Latest / Privycast / Ep. 191 The Fighting Chair w/ "Legacy Dad" Keyton Blocher (Privychat 49)
Transcript
- 0:01And I just kind of looked over and I said, I wonder, and I saw a weed.
- 0:05So I peed on the weed and like within hours it was dead.
- 0:10No way that okay and it's just the radiation of it all like
- 0:15so it's the leftover chemo chemicals.
- 0:17Yeah in my body it.
- 0:19my god.
- 0:20I am I'm a weed killer
- 0:26Well, hello everyone.
- 0:27Welcome back to privy.
- 0:28ah Privy is a podcast about bathrooms recorded from my home bathroom.
- 0:34I'm your host, Hunter Hoover, and I love bathrooms.
- 0:37And I am joined this episode via the internet across, I think, time zones by Keaton Blocker.
- 0:45Did I get the last name right?
- 0:47yeah, it's a blocker, yeah.
- 0:49Yeah.
- 0:49Keaton, I'm going to let you tell your story, but the short version is you have a cancer diagnosis and have had a lot of tribulation, I would say, in the last few years.
- 1:02Keaton, I'm going to let you kind of introduce yourself further, tell folks what you want them, a listener to a bathroom podcast, to know about you.
- 1:12Okay, well so my name is Keaton Blocker, like you said, I'm 26 years old.
- 1:17I'm married to my wife Jessica Blocker, formerly Jessica Krupp.
- 1:24And she and I have been married for six years, we'll be seven this next year.
- 1:30We have a three year old son, his name is Rex.
- 1:36Yeah, and...
- 1:39The reason I started the Legacy Dad stuff was to inform people about some of the things that come up when you're dealing with cancer and just ways that people can help people
- 1:52that are going through cancer.
- 1:54I also wanted to, it's been a good outlet for me also.
- 1:58It's helped me stay positive and that's kind of one of my mantras is, you know, being positive when everybody else wouldn't
- 2:09So far it's worked out for me because it has opened a lot of doors.
- 2:14Like a lot of doors.
- 2:15It's been kind of crazy actually.
- 2:17The Lord's been doing some pretty crazy stuff.
- 2:19yeah.
- 2:21Yeah, and share as much or as little as you want about this, but what is the cancer diagnosis, you know, stage?
- 2:29And just to give, like, I know a bit just because I've interacted kind of vicariously through the internet via Legacy Dad and your other social media stuff, but yeah, where are
- 2:39you at in the journey that is whatever that would be?
- 2:44Yeah, so I'll kind of go back a little bit more towards the beginning and just kind of explain through some of it.
- 2:49um So when I was born, I was born with a heart condition.
- 2:54So I have what's called hypoplastic left heart syndrome.
- 2:57So only the right side of my heart functions.
- 3:00The left side is completely dead.
- 3:02And the right side has been reconstructed.
- 3:05They put two artificial chambers in my heart and rerouted everything.
- 3:09So I'm a single ventricle uh heart.
- 3:13So my one side pumps and does everything that both sides are supposed to do.
- 3:18So that was like the kind of the start of my life was medical, weird medical stuff.
- 3:24And my entire life have kind of been a gray area is what all my doctors and my parents have always called it my entire childhood was you're just kind of a gray area.
- 3:34So I am probably in my personal cardiologist growing up in his office.
- 3:41I was his
- 3:42patient that had the least amount of like ancillary issues with the heart condition.
- 3:47And I was actually one of his best functioning patients as well growing up.
- 3:52And so when Jessica and I got married shortly after that, she joined the Air Force.
- 3:56And so we ended up moving from Oregon to Mississippi, which is where we live now.
- 4:02Northeastern Mississippi.
- 4:03Oh, yeah.
- 4:06So we're about an hour south of Chupilo, which is where Elvis was born.
- 4:11Well there you go.
- 4:12Yeah, so there's some pretty cool stuff here and we had been here literally a year before I got my cancer diagnosis.
- 4:20Yeah.
- 4:22what, so to ask a couple of questions, like growing up with significant heart defect, like what was that like, experientially, like the things that you, like, as you look back,
- 4:34you're like, man, like this was different for me versus maybe other kids.
- 4:39What were some of the things that were clear indicators of that?
- 4:43So I couldn't play as long as a kid.
- 4:46I had to take more breaks because I had poor oxygen circulation in my blood because of my heart condition.
- 4:52If I was playing too hard or got too cold too fast, my lips would turn purple.
- 4:58Hey.
- 4:59So that was kind of one of my telltale, like, I'm tired.
- 5:01I need to go sit down.
- 5:02But I was never like, I don't know.
- 5:05I kept up with my friends growing up, but like, it was extra work for me to keep up.
- 5:12if that makes any sense.
- 5:13um And I kind of took it on personally to just kind of be like, you know what?
- 5:21It's not gonna affect me.
- 5:22I'm gonna push through it and I'm gonna make it look like I never have anything wrong with me.
- 5:27And I've been told a lot of times by folks that they were like, well, if I would have seen you just on the street, I would have never known.
- 5:34So that's kind of what I go for for my goal.
- 5:38oh Life was different as a child, definitely with a heart condition.
- 5:42Everybody kind of, when you fell down, it was a little bit bigger of a deal.
- 5:47Every time I ended up in the doctor's office or the ER or anything like that as a kid or growing up as a teenager, I always had to get an EKG and an ultrasound and an
- 5:57echocardiogram and just like all these different tests just because of my heart condition.
- 6:03was like, I walk through the door and they're like, you need this, this, this, this and this.
- 6:07Like, it was just, it was a myriad of testing and blood work and all sorts of stuff every single time I was at the doctor, so.
- 6:14Wow, yeah, and you know, like, did that, was that, I'm trying to figure out the right way to ask this, but like, when people would react in that way, whether it's, you you fall or
- 6:26whatever that is, was that more difficult?
- 6:28Like, when did you become aware that people kind of reacted differently?
- 6:34So I kind of figured out around like fourth or fifth grade that people were treating me different.
- 6:40Yeah.
- 6:42And it was more so my teachers than it was like my peers because we were young kids and they didn't really understand too much.
- 6:50Yeah, they're like, come on, man, let's go.
- 6:52Yeah, they're like dude gosh, you're so tired.
- 6:54You're out of shape.
- 6:55Come on.
- 6:55Let's go and I'm like, no, I'm just don't okay.
- 6:58Yeah, cool
- 6:59You're like, why don't you give it a try, buddy?
- 7:02Yeah, for real.
- 7:04but yeah, around fourth or fifth grade is kind of when I noticed people started to, I guess, treat me different.
- 7:09Yeah.
- 7:11But my family, you know, they tried to as hard as possible, like make it everything normal for me.
- 7:19I got to do all the extracurricular activities I wanted besides football.
- 7:23didn't, I was never allowed to play football, which may have been a good thing just because tackles, tackle sports are a lot harder on your body.
- 7:29So, but I did all the things I played baseball, soccer, basketball.
- 7:34I was a fencer actually.
- 7:35did fencing in end of middle school, all the way through high school.
- 7:39I did it for about six years.
- 7:41Did you do that as part of the school?
- 7:42Like did the school have that as an activity for you to do or?
- 7:45No, so I did it privately.
- 7:48My instructor was actually a guy who had taught a few of the Olympians for TUSA that did fencing.
- 7:56So, yeah, he's, he was really good at fencing.
- 8:00So yeah, I did that and I didn't like compete or anything really too much with it, but that kind of stopped around who I'd say sophomore year of high school because I had joined
- 8:12choir in high school and
- 8:15took up a majority of my time.
- 8:17As a freshman, I got into the chamber choir, which you had to try out for.
- 8:22And then as a sophomore, which is, it was very rare at the time for a sophomore to get into the acapella group, but I got into the acapella program as well.
- 8:33so by my senior year, I was the president of the choir program.
- 8:37And so I just kinda, I made choir like my thing in high school.
- 8:44That and drama, I used to act a lot.
- 8:47Yeah.
- 8:48So, I mean, I had fun and I did different, I guess you'd say activities than most people, but I mean, I enjoyed it.
- 8:57I danced and that's pretty strenuous.
- 9:00Yeah.
- 9:01Because we did musicals and things like that, so I had to do like the waltz and the dolly-poka and all that kind of stuff.
- 9:09Man, that's yeah.
- 9:11Was this public high school?
- 9:13Yeah, yeah, so down in Roseburg, Oregon, was Roseburg High School.
- 9:17Yes.
- 9:19dude, I'm like a, I'm an Oregon transplant.
- 9:21So I grew up Montana and then I came out here in 2012 to go to college, went to college, never really left.
- 9:29And so like all the Bergs, know, Roseburg, Newburgh, all it's, it's always fascinating, but like, yeah, it's, it's a cool place to, to, I dunno, it's, it's a strange thing.
- 9:41Like politically it's weird, but it's such a beautiful state.
- 9:45Yeah.
- 9:46And then you look around and you're like, what is going on though?
- 9:50How do we have all this and we're just not happy with so much?
- 9:54Because now I'm in Albany and it's fine.
- 9:58They call it Smallbany for a reason.
- 10:00oh But before you went to Mississippi, had you ever been to the South at all?
- 10:06So yeah, earlier on in Jess and I's marriage, we went on a missions trip to South Carolina and we helped rework a church property for African Christian Fellowship International.
- 10:20Yeah, so, and I had been on a couple of missions trips, like as a teenager I went down to La Misión, Mexico and helped build an orphanage down there and did some fun stuff there
- 10:30and then I did a night strike in Portland a few times.
