Latest / The STA Clinician Podcast / Ep235 'Healthcare For People With Learning Disabilities' - Reflection with guest Nicki Mansfield
Transcript
- 0:00Music.
- 0:13Episode 235 of the sports therapy association podcast
- 0:16my name is matt phillips creator of runshutlive.com and
- 0:20as always this episode is being recorded live on a tuesday
- 0:23on the sports therapy association youtube channel right then so here we are
- 0:29we have recorded live 234 episodes of the sports therapy association podcast
- 0:35now and they're all out there free for your education and your professional
- 0:39development and listening pleasure.
- 0:41And we've decided, I say we, I've decided that it's time to take a pause from new weekly guests.
- 0:47And it's been on my mind for quite a long time because I'm just conscious,
- 0:52I believe anyway, that I'm hopefully the conduit of some amazing information each week.
- 0:56And it's got to say, I'm just guilty of putting another one on there because
- 1:01it hasn't been enough time given to the previous one.
- 1:03And that happened, that's been on my mind for quite a long time,
- 1:06probably two out of the five years.
- 1:07And and with the last final episode of series
- 1:10that we did of working with athletes with disabilities i thought brilliant
- 1:13this is it this is this is the pinnacle and now we're
- 1:16going to pause and we're going to have that magic word which hopefully is great
- 1:19clinicians you're all aware of which is reflect which is why what we're doing
- 1:23from now onwards for the unforeseen future don't know how long it's going to
- 1:26go on for that depends on you guys but we're going to be i'm going to be inviting
- 1:30you soft tissue therapist to pick one past episode that particularly affected your daily practice.
- 1:38And I'm going to invite you to come in to the show and have a chat about it.
- 1:43Now that sounds easy, doesn't it? Especially when you're just a gabber like
- 1:47me who goes on forever without thinking about what the next thing is going to be.
- 1:49But it does take confidence and it actually is a really pleasant experience
- 1:54for people who've come and done it. It gives you a real sense of confidence.
- 1:57It's one for the bucket list. And also obviously it gives you a chance to talk
- 2:01about yourself, which is great for networking with other therapists,
- 2:03for collaboration, and also for clients
- 2:06as well. It's something you'll be immensely proud of, I promise you.
- 2:09And it's something where you can have clips of and all that sort of stuff.
- 2:11So if you are interested in being on the show, then obviously you need to have
- 2:17listened to the podcasts and you need to choose one. Let me put this on full
- 2:20screen for the people who joined us live.
- 2:22You need to have chosen one episode, which you feel has affected you in daily practice.
- 2:28And then you let me know about that. We have a chat. I just have to kind of
- 2:31like check you're not sort of inappropriate for the show.
- 2:34There's only about five people I think I can give that tag to.
- 2:38And then we do it. You come over half an hour or so, and we have a nice little chat.
- 2:42But essentially, it's about you and how that episode has affected your practice
- 2:46as a soft tissue therapist.
- 2:49So yeah hit me up on social media or matt at one check live.com or if you like matt at the sta.co.uk,
- 2:55just find me you know you can find me i'm the a team so do
- 2:58that it'd be lovely i've got my bookings up until mid-may so
- 3:01thank you to everyone who's signed up so far but if you're kind
- 3:04of umming and ahhing then let me know even if you're not very sure about it
- 3:07let me know and we'll have a chat a zoom call or something just to set
- 3:10your mind at ease because if you're a soft tissue therapist we want
- 3:12to hear from you if you work in healthcare if you're this kind of person who
- 3:15wants to help people then that's it that's the
- 3:18prerequisite for the show see it there you
- 3:20go right and talking about people who want to help other people in a wonderful
- 3:24way the guest kicking this off tonight is going to be the lovely nikki mansfield
- 3:30of triple m therapy a lot of you regular listeners will know nikki because nikki's
- 3:34normally the first through the door and in fact i'm sure we'll mention tonight
- 3:38about her discovery of the podcast and what it meant for her and that of stuff,
- 3:41because it's exactly what I hope in my dream is happening to listeners out there.
- 3:46And Nikki has chosen an episode to reflect on tonight, which is actually going
- 3:50to be, it was aired first on the 21st of February, 2023, which is lovely, a bit of nostalgia.
- 3:56It was episode 137, in which we had guest Alistair Beverley,
- 4:00the learning disability physio, talking about healthcare for people with learning disabilities.
- 4:06It's an amazing episode. And the other reason for this reflection series is
- 4:09not just to hear from Nicky, but also hopefully that will inspire some of you
- 4:12to go back and either re-listen to that episode or just maybe you missed it.
- 4:16Maybe you're new to the podcast and you just want some signs on where do I start with 234 episodes.
- 4:20And hopefully this will give you some ideas.
- 4:23And that's it. Right then. So we're going to try and keep it short.
- 4:26So if you have joined us live, just a few hires to people who have joined us live.
- 4:30Isn't it strange not seeing Nicky Mansfield's name there, first of all?
- 4:32I'm kind of looking, where's Nicky?
- 4:34So Charles Allen, thank you. You're the first thing to do, I think.
- 4:37So thanks for coming. If you do join us live, then we bring your name and question up onto the screen.
- 4:41Hannah Tabrum. Hey, Hannah, how are you doing? Haven't seen you for a while.
