Latest / Papa Gut / The lift was down so she rose from her wheelchair & ascended the stairs

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The lift was down so she rose from her wheelchair & ascended the stairs · Papa Gut

• 0:00
  The lift's down. Nice.
• 0:02
  RIP. Here's one.
• 0:03
  That's tough, man. That's tough.
• 0:04
  What? Happens if you're a wheelchair
• 0:05
  user and the lift breaks at the train station.
• 0:08
  This was. Tough your boyfriend carry you
• 0:09
  man. You got to have her pick you up,
• 0:11
  have him pick you up and walk you up the stairs.
• 0:13
  You know, even with even with the lift, he's got to be strong.
• 0:17
  Manchester Piccadilly and when I arrived the lift was broken and
• 0:20
  I had my chair and attachment. I spoke to the staff and they
• 0:23
  brought down a stair lift. They don't know if it works.
• 0:27
  The first option was the built in stairlift, but this actually
• 0:30
  didn't work. They figured out that it was
• 0:32
  broken, so that was two options completely.
• 0:35
  Tell your boyfriend to pick you up, dude.
• 0:37
  He's got to be prepped for these emergency scenarios.
• 0:38
  What if a zombie apocalypse broke out?
• 0:41
  He's got to be able to lift you up, Throw you, save you from
• 0:45
  harm. OK, down.
• 0:47
  The second option was a small portable stair lift which didn't
• 0:50
  look as sturdy and I was quite scared of it, not going to lie.
• 0:53
  But they brought it down anyway, and when we got to the bottom,
• 0:55
  we realized. Oh, it looks kind of sturdy to
• 0:57
  me. That my chair wouldn't fit onto
• 0:59
  it. I have quite a long.
• 1:00
  Well, I guess that sucks. Maybe it wasn't sturdy I guess.
• 1:02
  In wheelbase with my attachments so we couldn't do it.
• 1:04
  We just gotten off a flight too so I couldn't even detach my
• 1:07
  attachment. It looks pretty good.
• 1:09
  It looks sturdy as hell. Because it was physically taped
• 1:11
  together and we didn't have scissors, so.
• 1:13
  Like there you go. That's I guess you could just
• 1:15
  walk up the stairs. Just wheelchair users.
• 1:23
  This guy's comments fair. Not going to lie, I spent half
• 1:26
  if I spent half an hour sourcing lifts for stairs and then the
• 1:28
  person just walked, I'd lose it. That's that is a little
• 1:31
  triggering. I mean, listen, I if you're in a
• 1:35
  wheelchair, I just walk. Hey, get up and walk.
• 1:39
  I don't know what her disability is, but you know what?
• 1:42
  Some people struggle doing stuff for a long period of time, so
• 1:48
  maybe that's just to keep her preserved.
• 1:50
  It is a little strange. I mean, it makes me wonder what
• 1:54
  disability you do have that makes it so you can walk.
• 2:00
  It feels strange. It kind of feels a little
• 2:04
  strange to me. But you know what?
• 2:05
  I'm open to the explanation. We'll see.
• 2:07
  We'll see if we have one after the finish this incredible
• 2:10
  video. In the end, because I'm
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  ambulatory and I did have a bit of energy on this day, I offered
• 2:14
  to walk up the stairs while they carried up my setup.
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  The staff were really. You also were filming yourself.
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  You had like one hand on one of your knees to prop you up.
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  But then you're also filming and I feel like have your boyfriend
• 2:23
  film if it's that stressful, it seems.
• 2:25
  I don't know. It seems a little strange to me,
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  but OK. In this case, but I'm not sure
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  how it would have been fixed if I couldn't walk up the stairs.
• 2:31
  Travel is really unpredictable anyway, but if you add in being
• 2:34
  a wheelchair user, you never quite know what's going to
• 2:36
  happen or how to get. Your boyfriend's weak as hell,
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  dude. He's like been walking up that
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  thing. Come on, girl.
