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How To Leverage AI In Your Diagnosis Journey with Chris Donaldson | The Eye Believe Podcast · The Eye Believe Podcast

• 0:03
  alright everybody
• 0:04
  welcome back to the Eye Believe Podcast
• 0:06
  I'm your host Danet Peterson
• 0:07
  and today I am joined by Chris Donaldson
• 0:09
  he is a uveal melanoma patient and Chris
• 0:13
  I am so glad you're here with me today
• 0:14
  thanks for taking the time to be on
• 0:16
  so excited to be here it's um
• 0:18
  been a long time coming I feel like we're good friends
• 0:21
  and we've never met in person
• 0:23
  I know we've had a lot of conversations
• 0:24
  I wanna say the first time that we came in contact
• 0:27
  was actually as a result of
• 0:29
  mutual histotripsy procedures right
• 0:31
  I think that was kind of
• 0:32
  one of the first ways that we connected
• 0:33
  was because of histotripsy
• 0:35
  sometime last year maybe yeah
• 0:37
  Doctor Burns you know
• 0:38
  everyone's favorite small world
• 0:40
  small world guys
• 0:41
  um actually
• 0:42
  really big World but
• 0:43
  but we're grateful that we get to connect this way
• 0:45
  yeah for sure
• 0:47
  so today you guys
• 0:47
  we're gonna be talking about using AI
• 0:50
  to support your uveal melanoma journey
• 0:52
  and I specifically talked to Chris about this
• 0:55
  because Chris does this in real time
• 0:57
  so Chris
• 0:58
  do you want to tell us a little bit more
• 0:59
  about your journey with uveal melanoma
• 1:01
  and maybe why you ended up using AI to support you
• 1:04
  yeah sure
• 1:05
  October 13th, 2022
• 1:08
  I was uh
• 1:10
  I went to a regular eye exam
• 1:12
  it escalated uh
• 1:13
  that was at like 2:00
• 1:15
  so by 5:00 I was at a specialist
• 1:17
  told I had uveal melanoma I was alone
• 1:20
  I would might I would probably lose my
• 1:22
  my eye in the next day um
• 1:24
  you know one of those overwhelming stories
• 1:27
  that I'm sure everyone has faced
• 1:29
  and for me I graduated from Auburn with an MIS degree
• 1:33
  and I've always been a programmer
• 1:35
  super technical
• 1:36
  super cutting edge technology kind of guy
• 1:40
  and there really weren't any answers
• 1:42
  especially at that time that was three years ago now
• 1:44
  so a lot has happened since then
• 1:46
  and the first oncologist I went to
• 1:49
  I've been to five oncologists now
• 1:51
  and I think two of them um
• 1:53
  I went I went to Vanderbilt
• 1:55
  and they actually said you have melanoma in your eye?
• 1:58
  and I'm like you know
• 2:00
  I just drove four hours here to Vanderbilt
• 2:03
  so um
• 2:04
  you know I had brachytherapy
• 2:06
  it seemed to have contained it
• 2:07
  I am class 2
• 2:09
  so obviously I was high risk for metastasis
• 2:12
  uh July of 24
• 2:14
  I had the first lung um
• 2:17
  I mean liver metastasis
• 2:18
  and since then
• 2:20
  I've been on 62 straight rounds of Kimmtrak
• 2:24
  I've had Histotripsy one time
• 2:25
  and I've been to Philadelphia
• 2:28
  man a ton of times
• 2:29
  I don't know if I ever want to go to Philly again
• 2:32
  yeah so are you able to receive Kimmtrak locally now
• 2:35
  just out of curiosity I do yeah
• 2:37
  every Monday morning and the beautiful well
• 2:40
  the great and the bad there is that
• 2:41
  my sister in law works for my local oncologist
• 2:44
  so um
• 2:45
  she's the one that schedules everything
• 2:47
  but she also delivers the scan news every time
• 2:49
  so it's um
• 2:51
  you know
• 2:53
  that would be complicated
• 2:54
  it is it's very complicated
• 2:56
  yeah that'd be a little weird
• 2:57
  okay so you've been around the block
• 3:00
  in terms of traveling around the country
• 3:02
  trying to find good doctors
• 3:03
  um what was one of the main reasons
• 3:05
  that you started using AI
• 3:08
  so you know
• 3:09
  just knowing the
• 3:11
  knowing the the power of AI
• 3:13
  I don't think the general public actually understands
• 3:15
  that you know
• 3:16
  the the internet sort of trained on