- 4:44Hi, how are you? Tracy Marsh is in the house as well. Says, hi,
- 4:47all. Hope you enjoy the beautiful weather. Indeed.
- 4:50Indeed. Cecily Hislop is beautiful in Cornwall. Always is, isn't it,
- 4:54Cecily? Especially with your presence.
- 4:56Sir Glenn Murphy, MBE, as well as loads of people walking up tonight.
- 4:59Nicky's fan people are here in force.
- 5:03Sarah Benson is here. Evenings is Sarah, sorry, Sarah Benson. Sarah Jones.
- 5:07And then Gary Benson as well, founder of the STA, is here as well.
- 5:11So thanks, people who are joining us live. And other people are coming through.
- 5:14But that is very much enough for me talking. So without further ado,
- 5:18we'll kick off the first of this new season series of Reflection.
- 5:24We're going to be reflecting on episode 137, Healthcare for People with Learning
- 5:27Disabilities, which was aired with learning disability, Physio Alistair Beverley.
- 5:31But with us to reflect is my guest for tonight, Nikki Mansfield of MMM.
- 5:37Music.
- 5:53So civil um sorry i've mumbled up your triple m's but i'm just used to think seeing mmm so,
- 5:59we're just thinking chocolates exactly and thanks
- 6:02so much for stepping up and being the first person i asked you and within
- 6:05a second yeah let's do it it's great
- 6:09really kind of you because it's not simple it's not easy
- 6:12um but i'm sure you're gonna make it look easy for
- 6:15everyone so it's really kind of so for
- 6:18people who aren't aware of you um maybe let's start with you
- 6:21just letting people know where you are and what
- 6:24you do for living i am a soft tissue therapist qualified with lssm in 2000 i
- 6:32thought it's 2010 turns out it's 2011 so 14 years in i practice in st ives in
- 6:37cambridgeshire which is a small town not a large village as some people like to call it.
- 6:42And i have had clinics in harfordshire another one in another nearby,
- 6:48all town but covid kind of put an end
- 6:51to those so i'm back to a one practice clinic
- 6:54and back to just me after having had a couple
- 6:57of team members as well that i was training up hopefully one day we'll get a
- 7:01little team going again and then a few years ago i started also hosting cpd
- 7:07courses in person i do think that is in need of a lot of support the in-person
- 7:13cpd arena especially in our country.
- 7:17But taking a break from that for this year, just got a couple of health issues to focus my energy on.
- 7:23And if I'm honest, I was enjoying CPD hosting so much and getting so excited
- 7:29about it, I neglected my clinic a little bit.
- 7:31So this year is all about rebuilding my house and rebuilding my clinic.
- 7:36Thank you very much. Excellent. I appreciate that breakdown.
- 7:38It's great for listeners to have an idea that, yeah, you are a therapist and
- 7:42obviously we've all got different things going in our lives,
- 7:44but essentially your job is helping other people, which is what it's all about.
- 7:48And I'm sure there's a lot of people out there who are fortunate now that you
- 7:51are putting your efforts more into clinic now. So that's exciting as well for them.
- 7:56Right. Halifax is a bit happier. Halifax is content.
- 8:02So you chose episode 137 with the
- 8:05marvelous alistair beverly is there an episode i was
- 8:08like well i don't know i'll have a bit of a thing but this one it was
- 8:11it was the first thing it was the first thing i thought of is this is
- 8:13the listening to alistair talk was it's it's
- 8:17had a massive impact not just on my
- 8:19practice but on the way i deal with humans in everyday.
- 8:22Life as well huge impact right it's
- 8:25a big intro for this one okay now we're going to try and
- 8:28back that up with 20 minutes or so to half an hour of chat so
- 8:31it was entitled healthcare for people with
- 8:34learning disabilities how did
- 8:38you what first of all what made you want to
- 8:41watch it because obviously you saw it advertised on the STA and all that and
- 8:43then was it what you expected so I
- 8:48first started watching the STA podcasts in 2022
- 8:51and it was you advertising a series about business and
- 8:55I think i'd seen some advertised previously and
- 8:58thought oh that's not my that's not my specialty although
- 9:01maybe he was working with kids or something like that and i
- 9:03thought i've got a few and i saw the business one i
- 9:06thought oh that i'm always interested in the business side because we're business owners
- 9:09after all so i i watched the four episodes
- 9:13of that and thought i really like these podcasts i like they
- 9:16just seem really open and accepting and and
- 9:21that's a really good host as well but don't tell him I said that and so
- 9:24when your next lot came up and I saw subject item I thought I'm gonna watch
- 9:29that even though it's nothing to do my practice and so I carried on doing that
- 9:32and I was I was really enjoying learning about that thing that I thought was
- 9:37nothing to do with my practice but realizing just how much that I thought was that speciality or.
- 9:42Specialism actually applied to my practice anyway and so
- 9:45when this one came up I just thought well learning disabilities
- 9:49I don't think I work with anybody with learning disabilities I don't think anyone's
- 9:53ever been signposted in my direction definitely not my practice but I've got
- 9:57a lot out of the previous ones nothing to do with my practice why don't I and
- 10:01it's just I kind of spent the whole thing with my gob open just kind of going whoa,
- 10:07And then I've seen Alistair talk quite a number of times since.
- 10:10He's had another two podcasts with you. And I've seen him two or three years
- 10:16when in at Therapy Expo, had some chats with him as well.
