Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / Autism In Girls Advocacy

Transcript

Autism In Girls Advocacy · Aspergers & Autism Podcast [The Aspie World] AuDHD

• 0:00
  What's going on? Welcome back to another Saturday
• 0:02
  live. I'm getting back into the swing
• 0:10
  of these. I know, like, we've had a couple
• 0:11
  of weeks where I haven't done these, which is a bit weird,
• 0:13
  right? So, I do apologize, but I'm back
• 0:15
  with another one. Another banging I'm recording
• 0:17
  this on the first day of world, Autism Awareness Week 2021.
• 0:21
  I'll go say 2020, and, and I am here with I'm joined by Fay, who
• 0:26
  is an Autism Advocate. She is also an author.
• 0:28
  And we have been talking on Instagram and apparently, she
• 0:32
  has quite an interesting story to tell, so yeah.
• 0:35
  It fades want to introduce yourself and tell us all about
• 0:36
  what you do. Yeah.
• 0:38
  Hi, I'm Faye. I'm 30 years old and I'm from
• 0:42
  Lawrence Avenue, which is in between Manchester and Liverpool
• 0:44
  up in the Northwest. I am a mom, I'm an author.
• 0:48
  I'm a business owner, I'm a student nurse and I'm an Autism
• 0:52
  Advocate outside of nursing. Like I say, I'm a mom and I do
• 0:56
  run a beauty business, which I've had for a number of years
• 0:58
  now. And outside of that, I do a lot
• 1:01
  of work bad in the autism spectrum.
• 1:03
  So I can't give too much away because I'm not allowed to say
• 1:06
  too much until he's out there. And I do help it in my local
• 1:10
  hospitals with helping them to become more autism friendly.
• 1:14
  I'm doing a bit on the children's Ward and I know a lot
• 1:17
  of things are getting put into place.
• 1:18
  I've had a few meetings there and I've been asked to do
• 1:20
  something else which I'm not allowed to talk about just yet
• 1:23
  and but again on the whole line of the hospitals trust, I've
• 1:26
  asked me to get stuck in with him with the new project that
• 1:29
  they've got going on and I've spoken universities.
• 1:33
  I've given talks and overall I just try and get stuck in with
• 1:36
  everything that I can and now Signed up to be a volunteer at
• 1:40
  my local National autistic society as well.
• 1:42
  So that's that's gotten underway as well.
• 1:45
  Which one is your local one? Which is your local Metals.
• 1:47
  As a warranty. They've got their own, I did
• 1:52
  one, I did a talk, I did the Chester ball.
• 1:55
  They did like a winter ball. It was talking at the Chester
• 1:57
  Winter Walk, so I thought it might be in some of the one
• 1:59
  because they're quite close to each other.
• 2:02
  Yeah, to be fair, I didn't know why it's not the wrong Branch.
• 2:05
  Until I started doing things like this.
• 2:08
  Quite sure myself, which is another reason I wanted to get
• 2:10
  stuck in and help out there because I think if I didn't know
• 2:13
  about it I don't know how many other people would know about it
• 2:15
  and it's in our area and just think it's a shame that people
• 2:17
  don't know about it. Definitely helped.
• 2:20
  Yeah. Yeah huge future one second.
• 2:21
  My dog wants to get under the blanket.
• 2:23
  Hold on. Don't workers children animals
• 2:29
  live. CVS something, isn't it?
• 2:30
  Yeah. So it sounds like you have your
• 2:33
  hands full which is a great thing because I always feel that
• 2:36
  busy people have the best to give because they are actively
• 2:40
  engaging their brains, right? And I feel like autistic people
• 2:43
  are busy people. So what would you say that your
• 2:46
  main focus in life is like what would you say?
• 2:48
  Like you know, the one thing that you kind of like you know
• 2:51
  you're one thing that you feel you're adding value to reality
• 2:55
  with. What would you say that this
• 2:58
  overall in general? I really what I hope to
• 3:00
  eventually gain is to just bring an overall bigger awareness for
• 3:04
  people on the autism spectrum and genuinely because I didn't
• 3:08
  get diagnosed. I was 27.