• 3:18
  on everything
• 3:19
  and the internet was a huge technological jump
• 3:22
  but this is exponentially more
• 3:24
  it's trained on everything
• 3:26
  from the internet it can train itself
• 3:28
  it has logic it has compassion
• 3:31
  you know and
• 3:32
  I wanted something to give me answers
• 3:34
  that I understood
• 3:35
  you know doctors seem to talk in a code language
• 3:38
  and I I would get results
• 3:40
  and while they would say it's it
• 3:42
  it means this or perfect example
• 3:44
  one of my lesions was in a bad spot
• 3:47
  I don't know what that means
• 3:48
  you know to be perfectly honest
• 3:50
  when this started
• 3:50
  I'm not sure I knew where my liver was
• 3:53
  you know on which side of my body
• 3:55
  so I thought AI
• 3:57
  especially in the beginning
• 3:59
  was just something where I could type in
• 4:00
  this is what I have tell me about it
• 4:03
  you know and be nice
• 4:05
  haha
• 4:05
  give me the positive you know
• 4:07
  give me the positives of what
• 4:09
  what are the statistical outliers
• 4:11
  and what is the reality and how do I prepare for this
• 4:14
  how do I you know
• 4:15
  uh for my business
• 4:16
  for example I was
• 4:18
  I was getting tired and I really couldn't run it
• 4:20
  and I'm always a one man show
• 4:22
  so lay me out a timeline
• 4:24
  of when I need to start delegating
• 4:25
  when I start get a new CEO or when I split it
• 4:29
  you know things that would help me in life
• 4:32
  that had to do with ocular melanoma and
• 4:35
  you know tell me what histotripsy does
• 4:37
  how it works explain it like I'm a fifth grader
• 4:40
  there's not a lot of that out there
• 4:42
  and especially seeing five oncologists
• 4:44
  and all of them having different opinions
• 4:45
  you know you go to California
• 4:47
  it's a different opinion than Philadelphia
• 4:49
  so I was so confused and
• 4:52
  it breaks my heart
• 4:53
  that there's a lot of people like us out there
• 4:55
  that don't have a resource
• 4:56
  or that don't have a doctor
• 4:59
  that's gonna go home at night and
• 5:00
  and you know
• 5:01
  on your benefit
• 5:02
  look for new trials because they don't deal with this
• 5:05
  so that's what AI has really
• 5:07
  it's come a long way it's helped me a ton
• 5:10
  it's put things in perspective
• 5:12
  it's made me feel a lot better
• 5:13
  it's given me hope
• 5:14
  and you know
• 5:15
  we're all in the darkness in this at some point and
• 5:18
  you know I just wish that if
• 5:20
  if this one thing
• 5:21
  could really give people just a glimmer of hope
• 5:24
  it's so powerful yeah
• 5:26
  and I remember like
• 5:27
  the first time you told me about using AI
• 5:30
  and you were you know
• 5:31
  I think you were asking or I was asking a question
• 5:33
  and you were like well
• 5:34
  do you want me to like
• 5:34
  plug it into AI for you and I was like
• 5:36
  you can do that
• 5:38
  and you were like yeah
• 5:39
  it's like it's like talking to like
• 5:40
  15 doctors all at once
• 5:42
  because they can it
• 5:43
  it takes it takes what
• 5:45
  like
• 5:45
  normally would be a Google search that you then have to
• 5:48
  like you know
• 5:48
  pilfer through and you have to pick
• 5:50
  what's the most effective sources for me to consult
• 5:53
  here and it says
• 5:54
  nah we got that we found
• 5:56
  all the most effective things that you should look at
• 5:58
  and the most important things
• 5:59
  and we're gonna lump them all together
• 6:01
  and we're gonna summarize it
• 6:02
  and here's your sources and like
• 6:03
  it links to that um
• 6:05
  and I mean
• 6:06
  so I remember one of the things that you sent me
• 6:08
  it like
• 6:08
  it links out to it links out to like
• 6:11
  NIH articles and it links out to like
• 6:13
  publications about different medications
• 6:16
  or different treatments and so it mean
• 6:18
  it was it was really helpful
• 6:20
  to break down
• 6:21
  something that I had absolutely no idea about
