Latest / In the Valley of Giants / Escorting the Soul: The Sentinels of Hospice and Palliative Care | Yossi Blieberg | ITVOG Ep. 21
Transcript
- 0:00They wish they had more time. That's what they tell you you.
- 0:04Know, I'll ask them like what what would you want to do with
- 0:06your time? And the, the answers are still
- 0:09very much around revolve around the family.
- 0:11I wish I could spend more time with my family.
- 0:14I wish I can go to Disney World. You know, that's a common one.
- 0:16Kids want to go to Disney World with their families.
- 0:19The the idea that when time is finite and you recognize that
- 0:24it's finite, every small interaction becomes that much
- 0:27more meaningful. Hello everyone.
- 0:34Joining us today is Yessi Blyberg, a clinical social
- 0:37worker who has spent two decades navigating the delicate
- 0:39intersections of life, illness, and mortality.
- 0:42From the halls of major oncology units and Hospice programs and
- 0:44palliative care. Yessi brings a profound depth of
- 0:47experience in palliative care and human resilience.
- 0:50His journey is rooted in a rigorous education spanning from
- 0:52the Shiva's of New York to Yusha Lime, culminating in a Masters
- 0:55of Social Work from NYU. We are honored to sit down with
- 0:58him to discuss what 20 years on the front lines of care has
- 1:00taught him about the human spirit.
- 1:02Yessi, welcome to the show. Enjoy everyone.
- 1:04Yessi Blyberg, thank you so much for being with us on the show
- 1:06today. Yeah, thank you for having me,
- 1:08Robert Dorfman. Looking forward, lots, lots that
- 1:12we can, I think learn from you. So I think that it's a normal
- 1:17human thing to fear death. And I therefore I can't think of
- 1:22a scarier time than someone's final moments.
- 1:27And for some reason, which we're going to get to the bottom of it
- 1:29today, you've decided that you want to be involved in those
- 1:33final moments. And I find that heroic.
- 1:35Honestly, I find that absolutely heroic.
- 1:39The Talmud tells us that to do a kindness for someone who is at
- 1:44the end of their life or the end of their life, it is a hessage.
- 1:47It's a kindness that is completely true because you
- 1:50expect nothing back from them. So therefore the biggest
- 1:55altruistic deeds that we can do is to help those at the very
- 1:58end. So in your choice of all the
- 2:04different things that what you could counsel people about
- 2:07because you're a social worker, correct?
- 2:09Yes. Yeah.
- 2:11So why palliative care? Why have you chosen this
- 2:14particular field of helping people through those final
- 2:17moments? Out of all the other people that
- 2:18you could be counseling? Why?
- 2:19Why this moment? Yeah, great question.
- 2:22It's, it's actually, you know, it's, it's funny because a lot
- 2:24of times when I interview people to, to join the current
- 2:28organization that I, I work with primarily, I always ask them
- 2:31like, are are you crazy? Like what, why, why do you want
- 2:34to do this? And, and usually what I'm
- 2:36looking for is that kind of that personal connection to it.
- 2:39Years ago, I remember in grad school, one of the great writers
- 2:43in, in the social work realm and end of life.
- 2:45Her name is, oh gosh, I'm blanking.
- 2:49Her name is Shirley Otis Green. Sorry, I'm looking at her book
- 2:51on my shelf over there. She she said primarily there we
- 2:56are a group of wounded healers. Interesting.
- 3:00What does that mean? So in other words, that is it's
- 3:04because death is a universal experience.
- 3:07It's something that many of us experience and just kind of, you
- 3:10know, go along with it. And then there are those of us
- 3:12who experience death and decide to kind of help others in a way
- 3:18based on our experiences. So we can, you know, learn from
- 3:22what's happened to us and be the people that we needed.
- 3:26So I so I'll just kind of answer your question and also kind of
- 3:29mention someone. So I was 17 years old, a little
- 3:34younger, 16 maybe, when my mother was diagnosed with
- 3:37cancer. She died shortly after I turned
- 3:4020. I was the second of five kids.
- 3:43I, I have one older brother and my younger sister at the time my
- 3:46mother died, was only 10 years old with two more brothers in
- 3:49between. And, you know, so we, we, I
- 3:52really saw the ways that it was affecting, you know, her illness
- 3:56was affecting my siblings, certainly affecting my father.
- 3:59You know, how my mother changed. We were very, very blessed.
- 4:03Have a wonderful, wonderful social worker who actually came
- 4:07and worked with our family named Mesh Borowski, Oliver Shalom.
- 4:09And he had died not that long ago.
- 4:11And I, I said, you know, that's, that's what I want to do.
- 4:15At the time I was thinking I would do accounting.
- 4:17I would, you know, any number of more traditional Jewish career
- 4:22fields. But I decided like no, that's
- 4:24that's what I want to do. Was that, was that a light bulb
- 4:27moment like immediately after coming out of that experience?
- 4:30Like this is what I want to do the rest of my life.
- 4:33Yeah, pretty much. I I, you know, up on that, you
- 4:36know, when she when she had died, I already started doing
- 4:39some college courses in accounting and all of a sudden
- 4:42some some in computers. And I said like this, this, Nah,
- 4:46this isn't, this isn't right. This is not what I want to be
- 4:48doing. I want to be doing something
- 4:50more hands on helping people. And so I initially thought I was
- 4:53going to be a psychologist. That's what I had wanted to do.
- 4:56And one of my professors in Turo said, you know, I had told him
- 4:59the story and what I was looking for.
- 5:02He said, Nah, that's social work.
- 5:05And so I did something a little old fashioned.
- 5:07Nowadays everyone goes down line, but I actually went down
- 5:11to NYU and Fordham and spoke to people in their admissions
- 5:16offices and did that and decided to go to go for SO.
- 5:23You said that you saw changes in your entire family as your
- 5:25mother passed away. You don't have to go into those
- 5:28changes if you don't want to, but whatever those changes were,
- 5:30feel free to share them if you do feel comfortable.
- 5:32But do you see that parallel and impatience that that you have as
- 5:36well? Or do you feel you went through
- 5:37a very specific set of circumstances?
- 5:39I mean, every, everyone's circumstances are very specific
- 5:42to be honest, right? Everyone's, everyone has their
- 5:44own way of dealing because every family has their own set of
- 5:48rules and there's every, every family has their own dynamic and
- 5:51the way they relate to each other, the way they talk to each
- 5:53other. So every situation is really
- 5:55specific, but I, I think that one of the things that I really
- 5:58try to work with people on is something that I, I saw that,
- 6:02you know, we were kind of working in that direction, which
- 6:04is rather than all of us going through the same situation, you
- 6:09know, with our own parallel processes where we all kind of
- 6:13went through it alone. I think people definitely cope
- 6:17better when the whole family goes through the experience
- 6:22together. You know, when you have open
- 6:24dialogue and people can talk openly and and you know, in
- 6:27about their feelings over a meal, you know, whether it's a
- 6:31weekday meal, a Shabbos meal, or even just a lunch in the middle
- 6:35of the week, because that's when everyone could be there.
- 6:38You know, I think people have really can have really very
- 6:41different and much more empowering experiences with
- 6:46their loved ones, with their family members so that they're
- 6:49not just coping by themselves and going through this alone.
- 6:52Break down a little bit and and this this one I know is from
- 6:55total ignorance on my part. Don't worry, I'm ignorant.
- 6:57I'm going to be in this entire conversation because I don't
- 6:59know my. We're all learning.
- 7:04Going through losing your mother, which was and for those
- 7:07of you that have not lost your parents, I have not.
- 7:09I cannot imagine and I will not imagine until I lose my own.
- 7:14But how can you go through an experience of losing a parent
- 7:18and be like, yes, I want to go through that again with someone
- 7:20else? Is it because is it?
- 7:22Is it because you immediately saw that silver?
