Latest / OneLegUpAlex Media / Danny Voyes Shares Ways He Has One Leg Up With the National Foundation of Swallowing Disorders Recorded 6-9-25

Transcript

Danny Voyes Shares Ways He Has One Leg Up With the National Foundation of Swallowing Disorders Recorded 6-9-25 · OneLegUpAlex Media

• 0:02
  Speaker 1: All right, well, in the ever request to keep adapting.
• 0:06
  Speaker 1: One of our longtime friends and my brother, you know,
• 0:09
  Speaker 1: like a stul brother, Danny Boyce.
• 0:10
  Speaker 2: What's going on, sir?
• 0:12
  Speaker 3: What's about it?
• 0:13
  Speaker 1: I hear You've got a big presentation later today at
• 0:17
  Speaker 1: ten am.
• 0:18
  Speaker 2: Tell us what's going on? Yes?
• 0:19
  Speaker 3: You So, for the best few months I've been working
• 0:26
  Speaker 3: with the National Foundation on Swimming Disorders on becoming a
• 0:33
  Speaker 3: panelist for an upcoming event which is tomorrow at ten
• 0:40
  Speaker 3: ten am called the Externally mad Uh Patient Focused Drug
• 0:51
  Speaker 3: Development Meaning for dysphasia, and they will be true panels.
• 1:02
  Speaker 3: First panel is in the morning and that focuses on
• 1:08
  Speaker 3: the life are the patients said I have this rator
• 1:16
  Speaker 3: and how it affects of their lives daily. And then
• 1:22
  Speaker 3: the second panel, which is in the afternoon starting around
• 1:27
  Speaker 3: one o'clock, is the panel that I'll be on, which
• 1:33
  Speaker 3: focuses on more of the treatment side of tysphrasia and
• 1:42
  Speaker 3: when we talking about current treatments that we're doing or
• 1:47
  Speaker 3: I have done, and what we would like to see
• 1:53
  Speaker 3: in future treatments.
• 1:59
  Speaker 2: You know, I just it's been a little while. Tell
• 2:01
  Speaker 2: us how you're doing and what what's been going on.
• 2:05
  Speaker 3: I'm doing pretty well. I am. I am dealing with
• 2:10
  Speaker 3: some that's why it's pain. I've been doing with that
• 2:16
  Speaker 3: since December last year. Otherwise I'm doing very well. Just
• 2:24
  Speaker 3: been busy, you know, prea preparing for this meeting that's tomorrow.
• 2:34
  Speaker 3: Otherwise life has been pretty pretty good.
• 2:38
  Speaker 1: Yeah, I know, it's it's it's been a minute, but
• 2:41
  Speaker 1: I'm just I'm always glad to hear that you're doing
• 2:42
  Speaker 1: well and I'm excited for this pretent. Now, what kind
• 2:46
  Speaker 1: of prep work maybe tekets behind the scenes have you
• 2:48
  Speaker 1: been doing to make this presentation tomorrow or later today?
• 2:53
  Speaker 3: Yeah, so the preparation has been, uh, very involved. First
• 3:06
  Speaker 3: we had a meaning about what the actual meaning will
• 3:12
  Speaker 3: be about, and then we had to talk about what
• 3:20
  Speaker 3: the panelists on both planels are going to be doing.
• 3:26
  Speaker 3: Before and during the meaning, we had to right statements
• 3:37
  Speaker 3: about our experiences with dys rasia. Planel one, like I said,
• 3:46
  Speaker 3: was is focusing on daily life with dys rasia, and
• 3:52
  Speaker 3: Channel two, which is my channel, who who focuses their
• 3:58
  Speaker 3: statements on any kind of chantments of that that they
• 4:02
  Speaker 3: have done what will be doing for the chatment of
• 4:09
  Speaker 3: the radia.
• 4:10
  Speaker 1: Now, this is a national organization, so how many folks
• 4:14
  Speaker 1: are in this organization and how many will be presenting.
• 4:17
  Speaker 3: To So each channel has five people on both patients
• 4:26
  Speaker 3: and caregivers. Caregivers of people with this radia and the
• 4:35
  Speaker 3: whole organization. I'm not sure how many people there are,
• 4:39
  Speaker 3: but there are counting. And then I should say this
• 4:46
  Speaker 3: whole meaning is gonna be infanto, the f p A
• 4:52
  Speaker 3: and other, yeah, and other, I guess an organization related
• 5:01
  Speaker 3: to the FDA.
• 5:06
  Speaker 2: Well, congrats on this honor.
• 5:07
  Speaker 1: And by the way, for those who don't know, Danny's
• 5:09
  Speaker 1: been working at this for years and years and years.
• 5:12
  Speaker 2: Yeah, been going.
• 5:15
  Speaker 3: Eating so well, oh, that's the thing I should talk about.
