Latest / The Trauma Therapist / An Invisible Illness with Harpreet Sangha
Transcript
- 0:00Speaker 1: Welcome to the Trauma Theriver's podcast. My name is Guamiferson
- 0:03Speaker 1: and I interview incredible people who share the story of
- 0:07Speaker 1: how trauma has shaped their lives. And a big thank
- 0:10Speaker 1: you for sponsoring today's episode goes to my guest and
- 0:13Speaker 1: our sponsors five four, three, two and one. Our folks,
- 0:24Speaker 1: welcome back to the podcast. Very excited to have as
- 0:27Speaker 1: my guest today, Heartpret Sanga Hartpret Welcome.
- 0:30Speaker 2: Thank you guys, thank you for having me on the
- 0:32Speaker 2: show very much.
- 0:34Speaker 1: We appreciated Thank you for that so. Harpret is a
- 0:37Speaker 1: survivor of extreme autonomic neurological trauma, including a post sympathectnomy,
- 0:43Speaker 1: bar reflex failure, and multiple head injuries against medical odds.
- 0:48Speaker 1: He's lived without traditional medication support, relying instead unconscious cortical regulation, resilience,
- 0:55Speaker 1: and self guided recovery strategies. Heartpret now shares his experience
- 1:00Speaker 1: is to help others facing trauma, offering real world insights
- 1:03Speaker 1: from both the physical and psychological edge. His focus is
- 1:07Speaker 1: on honesty, survival and showing that even in extreme cases,
- 1:11Speaker 1: there is a way forward or at Harpre before we
- 1:14Speaker 1: can go in here, share with our listeners where you're from.
- 1:18Speaker 1: Originally where you are currently.
- 1:20Speaker 2: I'm from Vancouver, BC, so I'm in the suburbs Surrey.
- 1:27Speaker 2: I was born in a small town, Williams Lake, BC,
- 1:31Speaker 2: but I've lived in Surrey, BC Delta for thirty years.
- 1:36Speaker 2: Thirty plus thirty years.
- 1:38Speaker 1: Okay, all right, so I have a feeling we're going
- 1:43Speaker 1: to be going on a ride here. How did this start? So?
- 1:47Speaker 2: I got stomped outside a club in nineteen ninety eight
- 1:52Speaker 2: and kind of like an attacked. Yeah, yeah, my friend was. Yeah,
- 1:58Speaker 2: my friend was getting jumped and I tried to piece
- 2:01Speaker 2: it out, break it up and ended up getting stomped
- 2:05Speaker 2: myself and going into cardiac arrest. And so I came
- 2:10Speaker 2: back from that and after that I had some you know,
- 2:16Speaker 2: adverse effects from the head injuries.
- 2:19Speaker 1: How old were you?
- 2:21Speaker 2: I was twenty twenty two.
- 2:24Speaker 1: Okay, so young guy. You stomped like was what was
- 2:29Speaker 1: your head? Stopped you?
- 2:30Speaker 2: But yeah, my head was stomped, so you know, I
- 2:35Speaker 2: had footprints on my forehead. My eyes were closed, shot
- 2:40Speaker 2: and bruised. So yeah, it was pretty It wasn't a
- 2:45Speaker 2: minor head injury. But I went into cardiac arrest and
- 2:50Speaker 2: came back before the paramedics could put the paddles on me.
- 2:54Speaker 2: I came back and then spent the night in the
- 2:58Speaker 2: hospital and they said I had different areas of brain bruising,
- 3:04Speaker 2: but let me go in the morning. And so there
- 3:09Speaker 2: wasn't that much known about brain injuries back then, right,
- 3:13Speaker 2: this was like nineteen ninety eight. And I went to
- 3:17Speaker 2: go play basketball like two weeks later, and I couldn't
- 3:21Speaker 2: catch the basketball. It went right through my hands.
- 3:24Speaker 1: Yeah, okay, so not too long ago or I'm only
- 3:28Speaker 1: talking what twenty seven years, Yeah, twenty seven years not
- 3:31Speaker 1: too long ago. But so you get released, are you
- 3:35Speaker 1: feeling How are you feeling when you get released?