- 10:20And then going back and reviewing the episode that we're going to talk about,
- 10:25it really kind of deepened and cemented my, you know, we do like reflective
- 10:32practice for our CPD logs.
- 10:33It was the perfect thing to do, to kind of fill in that little, what did I learn there?
- 10:40In your CBD logs, but also just in my brain, I just realized how far I'd come
- 10:45as a human interacting with other humans since I saw this episode.
- 10:49And this is what kicked it all off.
- 10:50That's amazing. And it's so nice hearing you say that because it's such an important
- 10:56word, isn't it, in our own business?
- 10:57Reflection reflection how we work with
- 11:00the patients and our clients what we could have done better what
- 11:03we what we did well you know positive and negative and
- 11:06yes it's great to hear that and so yeah we're going to reflect on
- 11:09this episode so the way we've done it is i is
- 11:12there's so much in the episode but you've kindly
- 11:15picked three areas which we're going to talk about which will
- 11:19make sense obviously we'll make sure that what we're talking about
- 11:22makes sense to people who aren't aware of episode but hopefully it
- 11:25will inspire you to go and watch the actual episode with
- 11:28Alistair Beverly and I'll remind you at the end which there
- 11:31is and there'll be a link in the episodes in the show notes so yeah the
- 11:34first one back with various facial hair changes it came up on my screen I was
- 11:39like oh yeah yeah yeah it's weird I've got like yeah six years I'm going to
- 11:44do a time-lapse change where it just comes and grows you just had your hair
- 11:47cut short again yeah let's not let's not you sent me,
- 11:54which, yeah, diagnostic overshadowing.
- 11:56Now, I'm pretty sure some people don't know what that is. So we better start
- 12:00off with what is diagnostic overshadowing. I have a definition.
- 12:01I've got a definition of Dr. Google just to make sure that I was saying it right.
- 12:05So diagnostic overshadowing, this is a phrase that smacked me in the face when Al was describing it.
- 12:13The definition of it is where symptoms of physical or mental illness in individuals
- 12:18with pre-existing conditions like autism or learning disabilities are incorrectly
- 12:22attributed to those conditions rather than being investigated as potential comorbid issues,
- 12:28potentially leading to delayed diagnosis and treatment.
- 12:30And unfortunately, in the tragic case of Alistair's own brother,
- 12:35who presented on a number of occasions to different healthcare professionals
- 12:41with clear signs of pain and chronic distress from how long it had been going on.
- 12:47His treatable condition of, I think it was a strangulated hernia,
- 12:52was completely overlooked due to his presentation of Down syndrome.
- 12:56And he sadly died of an entirely preventable condition or treatable condition
- 13:04so that so i mean that kind of thing it it hits you hard what kind of hit me
- 13:09harder was thinking well i've never heard of that my god i didn't know there's
- 13:13a word for that and then very quickly realizing,
- 13:16you're after you have heard of that it happens all the time this
- 13:20happens this assumption that this is
- 13:23because of that goes on all the time it happens
- 13:26it's been happening in my experience and then
- 13:29probably in things i hadn't previously thought of it's not
- 13:33it isn't just people with learning disabilities it's pregnant
- 13:37women perimenopausal women postpartum women there are men as well people like
- 13:43ptsd sufferers anyone with anxiety depression anyone with a chronic pain or
- 13:48especially a chronic fatigue syndrome have all had their other symptoms that need looking at,
- 13:54that need attention from the proper expertise.
- 13:58They've all had them overlooked because people have just gone,
- 14:01oh, it's all part of that.
- 14:02You know, it's, you know, or you're hypermobile. Of course your own sensitivity
- 14:06is higher. You know, here's some coding, you know, deal with it.
- 14:10So, I mean, I think what shocked me was I did it.
- 14:16It's a prejudice at its most basic it's a prejudice it it's born of fear and ignorance,
- 14:22and my as i said right at the beginning i thought
- 14:26oh there's a podcast episode about people with learning disabilities and
- 14:29since do me i've never seen a client with learning
- 14:32disabilities i don't suppose that they would be seeking me out anyway they
- 14:35would go to where you know where's where the
- 14:38expertise is is for that and so i'd done it i'd bunched
- 14:41everything that that person may be experiencing into
- 14:45the fact that they've got a learning disability so it
- 14:48is at its most basic it's a prejudice sadly like
- 14:52other prejudices it can be fatal so you just think of religion and for example
- 14:58or different political stances but the great thing about the fact that it shares
- 15:03it's another prejudice is is we can overcome it education and exposure as alice said in that episode.
- 15:12We don't get to see, we don't get to treat, we don't get access to people with
- 15:18learning disabilities because we, I don't know, it's never part of our training.
- 15:24We don't get given those or taught those specific skills because all it comes
- 15:28down to, it's not because they're outside our scope of practice.
- 15:32They're well within our scope of practice if they've come to see us for an MSK issue.
- 15:36We just need to learn how to help them get access to our expertise.
- 15:42And it's i love the work that alistair does he
- 15:46does courses for people like us but he goes and talks
- 15:49like in the podcast and at therapy expo what i
- 15:52really like watching are his social reels
- 15:56so he like a lot of physios has undergraduate physios come and do their placements
- 16:00and he he invests an awful lot of his time energy passion in helping these young
- 16:08and mostly young i know and some are a bit, they're going to the profession a little bit older,
- 16:12but helping these people gain access to this larger than you would think cohort
- 16:19of people that need additional kind of ways of communicating or different ways of listening,
- 16:25need some adaptation in their exercises.