- 7:25I wouldn't say silver lining, it's the wrong term, but you
- 7:27immediately saw your utility. Was that it or was it just the
- 7:30the burning desire to do it? Like what?
- 7:32What was it? Yeah, I mean, it wasn't, you
- 7:35know, it was a light bulb moment, but it didn't happen.
- 7:38Right, like just to break it down for myself and the viewers
- 7:40more more than yourself because you already you already know the
- 7:42answer. But if I were to escape a
- 7:45dungeon of some masochist, you know, go through a horrible evil
- 7:51experience, as soon as I walked out of the house, I would be
- 7:52like, Oh my gosh, I want to visit like 30 other torture
- 7:55dungeons and help people out of that.
- 7:56I'd be like, I don't want to have anything to do with that
- 7:58ever again. Yeah, like I said, that's why I
- 8:00always ask people like, are you crazy?
- 8:02Like why do you want to? Why do you want to do this?
- 8:04Yeah. I mean, maybe there is a, a
- 8:06masochistic tendency in it. Maybe you know, I I really think
- 8:09that a lot of it really came from this place of that I was
- 8:15very lucky to have, you know, good help and good support, and
- 8:20I know a lot of people don't have that.
- 8:22For those who know my family, you know, they'll, they'll tell
- 8:25you like we, we're big communicators.
- 8:28Sometimes too much people will say, you know, so it it's, it's
- 8:34kind of like, you know, I remember even like people
- 8:38telling me at the time I go don't say cancer, you know,
- 8:41Yanimakla, like there's a lot of things that people do meaning to
- 8:45be helpful. I mean, I remember.
- 8:47So my mother died. It's like Kravteskashvan is her
- 8:52yard saying, OK. So I remember meeting someone
- 8:55that I knew from yeshiva at the mikvah.
- 8:57It's always like a funny way to start a story, right?
- 8:59I met them at the mikvah, rushed on air of Yom Kippur.
- 9:02And he knew my mother was sick. And he was he meant well.
- 9:05I mean, he was a Rebbe and he meant well.
- 9:07And he said, you know, like, I know she's really sick.
- 9:10Like, you know, you should really like think about taking
- 9:12on more things. And I just like really struck
- 9:16like, well, that's not very helpful.
- 9:18Like, OK, maybe he means well. I'm sure he means well, you
- 9:22know, like, is that really helpful?
- 9:24You know, and I, I knew that a lot of people had gone through
- 9:27things more of like that, where people who don't know what to
- 9:30say, say the wrong thing, meaning well, not meaning ill
- 9:35will in any way. When I was sitting Shiva, some
- 9:37of the more helpful visitors were from those who had lost
- 9:41parents at a relatively young age and had, you know, again, a
- 9:44lot of it wasn't like, OK, here's exactly what you do, but
- 9:48here is what terrible things well meaning people will say to
- 9:52you. Will say right?
- 9:54You know, like, like one of my grandmother's friends who asked
- 9:58my father, oh, you're, you know, you're 4748, OK.
- 10:01Oh, you can get remarried yet, you know, And my father was
- 10:05like, do you mind if we finish Shiva?
- 10:07Like, you know, so like that that that's kind of more of
- 10:12where where I was, what I was thinking, you know, like I had
- 10:15this experience, different people had similar experiences
- 10:19and obviously everyone has their own experiences, but, you know,
- 10:22maybe I could use this in a way that would be helpful for people
- 10:26into something that they need rather than what they get.
- 10:30Right, right. OK, Amazing, beautiful answer.
- 10:33Beautiful answer. How do?
- 10:34You not have time. It wasn't this light bulb moment
- 10:37I did, you know, from there, I, I went there to stroll for a
- 10:40little over a year, you know, was back in yeshiva.
- 10:42I was only doing college at night.
- 10:43It's like it wasn't just like, OK, boom, I'm going back to
- 10:46grad. School Jessie you were super
- 10:47from You're super from Jessie. Yeah, yeah.
- 10:50I want to make sure I get that in there OK.
- 10:54So I think that's a beautiful story.
- 10:57That's a, it's a redemption story.
- 10:58That's a story of, of being down on the bottom and, and being
- 11:01able to make it out and saying no one has to go through that,
- 11:05you know, alone. I think that's really beautiful.
- 11:06And that's, that's part of the reason that makes you heroic.
- 11:09But how do you not get depressed doing that service day in, day
- 11:12out? Because you know when you're
- 11:13seeing a patient, they're not going to get better.
- 11:16That's true. I mean we do have those who do I
- 11:19want to just you know clarify really are on Hospice to
- 11:23stabilize. I didn't know that.
- 11:27Yeah. How common?
- 11:28How often is that? Not very common, but you know, a
- 11:32few little care of you know. Oh, gosh, thank you.
- 11:37There we go. So it it does happen, You know,
- 11:40people do stabilize. They last longer than we think
- 11:44they will. You know, we're we're only
- 11:46humans. We don't know.
- 11:47It does happen. But OK, so the vast majority
- 11:49though, sounds like the vast. Majority yeah, absolutely once
- 11:52once I've start working with them at that point usually that
- 11:56does mean that they don't have very long left in their lives
- 12:00and the families are kind of in that that stage where they're
- 12:04prepared or they're never really prepared and that that's OK too.
- 12:06But I, I think really good self-care is is really
- 12:10important. It sounds very cliche.
- 12:11You know, a lot of times people say they go self-care and they
- 12:14think like, OK, I'm gonna go to the gym and I'm gonna work out
- 12:16and I'm gonna, it's, it's, it's not necessarily, doesn't
- 12:18necessarily have to be anything that dramatic, but it's really
- 12:21just like deliberately taking breaks, taking care of yourself,
- 12:24spending time with family, taking days off, etcetera.
- 12:29That's that. That's your ticket, meaning
- 12:30that's how you don't get affected.
- 12:32That's it. How about in the moment?
- 12:36In the moment, how could you not get affected?
- 12:39Well, I can't imagine. So that's the thing.
- 12:42This is what I don't get. I can't imagine being in the
- 12:44moment, getting affected and then moving on from that.
- 12:49So there's a there's a great quote that I will sometimes use.
- 12:55Her name was Rachel Rahman, who's a writer.
- 12:58She would did a lot of work at end of life.
- 13:00And she wrote that, you know, for for someone to work in the
- 13:03end of life field and not be affected is like, you know, some
- 13:06walking someone walking through water and not getting wet.
- 13:09You know, I mean, to, to be a human in those experiences, in
- 13:12those homes, in those moments means we're going to be affected
- 13:16in different ways. And I think that, you know,
- 13:19remembering that it's not us, you know, we, we get to walk out
- 13:22of that room, we get to walk out of that home.
- 13:24There is sometimes that that helps just that bit of
- 13:28remembrance. But also, you know, we're,
- 13:31we're, it's, it's, it's funny. I had this conversation with my
- 13:34my uncle, my uncle's a cardiologist and we talked a lot
- 13:38about that, the idea of empathy. You know, if you're too
- 13:42empathic, when your patients die, you know, you'll be just
- 13:46this broken subroach in the mess.
- 13:48You won't be able to help anybody.
- 13:51If you're not empathetic enough. You'll have just, you know,
- 13:53they'll say, oh, you have 0 bedside manner and no one will
- 13:55ever want to talk to you. So everyone, every clinician,
- 13:59regardless of their discipline has to find that middle ground.
- 14:03You know, how could I be empathic enough to be effective
- 14:08with enough detachment that I'm still able to go on and and move
- 14:11on to the next visit, the next home, the next patient, the next
- 14:13family? Do you work with different ages?
- 14:17I mean, are you working with adults and children or mostly
- 14:20just adults or? I've worked with people who are
- 14:23dying of all ages, from teens, you know, late teens to just
- 14:27yesterday I saw a woman who was 101 and she's not even close to
- 14:30the oldest woman that I've ever seen.
