Latest / Amplify: A Podcast Powered by Patient Voice Partners
From Caregiver to Changemaker: Transforming Rare Disease Advocacy Through Policy
Episode Summary
What does it take to turn personal caregiving experience into lasting healthcare change?
In this episode of Amplify: Elevating Patient Voices, Ursula Mann and co-host Barry Liden welcome Annie Kennedy, Chief Mission Officer of the EveryLife Foundation for Rare Diseases and one of the leading voices in rare disease advocacy and policy.
Annie shares her journey from aspiring physician to caregiver after a loved one was diagnosed with an ultra-rare and aggressive cancer. That experience exposed the gaps in healthcare systems for rare disease patients and families, inspiring her…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.