Latest / The KCNA2 & Rare Epilepsy’s Podcast
Understanding SUDEP: What Every Family Living With Epilepsy Deserves to Know with Dr. Nancy Musarra
What if one of the most serious risks of epilepsy was something you had never been warned about... even if you worked in medicine?
Dr. Naum Shaparin and Joanne Tzanos lost their 10-year-old son, Mark, just 12 days after his first seizure. Despite their medical backgrounds, neither had been warned about SUDEP (Sudden Unexpected Death in Epilepsy), a devastating reality that would forever change their family.
In this deeply personal episode of The KCNA2 & Rare Epilepsy Podcast, Dr. Nancy Musarra speaks with Mark's parents about their heartbreaking loss, the gaps in epilepsy education, and why…
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