- 3:39Speaker 2: I'm feeling like you saized and and you know, like
- 3:45Speaker 2: my eyes were still partially kind of shot. I was
- 3:47Speaker 2: just you know, I rested in bed for a week, right,
- 3:53Speaker 2: But I felt like, yeah, I have a high pain
- 3:57Speaker 2: threshold since I was a kid, So so I think
- 4:01Speaker 2: that's part of I started meditating at fourteen, so I
- 4:04Speaker 2: think that's part of it and part of its genetic
- 4:09Speaker 2: So I always bounce back. So I was like, oh,
- 4:12Speaker 2: I'll be better. Right in your mind, you think you're better,
- 4:15Speaker 2: You're going to get better, right, So I went to
- 4:17Speaker 2: go play basketball, like two weeks later and the ball
- 4:21Speaker 2: just went right through my hands. I couldn't catch it,
- 4:24Speaker 2: and I was like, yo, what's like, what's going on here?
- 4:27Speaker 2: Like something is wrong. And then as the months kept going,
- 4:33Speaker 2: then I retrained myself, my hand eye myself. I didn't
- 4:36Speaker 2: get really any medical help. And then what happened was
- 4:40Speaker 2: I lost my twenty twenty vision. It went I lost
- 4:44Speaker 2: some of the vision, and my hair started falling out,
- 4:49Speaker 2: and also my hands started sweating, and you know, all.
- 4:54Speaker 1: Right, let me I have to interrupt you here. So
- 4:56Speaker 1: when you said you're trying to catch the basketball, yeah,
- 4:59Speaker 1: I went through your hands. What was it your coordination
- 5:02Speaker 1: or you couldn't physically.
- 5:03Speaker 2: The hand eye coordination Like I would try to catch it.
- 5:07Speaker 2: My hands were going, but it just wouldn't. It just
- 5:11Speaker 2: didn't sense it. It didn't you know, the field of vision.
- 5:15Speaker 2: So yeah, so something was wrong, right, Yeah, And so
- 5:21Speaker 2: I had to retrain that. And then I also, like
- 5:23Speaker 2: I said, all those other things came with it. My
- 5:27Speaker 2: metabolism slowed down, hair loss, my hands, my hands started sweating.
- 5:33Speaker 1: So no doctor at this time, no thought like do
- 5:35Speaker 1: I need to check this out or no.
- 5:38Speaker 2: Nothing. I went to my family doctor GP about a
- 5:41Speaker 2: year later because my hand started sweating as I was
- 5:44Speaker 2: writing on the paper at home, and this had never
- 5:47Speaker 2: happened to me in my life before. And I was like, Yo,
- 5:50Speaker 2: all these things are happening to me. And I went
- 5:52Speaker 2: to my family doctor and I and I said about
- 5:55Speaker 2: the hand sweating as well, and he's like, oh, well,
- 5:58Speaker 2: you know there's a sympathetic to me. There's a doctor
- 6:01Speaker 2: you can go see, a thoracic surgeon. And I was
- 6:04Speaker 2: a lay person. I didn't know much, like you're just
- 6:07Speaker 2: the average person, right, So I went to the thoracic
- 6:10Speaker 2: surgeon and I explained to the thrastic surgeon, Yes, a.
- 6:15Speaker 1: Thoracic surgeon, is what's your specialty? You got me there,
- 6:21Speaker 1: But okay, I think thoracic.
- 6:25Speaker 2: Yeah, is that that would be in the in the
- 6:27Speaker 2: chest area, sympathetic nervous system, things like that, right, So
- 6:35Speaker 2: they would do repairs certain things on the spinal cord
- 6:39Speaker 2: as well. So, but don't quote me completely.
- 6:43Speaker 1: Okay, who's doing a quick Google search here? As A
- 6:46Speaker 1: thoracic surgeon is a medical doctor specializing in the diagnosis, preoperative, operative,
- 6:51Speaker 1: and post operative treatment of diseases affecting the chest.
- 6:56Speaker 2: Okay, So the chest go ahead.
- 6:57Speaker 1: So you go go to this doctor.
- 6:59Speaker 2: Yeah, and then and you know, I'm a lay person,
- 7:01Speaker 2: like I said, So I'm like, yo, I my hands
- 7:04Speaker 2: start a sweating, right, but I have all these other
- 7:06Speaker 2: things from the head injuries as well, like you know,
- 7:09Speaker 2: my hand, eye coordination, my hair loss, my vision. And
- 7:12Speaker 2: he's like, well, you know, did it happen before the
- 7:15Speaker 2: head injuries. I go, no, I never had it. That's
- 7:18Speaker 2: why it's kind of like weird off for me, right,
- 7:21Speaker 2: And he's like, well, we can do the sympathetic to me,
- 7:24Speaker 2: but you're gonna just what. So they go in and
- 7:27Speaker 2: cut your sympathetic nervous chain, right, And so there's different
- 7:33Speaker 2: ganglions and there's T two, T three, T four all
- 7:37Speaker 2: the way down the spinal cord chain, right. And so basically,
- 7:41Speaker 2: a sympathetic nervous system is your fight flight. You're adrenaline,
- 7:45Speaker 2: you're nora adrenaline, and so it targets many organs in
- 7:49Speaker 2: your body and parts of your body.