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  To your destination. So traveling with a disability
• 2:44
  is a roller coaster. I am just genuinely curious what
• 2:47
  disability this person has. I posted a video the other day
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  about a lift being down at Manchester Piccadilly train
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  station and I explained how as a wheelchair user I need
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  accommodations to go up the stairs and wow, the comments
• 2:59
  section is quite something. So.
• 3:02
  I think it's fair to be a little skeptical because I feel like
• 3:05
  this is one of the things and maybe it's unfair, but you kind
• 3:07
  of have to explain yourself a little.
• 3:09
  Yeah, I could just walk up the stairs.
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  Don't don't expect everybody to just be like, oh, OK.
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  Like tell us. Hey, I got you know, I got hit
• 3:16
  with the with the five fingered grip death, whatever from Kill
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  Bill. I can only take 5 steps.
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  Something give me something so that I understand what's going
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  on. Walk backwards, gentlemen.
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  You can't just but you can't just walk, you know, at least be
• 3:28
  like, oh, I love Jesus. I need Jesus healed her for
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  three minutes as she walked up the stairs.
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  Something you know. So I wanted to come on here and
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  discuss it because ambulatory wheelchair users exist.
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  If you've seen the video, what? Does ambulatory mean in this
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  context? Oh, it just means there's
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  somebody that can walk. OK, I guess so.
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  I mean, there are pregnant women, right?
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  OK, me at Disney, am I right? Guys just got to get that
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  wheelchair. I can't walk all day.
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  I do walk all day. Then I get Disney rash.
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  Am I obese? I don't know.
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  You will know that I chose to walk up the stairs and have
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  people carry my wheelchair because physically I can walk
• 4:00
  upstairs sometimes and I don't think many of you have seen a
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  wheelchair user be able to walk before because Oh my God, it
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  surprised everybody. So first of all, ambulatory
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  wheelchair users are someone who uses a wheelchair, but they are
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  physically able to walk or stand or use their legs in some way.
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  All right, fair enough. There is also something called a
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  part time wheelchair user. You can either be full time,
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  which means you spend and pretty much.
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  All I think I understand what full time versus part time
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  wheelchair users mean. There in your chair, you can't
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  walk places. You use a wheelchair as your
• 4:32
  primary mode of transport in the house, outside the house.
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  This is not me. I am not a full time wheelchair
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  user. I do have use of my legs.
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  But where people are going wrong is this does not mean that I
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  don't need a wheelchair. I can walk, but I cannot walk
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  for miles. I can stand, but I cannot stand
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  for longer than 5 for 10 minutes.
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  I can roller skate on all right, my good days, but I can roller
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  skate for two minutes. What is she?
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  I'm just so curious, what what do you have?
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  What is? What is?
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  What is it that you have? Or 5 minutes and then I have a
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  flare up for a week. OK, there we go.
• 5:12
  We're getting there. Fibromyalgia.
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  Do you think that she has fibromyalgia?
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  Just tell me what it is. I want to understand.
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  Hey, you know what? I have fibromyalgia.
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  I have a chronic illness. I can be mobile, but then I get
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  really hurt. I you know, and and maybe it's
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  unfair, but I feel like you kind of have to you kind of have to.
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  Oh, she's wait, what the fuck? She's got Tourette's.
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  I'll pick a struggle. Am I right?
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  What the fuck? You have Tourette.
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  Is your Tourette's doing it? Why do you tell people you have
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  Tourette? Which I guess they have
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  Tourette's. I mean, me too.
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  I guess I don't really have outbursts more if it's facial
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  things. But what you're you're talking,
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  you're obviously open about your Tourettes.
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  Why the fuck aren't you telling us?
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  What do you else you have? Are your Tourettes creating?
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  Is that your chronic illness? That's what's strange to me.
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  It's like you have you have like Tourette's stuff.
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  What is Tourette's like? It's all over her links.
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  I have a hidden disability. What's the but what's the other
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  one? I don't understand the lack of
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  transparency. That's the one that's like weird
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  to me. So she's like, yeah, I have
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  fibromyalgia. I respect that.
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  I understand fibromyalgia is tough.
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  But like, get me, give me give me some education here.
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  What she says that she has a functional neurological disorder
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  on her YouTube, but like just lead with what it is so people
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  have a better understanding of it.