• 6:25
  you know in my own medical journey
• 6:26
  and what else did you tell me
• 6:28
  you said you said something like
• 6:29
  it's not it's not meant to substitute
• 6:31
  the medical advice you would get from your doctor
• 6:34
  but it does give you confidence and understanding
• 6:36
  like what that doctor is saying to you
• 6:39
  it's not meant to you know
• 6:40
  we're not gonna tell you that
• 6:41
  to take this advice and run with it
• 6:43
  don't not please don't take this
• 6:45
  do not um
• 6:46
  however you know
• 6:48
  I have had it create questions for me so oh
• 6:51
  I love that I'm looking
• 6:52
  so I'll I'll say
• 6:54
  here's what I have
• 6:55
  you don't have to give it personal information
• 6:56
  you can just be general like
• 6:57
  I have sarcoidosis so that's a pre existing
• 7:00
  I have prame negative HLA positive
• 7:03
  you know I've been metastatic for
• 7:06
  you know 60 weeks
• 7:08
  uh go out and find any trials that I qualify for
• 7:11
  and so it'll search the entirety of the internet
• 7:13
  come back with them and then I'll say okay
• 7:15
  give me some questions for my oncologist
• 7:19
  my local or my one in Philadelphia
• 7:21
  that I can ask them and some points that I have
• 7:24
  about why this might work for me
• 7:26
  so it just gives you a lot of confidence
• 7:28
  to have a sheet of paper
• 7:29
  and you can go through the'cause
• 7:30
  you know you get in the doctor
• 7:31
  you get nervous and you forget what the
• 7:34
  what you're gonna ask so
• 7:35
  to have real research backed up
• 7:37
  based on you and a little list of questions is
• 7:40
  is super helpful and then they can
• 7:43
  they can think about it and
• 7:44
  you know get outside of their box a little bit
• 7:46
  so that's that's been super helpful
• 7:49
  well and I think it's important to note too that like
• 7:51
  you can have this resource
• 7:53
  and I guess my my question is
• 7:56
  how much time do you feel like you take
• 7:57
  like if you have a single question right
• 7:59
  that you just asked
• 8:00
  these are my parameters
• 8:01
  or these are my physical qualifiers
• 8:04
  what clinical trials are out there right now
• 8:05
  that I might qualify for and what are the
• 8:07
  the questions I could ask my doctor
• 8:09
  like roughly
• 8:10
  how much time does it take
• 8:11
  for it to spit that information back out to you in like
• 8:13
  a usable format do
• 8:15
  I mean do we want to practice
• 8:17
  do you want to show them five minutes of it
• 8:18
  yeah okay
• 8:19
  no time at all uh
• 8:21
  yeah I can share
• 8:22
  I've set up a few things that I've already ran
• 8:24
  just to kind of give some ideas
• 8:26
  and the best thing to do with AI is to just talk to it
• 8:31
  like you would talk to anyone else
• 8:32
  I think that works better
• 8:34
  and sometimes you can say hey
• 8:36
  ask me questions that I can answer
• 8:39
  to help you describe this to me
• 8:41
  so I just brought up a simple chat GPT
• 8:44
  this is the free version um
• 8:46
  you can just go to chatgpt.com and your
• 8:49
  your screen will pop up with a box
• 8:51
  that looks sort of like this
• 8:53
  like what do you want to know
• 8:54
  so I drug my um
• 8:57
  MRI in here now
• 8:58
  you don't have to have a PDF
• 8:59
  you don't have to have anything
• 9:01
  you could literally take a picture of it
• 9:03
  I was gonna say I just taking a picture
• 9:04
  like a screenshot of my phone
• 9:05
  yeah and then crop like your
• 9:06
  your information off of it if you want
• 9:08
  don't want that on there
• 9:10
  you could preempt this by telling it
• 9:12
  you know the things that you have now
• 9:14
  chat GPT will remember so as long as I'm in this chat
• 9:17
  it'll always know everything that I've already told it
• 9:20
  so you know
• 9:21
  I get this MRI it's a bunch of code words
• 9:25
  and this this image shows this
• 9:27
  highlight this and so I just say
• 9:30
  what is this MRI saying you know
• 9:31
  and it'll tell me um