- 14:32Wow, really? What's the oldest person you've
- 14:34ever seen A. 108. Wow.
- 14:37OK, that's great. May you see, may you see older
- 14:40people. Let's hope we see older people.
- 14:41I. Mean, yeah, I remember I was
- 14:44working with this lady once and she was telling me, Oh yeah, my
- 14:46kids sister, my kids sister. And I'm like, you know, you're
- 14:48103. How old is your kids sister?
- 14:51Oh, she's 98. A young It's all real, indeed.
- 14:57OK, so there's two very uncomfortable questions that I
- 15:01want to ask, but it's the one that I'm the most interested in.
- 15:04And I feel they're uncomfortable because they really get to the
- 15:05crux of the issue, which is when you're at the end, I feel like
- 15:10people are the most vulnerable and not in a manipulative, evil
- 15:13way or anything like that, God forbid.
- 15:15But you know, I feel like people probably are reflecting on their
- 15:18life's choices in those moments and have what to say.
- 15:23What are they telling you What? What is the thing that you hear
- 15:25over and over again? I'll tell you a funny story.
- 15:27It's related to this. It's not really this, but it
- 15:29really changed me quite a bit. I was in yeshiva.
- 15:33It's like the dumbest thing I've ever done, but I was in yeshiva.
- 15:37Those are always the best stories by the.
- 15:38Way I know, I know and now I'm going to do it, you know, in
- 15:42public, which is of course better, but I was learning from
- 15:45my have Rusa and I only slept, you know, I didn't sleep that
- 15:48much the night before. I wasn't crazy like now I get a
- 15:50lot less sleep, but whatever. But then I was tired.
- 15:53I don't know, it was like 20 or something, 19 and I'm wondering
- 15:56if I have Rusa and I'm just I I just complained to him.
- 16:00I was like, you know, I'm, I'm tired.
- 16:02I'm just like really tired. It's hard to focus.
- 16:04I'm really tired. And like I complained for a
- 16:06solid 1015 seconds, but I didn't just say it was really tired.
- 16:08Like I'm so tired. It's I'm bombed.
- 16:09I can barely focus. And sitting next to me Kavua
- 16:12like all the time. There's this dentist from New
- 16:15York that he like worked overtime or whatever it was that
- 16:18the first half of the day he could take off and come learn
- 16:20literally in the yeshiva and he like paid someone to be his
- 16:23cover. So it was a really beautiful
- 16:24thing. And he, he looked at me and he
- 16:29said, you know, I might be a dentist, but I've actually been
- 16:33around a lot of people that have passed away.
- 16:35This is my experience. I'm like, OK, he says, you know
- 16:38what? No one's ever told me.
- 16:40It's like what he says. They never told me at the end, I
- 16:43wish I slept because you can sleep more when you're dead.
- 16:49You know, which maybe I'm just trying to add a little bit of
- 16:51levity. But I think, I do think I do
- 16:53think that he has a point in the sense that, yeah, no one is
- 16:56complaining at the end of their life that they wish they would
- 16:58have just, you know, slept more of it away.
- 17:00Now, that's very minor and I, I hope fairly obvious to anyone
- 17:02who's really thinking about it. But what real gems are people
- 17:05sharing at the end of their lives?
- 17:07You know, I'll tell you, first of all, there is a lot of
- 17:09levity. You know, you'd be surprised
- 17:11that, you know, people suddenly, you know, find their sense of
- 17:15humor back when they're facing their own deaths.
- 17:17It's it's always, it's very, it's always very interesting.
- 17:21But anyway, the joke that I usually say is no one ever told
- 17:23me I wish I spent more time at the office.
- 17:26You know, that's that's always like the one thing I always say,
- 17:30you know a lot. But you know what, though?
- 17:31The even even that's important though, because there are
- 17:33people, yeah, that work all the time and they never like, they
- 17:37barely see their kids. And, and maybe you think, well,
- 17:40I just need to just one more push or, you know, I'll, I'll
- 17:43get that, you know, $1,000,000 of that, that big upgrade.
- 17:45I'll do this next business deal. And though they're, they are
- 17:48choosing that, I feel, I feel like I'm probably guilty of this
- 17:51too. In fact, I know I am.
- 17:52I feel we do choose our professions over our children.
- 17:56And a lot of times that's just wrong.
- 17:57So the fact that that people don't say that and say, you
- 18:00know, no one says that they, that they work, they wish they
- 18:02work more. I I think that does mean
- 18:03something. Yeah, I mean, that's, that's I
- 18:06remember the old, it's an old story from the Havitzkayim that
- 18:09he said, I wanna meet these kids.
- 18:10People are always saying I'm working for my kids.
- 18:11I'm working for the kids. I'm working for these kids.
- 18:13Like, who are these kids? There's so many generations have
- 18:15passed. These kids haven't, you know,
- 18:17haven't existed yet. But but but it's there.
- 18:20Yeah. There's definitely truth to the
- 18:21joke, you know, is that people definitely say that they wish
- 18:24they had spent more time with their families.
- 18:26They wish they took more time off.
- 18:28You know, they're looking back on pictures, on vacations.
- 18:32And I wish I took more vacations, you know, yes, we do
- 18:36have from patients who say, you know, I wish I learned more.
- 18:38I wish I did more. I wish I gave more to DACA.
- 18:40Obviously, there's there's, you know, a lot of that as well.
- 18:45But you know, more than anything else, what they the thing that I
- 18:49hear more than anything else is I wish I let I spent more time
- 18:52with my family. I wish I told my kids more that
- 18:56I love them. I wish I told them more that I
- 18:58was proud of them, you know? I wish I told them more how much
- 19:01they meant to me and how much they enriched my life rather
- 19:04than complaining about how hard I had to work to pay for this or
- 19:07pay for that, or work long hours that they can go to school or
- 19:11camp a Shiva, whatever. Like a lot of it really is about
- 19:14family. That's what people seem to
- 19:17prioritize more than almost anything else.
- 19:20So what the heck's wrong with us?
- 19:21Why don't we do that? Why can't we get to know their
- 19:23lives and not have regrets? Well, I think that's part of
- 19:27part of what gets us up in the morning is that we don't want to
- 19:30think about death, right? Because I'll tell us that it's
- 19:33better to go to a House of Shiva than a House of feasting
- 19:37because, you know, that's what helps us remember.
- 19:41Obviously if that was an easy thing for us to do, we wouldn't
- 19:43have to be told to do it. I suppose, but it I just feel
- 19:48that people say hindsight is 2020.
- 19:50I just got off the phone with it as Shyla from a couple in
- 19:53America that is going through a tremendous amount of pain
- 19:55because of their their child is is not doing well from kite wise
- 19:59and is trying to marry out of the family.
- 20:02And they were in a tremendous amount of pain.
- 20:03And one thing that they said over and over to me was, you
- 20:06know, we wish we made this decision or that decision and
- 20:08it's our fault, which I which I don't think it is at all, but I
- 20:11digress. The point that I'm trying to
- 20:12bring out is they kept saying, well, hindsight's, you know,
- 20:15it's 2020, so that well that, that maybe, maybe so.
- 20:20But that's not how life works. But that is how life works when
- 20:22it comes to this thing. Meaning, if everyone is telling
- 20:24us we have like people at the end of their lives, I feel are
- 20:27like they're, they're oracles in a way.
- 20:30They're telling us at the end, look, this is what really
- 20:32matters. Trust us, we can tell you
- 20:34because we're there and we're not listening.
- 20:37Why are we not listening? I mean, I think for for a lot of
- 20:40these folks, the barriers are down.
- 20:41I think a lot of us put up, you know, kind of like protective
- 20:44barriers are against ourselves. You know, we have an image that
- 20:46we think we want to convey. I'm this kind of person.