- 16:28And so they're getting exposure to it at a really early stage so that it isn't
- 16:33unusual when they come to practice.
- 16:34So they don't go and make the mistake of people like me and say,
- 16:38oh, that's not me other people do that so i really really admire the way that
- 16:43alistair does that if you've not checked out on instagram he's on tiktok he's
- 16:48all over tiktok as well but well he's he's he's so prolific he's actually in
- 16:53here tonight listening to you so i hope that's not going to uh.
- 16:59Alistair is actually joined us this episode which is typical al he
- 17:02says hi all it's amazing here at these points i'm sat here taking notes and
- 17:05learning thank you for featuring the episode a place to have you it's
- 17:08really nice to see but but nikki yeah a great summary really
- 17:11cool and you know what you check out his socials because
- 17:14they are they're just seeing the fun that he
- 17:17has with these graduates but you can see them just like kind of learning and
- 17:21you'll also get to see a load of cute videos of violet the poppy as well just
- 17:26so that as an extra bonus no it's a great it's a perfect episode to start this
- 17:31kind of reflection series on because it is And there's not just one out of these 234 we've done,
- 17:36but it is a classic example of how.
- 17:39A little snippet of information, a tiny bit of education and sharing done in
- 17:43the right way, not on a pedestal kind of talking down or shouting in capitals.
- 17:47Without going over the top, it can change your life and it can definitely change
- 17:51the lives of everyone you come in contact with.
- 17:54And it's just information at its finest, isn't it? Something we're not,
- 17:57just because we don't know it doesn't make us bad or evil. It's just something
- 18:00we haven't considered before.
- 18:01And Alistair explains it wonderfully in the episode.
- 18:04So yeah, diagnostic overshadowing and it is, like you say, it's everywhere.
- 18:07I think Alistair is so quick to point out, even though speciality is working
- 18:11with people with learning disabilities, it can be applied just as much.
- 18:13I think he mentions to first-time mum, oh, yes, she's bound to be worried. It's the first one.
- 18:18And that is a classic example, which is very relatable. And you think,
- 18:21oh, yeah, she's just, you know, she's extra hypersensitized to the pain when
- 18:24it could be something which is, should be diagnosed and should be looked at,
- 18:28could be totally unconnected to the pregnancy. So amazing.
- 18:32Really cool. Okay. So diagnostic overshadowing, first point to take away.
- 18:36I think that kind of leads into what you're talking about as well
- 18:38the second section you mentioned was expertise versus
- 18:42marginalization yes so that
- 18:45was kind of applied to what you said we never see people for example it was
- 18:50interesting because like john alice's brother had down syndrome alice is very
- 18:55quick to say that down syndrome makes up a tiny tiny tiny tiny percentage learning
- 18:59disabilities out there and in fact the biggest learning disabilities is the
- 19:02ones which don't even get recognised because they haven't got a name.
- 19:04And it's people with a lower IQ, which is the definition of a learning disability
- 19:09in the sense that it affects all of their lives, not just a particular moment
- 19:12like trying to spell or trying to coordinate or something like ADHD or learning
- 19:17disabilities that it affects all of their lives.
- 19:19But it doesn't mean they can't have mental health issues as well.
- 19:22It doesn't mean they can't have a learning difficulty as well.
- 19:25So it's good to clear those up.
- 19:26But yeah, tell me more about this expertise and marginalisation then.
- 19:30Yeah, yeah, you're right. So it's very much, I think it's an element of the
- 19:35diagnostic, or rather it's born of the same place of diagnostic overshadowing,
- 19:39where it's an assumption that we make.
- 19:42And in our cases, I think it's probably...
- 19:45Usually made with like with the
- 19:48best intentions we feel like it
- 19:52requires some kind of expertise in people with
- 19:55learning disabilities in order to help people
- 19:58with learning disabilities whereas actually they've got
- 20:01an msk issue if they're in your if they're in your clinic or they've
- 20:04they've inquired about an appointment they've got an msk issue generally
- 20:08neurological msk issue that we that
- 20:10we deal with that we are the experts in and they
- 20:14are so they are in the right place we we we're doing
- 20:16people on a disservice to refer them back to an ld
- 20:20specialist or a learning disability specialist so what
- 20:25it occurred to me is i think al was explaining it
- 20:28was not just msk there could be a there
- 20:32could be a kidney problem there could be a cardio
- 20:36pulmonary issue it could be like you just mentioned
- 20:39a mental health challenge the the
- 20:42breadth of range of comorbid things that a person with learning disabilities
- 20:48may be suffering with is far wider or presents far yeah so it's far wider than
- 20:56this this i mean i know there's lots of different types of learning disability
- 20:58it's far wider than that the fact that they are learning disabled.
- 21:02And I think I was guilty of thinking, well, I would refer to a learning disability
- 21:08specialist and not thinking beyond that.
- 21:10And I made it really, really clear that we've sent them back to somebody who is a jack of all trades.
- 21:17They're not going to, I don't know about visceral injuries. I can't support
- 21:22people. I can't support people with mental health.
- 21:25And even with MSK, there's going to be things that I'm good at and things that I would refer on for.