- 7:52Speaker 1: Right.
- 7:52Speaker 2: So he goes, well, we'll cut the T to We'll
- 7:55Speaker 2: cut your sympathetic nervous system, and your sweating will go away.
- 7:59Speaker 2: Your hands wedding, but you will not sweat from your
- 8:02Speaker 2: chest up right, and so right when I heard that,
- 8:07Speaker 2: I kind of got up because I was like, I
- 8:09Speaker 2: love my head sweating when I'm playing sports. So I
- 8:13Speaker 2: got up and I was like, oh, I don't think
- 8:15Speaker 2: so right, and I kind of walked out. But as
- 8:17Speaker 2: I was walking by the secretary, she was like, well,
- 8:19Speaker 2: you know there's an eight month wait, nine month wait, right,
- 8:23Speaker 2: and you know you should sign up because what if
- 8:26Speaker 2: you change your mind? And I was too relaxed and mellow.
- 8:32Speaker 2: I should have said no. I was like okay, fine
- 8:34Speaker 2: and signed up, and I forgot about the surgery, and
- 8:39Speaker 2: because my hands were getting a little bit better, things
- 8:41Speaker 2: were getting a little bit better from the head injuries,
- 8:43Speaker 2: and so my mom it was a Friday and the
- 8:46Speaker 2: surgery is on a Monday, and my mom reminded me right,
- 8:49Speaker 2: and I was like, oh, I'm going away from the weekend.
- 8:52Speaker 2: I'll come back and cancel it. So I ended up
- 8:55Speaker 2: canceling at twenty two hours instead of twenty four hours. Right,
- 8:59Speaker 2: So here in Canada, the medical system covers your surgeries, right,
- 9:06Speaker 2: And so he called me and he's like, well, we
- 9:09Speaker 2: can you canceled in twenty two hours not twenty four.
- 9:12Speaker 2: So your surgery is not covered. You have to pay
- 9:15Speaker 2: me yourself.
- 9:16Speaker 1: No.
- 9:17Speaker 2: Yeah, And so I was like, I don't have the money.
- 9:21Speaker 2: I can't remember exactly I think, but I don't have
- 9:23Speaker 2: that money. So he's like, okay, we'll reschedule you. So
- 9:28Speaker 2: I had no choice but to reschedule. So I ended
- 9:30Speaker 2: up rescheduling, and yeah, it was a worse and what
- 9:36Speaker 2: so I ended up getting the sympathetic to me.
- 9:39Speaker 1: Oh my god, and.
- 9:42Speaker 2: And it was a I can't even tell you. I
- 9:45Speaker 2: woke up from that surgery like I was dead, Like
- 9:48Speaker 2: I had been disconnected emotionally, because the sympathetic nervous system,
- 9:54Speaker 2: it just doesn't involve sweating. It involves a lot of
- 9:57Speaker 2: things in your body, including emotional and control to certain things.
- 10:02Speaker 2: And I was telling these doctors a year after because
- 10:06Speaker 2: I had to do research on my own. I think
- 10:08Speaker 2: the autonomic nervous system and the enteric nervous system send
- 10:12Speaker 2: signals back to the higher brain regions, right, hypotholomis things
- 10:17Speaker 2: like this. And they're like, no, no, it's only a
- 10:19Speaker 2: one way system. You know, you have no proof of this, right,
- 10:24Speaker 2: And I was like, okay, but now what are they finding?
- 10:27Speaker 2: The studies are finding enteric autonomic nervous system. It's a
- 10:31Speaker 2: relay system between the higher brain regions, right, so.
- 10:38Speaker 1: Hold on, hold on, heartbreate Jesus, this is crazy. So
- 10:44Speaker 1: you get this this, this, this surgery, and you wake
- 10:49Speaker 1: up and you said you feel like I felt like
- 10:52Speaker 1: you were dead. Say say more about what you were
- 10:54Speaker 1: feeling or not feeling, or what was going on for you.