- 10:35What is
- 10:36That is where they take over underneath one of the big bridges in Portland and they just set up tables.
- 10:42They bring a trailer out and they give out donated clothes to homeless.
- 10:46feed them.
- 10:46that's cool.
- 10:48like hairstylists that will volunteer their time to give haircuts.
- 10:52They have nail salon people that will come out and if they're a female or like a kid, they'll paint their nails.
- 10:58And then they had like churches that would come out and feed.
- 11:01And then what we did was we just played card games with everybody while they ate and asked them questions, asked them if they needed anything question wise about the Lord that they
- 11:10needed answered and all that kind of stuff.
- 11:13yeah, so that was pretty fun.
- 11:16Yeah, no, mean, it sounds fun.
- 11:19also sounds like, I don't know, Portland has kind of increasingly got worse and worse and more dangerous in that specific area.
- 11:27And so like, it could also be a little harrowing, I imagine, especially, you know, the younger you are, but that's super.
- 11:34Cool.
- 11:34Yeah.
- 11:36I was going to ask, you've mentioned your faith a couple times.
- 11:40When did that, and it's weird because I do another show that's more faith-based than a thing about bathrooms.
- 11:48But when did your faith become a reality and a thing that you had as a key part of your life?
- 11:58So I would say I got baptized when I was like 12, I think by my grandfather and I wouldn't I would say you know, I kind of had that kid relationship with God up until about I'd say
- 12:1415 16 And that's kind of really where I was I kind of hit a point where I was like, oh I either need to take this seriously or not at all and Because if I'm not taking it
- 12:26seriously, it's basically
- 12:27not even doing anything.
- 12:31And then, let's see, I ended up going to Bible College over in Idaho, which is where I met- Yes, Boise Bible College.
- 12:41It's awesome.
- 12:42Yeah, and that's where Jessica and I met.
- 12:44Okay.
- 12:45Yeah, and we were on the same worship team together.
- 12:48So that's how we met.
- 12:51So this is actually fascinating.
- 12:52So weird, happenstance.
- 12:54Like I was, I was, I was Jess's youth slash young adult leader for like a minute.
- 13:02Truly.
- 13:02She came in as a senior was like, Hey, what's up?
- 13:06I think board games are cool.
- 13:07I'm heading out to Boise Bible college.
- 13:10And I'm like, great, you know, come to these events.
- 13:13I went to like her graduation thing.
- 13:16And then she, you know, she was off to college.
- 13:18And so I guess it's fascinating that y'all met at Boise, but we're like so close over here.
- 13:25You guys had never, had you ever crossed paths over here at all?
- 13:29Yes, and we didn't know.
- 13:31what we talked about was I was like, yeah, I was at this or like I was at C.I.Y.
- 13:36or I was at like this Brad Paisley concert and she was like, well, I was there too.
- 13:41And I was like, what?
- 13:42Like it was just kind of a cool happenstance thing.
- 13:45Because I mean, know, Roseburg and Brownsville are an hour and a half away from each other.
- 13:49Right.
- 13:49There's a lot of big events, know, Corvallis, all that kind of area that I went to that she was at too, that I just, we never ran into each other until college.
- 13:59She says it's good because I wouldn't have liked her before college and she would not have liked me as a...
- 14:03doozy teen- so...
- 14:05Dude, my wife and I have had that exact conversation.
- 14:08It's like, we would have hated each other in high school.
- 14:10eh I gave off a pretty, I am going to look for the thing that irritates you vibe and then push that button continuously.
- 14:19And my wife has six siblings and didn't have time for that.
- 14:22So.
- 14:23Wouldn't put up with it for you, huh?
- 14:25No.
- 14:25yeah, she sorted that out in me pretty quick, but no, that's super cool.
- 14:31And so how has like receiving this cancer diagnosis and all of the heart stuff that you go, and I imagine those two things, you know, meeting is not great.
- 14:44So yeah, go ahead and share like how does that worsen it.
- 14:48So, well I'll kind of talk about the things that I started to notice before I got diagnosed.
- 14:53Yes, yeah.
- 14:54Because that to me is something that's super important.
- 14:57um So, I woke up one morning and like, you know this spot where like your leg bends into your head?
- 15:03Yeah.
- 15:04Kind of like by your thighs.
- 15:05That was swollen.
- 15:06And I was like, this is weird.
- 15:08I wonder what's going on.
- 15:09And so, you know, my son was about to be born in like two months and...
- 15:14I was like, I don't need to go to the doctor.
- 15:16I'm fine.
- 15:17I'm not feeling sick.
- 15:18It's just swollen.
- 15:19Maybe it's just fat.
- 15:20Maybe I'm getting fat.
- 15:22Like, you know, I was like, I'm heavier than I've ever been.
- 15:25I put on sympathy weight when Jess was pregnant and eh I was like, yeah, okay.
- 15:29Maybe I'm just getting bigger and that's where the fat's going to come out right there.
- 15:33I don't know.
- 15:33Maybe I have a weird spot.
- 15:34And so I went on for a couple months like that where I was like, okay, this swelling is not going away.
- 15:39And I was like, but then again, I could be getting fat.
- 15:41So maybe it's just me.
- 15:43And uh,
- 15:44And then we ended up, there was one night where I was driving after our son Rex was born.
- 15:51We were on our way home from grocery shopping and I looked at my wife and I said, I haven't felt good all day.
- 15:57And she's like, what do mean?
- 15:58And I was like, I don't know.
- 15:59I feel like I'm running a fever.
- 16:00was like, I'd go outside, stand in the sun, then it'd get too hot.
- 16:03Then I'd go inside.
- 16:03And as soon as I walked inside, I was too cold.
- 16:05So I go back outside and I was like, and I just, I like, I don't know.
- 16:10I just don't feel good.
- 16:11And she's like, oh, that's weird.
- 16:12And then I was like,
- 16:1430 seconds went by and I said, I need to pull over, I'm gonna pass out.
- 16:18You need to drive.
- 16:21And so we went straight to the urgent care and I had 104 degree fever.
- 16:27Yeah, so it was pretty quick like that.
- 16:32And previously, so for the last few months before that, I had been coughing a lot.
- 16:36We actually came back to visit with our two month old son in February.
- 16:43to Oregon to go visit family and see people that haven't made it out to Mississippi to see us.
- 16:48And I was coughing the whole time we were there and everybody's like, you okay?
- 16:51And I was like, yeah, I don't, I don't, maybe we're just accustomed to Mississippi and like, it's, it's not as humid or something weird or, know, it's Lynn County, it's grassy
- 16:59capital of the world, allergies, whatever.
- 17:02And so I just didn't think anything of it.
- 17:04And then when that fever thing happened after our Oregon trip, we were like, okay, we should probably check into that.
- 17:12And they said, well, you know, there is some stuff going around.
- 17:15It's not COVID.
- 17:16It's not like a flu, but it's like, like a virus, you know, that we've been seeing where people are coughing and having high fevers.
- 17:22And I was like, okay, cool.
- 17:23Just need an antibiotic.
- 17:25And so what they did was they put me on an antibiotic and then a month went by and nothing changed.
- 17:33And so they were like, okay, let's get you an ultrasound because of the swollen spot.
- 17:38And so they ultrasound it and she's like, well, it looks like you could have a
- 17:41infection in your lymph nodes.
- 17:43And I was like, okay, never heard of that, but I guess it could happen because you're saying that it's a thing.
- 17:48And so, yeah, I was like, I'm not.
- 17:51Yeah.
- 17:51And so we waited a while and they were like, sometimes it's going to go on your way, go away on their own.
- 17:56And so it was, it was April and I was like, I'm still not getting better.
- 18:02Like what's going on?
- 18:03And then they were like, well, is that spots to swollen?
- 18:05And I said, yeah.
- 18:06And they said, okay, come on in.
- 18:08We're going to get a biopsy of it.
- 18:10We're gonna take a needle and we're gonna go down in and take a sample of the tissue and pull it out.
- 18:13Yeah.
- 18:14Yo, I'm not a big fan of needles.
- 18:17I know it's like a stupid complaint for me, but like...
- 18:22Yeah, no, I get it.
- 18:23Yeah, I don't like them either.
- 18:24I've had to deal with them way too much.
- 18:28Yeah.
- 18:28But so we they did the needle biopsy and the initial one came back inconclusive and they were like, okay, we have to have a yes or no.
- 18:37And so they did another one and that one they didn't get enough samples.
- 18:41And so I went back a third time and they did what's called an incisional biopsy where they just cut it open and remove a larger chunk so they make sure they have enough.
- 18:49So by the third biopsy,
- 18:51We finally got some answers.
- 18:54I was at work that day and my phone rang and I was like, it's the doctor's office.
- 18:57So I like stepped out the back door out at work and I worked at a hardware store.
- 19:02was the sales and marketing manager for a hardware company.
- 19:06And so I step out the back door and the doctor goes, hey, so we got your results back.
- 19:14And it was a military doctor.
- 19:16So, you know, sometimes they don't have the best head side manner.
- 19:18And he was like, you have cancer.
- 19:22Just like that.
- 19:23Like that was it.
- 19:24And I was like, what do you mean?
- 19:27And he was like, well, so we think you have non-Hodgkin's lymphoma.
- 19:32And he was like, but the way yours presents it could be classical Hodgkin's.
- 19:38And he was like, the difference between those two is Hodgkin's, non-Hodgkin's is not aggressive.
- 19:45Hodgkin's is the most aggressive out of that family.