- 21:29And yet i would refer somebody back to
- 21:32somebody who's got even less experience in all of those things than me so
- 21:35where i was perhaps thinking with best
- 21:39intentions i'm going to point this person in
- 21:42the direction of somebody with expertise i'm actually
- 21:45marginalizing them again like
- 21:49they haven't got enough of that in their lives already so i
- 21:52think it's incumbent on me as a soft tissue therapist as
- 21:55a as if they've sought msk health to acquire
- 21:59the necessary skills and understanding to
- 22:02remove whatever barriers there are in place for that person to gain
- 22:05access to my skills and expertise and having them with
- 22:08the issue that they've bloody well come with you
- 22:11know rather than kind of going oh yeah oh you
- 22:15know i see i see your low back ache and shooting
- 22:18pains down the back of your leg oh sorry you've got learning disabilities
- 22:21straight away this this plan of the straight leg
- 22:24raised testing my own testing and
- 22:27pursuing you know a possible hypothesis of sciatic nerve pain all of a sudden
- 22:33through this fear and this ignorance that i mentioned previously i've kind of
- 22:36gone oh no you're best off in somebody else's hands whereas if that person hadn't
- 22:40presented with a learning disability as well i'd have been you know come on
- 22:44crack on let's get you sorted.
- 22:46Excellent. Really well put. Amazingly well put. And it is something that has
- 22:50to change society, isn't it?
- 22:52But we can start helping that by, you know, changing our attitude a bit.
- 22:57There will be a kind of a butterfly effect that will move on.
- 23:01And then people who have got families, for example, and one of the children
- 23:05or a parent or somebody is with a low disability, they won't automatically think,
- 23:09oh, I have to take them back to the specialist.
- 23:11They'll just think, I mean, as Alistair mentioned in the show,
- 23:14there's fortunately now there are many more examples of people,
- 23:17for example, with Down syndrome, but other low disabilities who are getting
- 23:20involved in exercise. Hey, so guess what? They need massage.
- 23:23Why do they go to a specialist to get some massage? They might tear their ACL. Exactly, yeah.
- 23:27So um it's education but i
- 23:30think as always if we all can make
- 23:32a little bit of a change give different messages maybe in the literature
- 23:35on our website maybe have some great photos of
- 23:38us working with people with evident learning disabilities that
- 23:41you can see it's not always the case but this is what it
- 23:44should be isn't it we could help change perception everywhere
- 23:47so it's yeah great points really
- 23:50cool and and again just start changing in everyday lives alistair
- 23:53says i mean i love this quote from him he's had to go now just uh
- 23:56alistair popped in just say hi apparently it's violet's birthday today
- 23:59so um he was just literally popping in to say thank you
- 24:02and hi now he's gone off if you don't know who violet is yeah we're
- 24:06not gonna that's gonna be a nice hook you have to go to tiktok's probably
- 24:09i like his tiktok videos with violet but you can go to
- 24:12tiktok yeah well you're one of those youngsters aren't you all right
- 24:15thank you very much it's just a beard which makes me look over 30 but anyway
- 24:18so yeah yeah you can start making a difference by Alistair points out I think
- 24:23I made a quote of it here because it was just a classic Alistair filter off
- 24:28because things need to be said but he said the thing about the.
- 24:35I think i can't find these actual quotes but basically i'm not going
- 24:38to do it justice but he said that people who refer to people with down
- 24:41syndrome as angels it makes his blood boil that sort
- 24:43of crap makes my blood boil and i think we all do it we see someone maybe because
- 24:48we're just bought up with it i don't know it's just the ignorance but we see
- 24:51somebody with down syndrome and he automatically we kind of look at them and
- 24:53go oh bless them they're very smiley people they're so affectionate like a weird
- 24:57form of like it's not even it's not positive discrimination is I think the dealing
- 25:01mechanism was something that scares us.
- 25:03It's as bad as kind of going, oh, they must be stupid.
- 25:07Yeah, yeah, it's weird. But with no malintent, I think it's just really not
- 25:11– because we don't see them.
- 25:14We're not integrated with them. We move them away from society.
- 25:18I can't remember what the statistic was for how many people there are with Down
- 25:21syndrome in the country, but I think it's – Alistair made the point,
- 25:24it's the same as the number of NHS workers. Yeah, we see loads of them.
- 25:28We play football with them and do stuff. but when was the last time you actually had
- 25:31a beer or you sat down at a table you know exactly exactly so
- 25:34anyway yeah it's a massive point so we can start making a difference by not
- 25:38looking at them and doing a sweet little smile or making that kind of comment
- 25:41because that's part of the problem although it comes from a good place we
- 25:44need to realize that they have like like
- 25:47alistair says go to his website and see the blog he's got from al
- 25:50and yeah have a look about you know the time that john farted at cubs or got
- 25:56pissed at my wedding or beat up a bully at school oh yeah it was all sorts of
- 26:02stuff and it and he just uses his way to show that people with learning disabilities
- 26:05are still human and they've got every right to be a dick to do be nice yeah.
- 26:11Brilliant okay and that kind of leads in nicely to the i love the way you've
- 26:15packaged together nikki it's just i mean it's gonna be downhill from here i
- 26:17don't know how we're going to keep this level of organisation up.
- 26:20But yeah, the last one he said to me was, yeah, it goes on nicely to neurosensory processing.
- 26:27So what's the link on from there now?
- 26:29So really the link from there is.