• 3:09
  So I went to box my adult life, you know, just being an outsider
• 3:13
  but not quite knowing why and when I did get my diagnosis,
• 3:16
  everything just made sense and and the reason I ended up my own
• 3:21
  book on all didn't was because when I did get it diagnosed, I
• 3:24
  tried to find information regarding And subject and kind
• 3:28
  of educate myself, really. And I was at College at this
• 3:31
  time and I had to be able to talk and I - don't we wanted to
• 3:35
  do anything that we were familiar with.
• 3:37
  So, I thought, well, you know, Asperger's is a great great
• 3:40
  Partners to time ago, actors and know about it obviously, with
• 3:43
  having it myself and so I started looking into it and I
• 3:46
  actually couldn't find any information out there.
• 3:48
  That me, it's sense and I thought if I don't understand it
• 3:51
  and I got it, you know, it's not what I hope for people who maybe
• 3:55
  don't It quite as much or want to understand it.
• 3:58
  If you've got family members on spectrum and everything that I
• 4:00
  did read was really scientifically long-winded and
• 4:03
  nothing really made sense. Yeah, I thought you know, that's
• 4:07
  where the idea of my book came from and so I wrote that and
• 4:10
  eventually I just want to get it out there and have the world
• 4:14
  understand that people think that there's a stereotype people
• 4:18
  are autistic and I Want to Break The Stereotype overall that is
• 4:21
  my main goal. I just want people to see that
• 4:24
  people who have autism Who are on the Spectrum somewhere.
• 4:28
  I just as normal as anybody else.
• 4:29
  Which, you know, we might just think a little bit differently
• 4:31
  or see things a little differently but were not any
• 4:34
  way, shape or form different as a whole.
• 4:36
  And I think, you know, a lot of people and meet me and I tell
• 4:38
  them that Glasper just the, you know, the moment the first thing
• 4:41
  is the shots and I think and then they say we don't look
• 4:43
  artistic things. Yeah.
• 4:47
  If I had a pound for every time I heard that Oh yeah.
• 4:52
  So what is like what's been your experience than with with autism
• 4:58
  and kind of like, you know, because you're obviously wanting
• 5:01
  to raise more awareness at like what is your been, your your
• 5:05
  experience in people's reaction to autism in general like what
• 5:08
  their knowledge and stuff like how do you, how do you feel the
• 5:10
  world currently understands autism?
• 5:14
  Personally from what I've done, my own research and when I've
• 5:17
  been to be people about it. A lot of people who don't know
• 5:22
  much about it as an aide on themselves, but they don't have
• 5:24
  family members are, they don't personally know anyone who's on
• 5:27
  the Spectrum, have the same Outlook as the genuine stereo.
• 5:31
  Tiger was stupid. We have a certain look, we won't
• 5:35
  get anywhere in life, you know, they feel sorry for a long
• 5:38
  moment and have sympathy for us and they said that the same kind
• 5:43
  of out. Because, you know, they just
• 5:44
  tend to feel a bit, but just sorry for his really overall and
• 5:47
  it's shaking because those are socks, you that do are things
• 5:51
  with people on the spectrum of a completely different Outlook
• 5:53
  there. No, it's not.
• 5:56
  That is what's out there. Then that's what I've come back
• 5:59
  to regarding the information. Not being so clear, and being so
• 6:02
  stereotypical that, it's just becoming a bit calm more
• 6:05
  complex. It needs to be because people
• 6:08
  aren't getting direct information.