• 5:22
  Speaker 3: So a couple of weeks ago, my former UH speech
• 5:27
  Speaker 3: therapist in my swallowing a therapy for in the past decade.
• 5:35
  Speaker 3: Both times she reached out to me saying that she's
• 5:40
  Speaker 3: doing research on swallowing and voice and she was. She
• 5:46
  Speaker 3: wanted me to come in and pretty much be a
• 5:52
  Speaker 3: laborat uh UH and do a swallow test and then
• 5:58
  Speaker 3: do some voice exercises. So of course, I said, guest,
• 6:05
  Speaker 3: so that I did this lot of test. I have
• 6:09
  Speaker 3: to tell you that this is the first lot test
• 6:12
  Speaker 3: where I was very relaxed because I didn't have to
• 6:17
  Speaker 3: think about all on with the fail or path. I
• 6:20
  Speaker 3: could just do my thing and be done. So that
• 6:25
  Speaker 3: was that was exciting. And then we did some voice
• 6:30
  Speaker 3: exercises like I read some words and write some folwebs
• 6:35
  Speaker 3: and all that. So I'm very happy that I did
• 6:40
  Speaker 3: that because because I knew that it's important, especially since
• 6:50
  Speaker 3: I'm also doing this meeting.
• 6:56
  Speaker 1: Absolutely, Dan, Now let me ask you this, uh, because
• 7:00
  Speaker 1: us in this prep is it did you get connected
• 7:03
  Speaker 1: with them through Mercy Hospital?
• 7:04
  Speaker 2: Is their connection there?
• 7:05
  Speaker 1: Because I know Mercy was a major part of what
• 7:08
  Speaker 1: you've been, uh, you know, going through and and you
• 7:11
  Speaker 1: know achieving.
• 7:12
  Speaker 3: Really yeah, and I see now this organization, the National
• 7:18
  Speaker 3: Founders Foundation of Swallowing Disorders. I I got connected with
• 7:27
  Speaker 3: them through a friend of my mom who's a speech
• 7:31
  Speaker 3: therapist and also part of this organization. So for the
• 7:41
  Speaker 3: past three years, almost three years, I've been pretty active
• 7:48
  Speaker 3: with contending all the webinars and uh support group meanings
• 7:56
  Speaker 3: which actually one one's coming up the fun Fridays.
• 8:02
  Speaker 1: So yeah, that's awesome, And I want to thank you
• 8:06
  Speaker 1: for inspiring me to get involved with the u o AA.
• 8:08
  Speaker 1: The awesome association. Look out that's taken off. Have you association?
• 8:12
  Speaker 1: Are you part of this group or what?
• 8:14
  Speaker 2: Wait Listenagan, are you part of the association as well?
• 8:18
  Speaker 3: Yeah, you told me about it. We are we h
• 8:22
  Speaker 3: he signed up together?
• 8:24
  Speaker 2: Yeah?
• 8:24
  Speaker 1: No, that's right, and your story inspired me to join it.
• 8:28
  Speaker 1: And now we're both bringing awareness, which is which is great.
• 8:31
  Speaker 1: And we've talked about the crossover from these different uh
• 8:35
  Speaker 1: you know, disabilities, whatever you want to say they are.
• 8:39
  Speaker 1: You know, there's a crossover. Everybody's supporting each other in
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  Speaker 1: different realms.
• 8:43
  Speaker 2: No, I got it.
• 8:44
  Speaker 1: I gotta ask you this because I know you're also
• 8:46
  Speaker 1: involved with the Spine Association. Any updates there that you
• 8:49
  Speaker 1: can right, I'm waiting to see you on a webinar.
• 8:52
  Speaker 3: Suit Yeah, I too long, So I just we had
• 8:58
  Speaker 3: two webinars last month, one or one last month and
• 9:05
  Speaker 3: then one the month before about the first one was
• 9:11
  Speaker 3: about medicaid because you know they're threatening to cut that,
• 9:20
  Speaker 3: so we talked about our experiences with medicaid. I didn't
• 9:26
  Speaker 3: get to talk about mine during that such session because
• 9:32
  Speaker 3: we ran at a time. But last month we also
• 9:40
  Speaker 3: talked about education because they're starting to cut the ball
• 9:46
  Speaker 3: of the education, and I did get to talk about
• 9:53
  Speaker 3: my experiences with how my school life was.
• 9:59
  Speaker 2: And all line, well that that's awesome and I gotta
• 10:06
  Speaker 2: jump on there again.
• 10:06
  Speaker 1: I know that you and Joe are very involved in
• 10:09
  Speaker 1: it can really again crossing over to different things. It
• 10:13
  Speaker 1: helps everybody hear each other out. Really, so I love
• 10:18
  Speaker 1: all right now. You know, I know we talked about
• 10:21
  Speaker 1: this before, but it is the fortith anniversary of the Games,
• 10:25
  Speaker 1: and I swear I asked.
• 10:26
  Speaker 2: You about the Games before you competed, didn't you.