- 26:32So I've been seeing this cohort of individuals with learning disabilities as a small cohort.
- 26:40And you've already said, so even if we're just talking about people with diagnosed
- 26:44learning disabilities, as Alistair said in the episode, and as you've just alluded to there,
- 26:50there's 1.5 million individuals in the UK with a diagnosed learning disability.
- 26:56And there are also 1.5 million NHS staff members. And as he pointed out during
- 27:01the podcast, I'm pretty sure all of us sitting here all see at least one NHS staff member.
- 27:09I mean, it's the only discount I offer is for NHS staff, and I give it quite frequently.
- 27:14And if we're seeing – so we're not getting an idea, a proportionate idea of
- 27:20the population of people with learning disabilities. And that's just the ones that are diagnosed.
- 27:27What's really kind of hit home with Alice's work just over recent years is the whole kind of thing.
- 27:36It's not just learning disabilities as in there's a name or there's no name to that thing.
- 27:40It's not just a diagnosed thing. He helps people with all kinds of challenges
- 27:45in processing neurosensory inputs.
- 27:49And some of those have got a diagnosed learning disability and others don't.
- 27:54So we all process sensory inputs.
- 27:57There are loads of owners. We see things, we hear things, we touch things,
- 28:01we smell things, we feel vibrations in things.
- 28:06These inputs are all happening all the time, and most of us effortlessly filter
- 28:12the unimportant stuff most of the time.
- 28:16People with a diagnosed learning disability will tend to filter those less efficiently
- 28:21in one or more of the senses.
- 28:24And there's plenty of other reasons why some people might have difficulty filtering
- 28:29some of those inputs, making it really, really laborious, hard work.
- 28:35It takes a lot of energy and concentration to extract the bit that's important
- 28:39or to figure out whether there is anything important there.
- 28:43And there are strategies that people use to try and help themselves do that
- 28:47so that it goes from kind of like an unconscious processing to what can I do
- 28:52to get that information in.
- 28:53The capacity for filtering that information, it's not constant and nor does
- 28:59it only affect people with a learning disability or, you know,
- 29:04as we're all learning much more about neurodivergence.
- 29:08That's probably the biggie that we can all think of. And we,
- 29:11I'm sure we all know people in our personal and professional lives who process
- 29:15that information in different ways.
- 29:17But people in pain chronic and acute pain
- 29:20well their sensory processing is
- 29:24affected people in with chronic
- 29:26fatigue and even with acute sleeplessness or just like you know poor sleep for
- 29:31i have insomnia for a couple of months at a row at a time like every year it's
- 29:36pretty awful i i i get affected by it massively and so i've not got chronic
- 29:40fatigue but but even just acute fatigue can do the same.
- 29:45Perimenopause, massive one. Anxiety, stress, depression.
- 29:49There's so many more mental health conditions and even physical conditions where
- 29:54our ability to unconsciously filter some inputs out so that we can get the bit
- 30:01that we need is massively effective.
- 30:04To give a personal example of mine, I started perimenopause probably around 2020 in retrospect.
- 30:13Effect um and over the
- 30:16past two years i have started
- 30:19getting vestibular challenges so i suffer from vestibular
- 30:23migraines and they come along with vestibular it's
- 30:27just kind of like an overload and then i started getting visual disturbances
- 30:31as well and then auditory ones and i had a chat with actually with alistair
- 30:37at therapy expo and because he gave lots of reasons why people might experience
- 30:42challenges with neurosensory processing.
- 30:43And he did a really good demo where he was getting us to memorize a story that
- 30:48was on the screen, but then telling us jokes at the same time and standing on one leg.
- 30:52So there was just more neural load.
- 30:55And it was a really good example, but it also happened to coincide with one of my biggest flares of.
- 31:01Overstimulation of the sensory inputs where
- 31:05I'd reached a point at that point in the day because it's
- 31:08a big room it's fairly very white bright bright lights lots
- 31:11and lots of noise a lot of a lot
- 31:14of different things trying to distract my attention and so I think by the time
- 31:19Alistair was on on the second day I had my earplugs in which are a really good
- 31:23strategy I have I'll have my eyes closed for most of it and then I also reached
- 31:29a point where I can't hold my head up because I've I've got a cranial,
- 31:32God, this sounds like a bloody list of things that are wrong.
- 31:35I have cranial cervical instability because of my hypermobility.
- 31:38So my spinal cord starts to get a bit impinged.
- 31:41So I was kind of like in a little ball and hands on the hook.
- 31:44And my friend's just got her arm resting on my back.
- 31:47And the weight of that really, really helps kind of drown out some of the noise.
- 31:51So I'm what I would have up until a few years ago called a high-performing person.
- 31:57You know, I think I'm quite intellectual. I
- 32:01enjoy a mental challenge I thought
- 32:05I survived I thought I loved complexity and multitasking and
- 32:09yet there are these times where things just become too
- 32:12much and Alistair gave a really good example
- 32:15of stimming so we're all kind of used to pen clicking or knee wobbling but he
- 32:19played a video of somebody who if I had had that person in my clinic I would
- 32:25have just panicked and thought I don't know how to help this person because
- 32:29he was chucking stuff around and making non-verbal vocalizations.
- 32:34And I would have just thought, oh my God, anything I do is just going to hurt this person.
- 32:38And all he was doing was stimming because stimming helps quiet the noise.