• 6:09
  It's like they just think, personally from what wipes, red
• 6:13
  and Myself definitely. I mean like you know as being a
• 6:17
  female on the Spectrum as well. I feel like, you know, there's
• 6:20
  this whole idea that a lot of people believe that females
• 6:23
  don't, you know, aren't on the Spectrum which is such a bizarre
• 6:26
  like it's an old, it's an old theory that came from Hans
• 6:28
  Asperger from back in the 1940s when he because he only studied
• 6:31
  a little boys on special so it was this whole kind of like myth
• 6:35
  that kind of carried on you know how do you do you find it even
• 6:39
  harder because you are female, I'm presuming that you got times
• 6:42
  Phi as a female Well and like, you know, I'm sorry I didn't
• 6:46
  mean to presume. Is it like, what are your
• 6:48
  pronouns? so again, what pronouns pronouns
• 6:54
  to use is she her Oh okay, so sometimes I just I just get I
• 7:05
  don't want it kind of find anybody by saying like oh you
• 7:07
  know your family, you may not identify as really no genders.
• 7:10
  I'll see a fluid thing. So, you know, being it, you
• 7:14
  know, a young female on the Spectrum.
• 7:15
  Do you feel like this extra added kind of issues that
• 7:18
  you're? There's more pressure on you to
• 7:20
  kind of work harder because this whole like, it's horrible.
• 7:25
  I feel like I'm yeah, I feel like doing this doing this kind
• 7:32
  of like this work that you're doing and I like putting the
• 7:34
  book out which we'll get to in a sec and and and having these
• 7:37
  conversations and do putting stuff on your Instagram, which
• 7:39
  I've been falling now for it for a while, and it's quite good
• 7:43
  because you're being kind of open and raw and one of the
• 7:45
  things I like to do with my channel is kind of just be open
• 7:48
  and just have the ability to just share, you know, you know,
• 7:53
  no uncensored, just share it as it is and hope that people can
• 7:56
  relate, you know, So I think what you're doing is super
• 7:59
  important and super valuable and I encouraged it with
• 8:02
  everything's of I wanted you on the show.
• 8:05
  So the book do not talk, I downloaded the book on Kindle
• 8:09
  and before you get, I'm going to ask you to explain a little bit
• 8:12
  about the book and tell everyone what it is.
• 8:13
  I'm gonna get it. But I I downloaded it and I was
• 8:17
  reading it on my iPhone and the first thing that strikes me
• 8:21
  about the book is that it's very much a it's almost like I'm
• 8:25
  reading a text message conversation that you and I
• 8:28
  would be having like that's how the flow of it seems, right?
• 8:32
  I mean, was that intentional? Is that how you tried?
• 8:35
  Like, yeah. So as I was saying before
• 8:39
  research, and everything was quite long winded and I just
• 8:43
  thought people spoke to you about.
• 8:46
  The people would say to me, blow the Spectrum, but one, you know,
• 8:50
  everything's too difficult to understand on the internet.
• 8:52
  There's not enough stuff out there for me to do my memory
• 8:56
  today. People were saying things or
• 8:58
  some people struggle with reading, some people struggle to
• 9:01
  read the long period of time a person's jaw and Quick.
• 9:05
  And so a lot of people that did speak to settle for spectrum
• 9:09
  because of x lines. There's no they might have
• 9:11
  family members who are on it and just want to understand them a
• 9:13
  bit more but they needed in general.
• 9:18
  And I got me thinking about, you know, I could write that would
• 9:22
  kind of give people the image and kind of as an inspection
• 9:27
  disordered a little bit more but in an easy to read manner.
• 9:31
  So what I did I actually spent a year Coming around with me in
• 9:36
  the pan and any time I go into a situation out for this is the
• 9:39
  kind of thing people were no I'll write it down.
• 9:42
  I did about the cause of the year and eventually sat down and
• 9:46
  undeniable together but actually so yeah, the books pretty much a
• 9:51
  collection of thoughts and experiences that I've gone
• 9:53
  through over the course of the year, a few bits of made in
• 9:57
  there for about when I was younger as well.
• 9:59
  All it's been everything. I put it into a simple easy to
• 10:05
  read format for everyone. Children meet your goals, which
• 10:09
  will highest and parents of things right, in that way
• 10:14
  because they said, they haven't got accomplished time.
