216: Cindy's Story | Survival Mode, Unexpected Grief + Navigating Inclusion and Accessibility
When you’re raising a child with complex medical needs, the early years can feel like one long stretch of survival mode. Hospital stays, surgeries, therapies, and constant uncertainty loom large over everything.
For Cindy, that uncertainty started before her son Thoren was even born. After a routine ultrasound raised concerns, her family began a medical journey that would eventually reveal not just one rare condition, but a genetic mutation so uncommon that Thor was one of the first documented cases in the world.
In this episode, Cindy shares the story of Thor’s early years: surgeries shortly…
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