- 19:49Yeah.
- 19:50And so we did another biopsy to narrow it down and it was classical Hodgkin's lymphoma stage three.
- 19:59Man.
- 20:00They said when they found it based on the size after I did my PET scan to show like where all the cancer was, they said, probably had this for a year.
- 20:12And you just didn't know.
- 20:13And I was like, how does that even happen?
- 20:15Like, I just didn't know anything about cancer.
- 20:18I knew my aunt had had breast cancer.
- 20:20Like that was about as far as my knowledge had gone with cancer.
- 20:23And so my first phone call after that was Jess, my wife.
- 20:27I called her and I said, hey,
- 20:29I'm gonna come home, you and I need to talk.
- 20:31I got a call back from the doctor.
- 20:33And I was like, they said it's cancerous, but I want to talk to you.
- 20:38And so, you know, she rushed home, I rushed home.
- 20:40My boss was like, yeah, just take the day.
- 20:43She was like, don't come back.
- 20:45You're good.
- 20:45Yeah.
- 20:46And I was like, well, thank you.
- 20:47So I went back home and we talked about it and it just kind of felt like our life just kind of blew up right there.
- 20:52Yeah.
- 20:53Like in the matter of minutes, it was like, okay.
- 20:56What's our next move?
- 20:58And one of the crazy things that nobody really talks about with cancer is all of the waiting that you have to do.
- 21:06So I got my diagnosis and then it was a whole month before I started any treatments.
- 21:14Wow.
- 21:15Yeah.
- 21:16So yeah, you have to, it's it's a long process.
- 21:20And so I did the first round of chemo that I did was every other week.
- 21:26And I did that for a little over a year.
- 21:30Um, and those infusions were about eight hours long.
- 21:33I'd get there in the morning when the place would open and I was usually the last person to leave.
- 21:39Other than the nurses.
- 21:41Yeah.
- 21:42Um, and so that.
- 21:43That kind of leads into your question about the complexity that the heart condition and the cancer add to each other.
- 21:48Yeah.
- 21:50So because of the heart condition, ever since the beginning, all of the different doctors have been scared to do something because they don't know what they can do, if that makes
- 22:01sense.
- 22:02Because they don't know, they're like, well, if you have a normal heart, we know how much tolerance you'll have for this medication that's toxic to your heart.
- 22:09But with you, we have no idea.
- 22:11So we skirted around that option as much as we could.
- 22:15We tried, you know, just the side with the side medications that came with the big red, the red one that's they call it the red devil.
- 22:24And we did.
- 22:26So we did a year of that and then it went away.
- 22:31And we were excited, I rang the bell, I got a certificate for finishing chemo, we thought I was cancer free, it was over.
- 22:4045 days later it came back.
- 22:43Wow.
- 22:44And so they said because I wasn't in remission for more than three months, they don't consider it full remission.
- 22:50So uh it came back and they said, okay, well now we're not a hundred percent sure what to do, but what we're going to do is we're going to do the lowest dose at the slowest speed
- 23:02of the red medication.
- 23:04Yeah, wow.
- 23:06And I lost all my hair.
- 23:07Went bald, had no facial hair, all my chest hair fell out, like everything.
- 23:14Eyebrows were gone, like everything just left.
- 23:17Yeah.
- 23:19And so we went from that to, hey, it's getting smaller, but we're not sure what we're going to do to get it to go away for cure.
- 23:27Cause at that point they were shooting for cure.
- 23:31so I went to MD Anderson over in Houston, Texas, and they took all my case.
- 23:38The head of the lymphoma department took all my case and said, um, I'm to talk to some colleagues of mine and we'll see what we can figure out.
- 23:45And then about I'd say two or three weeks after that.
- 23:48trip to Texas and back.
- 23:50He calls me and he goes, so I hate to call you a case because you're my patient.
- 23:55And he goes, but you're the first case recorded in history of these two together.
- 24:02That's crazy.
- 24:03He was like, I talked to all my colleagues.
- 24:05We tried to reference everything we could.
- 24:07We tried keyword searching, all of the everything on medical journals, everything.
- 24:11He was like, we can't find anything about how to deal with this, with your heart condition and this cancer.
- 24:17And so he goes, everything that we do is going to just be thrown spaghetti at the wall and seeing if it sticks.
- 24:24Because he was like, obviously we don't want to hurt you, but we also don't want the cancer to be what is the end.
- 24:32And so we, did radiation treatment, which I had to do at MD Anderson because of my organs being different with my heart condition.
- 24:43caused my liver to be enlarged and I have an enlarged spleen, which it just, that's a normal thing for somebody with my heart condition.
- 24:52And so, but that makes shooting radiation beams into your body a little harder when things are bigger than they're supposed to be.
- 24:59And so what we did was.
- 25:01A month before radiation, I went down to Texas and they put me on this big machine and they scanned my body, like 3D scanned everything.
- 25:09And then they spent a month practicing on the scan on the computer to do the radiation for me before I even laid on the table.
- 25:20They were working on it for a month.
- 25:24yeah, it's been a lot of...
- 25:27firsts for a lot of people that have been near me with this.
- 25:33And doctors especially.
- 25:35So we did radiation and surprisingly radiation ended up making me feel better when I got back home.
- 25:45So I'm normally like 150 to 175 pounds.
- 25:49When I got home from radiation I was 123.
- 25:52Woof, okay.
- 25:54Yeah.
- 25:55So, and that was actually one of the initial signs too that I was getting sick.
- 25:58I lost 40 pounds in a month.
- 26:01Gosh.
- 26:02Yeah.
- 26:03So it was 30 days.
- 26:04was 30 days and I lost four pounds.
- 26:0640 pounds.
- 26:06Sorry.
- 26:10weight has been a big fluctuating thing with me, but...
- 26:16So they did radiation treatment and we waited a little while and then we got another PET scan and it was gone.
- 26:22Again.
- 26:23And we were excited but we were also kind of waiting a bated breath like, what's going on?
- 26:29And then three months later it was back.
- 26:32So now we're on fight number three.
- 26:35Yeah?
- 26:37And in July, they said, hey, we've kind of run out of options as far as what we can keep trying.
- 26:46And so they said, we're going to put you on what we like to call a palliative chemo or a maintenance chemo.
- 26:52And they said, realistically, probably about two to five years.
- 26:56They said, if everything goes well and you respond to treatment and the tumor shrink and things go great, they said, we could see 10.
- 27:05Maybe 15, but so that's kind of where we're at currently.
- 27:12I'm going through chemo every four weeks now.
- 27:15My infusions are only half a day now.
- 27:20they are not.
- 27:21um And we're just kind of preparing for the reality and praying for a miracle at the same time.
- 27:31Yeah.
- 27:32Yeah, that's where we've ended up and that's kind of the journey story of how we got to where we're at now.
- 27:38So there's been a lot of emotional up and downs and physical up and downs and hospital visits.
- 27:45like this last, in October, I was in the hospital for a little over a week and I ended up getting put on the BiPAP breathing machine for two straight days because I just stopped
- 27:54breathing.
- 27:55Wow.
- 27:57And it was mainly when I fell asleep, I would just stop breathing.
- 28:01And so they thought they were going to lose me twice.
- 28:05So I've been this close.
- 28:08Yeah.
- 28:09Well, and I know like we've been in conversations for this episode for some time and that's kind of why I kind of, you know, it's one of those where I've kind of been waiting
- 28:21in the wind mostly because I know that you've got not just a lot going on with your health, but also a lot going on with family and making time count.
- 28:31You know, I'm sure that that's a high like factored component.
- 28:37And then also, you know,
- 28:39Seeing these updates from Jess and others about your hospital trip in October, it's just like, I'm sitting here going, you know what?
- 28:46I'm hunkering down and praying.
- 28:49We're not worried about scheduling.
- 28:51That's why when you send me that, I'm I'm going.
- 28:55If he's going, I'm going.
- 28:56Dude, thank you for sharing all of that.
- 29:00I know that's probably heavy.
- 29:03I know you've shared it probably a few times now, but.
- 29:06Does it get more or less easy to share every time you do?
- 29:10So I think that I'm a different kind of animal when it comes to that just because I grew up with a medical condition and so to me that's just kind of a normal thing for me to have
- 29:23a lot of information about it when people are curious I just tell them.
- 29:27So but yeah it is pretty heavy.
- 29:30I tell some of my friends like you know if I don't keep busy then I go crazy.
- 29:36And...
- 29:37Look at that.
- 29:38I have to, I saw a thing one time that uh was basically this guy was like in the morning when I wake up I pray and I ask God please get in my head before I do.
- 29:50And so I've had to try to kind of take that kind of an attitude towards every day because if I start off going what are we gonna do then it's like do do spiral.
- 30:03How has your faith played a role throughout the cancer diagnosis and all this treatment and you know?
- 30:12Yeah, so at the beginning, I was really angry.
- 30:15I was really confused and I just was very upset.
- 30:18I was like, you know, like, what did I do?
- 30:20Like, why do I deserve this?
- 30:21Like, you know, was there something I did that could have prevented this?
- 30:25Was there, you know, I went through all of the things.
- 30:28Right.
- 30:28I went through the denial.
- 30:29I went through the blaming God.
- 30:30I went through the blaming other people.
- 30:32I went through the, you know, all of it.
- 30:34And I went, you know, all the robot chicken giraffe video, the whole thing.
- 30:39Well, throwback there for anybody that's seen that one.
- 30:42ah It's just one of those things that when you're in it, you just kind of become numb, if that makes any sense.