- 20:49I'm that kind of person. And what I really always liked
- 20:51working with older people, you know, is certainly when they're
- 20:54dying, is that the barriers are down.
- 20:56There's no facade. You're getting the real deal.
- 20:59You're getting their unvarnished opinion.
- 21:01They're not afraid to tell you, you know, what it is.
- 21:03I mean, I had a lady I remember I used to see, you know,
- 21:05sometimes I would go see her on Fridays.
- 21:07A Jewish woman, not necessarily from, but very, you know, old
- 21:12school, what I would say, old school conservative, you know,
- 21:15and she would say, did you bring her wife flowers this week?
- 21:17Did you bring her flowers for Shabbos?
- 21:18Did you take her out to eat this week?
- 21:20You know, like she would hold me accountable for kind of like my,
- 21:23you know, my actions. And, you know, I think that the
- 21:29big part of it is that we don't necessarily want to think about
- 21:31it that way. If we would, if we would really,
- 21:34to be honest, I think if we would walk around all day
- 21:36thinking that any moment could really be our last minute on of,
- 21:40of, on life, of earth, on earth of life, you know what I mean?
- 21:44I think I think we wouldn't be able to really function.
- 21:46Why? I think, I think we have to have
- 21:48this health. Yes.
- 21:49Have you, have you never been to Disney?
- 21:52Have you never been to Disney World?
- 21:53Yes. Is that what you're saying?
- 21:54It's funny the. Last you know, you know you you
- 21:57know the trip's gonna end eventually, right?
- 21:59You know, it will end eventually.
- 22:01Yeah, yeah, yeah. It's been a while.
- 22:05But I think a lot of people don't can't think that way.
- 22:07I don't think if you, if you really think about statistics
- 22:11and safety, I mean, first of all, no one would live in artist
- 22:13role. No one would live in New York
- 22:15City. You wouldn't certainly wouldn't
- 22:16want to get on a bus anywhere in New York City or artist role,
- 22:19right? And like, you know, you'd be
- 22:21walking around as. AI love you Yossi cause 'cause
- 22:23you seem like a wise man and a fellow Jew but I super disagree.
- 22:28OK. I try to think about death
- 22:30often. Well, in your life.
- 22:32I think you're in the minority, Robert Dorfman.
- 22:35Well, perhaps, but perhaps it's part of the minority that that I
- 22:39should be proud of and not alt Skyva, but because I'm doing it
- 22:42right. One of the things that I,
- 22:43there's two reasons I think about death.
- 22:45I'll share with you something very personal. 1 is that death
- 22:47still haunts me. And throughout the years, it
- 22:50haunts me less. And I find that things that
- 22:52haunt you, that more you, you sweep them under the rug, the
- 22:56more they just fester. So you need to confront the
- 22:59things that that scare you the most out.
- 23:01I'll share a quick story. When I was I was severely
- 23:04injured a horrible back injury years ago and I was confined to
- 23:08my bed. I was in the hospital 7 times
- 23:10and needed this like experimental surgery but I wish
- 23:13I'm out of it now but I will. I had to get a believe it was a
- 23:17cat scan on high level like high doses of morphine.
- 23:22It had almost no effect and to stay still was insanely painful.
- 23:26In any event, they did it and I was screaming and in like this
- 23:30horrifying pain that felt like torture.
- 23:32And ever since then, well, for a period of time, I, I became
- 23:35claustrophobic. I didn't want to be
- 23:36claustrophobic anymore. So instead of being scared about
- 23:39being claustrophobic, I went with my son.
- 23:41I mean, went to the Barkova caves here in Bachemish.
- 23:43I'm not sure you've ever been, but Barkova, who led the
- 23:46rebellion after the destruction of the Second Temple.
- 23:49So he created a whole bunch of catacombs underground and he had
- 23:52this guerrilla force and the size of these like little
- 23:56tunnels that they made underground for this guerrilla
- 23:58warfare. You cannot stand in it.
- 24:00You can maybe crawl in it. And people back then were a bit
- 24:03smaller. So if someone in front of you
- 24:05stops, you are dumb. If, if, if both sides collapse,
- 24:08you are for sure dead. Like there's no that you
- 24:10wouldn't. So I remember shivering, forcing
- 24:12myself to do it, but I did it and three minutes later I wasn't
- 24:16scared enough scared of it anymore.
- 24:17But I, I do think that, that it is better to, to directly, to
- 24:21directly face it. So that's one reason.
- 24:22But the next reason is that it reminds me to cherish every
- 24:25moment because that moment will come again.
- 24:28So I live in RT Thrall in spite of that danger.
- 24:31And sometimes I will, I will make decisions in spite of the
- 24:35fact that it might not be the safest for me in a variety, you
- 24:38know, of, of different things. Like I partially tore my ACL and
- 24:43my kid was really dying for me to jump on the trampoline with
- 24:45him. And it meant something like very
- 24:47much to him. So I jumped on the trampoline
- 24:49and I was out for a day, but I knew that he really needed it at
- 24:52that time. So no, why can't?
- 24:54Why shouldn't we, You know, you're the expert.
- 24:56Why shouldn't we think about death more?
- 24:58And instead of it being with him, like, Oh my gosh, that's
- 25:00the end, you know, why can't it just be our we?
- 25:02Should let me be clear, I think we should I think you're right
- 25:05and I think that people who've had experiences like you have
- 25:08definitely have a different experience than many people
- 25:12People have never experienced scares or been afraid of losing
- 25:15something or been in a hospital setting for a while.
- 25:19You know, there's, there's just they don't necessarily get it
- 25:22that life is precious. Life is short.
- 25:24Take advantage of it while you can.
- 25:26You know, I think most people can't simply because the fact
- 25:29that they would be just this crippled, this crippling fear
- 25:33that many people would have of it.
- 25:34I mean, you look at the way people don't want to say the
- 25:36word cancer, You know, they're afraid of can get it.
- 25:39They're afraid of iron horror. I'm, I'm not sure exactly what
- 25:41the reason is, but I think a lot of people just don't necessarily
- 25:46have that ability to sit in that fear that any moment this could
- 25:53be it. So if not having the ability is
- 25:57the issue, why not go through training in order to gain that
- 26:01ability? And maybe that's what's that's
- 26:02what's necessary. I just feel that it's so again,
- 26:05maybe it's the ignorance, but I feel so blinding to go through
- 26:07life and not be thinking about that.
- 26:08Every moment is so special. Yeah, and yet people don't,
- 26:13right? They still spend all this time
- 26:15at the office. They work harder and harder and
- 26:17never see their kids and never take vacations.
- 26:19And then they're busy with a million things, right?
- 26:22I mean, yeah, it's a really great point.
- 26:24I I think that resilience is a really amazing thing for people
- 26:29to have. I think if we would train
- 26:31everyone on how to be resilient and how to face the challenges
- 26:34that they're going to encounter in life on a regular basis, you
- 26:37know, sure, everyone would be stronger and and healthier and
- 26:41able to face whatever challenges life throws their way.
- 26:45But sometimes, you know, people need to have those experiences
- 26:48just kind of show up and be presented with them for them to
- 26:51really find out what their coping skills will look like.
- 26:57Yeah, but YESSI, why can't we? Want to wish bad things on
- 26:59people? That's that's exactly, that's
- 27:02exactly what I was going to say. So let's flip it.
- 27:04Why don't we have Yessi Blyberg? OK, go up now.
- 27:07We have him on. Why can't we say social workers
- 27:10want you to think more about death?
- 27:12Why can't we do that? All right, I'm in fourth.
- 27:15Let's do it. Let's do trainings.
- 27:17I'm serious. I don't think, I don't think
- 27:20it'd be so bad for people to have seminars where instead of
- 27:22confronting death is like God forbid, when their grandparent
- 27:26or or parent or or God forbid child, you know, gets some sort
- 27:29of horrible accident or has cancer.