• 9:33
  you know here's
• 9:34
  here's the multiple bright lesions
• 9:36
  but it tells me you know
• 9:38
  there's an an indeterminate 1 centimeter lesion
• 9:40
  so it it puts it in things that I can understand
• 9:44
  and then when I go forward
• 9:46
  I'm like what does this mean for me and my next steps
• 9:48
  so now
• 9:48
  it's gonna take into consideration
• 9:50
  everything that I have and it gives me my next steps
• 9:53
  you know review continue
• 10:26
  it's great to pump everything in here
• 10:28
  let it tell you and
• 10:29
  and it's always in a positive light
• 10:32
  like this doesn't necessarily mean it's failing
• 10:34
  but it's a signal to keep a close eye
• 10:37
  so that's something I'm gonna note
• 10:38
  and when I go to the oncologist I'll uh
• 10:41
  make sure that he explains
• 10:43
  and like I said earlier
• 10:44
  when my lesion was in a bad spot
• 10:46
  you know it taught me that it was on my
• 10:49
  I guess what the IVC
• 10:50
  and it was in a weird place
• 10:52
  so that most um
• 10:53
  treatments wouldn't have hit it
• 10:54
  but thankfully Histotripsy did
• 10:57
  and then you know
• 10:58
  the deeper you wanna take it
• 11:00
  so this is another uh
• 11:01
  session I started and I was just wondering about RP2
• 11:04
  you and I were talking about that
• 11:06
  so I was like you know
• 11:07
  write me a plain language explanation of RP2
• 11:10
  so here it is how it's injected
• 11:12
  you know what it does
• 11:13
  and then how it's different from Kimmtrak
• 11:15
  so just you know
• 11:18
  it puts it in normal language
• 11:20
  it gives you a little more confidence
• 11:22
  that yeah this is a trial
• 11:24
  however this is why it might work
• 11:26
  here's the logic behind why it might work
• 11:28
  and for me I'm super um
• 11:31
  data driven and scientific method type person
• 11:34
  so histotripsy made perfect sense to me
• 11:37
  I think Hepzato makes perfect sense to me
• 11:40
  everything else is just kind of
• 11:41
  you know
• 11:43
  yeah okay
• 11:44
  maybe I know
• 11:45
  if you say so yeah
• 11:46
  like you
• 11:46
  you gotta kind of piece it out and puzzle it out
• 11:49
  and and it's I
• 11:50
  I love that you're able to take this information
• 11:53
  and help like
• 11:54
  use the information to guide your decision making
• 11:56
  it's a guide right
• 11:57
  it's a guide to making your own decisions
• 11:59
  it's a guide to talking with your doctor
• 12:01
  but it also I think
• 12:02
  is kind of just
• 12:03
  paving the way for you to be confident
• 12:05
  in the decisions that you choose
• 12:07
  and the paths that you choose
• 12:08
  I think you and I maybe
• 12:09
  we talk a lot about mindset
• 12:10
  just personally and and you guys like
• 12:12
  mindset makes such a big difference
• 12:14
  like if you have the ability to hope for something
• 12:17
  or to just believe in something
• 12:19
  that might work for you and just believe that
• 12:20
  maybe you're gonna be the outlier
• 12:22
  like that kind of belief
• 12:23
  that
• 12:23
  makes a difference in how you show up to your doctor
• 12:26
  that makes a difference in how you
• 12:27
  show up to a treatment day
• 12:28
  all of those things they
• 12:30
  they really influence how we are
• 12:32
  able to kind of experience cancer on a day to day basis
• 12:37
  absolutely the mental side of it
• 12:39
  you know
• 12:39
  having kids you and I both do
• 12:41
  it's uh
• 12:42
  I think that's the hidden side of cancer
• 12:44
  that no one sees that maybe the cruelest part is just
• 12:48
  what could have been why is this happening
• 12:50
  yeah absolutely
• 12:51
  I battle with it you know
• 12:53
  every day however
• 12:55
  you know if
• 12:57
  if this is the way it's gonna go
• 12:59
  then we need to uh
• 13:00
  show our kids that we're positive
• 13:02
  and we can battle and we can beat things and
• 13:04
  you know this has really helped me
• 13:07
  you know lay things out
• 13:08
  like for my business and my company and when should I