- 30:51There's still some things that like, if somebody says something the wrong way, sometimes, sometimes it'll catch me off guard and like hurt my feelings a little bit.
- 31:01But I've had to consistently tell myself because of my faith, you know,
- 31:06God didn't make people to wake up in the morning and go, I'm going to ruin that guy's day.
- 31:10Right.
- 31:11And so I need to just take it into account that everybody's in their own world and they may not be noticing me and that's okay.
- 31:22Right.
- 31:23which is a hard one to adapt with cancer on board because it's kind of like, but it feels like the world's against me because it's very isolating.
- 31:34Even like within my family group, like people are like, I get it.
- 31:39I understand.
- 31:39I'm like, no, you don't.
- 31:41Right.
- 31:41Like you just don't.
- 31:43Yeah.
- 31:44I've had family members tell me that they're, they're hurt knee.
- 31:46They understand my pain because I have a hurt knee or I have a, yeah.
- 31:51So there's some things that you do.
- 31:54That's why I'm like, I don't like needles, but I'm going to try to shut up about it.
- 31:59That's like I shared kind of before is I've also learned a lot just kind of seeing your updates and the things you post because my grandmother had cancer, but she was much older.
- 32:14Yeah.
- 32:15And my uncle right now has cancer and he's also got diabetes and it's like...
- 32:21He's also older.
- 32:22And so like a lot of their care was, you know, it's like, well, we're going to see what we can do, but it was, it's just, it's so different.
- 32:30And that's why I'm learning.
- 32:31Like even, I was so young with my grandmother that I saw you like going in for transfusion.
- 32:37And I went, I guess I thought that chemo was like the radiation.
- 32:42I didn't really put that together that like chemo was a thing that is pumped into or, you know, I,
- 32:49Yeah.
- 32:49I was like learning.
- 32:50I'm like, okay, this is, this is something else.
- 32:52oh
- 32:53it's actually really interesting.
- 32:55So my first chemo treatment I started was just like a regular IV like when you go to the ER.
- 32:59Yeah.
- 33:01And after about a month of treatment, it started to burn my veins, the medication.
- 33:08And so we went in and I had a surgery and I got this guy put in.
- 33:14Right now there's a bandaid on it, but it's called a port.
- 33:19And it's like a little bump under my skin that goes straight into my heart artery and it like distributes the medication like throughout my body like that.
- 33:29Wow, that's crazy.
- 33:31so that it doesn't like damage my veins, blow my veins out, all that kind of stuff.
- 33:36Yeah.
- 33:37Wow.
- 33:39So I will admit, cause I want to, I want to take like jump into this moderately slow, but I do have, I do have bathroom related questions too.
- 33:51And I don't ask these and listener, if you're hearing this, it's like for goodness sakes Hunter, like the man's telling you his story and he's getting ready to jump in with his
- 33:59bathroom.
- 34:00But like, I have just too much curiosity of,
- 34:06And you're, you're very open and transparent with this, which is one of the things that stood out.
- 34:10And it's like, I got to like, have you noticed any bathroom change?
- 34:16Whether it's, you know, through any part of this journey, whether it's the heart stuff growing up, mean, you know, like what's, what's the bathroom sitch like on chemo, you
- 34:27know?
- 34:28so growing up with a heart condition, never really had anything different like bathroom wise.
- 34:34That wasn't really an issue for me.
- 34:36But with cancer, it's a whole nother animal.
- 34:40So when you get chemo, chemotherapy is still like, like a radiating chemical in your body.
- 34:51for the first 48 hours after I get chemo, I'm not allowed to be around my wife or my son.
- 34:58Whoa, okay.
- 34:59Actually, I can be around Jess now, but when she was nursing, I couldn't be around her.
- 35:04Right, right.
- 35:06And I can't be around anybody under the age of 18 for the first 48 hours because their body, like if they did touch like my sweat or I coughed or something like that, it can
- 35:18burn them.
- 35:20Gosh, really?
- 35:21didn't know that.
- 35:22That's
- 35:23Yeah, so and I actually I have a really funny story.
- 35:26So I find out that I have these these things that life has blessed me with because of cancer and so I call them superpowers even though they're not.
- 35:39One of them being mosquitoes and bugs can smell the chemo and don't touch me.
- 35:45There you go.
- 35:47which, you know, it's a win.
- 35:52And then I have a pretty big lot at our house.
- 35:56We live on an acre and we have a big fenced backyard and I was doing some yard work one day and I was like, man, I really have to, I have to pee.
- 36:03And I just kind of looked over and I said, I wonder, and I saw a weed.
- 36:08So I peed on the weed and like within hours it was dead.
- 36:13No way that okay and it's just the radiation of it all like
- 36:18Yeah, so it's the leftover chemo chemicals in my body.
- 36:22Oh my gosh.
- 36:23I'm a weed killer.
- 36:25How's it say dude, European weed killer, that's wild.
- 36:28Yeah, so the superpowers, right?
- 36:31Dude, man, not like bottle, this is weird, but like I wouldn't make a show about bathrooms without being, but like, dude, you could bottle this and sell like quote unquote organic.
- 36:42I don't know if that's still technically true, but like organic weed killer.
- 36:45It's like, hey guys, home brood.
- 36:47That's what it is.
- 36:47Yeah, it's home brood.
- 36:50Okay, I got a bajillion now, but is the pee a different color?
- 36:54Yeah, it's darker.
- 36:57It's always darker.
- 36:58Even if I'm hydrated, it's dark.
- 37:00Man.
- 37:01Yeah.
- 37:01Okay.
- 37:01Wow.
- 37:02That's crazy.
- 37:04Yeah.
- 37:04Did you tell Jess about that?
- 37:06yeah, she was like, that's funny.
- 37:08And I was like, yeah, it is really funny actually.
- 37:11So, cause I was like, I was just curious.
- 37:13And so I did.
- 37:14And that's what happened was it died.
- 37:18Now you gotta be careful though, because if you ever tried to like just pee on a spot that you didn't want dead, it's gonna be like, oh gosh darn it.
- 37:26Yeah, I gotta keep it in the back of my head now
- 37:29Yeah, I've bungled the lawn, no.
- 37:32Man, so okay, was there any other sort of bathroom peculiarities?
- 37:37Does it give you, not to be crass, but does it give you diarrhea?
- 37:42it gives you all the things.
- 37:43gives you diarrhea, constipation, stomach pain.
- 37:46gives you, sometimes you can get incontinence because of it.
- 37:50Sometimes you can get so backed up that like just nothing will come out, you all that kind of stuff.
- 37:56And it just depends on what chemo you're doing, because there's thousands of them.
- 38:00um So mine, the main thing is diarrhea.
- 38:05And then the other one is constipation on that side effect.
- 38:08So they're like you could either be stopped up or you could just be losing everything.
- 38:11It's just kinda
- 38:13Oh, what a joy to balance.
- 38:17Yeah, and one of the things that chemo does is it also harms your other organs in your body to a certain extent because it's poison.
- 38:25I try to use my best radio announcer voice when people are like, what are you doing tomorrow?
- 38:29I'm like, I'm going on in to get my regularly scheduled dose of poison.
- 38:35try to be as jokester about it as I can.
- 38:39So one of the other changes with the bathroom that comes with chemo,
- 38:45is during that quarantine period, I have to flush twice.
- 38:50So if I use the restroom, either one, if I use number two, number one, if I flush it once, there's still a possibility, they said that testing has shown them there's a possibility
- 39:01of the radiation just sticking within the bowl.
- 39:06And so you flush again to like pull everything out of the bowl.
- 39:11so that the next person that sits down isn't sitting over top of all these radiating chemicals.
- 39:18That's wild.
- 39:19Yeah, yeah, basically Iron Man and I fell into a vat.
- 39:23Yeah, yeah.
- 39:26Man, do you, and you've experienced both the the stopped up and the going too much with yours or has it been?
- 39:34It's just unfair.
- 39:35it, really, you know, exactly.
- 39:39Because then I imagine, you know, my wife's had some like stomach related stuff in the past.
- 39:45Nothing, probably nothing to that extreme, I'm sure.
- 39:48But like.
- 39:49she's had stuff where it fluctuates and it's like, know, honestly, if it was just one, I feel like I could, but I don't know which one it's gonna be today.
- 39:58Like, what are we gonna do today?
- 40:00And it's, I imagine that's a chore.
- 40:02Yes, yeah it is.
- 40:04And one thing that chemo did do was it damaged my pancreas.
- 40:09So your pancreas is what creates the enzymes to break down your food.
- 40:15so I at one point just started bleeding out the back.
- 40:21No.
- 40:22Yeah, just copious amounts of blood.
- 40:25I had to give four full units of blood one time when I went into the hospital.
- 40:31And and, and that, all that much blood had come out, like, the SS backside?
- 40:37Yup.
- 40:38Yeah.
- 40:40it was quick.
- 40:41Like, it was like, I went to bathroom the first time, I looked down, there was nothing but red liquid.
- 40:45And then for like the next hour after that, I was like, okay, maybe it's just once.
- 40:49I like, know, Jess's dad is a paramedic and they live here with us now most of the year.
- 40:55And so um I told him, was like, I need you to come look at something.
- 41:00And then I took a picture of it.
- 41:01Yeah, I took a picture of it, which sounds really weird, but.
- 41:05Not on this show, it doesn't.
- 41:07I'll promise you that.
- 41:09And then I sent it to one of my dad's old bosses who used to be in oncology.