- 27:31And it's literally in their face without a moment's notice.
- 27:34Why not educate people more about death and heck, instead of
- 27:36just the, you know, that resiliency, which is important
- 27:39because everyone has to face death at one point or another in
- 27:42some fashion. But on top of that, you'll get
- 27:43all of the gains of, you know what?
- 27:45Death is real. I should be thinking a lot more
- 27:47about my life. Yeah, I yeah, it's a good point.
- 27:49I mean, I know Kaimeru him from the Aguda is doing some work,
- 27:53you know, and and raising awareness of thinking about it,
- 27:56even if it's, you know, more in terms of having advanced
- 27:59directives ready and and that people should know what
- 28:01decisions to make. Yeah, good also has a program
- 28:04called Zahav where they're helping people learn about some
- 28:07of the challenges of getting older.
- 28:09I mean, so there is I think now more than in the last 10-15
- 28:14years, more of an awareness that way we have to start thinking
- 28:17about this some of it from the more practical aspects.
- 28:20Sure, but also just some of the ideas that, you know, we we need
- 28:24to kind of raise awareness that we're not going to stick around
- 28:27forever. You know, we need to, we need to
- 28:30live life that we're, we're not comfort.
- 28:34Yeah, all I'm saying is that I feel like that should be
- 28:36standard. I don't think that that you
- 28:38should have to call up the good and say, hey, where's this
- 28:41workshop? I feel that US is Ribonim and
- 28:44and perhaps, you know, the social work field and
- 28:46psychologists and and parents. I think we should be like, I'll
- 28:50tell you, growing up, my father spoke to me about death fairly
- 28:52often. My father is not afraid of death
- 28:53at all. And he does a lot of things
- 28:55within the community of death, which I'll let him keep his car
- 28:59and they will take it from him. But I felt that it was like, so
- 29:03it's so critical in the formation of the adult that I
- 29:05became. I do think that it's for our
- 29:08viewers out there. I do think that it makes sense.
- 29:10If someone would set up an initiative to really introduce
- 29:13death in a much healthier way with very knowledgeable people
- 29:16like Jessie Blyburn, I think that would be a great.
- 29:18Let's do it. Let's start it here.
- 29:20You heard it here first, you know.
- 29:23Sure. OK, well, going back to speaking
- 29:25about people at the end of their lives.
- 29:26So you told me what older people say.
- 29:28What about younger people? What about children and
- 29:30teenagers? What do they say at the end?
- 29:35Time. I wish they had more time.
- 29:38That's what they tell you you. Know, I'll ask them like what
- 29:42would you want to do with your time?
- 29:44And the, the answers are still very much around revolve around
- 29:47the family. I wish I could spend more time
- 29:49with my family. I wish I can go to Disney World.
- 29:51You know, that's a common one. Kids want to go to Disney World
- 29:54with their families. Luckily, there's good
- 29:57organizations that have been able to make that happen for
- 29:59some folks. But the the idea that when time
- 30:03is finite and you recognize that it's finite, every small
- 30:08interaction becomes that much more meaningful.
- 30:10So if you talk about an initiative to kind of raise that
- 30:12awareness, right, I think that we'd have a whole next
- 30:15generation of people who, you know, maybe they're not so glued
- 30:18to their phones, maybe they're not so glued to their office
- 30:21devices, you know, maybe 430. All right, I don't need to be
- 30:24here anymore. I'm now going to sit with my
- 30:26kids and just ask them, tell me everything about your day,
- 30:30right? And that and that's what kids
- 30:31want. Kids just want that undivided
- 30:34attention from their parents and not to always focus on the
- 30:38illness, you know, the things they can't do anymore.
- 30:41But just that, that presence, that being there together can't
- 30:45put a value on that. Why do you think the common
- 30:49theme amount among kids is time and the common thing theme
- 30:53amongst older people is more time with family?
- 30:56Is it maybe specific when you're older because they know what
- 30:59they want that time spent on versus kids don't really know
- 31:02what's meaningful to them yet? Yeah.
- 31:04I mean, kids are still forming their identities.
- 31:06I mean, again, some of the teenagers that I've worked with,
- 31:08you know, they had a better sense of what they wanted.
- 31:10I mean, you know, whether it's, you know, a specific event to do
- 31:13something in particular. But certainly the younger kids,
- 31:15like they, they just want their parents sit and read them a
- 31:18book, you know? You know, that's something so
- 31:21simple. And I think some of the older
- 31:23folks, they've kind of seen what people want and they've realized
- 31:27they've missed those opportunities.
- 31:30You know, they've missed. Think about it, right?
- 31:33You know, we work so hard. We buy our kids this toy or this
- 31:37device, whatever. And like, what do they really
- 31:39want? They just want us to sit and
- 31:40read a book with them on the couch.
- 31:41That's so important. That's so wild.
- 31:43Just $0.00. And yet it's the most precious
- 31:47thing. And yet it's the most precious
- 31:49thing in people's times in lives.
- 31:51So they they never tell you. I really wish that I could eat a
- 31:54treat right now, or I really wish it.
- 31:57Happens, you know, Sure. Sure, OK, but in general I just
- 32:00want to spend more time with my parents.
- 32:02Yeah, that's it time. Find that so damning for
- 32:06parents, including myself? Well.
- 32:08Tell me about it. Because then you really know,
- 32:11meaning kids want a whole bunch of stuff and half the things
- 32:14they don't really want and you should give it to them.
- 32:16We'll make them sick. But if at the end the kids are
- 32:18all saying really mostly the same thing is that I just want
- 32:20you to read me a story, it's because that's all it is.
- 32:23That's it. They just want that want to be
- 32:24with their parents. Wow, that's amazing.
- 32:29OK, how about this, Let's switch it around.
- 32:31What do we need to know? End of life is complex, and you
- 32:34even shared earlier that people make all sorts of really crazy
- 32:38mistakes. So tell me some common ones and
- 32:40then maybe educate our listeners a little bit, including myself,
- 32:43of what we should be doing. How do you walk through a family
- 32:46member, a loved one through the through the end of life
- 32:49experience? Yeah, so great, great questions.
- 32:54You know, in, in terms of try to like answer this in some
- 32:59semblance of an order. So correct me or stop me if I
- 33:01start rambling. You know, more than anything
- 33:04else, I think that the awareness of time being finite really
- 33:10starts to sharpen what matters to people a lot more.
- 33:14Things just become a lot more clear in their focus.
- 33:18So certainly when someone is diagnosed with something that's,
- 33:22you know, life limiting or can be chronic, you know, some
- 33:26cancer diagnosis used to be like, you know, considered
- 33:28terminal diagnosis. You know, many are now
- 33:31considered chronic or treatable. You know, that we're not
- 33:34necessarily talking about folks in those kind of conditions.
- 33:38I mean, these are people that can live with these illnesses
- 33:40for many, many years. You know that's a sham, that
- 33:42there should continue to be more cures available for things.
- 33:45I. Mean, but you know, we're
- 33:47talking about people that have reached the stage where they're
- 33:49told either, you know, there is no more treatment available or
- 33:53treatment will start to do more harm than good.
- 33:56The thing that I really, I always encourage people to do
- 33:57first and foremost is to talk to a Rev, you know, whether it's
- 34:00their own Rev or whether it's, you know, some type.
- 34:05Because I, I think that we might have one sense of what we
- 34:08consider to be important and the secular world still has
- 34:12something else they may consider to be important.
- 34:14So, and by that I mean the the something called quality of
- 34:17life, you know, so for example, a doctor might not offer someone
- 34:23a treatment because they think, well, it's not going to give
- 34:28them quality of life, but holically it might give them
- 34:32more time and thereof might tell them to do it.
- 34:37So, you know, again, I remember hearing a shear years ago from
- 34:41Irby Weiner, from Eric Cicero, you know, he said like any
- 34:44treatment that will just bring in more suffering.