- 10:58Speaker 2: So basically I would call it depersonalization. I didn't feel
- 11:02Speaker 2: like myself, like I was disconnected from emotions, but I
- 11:07Speaker 2: didn't realize. And I can go into this further. My
- 11:10Speaker 2: head injuries caused some barrel reflex response dysfunction, and which
- 11:16Speaker 2: is what? So that controls your blood pressure and your
- 11:20Speaker 2: heart rate. Their barrel receptors they sense the blood flow, right,
- 11:26Speaker 2: So I think the head injuries cause a little bit
- 11:29Speaker 2: of damage, and the sympathectomy finished off the damage. So
- 11:34Speaker 2: then I ended up with complete barrel reflex failure response
- 11:38Speaker 2: waking up from the surgery, and honestly, I should have
- 11:42Speaker 2: died on the table, but somehow my higher brain regions
- 11:47Speaker 2: kept me alive and brought me back just like they
- 11:50Speaker 2: did from the head injuries.
- 11:56Speaker 1: So how did you deal with this? Emotionally. I mean,
- 12:02Speaker 1: were you you said you were feeling depersonalization, Was there
- 12:07Speaker 1: any sense like of were you cognizant of what was
- 12:12Speaker 1: going on? Did this depress you or make you anxious
- 12:16Speaker 1: or what?
- 12:18Speaker 2: So basically I started meditating at fourteen, so I had internalization,
- 12:26Speaker 2: self awareness, self talk. I think a lot of that
- 12:31Speaker 2: helped me through those through the after side effects of
- 12:35Speaker 2: sympathetic to me. So they did try to put me
- 12:38Speaker 2: on certain medications, right, I just it didn't work and
- 12:42Speaker 2: I didn't want to be on them because they had
- 12:44Speaker 2: side effects. So I basically from two thousand to twenty
- 12:49Speaker 2: seventeen wasn't on any medication. And if you're asking me
- 12:56Speaker 2: if I felt different, yeah, I did. Was gone the
- 13:01Speaker 2: passion to a certain point. It was like I was
- 13:05Speaker 2: walking through life like a zombie. But because I had
- 13:09Speaker 2: such work on who and what I was since I
- 13:12Speaker 2: was a child, I was able to fight as best
- 13:15Speaker 2: as I could. And that's with gas lighting from the
- 13:20Speaker 2: medical system in Vancouver, straight out lying collusion to protect
- 13:27Speaker 2: the thoracic surgeon because he never should have operated on
- 13:30Speaker 2: me after the head injuries, right, And I'm not gonna lie.
- 13:34Speaker 1: To you guy.
- 13:35Speaker 2: It was like hell on Earth. Oh, because waking up
- 13:39Speaker 2: even so much pain, fatigue, it's not even I can't
- 13:47Speaker 2: even word it to tell you the truth. I used
- 13:52Speaker 2: to drop into hypothermia. So if I was exercising, I
- 13:56Speaker 2: would drop to thirty three thirty two degrees celsius temperatures
- 13:59Speaker 2: body temperare. And this could be with like hot external temperatures.
- 14:04Speaker 2: It could be like thirty five outside and I'm exercising
- 14:08Speaker 2: and I was still drop temperature. And there are things
- 14:14Speaker 2: I think my body and brain was doing to survive
- 14:18Speaker 2: and not to die. I would get attacks at night,
- 14:22Speaker 2: brain perfusion. So basically my brain is controlling autonomic functions,
- 14:30Speaker 2: my higher brain functions like the insula, the prefrontal cortex,
- 14:35Speaker 2: things like that, and I think a lot of it
- 14:36Speaker 2: has to do with the insula. So the insula is
- 14:42Speaker 2: basically your self awareness and your self interception.
- 14:45Speaker 1: Right.
- 14:45Speaker 2: So instead of my autonomic nervous system which is now damaged,
- 14:50Speaker 2: right shown by the National Institute of Health Testing. It's
- 14:53Speaker 2: in my book which shows complete barrel reflex failure catacholamine
- 14:58Speaker 2: failure during cold exposure, my higher brain regions took over
- 15:03Speaker 2: control and you can research this. It's never happened.
- 15:11Speaker 1: Happened before.
- 15:11Speaker 2: Never, no one's ever done it.
- 15:14Speaker 1: Wow, it kind of feels like neuroplasticity.
- 15:17Speaker 2: Yeah, I believe in neuroplasticity completely.
- 15:20Speaker 1: Certain parts of your brain are damage other things kind
- 15:24Speaker 1: of take away. So, okay, you'd mentioned you've mentioned, excuse me,
- 15:34Speaker 1: meditating from a very early age. Where did that start?