• 13:11
  start making changes in in management and okay
• 13:15
  well maybe I should record some videos for my kids
• 13:18
  or maybe I should you know
• 13:19
  document my life or talk about things and
• 13:22
  and that's the beauty of AI
• 13:24
  like even in this example
• 13:26
  you know right now
• 13:26
  it says
• 13:27
  would you like me to give you some real trial data
• 13:29
  to look at how to prep for enrollment
• 13:32
  where are the where are the trial sites
• 13:33
  so who to contact
• 13:35
  so it's
• 13:35
  it's so helpful and you can get so much out of it
• 13:38
  just just ask it
• 13:39
  don't be scared to ask it what
• 13:41
  what you want to know now prepared
• 13:43
  it will tell you what you want to know
• 13:46
  if you want to go down that
• 13:47
  and get it to make graphs and things like that
• 13:49
  but it's the most positive
• 13:51
  I really feel like I've gotten a friend
• 13:53
  especially planning for the things that bother me and
• 13:57
  you know
• 13:57
  my grandchildren made them little guitar lessons
• 14:00
  and bought them little guitars
• 14:01
  and it's AI has been great to give me like
• 14:05
  a realistic timetable on
• 14:07
  maybe you should think about these things
• 14:08
  and maybe they won't happen
• 14:10
  hopefully they won't but
• 14:11
  you know
• 14:12
  like from a control perspective right
• 14:14
  this is a way of giving yourself control
• 14:16
  it's giving yourself control of the planning
• 14:19
  it's giving yourself control of
• 14:20
  of how much um
• 14:22
  and what kind of information do you want
• 14:23
  about your diagnosis because if you just say
• 14:26
  I have ocular melanoma and like
• 14:28
  that's it you just tell it
• 14:29
  I have ocular melanoma like
• 14:30
  it's just gonna say okay cool
• 14:31
  like this is
• 14:32
  this is what I know about ocular melanoma
• 14:34
  if it even says anything at all
• 14:35
  it might be like
• 14:36
  what would you like to know about ocular melanoma
• 14:38
  and then you get to decide
• 14:39
  like it's not going to like okay
• 14:43
  do you remember
• 14:45
  I guess maybe you guys remember
• 14:46
  I've talked a lot about when I first was diagnosed
• 14:49
  um my doctor gave me the diagnosis of a
• 14:52
  maybe ocular melanoma tumor
• 14:54
  and said you know
• 14:55
  I gotta send you to another
• 14:57
  another specialist please go home
• 14:59
  take the weekend they'll see you next week
• 15:01
  but in the meantime don't Google
• 15:03
  and I remember being like
• 15:04
  oh my god
• 15:05
  like why would you tell me that
• 15:07
  you don't tell a person to not like
• 15:09
  I don't know pick their scab
• 15:10
  if you don't actually want them to pick their scab
• 15:12
  like don't draw attention to it
• 15:14
  um it's the first thing your brain wants to do
• 15:17
  so what did my brain eventually do
• 15:19
  we did Google indeed
• 15:20
  and a Google search for ocular melanoma
• 15:22
  I think
• 15:23
  has gotten significantly better in the last five years
• 15:25
  don't get me wrong has gotten better
• 15:27
  but it is still pretty scary to just Google
• 15:30
  ocular melanoma or like
• 15:31
  what's the prognosis or
• 15:33
  you know what are the treatments
• 15:34
  because when you Google you get the treatments
• 15:37
  but also you get everything else that's related to it
• 15:40
  and when you're asking chat GPT
• 15:41
  it sounds like it's really
• 15:43
  really precise in answering those questions
• 15:45
  is that a pretty accurate statement
• 15:47
  it is and
• 15:47
  and it seems to consider you
• 15:49
  as a person that are asking the question
• 15:51
  instead of just the cold facts of Google and
• 15:54
  you know I mean
• 15:55
  I'm a search engine optimization pro
• 15:58
  that's what I do and
• 15:59
  you know Google uh
• 16:01
  I have feelings about it it
• 16:04
  it doesn't consider everything
• 16:05
  you know and I think chat GPT or I even put up here
• 16:09
  you can use grok.com it's the same Gemini