- 34:47You don't necessarily have to go and do it, you know, But what
- 34:51I'm saying is, to me, I always want people to have kind of a
- 34:54full picture and they should have, you know, Dashter involved
- 34:57in deciding if this is something that I should pursue further.
- 35:01Absolutely. So that's that's something I
- 35:03always tell people. So there's lots of organizations
- 35:07their own ribbon and like start somewhere.
- 35:09Don't just say, OK, I'm done because of, you know, quality of
- 35:13life. That's not necessarily like a
- 35:16sun that fits our hush guffa necessarily.
- 35:19Now one of the things that I do encourage people to do is to
- 35:23find out if whatever treatment they're doing or if they're in a
- 35:27hospital, if there is something called palliative care.
- 35:30Now, palliative care usually in a hospital setting, there aren't
- 35:33that many home based palliative care programs in America.
- 35:38There used to be more, but the idea of palliative care is you
- 35:41can receive curative treatment while at the same time focusing
- 35:46on maintaining quality of life. So living pain free, having
- 35:51symptoms managed, getting good pain medication at home etcetera
- 35:56or even in a. Hospital.
- 35:57Why is that? Why is that?
- 35:58Why is that not standard? The implication is that it's not
- 36:00standard. You know, it should be standard
- 36:03since one of the things that the Affordable Care Act did was make
- 36:07the palliative care option mandated in healthcare world
- 36:11but. Absolutely.
- 36:12I feel like that's an ABC thing. It should be.
- 36:15However, you know, you have to know that there are just a lot
- 36:17of people who are still resistant #1 because of they
- 36:20think that palliative care means we're going to, you know, give
- 36:23them a pill and they're going to, we're going to Doctor
- 36:24Kevorkian them, you know, we're going to physician aid in dying.
- 36:29That's very much not what it's about.
- 36:31And two, many of the people treating people who are at the
- 36:34end of life, again, they mean well, it's never malicious, but
- 36:40they don't necessarily think about it in the same way that,
- 36:45you know, you say would just be like AB CS, for example, an
- 36:49oncologist, They're very focused on is this treatment going to
- 36:52cure them? Is this treatment going to give
- 36:54them any kind of meaningful tumor shrinkage?
- 36:57You know, they're not necessarily thinking is they're
- 37:00not necessarily thinking, is this chemo going to make them
- 37:03nauseous? Are they going to lose their
- 37:04hair? Are they going to be
- 37:05uncomfortable? Are they still going to be in
- 37:07pain because of their chemo? It's just.
- 37:10What a massive OK but that's. I'm sorry but what you're
- 37:13telling me is ridiculous. I know you're just trying to
- 37:15explain the other side, but no. Is that not a prerequisite of
- 37:17giving someone medical advice knowing knowing the full
- 37:20picture? It should be educated.
- 37:22I wish I could tell you. I wish I could tell you it is.
- 37:24But that's, listen, I've been doing this a while.
- 37:26I could tell you these conversations are still
- 37:28happening. That's a massive failure in the
- 37:31medical system. It absolutely is.
- 37:33It absolutely is. So, you know, I think people,
- 37:39Sims used to have that slogan. The educated consumer is our
- 37:41best customer. I think it always, you know, I
- 37:44think it matters a lot that people go for second opinions,
- 37:48third opinions, you know, have full pictures of, you know,
- 37:52their medical team, ask questions, you know, is this
- 37:56really something that I'm going to have to do, I'm going to have
- 37:57to suffer with this treatment? Is there no other option?
- 38:00Or is there other way that I can still get comfort measures, that
- 38:03I can still get medication to keep me comfortable throughout
- 38:05this process? Does the does the insurance side
- 38:09of it ever give you trouble? Like if someone's under
- 38:11tremendous amount of pain and they could do something that
- 38:13will alleviate the pain, but the insurances will cover it because
- 38:15they know you're dying anyway. Not necessarily.
- 38:18I mean in America, you know, certainly the Hospice programs
- 38:20are all covered by Medicare, most private insurances.
- 38:24The only time that ever became an issue is when a lot of the
- 38:27home based palliative care programs that I was talking
- 38:30about, you know, they were basically billing not as a
- 38:32palliative care program, but as individual medical visits.
- 38:35And you and you also have a lot of doctors and pharmacies who
- 38:38don't necessarily have experience dispensing the types
- 38:42of medications that are needed to keep people comfortable with
- 38:45late stage illnesses like cancer or even heart disease.
- 38:49There's a lot of lot of illnesses and diagnosis that
- 38:52cause pain towards the end of a person's life and just not all
- 38:56doctors or specialists in how to manage that pain.
- 38:59So it's not necessarily limitation on insurance per SE,
- 39:03but it is, you know, a question of access to the right
- 39:06physician, to the right pharmacy.
- 39:09OK, so I know we're on the list of of what to do for us to help
- 39:14people that are going through the end of life experience.
- 39:16But I'm going to digress a little bit because what you just
- 39:18told me to still really to be honest, boggles the mind,
- 39:20disturbs me. What can we change in the
- 39:23medical system to make it a far more supportive for people at
- 39:25the end of life? We need to have open and honest
- 39:29conversations. Who's we?
- 39:32Well, let's say the medical establishment, physicians, nurse
- 39:35practitioners, P. As you know, I I say physics.
- 39:37Like conferences? Is that what you want?
- 39:40I think that, you know, I've been to some really great
- 39:42conferences on end of life care and, you know, they're not
- 39:46attended by primary care physicians in the community.
- 39:50You know, they're not attended by hospitalists.
- 39:51Very often the people who are the front lines meeting these
- 39:54people, you know, emergency room doctors, you know, they're
- 39:58they're not necessarily having these conversations.
- 40:01They're saying, oh, you know what?
- 40:02This person's at end of life. Let me get a palliative Dr. talk
- 40:05to him. It's just a, call it a
- 40:08fragmented healthcare system where you have just a lot of
- 40:12providers. And people just don't want to be
- 40:15the one to have that conversation, right?
- 40:17We talked about talked about people not wanting to confront
- 40:19death, their own mortality. A lot of healthcare workers are
- 40:22guilty of the same. You know, I don't want to talk
- 40:25about that. I don't I don't even want to say
- 40:26the word death. You know, you think about how
- 40:28many people just won't say the word death.
- 40:30They'll say passed, passed on, expired.
- 40:33So many different euphemisms to avoid saying the word death or
- 40:36dying. Have you ever been involved in
- 40:40back and forth with a doctor that the doctor just focused on
- 40:42one thing? You're just like, no, you're
- 40:43going to make this person miserable.
- 40:45Even spoken to them about this. Yeah, many, many times.
- 40:48Certainly in some of the hospital settings where I used
- 40:50to be involved doing liaison work.
- 40:53I remember, you know what? A doctor, one of the Hospice
- 40:56docs was recommending the use of morphine for a patient.
- 40:59And the other Doctor Who was there with the family said
- 41:03morphine. You're going to give him
- 41:05morphine? And he turned to the daughter.
- 41:06Don't you love your mother? What Yeah right like how could
- 41:13why why would you give no again morphine and and certainly at
- 41:16the end of life is used in very small doses it's it's used very
- 41:20you know it's not used to knock people out it's very effective
- 41:23in helping with pain management and also.
- 41:24Ensure. No, it doesn't matter.
- 41:26It doesn't matter the reason that shouldn't you know your
- 41:28reaction to? That kind of rationale is still
- 41:31there. Like you have a lot of
- 41:32physicians who are just still like morphine, you know?
- 41:34Don't you love your mother? All right, fine.
- 41:38We'll go back to what we can do. OK, so speaking.
- 41:41So what we can do is you can find another doctor if you're
- 41:44getting this reaction like, oh, I don't know about pain
- 41:46management. Find another physician, find the
- 41:48new PA, find the new, you know, NP.
