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A Rare Collection - Lullabies

ONCE UPON A GENE - EPISODE 113

A Rare Collection- Lullabies

There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. In this episode, grandparents share their lullaby stories.

EPISODE HIGHLIGHTS

Maria

In the classic lullaby, Hush Little Baby, when an item is broken, the mama will make it better. But there are things that a mama (or a grandma) can't fix. Emma was diagnosed at 6 months old and her parents’ and grandparents’ hopes and dreams went dark. The…

The skinny

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