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  Instead. You're being so weirdly vague.
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  I don't understand that part. And I just, it's very strange.
• 6:27
  I've never seen anybody like talk about it like that.
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  Like I understand some people are insecure about talking about
• 6:32
  their disabilities. Totally understandable.
• 6:34
  She's obviously not. She's also apparently autistic.
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  Why I choose to get an official autism, OK, I don't know.
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  OK, I don't know. I wrote a chronically.
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  I've wrote a book for chronically.
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  I'll neurodivergent people like everything's.
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  Hey, guys, I'm autistic. I have Tourette's.
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  OK, cool. What's your what's your physical
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  disability? Do you have fiber?
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  I just don't get that. It doesn't make any sense to me,
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  to be honest with you. Something is strange here.
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  Yeah. I'm even looking at her YouTube
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  video. She won't tell us what it is.
• 7:04
  Oh well no. And why flare up?
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  I mean my symptoms are worse, I'm able to do less and
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  generally I have become a lot more debilitated by my
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  conditions again. So essentially flare ups come
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  and go. That's one of the things about
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  being a chronically I'll person or a person with a changing
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  disability, I guess. What is a person with a changing
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  disability? What what does this mean?
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  What is it just F&D? She just F&D functional
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  neurological disorder. Is that a specific diagnosis or
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  is that like a general diagnosis?
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  OK, that might be what it is. So apparently she has functional
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  neurological disorder, characterized by disruptions in
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  how the brain sends and receives signals.
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  Unlike other brain diseases, there's no structural damage or
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  disease in the brain. Rather, it's a problem with the
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  functioning of the nervous system.
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  OK, cool. I feel better.
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  That's all I kind of needed. Yeah.
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  Five Nights at Freddy's Disorder.
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  Yeah, that makes sense. OK, got it.
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  I feel like it was tough to find.
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  She also apparently has something called.
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  Disodonomia. Disodonomia OK, I wish we I wish
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  that she just explained to this. It's very difficult.
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  Like I had a look at her, I had a look at her YouTube and like
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  scroll through, but she's very vague about this.
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  Maybe she'll say it in like 2 seconds and I'm just a big fat
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  idiot. It does not mean that I'm
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  healthy. It does not mean that my
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  conditions go away. She's doing It just means that
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  you are seeing a very good minute of my life.
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  Totally respectable. I get it and comparing it to the
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  accommodations that I need 24/7 on a daily basis it is insane
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  the amount of ableism that were in the comments and just people
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  who don't understand so. I agree half.
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  I think half of this is on you. I do.
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  And it's unfair, right? But like not everybody's
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  educated on everybody's specific condition.
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  You're a content creator who's very extraordinarily comfortable
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  talking about your disabilities. Apparently you have threats and
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  you have autism and you have some kind of neurological
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  disorder. You should be telling people
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  about it. That's your channel is about
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  advocacy for disabilities. So it's strange to me when a
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  disability advocate channel doesn't explain the disability
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  that she has, which some kind of, excuse me, excuse me, some
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  kind of neurological disorder in that video.
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  And like, that's like your thing.
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  That's what you want to do. Why not just do it completely
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  every time? It doesn't make any sense.
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  Why not say, hey, yeah, I just walked up the stairs.
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  I have FND, you know, and maybe this is maybe this is content
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  training for some people where like sometimes and it's a
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  frustration of content creation, but it is a reality.
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  Sometimes you have to qualify every single thing every single
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  time. This is sometimes this is what
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  you have to do when you regardless, especially if you're
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  in a nuanced conversation. And I would say walking while
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  being wheelchair bound, it's a nuanced conversation.
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  So something as simple as like, I guys, I have a functional
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  neurological disorder, so I can walk, but for a little bit say
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  that in the video as you're walking up the stairs.
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  It's content to say it. Yeah, this.
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  And that's why it's appropriate. But instead you had that video
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  and then you are complaining that people don't understand.
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  You still haven't really explained yourself.
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  It's a minute and 40 seconds in here and I still don't
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  understand what your disorder is Other like nobody else would
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  understand it unless they looked it up.