• 10:18
  They took it in, and with it, not being so long-winded in
• 10:21
  complex. You've understood it becomes
• 10:24
  more apparent. Say to me, that they understand
• 10:27
  that a lot more than reading that than they have going to any
• 10:30
  meeting with, with Specialists, and, which is really nice.
• 10:34
  Yeah, yeah, that's that's really, really good and I felt
• 10:38
  like that as well and I don't apologize as well because
• 10:40
  there's some kind of like delay and and some interference in
• 10:43
  your video, so it is breaking up.
• 10:45
  So anybody listening on the podcast or watching on YouTube?
• 10:47
  I do apologize, but we're getting there, but this is
• 10:49
  valuable information. So there's nothing we can do.
• 10:51
  So, just persevere with sorry, and I feel like the yet having
• 10:55
  something that has a flow of digestion, through information
• 11:00
  content, like like your work in, that manner is super
• 11:02
  interesting. And it's quite Quite Innovative
• 11:06
  as well. I really liked it so Kudos on
• 11:08
  that. So the so tell us the title of
• 11:11
  the book and where can people actually get it?
• 11:14
  Yeah, it's part. Not be just limited edition
• 11:17
  inside the autistic by and it's on Amazon can get on Kindle or
• 11:20
  paperback cool. I will leave a link for the book
• 11:23
  in the description below and in the show notes of the video for
• 11:26
  anybody who's listening on the podcast.
• 11:29
  I got a Kindle version. Super super awesome.
• 11:31
  And it's a really really interesting book.
• 11:33
  So yeah definitely. I highly recommend checking it
• 11:35
  out and the idea of you know, phase taking like her
• 11:39
  experiences from a year to put together and I'll give it to you
• 11:43
  in a concise format that is life, you know.
• 11:45
  So if you ever want to like it a window, and somebody's life on
• 11:48
  the autism spectrum. It's great idea.
• 11:50
  I love it. So yeah, definitely check it out
• 11:51
  and we need more books like this.
• 11:52
  So get right in your second one for it.
• 11:57
  So, what is your next move? Like, what is your, like, next
• 12:00
  big thing? So, I know you're running like
• 12:02
  Instagram, and I'll leave a link for your social media.
• 12:04
  Our channels down below as well. So you can text me those layer
• 12:08
  and everybody can go follow you. If they want to, you know, learn
• 12:10
  more about your day-to-day. What is your kind of like,
• 12:13
  what's your next goal? What's your next thing?
• 12:14
  We're going to do? So next goal in generally, I am
• 12:22
  doing that at the moment that's the main Big Goal moment because
• 12:26
  it's quite time, consuming it takes a picture like this.
• 12:30
  And I have got to number eight years off to go with that.
• 12:32
  And but I do want to kind of move forward with the odds and
• 12:38
  I'm doing purely because I've been such a technophobe and
• 12:41
  social media for my entire life, but I do know and I've accepted
• 12:45
  that that is the way things are. And having to get a grip on
• 12:49
  that. So eventually I'm not sure the
• 12:51
  definite order but would like to eventually have my own YouTube
• 12:55
  channel at some point in the future, just to kind of show
• 12:59
  what it's like day-to-day living with autism.
• 13:01
  And again to show that it's not the idea that everyone's got
• 13:05
  again. Probably a bit like my book but
• 13:07
  a live version I suppose and we're not gonna be so difficult
• 13:11
  and you can see that I do go to work, I do have a nursing career
• 13:14
  and I can run a normal life. Yes.
• 13:17
  I have meltdowns. Yes, I have days.
• 13:18
  Where I shall offer? Yes, I Go mute sometimes.
• 13:21
  Yes. I struggle.
• 13:22
  But yes, I can conform in a normal society through the day.
• 13:27
  I could work. I can have a normal life and I
• 13:31
  just want people to see that side of it.
• 13:33
  Most people encouragement, who are on the Spectrum Moon, Maiden
• 13:38
  guide, knows jumbo. And maybe get the feeling that
• 13:41
  they might not get anywhere in Life or because they've got a
• 13:43
  label that people are acceptable to society and I just wanna show
• 13:48
  box. Not always, I had to get some
• 13:50
  people. You know, they do struggle the
• 13:51
  more than this and I am quite lucky.