- 41:15And I said, hey, she's like another grandma to me.
- 41:18I was like, hey, Melody, this is what happened.
- 41:21What do you think?
- 41:21She was like, you need to go get a colonoscopy.
- 41:24And I was like, great.
- 41:25She was like, you may even need an endoscopy, which is the top end.
- 41:30So we tried to look for somebody locally that would do it and nobody was comfortable with it because of my heart condition.
- 41:36And so I never got that done.
- 41:39I ended up in the hospital a few times because of bleeding.
- 41:42So they put me on a medication that just coats the lining of your stomach.
- 41:46That way if there's any small ulcers that are bleeding or anything like that, it kind of seals them over.
- 41:54so that was a fun change.
- 41:57And then because of the whole pancreas thing, for a good month I was not gaining any weight.
- 42:03And I was kind of fluctuating down slowly and we were trying to figure out why.
- 42:09every single day for a few months was nothing but diarrhea.
- 42:13And it was just liquid.
- 42:15There was nothing else.
- 42:16I was losing all my water.
- 42:17I was losing all the protein.
- 42:18I was losing everything.
- 42:20And so we finally ended up at a GI specialist and they did a test and they said, so your cankeris doesn't create the enzyme anymore.
- 42:28So we're going to give you the enzyme to take.
- 42:31So now if I have a meal, I have to take three pills.
- 42:36Yep.
- 42:36It's called Creon.
- 42:38Yep.
- 42:38That's what it is.
- 42:41My wife's dabbled in them.
- 42:43She's dabbled?
- 42:44Yeah.
- 42:46They're, dude, they're weird.
- 42:47Like, they are.
- 42:49They look like little pills filled with pellets.
- 42:51That's what they tell people.
- 42:52It's like hamster pellets.
- 42:54Yeah, kinda.
- 42:56But I carry them.
- 42:57It does.
- 42:58yeah.
- 42:58Ever since I got that, like no issues.
- 43:01Which is perfect.
- 43:02Yeah.
- 43:03I'm so glad that we went and did that because I was like, heck yeah.
- 43:07Like let's make this happen.
- 43:08So any other little problems that I can solve besides the cancer is like just a little win for me.
- 43:15Dude, it's very like you telling that account and like the way you responded to quote, all blood in the toilet is such a just, I, if there was like an isolation of like, yeah, this
- 43:28man's dealt with some health concerns.
- 43:30The way you respond to that is to me the indicator.
- 43:34Cause if I went and I stood up, took a peek and I, I saw, honestly, if I saw any amount of red, I'm probably heading straight to the ER.
- 43:45Like, and that's just, that's where I'm at.
- 43:47Like, I don't think I would handle that well at all.
- 43:49And so like, for you to be like, oh, I'm gonna see what, see if it happens again.
- 43:53I'm like, good night.
- 43:55Yeah, I was like, I'll give it a couple hours.
- 43:57If I go to the bathroom again, then yeah, I'll go in or whatever if it like just keeps bleeding.
- 44:02um And uh so I gave it a timeframe of an hour.
- 44:09And I said, you know, if within the hour I go again or more than once, then I'm gonna go in.
- 44:15And I think I used the bathroom like six times within that hour and everything was just blood.
- 44:24Man, dude, that is wild.
- 44:27They sent me to the ICU because of it.
- 44:29So it was...
- 44:31I don't even have diarrhea as any frame.
- 44:35I have not even had that as a frame of reference for that frequency, let alone the contents.
- 44:40That's crazy, dude.
- 44:42Yeah, I call it the fightin' chair, because I've done some fighting in there.
- 44:46For sure.
- 44:48The Fighting Chair, yes.
- 44:50Just one more name in my belt of names for where I sit.
- 44:55So frequently.
- 44:56Yep.
- 44:57dude.
- 44:59Like for the longest time, people thought like, the whole from a bathroom things are, he just, I am truly on my toilet right now.
- 45:07Like, yeah, I, told the kids at the high school I work at, I like, I really like, you guys understand, I sit on the toilet a lot.
- 45:14Like, and not necessarily doing activities that are toilet related, but like I am in there a lot.
- 45:19You're like, I'm just on the toilet a lot.
- 45:21Yeah.
- 45:22Yeah, but I'm not like allowed to tell them as much like if they ask I can tell them it's kind of weird it's kind of like you know proselytizing you can't like self promote.
- 45:29But it's like yeah you know.
- 45:32podcast.
- 45:33Yeah, I've got a podcast.
- 45:34Why are you in the bathroom?
- 45:35It's kind of hard to explain.
- 45:36That's kinda what it's about, actually.
- 45:39Yeah, dude, it's the joke that never stopped.
- 45:45I have a bunch of questions.
- 45:48Yeah, I'm gonna fire away.
- 45:50And if you've, as we go, you're like, I actually have some stuff I need to say about that.
- 45:53Feel free to stop me.
- 45:55Yeah.
- 45:55And these are like, they're low level.
- 45:59First is like, what is y'all's ideal go-to toilet paper there at your house?
- 46:03What do you guys prefer?
- 46:05So since cancer, it's changed.
- 46:07Okay.
- 46:08We used to get like the Costco Kirkland brand or like the Sam's, we have Sam's club here, not Costco.
- 46:15so it was always the members Mark brand.
- 46:18And then when I got diagnosed, we have now gone to Quilter Northern, three ply, ultra soft because of the amount of time that I spend in the bathroom and that and dude wipes.
- 46:31Dude.
- 46:34Praise be to the dude wipes, I'm telling you.
- 46:36I got my pumpkin, I got my Duncan spice.
- 46:39dumb fence spice, that's awesome.
- 46:41I have the non scented camo ones.
- 46:45And then I do the mint chill ones as well.
- 46:48Ooh, Mintchill sounds like it would be an adventure.
- 46:50It is.
- 46:51It's got like a little little tiny bit of menthol so it's like just a little bit of that like
- 46:58I bought a 12 pack of the Duncan spice and I'm working through them slowly.
- 47:04that might be that, that mint chill.
- 47:06That's going to be, I think a future purchase for sure.
- 47:11So with the, with the Quilted Northern, do you all fold it over or under?
- 47:14Like beard or mullet is really like how people.
- 47:18It's definitely a beard.
- 47:21Is that one of those where you're like, this is the right way?
- 47:25Or is it just like, you know, it's how it happens.
- 47:29So the way I was always taught how to replace the toilet paper in a bathroom growing up because when we were getting taught how to do chores, we were told that toilet paper that
- 47:40doesn't touch the ground is always better.
- 47:43So if you do mullet style, it has more of a chance of slowly over time just falling to the ground and then being dirty and you can get sick from that.
- 47:52And so I've always just done it the other way because there's less likelihood of it falling down and over.
- 47:58Even if it does fall down, it still has to like keep unrolling itself to do that.
- 48:03It's got a lot more to overcome to get to that point.
- 48:06Yeah.
- 48:07So.
- 48:08Yeah.
- 48:09Is Jess in agreement on that?
- 48:11I know like sometimes couples, they're like, no, this is a point of contention.
- 48:16Yeah, no, she, she agrees.
- 48:18Uh, she, when we got married, it was kind of like, we did it the same way and it was like, cool.
- 48:22That's not a fight.
- 48:23Sweet.
- 48:24That's not the argument.
- 48:25Yeah.
- 48:27So that was good from the beginning on that one.
- 48:30That was pretty good.
- 48:30uh, but, and so it's really funny cause growing up my dad, I like to call him what I call a gravity pooper.
- 48:41So he, he doesn't push.
- 48:43He just lets gravity do the work for him.
- 48:45Okay.
- 48:46And so if he has to go to the bathroom, we called it camping.
- 48:50Yeah, he's in there for a minute.
- 48:52He, like an hour or two sometimes.
- 48:55Like he would, he'd be in there looking at a hunting magazine.
- 48:58Like that was what he was doing.
- 48:59Dad, why you got all this?
- 49:03All this literature.
- 49:05And then my grandfather got me a joke book that was bathroom jokes that I always had on our toilet in the kids bathroom growing up.
- 49:15And so that was, that was fun, but.
- 49:19Yeah, my entire family on my dad's side, they always take forever to go to the restroom.
- 49:23I don't know what it is.
- 49:25I don't know what it is.
- 49:25Let gravity do it.
- 49:27Yeah.
- 49:28Yeah.
- 49:30Some people like to like, you know, get on with their lives and some people are psychopaths.
- 49:34So, you know, or they just have way too much time on their
- 49:37Yeah, it just waited out.
- 49:39I don't know.
- 49:40I start to get worried about myself and my family if I'm like, I mean, I have been in here for 10, 15 minutes.
- 49:45I wonder if they think I'm okay and...
- 49:48What do they think is going on in here?
- 49:51haven't checked on me at all, like maybe they're not okay.
- 49:54Like yeah.
- 49:56Okay, dude, gravity, that's...
- 49:58Do you prefer bar soap or liquid soap?
- 50:02for like hand washing.
- 50:05That's I leave that up to or yes.
- 50:08Yeah, see I leave that up to the guest for their their response
- 50:12So for showers, I use Duke Cannon.
- 50:14Let's go.
- 50:16for washing my hands, whatever my wife bought at Bath & Body Works.
- 50:21Dude, we're like, I think we're strangely synced up on this because like just the dude wipes, the Duke Cannon, like whatever.
- 50:31Yeah.
- 50:31Summer citrus, whatever's in that.
- 50:35Like truly the Costco pumper.
- 50:37Okay.
