
• 0:03
  Speaker 1: to Lament of Hope podcast. As you guys know, we
• 0:07
  Speaker 1: are nearing our 300th episode, which is amazing. And so
• 0:12
  Speaker 1: many people from around the world with different struggles and stories.
• 0:16
  Speaker 1: And it's all because of you guys and your support.
• 0:18
  Speaker 1: So I'm super grateful. I feel like I have to
• 0:21
  Speaker 1: say that every time I start because I just it
• 0:23
  Speaker 1: always blows me away when I think about it.
• 0:26
  Speaker 2: No, if I'm at rest, I'm usually fine today, even
• 0:30
  Speaker 2: though I'm in bed. Just because of last night, I've
• 0:33
  Speaker 2: got the extra oxygen on. But normally, if I'm moving around,
• 0:41
  Speaker 2: that's when my oxygen saturation drops. So I have it
• 0:46
  Speaker 2: when I'm real active. Normally, when I'm in bed, unless
• 0:50
  Speaker 2: I've got some sort of infection, or like I said,
• 0:52
  Speaker 2: if I'm masquerading or anything like that, then... I can
• 0:55
  Speaker 2: usually have it off while I'm in bed.
• 0:59
  Speaker 1: Are you in bed a lot, you think, if you
• 1:02
  Speaker 1: had to think about it?
• 1:06
  Speaker 2: Yeah, I was very lucky that a couple of years
• 1:10
  Speaker 2: ago I was able to get a job and I
• 1:13
  Speaker 2: can work from home now. So I'm able to still
• 1:19
  Speaker 2: do that while in bed and having some things. kind
• 1:22
  Speaker 2: of productive to keep me busy when I'm not up
• 1:26
  Speaker 2: and about. But it's up and down. There are some
• 1:31
  Speaker 2: times where I feel like I'm fairly active and I
• 1:35
  Speaker 2: get out and do things and my husband and I
• 1:38
  Speaker 2: like to get out into nature and just go on
• 1:42
  Speaker 2: walks and it's, you know, wonderful and beautiful. And then
• 1:45
  Speaker 2: there's other times where I just, I can't, my body
• 1:48
  Speaker 2: just doesn't let me. Yeah. So it's, it's a roller
• 1:52
  Speaker 2: coaster and you kind of never know what the day
• 1:56
  Speaker 2: is going to bring it. It switches sometimes like the
• 1:59
  Speaker 2: flick of a light where I'm fine. And then all
• 2:01
  Speaker 2: of a sudden it's like, Oh, all right, we need
• 2:04
  Speaker 2: to stop now. And, we always have a wheelchair in
• 2:08
  Speaker 2: the car. So that happens. My husband just grabs the
• 2:10
  Speaker 2: wheelchair and we go home.
• 2:13
  Speaker 1: Yeah. And you know, it's something that I'm, I'm encouraged
• 2:18
  Speaker 1: by you saying that because so many individuals I've talked
• 2:21
  Speaker 1: to of chronic illness, one of their number one, especially autoimmune,
• 2:26
  Speaker 1: one of their number one complaints, if you want to
• 2:28
  Speaker 1: call it that is that People just think, well, why
• 2:31
  Speaker 1: are you not on oxygen today? You look fine. Or
• 2:34
  Speaker 1: why are you wearing makeup today? You look good. Or
• 2:36
  Speaker 1: why are you walking if you have this problem? You
• 2:39
  Speaker 1: shouldn't be walking then. But it's so important. And I
• 2:43
  Speaker 1: think what you said is like it changes with a
• 2:46
  Speaker 1: flick of a switch. And that's just so important, I think,
• 2:50
  Speaker 1: to remember because it's so easy to judge quickly when
• 2:54
  Speaker 1: someone looks great one day and then the other day
• 2:56
  Speaker 1: you're like, they don't look so great.
• 2:59
  Speaker 2: Yeah. It's, um, it's really hard. There's a lot of
• 3:05
  Speaker 2: judgment that happens. I've had people come on and say
• 3:08
  Speaker 2: some pretty horrible things to me because I was smiling.
• 3:11
  Speaker 2: And if you're really in pain, you wouldn't be smiling
• 3:13
  Speaker 2: that much. And it was like, Oh honey, you don't
• 3:16
  Speaker 2: know what yesterday was like. So I am smiling today
• 3:20
  Speaker 2: because I am not there right now. And, uh, You know,
• 3:26
  Speaker 2: bad days make the good days great. And you just
• 3:30
  Speaker 2: push through. And especially I got sick when I was
• 3:36
  Speaker 2: really young. Yeah, you were 29, right?