36 ~ Navigating Life with a Systemic Auto-Inflammatory Disorder with such positivity with Ebonie Boucher
In this inspiring episode, I speak to Ebonie, who shares her incredible journey with a systemic auto-inflammatory disorder that has drastically altered her life. It all began in July 2018 with her first seizure, leading to hospitalisation and an initial misdiagnosis.
Ebonie takes us through the pivotal moment in March 2021 when she noticed a black spot in her right eye. What followed was a whirlwind of medical investigations, a 34-day inpatient stay with a stint in ICU, and the diagnosis of optic neuritis and autoimmune pancreatitis. This marked the realisation that her struggles were part of…
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