- 41:50There's a lot of. But let's you know, because
- 41:52we're all going to love our our mothers and fathers and brothers
- 41:55and sisters and sons and daughters.
- 41:57So how many doctors like what should we be looking for?
- 41:59Who should we be looking for? How should we be looking for
- 42:01them? You want someone who can be
- 42:03honest and open and say here's what's going on here is the
- 42:06choices. Sometimes even if there is no
- 42:09choice, you know, if the person is offering Hospice, let's say
- 42:13right end of life care at home, it's not because I'm offering
- 42:17you Hospice because I think that's what you know, I would do
- 42:20for my mother because you know, she wants quality of life.
- 42:22It's looking at the big picture, looking at maybe the treatments
- 42:27that this person has gone through or maybe that what's no
- 42:30longer available that they're not a candidate for.
- 42:32This is why I'm recommending Hospice.
- 42:35It's not just, it's not just the absence of choice.
- 42:40It was a choice for necessary care, to keep people
- 42:44comfortable, to make sure that people's symptoms are still
- 42:47managed even at a time where maybe there really is no way to
- 42:51do anything to help, you know, cure them in the traditional
- 42:54sense. Managing symptoms, keeping
- 42:56people comfortable, that's a cure in its own right.
- 43:00When you ask people, you know, what's today like, how are you
- 43:03feeling today? What does today look like?
- 43:04Well, I feel better today. Well, what's better?
- 43:06Does that mean their cancer is cured?
- 43:07No, it just maybe means they're not in pain.
- 43:11They're able to get up. They're able to have a
- 43:13conversation because they're not writhing in agony like they
- 43:16were. Yesterday, would you recommend
- 43:18word of mouth a little bit? Also trying to like you could
- 43:21ask people in their past experiences who had a really
- 43:23good bedside manner and felt that was very knowledgeable.
- 43:27Yeah, absolutely. I mean, there's a there's, you
- 43:29know, they're great. Or like, for example, if someone
- 43:31needs a a mental health clinician in America, for sure
- 43:34they call, what's it called, Refua, right?
- 43:37They can get a referral to a really good mental health
- 43:40counselor. I mean, I'm sure there are
- 43:42already healthcare advocates and people out there in the
- 43:44community, but definitely, you know, let them keep a, a, a
- 43:48list. I'd say a Rolodex that sounds a
- 43:50little old fashioned. Who are the doctors who will
- 43:52actually have a really good conversation?
- 43:55You know, who are the doctors who are really good at curing
- 43:57people, but also who are the doctors are really good at
- 44:00giving people bad news that there is no more cure, but we
- 44:05can still treat them and keep them get get them comfortable
- 44:08and give them whatever time they have left to be as comfortable
- 44:11as possible. Right, right.
- 44:14OK, next on the list. Next on the list.
- 44:19Meaning I want to hear more meaning.
- 44:20OK, so I'm finding I'm speaking to Rob.
- 44:22I'm speaking to a doctor. How about how about more
- 44:24directed to the patient? I mean, God forbid if my father
- 44:27was passing, what should I be telling him?
- 44:29What's what's he looking for? I think you really, you want
- 44:34someone who is you want to, you want you want care that that
- 44:36fits what you're looking for in terms of honesty.
- 44:39You know you want someone who can give you the whole picture
- 44:42of. No, I'm, I'm talking about a
- 44:44personal level, like for example, my, so my father who
- 44:46has, who has walked through death with a lot of my relatives
- 44:49to help them in the end of life. So I asked him this question.
- 44:52He said that that people more than anything at the end don't
- 44:55want to feel that they're alone and that you're just going to be
- 44:57with them. So like what?
- 44:58What can we be doing as as the nucleus?
- 45:01Right. That's what, you're OK?
- 45:02Yeah, I always say presence is everything.
- 45:05Presence is everything. Presence is everything.
- 45:06Just be there, you know? Don't worry about what to say.
- 45:09Don't worry about saying the right thing.
- 45:11Don't worry about saying the wrong thing.
- 45:13Just be there. Obviously, if you broke the vase
- 45:15when you were five and you've never told your parent now, I
- 45:17think this is a really good opportunity to say it.
- 45:19You know, get all the truths out, be truthful, be honest, but
- 45:23just be there. Is that really best though?
- 45:27Like do you really want to tell your, you know, your dying
- 45:29parent you did something horrible to them?
- 45:31Do you really recommend that? Yeah.
- 45:34You know. Why?
- 45:35Because that's how you go through things together that
- 45:40kind of. Open.
- 45:41Open varnish. Truth is how you go through
- 45:45things together. You're not just like, OK, you
- 45:48know, like when my mother, I always say my mother, you know,
- 45:53not to be in heart. You know, I don't want to talk
- 45:55about anyone else's parents. But, you know, my mother, you
- 45:58know, imagine me sitting with her when she was dying, you
- 46:00know, and it's like, here I am losing my mother, but she's,
- 46:04she's dying. And you'd think on the one hand,
- 46:06like, it'd be really strange for me to tell my mother, you know,
- 46:09this is really hard for me because I'm losing my mother.
- 46:12And she's like, well, like, yeah, I know, but I'm dying, you
- 46:14know? Like, both of those could be
- 46:16true at the same time. And when you, you can, you know,
- 46:21we could have, you know, we could, you know, we did support
- 46:23each other through that process, you know, in a way that
- 46:27sometimes you see is very different from the, in the
- 46:29traditional healthcare setting where you have a patient in the
- 46:32room and a bed. They're identified as the
- 46:34patient. You know, the family can only
- 46:36visit 2 at a time, 3 at a time, you know, only a couple hours a
- 46:39day. Hospitals are, are getting
- 46:42better at this. But more and more people, you
- 46:45know, want to die at home. If we can bring the care to
- 46:49them, why not? Why not honor those wishes, You
- 46:52know, So having people at home rounded by their family on a 24
- 46:57hour basis, most people would want that.
- 47:02OK, so but the most OK that that's that's great advice.
- 47:05But the most important thing for family members and friends is
- 47:09just to be present. Be present, be honest, be open,
- 47:12talk about your feelings. It's hard for everyone if the
- 47:15person. Do they want to hear that?
- 47:17Do they want to hear how difficult it is for you to lose
- 47:18them? Yeah, they want to feel loved,
- 47:23but don't we all want to feel loved?
- 47:25Don't we want to? Feel that we matter, right?
- 47:27To someone. So what, what?
- 47:30What could be more powerful than you know, when a person is dying
- 47:33and their family says like, you know, look how much you mean to
- 47:35us. Right.
- 47:37Look how much you. Matter OK, how how about
- 47:39stupidity? What what do people do that are
- 47:42just like that? You've seen that it's just a
- 47:44either common mistake or, or Oh my gosh, please stop doing that.
- 47:47And and it doesn't have to just be for the yam, just have to
- 47:51just be for the nation. It could be for Rabunnam.
- 47:52Also, I'm sure rabbis make plenty of mistakes.
- 47:55The thing that I've, that I've seen the most that I, I think I
- 47:58like, I just want to like shake people out of it is focusing on
- 48:02stuff. So I can't tell you how many
- 48:05times I'll explain, I've seen people focus on and get upset.
- 48:09Like I was expecting this delivery of medication.
- 48:13It was supposed to come at 10:00 and it came at 11:30.
- 48:15So I'm going to make a big deal out of that.
- 48:17Or, you know, the doctor said he was going to raise this
- 48:20medication on, you know, for vitamins and I, I didn't get it
- 48:24and the pharmacy didn't deliver it.
- 48:25Like, just like let it go. It's not going to make a
- 48:28difference. You're trying to control the
- 48:31situation that you cannot possibly control.
- 48:35And so people tend to focus on that maintaining control.
- 48:41Mistake. Is that a mistake for the
- 48:42patient or a mistake for the family surrounding the?