- 15:38Speaker 1: How did that start?
- 15:41Speaker 2: So I had you know, I was a nice person,
- 15:46Speaker 2: but a good guy, but I had a temper at times.
- 15:52Speaker 2: So and I the first time I started meditating, it
- 15:56Speaker 2: came very.
- 15:57Speaker 1: Easy to me. Well who told you to meditate?
- 15:59Speaker 2: I told myself, You're like, I got to get my
- 16:02Speaker 2: act together yet change. It's got to change a little bit,
- 16:05Speaker 2: because you know, I wouldn't get mad fast. But when
- 16:07Speaker 2: I did, it was like and it wasn't unjust anger.
- 16:12Speaker 2: It was kind of in defense of myself for other people.
- 16:16Speaker 2: I see. This is where when I got stomped in Vancouver,
- 16:20Speaker 2: I protected a lot of people.
- 16:22Speaker 1: Right, So are you a big guy? Well?
- 16:25Speaker 2: Fat now?
- 16:26Speaker 1: But I used to be bigger.
- 16:30Speaker 2: Okay, and so but when I even when I was
- 16:32Speaker 2: a young I was small, I would still protect people.
- 16:35Speaker 2: So say you were in school and you were getting bullied,
- 16:38Speaker 2: I didn't care who it was, I would protect you
- 16:41Speaker 2: right so and then so I've always been philosophical, and
- 16:45Speaker 2: then I just started meditating. I don't want to go
- 16:48Speaker 2: deep into it because people and I might not leave it.
- 16:52Speaker 2: But I saw my third eye the first time I meditated.
- 16:56Speaker 2: Supposedly I didn't know at that time. It wasn't until
- 17:01Speaker 2: the years.
- 17:01Speaker 1: This is a space where we talk about this stuff.
- 17:05Speaker 1: So interesting. It sounds like you're describing yourself as a
- 17:11Speaker 1: young kid who was.
- 17:13Speaker 2: Very emotional, emotional at times.
- 17:17Speaker 1: Emotional at times, yes, like very very emotional, very chill.
- 17:23Speaker 2: And relaxed ninety nine percent of the time. But if
- 17:27Speaker 2: I felt that I was there was injustice, there was
- 17:33Speaker 2: bullying going on, then the it would flip.
- 17:39Speaker 1: Interesting. So you have this experience, you have this surgery,
- 17:48Speaker 1: You have to deal with ramifications and the fallout from
- 17:55Speaker 1: the Canadian medical system, gas lighting and so forth. How
- 18:02Speaker 1: do things unfold for you? How are you able to
- 18:05Speaker 1: Are you able to go about your daily life?
- 18:08Speaker 2: I lost I lost jobs. I did the best I
- 18:13Speaker 2: could with whatever I kind of job I could do,
- 18:17Speaker 2: So whatever job that would be easier for me. I
- 18:21Speaker 2: did you know what are we talking about? Security jobs?
- 18:25Speaker 2: Call center somewhere where I could control the temperature, you know,
- 18:29Speaker 2: because our body wasn't thermal regulating where I could sit, stand,
- 18:34Speaker 2: stretch a bit. Right, So, because the medical system was
- 18:38Speaker 2: not helping me, I should have been dead. Right, Barrel
- 18:43Speaker 2: reflex failure, catacolman failure, all those things. I didn't know
- 18:47Speaker 2: at that time. I was guessing until my National Institut
- 18:51Speaker 2: of Health Tests in twenty twelve.
- 18:53Speaker 1: How does that come about?
- 18:55Speaker 2: So two thousand end up two. My surgery was June
- 19:00Speaker 2: two thousand. So I started doing research online and I
- 19:04Speaker 2: found other sympathectomy patients and these patients had sweating their
- 19:10Speaker 2: whole lives, mostly so genetic, and a lot of them
- 19:15Speaker 2: didn't like it. You know, if you're sweating twenty four
- 19:17Speaker 2: to seven profusely, you're not gonna like it, right, So
- 19:22Speaker 2: they go into the doctors and the doctors tell them, oh, well,
- 19:25Speaker 2: we can cut your nerves. They don't tell them the
- 19:29Speaker 2: side effects. All they tell.
- 19:32Speaker 1: Seems like such such a radical.