- 32:43It's like a conscious way of filtering out the crap that you don't need to hear.
- 32:48And it was this realisation that this isn't a separate group of people. This is me, personally.
- 32:55And it's all of us, maybe, at some point during our lives, depending on what
- 33:01the life stress is and what's going on with your family and all these kind of things.
- 33:05And it kind of just really, really hit home that I'd been carrying this prejudice
- 33:10and that it possibly prevented people getting the care that they needed with me.
- 33:15I can't think of any examples, but I certainly know that two,
- 33:20three years ago, I was not as well educated on neurodivergence as I am.
- 33:25And thankfully, we all are becoming now.
- 33:27And then I deal with everyone different. My best mate, so my neurodivergence
- 33:33is more towards the autistic end of the spectrum. I need details. I like plans.
- 33:37I take things quite literally, but I don't have the things. So I'm really good
- 33:41at reading emotional responses.
- 33:43And so it's like some dials are turned up, some are down. my sister
- 33:47and my best friend they won't mind me telling you and
- 33:51one of my best friends that was at therapy expo with me they see
- 33:54it last year they're all massively down the adhd
- 33:56end of the spectrum and because we can talk about
- 33:59it in an informed and open way now we
- 34:04can find strategies between us to help so that
- 34:07we don't stress the other one with our opposing kind of
- 34:10needs and we work ways of
- 34:13just just this openness just
- 34:17this i've taught them this is what i need and
- 34:19they've taught me this is what we need it just opens
- 34:23the possibilities and if i can do that with a client if i can identify oh those
- 34:29lights might be a bit bright i'm going to turn those down or offer a ifm like
- 34:34wobble chairs like this and i sit on a wobbly chair as well which can be really good for stimming.
- 34:41If we can make our environments more accessible and inviting.
- 34:46Then perhaps that's how we gain the exposure.
- 34:49Because the education seems accessible to us. There are people like Alistair Buffer in it.
- 34:54There's a lot more education in the general field for things like neurodivergence.
- 34:58But in terms of the exposure, as he talked about in the episode, how do we get.
- 35:04These people in front of us and that's what
- 35:06i've been pondering this week is how can i yeah how people
- 35:10know that this is a place where they are welcome
- 35:13and can get help and i think it's like you said on your website you know
- 35:16photos photos of people who look
- 35:19a bit different i thought in your accessibility part of
- 35:22the website include not just i've got
- 35:25a ramp and extra wide doorways you know
- 35:27that's for your physical disabilities include things specifically
- 35:31to do with the more learning related disabilities
- 35:34things like i have detailed
- 35:37written instructions on how to find where my
- 35:40place is and not to come early well not
- 35:44everybody likes written instructions so i could put a video on there of
- 35:47me walking from the street and getting there well there's lots of little things
- 35:49i'm really if anybody's got any ideas
- 35:53of how to help therapists gain
- 35:56a greater exposure of these people
- 36:00that need our help i'd be really really open open to hearing it because i really
- 36:04really want to make an effort to to to help guide people towards the help that
- 36:09they need it might not be with me but i might be able to decipher that it isn't
- 36:13me i think that there's the answer to the question you pose it's it's collaboration
- 36:17it's talking to each other.
- 36:19And and finding ways that work for other people and also i think just we can
- 36:24try and fill a website with all these ideas what we think might help but just
- 36:27how making it clear that have you got particular need or do you want to talk
- 36:31about something with me where i can make your visit more pleasurable and understanding
- 36:36then you know blah blah blah and just invite people to that conversation.
- 36:40So no amazing like a section for carers and things on your website something
- 36:43yeah it's just showing people who are already a bit nervous if they have if
- 36:48they have heard on the grapevine oh this person seems to work with everybody
- 36:51and it's not going to turn me away they're just going to see on the website. Yeah, it's true.
- 36:55And once you've got them on the end of a phone or on a Zoom call or something,
- 36:58that's it. That's the biggest hurdle.
- 37:00You can talk and use your beautiful kind of openness and coaching.
- 37:04And I love the way you talk about strategies as well, which you can.
- 37:08You can work through with your friends of helping each other
- 37:11because that's exactly what coaching and we should be doing with our clients and
- 37:14patients isn't it finding strategies together rather than saying you
- 37:17need to do these exercises and then wondering yeah great work
- 37:20right look it's 8 41 so we're going
- 37:23to round it up a little bit there yeah we did pretty well
- 37:26actually 8 40 was the goal i think you were taking a bit of a a punt
- 37:29uh experimented with a new short and sharp episode by getting
- 37:31me on first well it's like we said at the beginning if we
- 37:34get to 8 40 you know with you we can do with anybody so i
- 37:37mean that was our agreement's
- 37:40true gary benson has said gary benson founder of
- 37:43the sta said what nikki said earlier resonated with me the episode
- 37:46really taught me about how i view people not just those with disabilities but
- 37:49all humans and gave me the ability to look from other perspectives which
- 37:52is what it's all about isn't it and i think that's the beauty
- 37:55of life we should celebrate the differences um because that's how
- 37:58we we we can interact and help people we just got recognized and
- 38:01we're all different cecily hislop has said
- 38:04i was lucky to have a volunteer who has ds
- 38:08when i managed a charity shop i wouldn't have been without him although
- 38:11he always beat me in an arm wrestle okay exactly
- 38:14and charles allen as well has commented hi nikki
- 38:18we take referrals from nhs norfolk ecch and i have to totally agree with all
- 38:23of what you're saying thanks charles for sharing that very cool brilliant and
- 38:28and what i'm hoping this is a classic example everything i hope would happen
- 38:32with a reflection series like this, where we're listening to somebody like Nikki.