• 13:54
  I feel is a bit of a double-edged sword that I was
• 13:57
  diagnosed late. Because I think back when I was
• 14:01
  younger and people who are on the autism, spectrum of school
• 14:05
  were treated differently as awful.
• 14:07
  It is to say that the really were extrude and its people and
• 14:13
  that was as much as it was, it would have been good to have the
• 14:16
  support. In places school earlier because
• 14:18
  I struggled a lot in school. Yeah I do feel that having it
• 14:22
  later in life. Made me a bit tougher and it did
• 14:25
  make me it poured me a little bit more because I like I said
• 14:28
  before I did not even know that when I was younger.
• 14:31
  I didn't know why I went through, you know been through
• 14:34
  hell and back through life you Grove, right?
• 14:40
  Absolutely, that's it. And when I got my diagnosis,
• 14:42
  everything made sense. So just kind of think that
• 14:45
  having that late diagnosis game of the chance to build myself up
• 14:48
  in my younger years strength, of my own.
• 14:51
  And I'm trying to work out who are one.
• 14:53
  Why did feel so different to society?
• 14:55
  Then when I got my diagnosis, everything made so much more
• 14:59
  sense and I was able to, then use it as a strength and
• 15:02
  personally, without having to Burgess.
• 15:05
  I don't think I'd have written my book, not because of the
• 15:07
  subject. I just mean, I think it gave me
• 15:10
  Naturals that wants to do better to show people that you can
• 15:13
  achieve just because you're on the autism spectrum.
• 15:15
  You can achieve things in life definitely did and it's so
• 15:19
  powerful what you just said I'm a super powerful encouraging in
• 15:21
  any young woman or young girl watching this now or hearing
• 15:25
  your voice is crackly as it may be to do this bad internet
• 15:29
  connection. It's do still super powerful
• 15:31
  super inspiring and I think that the work you're doing is is
• 15:34
  aspirational and it is much needed.
• 15:36
  So, thank you for that. Okay?
• 15:39
  So we're going to wrap it up because Zoom only allows me a
• 15:41
  certain amount of time to actually record these things.
• 15:44
  Is it anything you'd like to say before?
• 15:46
  We kind of wrap this up, it's been super interesting.
• 15:49
  I just like to thank you for having me on are given the
• 15:52
  opportunity. Because like I say is not much
• 15:54
  out there, people to see the normal side of all these women
• 15:57
  and the own stereotype side of it.
• 16:00
  So it's nice to you know I'd like being a thing as artistic
• 16:03
  as well. Don't think there's many people
• 16:04
  who have got much of a voice out there to do this what I want to
• 16:07
  do and so I do appreciate you. Thank you.
• 16:10
  No, it's my absolute pleasure. Thank you mean, you know, it's
• 16:14
  really nice. Okay, thank you so much guys.
• 16:16
  If you want to check out anything to do with Faye in the
• 16:18
  book and her social media, Channels which I think is just
• 16:20
  instrument maybe Facebook. So I will leave a link in the
• 16:23
  show notes and in the description of this video and if
• 16:26
  you're watching over on Instagram, then you can just
• 16:28
  click her app name in the description of this video and
• 16:30
  then you'll go through to her Instagram Channel.
• 16:32
  Alright guys. Thanks and I'll see you in the
• 16:33
  next one. Hey guys, thank you so much for
• 16:35
  listening to this podcast. If you haven't already, please
• 16:37
  share this with anybody and everyone who you think can get
• 16:39
  some benefit from it. And also I know a bunch of you
• 16:41
  guys who haven't already, subscribe to this podcast, but
• 16:43
  listen so please go over and subscribe to it now so you don't
• 16:46
  miss an episode. Also from hit me up on Twitter,
• 16:48
  it's at the Raspy world. The th e asked me spie and then
• 16:53
  World wo rld so that is be World.
• 16:56
  Alright guys thanks