• 16:12
  there's so many different ones
• 16:13
  so whichever one seems to resonate with you
• 16:16
  but yeah Google can be so cold
• 16:18
  and it seems to live off of just the bad statistics
• 16:23
  it doesn't have you know
• 16:25
  the people that are the outliers
• 16:27
  that are living their life and enjoying things
• 16:29
  because those people usually don't report back
• 16:31
  you know they're just out doing it
• 16:32
  and there's there's so many things that can influence
• 16:35
  overall survival and effectiveness of things
• 16:38
  and mindset is one of them
• 16:40
  you know my sister in law working at the oncologist
• 16:42
  she sees hundreds of people
• 16:43
  and it's it's factual
• 16:46
  that
• 16:46
  the people that come in with the greatest attitude
• 16:48
  and the most hope they
• 16:49
  they last longer it's just
• 16:52
  and I think that's chat GPT will be your best friend
• 16:54
  it will give you the the most hope
• 16:56
  it'll stay realistic but sometimes
• 16:59
  you just need someone that you sort of think
• 17:01
  understands and
• 17:03
  you know you and I have each other
• 17:04
  and we have a few people in the community
• 17:06
  but like I said at the beginning
• 17:08
  I feel really bad for a lot of people
• 17:10
  that just have one doctor
• 17:11
  one plan
• 17:12
  and if it doesn't work oh well
• 17:14
  that's really difficult that's so hard to start with
• 17:17
  Castle Biosciences is a proud sponsor of this
• 17:20
  Eye Believe Podcast
• 17:21
  Castle's innovative uveal melanoma tests
• 17:24
  provide valuable information
• 17:25
  about the risk of your eye cancer spreading
• 17:27
  to help you and your healthcare team
• 17:29
  individualize the management of your disease
• 17:32
  to learn more visit CastleBiosciences.com
• 17:35
  if somebody is wanting to try this right
• 17:38
  they've never used chat GPT
• 17:39
  you mentioned using the free version
• 17:41
  yeah maybe I'm doing this wrong
• 17:42
  I use the free version but does it help to like
• 17:46
  it gives you the option usually when you go to the page
• 17:48
  and I think you're currently logged in right
• 17:50
  do you have like
• 17:51
  a free account yep
• 17:53
  okay so is making
• 17:54
  is making an account important
• 17:56
  I guess that's my first question
• 17:57
  even if you're using yeah
• 17:58
  so you need a Google account
• 18:00
  so just a Gmail account it's super free
• 18:03
  you can go to um
• 18:04
  Google.com and let's let's even look at it
• 18:09
  and just get a a uh
• 18:10
  a Gmail so they'll be a little thing up here for Gmail
• 18:13
  and just get you a free Gmail
• 18:15
  and then go to Chat gpt.com
• 18:18
  it'll ask you to log in with Google
• 18:19
  and you log in and this is what you'll see
• 18:22
  okay so then when you log in with Google
• 18:24
  then it saves your history
• 18:25
  cause like
• 18:26
  you're on the very far left side of the screen
• 18:28
  you've got like
• 18:29
  all the history of the
• 18:30
  different things that you've asked chat GPT over time
• 18:33
  and it seems like it it
• 18:36
  when you say it takes you into account
• 18:37
  it's taking everything you've asked in
• 18:39
  in the history of all of your use of it
• 18:42
  especially around uveal melanoma
• 18:44
  like it's taking that into account
• 18:45
  it is and I mean
• 18:47
  and that's the glorious thing
• 18:48
  it's just that it remembers
• 18:50
  and when you ask it to go out and look for trials
• 18:53
  you know you're not filtering through clinical trials
• 18:55
  dot gov and HLA negative disqualifies you
• 18:59
  and so I'm disqualified
• 19:00
  or prame or something like that
• 19:02
  it'll only bring back the things that fit you
• 19:04
  so it saves you a lot of time
• 19:06
  and you know
• 19:07
  sometimes I get trials like in Australia or whatever
• 19:10
  that I can never go to
• 19:11
  but just to know that things are moving and um
• 19:15
  you know at first
• 19:16