- 50:39Have you ever been a liquid soap in the shower guy?
- 50:42So I mean for like shampoo and conditioner and stuff like that, but right now I actually use Duke Cannon's shampoo puck that they have that's like a little rub on and then you
- 50:51just, but for a while I was just like, yeah, whatever my wife has in the shower, that's what I use.
- 50:57So, yeah, that's one of the benefits of being married is you don't really have to worry about buying hair products because they're just around.
- 51:04Yeah, and I don't know, like, sometimes they test them, like, I'm not really a fan of this shampoo.
- 51:09And I was like, I know who will be, because it's already been paid for.
- 51:12Yeah, I'll do it.
- 51:14I have 12 in one.
- 51:17What's this one?
- 51:18It only does one thing?
- 51:20It makes your hair smooth?
- 51:21Like, my conditioner can cook oil.
- 51:23Yeah.
- 51:24my gosh, it removes the paint on the edge of the shower.
- 51:26No.
- 51:26Yeah.
- 51:27Yeah, they used it to take shells off of ships back in 1843 and that recipe has just continued on and on.
- 51:35Have you ever carved, like Jess or anybody else in your life, a message in the bar soap?
- 51:41So I've never actually carved soap.
- 51:43That's actually something that's really funny.
- 51:45There was a movie, I don't remember what movie it was, but this guy carves like a bird out of soap and then puts it in his pocket and tries to go surprise this lady, but it rains.
- 51:54And so he just reaches into his pocket and it's just like soap suds that come out.
- 51:58He's like, well it was a bird.
- 52:02Yeah, so no, I've never actually carved soap before.
- 52:08Me neither.
- 52:08just, know, somebody at one point asked me, it's like, Hey, have you ever gotten a message on a bar of soap?
- 52:13And I went, what are you talking about?
- 52:15He goes, Oh no, I used to carve messages to my brother when we shared our shower when growing up.
- 52:20I'm like, that's crazy.
- 52:21I got to start asking people.
- 52:23Yeah.
- 52:24Nobody has except for him.
- 52:26So here we are.
- 52:27Well, that might be something he should talk to his therapist about.
- 52:31Yeah, or maybe his brother.
- 52:34Messages, you know, like I asked him, I said, do you know if you ever read them?
- 52:37Oh, I have no idea.
- 52:38I was like, you did it.
- 52:38And you never said, Hey, did you get my message?
- 52:41Like you're killing me right now.
- 52:42That's the bit you commit to though, because if you admit that it was you, then they know.
- 52:48That's right, that's right.
- 52:49Keaton, how do you feel about baths?
- 52:51Ooh, I love a good bath.
- 52:53Yeah, so it's actually really funny.
- 52:55My dad's a nurse and baths growing up would fix everything.
- 53:01So you had a migraine, go lay in the bath, have a Coke and Tylenol.
- 53:04You your stomach's upset, just go lay in the bathtub and turn on hot water and drink some peppermint tea.
- 53:12And it was always like the remedy plus a bath growing up.
- 53:16Yeah
- 53:17Was the approach that we took and then like especially with muscle pain and all that kind of stuff growing pains all that kind of thing.
- 53:23Yeah Wow water and all that kind of stuff
- 53:27Interesting, yeah.
- 53:31I wanna be a bath guy, but I'm not there.
- 53:34You're not there.
- 53:35Yeah, I get in my own head about it.
- 53:37Like, is it human soup?
- 53:39And um what am I if it is?
- 53:41it almost gets existential to me in a way that is not helpful.
- 53:47um But yeah, my wife's big on baths and she's like, just try it, it's nice.
- 53:52I'm like, yeah.
- 53:55Do you like hot tubs?
- 53:58No, I don't.
- 53:59It's just like hot bodies of water.
- 54:01You just don't like sitting in them.
- 54:03I'm even weird about pools.
- 54:06Like, give me a lake, give me a stream, even the ocean, like no problem, I'll get up in that.
- 54:12It's like something about the fact that like it's nature and it's already gross or it's moving.
- 54:17But man, like my kids love the pool.
- 54:19So it's like, well, we're going in and I've got to get past this, but it's just weird.
- 54:22I'm like, crypto, do you get all sorts of weird bacteria?
- 54:26Like nobody ever gets everything fully clean.
- 54:30We'll just leave that there.
- 54:31Okay.
- 54:32Do you have any bathroom pet peeves, like things that either, you know, often it's the spouse, but sometimes, you know, growing up, whether you have siblings or whatever, do you
- 54:41have anything that people do that just drives you up a wall in the bathroom?
- 54:45have two things.
- 54:46Perfect.
- 54:46have PTSD from my childhood because I was in charge of cleaning my brother and I's bathroom.
- 54:52That was one of my chores.
- 54:53And my little brother, I kid you not, would spit loogies into the sink and just leave it there and so it dry at the bottom of the sink.
- 55:01Yeah, it was gross.
- 55:02And then he would also just let the toothpaste get all over the counter and not clean it up.
- 55:08Those are my two main ones.
- 55:10And then I guess another mini one would be, there's a toilet brush there for a reason.
- 55:15If you leave skid marks, clean that bad boy out.
- 55:18Nobody wants to look at that.
- 55:19I mean, come on.
- 55:21Just be nice.
- 55:23Yeah.
- 55:24Yeah.
- 55:24Sort yourself out.
- 55:25Yeah.
- 55:26Because nobody will admit it, but like every time you go to the bathroom you look down at the toilet first.
- 55:30Like, you just do.
- 55:31Yeah, I do.
- 55:32mean, I've said so many things about my bathroom situation on this show in the last six years that it's like, people could probably make a graph of my like movements.
- 55:44Like, can track your schedule at this point.
- 55:47oh
- 55:47can track my location because I've got an app where I can like, I log every time I go poo and where I was at to do it.
- 55:54And so truly like people know that three, two hours ago, two and a half hours ago, I was at Fred Meyer.
- 55:59He's like, what's he doing?
- 56:02I see.
- 56:03I see now.
- 56:03Yeah, Albany Fred Meyers is a good poop spot.
- 56:06I will give you that.
- 56:07It is when your wife goes, hey, we need limes.
- 56:11You think you could stop and get some limes?
- 56:12And I'm like, really trying to get home till you get set up, but yeah, I'll get some limes.
- 56:16And then I walk through the door and I go, glad this hit for the afternoon.
- 56:22I'm not gonna make it home for that.
- 56:24uh
- 56:25I will see you in three days, honey.
- 56:27I'm gonna be in the bathroom.
- 56:28Yeah, yeah.
- 56:30Do you have a restaurant or an eating establishment that messes you up the worst as far as the bathroom?
- 56:36So because of cancer and everything, a lot of foods do mess me up.
- 56:42I do actually have a recent story.
- 56:44uh So being down here in Mississippi, I have some friends from Louisiana.
- 56:51they, down there, them Cajun folks, they eat some different food, that's for sure.
- 57:00I don't know if you've ever tried Bhutan.
- 57:02Mm-mm.
- 57:04It's like a rice sausage with chicken liver and all sorts of different stuff in it.
- 57:08It's actually really good.
- 57:10Okay, chicken liver's giving me pause.
- 57:12But yeah, so it's it's actually really good.
- 57:14You can't taste it like it just tastes like a good sausage like that's what it tastes like but it's got a different consistency because it's got rice in it And apparently that Cajun
- 57:26delicacy destroys me oh
- 57:32a full week of diarrhea from that one.
- 57:34And that was even with taking my Creon pills.
- 57:38And one of the things, if you go into our bathroom, it's really funny, we have all these bins and they're labeled.
- 57:45So one says pain, one says as needed, one says daily, and then there's an entire one up in the corner that just says tummy.
- 57:52And it's everything from stool softeners,
- 57:57to Lamodal, which is a heavy duty anti-diarrheal.
- 58:01And then we've got like Miralex up there.
- 58:05We've got the, and like, and it deals with like nausea stuff too, but like it it's more like everything that has to do with your stomach that's in that box.
- 58:15And so, you you got your PepDo, you got your, your, all your different things for your, you know, your ailments of the stomach and, and digestive system.
- 58:24So.
- 58:25We are very well stocked in bathroom support meds.
- 58:30That's dude that the tummy bin is that might be the move and The bins is honestly good because like I open ours and it's it's an absolute disaster wasteland to find what's going
- 58:43on in there.
- 58:43It's like You know, I think we have that let me look and and in your rifling for an hour.
- 58:53Yeah Do you have you ever okay so a couple questions related to the shower
- 58:58Have you ever taken a dark shower?
- 59:01Mm-hmm.
- 59:03Like just with no lights?
- 59:06Yep.
- 59:07Yeah.
- 59:08So actually with a lot of the pain that I get from the cancer is in my lower back.
- 59:15And so I've actually spent a lot of time in the shower.
- 59:20Sometimes in the middle of the night and with sharing a master suite with my wife, I mean...
- 59:25I kind of have to just be no lights.
- 59:30So yeah, I've done it a few times.
- 59:33Yeah.
- 59:34Do you like it at all with the lights off?
- 59:38I mean, it just, at that point, when I have the lights on and I'm in pain, I just close my eyes and put my head against the wall and let the water hit my back.
- 59:46And so, it just kind of feels like I have my eyes closed.
- 59:51Yeah, it's interesting because to me, the dark shower is almost a delicacy where it's the sensory deprivation chamber type effect of the thing where it's interesting because yours
- 1:00:04and mine started in that like, I don't want to wake Anna up.
- 1:00:08But yours is more the, well, I prefer the lights on, but this is out of necessity.