- 19:34Speaker 2: Thing to do, because you're just cutting part of the
- 19:37Speaker 2: whole system, right, So basically they don't tell them. They
- 19:42Speaker 2: tell them compassary sweating right over your body. They tell them,
- 19:46Speaker 2: gotchatory sweating. Right, those two things and Horner's syndrome. Horner
- 19:50Speaker 2: syndrome is your eye eyes even mine are a little
- 19:53Speaker 2: bit you know what I mean, but they can droop.
- 19:56Speaker 2: So what they don't tell these patients and these people
- 20:01Speaker 2: have dealt with excess to sweating their whole lives. And
- 20:05Speaker 2: this is three to five percent of the population. Guy,
- 20:08Speaker 2: And what they dealt with already. And I feel for
- 20:11Speaker 2: them is they dealt with that and then they go
- 20:13Speaker 2: to the doctors and they get lied to. And these
- 20:18Speaker 2: I have so hard for me because people have reached
- 20:22Speaker 2: out to me in these twenty five years. I created
- 20:24Speaker 2: a form with another woman in two thousand and three,
- 20:27Speaker 2: and that it's not around anymore. But I would get
- 20:31Speaker 2: these heartbreaking stories. People have committed suicide after sympathetic to me.
- 20:36Speaker 2: I just had one person last year who contacted me
- 20:40Speaker 2: and then I tried to help him, but he committed suicide.
- 20:43Speaker 2: There's been suicides. People don't leave their houses because they
- 20:46Speaker 2: can't throwma regulate their body. They've been disconnected emotionally their
- 20:51Speaker 2: from body to brain. Right, chronic pain, chronic fatigue. Right,
- 20:57Speaker 2: how are you supposed to deal with all these things?
- 20:59Speaker 2: And the thing is then When you go back to
- 21:01Speaker 2: the doctors, they tell you, oh, it's all psychological, it's
- 21:04Speaker 2: all in your head. There's no way a sympathet tom
- 21:07Speaker 2: me can do this. But if you do the research
- 21:09Speaker 2: on sympathy sympathetic nervous system, it innervates so many parts
- 21:14Speaker 2: to your body. How do they know where it's gonna
- 21:18Speaker 2: stop that deinnervation. They're saying it's just sweating, it's not.
- 21:23Speaker 2: My National Institute of Health report proves that because it
- 21:28Speaker 2: deinnervated my catachol means my adrenaline and my nore adrenaline
- 21:32Speaker 2: plus barrel reflex the blood pressure.
- 21:34Speaker 1: Right.
- 21:36Speaker 2: So the doctors have been lying for years and years
- 21:39Speaker 2: about sympathet To me, it's almost as bad as a lobotomy,
- 21:42Speaker 2: I'll tell you.
- 21:43Speaker 1: Oh my god. So let me just remind everyone I'm
- 21:47Speaker 1: speaking with harpret Sanga, so our pre How do things
- 21:57Speaker 1: evolve for you? Do you get to a point when
- 22:02Speaker 1: you think about committing suicide yourself?
- 22:05Speaker 2: Luckily I haven't.
- 22:07Speaker 1: You haven't. No.
- 22:08Speaker 2: I told you I have a high pain threshold. The meditation, right,
- 22:13Speaker 2: But I'm telling you it's hell to get through every day.
- 22:17Speaker 2: It is pure help.
- 22:19Speaker 1: Was there anyone did you reach out to anyone that
- 22:22Speaker 1: did help you.
- 22:25Speaker 2: So no system helped me. My parents helped me, and
- 22:30Speaker 2: they didn't understand, but they tried to as much as
- 22:35Speaker 2: they could. When I first started the forum, it was
- 22:39Speaker 2: a lady from New York who had hyperhydrosis. Me and
- 22:43Speaker 2: her worked together for that forum. And then there's been
- 22:46Speaker 2: other few people here there that have had sympathectomies that
- 22:50Speaker 2: we worked together and created ideas and try to get
- 22:53Speaker 2: the word out. There was one person who tried to
- 22:56Speaker 2: get the word out. His pen name on was Songboy,
- 23:01Speaker 2: and he created a website. It was called split Body Syndrome,
- 23:06Speaker 2: and then he said he got threatened by the medical
- 23:11Speaker 2: community after some years. I don't know if it's true
- 23:15Speaker 2: or if it's not true, but people have tried to
- 23:18Speaker 2: fight back after sympathetic to me. But there's just no
- 23:21Speaker 2: way to fight the medical system.
- 23:25Speaker 1: So what is your purpose now? What did you want
- 23:29Speaker 1: to do? What is your hope for speaking out, for
- 23:35Speaker 1: talking for coming on here?
