Latest / For The Hayters: The Stories We Survive
A Mother’s Fight for Answers: Nicole & Benjamin’s Hirschsprung’s Journey
When Nicole Perry’s son Benjamin was born, she knew something wasn’t right. But getting doctors to listen was a fight—one that took everything she had as a parent. After months of pushing for answers, Benjamin was diagnosed with Hirschsprung’s disease, a rare condition that affects the colon.
Nicole didn’t stop once she had the diagnosis. She became a powerful advocate for other families, joining the Reach HD board, while Benjamin stepped into his own role as the Children’s Ambassador—bringing hope and community to kids like him.
This episode is about resilience, advocacy, and the love of a…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.