- 1:00:16It's fascinating coming at it from a different end there.
- 1:00:18Yeah.
- 1:00:19Have you ever eaten an orange in the shower as if it was an apple?
- 1:00:24So not an orange, but I have eaten apples in the shower.
- 1:00:27Back when I used to drink beer, nothing would beat a shower of beer.
- 1:00:30I mean, was just, that was a good time.
- 1:00:32It always felt extra refreshing in the shower.
- 1:00:34So I've done that and I brush my teeth in the shower.
- 1:00:37Not a of people brush their teeth in the shower, but that's one thing that I do.
- 1:00:41Okay, do you- I mean, and it just spit straight down the-
- 1:00:44I just scrub right down the drain and it washes it out.
- 1:00:46Do you have like the toothbrush rack in the shower too?
- 1:00:50Yeah, so we have one fur that's like magnetic for my wife's razor on one side of the shower And then I've got like the little like holder one fur on the other side.
- 1:00:58That's okay
- 1:00:59Yeah.
- 1:00:59Huh, interesting.
- 1:01:00Yeah, I...
- 1:01:02Is the toothpaste in the shower?
- 1:01:04Mm-hmm.
- 1:01:05Whoa, okay, that's wild.
- 1:01:07Yeah.
- 1:01:08That's a new world for me, for sure.
- 1:01:10Yeah.
- 1:01:10I don't know.
- 1:01:11That'd be interesting if I...
- 1:01:12I'm trying to think what I would do.
- 1:01:14You can try it.
- 1:01:16But my toothbrush is like battery, and brrr, you know, and I'm like, am I gonna flood this thing and make it not work?
- 1:01:24So I got this one called a quip.
- 1:01:27Okay, so that's what I use in the shower.
- 1:01:29That's fine.
- 1:01:31Well, I might have to give it a shot then because yeah, we've got to like the whole quip hook it up to the phone We did that to track the kids.
- 1:01:38It's like, are you?
- 1:01:39actually brushing my teeth.
- 1:01:41Yeah.
- 1:01:41I know I've done the quip one in the shower because it's like a lot of silicone everywhere.
- 1:01:44It's not like it's there's not really a lot of electronic parts.
- 1:01:47The bottom is where you charge it and so as long as you go to charge it and you just kind of wipe it off beforehand you shouldn't have any issues.
- 1:01:53Recharge job.
- 1:01:55got it.
- 1:01:55need to update my quip is old school Like it's got the triple a battery that they send me in the mail every month.
- 1:02:02wow every three months, I guess yeah, Still works though.
- 1:02:06Like whatever they've got built into that.
- 1:02:08It's it's doing well, huh?
- 1:02:09Not a sponsor but like quip.
- 1:02:11Hey quit a job And then so and then the question that has kind of become the question that people are like, are you gonna ask them?
- 1:02:22is have you, Keaton, have you ever performed a waffle stomp?
- 1:02:26don't act- yes yeah mm-hmm mm-hmm yes I have
- 1:02:31I was gonna say, I'm happy to explain the waffle stomp.
- 1:02:33I do have to explain it probably 75 % of the time.
- 1:02:37And we'll explain it.
- 1:02:38It took me a second, but I understand what you're saying and yes I have.
- 1:02:43Yeah?
- 1:02:44Yeah.
- 1:02:44How long ago was that waffle style?
- 1:02:49Yeah.
- 1:02:50Yeah, it was kind of like out of necessity at one point.
- 1:02:54It always is.
- 1:02:54Except for the one time that I did it out of experimentation.
- 1:02:57Just to see it.
- 1:02:58Well, I had never done one.
- 1:02:59And I was like, well, I gotta do it.
- 1:03:01Like, I can't keep asking people if they do it and never have done it.
- 1:03:05you did it.
- 1:03:06Yeah.
- 1:03:06Yeah.
- 1:03:07So I full sent it and my wife was a little upset because it was in our apartment.
- 1:03:13And I'm like, listen, it's research.
- 1:03:16Was she in the shower though too?
- 1:03:17Cause I would be-
- 1:03:18No, no, was not.
- 1:03:22Yeah, yeah, I was solo missioning in on that one.
- 1:03:24Okay.
- 1:03:25Good, at least you didn't like you'd others.
- 1:03:27Dude, I've had, listen, you've been very tame as far as like what people, cause I had a dude, he's like, yeah, I mean, I just like pee on her.
- 1:03:37I'm like, stop, just stop.
- 1:03:41It's like we're married and it's still weird to me.
- 1:03:45is, yeah.
- 1:03:45You're like, did she get stung by a jellyfish?
- 1:03:48No, why do you need to pee on her?
- 1:03:50They're practicing for it.
- 1:03:51No.
- 1:03:52Yeah.
- 1:03:52eh
- 1:03:53Get my accuracy down.
- 1:03:55Yeah, so you have done the stomp.
- 1:03:58I'm glad that, you know, I don't get many.
- 1:04:00Most people, I'm probably saying like probably 10 % of folks that have been on this show have been like, yeah, oh yeah.
- 1:04:06So that's cool, know, boosting those stats.
- 1:04:09Yeah, so I have a question for you then.
- 1:04:12Have you ever had to find an emergency pair of pants like in a store?
- 1:04:18uh Like if you were sick or you had like a bad stomach issue?
- 1:04:24The closest I've ever got, and it wasn't necessarily pants, I did a risky fart when I was probably, I was in college and I was mentoring and I was on my way home and coming down, I
- 1:04:39don't know if you know Salem, but Lancaster's a big main road down Salem.
- 1:04:44And I pretty much had to go from one end of that to the other and I'm like, hitting every light, hitting every light.
- 1:04:49And my tummy's kind of got, I got the bubble guts going.
- 1:04:52kind of tried to sneak and I should not have because I did poo a little bit.
- 1:04:56And it was one of those where it's like, I'm definitely going to make it home, but I'm just uncomfortable in my car now.
- 1:05:02And I'm already, I'm already late for dinner.
- 1:05:05So I like pulled into a Walmart and like grabbed a three pack of Hanes and then ran in the bathroom, swapped them.
- 1:05:11And, but I didn't go through onto the pants.
- 1:05:13That was my big worry was like, gosh.
- 1:05:16it's gonna seep through and get onto the pants and then I'm gonna have to walk through the apartment complex and whatever and I'm like, no, no, no, I'm just gonna run in and change.
- 1:05:25So I've had to do that, but never like never a full pair of pants.
- 1:05:29Yeah, so I had to buy a pair of pants at TJ Maxx one.
- 1:05:32Wait, wait, so again, was this post like cancer and treatment?
- 1:05:38okay.
- 1:05:39Well, you get a lot of grace and understanding, I think, based on the stories that have been told thus far.
- 1:05:46No one, I don't think is going to knock you on it, but like, what an absolute jam of an expenditure to explain to your wife though, I bet, huh?
- 1:05:54yeah, and then I have this card that I keep in my wallet.
- 1:05:58It says, the cancer card.
- 1:06:00This card entitles the holder to get out of anything because they have cancer and that's enough to deal with.
- 1:06:06And so if anybody ever gave me crap for like pooping my pants in TJ Maxx, I'd have been like, there you go.
- 1:06:12Here's my card.
- 1:06:14Dude, man and TJ Maxx, what a, what a pull.
- 1:06:19There's not a bad bathroom for it though.
- 1:06:21They're pretty clean.
- 1:06:22Yeah.
- 1:06:22Really?
- 1:06:23Okay.
- 1:06:23Yeah.
- 1:06:23Dude, I will tell you this, the Walmart bathroom is not.
- 1:06:27Yeah.
- 1:06:27It is not known for being much other than dirty and loud as people are screaming to get things out and listen to TikTok on their phone while they like.
- 1:06:36Like blast, full blast.
- 1:06:38I'm like, even if you go into pee, there's always somebody in there on their phone.
- 1:06:43It's like, dude, put your AirPod in or like just wait till you're done.
- 1:06:46I don't know.
- 1:06:47That's probably one of my pet peeves.
- 1:06:50You mentioned some shower drank.
- 1:06:52Do you do any other bathroom snack?
- 1:06:54Like you ever have like a toilet snack or anything?
- 1:06:56So yeah, I don't know how comfortable you guys are with this, but I've worked myself off of painkillers as far as my pain, and so I THC for pain management.
- 1:07:09sometimes I'll take a shower and I'll have a seltzer.
- 1:07:13And that gets me, you know, hungry.
- 1:07:17And I've eaten a full bowl of cereal on the toilet before.
- 1:07:21Oh, what flavor, what flavor?
- 1:07:24Let's go!
- 1:07:25man, so some flavors of Cat McCrunch will make you poop green.
- 1:07:28Yeah, okay.
- 1:07:32Was that a follow-up?
- 1:07:33There's actually a Halloween Captain Crunch that the milk turns green?
- 1:07:37Yes.
- 1:07:38That's always been the worst for me.
- 1:07:40dude, I think you are the first.
- 1:07:42It's like, yeah, bowl of cereal on the toilet.
- 1:07:46And I will be trying it.
- 1:07:48So I do endeavor to attempt people's snack.
- 1:07:53And it's also not the wildest.
- 1:07:55I've had some wild ones, steak.
- 1:07:58Like steak in the shower was the specific statement.
- 1:08:01I'm like, under what circumstance does that need to be a thing?
- 1:08:05And I also had a guy, he's like, yeah, love you.
- 1:08:07Like ribs, if I can get like a couple ribs while I'm on the toilet.
