Latest / The Deirdre O'Shaughnessy Podcast
'If there’s a price tag on every child in this country, it’s a sorry country’: Craig Coady’s fight to save his son
16 year old Paudie Coady has Friedrich’s Ataxia, a rare, degenerative neurological condition. Last year, the same condition claimed the life of his younger brother Rory.The boys’ mother, Della, has advanced Huntington’s disease.Their dad Craig is in a race against time. Yesterday, he met Taoiseach Micheál Martin as part of his campaign for the HSE to introduce the drug Skyclarys in Ireland.Skyclarys would slow down the progression of Paudie’s illness and give him a better quality of life.Joining Deirdre on today’s episode, Craig said the system for approving new drugs in Ireland is not…
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