- 38:36Working clinician, hopefully this does open up channels for collaboration.
- 38:40And hopefully all of episodes do.
- 38:42The idea of getting a clinician from the shop floor who has to speak,
- 38:45who's going to talk and open themselves up to what they do and the highs and
- 38:48the lows, and that will help other people to reach out.
- 38:50So Nikki, with that in mind, if people do want to contact you about some of
- 38:54the things you've talked about tonight, then what's the best way of them reaching you?
- 38:58I would say message me on Instagram at Soft tissue, Nicky.
- 39:03Okay, we'll make sure that goes into the notes. And if they don't like Instagram
- 39:06or don't use Instagram? Then I'm just Nikki Mansfield.
- 39:09Just look in any of the massage forums and I'll probably have chipped into a
- 39:13conversation somewhere. I do enjoy those.
- 39:16We don't want quantum debates, conversation.
- 39:19And obviously as well, we'll do our guest. My business page on Facebook is Mansfield
- 39:24Massage and Movement, but I haven't updated that since I took this hiatus in hosting.
- 39:29So you won't find much, but by all means, go and have a look.
- 39:32Tell me where I can improve it.
- 39:33But yeah, just on the SCA members page, on the Hands On Hub page.
- 39:39You get around, don't you? You're there. I do get around.
- 39:43And we're all better off conditions for it. Wicked. Okay, that's fantastic.
- 39:48And obviously, we can get you in contact with Nicky through us as well.
- 39:52So if you listen to the show and you want to go through me, like Matt at the
- 39:55SCA.co.uk, then we can do that as well.
- 39:58If you can't find Nicky, then just let us know. we should also thank
- 40:01as well the person who stimulated this show tonight alistair
- 40:04beverly the ld physio we'll make
- 40:06sure that links to his website appears on there
- 40:10as well but basically it's just the ld physio.com the ld
- 40:12physio.com and also on instagram and tiktok
- 40:16and definitely want to look at the visuals because yeah the
- 40:19the images and the videos just say a thousand words it's
- 40:22amazing the stuff he puts out there really is yeah they stimulate
- 40:25shoot almost starting a physio degree just so i can go and
- 40:28be an undergraduate it is is one of those
- 40:30things but things you can change so quickly anyway right
- 40:33that's amazing um thank you so much nikki it
- 40:36was brilliant it's exactly what i wanted this the new series to be so thank
- 40:39you so much for your time my pleasure we're going to be back next week i've
- 40:44decided it went so well tonight that we'll continue i was going to pull the
- 40:47plug but no we won't and next week i'm very pleased to see let's just bring
- 40:51it up in the screen if i can for those of you like the visuals and,
- 40:55get the right badge. I think this is the one we're going to have in the clinic,
- 41:00Shannon Byrne from Rebound Injury Clinic in Dublin.
- 41:04Let's put this on a solo so you can see it.
- 41:06And Shannon, fantastic therapist as well, is going to be reflecting,
- 41:10oh, we're going way back to July, 2021 to episode 60. We're going to like double digits.
- 41:16She's going to be reflecting on episode 60, which was working with West End
- 41:18Pro Dancers, recorded with special guest Liz Bailey.
- 41:22I know the backstory to this one. And I know why Shannon has picked that episode and it's brilliant.
- 41:28I've got shivers down my spine just listening to it.
- 41:30So I really encourage therapists to try and join us live if you can.
- 41:35If you can't, then please leave a review on the podcast because all this information
- 41:39only gets out there if you leave a rating or review. Otherwise, it kind of disappears.
- 41:44If you just put a rating or review, Google picks it up and it will appear when people put in,
- 41:50neurodivergence or people put in autism or oh by the way autism day tomorrow
- 41:53people don't forget to wear a splash of clothing or something but um yeah just
- 41:57just please rating and reviews,
- 42:00just a splash it's something obviously splashy but yeah so do try and join us
- 42:04live if you can because it hopefully it will hearing another clinician is hopefully
- 42:08going to really start some debate that'll be next tuesday april the 8th on youtube
- 42:13or there is a link if you prefer on facebook always recommend youtube if you
- 42:16can it's just a bit more reliable right nikki thank Thank you so much.
- 42:20Really enjoyed having you. You're welcome. I think it's a great idea. I appreciate it.
- 42:23Thank you. No, it's really cool. You've definitely set the benchmark very high.
- 42:26It's exactly what I'm hoping this is going to lead to. So thank you.
- 42:29And thank you for people who joined us live as well. As always,
- 42:32Hannah Tabram has said, excellent job. Nikki, no pressure.
- 42:36Hannah's going to be joining us. Looking forward to that as well.
- 42:38There's a few names in here. I know people have said yes already. So yeah.
- 42:42All right, people. Until then, as always, take care of each other.
- 42:46I always finish the show that way since we came out of COVID.
- 42:50But just think twice about the person down the street who maybe you thought
- 42:53you knew what they were going through, but maybe you didn't.
- 42:55So, yeah, just let that linger and we'll talk about it again next week.
- 42:58Music.