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  And a lot of people aren't going to do that.
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  They're just going to be very like reactive, like, oh, here's
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  what's happening right in front of my face.
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  I would just say advocate for yourself.
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  Better was down to for me. If you see someone walking and
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  they're using a wheelchair, it doesn't mean they're faking and
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  it does mean that they need the wheelchair.
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  They wouldn't have it otherwise. Wheelchairs are expensive.
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  I wouldn't have. Paid like.
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  Thousands and thousands of pounds.
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  If I could just walk, it would be so much easier.
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  I don't want to use the wheelchair, but it helps me.
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  I need it and it gets rid of so much pain for me.
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  It allows me to do things well. She's been cruising around.
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  What the hell? I have my life back after years
• 10:44
  of not does. She have one shirt.
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  Having much? Oh, never mind.
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  Like I'm just seeing the same shirt everybody.
• 10:50
  Quality of life I am disabled. Or she's zooming, man.
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  It's like Sonic the goddamn Hedgehog.
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  Yes. I don't always look it.
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  I don't always look disabled because disabled doesn't have a
• 11:01
  look. I have health conditions and I
• 11:04
  accommodate for them and. It's funny how her Tourette's
• 11:07
  activated when she says she had a health condition.
• 11:10
  That's like what I think about my ticks and I like my start
• 11:12
  taking more. You know, mine aren't too bad.
• 11:15
  Sometimes I cough really loud, you know.
• 11:17
  Well, I'm talking about Israel, you know.
• 11:18
  We should all just accept that I posted a video.
• 11:21
  OK, I still wish that you educated but uses you could have
• 11:23
  used this as an educational moment and I feel like it could
• 11:25
  have been a little more educational just be that as my
• 11:27
  advice, but. For those of you who have seen
• 11:29
  my other videos, this one may come as a surprise.
• 11:31
  I am a wheelchair user, but whoa.
• 11:34
  She's doing cool tricks. I can also walk.
• 11:36
  I've made some videos about this recently, but I found this
• 11:38
  footage from last year and I wanted to share.
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  It all right now you're rub it in people's faces.
• 11:41
  I feel like this is not helping you.
• 11:43
  Because after two years of physio and working on my
• 11:46
  mobility, I can walk on my good days.
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  And one of the challenges I built up to last year was being
• 11:51
  able to go for a walk and playing on some playground
• 11:53
  equipment. So here's me.
• 11:54
  All right, man, Can you tell us the specific illness that you
• 11:57
  have for the audience to understand I.
• 12:00
  Don't know walking and testing my balance and just practicing
• 12:02
  moving, but something I really want to share is that disabled
• 12:05
  people are allowed to have fun. We are also allowed.
• 12:08
  Disagree. No, I'm just kidding.
• 12:10
  I want to share our good moments and our good days.
• 12:13
  I feel like this isn't something that is promoted on social
• 12:15
  media, but disabled people can have a good day, we can have
• 12:18
  fun, we can have improvements. This doesn't mean that
• 12:21
  disability goes away, and it doesn't mean we're immediately
• 12:23
  cured, but especially with dynamic disabilities or chronic
• 12:26
  illness where it's not the same every day.
• 12:28
  I saw the cuts. I see that you're falling and
• 12:30
  you're getting back up you. Can do different things on
• 12:34
  different days depending on the symptoms we have.
• 12:36
  Five years ago I could still walk and do gymnastics and go
• 12:40
  to. Clubs do.
• 12:40
  Sports. Even though I was still
• 12:42
  disabled, my health has worsened since then and I can't do that
• 12:45
  anymore. But.
• 12:46
  Was it the sports? With some physio and building up
• 12:49
  I can do stuff like this. So as a wheelchair user
• 12:51
  relearning how to walk, this is an update of something I can do
• 12:54
  on a good day. OK, cool.
• 12:59
  I just again, I think interesting ride that we went
• 13:02
  through, interesting. We went on a ride together, but
• 13:04
  I really would think it would have been a little better if you
• 13:07
  explained yourself a little bit more here, but OK.