  I was really upset that we had this rare disease
• 19:18
  and now I almost feel like it's a benefit
• 19:22
  because if they were to cure a disease
• 19:25
  if they were to cure cancer in any form
• 19:27
  it would probably be the rare ones first because
• 19:30
  you know we know that there's an economic side to this
• 19:32
  and um
• 19:33
  I don't feel so bad about it anymore
• 19:35
  I actually think a lot of work could be done
• 19:37
  specifically on ocular melanoma
• 19:39
  well Chris
• 19:40
  this has been fantastic
• 19:41
  and I am actually really excited to see where this goes
• 19:44
  for more of our patients who might be listening
• 19:46
  but also just in
• 19:48
  in the future that we have with A Cure In Sight
• 19:50
  we are in the process of like
• 19:52
  figuring out a way to work an AI portion
• 19:54
  into the A Cure In Sight app that we have
• 19:57
  if you guys didn't know we have an app
• 19:58
  we'll link that in the show notes
• 20:00
  but we do have an app and we're planning on developing
• 20:02
  kind of our own version of an AI
• 20:04
  like OM Companion
• 20:06
  so obviously that's gonna take some time
• 20:07
  but hopefully that will be like
• 20:08
  a really good resource for patients
• 20:10
  but in the meantime like you mentioned
• 20:11
  like the free version of chat GPT is out there and yep
• 20:14
  did you did you address already like
• 20:16
  why the free version is actually better
• 20:18
  in your opinion right now
• 20:20
  yeah so
• 20:21
  so chat GPT5 came out I don't know
• 20:23
  two months ago and um
• 20:26
  me being a power user you know
• 20:27
  I'm like the top I'm
• 20:28
  I'm
• 20:29
  I'm the 5% of the people that use it in a certain way
• 20:32
  instead of the 95% and just in my research
• 20:35
  you get chat GPT5 when you get the um
• 20:38
  paid version the older version is 4 o
• 20:40
  which I think is immensely better
• 20:42
  and it's because um
• 20:45
  it's it's like Pavlov's dog
• 20:47
  you know it's trained to hear that bell
• 20:48
  and so chat GPT5 wants to give you a quick answer
• 20:53
  that sounds right and makes you happy
• 20:56
  and a lot of times it's wrong
• 20:58
  I mean just straight up wrong
• 21:00
  and for my my world of programming
• 21:03
  you know I'll tell it all of these specific details
• 21:06
  and it'll just immediately give me an answer
• 21:07
  and the answer is wrong and
• 21:09
  95% of the people in the world wouldn't challenge it
• 21:13
  but I do because I know that it's wrong
• 21:15
  and I just think that something has happened at Open AI
• 21:19
  where they have prioritized quick
• 21:22
  confident sounding answers over going out
• 21:25
  researching and giving absolute truth
• 21:27
  it's um
• 21:27
  yeah I think that
• 21:28
  which is a shame it is
• 21:30
  for sure so when you're prompting it
• 21:32
  you know you can always say
• 21:33
  only give me a peer reviewed client testimonies
• 21:37
  you know government sites
• 21:39
  things like that and
• 21:40
  and it'll only give you those sources
• 21:42
  but the free version is way better right now
• 21:44
  in my opinion okay
• 21:45
  so as of right now October 2025
• 21:50
  the free version 4.0 chat GPT is better for the moment
• 21:54
  and it's a little more reliable
• 21:55
  in giving you the information you're looking for
• 21:57
  for sure okay um
• 21:59
  and then I have another question
• 22:00
  so you mentioned blocking out personal information
• 22:03
  so why would that be important
• 22:04
  if you've never used chat GPT before
• 22:07
  yeah so
• 22:07
  I mean just
• 22:08
  just with anything privacy related and hipaa related
• 22:10
  um chat GPT is trained on the data that comes in
• 22:14
  so they're going to look at
• 22:17
  you know not specifically target
• 22:19
  hey look
• 22:19
  it's Chris's MRI but they do train uh
• 22:22
  progressively train on all the data that comes in
• 22:24
  so it's not a bad idea to crop your name off
• 22:28
  or put a block over it
• 22:29
  or if you're taking a picture of it