• 10:29
  Speaker 3: Yes, I was fucked to damn up onto high school.
• 10:35
  Speaker 2: And do you do you have any fund where they
• 10:37
  Speaker 2: found memories for you?
• 10:39
  Speaker 3: Definitely, especially in fifth grade because my whole fifth grade
• 10:45
  Speaker 3: class came to chimney on.
• 10:51
  Speaker 2: No, that's awesome. And by the way, I.
• 10:54
  Speaker 1: Every yere you go and you see all the kids
• 10:56
  Speaker 1: cheering everybody on, you know, the able body kids steering on,
• 10:59
  Speaker 1: the kids physically challenge.
• 11:00
  Speaker 2: It's special. You know, there's something about watching these kids who.
• 11:05
  Speaker 1: Are never well you know, may never experience that coming
• 11:10
  Speaker 1: out and cheering on. It's good to have both. You know,
• 11:13
  Speaker 1: it's gonna have those kids exposed to this. And then
• 11:15
  Speaker 1: you know, as someone that I could lessen bullying too.
• 11:18
  Speaker 1: If these able body kids can see it firsthand, definitely,
• 11:23
  Speaker 1: so it's always great. And man, we gotta catch up.
• 11:26
  Speaker 1: We gotta see each other soon. It's been a long time,
• 11:30
  Speaker 1: so we gotta correct that. But before we get there,
• 11:33
  Speaker 1: you do have this presentation at.
• 11:34
  Speaker 2: Sennym Are you nervous? And where can we find?
• 11:37
  Speaker 1: I know you sent me the link, but share with
• 11:39
  Speaker 1: people where they can sign up to watch you in
• 11:41
  Speaker 1: action today?
• 11:42
  Speaker 3: Okay, so yeah, start at ten You can go to
• 11:49
  Speaker 3: the National Foundation of Following just on his website and
• 11:57
  Speaker 3: sign them. I am surely you should. They should sign
• 12:01
  Speaker 3: up tonight because tomorrow is the thing.
• 12:07
  Speaker 1: And we're gonna for sure put the link up on
• 12:10
  Speaker 1: the podcast for ten am on June tenth, twenty twenty five.
• 12:17
  Speaker 1: I'm so proud that you're there, and I'm sure you're
• 12:19
  Speaker 1: feeling pretty empowered that you're gonna share your story.
• 12:22
  Speaker 3: Definitely it surely because my with my story, I go
• 12:28
  Speaker 3: into the mental health aspect. Okay, I want to. No
• 12:33
  Speaker 3: one knows that I know of has done with their stories,
• 12:42
  Speaker 3: so I'm much I'm pretty excited to win nine aspect
• 12:47
  Speaker 3: to it.
• 12:50
  Speaker 2: Let's roll, Danny, Let's roll.
• 12:52
  Speaker 1: I can't wait to see it, and if people are
• 12:54
  Speaker 1: not able to see it as they're gonna be an
• 12:56
  Speaker 1: archive that people can find.
• 12:57
  Speaker 2: Also.
• 12:58
  Speaker 3: Yeah, so if you're able to watch the large stream tomorrow,
• 13:04
  Speaker 3: they will have it as a video on the next
• 13:09
  Speaker 3: day watch two, and then we'll be ok there for.
• 13:16
  Speaker 1: If I think, well, we'll take notes and then we'll
• 13:21
  Speaker 1: have you back on a few days later, because hey,
• 13:24
  Speaker 1: maybe people want to know you more. Maybe we can
• 13:27
  Speaker 1: put out your story even more to those that really
• 13:29
  Speaker 1: are interested once they get to see you during the presentation.
• 13:32
  Speaker 2: I'm sure you're looking forward to meeting new people tomorrow, definitely.
• 13:37
  Speaker 3: Yeah. And the also the large stream will be available
• 13:46
  Speaker 3: as a video on the FDA side one that might
• 13:52
  Speaker 3: take for a little while because it's good government, all.
• 13:58
  Speaker 1: Right, Danny, Well, congrats on this honor. I'm very proud
• 14:01
  Speaker 1: of you. I love you, brother, and I know you're
• 14:03
  Speaker 1: gonna kill it. You're gonna knock out of the park.
• 14:06
  Speaker 3: Thank you.
• 14:06
  Speaker 2: I'm doing right now. Thank you, Bill, love you too,
• 14:10
  Speaker 2: all right, Danny Boyce.
• 14:12
  Speaker 1: And I know you have Max on your heart going
• 14:15
  Speaker 1: into this because he would push you to do this
• 14:17
  Speaker 1: and share your story.
• 14:18
  Speaker 2: You know that.
• 14:19
  Speaker 3: Yeah, I know that's a pain as.
• 14:24
  Speaker 2: All right, Danny. We love you and we'll talk to
• 14:26
  Speaker 2: you soon. Love you to the network, See you later.