- 48:44Patient. I'd say more for the family
- 48:45around them. You know, the patients realize
- 48:47you can't control everything. That's the one thing that
- 48:50they've come to realize very much at this stage of the game.
- 48:53But for a lot of family members, they still are trying to control
- 48:56the uncontrollable. You know, remember, they can't
- 48:58control the death. They can't control how sick
- 49:00their loved one is, but they can control and they think they can
- 49:03control. You know, when the doctor came,
- 49:05when the nurse comes, when this medication is delivered, how
- 49:08many hours a day they have a home health aide.
- 49:10Like end of the day, they're not going to remember any of those
- 49:14things. Focus on the presence.
- 49:16Focus on being there. Don't worry about this.
- 49:19OK? How?
- 49:20How about as rabbis? What?
- 49:21What mistakes are we making? Be very careful how I say this.
- 49:25Gosh, no, no, don't, no, don't. Be careful how you say it,
- 49:28because we need most are just like everyone else.
- 49:30And if we don't, then we're not good rabbis.
- 49:33You know, I, I think that there is a, a time where many rabbanim
- 49:36just also don't feel comfortable saying, yes, this person is
- 49:39dying, you know? And that's a problem.
- 49:43Yeah, I'll give, you know, I'm very blessed that I work with a,
- 49:46you know, locally, a wonderful firm physician.
- 49:49And, you know, so people will call and they'll say, you know,
- 49:52I have, we have to give fluids. We have to give fluids, you
- 49:55know, absolutely. And the doctor will say, like,
- 49:57look, this person is already so swollen.
- 50:01Giving fluids now in addition to being painful, you know, is
- 50:05going to start to do more harm than good.
- 50:06It will fill their lungs. They're not going to be able to
- 50:08breathe. They're literally already you
- 50:13know, they call it weeping edema because there's literally fluids
- 50:16just pouring out of the body as the body can't process it.
- 50:20I mean pouring out through pores literally.
- 50:24So, you know, sometimes it's OK to say odd con, you know,
- 50:31talking to the doctor before just giving up.
- 50:34Sock is so important with the doctor is from great.
- 50:38If the doctor is not from just explain what are your concerns?
- 50:42You know what are what what, how likely do you think you know
- 50:45what? How likely should the family do
- 50:47in an ideal situation? And then what happens if it's no
- 50:50longer an ideal situation? What are some of the limitations
- 50:53of the things that we can do to maintain life?
- 50:58Do you talk to your kids about death?
- 51:01Too often, yeah, they're all they're sick of it.
- 51:05But you know, have they grown from it?
- 51:06I'm sorry. Have they grown from it though?
- 51:10Well, I hope they know that if I ever am, you know, more
- 51:12affectionate than they want, it's probably because I had a
- 51:15rough day at work, you know, because that's what I will, you
- 51:17know, sometimes that's what you do, you know, you, you, you come
- 51:19home like my, my kids are already teenagers, you know, So
- 51:22it's like Tati, like what, what, what happened today, you know,
- 51:25like you. Are you giving me so many hugs?
- 51:27Yeah, you guys gotta, you know, exactly.
- 51:29It's like, and they're girls, so, you know, sometimes they'll
- 51:31go for it, sometimes not. But, you know, it's like you
- 51:34just want to hug your family that much more, to acknowledge
- 51:40that I'm going to, you know, give you my undivided attention.
- 51:44I try to spend time with each of them individually, you know,
- 51:47doing things that are fun for them.
- 51:51So, you know, I think that's something that they know that I
- 51:54really pull out of, you know, work trying to spend time with
- 51:58my wife. They always joke, you know, they
- 51:59remember the patient by name. I don't want to say her name,
- 52:02but I used to tell her last name.
- 52:03They. Oh, yeah.
- 52:03Yeah. Misses, you know, whatever.
- 52:05She would always tell me. Did you take your wife out this
- 52:07week? You know, did you buy her
- 52:08flowers? Your show advice was way up
- 52:10during that experience. Was way up at that point.
- 52:12Let me tell you, it's great. OK, this question I've been,
- 52:17I've been dying to ask you. No pun.
- 52:19Dying to ask. You are you afraid of death?
- 52:23No. OK, why are you not afraid of
- 52:26death? Well, I think, you know, like
- 52:29you said, if you have this awareness, you know, you got to
- 52:33be honest with yourself at some point, you know, am IA perfect
- 52:37Sadiq? Absolutely not.
- 52:38Is there going to be Denver Hedgeman of things they know
- 52:41that I did wrong? Yeah, absolutely.
- 52:45But at the same time, I think if you live your life trying anyway
- 52:49to to do the right thing, that counts for something.
- 52:55But why does that make you not afraid of death?
- 52:59I mean, I'm more afraid to leave my family more than anything
- 53:01else. But that's, you know, I'm,
- 53:03that's me worrying about them, not worrying about myself.
- 53:06Because I think death, like you said, is inevitable.
- 53:08It's going to happen to everyone no matter what.
- 53:12Is that why you don't fear it? Because because it's inevitable?
- 53:14Have you made peace with it because you've seen it so many
- 53:16times or or has nothing perhaps to do with your profession?
- 53:18Maybe you're just so comfortable with death because you know
- 53:21you're you're at the you're 5 rungs above me in the sense that
- 53:24I'm trying to think about it and not be afraid about it.
- 53:26It still haunts me. It doesn't haunt you.
- 53:29No, I just think it's it's kind of like a constant presence in
- 53:33my life. If it wasn't, do you think that
- 53:37would make a difference or you still wouldn't fear death?
- 53:39No, no, I I would definitely fear death if I wasn't, you
- 53:42know, if I was just one of these, I don't know, Jewish guys
- 53:44working in law, recounting real estate, I have no idea, you
- 53:47know? Yeah.
- 53:48That no death would scare me silly.
- 53:51Interesting. I think it's called an
- 53:53occupational hazard. I understand that, I hear.
- 53:57Is there anything you want to share with us before we go off
- 54:00the air? You know, like I was, I was like
- 54:05thinking when I, when I was thinking about our conversation
- 54:07we were going to have today, I was like thinking, you know, is
- 54:09there any wisdom to impart, You know, from all these people that
- 54:12I've met, you know, the thing that really just comes to mind,
- 54:16like you said, you know, you don't necessarily want to,
- 54:18again, I don't kind of agree and disagree and whatever and how
- 54:21most people should live their lives.
- 54:23But I you know, I think that if we think on a regular basis, the
- 54:27fact that no matter what time is short, you know, we should
- 54:32definitely make more of the time that we do have, you know, with
- 54:35our families, with our friends and an extra, you know, Seder of
- 54:39learning every day. If you haven't done the daf you
- 54:41and me before, you know, start now, you know, maybe after, you
- 54:45know, maybe after monochrist, I don't know.
- 54:48We just finished the schmacher. So you're going to last week of
- 54:50CISIS. We moved on back to more of the
- 54:52tougher stuff. You're.
- 54:54Going to be there for a long time.
- 54:56So, you know, maybe not now, but you know, do the DAF join the
- 54:59DAF, something like that, you know, in other words, make life
- 55:02count. Someone there's a quote, I'm not
- 55:05going to get it exactly right, but it's one of my favorite
- 55:07quotes ever, which is go something like this.
- 55:09Some people think that time is a predator, stalking, stalking
- 55:14every moment until it finds our last moment, ending our life.
- 55:18But I prefer to think time as a companion that reminds us to
- 55:22cherish every moment, because that moment will never come
- 55:24again. That's it.
- 55:27Yeah, yeah. See, you're worried about wisdom
- 55:29you're going to share today, and you shared a heck of a lot.
- 55:31So thank you so much for being with us here on the show.
- 55:33Yeah, thank you so much for having me.
- 55:35It's been a privilege, really. You got it.
- 55:37Take care everyone, see ya.