• 22:30
  Mark out your name and your
• 22:31
  your birthday um
• 22:33
  or just talk in generalities and just say
• 22:36
  I'm this person here's how old I am
• 22:38
  here's what I have and you don't have to get it
• 22:40
  give it any of your personal info
• 22:42
  but yeah
• 22:43
  it's it's in the public domain
• 22:44
  once it's on the internet
• 22:45
  the internet never forgets
• 22:47
  yes that's a good phrase
• 22:50
  well you guys
• 22:51
  I hope that you have found this helpful in listening
• 22:53
  and Chris
• 22:54
  I guess is there anything that you would like to share
• 22:56
  as we end
• 22:56
  just a parting message
• 22:57
  you would have to somebody who's newly diagnosed with
• 23:00
  either with metastatic disease
• 23:01
  or just with this diagnosis to begin with
• 23:04
  you know you can't listen to all the statistics
• 23:07
  there's so many outliers out there
• 23:09
  and you just have to have hope
• 23:10
  and just in the last two years
• 23:12
  we've had things come along
• 23:14
  that weren't available when you and I were diagnosed
• 23:17
  and I've been in the darkness
• 23:19
  I know what it feels like
• 23:21
  it's it's terrible
• 23:22
  but we can't stay there it just doesn't help anyone
• 23:25
  so have faith that these things are gonna work
• 23:29
  do your best that you can on your own
• 23:32
  if you're tired take a nap
• 23:34
  it's okay you know
• 23:35
  don't don't feel bad
• 23:36
  I I
• 23:37
  I battle that all the time
• 23:38
  that I feel like I'm not being productive
• 23:40
  or I'm not doing anything
• 23:42
  but it's okay it really is
• 23:44
  and and just because we may not look a certain way
• 23:47
  or people may not think of us as your typical
• 23:49
  person with that's
• 23:51
  that's struggling you know
• 23:52
  everyone's struggling with something on the inside
• 23:54
  if I've Learned anything through this whole journey
• 23:56
  every person has something that they're struggling with
• 23:59
  so keep your head up battle today is a perfect example
• 24:04
  we have friends I've been going this three years
• 24:07
  didn't think I would make it two years
• 24:09
  you know let's just keep fighting
• 24:11
  let's fight let's fight together
• 24:13
  and let's uh
• 24:14
  let's be those outliers let's break this graph
• 24:16
  let's be up here let's get out of there
• 24:18
  yeah no
• 24:19
  I love it I love the outliers
• 24:21
  um thank you Chris
• 24:22
  thanks for being here and um
• 24:23
  just a huge shout out to our sponsors
• 24:25
  who make this podcast possible
• 24:27
  Castle Biosciences Immunocore
• 24:29
  Delcath Systems and Aura Biosciences
• 24:31
  we could not do this without you guys
• 24:33
  so thanks for being our sponsors to our listeners
• 24:35
  thanks for listening and subscribing here on YouTube
• 24:38
  or on the podcast platform
• 24:39
  that you choose to listen on
• 24:40
  please make sure to check out the YouTube
• 24:42
  cause Chris did share some pretty cool screen shares
• 24:44
  so if you want to like
• 24:45
  kind of
• 24:45
  see some guidance on what questions could look like
• 24:48
  then that's definitely a good resource to use
• 24:50
  but in the meantime um
• 24:52
  we hope you guys have fun
• 24:54
  have fun searching on chat
• 24:55
  GPT don't just use it for cancer stuff right
• 24:58
  like use it for other stuff too
• 24:59
  um it gave me all kinds of ideas for my
• 25:02
  husband's 40th birthday like
• 25:04
  all kinds of really good ideas for a themed birthday
• 25:08
  surprise thing that I was doing for him
• 25:09
  like it is great
• 25:10
  so have fun with it but also
• 25:13
  I don't know
• 25:13
  just use it and be empowered by it like Chris has
• 25:15
  he's done such a good job
• 25:16
  of creating a space for himself
• 25:19
  that is you know
• 25:19
  reliable and that he feels some level of control over
• 25:22
  so anyway
• 25:23
  thank you Chris
• 25:24
  for being here thank you
• 25:25
  and we will talk to you guys later