- 23:38Speaker 2: Honestly, I want to talk to everyone. I want everyone
- 23:43Speaker 2: to know that you can fight through yourself unimaginable things
- 23:50Speaker 2: I have. I think neuroplasticity can work. You can work
- 23:55Speaker 2: on your brain body with meditation, I think there is
- 23:59Speaker 2: a to tap into the hypotholomists, the mid brain centers.
- 24:06Speaker 2: You can see monks studies on monks yogis that are
- 24:11Speaker 2: able to control their body temperature to a certain point
- 24:14Speaker 2: they're breathing, right. I have just gone past that. I
- 24:20Speaker 2: am controlling broken systems, So my systems are not even
- 24:27Speaker 2: there anymore, and I'm controlling it from higher brain regions
- 24:31Speaker 2: and you see. And that's why I want to get
- 24:34Speaker 2: this out there for everyone, not just sympathet to me patients,
- 24:37Speaker 2: not just for me, everyone who has an invisible illness,
- 24:41Speaker 2: especially because I had people who knew I had head
- 24:44Speaker 2: injuries who didn't know what the sympathet toomy was and
- 24:48Speaker 2: they mocked me and they laughed and they said, there's
- 24:51Speaker 2: nothing wrong with him, right, So this is for everyone,
- 24:56Speaker 2: And honestly, I want to partner with research and try
- 25:03Speaker 2: to get to where my brain and my body can
- 25:06Speaker 2: help people be a brain interface or whatever, because I'm
- 25:10Speaker 2: doing what brain interface companies want chips to do.
- 25:17Speaker 1: Now, obviously you have experience a lot of experience as
- 25:24Speaker 1: a meditator, are we talking? I mean I can imagine
- 25:30Speaker 1: where some people will be like, oh my god, you
- 25:32Speaker 1: know he's been doing this since he's fourteen. I don't
- 25:34Speaker 1: have six hours a day to meditate. Are you here
- 25:44Speaker 1: to advocate for the benefit and significance of meditation solely
- 25:51Speaker 1: or what?
- 25:52Speaker 2: I think? You can meditate whatever makes you feel peaceful.
- 25:58Speaker 2: Doesn't have to be just sitting and meditating. Right, Does
- 26:02Speaker 2: a song make you feel peaceful? Does going out to
- 26:05Speaker 2: the ocean and you know, watching the waves, looking at
- 26:09Speaker 2: the sky. It's not easy for me anymore. The first
- 26:14Speaker 2: time I meditated, yes, but now the pain and the
- 26:18Speaker 2: disconnection between brain and body has made it almost impossible.
- 26:22Speaker 2: But I still try. And if I can do this,
- 26:26Speaker 2: I think every person can do this out here. If
- 26:30Speaker 2: I can do the impossible without any medical help, almost
- 26:36Speaker 2: dying every night for a while because of brain perfusion
- 26:41Speaker 2: and the attacks because my blood pressure system is completely gone,
- 26:47Speaker 2: I think anybody can do it out here if they
- 26:50Speaker 2: really want to.
- 26:53Speaker 1: Are there? You talked about the Canadian medical system. What
- 26:57Speaker 1: about other countries their systems? They're physicians, any anyone working
- 27:04Speaker 1: in this area, So anyone sympathetic to yourself.
- 27:09Speaker 2: I wish there was. Doctor Goldstein. Did the National Institute
- 27:12Speaker 2: of Health Testing he's one of the foremost, foremost people
- 27:19Speaker 2: in autonomic nervous system disorders and Parkinson's, but he doesn't
- 27:25Speaker 2: come out openly and say that sympathetic to me should
- 27:30Speaker 2: be stopped or you know, these kinds of things. Most
- 27:34Speaker 2: of the governments don't care write medical systems, just write
- 27:39Speaker 2: you off. In Sweden, they had a group when I
- 27:42Speaker 2: first came on, actually in like two thousand that had
- 27:46Speaker 2: gotten it banned in Sweden, and it was the birthplace
- 27:51Speaker 2: of the keyhole sympathetic to Me, the one you go
- 27:54Speaker 2: through the underarm and it's a very small incision, so
- 27:58Speaker 2: they got it banned there. There's nobody that helps sympathete
- 28:02Speaker 2: to me patients.
- 28:03Speaker 1: Nobody Why What are some of the reasons, asarte from
- 28:08Speaker 1: what you shared, that someone would get or want a
- 28:11Speaker 1: sympathetic to me.