- 1:08:11I'm like, dude, it's like the last place I want that much barbecue sauce.
- 1:08:16you know, but dude, bowl of cereal is a good pull.
- 1:08:19Yeah, it was a good decision.
- 1:08:21The only thing is, it's a weird feeling to be filling up and emptying at the same time.
- 1:08:29And basically what I kind of equate it to is I imagine that's how an airplane that is getting refueled midair feels like.
- 1:08:37It's like eating a bowl of cereal on the toilet while you're pooping.
- 1:08:40Yeah.
- 1:08:41Yeah, that's my analogy for the day.
- 1:08:44That's perfect.
- 1:08:45That's awesome.
- 1:08:46And then, so to kind of bring all of these like ridiculous questioning and move towards a close here.
- 1:08:56I always ask people to share bathroom wisdom with folks as an end, but I'm not gonna have that be the end, but do you have any bathroom wisdom to share with people?
- 1:09:08I would probably have to go with.
- 1:09:13If you have to flush it twice, it was too much toilet paper.
- 1:09:17uh
- 1:09:19Yeah, that's wise.
- 1:09:22How many sheets do you roll with like for each wipe?
- 1:09:27two, three squares.
- 1:09:29two, three squares, and that quilted Northern's thick.
- 1:09:32Yeah, that's good stuff.
- 1:09:34uh I will admit, so I recently did like witch toilet paper, and quilted Northern was strong competitor.
- 1:09:41It was very thick.
- 1:09:42The Charmin blue bag Charmin did beat it out only because the quilted Northern roll didn't fit on my roller.
- 1:09:50It's so big.
- 1:09:52had to look it up.
- 1:09:55They sell an extension for the roll for it.
- 1:09:57And I was like,
- 1:09:58This is crazy.
- 1:09:59But it was like definitely a second for me.
- 1:10:02There's just something about those bears.
- 1:10:04They have my heart and my bottom.
- 1:10:07your heart and your butt.
- 1:10:08Yes.
- 1:10:10But Keaton, do want before I say bye, I do want you, so with doing all this stuff with Legacy Dad and, you know, get lighthearted with the bathroom talk, but I do want you to
- 1:10:22kind of, you know.
- 1:10:26The legacy dad, having a kid and having the diagnosis that you have, I can't imagine that that's anywhere near easy.
- 1:10:34Yeah.
- 1:10:37What would you say to parents, folks who have, not similar, because like you said, you are currently a one of one.
- 1:10:45Yeah.
- 1:10:45But what would you say to folks who, as they look at their lives, you probably have had to grapple with things that no person ever will?
- 1:10:55nobody probably, I'll be honest, should have to.
- 1:10:57What would you say to parents, just folks struggling with those type things?
- 1:11:03So I will probably the first thing that I would say and it kind of comes out of a story.
- 1:11:10So when I got my terminal diagnosis, we decided as a family, we were going to go on a trip together just because life's too short to not do those things, especially when you know
- 1:11:20the numbers.
- 1:11:21mean, everybody should live that way, but we were at this resort.
- 1:11:25It was like a water park place.
- 1:11:27And I went to go get drinks for Jess and her mom and dad came with us and it was a fun trip.
- 1:11:33But I was walking through the pool area and it was quarter mile from where the whatever was to the doors to go outside of the outside pool where they were at.
- 1:11:43And I counted like some 35 dads.
- 1:11:50growing.
- 1:11:51scrolling while their wife was in the pool playing with their kids.
- 1:11:55And they were just sitting in a chair by themselves.
- 1:11:57So number one, put your phone down.
- 1:12:01At least once a day, put your phone down and just engage with your kids.
- 1:12:06Ask them meaningful questions.
- 1:12:08Even if you don't think that they're going to be able to grasp it or understand it, our kids absorb so much more than we realize.
- 1:12:17yeah.
- 1:12:19I've been making it a point to tell my son every day that I'm proud of him.
- 1:12:22And the other night I was snuggling with him in bed and he throws his arms around me and he gives me a hug and he goes, I'm proud of you, daddy.
- 1:12:30You're strong.
- 1:12:31And I was like, that's what I, that's what I tell you buddy.
- 1:12:34Like, I'm glad that you hear it, you know?
- 1:12:37And then the second one is kind of just a, like a statement that I've kind of
- 1:12:46recognized throughout this whole experience.
- 1:12:48I've heard a lot of people say that they would die for their family.
- 1:12:54But when dying is the only option you have, can you live for your family?
- 1:12:59Yeah.
- 1:13:00So I find that people have a more difficult time living for their family than they do sacrificing their life in that sense.
- 1:13:09And what I mean by that is like, you know, if you like to golf, that's great.
- 1:13:15Have a hobby.
- 1:13:16but don't let it get in the way of intentional time and things like that.
- 1:13:22Because there are people out there who are not willing to change their routine to be around their families more.
- 1:13:28Right.
- 1:13:29But yet they turn around and they'll say, well, you know, if somebody attacked us, I would give my life to save my family.
- 1:13:34And I'm like, OK.
- 1:13:37Yeah, you give your life, but not your weekend.
- 1:13:39Yeah.
- 1:13:40you'd give your life, but you're not willing to change your life for them.
- 1:13:43And a big part of that is my faith.
- 1:13:45I mean, I think that, you know, we can always be better.
- 1:13:48We can always be changing.
- 1:13:49We can always be doing something different.
- 1:13:52And one thing that this whole experience has taught me is what love really means.
- 1:13:58Hmm.
- 1:13:58Yeah.
- 1:14:01I've been, I got a lot closer with my relationship with the Lord since I've had cancer.
- 1:14:06Him and I are pretty tight now.
- 1:14:08We talk pretty regularly and I was, I was doing this Bible study and I ran into this guy talking about how Paul got up to heaven and looked at people in the eye that he murdered
- 1:14:24for their beliefs.
- 1:14:26And they said, man, we love you.
- 1:14:28We are so glad you're here.
- 1:14:29We prayed for you.
- 1:14:31to be here.
- 1:14:33And when I first heard that the first time, it broke me because I was like, that's the love he's talking about and we can't even comprehend that.
- 1:14:42Right, right.
- 1:14:43So I've asked this year specifically that the Lord give me the ability to see people the way he sees them.
- 1:14:55And it means, you know, my time's not more valuable than yours.
- 1:14:59Yours is just as valuable as mine.
- 1:15:03And, you know, if somebody cuts me off in traffic, maybe they were in a hurry.
- 1:15:08They're not out to get me.
- 1:15:10Like I said earlier, know, nobody wakes up in the morning and goes, I'm going to ruin Hunter's day.
- 1:15:14Like, I'm just going to be a jerk to that guy.
- 1:15:17And if somebody is doing that, you might have a problem.
- 1:15:21But...
- 1:15:22That's how we get serial killers and stalkers.
- 1:15:24um But he's so, but yeah, mainly the, mainly the advice that I have is just, know, like you, like you said in the beginning, you know, make every moment count and don't, don't be
- 1:15:38afraid to step out of your comfort zone and change your routines because it can actually make your life a lot more fun.
- 1:15:45Yeah.
- 1:15:46So yeah.
- 1:15:47Well, Keaton, I appreciate you hopping on this and sharing.
- 1:15:51am going to be including links to Legacy Dad and the stuff that you got going on on social media.
- 1:15:59And I might even, I know that there was like an Amazon kind of support almost type registry.
- 1:16:06registry is not the correct word, but.
- 1:16:08Well, it is set up as a registry just so that there's like a shipping address and stuff.
- 1:16:13Right, right.
- 1:16:14I'll make sure to, you know, I'll find that cause I know it's out there and I'll make sure to include that.
- 1:16:19And normally, I will say normally when I end the show, I flush the toilet and I will flush the toilet, but I'm not gonna do all of my normal privy spiel.
- 1:16:28Brother, can I pray for you before I flush this toilet and say goodbye?
- 1:16:34Yeah, let's pray.
- 1:16:36Dear God, I just thank you for Keaton.
- 1:16:39God, I thank you for this time that we've had this last hour and a half or so here.
- 1:16:47Lord, I pray that He's facing a lot.
- 1:16:52His family is facing a lot with Him.
- 1:16:54And God, I just pray that you would continue to strengthen Him and His faith.
- 1:16:59Like He said at the beginning, we're praying for a miracle and planning for the things that happen.
- 1:17:04And God, we know that you're a God of miracles.
- 1:17:07And God, I pray that
- 1:17:09Yeah, that if that be your will, that we would see that and bear witness to your goodness.
- 1:17:14And if it not be your will, God, that we would recognize the love that you have for Keaton and for his family and for all those who've already been impacted and touched by his
- 1:17:24legacy in this life.
- 1:17:28And that we'd recognize your goodness in that.
- 1:17:30I thank you again for Keaton and his time.
- 1:17:32thank you for Jess and their son and the time that they have allowed for this show to kind of step in for a bit.
- 1:17:39We ask these things in your son's name.
- 1:17:41Amen.
- 1:17:42Amen.
- 1:17:43Amen.
- 1:17:44Thank you.
- 1:17:44Well dude, thank you.
- 1:17:45I'm gonna flush this toilet.
- 1:17:47uh And yeah, I'll end the recording and then I have a question.
- 1:17:53yeah.
- 1:17:54Listeners, thank you for being here.
- 1:17:56Keep pooping the free world, own your stank.
- 1:17:57And as always, don't forget to flush.
- 1:18:00Yeah
- 1:18:07good sound quality.