- 28:12Speaker 2: So there's excessive sweating, facial blushing, right, some people blush
- 28:19Speaker 2: for no reason, and also things like complex regional pain syndrome. Right,
- 28:26Speaker 2: those are the three that I mostly know of. Other
- 28:30Speaker 2: than that, there could be other ones that I don't know, right,
- 28:35Speaker 2: So those are the main three ones.
- 28:37Speaker 1: Jesus, your story is is just crazy. I mean, for
- 28:41Speaker 1: lack of a better expression, it's crazy and what you've
- 28:44Speaker 1: gone through, what you're going.
- 28:45Speaker 2: Through, guy, it's I'll tell you. I had empathy for
- 28:50Speaker 2: people and sympathy and I still do and I still
- 28:52Speaker 2: that's why I give back to humanity as best as
- 28:54Speaker 2: I can.
- 28:56Speaker 1: What I seen.
- 28:58Speaker 2: From people when I got in I just don't even
- 29:03Speaker 2: know what to put it into words like the medical
- 29:07Speaker 2: community and the government here in Canada. My parents are
- 29:11Speaker 2: from India and I was born in Canada though, and
- 29:15Speaker 2: there's a lot of corruption in India and you expect it,
- 29:18Speaker 2: but you would never in a million years. Growing up,
- 29:22Speaker 2: I thought doctors were supposed to be like untouchable, right,
- 29:27Speaker 2: Like you go to them for help and to have
- 29:31Speaker 2: them turn it on you and make you look like
- 29:34Speaker 2: the liar and gaslight you and basically say even when
- 29:38Speaker 2: I brought the National Institute of Health reports back to
- 29:41Speaker 2: Canada and went to go see neurologists endochronologists, they're like, oh,
- 29:45Speaker 2: this doesn't mean anything, it's all you're just making it up.
- 29:50Speaker 2: And I'm like, this is one of the top research
- 29:52Speaker 2: facilities in the world, right and you're telling me this
- 29:57Speaker 2: is made up. When I know bear reflex dysfunction, no
- 30:00Speaker 2: one has ever done this that I've seen research Like
- 30:04Speaker 2: they could have got they could have used me as
- 30:07Speaker 2: research to a certain point, and people still can. Right,
- 30:11Speaker 2: But now I'm not going to do it for like, yeah,
- 30:15Speaker 2: just for the sake of doing it anymore, right, because
- 30:17Speaker 2: I've been abused for so long, right, So, and like
- 30:24Speaker 2: because I can smile and laugh. A lot of people
- 30:26Speaker 2: think I'm not in pain, but I've always been smiling
- 30:29Speaker 2: and laughing my whole life. That's the way I think
- 30:32Speaker 2: laughing and smiling and being able to see the humor
- 30:36Speaker 2: in life still is part of the reason you can
- 30:38Speaker 2: still get up every day.
- 30:40Speaker 1: Yeah. Well, look, I appreciate you being here and I
- 30:48Speaker 1: I mean, it's unimaginable what you have gone through, what
- 30:50Speaker 1: you're going through. But I appreciate your Ah, you're I
- 30:56Speaker 1: mean you're you're your inspiration and what you're doing and
- 30:58Speaker 1: trying to get the word out for people. How do
- 31:00Speaker 1: people reach you? Can people reach you and learn more
- 31:04Speaker 1: about you and what you're doing?
- 31:05Speaker 2: Yeah, I have a website Archangel thirty one dot com, okay,
- 31:10Speaker 2: A R K A N G E L thirty one
- 31:13Speaker 2: dot com okay, And that will take you to my book.
- 31:16Speaker 2: And also I have a couple of YouTube videos. They're
- 31:20Speaker 2: not great. I'm just starting out, right, So that's what
- 31:24Speaker 2: it is. The name of my book is Life After Death,
- 31:27Speaker 2: Unbroken and still Standing and that that's on Amazon.
- 31:33Speaker 1: Okay, and we'll have that linked appear at the show
- 31:35Speaker 1: notes page at the Trauma Therapist podcast dot com. How
- 31:40Speaker 1: appreciate you being here.
- 31:41Speaker 2: Man, Oh, thank you very much for having me on.
- 31:43Speaker 2: It's from the bottom of my heart because no one
- 31:47Speaker 2: else has, you know, reached out and actually cared.
- 31:52Speaker 1: So thank you. Appreciate that.
- 31:53Speaker 2: We'll be in touch, all right, Thank you very much.
- 31:55Speaker 1: All Right, man, I have a great day. They are
- 32:00Speaker 1: not composier sto